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https://www.readbyqxmd.com/read/28812949/-i-m-sure-we-made-it-a-better-study%C3%A2-experiences-of-adults-with-intellectual-disabilities-and-parent-carers-of-patient-and-public-involvement-in-a-health-research-study
#1
Carole Beighton, Christina Victor, Iain M Carey, Fay Hosking, Steve DeWilde, Derek G Cook, Paula Manners, Tess Harris
Patient and public involvement is considered integral to health research in the United Kingdom; however, studies documenting the involvement of adults with intellectual disabilities and parent carers in health research studies are scarce. Through group interviews, this study explored the perspectives and experiences of a group of adults with intellectual disabilities and a group of parent carers about their collaborative/participatory involvement in a 3-year study which explored the effectiveness of annual health checks for adults with intellectual disabilities...
January 1, 2017: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/28812945/phase-of-illness-in-palliative-care-cross-sectional-analysis-of-clinical-data-from-community-hospital-and-hospice-patients
#2
Harriet Mather, Ping Guo, Alice Firth, Joanna M Davies, Nigel Sykes, Alison Landon, Fliss Em Murtagh
BACKGROUND: Phase of Illness describes stages of advanced illness according to care needs of the individual, family and suitability of care plan. There is limited evidence on its association with other measures of symptoms, and health-related needs, in palliative care. AIMS: The aims of the study are as follows. (1) Describe function, pain, other physical problems, psycho-spiritual problems and family and carer support needs by Phase of Illness. (2) Consider strength of associations between these measures and Phase of Illness...
August 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28812480/new-guide-helps-carers-use-art-in-dementia-care
#3
(no author information available yet)
Nurses who supervise art workshops for people with dementia can refer to a new guide to help things run smoothly.
August 16, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28811259/should-i-trust-you-learning-and-memory-of-social-interactions-in-dementia
#4
Stephanie Wong, Muireann Irish, Claire O'Callaghan, Fiona Kumfor, Greg Savage, John R Hodges, Olivier Piguet, Michael Hornberger
Social relevance has an enhancing effect on learning and subsequent memory retrieval. The ability to learn from and remember social interactions may impact on susceptibility to financial exploitation, which is elevated in individuals with dementia. The current study aimed to investigate learning and memory of social interactions, the relationship between performance and financial vulnerability and the neural substrates underpinning performance in 14 Alzheimer's disease (AD) and 20 behavioural-variant frontotemporal dementia (bvFTD) patients and 20 age-matched healthy controls...
August 12, 2017: Neuropsychologia
https://www.readbyqxmd.com/read/28810477/feasibility-randomised-controlled-trial-of-a-self-help-acceptance-and-commitment-therapy-intervention-for-grief-and-psychological-distress-in-carers-of-palliative-care-patients
#5
Esther L Davis, Frank P Deane, Geoffrey Cb Lyons, Gregory D Barclay, Joan Bourne, Vivienne Connolly
We tested the feasibility and preliminary effectiveness of an acceptance and commitment therapy self-help intervention for grief and psychological distress in carers of patients in palliative care. Carers were randomised to the control group, which received treatment as usual, or the intervention group, which received treatment as usual plus an acceptance and commitment therapy-based self-help booklet and telephone support call. Questionnaires were completed at baseline, 1-month post-allocation and 6 months post-loss...
June 1, 2017: Journal of Health Psychology
https://www.readbyqxmd.com/read/28809190/design-thinking-for-mhealth-application-co-design-to-support-heart-failure-self-management
#6
Leanna Woods, Elizabeth Cummings, Jed Duff, Kim Walker
Heart failure is a prevalent, progressive chronic disease costing in excess of $1billion per year in Australia alone. Disease self-management has positive implications for the patient and decreases healthcare usage. However, adherence to recommended guidelines is challenging and existing literature reports sub-optimal adherence. mHealth applications in chronic disease education have the potential to facilitate patient enablement for disease self-management. To the best of our knowledge no heart failure self-management application is available for safe use by our patients...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28808797/do-carer-s-levels-of-unmet-needs-change-over-time-when-caring-for-patients-diagnosed-with-high-grade-glioma-and-how-are-these-needs-correlated-with-distress
#7
G K B Halkett, E A Lobb, T Shaw, M M Sinclair, L Miller, E Hovey, A K Nowak
PURPOSE: The aim of the current study was to determine how carer needs changed longitudinally and understand associations between unmet needs and distress. METHODS: Family carers of patients with high-grade glioma (HGG) were recruited. Carers completed questionnaires during patients' chemoradiotherapy (T1), 3 months (T2) and 6 months (T3) including the following: the Distress Thermometer, the General Health Questionnaire-12, the Partner and Carer Supportive Care (PCS) Needs Scale and its supplement the Access to Services Needs Scale and the Brain Tumour Specific Supportive Care Needs Scale...
August 14, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28806934/development-and-evaluation-of-the-content-validity-practicability-and-feasibility-of-the-innovative-dementia-oriented-assessment-system-for-challenging-behaviour-in-residents-with-dementia
#8
Margareta Halek, Daniela Holle, Sabine Bartholomeyczik
BACKGROUND: One of the most difficult issues for care staff is the manifestation of challenging behaviour among residents with dementia. The first step in managing this type of behaviour is analysing its triggers. A structured assessment instrument can facilitate this process and may improve carers' management of the situation. This paper describes the development of an instrument designed for this purpose and an evaluation of its content validity and its feasibility and practicability in nursing homes...
August 14, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28805581/nonmotor-parkinson-s-and-future-directions
#9
Nataliya Titova, K Ray Chaudhuri
Nonmotor symptoms (NMS) of Parkinson's disease (PD) are integral to the condition largely regarded as a motor syndrome. A range of NMS underpin the prodromal stage of Parkinson's and are present with variable frequency, range, and nature across the whole journey of a patient with Parkinson's from the onset of the motor disease to palliative stage. These symptoms also are key determinants of quality of life of the patient as well as the carer. Despite this, recognition management and focused treatment of NMS of PD remain poor...
2017: International Review of Neurobiology
https://www.readbyqxmd.com/read/28805186/improving-the-social-health-of-community-dwelling-older-people-living-with-dementia-through-a-reablement-program
#10
Yun-Hee Jeon, Lindy Clemson, Sharon L Naismith, Loren Mowszowski, Niki McDonagh, Margaret Mackenzie, Caitlin Dawes, Luisa Krein, Sarah L Szanton
Psychological, neurological, and social impairments caused by dementia may limit the person's everyday living and experiences, but their capacity to enjoy a meaningful life is still retained. Increasingly, evidence has been shown the importance of reablement approaches to care in maximizing the older person's independence, health, and well-being through increased engagement in their daily, physical, social, and community activities. However, there is a major knowledge gap in providing reablement for people living with dementia...
August 14, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28804995/assessing-the-need-for-arthritis-training-among-paid-carers-in-uk-residential-care-homes-a-focus-group-and-interview-study
#11
Paul Whybrow, Suzanne Moffatt, Lesley Kay, Ben Thompson, Terry Aspray, Rachel Duncan
OBJECTIVE: The aim of the study was to perform an educational and training needs assessment for arthritis care in residential homes. METHODS: Qualitative data were collected from three purposively selected residential homes: one independent, one in a regional chain and one in a national chain. Three researcher-led focus groups were conducted with paid carers (N = 22) using vignette exercises; interviews were undertaken with 12 residents with joint pain (N = 12), five managerial staff and two general practitioners (GPs)...
August 14, 2017: Musculoskeletal Care
https://www.readbyqxmd.com/read/28802929/caregiver-burden-and-the-nonmotor-symptoms-of-parkinson-s-disease
#12
Jon P Hiseman, Robin Fackrell
Parkinson's disease has traditionally been considered as primarily a motor disorder (Chaudhuri & Schapira, 2009). It is clear however that it is the burden of the nonmotor symptomatology which impacts significantly more highly on caregiver burden and quality of life (Benavides, Alberquerque, & Chana-Cuevas, 2013; Martinez-Martin, 2011). As Parkinson's disease advances there is an almost inevitable accrual of nonmotor symptoms alongside the motor aspects of the disease. Patients as their disease progresses require increasing support and this is not infrequently provided by an informal caregiver, most typically a spouse or family member (Martinez-Martin, Forjaz, Frades-Payo, et al...
2017: International Review of Neurobiology
https://www.readbyqxmd.com/read/28802024/the-cereal-pathogen-fusarium-pseudograminearum-produces-a-new-class-of-active-cytokinins-during-infection
#13
Jens Laurids Sørensen, Aurelie H Benfield, Rasmus Dam Wollenberg, Klaus Westphal, Reinhard Wimmer, Mikkel Rank Nielsen, Kristian Fog Nielsen, Jason Carere, Lorenzo Covarelli, Giovanni Beccari, Jonathan Powell, Takafumi Yamashino, Herbert Kogler, Teis Esben Sondergaard, Donald Max Gardiner
The fungal pathogen Fusarium pseudograminearum causes important diseases of wheat and barley. During a survey of secondary metabolites produced by this fungus, a novel class of cytokinins, herein termed Fusarium cytokinins, was discovered. Cytokinins are known for their growth promoting and anti-senescence activities and the production of a cytokinin mimic by what was once considered a necrotrophic pathogen that promotes cell death and senescence challenges the simple view that this pathogen invades its hosts by employing a barrage of lytic enzymes and toxins...
August 12, 2017: Molecular Plant Pathology
https://www.readbyqxmd.com/read/28800268/asthma-management-experiences-of-australians-who-are-native-arabic-speakers
#14
Reem Alzayer, Betty Chaar, Iman Basheti, Bandana Saini
OBJECTIVE: The aim of this study was to explore the asthma management experiences of people with asthma within the Arabic-speaking community in Australia. METHODS: Semi-structured interviews guided by a schedule of questions were conducted with 25 Arabic-speaking women with asthma/carer of a child with asthma, recruited from medical practices and community centers in Melbourne, Australia. RESULTS: Twenty-five Arabic-speaking participants with asthma or caring for those with asthma were interviewed...
August 11, 2017: Journal of Asthma: Official Journal of the Association for the Care of Asthma
https://www.readbyqxmd.com/read/28797309/aging-well-on-the-autism-spectrum-the-perspectives-of-autistic-adults-and-carers
#15
Ye In Jane Hwang, Kitty-Rose Foley, Julian N Trollor
BACKGROUND: "Aging well" is an increasingly popular concept in gerontology. Adults with disabilities such as autism spectrum disorder represent a demographically substantial population, yet remain excluded from existing conceptualizations of aging well. This qualitative study aimed to explore what it means for autistic adults to "age well" from the perspectives of autistic adults and carers. METHODS: Twenty-four semi-structured interviews were conducted with 15 autistic adults (mean age 50...
August 11, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28793807/-stuck-in-a-loop-of-fear-a-phenomenological-exploration-of-carers-experiences-supporting-a-spouse-with-acquired-brain-injury
#16
Benjamin J Lond, Iain R Williamson
PURPOSE: Family caregivers are important to facilitating the rehabilitation of individuals with brain injury. However, research shows spousal carers often reporting poorer health and well-being with psychosocial challenges including increased marital dissatisfaction. This study explores the accounts of participants caring for a spouse with brain injury. MATERIALS AND METHODS: This study used semi-structured interviewing and interpretative phenomenological analysis...
August 9, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28792359/-i-want-to-go-gently-how-aids-patients-in-ghana-envisage-their-deaths
#17
Fidelia N A Ohemeng, Steve Tonah
This article examines the views of persons living with AIDS about how they want to die and how they are planning for their deaths. Participants for the study were purposefully drawn from an HIV clinic in an urban town in Ghana. In-depth interviews were conducted with 25 persons living with AIDS. Three preferences of death were identified by the participants. These include the desire for a quick death, death at home, and death without emaciating. Planning for death involved attending church and taking care of children...
September 2017: Omega
https://www.readbyqxmd.com/read/28792326/nurse-led-scheme-lets-carers-manage-cancer-pain-medication
#18
(no author information available yet)
A newly developed nurse-led intervention supporting carers to manage pain medication in people with terminal cancer has shown positive results, a study suggests.
August 9, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28791573/development-of-a%C3%A2-clinical-version-of-the-carers-needs-assessment-for-schizophrenia
#19
Johannes Wancata, Fabian Friedrich, Annemarie Unger, Rebecca Jahn
OBJECTIVE: Based on the research version of the Carers' Needs Assessment for Schizophrenia (CNA-S) a shortened clinical version was developed for routine assessment of interventions needed by the caregivers of schizophrenia patients in everyday clinical work. METHODS: The development of this questionnaire (including a manual explaining its use) was based on results from earlier studies and suggestions from Austrian researchers involved in previous studies using the research version...
August 8, 2017: Neuropsychiatrie: Klinik, Diagnostik, Therapie und Rehabilitation
https://www.readbyqxmd.com/read/28789558/canadian-schizophrenia-guidelines-introduction-and-guideline-development-process
#20
Tamara Pringsheim, Donald Addington
INTRODUCTION: The aim of the Canadian Schizophrenia Guidelines is to provide evidence-based recommendations for the treatment of schizophrenia and schizophrenia spectrum disorders. The target users are health care professionals. Recommendations are provided as guidance to physicians and patients, with the goal of improving the overall standard of care of individuals with schizophrenia. METHODS: The guidelines were developed using the ADAPTE process, a systematic approach and alternative to de novo guideline development, in which an existing guideline is customised to suit the local context...
January 1, 2017: Canadian Journal of Psychiatry. Revue Canadienne de Psychiatrie
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