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https://www.readbyqxmd.com/read/29691974/aboriginal-experiences-of-cancer-and-care-coordination-lessons-from-the-cancer-data-and-aboriginal-disparities-candad-narratives
#1
Rachel Reilly, Jasmine Micklem, Paul Yerrell, David Banham, Kim Morey, Janet Stajic, Marion Eckert, Monica Lawrence, Harold B Stewart, Alex Brown
BACKGROUND: Aboriginal people with cancer experience worse outcomes than other Australians for a range of complex and interrelated reasons. A younger age at diagnosis, higher likelihood of more advanced cancer or cancer type with poorer prognosis, geographic isolation and cultural and language diversity mean that patient pathways are potentially more complex for Aboriginal people with cancer. In addition, variation in the quality and acceptability of care may influence cancer outcomes...
April 24, 2018: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29691962/gastrointestinal-symptoms-in-children-primary-care-and-specialist-interface
#2
REVIEW
Valeria Dipasquale, Domenico Corica, Simone M C Gramaglia, Simona Valenti, Claudio Romano
AIMS: Gastrointestinal symptoms and diseases represent one of the major reasons for paediatricians' requests for specialist consultations and hospital admissions. One fourth of annual medical consultations for children younger than 6 years can be attributed to gastrointestinal symptoms. High-quality guidelines have been validated worldwide to provide clinical recommendations and support healthcare providers' practice. Nevertheless, overall compliance to standards of care is unsatisfactory, and children with gastrointestinal symptoms frequently undergo expensive, useless specialist consultations and laboratory evaluations...
April 24, 2018: International Journal of Clinical Practice
https://www.readbyqxmd.com/read/29691213/an-mhealth-app-for-decision-making-support-in-wound-dressing-selection-wounds-protocol-for-a-user-centered-feasibility-study
#3
Scott Jordan, Jane McSwiggan, Joanne Parker, Gayle A Halas, Marcia Friesen
BACKGROUND: Primary care health professionals, especially family physicians, see a variety of wounds, and yet-despite the frequency of providing wound care-many family physicians do not feel confident in wound care management. This is partly due to a lack of formal wound education in Family Medicine programs. While there are numerous electronic wound care resources available in the UK and North America, none were identified that address the specific need in supporting clinical decision-making in wound dressing selection...
April 24, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29691187/home-care-with-acupuncture-increased-the-quality-of-life-in-a-patient-with-advanced-cancer-with-neuropathic-pain-induced-by-bone-metastasis-a-case-report
#4
Ching-Feng Su
A 66-year-old female patient was diagnosed with hepatocellular carcinoma accompanied by neuropathic pain induced by a metastatic tumor that compromised root and spinal canal. Although her pain was relieved following medical treatment, breakthrough pain occurring 1-2 times a day was still distressing. Neuropathic pain in her right lower limb caused discomfort and irritability and decreased her quality of life. We had limited options to adjust her prescription drug regime, due to the side effect of these drugs...
April 12, 2018: Journal of Integrative Medicine
https://www.readbyqxmd.com/read/29691161/experiences-and-perspectives-of-dietary-management-among-patients-on-hemodialysis-an-interview-study
#5
Jessica Stevenson, Allison Tong, Talia Gutman, Katrina L Campbell, Jonathan C Craig, Mark A Brown, Vincent W Lee
OBJECTIVES: Diet and fluid management can reduce mortality, serious comorbidities, and debilitating symptoms in patients on hemodialysis, but restrictions may also be a major burden, and nonadherence remains high. We aimed to describe the perspectives and experiences of patients on hemodialysis regarding their dietary management to understand both facilitators and barriers to adherence and to identify strategies to improve care. DESIGN AND METHODS: Semi-structured interviews were conducted with 35 people on maintenance hemodialysis from six dialysis units in New South Wales, Australia...
April 21, 2018: Journal of Renal Nutrition
https://www.readbyqxmd.com/read/29691111/helping-patients-help-themselves-supporting-the-healthcare-journey
#6
Moriah E Ellen, Ruth Shach, Ran D Balicer
Patients often feel lost when navigating the health care system, and poor care coordination leads to negative patient outcomes, consumes resources and makes diseases more difficult to treat. Patients and citizens have become eager to take health care decision making into their own hands. To this end, solutions have been proposed which assist patients by providing them with more information and enabling them to take a more active role in their care. These include enlisting a patient navigator, consumer engagement, process mapping, decision aids, and clinical pathways...
April 14, 2018: Patient Education and Counseling
https://www.readbyqxmd.com/read/29690902/use-of-family-planning-and-child-health-services-in-the-private-sector-an-equity-analysis-of-12-dhs-surveys
#7
Nirali M Chakraborty, Andrea Sprockett
BACKGROUND: A key component of universal health coverage is the ability to access quality healthcare without financial hardship. Poorer individuals are less likely to receive care than wealthier individuals, leading to important differences in health outcomes, and a needed focus on equity. To improve access to healthcare while minimizing financial hardships or inequitable service delivery we need to understand where individuals of different wealth seek care. To ensure progress toward SDG 3, we need to specifically understand where individuals seek reproductive, maternal, and child health services...
April 24, 2018: International Journal for Equity in Health
https://www.readbyqxmd.com/read/29690897/a-qualitative-study-of-safe-abortion-and-post-abortion-family-planning-service-experiences-of-women-attending-private-facilities-in-kenya
#8
Suzanne Penfold, Susy Wendot, Inviolata Nafula, Katharine Footman
BACKGROUND: To inform improvements in safe abortion and post-abortion family planning (PAFP) services, this study aimed to explore the pathways, decision-making, experiences and preferences of women receiving safe abortion and post-abortion family planning (PAFP) at private clinics in western Kenya. METHODS: We conducted semi-structured interviews with 22 women who had recently used a safe abortion service from a private clinic. Interviews explored abortion-seeking behaviour and decision-making, abortion experience, use and knowledge of contraception, experience of PAFP counselling, and perceived facilitators of and challenges to family planning use...
April 24, 2018: Reproductive Health
https://www.readbyqxmd.com/read/29690870/palliative-care-for-homeless-people-a-systematic-review-of-the-concerns-care-needs-and-preferences-and-the-barriers-and-facilitators-for-providing-palliative-care
#9
Hanna T Klop, Anke J E de Veer, Sophie I van Dongen, Anneke L Francke, Judith A C Rietjens, Bregje D Onwuteaka-Philipsen
BACKGROUND: Homeless people often suffer from complex and chronic comorbidities, have high rates of morbidity and die at much younger ages than the general population. Due to a complex combination of physical, psychosocial and addiction problems at the end of life, they often have limited access to palliative care. Both the homeless and healthcare providers experience a lot of barriers. Therefore, providing palliative care that fits the needs and concerns of the homeless is a challenge to healthcare providers...
April 24, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29689183/manual-feeding-device-experiences-of-people-with-a-neurodisability
#10
Anne Mandy, Tara Sims, Graham Stew, Dominic Onions
OBJECTIVE: Neurological bilateral upper limb weakness can result in self-feeding difficulties and reliance on care providers. Mealtimes become time consuming and frustrating. In this exploratory inquiry, we examined the experiences of users of a feeding device. METHOD: Semistructured interviews were either conducted by telephone or administered via email to explore quality of life, changes to independence, benefits and limitations, and psychological impact of the equipment...
May 2018: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://www.readbyqxmd.com/read/29688990/epidemiology-and-impact-of-health-care-provider-diagnosed-anxiety-and-depression-among-us-children
#11
Rebecca H Bitsko, Joseph R Holbrook, Reem M Ghandour, Stephen J Blumberg, Susanna N Visser, Ruth Perou, John T Walkup
OBJECTIVE: This study documents the prevalence and impact of anxiety and depression in US children based on the parent report of health care provider diagnosis. METHODS: National Survey of Children's Health data from 2003, 2007, and 2011-2012 were analyzed to estimate the prevalence of anxiety or depression among children aged 6 to 17 years. Estimates were based on the parent report of being told by a health care provider that their child had the specified condition...
April 24, 2018: Journal of Developmental and Behavioral Pediatrics: JDBP
https://www.readbyqxmd.com/read/29688905/impact-of-adoption-of-a-comprehensive-electronic-health-record-on-nursing-work-and-caring-efficacy
#12
Elizabeth Schenk, Ruth Schleyer, Cami R Jones, Sarah Fincham, Kenn B Daratha, Karen A Monsen
Nurses in acute care settings are affected by the technologies they use, including electronic health records. This study investigated the impacts of adoption of a comprehensive electronic health record by measuring nursing locations and interventions in three units before and 12 months after adoption. Time-motion methodology with a handheld recording platform based on Omaha System standardized terminology was used to collect location and intervention data. In addition, investigators administered the Caring Efficacy Scale to better understand the effects of the electronic health record on nursing care efficacy...
April 23, 2018: Computers, Informatics, Nursing: CIN
https://www.readbyqxmd.com/read/29688887/hematuria-as-an-adverse-outcome-following-provocative-growth-hormone-stimulation-testing-in-children
#13
Rajeev Thirunagari, Alexandra Marrone, Hannah Elsinghorst, Lucy D Mastrandrea
BACKGROUND: Provocative growth hormone (GH) stimulation testing is used to evaluate short stature and growth failure in children. Agents commonly used for testing include clonidine, arginine and glucagon. While stimulation testing is generally considered safe, gross hematuria has been described as a rare idiopathic complication of GH stimulation testing. This study was designed to estimate the incidence of both microscopic and macroscopic hematuria following GH testing with different provocative agents...
April 24, 2018: Journal of Pediatric Endocrinology & Metabolism: JPEM
https://www.readbyqxmd.com/read/29688860/patient-reported-outcome-measures-in-rare-diseases-a-narrative-review
#14
REVIEW
Anita Slade, Fatima Isa, Derek Kyte, Tanya Pankhurst, Larissa Kerecuk, James Ferguson, Graham Lipkin, Melanie Calvert
BACKGROUND: Rare diseases can lead to a significant reduction in quality of life for patients and their families. Ensuring the patients voice is central to clinical decision making is key to delivering, evaluating and understanding the efficacy of therapeutic interventions. Patient reported outcome measures (PROMs) are used to capture the patient's views about their health status and facilitate our understanding of the impact of these diseases and their treatments on patient's quality of life and symptoms...
April 23, 2018: Orphanet Journal of Rare Diseases
https://www.readbyqxmd.com/read/29688843/cost-of-medical-care-of-patients-with-advanced-serious-illness-in-singapore-compass-prospective-cohort-study-protocol
#15
Irene Teo, Ratna Singh, Chetna Malhotra, Semra Ozdemir, Rebecca A Dent, Nesaretnam Barr Kumarakulasinghe, Wee Lee Yeo, Yin Bun Cheung, Rahul Malhotra, Ravindran Kanesvaran, Alethea Chung Pheng Yee, Noreen Chan, Huei Yaw Wu, Soh Mun Chin, Hum Yin Mei Allyn, Grace Meijuan Yang, Patricia Soek Hui Neo, Nivedita V Nadkarni, Richard Harding, Eric A Finkelstein
BACKGROUND: Advanced cancer significantly impacts quality of life of patients and families as they cope with symptom burden, treatment decision-making, uncertainty and costs of treatment. In Singapore, information about the experiences of advanced cancer patients and families and the financial cost they incur for end-of-life care is lacking. Understanding of this information is needed to inform practice and policy to ensure continuity and affordability of care at the end of life. The primary objectives of the Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS) cohort study are to describe changes in quality of life and to quantify healthcare utilization and costs of patients with advanced cancer at the end of life...
April 23, 2018: BMC Cancer
https://www.readbyqxmd.com/read/29688643/-fmr1-premutation-carriers-are-they-really-asymptomatic
#16
REVIEW
Shai Elizur, Michal Berkenstadt, Liat Ries-Levavi, Noah Gruber, Orit Pinhas-Hamiel, Sharon Hassin-Baer, Annick Raas-Rothschild, Hila Raanani, Tali Cukierman-Yaffe, Raoul Orvieto, Yoram Cohen, Lidia Gabis
Fragile X Syndrome (FXS), the most common form of inherited mental retardation, is caused by a trinucleotide repeat expansion (CGG) in the 5'-untranslated region of the Fragile X Mental Retardation 1 (FMR1) gene located at Xq27.3. Patients with fragile X -related mental retardation, carry the full mutation CGG-repeat expansions (>200 CGG repeats), which are generally accompanied by hypermethylation of the promoter region, with the consequent transcriptional silencing of the FMR1 gene and absence of the encoded FMR1 protein (FMRP)...
April 2018: Harefuah
https://www.readbyqxmd.com/read/29688560/no-spouse-no-son-no-daughter-no-kin-in-contemporary-china-prevalence-correlates-and-differences-in-economic-support
#17
Zhangjun Zhou, Ashton M Verdery, Rachel Margolis
Objectives: China's recent demographic and social changes might undermine the sustainability of family-oriented system for elder care. We investigate kin availability among adults aged 45+ in contemporary China, with an emphasis on child gender. Method: Using nationally representative survey data from the China Health and Retirement Longitudinal Study (2011), we examine the prevalence and correlates of lacking different kin types and combinations, and we test associations between kin availability and received economic support...
April 24, 2018: Journals of Gerontology. Series B, Psychological Sciences and Social Sciences
https://www.readbyqxmd.com/read/29688112/protection-for-medication-induced-hearing-loss-the-state-of-the-science
#18
Tanisha L Hammill, Kathleen C Campbell
OBJECTIVE: This review will summarise the current state of development of pharmaceutical interventions (prevention or treatment) for medication-induced ototoxicity. DESIGN: Currently published literature was reviewed using PubMed and ClinicalTrials.gov to summarise the current state of the science. Details on the stage of development in the market pipeline are provided, along with evidence for clinical safety and efficacy reported. STUDY SAMPLE: This review includes reports from 44 articles and clinical trial reports regarding agents in clinical or preclinical trials, having reached approved Investigational New Drug status with the Federal Drug Administration...
April 24, 2018: International Journal of Audiology
https://www.readbyqxmd.com/read/29688085/music-therapy-applied-to-complex-blast-injury-in-interdisciplinary-care-a-case-report
#19
Rebecca Vaudreuil, Luis Avila, Joke Bradt, Paul Pasquina
PURPOSE: Music therapy has a long history of treating the physiological, psychological, and neurological injuries of war. Recently, there has been an increase in the use of music therapy and other creative arts therapies in the care of combat injured service members returning to the United States from Iraq and Afghanistan, especially those with complex blast-related injuries. This case report describes the role of music therapy in the interdisciplinary rehabilitation of a severely injured service member...
April 24, 2018: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29688081/perceptions-of-the-transition-from-receiving-the-diagnosis-recessive-limb-girdle-muscular-dystrophy-to-becoming-in-need-of-human-support-and-using-a-wheelchair-an-interview-study
#20
Anna Carin Aho, Sally Hultsjö, Katarina Hjelm
PURPOSE: To describe perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support to manage daily life and using a wheelchair for ambulation, from the affected young adults' and their parents' perspectives. METHOD: A qualitative and descriptive study design was used. Semi-structured interviews were held with 14 young adults diagnosed with recessive limb-girdle muscular dystrophy and 19 parents...
April 24, 2018: Disability and Rehabilitation
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