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Social care

Audrey Henry, Ayman Tourbah, Gauthier Camus, Romain Deschamps, Laurence Mailhan, Cédric Castex, Olivier Gout, Michèle Montreuil
BACKGROUND: Social support has been identified as a buffering or intervening variable in stressful life events. Research has demonstrated that greater social support is associated with better mental health in multiple sclerosis (MS), but little is known about its links to specific aspects of mental health. We therefore investigated if and how perceived social support modulates depression, anxiety and fatigue in patients with MS. METHODS: We recruited 112 patients with MS from three French hospitals and administered a demographic and clinic interview, and self-report measures of perceived social support (Multidimensional Scale of Perceived Social Support), depression and anxiety (Hospital Anxiety and Depression Scale), and fatigue (Fatigue Severity Scale)...
October 2, 2018: Multiple Sclerosis and related Disorders
Tonya M Palermo, William T Zempsky, Carlton D Dampier, Chitra Lalloo, Amos S Hundert, Lexa K Murphy, Nitya Bakshi, Jennifer N Stinson
Many adolescents with sickle cell disease (SCD) experience recurrent and chronic pain, which has a negative impact on their health-related quality of life (HRQL). Cognitive-behavioral therapy (CBT) interventions can lead to improvement in pain and HRQL, yet due to barriers to care, most youth with SCD will not receive these interventions. To address this need for innovative programs targeting youth with SCD pain, we developed iCanCope, a tailored smartphone and web-based program that delivers a pain self-management intervention to youth with SCD...
October 11, 2018: Contemporary Clinical Trials
Elizabeth H Eustis, Sarah A Hayes-Skelton, Susan M Orsillo, Lizabeth Roemer
The high rates of anxiety in college students and the many barriers to accessing evidence-based care in communities and on campuses indicate a clear need to explore ways to increase access to evidence-based treatments. Web-based interventions and preventions are one way to bridge this gap; they hold the potential to decrease mental health disparities and enhance student functioning. The current RCT examined the acceptability and efficacy of a 3-session web-based therapist-assisted acceptance-based behavioral intervention targeting anxiety (Surviving and Thriving During Stress) for college students versus a waitlist (WL) control condition, in a sample of racially and ethnically diverse college students...
November 2018: Behavior Therapy
Ellen M Denzen, Jaime M Preussler, Elizabeth A Murphy, K Scott Baker, Linda J Burns, Jackie Foster, Lensa Idossa, Heather K Moore, Tammy J Payton, Darlene Haven, Balkrishna Jahagirdar, Naynesh Kamani, J Douglas Rizzo, Lizette Salazar, Barry A Schatz, Karen L Syrjala, John R Wingard, Navneet S Majhail
PURPOSE: This study aimed to develop a survivorship care plan (SCP) that could be individualized to facilitate long-term follow-up care of hematopoietic cell transplantation (HCT) survivors. METHODS: A sample SCP was developed that included two documents- a treatment summary and preventive care recommendations that combined data on treatment exposures routinely submitted by HCT centers to the Center for International Blood and Marrow Transplant Research (CIBMTR) with long-term follow-up guidelines...
October 10, 2018: Biology of Blood and Marrow Transplantation
Noemí López-Ejeda, Pilar Charle Cuellar, Antonio Vargas, Saul Guerrero
Community Health Workers (CHWs) play an important role in the detection and referral of children with severe acute malnutrition (SAM) in many countries. However, distance to health facilities remains a significant obstacle for caregivers to attend treatment services, resulting in SAM treatment coverage rates below 40% in most areas of intervention. The inclusion of SAM treatment into the current curative tasks of CHWs has been proposed as an approach to increase coverage. A literature review of operational experiences was conducted to identify opportunities and challenges associated with this model...
October 13, 2018: Maternal & Child Nutrition
Yulanticha Diaz Ahwalia Aziza, Shan-Tair Wang, Mei-Chih Huang
OBJECTIVE: The aim of this study was to investigate the needs and associating factors, psychological distress of parents when taking care of children with cancer in Indonesia. METHODS: A cross-sectional study was conducted among 100 parents of children with cancer from the pediatric ward of two hospitals in Indonesia. The parents were assessed using the Indonesian version of the Supportive Care Needs Survey for Partner and Caregiver (unmet needs) and the Hospital Anxiety Depression Scale (psychological distress)...
October 13, 2018: Psycho-oncology
Lene Joensen, Lawrence Fisher, Timothy Skinner, Yvonne Doherty, Ingrid Willaing
AIMS: To identify challenges and solutions to integrating psychosocial support into routine diabetes care from the perspective of stakeholders with an expertise in diabetes self-management education and support. METHODS: Ninety-four people attended the annual international Diabetes Self-management Alliance meeting in 2016, including plenary sessions and workshops around self-management education, support and prevention. One workshop focused on how to integrate psychosocial support into routine diabetes care, which was run four times consecutively allowing all conference participants to attend the workshops in groups of 20-25 people...
October 13, 2018: Diabetic Medicine: a Journal of the British Diabetic Association
Ajay Pillarisetti, Manpreet Gill, Tracy Allen, Sathish Madhavan, Arun Dhongade, Makarand Ghorpade, Sudipto Roy, Kalpana Balakrishnan, Sanjay Juvekar, Kirk R Smith
Conditional cash transfers (CCTs)-cash payments provided to households or specific household members who meet defined conditions or fulfill certain behaviors-have been extensively used in India to encourage antenatal care, institutional delivery, and vaccination. This paper describes the social design and technical development of a low-cost, meal-counting stove use monitor (the Pink Key) that enables a CCT based on liquefied petroleum gas (LPG) usage and presents pilot data from its testing and the initial deployment...
October 12, 2018: EcoHealth
Silvia Librada Flores, Emilio Herrera Molina, Fátima Díaz Díez, María José Redondo Moralo, Cristina Castillo Rodríguez, Kathleen McLoughlin, Julian Abel, Tamen Jadad Garcia, Miguel Ángel Lucas Díaz, Inmaculada Trabado Lara, María Dolores Guerra-Martín, María Nabal
BACKGROUND: End-of-life needs can be only partly met by formalized health and palliative care resources. This creates the opportunity for the social support network of family and community to play a crucial role in this stage of life. Compassionate communities can be the missing piece to a complete care model at the end of life. OBJECTIVE: The main objective of this study is to evaluate the REDCUIDA (Redes de Cuidados or Network of Care) intervention for the development and management of networks of care around people with advanced disease or at the end of life...
October 12, 2018: JMIR Research Protocols
Kara C Sewalk, Gaurav Tuli, Yulin Hswen, John S Brownstein, Jared B Hawkins
BACKGROUND: There are documented differences in access to health care across the United States. Previous research indicates that Web-based data regarding patient experiences and opinions of health care are available from Twitter. Sentiment analyses of Twitter data can be used to examine differences in patient views of health care across the United States. OBJECTIVE: The objective of our study was to provide a characterization of patient experience sentiments across the United States on Twitter over a 4-year period...
October 12, 2018: Journal of Medical Internet Research
Barbara Deschler, Gabriele Ihorst, Michael Hüll, Peter Baier
AIMS: The effectiveness of surgery depends on it being carried out safely, which allows patients to return to independent lives. Because gastrointestinal cancers are a major cause of morbidity and mortality in older people, we examined the dynamics of recuperation after elective, curative surgery. As disease parameters alone may not suffice to address geriatric patients' issues after onco-surgical interventions, Comprehensive Geriatric and QOL Assessments (CGA/QOL) were performed at four time points to gain information on clinical, functional, and cognitive aspects...
October 9, 2018: Journal of Geriatric Oncology
Aleksandra Świderska, Marek Wiśniewski, Marek Wiergowski, Anna Krakowiak, Jacek Sein Anand
BACKGROUND: Poisonings constitute a significant medical, social and economic problem worldwide. In Poland there is no nationwide registry of poisonings, which results in a lack of accurate epidemiological data. Few publications dealing with the problem are based on data obtained from toxicology units and therefore do not include information about cases treated at emergency departments and other non-toxicology units. METHODS: We analyzed all admissions due to poisonings reported to the Polish National Health Fund by all hospital units in Poland in the 2009-2011 period...
October 10, 2018: BMC Pharmacology & Toxicology
Judith Gellatly, Penny Bee, Lina Gega, Peter Bower, Diane Hunter, Paul Stewart, Nicky Stanley, Rachel Calam, Kim Holt, Miranda Wolpert, Simon Douglas, Jonathan Green, Adekeye Kolade, Craig Callender, Kathryn M Abel
BACKGROUND: Children and young people of parents with mental illness (COPMI) are at risk of poor mental, physical and emotional health, which can persist into adulthood. They also experience poorer social outcomes and wellbeing as well as poorer quality of life than their peers with 'healthy' parents. The needs of COPMI are likely to be significant; however, their prevalence is unknown, although estimates suggest over 60% of adults with a serious mental illness have children. Many receive little or no support and remain 'hidden', stigmatised or do not regard themselves as 'in need'...
October 11, 2018: Trials
Ann J Nakitende, Paul Bangirana, Noeline Nakasujja, Margaret Semrud-Clikeman, Andrew S Ssemata, Chandy C John, Richard Idro
BACKGROUND: Severe malaria in children is often associated with long-term behavioural and cognitive problems. A sizeable minority of children go on to experience repeated malaria due to the high transmission and infection rates in the region. The purpose of this study was to explore caregivers' experiences of parenting a child with a history of severe malaria followed by repeated episodes of uncomplicated malaria in comparison to healthy community children. METHODS: Thirty-one caregivers were enrolled in the study...
October 12, 2018: Malaria Journal
Lisa Söderman, Måns Edlund, Lena Marions
INTRODUCTION: The objective of this study was to estimate the prevalence of dysmenorrhea among adolescents and its effect on daily life. MATERIAL AND METHODS: A web-based questionnaire, with questions regarding menstrual symptoms was distributed to all girls born year 2000 and residing in Stockholm City (n=3998). Questions regarding pain severity, other menstrual related symptoms, medical treatment, health care visits, social and academic absenteeism were included in the questionnaire...
October 12, 2018: Acta Obstetricia et Gynecologica Scandinavica
Christabel C Enweronu-Laryea, Hilary D Andoh, Audrey Frimpong-Barfi, Francis M Asenso-Boadi
The major causes of newborn deaths in sub-Saharan Africa are well-known and countries are gradually implementing evidence-based interventions and strategies to reduce these deaths. Facility-based care provides the best outcome for sick and or small babies; however, little is known about the cost and burden of hospital-based neonatal services on parents in West Africa, the sub-region with the highest global neonatal death burden. To estimate the actual costs borne by parents of newborns hospitalised with birth-associated brain injury (perinatal asphyxia) and preterm/low birth weight, this study examined economic costs using micro-costing bottom-up approach in two referral hospitals operating under the nationwide social health insurance scheme in an urban setting in Ghana...
2018: PloS One
Ron D Hays, Karen L Spritzer, Cathy D Sherbourne, Gery W Ryan, Ian D Coulter
STUDY DESIGN: Prospective observational study. OBJECTIVE: To evaluate group-level and individual-level change in health-related quality of life among persons with chronic low back pain or neck pain receiving chiropractic care in the United States. SUMMARY OF BACKGROUND DATA: Chiropractors treat chronic low back and neck pain, but there is limited evidence of the effectiveness of their treatment METHODS.: A 3-month longitudinal study of 2,024 patients with chronic low back pain or neck pain receiving care from 125 chiropractic clinics at 6 locations throughout the United States was conducted...
October 11, 2018: Spine
Casey Walsh, Jennifer Currin-McCulloch, Pamela Simon, Brad Zebrack, Barbara Jones
PURPOSE: This study was designed to identify and explore the social support needs and preferences of young adult cancer patients during the transition process from active treatment to survivorship care. METHODS: Semi-structured qualitative interviews were conducted with study participants (n = 13, ages 17-25 at the time of cancer diagnosis) within ∼6 months of completion of active treatment and again 3 months later. Participants completed a sociodemographic questionnaire at the first study visit...
October 12, 2018: Journal of Adolescent and Young Adult Oncology
Stephanie L McManimen, Damani McClellan, Jamie Stoothoff, Leonard A Jason
Prior research has found a heightened risk of suicide in patients with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). It is possible that a number of factors including stigma, unsupportive social interactions, and severe symptoms could lead to the development of depression, suicidal ideation, and heightened risk of suicide in this patient population. Prior studies have indicated that patients often report the legitimacy of their illness being questioned by family, friends, and even their physicians...
November 2018: Journal of Community Psychology
Laura Mandelli, Alessandro Serretti, Stefano Porcelli, Daniel Souery, Julien Mendlewicz, Siegfried Kasper, Stuart Montgomery, Joseph Zohar
The working environment may have a significant effect on response to treatment of depression and this issue has not yet been sufficiently addressed in the scientific literature. There is evidence showing that being engaged in high-level positions can be an obstacle to the success of treatment. This article discusses the few evidence in the literature and some of the possible mechanisms involved. Specific personality attributes and difficulties in adapting to depression may delay access to care and may also reduce treatment compliance...
October 12, 2018: Psychological Medicine
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