Hua Min, Riki Ohira, Michael A Collins, Jessica Bondy, Nancy E Avis, Olga Tchuvatkina, Paul K Courtney, Richard P Moser, Abdul R Shaikh, Bradford W Hesse, Mary Cooper, Dianne Reeves, Bob Lanese, Cindy Helba, Suzanne M Miller, Eric A Ross
OBJECTIVE: In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR). METHODS: The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR...
July 2014: Journal of the American Medical Informatics Association: JAMIA