keyword
https://read.qxmd.com/read/38536218/views-of-service-users-their-family-or-carers-and-health-care-professionals-on-telerehabilitation-for-people-with-neurological-conditions-in-ghana-qualitative-study
#1
JOURNAL ARTICLE
Lorna Paul, Katie Thomson, Shadrack Osei Asibey, Marian Brady, Frederike van Wijck, Derrick Antwi, Eric Nkansah Opoku, Fred Stephen Sarfo
BACKGROUND: Up to 50% of people in low- and middle-income countries do not receive the rehabilitation they require. Telerehabilitation has the potential to improve access to neurorehabilitation services especially in low- and middle-income countries. Although there are reports of the barriers and facilitators to telerehabilitation in such settings, almost all are anecdotal. Furthermore, family or carers have a significant influence on the adoption and success of telerehabilitation, but their views have not been reported...
March 27, 2024: JMIR MHealth and UHealth
https://read.qxmd.com/read/38536149/lost-in-translation-a-narrative-review-and-synthesis-of-the-published-international-literature-on-mental-health-research-and-translation-priorities-2011-2023
#2
REVIEW
Victoria J Palmer, Amanda J Wheeler, Dana Jazayeri, Amelia Gulliver, Kelsey Hegarty, Joshua Moorhouse, Phillip Orcher, Michelle Banfield
BACKGROUND: Priority setting in mental health research is arguably lost in translation. Decades of effort has led to persistent repetition in what the research priorities of people with lived-experience of mental ill-health are. AIM: This was a narrative review and synthesis of published literature reporting mental health research priorities (2011-2023). METHODS: A narrative framework was established with the questions: (1) who has been involved in priority setting? With whom have priorities been set? Which priorities have been established and for whom? What progress has been made? And, whose priorities are being progressed? RESULTS: Seven papers were identified...
March 27, 2024: Journal of Mental Health
https://read.qxmd.com/read/38535802/unveiling-the-broad-substrate-specificity-of-deoxynivalenol-oxidation-enzyme-depa-and-its-role-in-detoxifying-trichothecene-mycotoxins
#3
JOURNAL ARTICLE
Yan Zhu, Edicon Tze Shun Chan, Nadine Abraham, Xiu-Zhen Li, Weijun Wang, Lili Mats, Honghui Zhu, Jason Carere, Ting Zhou
DepA, a pyrroloquinoline quinone (PQQ)-dependent enzyme isolated from Devosia mutans 17-2-E-8, exhibits versatility in oxidizing deoxynivalenol (DON) and its derivatives. This study explored DepA's substrate specificity and enzyme kinetics, focusing on DON and 15-acetyl-DON. Besides efficiently oxidizing DON, DepA also transforms 15-acetyl-DON into 15-acetyl-3-keto-DON, as identified via LC-MS/MS and NMR analysis. The kinetic parameters, including the maximum reaction rate, turnover number, and catalytic efficiency, were thoroughly evaluated...
March 5, 2024: Toxins
https://read.qxmd.com/read/38534805/knowledge-attitudes-and-practices-of-hand-hygiene-mask-use-and-social-distancing-among-public-hospital-and-polyclinic-nurses-in-barbados-during-the-coronavirus-2019-pandemic
#4
JOURNAL ARTICLE
Uma Gaur, Wendy Sealy, Ambadasu Bharatha, Natasha P Sobers, Kandamaran Krishnamurthy, Michael H Campbell, Cara Cumberbatch, Maia Drakes, Marielle Gibbs, Charisse Alexander, Heather Harewood, O Peter Adams, Subir Gupta, Ali Davod Parsa, Russell Kabir, Md Anwarul Azim Majumder
BACKGROUND: Nurses are essential members of the healthcare workforce and were among the first-line carers for patients in community and hospital settings during the COVID-19 pandemic. As a result, they were at a heightened risk of infection, resulting in several reported deaths among nursing staff. Several preventive measures were adopted to contain the spread of the COVID-19 virus. This study aims to explore the knowledge, attitudes, and practices (KAP) of nurses regarding hand hygiene, mask wearing, and social distancing measures in healthcare settings in Barbados during the COVID-19 pandemic...
March 6, 2024: Epidemiologia (Basel)
https://read.qxmd.com/read/38533612/dying-at-home-what-is-needed-findings-from-a-nationwide-retrospective-cross-sectional-online-survey-of-bereaved-people-in-germany
#5
JOURNAL ARTICLE
Alina Kasdorf, Raymond Voltz, Julia Strupp
OBJECTIVES: According to the "Last Year of Life in Cologne" study, 68% of patients with a serious and terminal illness wanted to die at home, but 42% died in hospital. Only 1 in 5 died at home. Most people want to spend their last days and hours at home, but the reality is that this is not always possible. Recommendations are needed on how best to support families to enable people to die at home - if this is their preferred place of death. Our aim was to identify the factors that make it possible for people to die at home and to analyze factors of dying at home...
March 27, 2024: Palliative & Supportive Care
https://read.qxmd.com/read/38532989/access-and-cost-of-services-for-autistic-children-and-adults-in-italy-a-carers-perspective
#6
JOURNAL ARTICLE
Martina Micai, Francesca Fulceri, Tommaso Salvitti, Giovanna Romano, Maria Luisa Scattoni
BACKGROUND: Limited information exists on autistic service access and costs in Italy. OBJECTIVES: This study aims to investigate access to educational, healthcare, social, and related services for autistic individuals in Italy as part of the Autism Spectrum Disorder in the European Union (ASDEU) project. METHODS: Italian carers of autistic individuals completed an online survey regarding services and costs in the 6 months before completion...
2024: Frontiers in Psychiatry
https://read.qxmd.com/read/38532081/what-patient-reported-outcome-measures-may-be-suitable-for-research-involving-older-adults-with-frailty-a-scoping-review
#7
REVIEW
S O Long, S V Hope
INTRODUCTION: The need to develop and evaluate frailty-related interventions is increasingly important, and inclusion of patient-reported outcomes is vital. Patient-reported outcomes can be defined as measures of health, quality of life or functional status reported directly by patients with no clinician interpretation. Numerous validated questionnaires can thus be considered patient-reported outcome measures (PROMs). This review aimed to identify existing PROMs currently used in quantitative research that may be suitable for older people with frailty...
March 26, 2024: European Geriatric Medicine
https://read.qxmd.com/read/38531365/de-novo-missense-variants-in-exon-9-of-sephs1-cause-a-neurodevelopmental-condition-with-developmental-delay-poor-growth-hypotonia-and-dysmorphic-features
#8
JOURNAL ARTICLE
Sureni V Mullegama, Kaitlyn A Kiernan, Erin Torti, Ethan Pavlovsky, Nicholas Tilton, Austin Sekula, Hua Gao, Joseph T Alaimo, Kendra Engleman, Eric T Rush, Karli Blocker, Katrina M Dipple, Veronica M Fettig, Heather Hare, Ian Glass, Dorothy K Grange, Michael Griffin, Chanika Phornphutkul, Lauren Massingham, Lakshmi Mehta, Danny E Miller, Jenny Thies, J Lawrence Merritt, Eric Muller, Matthew Osmond, Sarah L Sawyer, Rachel Slaugh, Rachel E Hickey, Barry Wolf, Sanjeev Choudhary, Miljan Simonović, Yueqing Zhang, Timothy Blake Palculict, Aida Telegrafi, Deanna Alexis Carere, Ingrid M Wentzensen, Michelle M Morrow, Kristin G Monaghan, Jun Yang, Jane Juusola
Selenophosphate synthetase (SEPHS) plays an essential role in selenium metabolism. Two mammalian SEPHS paralogues, SEPHS1 and SEPHS2, share high sequence identity and structural homology with SEPHS. Here, we report nine individuals from eight families with developmental delay, growth and feeding problems, hypotonia, and dysmorphic features, all with heterozygous missense variants in SEPHS1. Eight of these individuals had a recurrent variant at amino acid position 371 of SEPHS1 (p.Arg371Trp, p.Arg371Gln, and p...
March 21, 2024: American Journal of Human Genetics
https://read.qxmd.com/read/38531294/young-carers-supporting-a-relative-with-cancer-what-is-the-healthcare-professionals-knowledge-in-france-an-exploratory-study
#9
REVIEW
Pauline Justin, Géraldine Dorard, Agnes Leu, Aurélie Untas
PURPOSE: Many children and adolescents support relatives with cancer. However, literature about young carers (YCs) shows a lack of awareness among professionals, especially in oncology. This quantitative study aims to explore the level of knowledge and perceptions of healthcare professionals working with cancer patients about the situations and characteristics of YCs. METHODS: 395 professionals participated in an online survey. Professionals reported sociodemographic and professional information and answered several questions evaluating their perceptions about YCs, such as the types of support provided and the consequences of being a YC...
March 18, 2024: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://read.qxmd.com/read/38528675/barriers-to-accessing-and-receiving-mental-health-care-for-paid-and-unpaid-carers-of-older-adults
#10
JOURNAL ARTICLE
Clarissa Giebel, Laura Prato, Sue Metcalfe, Hazel Barrow
AIM: The aim of this qualitative study was to explore the barriers and facilitators to accessing and receiving mental health care for paid and unpaid carers of older adults. METHODS: Unpaid and paid carers for older adults in England were interviewed remotely between May and December 2022. Participants were asked about their experiences of mental health needs and support. Reflexive thematic analysis was used to analyse the data. RESULTS: Thirty-seven carers participated (npaid  = 9; nunpaid  = 28), with the majority caring for a parent with dementia...
April 2024: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://read.qxmd.com/read/38528583/tools-to-measure-the-burden-on-informal-caregivers-of-cancer-patients-a-literature-review
#11
REVIEW
Mingming Zhong, Shanshan Sun, Jianying Long, Mengyuan Yuan, Min Wang, Zhigang Zhang
OBJECTIVES: (1) To describe existing tools to assess the burden of informal caregivers of people with cancer, (2) to describe how these tools have been validated and (3) to describe the areas of interest of existing assessment tool entries. BACKGROUND: The caregiver burden of informal caregivers of people with cancer greatly affects their lives. There is a wide variety of relevant assessment tools available, but there are no studies to help researchers to select tools...
March 25, 2024: Journal of Clinical Nursing
https://read.qxmd.com/read/38528376/treatment-withdrawal-experiences-of-women-with-breast-cancer-a-phenomenological-study
#12
JOURNAL ARTICLE
Shu-Ching Chi, Yu-Chen Liu, Sriyani Padmalatha Konara Mudiyanselage, Susan Fetzer, Mei-Feng Lin
AIM: To obtain an in-depth understanding of the lived experiences, values, and beliefs of Taiwanese women with breast cancer who withdrew from cancer treatment. BACKGROUND: Fear of side effects, negative experiences and personal beliefs were identified as reasons for withdrawing from cancer treatments. Body-mind consciousness and body autonomy play a crucial role in cancer treatment decisions. DESIGN: Descriptive phenomenological approach...
March 25, 2024: Journal of Clinical Nursing
https://read.qxmd.com/read/38528346/factors-related-to-psychosocial-adjustment-in-patients-with-enterostomy-based-on-a-national-cross-sectional-survey
#13
JOURNAL ARTICLE
Lu Zhou, Zhengyang Zhang, Hui Li, Ling Wang
AIMS: This study aimed to explore the psychosocial adjustment of enterostomy patients on a national scale. DESIGN: Based on a national cross-sectional survey. METHODS: From December 2021 and February 2023, a total of 22,040 enterostomy patients were assessed using the ostomy adjustment inventory-20. Initial analysis involved employing the chi-square test or Kruskal-Wallis H test to identify factors influencing the psychosocial adjustment of these patients...
March 25, 2024: Journal of Clinical Nursing
https://read.qxmd.com/read/38527907/exploring-the-role-of-palliative-care-occupational-therapists-in-supporting-compassionate-communities-in-end-of-life-care
#14
JOURNAL ARTICLE
Samantha Smith, Daniel Lowrie, Nathan Dawes
INTRODUCTION: The compassionate communities' movement is a public health approach to end-of-life care that emphasises the integral role of communities in supporting and caring for dying persons and their informal carers. Although occupational therapists have well-established roles in palliative care teams, little is known about their potential in assisting in the formation and maintenance of compassionate communities. METHOD: Data were gathered via semi-structured interviews with nine Australian occupational therapists with experience in specialist palliative care...
March 25, 2024: Australian Occupational Therapy Journal
https://read.qxmd.com/read/38527031/-integrating-ethics-and-equity-with-economics-and-effectiveness-for-newborn-screening-in-the-genomic-age-a-qualitative-study-protocol-of-stakeholder-perspectives
#15
JOURNAL ARTICLE
Didu S Kariyawasam, Joanne Scarfe, Christian Meagher, Michelle A Farrar, Kaustav Bhattacharya, Stacy M Carter, Ainsley J Newson, Margaret Otlowski, Jo Watson, Nicole Millis, Sarah Norris
BACKGROUND: Newborn bloodspot screening is a well-established population health initiative that detects serious, childhood-onset, treatable conditions to improve health outcomes. With genomic technologies advancing rapidly, many countries are actively discussing the introduction of genomic assays into newborn screening programs. While adding genomic testing to Australia's newborn screening program could improve outcomes for infants and families, it must be considered against potential harms, ethical, legal, equity and social implications, and economic and health system impacts...
2024: PloS One
https://read.qxmd.com/read/38526026/navigating-complexity-of-the-medication-management-system-within-the-home-setting-a-functional-resonance-analysis-method-fram-analysis-of-people-with-dementia-and-their-carers-experiences
#16
JOURNAL ARTICLE
Rosemary Lim, Mais Iflaifel, Zahra A L Qamariat, Clare Crowley, Taniya Sharmeen
BACKGROUND: There is a strong imperative to support people with dementia to live independently in their homes for as long as possible. A starting point is to understand how they manage medications on a daily basis. AIM: To understand how people with dementia and their informal carers manage medications within the home setting to inform the identification of opportunities to improve medication management. METHODS: A qualitative study using the Functional Resonance Analysis Method (FRAM)...
March 1, 2024: Age and Ageing
https://read.qxmd.com/read/38525784/the-frailty-reduction-via-implementation-of-exercise-nutrition-and-deprescribing-friend-trial-study-protocol-and-recruitment-results
#17
JOURNAL ARTICLE
Michael Inskip, Carolina Almendrales Rangel, Chidiamara Maria Njoku, Fiona Barnett, Isabel Shih, Leonie O'Neill, Maria A Fiatarone Singh, Trinidad Valenzuela
INTRODUCTION: Virtually all adults in aged care facilities are frail, a condition which contributes to falls, cognitive decline, hospitalisation, and mortality. Polypharmacy, malnutrition, sedentariness, and sarcopenia are risk factors amenable to intervention. The Asia-Pacific Frailty Management Guidelines recommend anabolic exercise and the optimisation of medications and nutrition. However, no study has evaluated this best practice intervention triad in aged care. METHODS: The Frailty Reduction via the Implementation of Exercise, Nutrition, and Deprescribing (FRIEND) Trial (ANZCTR No...
March 22, 2024: Methods and Protocols
https://read.qxmd.com/read/38525347/forgone-healthcare-for-medically-vulnerable-groups-during-the-pandemic-era-experiences-of-family-caregivers-of-young-adults-with-substance-use-disorders-in-zambia
#18
JOURNAL ARTICLE
Ireen Manase Kabembo
INTRODUCTION: Scholars worldwide have defined the COVID-19 pandemic as a mass-disabling event of our time. The situation is grave for families experiencing financial hurdles while caring for young adults in recovery from addiction problems. METHODS: Using semi-structured interviews with 30 purposively selected family caregivers (FCGs) of young adults with substance use disorders (SUDs) in Lusaka, Zambia, this study reveals several factors influencing forgone healthcare for this medically vulnerable group...
2024: Frontiers in Public Health
https://read.qxmd.com/read/38523304/a-post-diagnosis-information-and-support-programme-for-dyads-people-living-with-dementia-or-mild-cognitive-impairment-and-family-carers-a-feasibility-study
#19
JOURNAL ARTICLE
Gillian Stockwell-Smith, Wendy Moyle, Laurie Grealish, Tracy Comans, Paul Varghese, Carol Whitlatch, Silvia Orsulic-Jeras
AIM: The aim of the study was to establish the feasibility of delivering a structured post-diagnosis information and support program to dyads (persons living with dementia or mild cognitive impairment and family carers) in two primary care settings. DESIGN: A two-phase explanatory mixed-method approach guided by the Bowen Feasibility Framework focused on acceptability, implementation, adaptation, integration and efficacy of a five-part programme. In phase 1, the quantitative impact of the programme on the dyadic programme recipients' self-efficacy, quality of life, dyadic relationship and volume of care was measured...
March 24, 2024: Journal of Advanced Nursing
https://read.qxmd.com/read/38522172/the-mental-health-and-well-being-implications-of-a-mesothelioma-diagnosis-a-mixed-methods-study
#20
JOURNAL ARTICLE
Virginia Sherborne, Emily Wood, Catriona R Mayland, Clare Gardiner, Caitlin Lusted, Anna Bibby, Angela Tod, Bethany Taylor, Stephanie Ejegi-Memeh
PURPOSE: Mesothelioma is an incurable, asbestos-related cancer with a poor prognosis. There is scant evidence about the mental health and well-being impacts on patients and carers living with the illness. This study aimed to investigate mesothelioma's impact on mental health and well-being and the scale of mental health conditions in patients and informal carers. METHODS: A mixed-methods design was used: a cross-sectional survey of mesothelioma patients and informal carers plus semi-structured interviews with patients and carers...
March 15, 2024: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
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