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Family care

Youngmi Kang, Kwisoon Choe, Jinna Yu
AIM: This study identified the moderating role of the amount of caregiving tasks on relationships between dementia family caregivers' characteristics (age, education, etc.) and outcomes (burden, etc.). DESIGN: A cross-sectional analysis of surveyed data. METHOD: A convenience sample of 369 family caregivers (151 males, 218 females) aged 20 years or older was recruited from 10 cities in the southern area of South Korea. Data were collected from November - December 2011...
June 19, 2018: Journal of Advanced Nursing
Rosa Michaelis, Venus Tang, Laura H Goldstein, Markus Reuber, William Curt LaFrance, Tobias Lundgren, Avani C Modi, Janelle L Wagner
Given the significant impact that psychosocial factors and epilepsy treatments can have on the health-related quality of life (HRQOL) of individuals with epilepsy and their families, there is great clinical interest in the role of psychological evaluation and treatments to improve HRQOL and comorbidities. Therefore, the International League Against Epilepsy (ILAE) charged the Psychology Task Force with the development of recommendations for clinical care based on evaluation of the evidence from their recent Cochrane review of psychological treatments in individuals with epilepsy...
June 19, 2018: Epilepsia
Giuliana Spadaro, Angelo Romano, Cristina O Mosso
OBJECTIVES: Interpersonal relationships contribute to the psychological adjustments to chronic disease, directly affecting health and, more generally, life satisfaction of patients. Those factors are often threatened by the fear of becoming target of prejudices and discrimination from those who share their daily life with. Thus, this study proposes a contribution to the Italian adaptation and validation of the Chronic Illness Anticipated Stigma Scale (CIASS), a brief questionnaire (12 items) that aims to assess perceived stigma of chronic illness patients in family, work and health care contexts...
November 2017: Giornale Italiano di Medicina del Lavoro Ed Ergonomia
Olimpia Paun, Fawn Cothran
Family caregivers of individuals with Alzheimer's disease and related dementias (ADRD) experience long-term mental health effects. Although caregivers who place relatives in long-term care (LTC) experience increased depression, anxiety, and chronic grief post-placement, interventions to improve caregivers' mental health have focused mainly on in-home care. Current researchers previously tested a group-based Chronic Grief Management Intervention (CGMI) with ADRD caregivers of individuals in LTC, with significant effects on caregiver mental health outcomes...
June 18, 2018: Journal of Psychosocial Nursing and Mental Health Services
Valerie Tobin, Walter O Bockting, Tonda L Hughes
The current study uses an ecological model of biopsychosocial vulnerability to guide the description of risk and protective factors for the mental health of gender minority (i.e., transgender and gender non-conforming) adolescents at the individual, family, community, and societal levels. Minority stress is the vulnerability of youth who are lesbian, gay, bisexual, and transgender (LGBT) to adverse mental health outcomes due to stigma. In addition, unlike cisgender (non-transgender) LGB individuals, gender minorities may experience internal stress related to gender dysphoria...
June 18, 2018: Journal of Psychosocial Nursing and Mental Health Services
Lucie Chauvelin, Morgane Gindt, Bertrand Olliac, Philippe Robert, Susanne Thümmler, Florence Askenazy
In the actual context of terrorism targeting children and families, it seems essential to describe different experiences of pediatric psychological emergency devices after such unexpected mass trauma. Here we testify our experience of the psychological emergency care setup dedicated to children and families during the first 48 hours after the terrorist attack of Nice, France, on July 14, 2016. Activated within the hour following the attack, the device included two child psychiatry teams turning over each day, receiving at least 163 individuals (99 children and 64 adults) within the first 2 days...
June 19, 2018: Disaster Medicine and Public Health Preparedness
Nahed A Makhlouf, Shaimaa Arafat Abdel-Monem, Ahlam Mohamed Farghaly, Ahmed Helmy
BACKGROUND: In Egypt, there is no legislation for deceased donor transplant; therefore, programs provide living donation only. One possible barrier against living liver donation may be the attitude of the health-care professional. This study aimed to (1) assess the level of knowledge and attitude toward liver donation and transplantation among health-care professional in an University Hospital in Upper Egypt and (2) analyze the variables that affect such an attitude. MATERIALS AND METHODS: This was a cross-sectional survey study with 300 health-care professionals...
January 1, 2018: Progress in Transplantation
Sedigheh Khanjari, Marjan Damghanifar, Hamid Haqqani
Background: Leukemia is a life-threatening chronic disease for children. The recurrence of the disease causes tension and reduces the quality of life for the family, especially for mothers. Religion is an important humanitarian aspect of holistic care that can be very effective in determining the health level of the patient and the family members. The present study aims at investigating the role of religious coping (RCOPE) in the quality of life for mothers of children with recurrent leukemia...
January 2018: Journal of Family Medicine and Primary Care
Sarabjot Kaur, Ravinder Garg, Simmi Aggarwal, Sumit Pal Singh Chawla, Ranabir Pal
Introduction: Adult onset seizure disorder is a major public health concern in terms of burden of disease, nature of illness, and its impact on individual, family, and community. This study was done to assess the clinical profile and etiology of adult onset seizures and correlates of clinical and radiological pattern. Materials and Methods: This was a prospective cross-sectional hospital-based study conducted on 100 cases presenting with adult onset seizures. Results: Adult onset seizures were most prevalent in the young and middle-aged adults than elderly; generalized seizures were more common than focal seizures...
January 2018: Journal of Family Medicine and Primary Care
Patty X Kuo, Brenda L Volling, Richard Gonzalez
A major task for parents during the transition to second-time parenthood is to help their firstborn adjust to their new roles as siblings. Increased father involvement has been theorized to be protective for firstborn adjustment. Fathers, however, are under increasing pressure to balance both work and family responsibilities. Here we evaluate fathers' relative involvement in two-child families as a function of family structure, gender role beliefs, and work-family conflict in 222 dual- and single-earner families from the Midwestern region of the United States after the birth of a second child...
April 2018: Psychology of Men & Masculinity
Garrett W Shanks, David J Tester, Jaeger P Ackerman, Michael A Simpson, Elijah R Behr, Steven M White, Michael J Ackerman
BACKGROUND: Potentially lethal cardiac channelopathies/cardiomyopathies may underlie a substantial portion of sudden unexplained death in the young (SUDY). The whole-exome molecular autopsy represents the latest approach to postmortem genetic testing for SUDY. However, proper variant adjudication in the setting of SUDY can be challenging. METHODS: From January 2012 through December 2013, 25 consecutive cases of SUDY from 1 to 40 years of age (average age at death 27±5...
June 19, 2018: Circulation
Chiara Marzorati, Chiara Renzi, Samuel William Russell-Edu, Gabriella Pravettoni
BACKGROUND: The number of published studies and systematic reviews examining different telehealth interventions targeting patients and their effects on patients' well-being and quality of life have grown in recent decades. However, the use of telemedicine tools aimed at the family members and caregivers of adult cancer patients is less defined. OBJECTIVE: We aimed to conduct a systematic review to provide a more complete picture regarding telemedicine tools for informal caregivers (usually family members or close friends) implemented in all phases of cancer care...
June 18, 2018: Journal of Medical Internet Research
Fartoon M Siad, Xiao Yang Fang, Maria J Santana, Sonia Butalia, Marilynne A Hebert, Doreen M Rabi
OBJECTIVES: East African (EA) women are a subpopulation who are at very high risk for gestational diabetes (GDM) and poor obstetric outcomes, but little is known about the care experiences of this understudied group. The objective of this study was to document the impact of a diagnosis of GDM and the perceptions of diabetes care among EA immigrant women. METHODS: Semistructured in-depth interviews were conducted with 10 EA immigrant women diagnosed with GDM in Calgary; they were recruited from community and tertiary care settings...
February 2, 2018: Canadian Journal of Diabetes
B Chabrol, P Jacquin, L Francois, P Broué, D Dobbelaere, C Douillard, S Dubois, F Feillet, A Perrier, A Fouilhoux, F Labarthe, D Lamireau, K Mazodier, F Maillot, F Mochel, M Schiff, N Belmatoug
Inherited metabolic diseases (IMD) form a heterogeneous group of genetic disorders that surface primarily during childhood and result in significant morbidity and mortality. A prevalence of 1 in 2500-5000 live births is often reported. The transfer of adolescents from pediatric care to adult health facilities is often difficult for patients and their families and can lead to a breakdown in medical follow-up and therefore serious complications. Existing recommendations for the successful transition of patients with chronic disorders do not specifically address patients with IMDs associated with dietary treatment...
June 15, 2018: Archives de Pédiatrie: Organe Officiel de la Sociéte Française de Pédiatrie
Jennifer Bevacqua
No abstract text is available yet for this article.
June 15, 2018: Journal of Pediatric Health Care
Sehun Oh, Diana M DiNitto, Yeonwoo Kim
BACKGROUND/PURPOSE: Legalization of marijuana for medical and/or recreational use in some U.S. states has increased attention to substance use and related problems. However, little attention has been paid to these phenomena among adults in families receiving Temporary Assistance for Needy Families (TANF) whose adverse life experiences may put them at elevated risk of substance use disorders (SUDs). METHODS: Data from the 2003-2014 National Survey on Drug Use and Health (NSDUH) were used to test trends in past-month binge drinking and past-year marijuana, other illicit drug, and any illicit drug use and to examine SUD prevalence and treatment correlates among adults in TANF families...
June 12, 2018: Addictive Behaviors
Bo Hu
The long-term care system in China relies heavily on informal care provided by family members. This study makes projections on the demand for informal care among Chinese older people between 2015 and 2035 and quantifies the level of long-term care resources needed to meet their needs. The data come from longitudinal information in a nationally representative sample, China Health and Retirement Longitudinal Survey 2011 and 2013. The macrosimulation approach (PSSRU model) and the Markov approach are integrated into one Bayesian modelling framework...
June 19, 2018: Health Economics, Policy, and Law
Ariel Higgins-Steele, Jane Burke, Abo Ismael Foshanji, Farhad Farewar, Malalai Naziri, Sediq Seddiqi, Karen M Edmond
BACKGROUND: In the past fifteen years, Afghanistan has made substantial progress in extending primary health care. However, coverage of essential health interventions proven to improve maternal and neonatal health outcomes, particularly skilled birth attendance, remains unacceptably low. This is especially true for those in the poorest quintile of the population. This cross-sectional quantitative and qualitative study assessed barriers associated with care-seeking for institutional delivery among rural Afghan women in three provinces...
June 18, 2018: BMC Pregnancy and Childbirth
Emily Hansen, Leigh Tesch, Jennifer Ayton
BACKGROUND: Fathers' attitudes and actions can positively or negatively affect mothers' intentions to breastfeed, breastfeeding duration and exclusivity. In-depth information about fathers' perspectives on breastfeeding are largely absent in the literature about infant feeding. The objective of this research was to investigate how fathers view breastfeeding. METHODS: This mixed method study recruited Tasmanian fathers with children < 24 months of age. Fathers completed a questionnaire and participated in either semi structured one-on-one or group interviews...
June 18, 2018: BMC Pregnancy and Childbirth
Metin Dinçer
Background/aim: The aim of this study is to evaluate why dementia patients (DPs) are admitted to a palliative care center (PCC) and which factors affect the length of stay (LOS) of DPs in the PCC, and to predict the course of the disease. Materials and methods: The files of DPs were scanned retrospectively in the PCC between 2013 and 2016. Data related to age, sex, LOS, symptoms, clinical conditions, comorbidities, and prognosis were recorded. Results: The study included 85 DPs with a mean age of 84.1 ± 6...
June 14, 2018: Turkish Journal of Medical Sciences
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