keyword
MENU ▼
Read by QxMD icon Read
search

Carer

keyword
https://www.readbyqxmd.com/read/28531419/current-practices-and-experience-of-transition-of-young-people-on-long-term-home-parenteral-nutrition-pn-to-adult-services-a-perspective-from-specialist-centres
#1
E Kyrana, S V Beath, S Gabe, M Small, S Hill
BACKGROUND: There has been an estimated fivefold increase in the number of children receiving parenteral nutrition (PN) at home in the past 10 years with some children approaching the age when they should be referred to adult services whilst still on treatment. Models of care for moving young people onto adult providers of PN at home are not yet well developed, and transition is a potentially dangerous time for young people with complex health needs. METHODS: A questionnaire to ascertain current experience and practices of transition in the context of home PN services was dispatched to 170 consultant gastroenterologists who were members of the British Association of Parenteral and Enteral Nutrition (BAPEN) and also to all 40 members of the Nutrition and IF working group of the British Society of Paediatric Gastroenterology and Nutrition (BSPGHAN)...
August 2016: Clinical Nutrition ESPEN
https://www.readbyqxmd.com/read/28529371/siva-the-mad-lord-a-puranic-perspective
#2
Ottilingam Somasundaram, Tejus Murthy
The eccentricities of Lord Shiva, especially His attire, behavior - particularly the midnight dance at the cremation grounds surrounded by various strange beings, fondness to remain naked, and love for strange pets such as snakes and fawn, have attracted the loving and devout attention from His various adiyargal (devotees). This has resulted in the outpouring of their love for their Lord in the form of Thevaram and Thiruvachakam of Sambandar, Appar, Sundarar, Karaikal Ammaiyar, and Manickavachakar. Along with these writings, the background Puranic myths are mentioned...
January 2017: Indian Journal of Psychiatry
https://www.readbyqxmd.com/read/28529358/how-do-psychiatrists-in-india-construct-their-professional-identity-a-critical-literature-review
#3
Clement Bayetti, Sushrut Jadhav, Smita N Deshpande
Psychiatric practice in India is marked by an increasing gulf between largely urban-based mental health professionals and a majority rural population. Based on the premise that any engagement is a mutually constructed humane process, an understanding of the culture of psychiatry including social process of local knowledge acquisition by trainee psychiatrists is critical. This paper reviews existing literature on training of psychiatrists in India, the cultural construction of their professional identities and autobiographical reflections...
January 2017: Indian Journal of Psychiatry
https://www.readbyqxmd.com/read/28528694/factors-influencing-the-transition-from-pediatric-to-adult-care-a-scoping-review-of-the-literature-to-conceptualize-a-relevant-education-program
#4
REVIEW
Maxime Morsa, Rémi Gagnayre, Carole Deccache, Pierre Lombrail
OBJECTIVE: To give a comprehensive overview of the factors that influence the transition from pediatric services to adult care, and to conceptualize a relevant education program. METHOD: An evaluation grid was used to analyze the literature and classify factors depending on whether they were related to the patients, to the health care organization, to health care personnel, to the interaction between medical staff and patient, or to the illness and its treatment...
May 15, 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/28526493/improving-comfort-around-dying-in-elderly-people-a-cluster-randomised-controlled-trial
#5
Kim Beernaert, Tinne Smets, Joachim Cohen, Rebecca Verhofstede, Massimo Costantini, Kim Eecloo, Nele Van Den Noortgate, Luc Deliens
BACKGROUND: Over 50% of elderly people die in acute hospital settings, where the quality of end-of-life care is often suboptimum. We aimed to assess the effectiveness of the Care Programme for the Last Days of Life (CAREFuL) at improving comfort and quality of care in the dying phase in elderly people. METHODS: We did a cluster randomised controlled trial in acute geriatric wards in ten hospitals in Flemish Region, Belgium, between Oct 1, 2012, and March 31, 2015...
May 16, 2017: Lancet
https://www.readbyqxmd.com/read/28526055/developing-a-proxy-version-of-the-adult-social-care-outcome-toolkit-ascot
#6
Stacey Rand, James Caiels, Grace Collins, Julien Forder
BACKGROUND: Social care-related quality of life is a key outcome indicator used in the evaluation of social care interventions and policy. It is not, however, always possible to collect quality of life data by self-report even with adaptations for people with cognitive or communication impairments. A new proxy-report version of the Adult Social Care Outcomes Toolkit (ASCOT) measure of social care-related quality of life was developed to address the issues of wider inclusion of people with cognitive or communication difficulties who may otherwise be systematically excluded...
May 19, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28525725/a-comparison-of-the-validity-and-responsiveness-of-the-eq-5d-5l-and-sf-6d-for-measuring-health-spillovers-a-study-of-the-family-impact-of-meningitis
#7
Arjun Bhadhuri, Sue Jowett, Kate Jolly, Hareth Al-Janabi
BACKGROUND: The "health spillover" of patient illness on family members is important to capture in economic evaluation. This study compares the construct validity and responsiveness of 2 widely used health-related quality-of-life instruments, the EQ-5D-5L and SF-6D, in capturing health spillover effects for family members with and without an informal care role (carers and noncarers). METHODS: Construct validity and responsiveness were assessed using data from a 2012 UK survey of the family impact of meningitis-related sequelae...
May 1, 2017: Medical Decision Making: An International Journal of the Society for Medical Decision Making
https://www.readbyqxmd.com/read/28517041/modifying-illness-beliefs-in-recent-onset-psychosis-carers-evaluating-the-impact-of-a-cognitively-focused-brief-group-intervention-in-a-routine-service
#8
Juliana Onwumere, Naomi Glover, Sarah Whittaker, Shireen Rahim, Lai Chu Man, Gareth James, Sanna Khan, Roya Afsharzadegan, Saal Seneviratne, Raythe Harvey, Anna Georgiades, David Raune
AIMS: At first-episode psychosis (FEP), many patients will be routed within familial networks and supported by informal carers who are predominately close family members such as parents. Carer burden, distress and poorer coping styles are associated with different illness beliefs. The current study sought to examine the impact and acceptability of a 3 session, cognitively informed, group intervention targeting illness beliefs previously linked to distress and poorer caregiving experiences in FEP carers...
May 18, 2017: Early Intervention in Psychiatry
https://www.readbyqxmd.com/read/28516470/survived-so-what-identifying-priorities-for-research-with-children-and-families-post-paediatric-intensive-care-unit
#9
Joseph C Manning, Pippa Hemingway, Sarah A Redsell
The involvement of patients and the public in the development, implementation and evaluation of health care services and research is recognized to have tangible benefits in relation to effectiveness and credibility. However, despite >96% of children and young people surviving critical illness or injury, there is a paucity of published reports demonstrating their contribution to informing the priorities for aftercare services and outcomes research. We aimed to identify the service and research priorities for Paediatric Intensive Care Unit survivors with children and young people, their families and other stakeholders...
May 17, 2017: Nursing in Critical Care
https://www.readbyqxmd.com/read/28514993/beyond-diagnosis-and-survivorship-findings-from-a-mixed-methods-study-of-a-community-based-cancer-support-service
#10
Ilse Blignault, Louise McDonnell, Diana Aspinall, Robyn Yates, Jennifer Reath
This consumer-led research investigated the client experiences and the individual and community benefits of a community-based cancer support service operating in a regional setting. The study included cross-sectional surveys, focus group discussions and key-informant interviews. In total, 114 clients, 28 carers and 20 therapists were surveyed; three client focus groups were conducted and five directors and staff were interviewed. For many clients and carers, the warm welcome experienced at first contact sets the tone for a long-term association with the organisation...
May 18, 2017: Australian Journal of Primary Health
https://www.readbyqxmd.com/read/28513238/exercise-and-dementia-in-nursing-homes-views-of-staff-and-family-carers
#11
Lindsey Brett, Victoria Traynor, Paul Stapley, Shahla Meedya
This paper reports the qualitative component of a randomized controlled trial which evaluated the impact and feasibility of a physical exercise intervention on individuals living with dementia in nursing homes. Interviews were conducted with 10 staff and nine family carers about their views and opinions of physical exercise (n=19). Thematic content analysis revealed both benefits and barriers to physical exercise for individuals living with dementia in nursing homes. Another theme was the influences of knowledge and understanding on individuals' views of physical exercise...
May 17, 2017: Journal of Aging and Physical Activity
https://www.readbyqxmd.com/read/28513190/prevalence-and-correlates-of-bullying-victimisation-and-perpetration-in-a-nationally-representative-sample-of-australian-youth
#12
Hannah J Thomas, Jason P Connor, David M Lawrence, Jennifer M Hafekost, Stephen R Zubrick, James G Scott
OBJECTIVE: Bullying prevalence studies are limited by varied measurement methods and a lack of representative samples. This study estimated the national prevalence of bullying victimisation, perpetration and combined victim-perpetration experiences in a representative population-based sample of Australian youth. The relationships between the three types of bullying involvement with a range of mental health symptoms and diagnoses were also examined. METHODS: A randomly selected nationally representative sample aged 11-17 years ( N = 2967, Mage = 14...
May 1, 2017: Australian and New Zealand Journal of Psychiatry
https://www.readbyqxmd.com/read/28512697/utilization-of-genetic-counseling-after-direct-to-consumer-genetic-testing-findings-from-the-impact-of-personal-genomics-pgen-study
#13
Diane R Koeller, Wendy R Uhlmann, Deanna Alexis Carere, Robert C Green, J Scott Roberts
Direct-to-consumer personal genomic testing (DTC-PGT) results lead some individuals to seek genetic counseling (GC), but little is known about these consumers and why they seek GC services. We analyzed survey data pre- and post-PGT from 1026 23andMe and Pathway Genomics customers. Participants were mostly white (91%), female (60%), and of high socioeconomic status (80% college educated, 43% household income of ≥$100,000). After receiving PGT results, 43 participants (4%) made or planned to schedule an appointment with a genetic counselor; 390 (38%) would have used in-person GC had it been available...
May 16, 2017: Journal of Genetic Counseling
https://www.readbyqxmd.com/read/28511581/the-ranzcp-guidelines-for-schizophrenia-why-is-our-practice-so-far-short-of-our-recommendations-and-what-can-we-do-about-it
#14
Olav Nielssen, Patrick McGorry, David Castle, Cherrie Galletly
The new RANZCP guidelines for the treatment of schizophrenia and related disorders highlights what we know works. In this paper, we examine why patients so often fail to benefit from this knowledge and why clinical practice falls so far short of the recommended standard. Instead of the continuous improvement that we expect of health care in general, in psychiatry we face an accelerating decline in systems of care. There has been a sustained underinvestment in public mental health care and a shared failure by State and Federal governments to construct and commit to a governance and funding model that can deliver the standard of care that is available in other major non-communicable diseases, and which we know is equally possible for severe mental illness...
May 1, 2017: Australian and New Zealand Journal of Psychiatry
https://www.readbyqxmd.com/read/28509404/family-therapy-for-autism-spectrum-disorders
#15
REVIEW
Debbie Spain, Jacqueline Sin, Eleni Paliokosta, Marie Furuta, Jonathan E Prunty, Trudie Chalder, Declan G Murphy, Francesca G Happé
BACKGROUND: Autism spectrum disorders (ASDs) are characterised by impairments in communication and reciprocal social interaction. These impairments can impact on relationships with family members, augment stress and frustration, and contribute to behaviours that can be described as challenging. Family members of individuals with ASD can experience high rates of carer stress and burden, and poor parental efficacy. While there is evidence to suggest that individuals with ASD and family members derive benefit from psychological interventions designed to reduce stress and mental health morbidity, and enhance coping, most studies to date have targeted the needs of either individuals with ASD, or family members...
May 16, 2017: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/28508793/poseidon-bringing-assistive-technology-to-people-with-down-syndrome-results-of-a-three-year-european-project
#16
Anne Engler, Eva Schulze
The POSEIDON project aimed to increase the independence and autonomy of people with Down syndrome with the help of technical assistants. It followed a user-centered approach by involving people with Down syndrome and their parents, carers etc. A requirement analysis was the first step of the project. It became clear that people with Down syndrome especially need support in the areas of time management, mobility and money handling. Different applications were developed which were tested and evaluated in two field tests in three countries...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28504334/advances-in-functional-brain-imaging-technology-and-developmental-neuro-psychology-their-applications-in-the-jungian-analytic-domain
#17
Leon Petchkovsky
Analytical psychology shares with many other psychotherapies the important task of repairing the consequences of developmental trauma. The majority of analytic patients come from compromised early developmental backgrounds: they may have experienced neglect, abuse, or failures of empathic resonance from their carers. Functional brain imagery techniques including Quantitative Electroencephalogram (QEEG), and functional Magnetic Resonance Imagery (fMRI), allow us to track mental processes in ways beyond verbal reportage and introspection...
June 2017: Journal of Analytical Psychology
https://www.readbyqxmd.com/read/28503094/the-nature-characteristics-and-associations-of-care-home-staff-stress-and-wellbeing-a-national-survey
#18
Muhammad Saiful Islam, Christine Baker, Peter Huxley, Ian T Russell, Michael S Dennis
BACKGROUND: The majority of residents in care homes in the United Kingdom are living with dementia or significant memory problems. Caring in this setting can be difficult and stressful for care staff who work long hours, have little opportunity for training, are poorly paid and yet subject to high expectation. This may affect their mental and physical wellbeing, cause high rates of staff turnover and absenteeism, and affect the quality of care they provide. The main objective of this survey was to explore the nature, characteristics and associations of stress in care home staff...
2017: BMC Nursing
https://www.readbyqxmd.com/read/28501755/new-challenges-for-verbal-autopsy-considering-the-ethical-and-social-implications-of-verbal-autopsy-methods-in-routine-health-information-systems
#19
REVIEW
Hebe N Gouda, Abraham D Flaxman, Claire E Brolan, Rohina Joshi, Ian D Riley, Carla AbouZahr, Sonja Firth, Rasika Rampatige, Alan D Lopez
Verbal autopsy (VA) methods are designed to collect cause-of-death information from populations where many deaths occur outside of health facilities and where death certification is weak or absent. A VA consists of an interview with a relative or carer of a recently deceased individual in order to gather information on the signs and symptoms the decedent presented with prior to death. These details are then used to determine and assign a likely cause-of-death. At a population level this information can be invaluable to help guide prioritisation and direct health policy and services...
May 3, 2017: Social Science & Medicine
https://www.readbyqxmd.com/read/28499440/a-feasibility-randomised-controlled-trial-of-extended-brief-intervention-for-alcohol-misuse-in-adults-with-mild-to-moderate-intellectual-disabilities-living-in-the-community-the-ebi-ld-study
#20
Christos Kouimtsidis, Alessandro Bosco, Katrina Scior, Gianluca Baio, Rachael Hunter, Vittoria Pezzoni, Eileen Mcnamara, Angela Hassiotis
BACKGROUND: Extended brief interventions (EBIs) are effective in targeting alcohol misuse in the general population. However, little is known of the effects of EBI in adults with intellectual (also known as learning) disabilities. In this feasibility trial we compared EBI with usual care for alcohol misuse in adults with mild to moderate Intellectual Disability (ID). METHODS: The study took place in three community ID networks of services in England. Participants aged 18-65 years with reported alcohol problems, a score ≥8 on the Alcohol Use Disorder Identification Test (AUDIT), and IQ <70 (+/5%CI) were recruited and were randomly allocated to either EBI (five weekly sessions and one follow-up at 8 weeks) and usual care or usual care alone...
May 12, 2017: Trials
keyword
keyword
1579
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"