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palliative care and pediatric

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https://www.readbyqxmd.com/read/30100370/closing-the-gap-on-pediatric-palliative-oncology-disparities
#1
REVIEW
Erin R Currie, Steadman L McPeters, Jennifer W Mack
OBJECTIVES: To describe pediatric palliative care (PPC) in pediatric oncology, the importance of PPC for pediatric oncology patients, disparities within pediatric palliative oncology, innovative strategies for improving PPC access in underserved populations, and implications for oncology nursing practice. DATA SOURCES: Published pediatric oncology and palliative peer-reviewed articles and guidance documents. CONCLUSION: Disparities exist within pediatric palliative oncology...
August 9, 2018: Seminars in Oncology Nursing
https://www.readbyqxmd.com/read/30084750/delivery-of-pediatric-cancer-care-in-mexico-a-national-survey
#2
Laura Rodriguez-Romo, Alberto Olaya Vargas, Sumit Gupta, Jaime Shalkow-Klincovstein, Lourdes Vega-Vega, Alfonso Reyes-Lopez, Carlo Cicero-Oneto, Juan Mejia-Arangure, Oscar Gonzalez-Ramella, Rafael Pineiro-Retif, Aracely Lopez-Facundo, Maria de Los Angeles Del Campo-Martinez, Isidoro Tejocote, Kelly Brennan, Christopher M Booth
Purpose Limited data describe the delivery of pediatric cancer care in Mexico. We report a nationwide survey of pediatric cancer units. Methods An electronic survey was distributed to 74 pediatric cancer units in Mexico to describe case volumes; organization of care; and availability of medical/surgical specialists, supportive care, complex therapies, and diagnostic services. Centers were classified as low (< 30 new patients/year), medium (30 to 59/year) and high (≥ 60/year). Results Sixty-two centers completed the survey (response rate, 84%)...
July 2018: Journal of Global Oncology
https://www.readbyqxmd.com/read/30084714/qualitative-analysis-of-palliative-care-for-pediatric-patients-with-cancer-at-bugando-medical-center-an-evaluation-of-barriers-to-providing-end-of-life-care-in-a-resource-limited-setting
#3
B Emily Esmaili, Kearsley A Stewart, Nestory A Masalu, Kristin M Schroeder
Purpose Palliative care remains an urgent, neglected need in the developing world. Global disparities in end-of-life care for children, such as those with advanced cancers, result from barriers that are complex and largely unstudied. This study describes these barriers at Bugando Medical Center, one of three consultant hospitals in Tanzania, to identify areas for palliative care development suitable to this context. Methods In-depth interviews were conducted with 20 caregivers of pediatric patients with cancer and 14 hospital staff involved in pediatric end-of-life care...
July 2018: Journal of Global Oncology
https://www.readbyqxmd.com/read/30080806/compassionate-discharges-from-the-picu
#4
Tammy I Kang, Jenny Hynson
OBJECTIVES: This article focuses on compassionate discharge from an ICU setting for pediatric patients. DATA SOURCES: Not Applicable. STUDY SELECTION: Not Applicable. DATA EXTRACTION: Not Applicable. DATA SYNTHESIS: The rationale for compassionate discharge is described, along with suggestions for assessing feasibility. A patient case highlights the potential benefits of and provides specific examples of steps involved in the process...
August 2018: Pediatric Critical Care Medicine
https://www.readbyqxmd.com/read/30060727/development-and-implementation-of-a-survey-to-assess-health-care-provider-s-competency-attitudes-and-knowledge-about-perinatal-palliative-care
#5
Simone Stenekes, Jamie L Penner, Michael Harlos, Marie-Claude Proulx, Erin Shepherd, Stephen Liben, Genevieve Thompson, Grace MacConnell, Marie-Claude Grégoire, Harold Hal Siden
Perinatal palliative care is an emerging area of health care. To date, no published tools assess health-care provider's knowledge and level of comfort in providing such care. A 2-phase study was undertaken to develop and implement a survey to evaluate the self-assessed competency, attitudes, and knowledge of health-care providers working in perinatal palliative care. Phase 1 included a review of the literature and appraisal of palliative and death-related instruments to inform the initial draft of the Perinatal Palliative Care Survey (PPCS)...
July 31, 2018: Journal of Palliative Care
https://www.readbyqxmd.com/read/30030985/mortality-in-adolescents-and-young-adults-with-chronic-diseases-during-16-years-a-study-in-a-latin-american-tertiary-hospital
#6
Gabriel F Ramos, Vanessa P Ribeiro, Mariana P Mercadante, Maira P Ribeiro, Artur F Delgado, Sylvia C L Farhat, Marta M Leal, Heloisa H Marques, Vicente Odone-Filho, Uenis Tannuri, Werther B Carvalho, Sandra J Grisi, Magda Carneiro-Sampaio, Clovis A Silva
OBJECTIVES: To evaluate mortality in adolescents and young adult patients with chronic diseases followed in a Latin American tertiary hospital. METHODS: A cross-sectional retrospective study was performed in a tertiary/academic hospital in the state of São Paulo, Brazil. Death occurred in 529/2850 (18.5%) adolescents and young adult patients with chronic diseases, and 25/529 (4.7%) were excluded due to incomplete medical charts. Therefore, 504 deaths were evaluated...
July 19, 2018: Jornal de Pediatria
https://www.readbyqxmd.com/read/30015574/perceived-challenges-in-pediatric-palliative-care-among-doctors-and-nurses-in-hong-kong
#7
Wallace Chi Ho Chan, Karen Lok Yi Wong, M M M Leung, M K Y Lin
This study aims to examine perceived challenges, including knowledge, skills, self, and work environment, of professionals in providing pediatric palliative care (PPC) in Hong Kong and the differences in perceived challenges between groups. A total of 680 pediatric doctors and nurses participated in the survey. They tended to perceive the provision of PPC as difficult and considered "advanced skills" (those dealing with death-related issues) challenging. Findings indicate that nurses, professionals who are less experienced, do not have children, and have not received palliative care training perceived a higher level of challenges in providing PPC...
July 17, 2018: Death Studies
https://www.readbyqxmd.com/read/30012977/the-role-of-resilience-in-the-sibling-experience-of-pediatric-palliative-care-what-is-the-theory-and-evidence
#8
REVIEW
Wei Ling Chin, Tiina Jaaniste, Susan Trethewie
Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered...
July 16, 2018: Children
https://www.readbyqxmd.com/read/30012005/incorporating-bereaved-parents-as-faculty-facilitators-and-educators-in-teaching-principles-of-palliative-and-end-of-life-care
#9
Jennifer M Snaman, Erica C Kaye, Holly Spraker-Perlman, Deena Levine, Lisa Clark, Robin Wilcox, Brittany Barnett, April Sykes, Zhaohua Lu, Melody J Cunningham, Justin N Baker
BACKGROUND: Education and training for interdisciplinary pediatric providers requires training in principles of palliative and end-of-life (EOL) care. The experiences of bereaved parents can inform and enhance palliative care educational curricula in uniquely powerful and valuable ways. The objective of this study is to present an innovative palliative care educational program facilitated by trained bereaved parents who serve as volunteer educators in local and national palliative care educational forums and to describe how incorporation of bereaved parents in these educational forums affects participant comfort with communication and management of children at the EOL...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29996656/update-on-palliative-care-for-pediatric-neurology
#10
Ariel M Lyons-Warren
It has long been recognized that patients with neurological conditions, and particularly pediatric neurology patients, are well suited for palliative care because they frequently have a high symptom burden and variable prognoses. In 1996, the American Academy of neurology formally recognized a need for neurologists to "understand and apply the principles of palliative medicine." Subsequently, some reviews have proposed a simultaneous care model in which palliative care is integrated for all neurology patients from the time of diagnosis...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29983524/trends-and-outcomes-of-emergency-pediatric-surgical-admissions-from-a-tertiary-hospital-in-ethiopia
#11
Temesgen Firomsa, Muluwork Teferra, Amezene Tadesse
Background: Pediatric surgical emergency condition is a broad spectrum of surgical pathologies/disorders occurring in pediatric age group requiring proper emergency surgical care as the only option of management to salvage life, avoid/minimize disability or palliation. The objective of this study is to analyze the pattern and outcome of pediatric surgical emergencies managed at Tikur Anbesa Hospital and the factors associated with outcome. Methods: Retrospective analysis of medical records of patients was conducted to assess the pattern, outcome and factors associated with outcome of pediatric surgical emergencies admitted and managed at Tikur Anbesa Specialized Hospital, from January 1, 2015 to December 31, 2015...
May 2018: Ethiopian Journal of Health Sciences
https://www.readbyqxmd.com/read/29979903/methylnaltrexone-bromide-for-the-treatment-of-opioid-induced-constipation
#12
Shilan Mozaffari, Shekoufeh Nikfar, Mohammad Abdollahi
The extensive and alarming use of opioids for pain management in patients with chronic pain receiving palliative care is associated with non-tolerable gastrointestinal (GI) adverse effects. Opioid-induced constipation (OIC) is the most common adverse effect impairing patient quality of life (QOL). In addition, OIC is one of the treatment limiting consequences of opioid analgesics. Management of OIC is becoming a challenge since traditional laxatives have limited efficiency. Peripherally acting mu-opioid receptor antagonists (PAMORA) have been developed for the treatment of OIC with methylnaltrexone bromide being the first approved to treat OIC in adults with advanced illness undergoing palliative care...
July 2018: Expert Opinion on Pharmacotherapy
https://www.readbyqxmd.com/read/29957100/defining-provider-prioritized-domains-of-quality-in-pediatric-home-based-hospice-and-palliative-care-a-study-of-the-ohio-pediatric-palliative-care-and-end-of-life-network
#13
Rachel Thienprayoon, Evaline Alessandrini, Millicent Frimpong-Manso, Daniel Grossoehme
BACKGROUND: In 2017, the Ohio Pediatric Palliative Care and End-of-Life Network (OPPEN) published nine domains of high-quality care for pediatric home-based hospice and palliative care (HBHPC). Eight domains established by the National Consensus Project (NCP) were validated for pediatric HBHPC, and a ninth domain of "Continuity and Coordination of Care" was added. OBJECTIVE: The aim of this study was to establish definition criteria for each of these domains...
June 29, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29949926/supporting-parent-caregivers-of-children-with-life-limiting-illness
#14
Kendra D Koch, Barbara L Jones
The well-being of parents is essential to the well-being of children with life-limiting illness. Parents are vulnerable to a range of negative financial, physical, and psychosocial issues due to caregiving tasks and other stressors related to the illness of their child. Pediatric palliative care practitioners provide good care to children by supporting their parents in decision-making and difficult conversations, by managing pain and other symptoms in the ill child, and by addressing parent and family needs for care coordination, respite, bereavement, and social and emotional support...
June 26, 2018: Children
https://www.readbyqxmd.com/read/29945156/german-national-guideline-for-treating-chronic-respiratory-failure-with-invasive-and-non-invasive-ventilation-revised-edition-2017-part-2
#15
Wolfram Windisch, Jens Geiseler, Karsten Simon, Stephan Walterspacher, Michael Dreher
Today, invasive and non-invasive home mechanical ventilation have become a well-established treatment option. Consequently, in 2010, the German Respiratory Society (DGP) has leadingly published the guidelines on "Non-Invasive and Invasive Mechanical Ventilation for Treatment of Chronic Respiratory Failure." However, continuing technical evolutions, new scientific insights, and health care developments require an extensive revision of the guidelines. For this reason, the updated guidelines are now published...
June 26, 2018: Respiration; International Review of Thoracic Diseases
https://www.readbyqxmd.com/read/29945148/german-national-guideline-for-treating-chronic-respiratory-failure-with-invasive-and-non-invasive-ventilation-revised-edition-2017-part-1
#16
Wolfram Windisch, Jens Geiseler, Karsten Simon, Stephan Walterspacher, Michael Dreher
Today, invasive and non-invasive home mechanical ventilation have become a well-established treatment option. Consequently, in 2010, the German Respiratory Society (Deutsche Gesellschaft für Pneumologie und Beatmungsmedizin, DGP) has leadingly published the Guidelines on "Non-Invasive and Invasive Mechanical Ventilation for Treatment of Chronic Respiratory Failure." However, continuing technical evolutions, new scientific insights, and health care developments require an extensive revision of the Guidelines...
2018: Respiration; International Review of Thoracic Diseases
https://www.readbyqxmd.com/read/29910692/measuring-the-impact-of-the-home-health-nursing-shortage-on-family-caregivers-of-children-receiving-palliative-care
#17
Meaghann S Weaver, Brittany Wichman, Sue Bace, Denice Schroeder, Catherine Vail, Chris Wichman, Andrew Macfadyen
The national nursing shortage translates into a gap in home nursing care available to children with complex, chronic medical conditions and their family caregivers receiving palliative care consultations. A total of 38 home health nursing surveys were completed by families receiving pediatric palliative care consultation services at a freestanding children's hospital in the Midwest. The gap in the average number of nursing hours allotted versus received was 40 h/wk per family, primarily during evening hours...
June 2018: Journal of Hospice and Palliative Nursing: JHPN
https://www.readbyqxmd.com/read/29909002/specialist-palliative-care-service-for-children-with-life-threatening-conditions-a-nationwide-survey-of-availability-and-utilization
#18
Nobuyuki Yotani, Yoshiyuki Kizawa
CONTEXT: According to the International Observatory on End of Life Care, the level of pediatric palliative care in Japan is Level 2 (capacity building) and the current status of palliative care for children in Japan has not been clarified. OBJECTIVES: To clarify the availability and utilization of specialist palliative care services among children with life-threatening conditions in Japan. METHODS: A questionnaire was administered to assess the availability of specialist palliative care services among children with life-threatening conditions...
June 14, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29899281/integrative-approaches-in-pediatric-palliative-care
#19
Kate Shafto, Suzanne Gouda, Kris Catrine, Melanie L Brown
Pediatric palliative care is a field which focuses on caring for and treating the symptoms and distress typically associated with life-limiting illness. Integrative medicine is supported by evidence and aims to heal the whole person, including all aspects of one&rsquo;s lifestyle. Therapies offered by integrative medicine often empower patients and families, allowing for a sense of control. This review addresses the merging of integrative medicine philosophy and modalities with the care given to children with life-limiting illness...
June 13, 2018: Children
https://www.readbyqxmd.com/read/29893627/practices-attitudes-and-beliefs-of-palliative-care-physicians-regarding-the-use-of-methadone-and-other-long-acting-opioids-in-children-with-advanced-cancer
#20
Kevin Madden, Minjeong Park, Diane Liu, Eduardo Bruera
BACKGROUND: Palliative care physicians often assist with pain management in children with cancer, but little is known about how they use long-acting opioids for chronic pain with these patients. OBJECTIVE: To determine the practices, attitudes, and beliefs of palliative care physicians toward the use of long-acting opioids in children with advanced cancer. DESIGN: An electronic survey was sent to all members of The American Academy of Pediatrics (AAP) Section of Hospice and Palliative Medicine (SOHPM) and those identified as physicians who provide palliative care to children on the AAP SOHPM LISTSERV® ...
June 12, 2018: Journal of Palliative Medicine
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