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https://www.readbyqxmd.com/read/27936353/evaluation-of-a-therapeutic-education-programme-for-french-family-caregivers-of-elderly-people-suffering-from-major-neurocognitive-disorders-preliminary-study
#1
Emmanuel Monfort, Antonio Mayol, Clotilde Lissot, Pascal Couturier
The pertinence of a therapeutic programme of education has been studied with regard to carers of patients suffering from major neurocognitive disorders. The programme, adapted to the needs expressed by the carers, consisted of three workshops with a view to supplying general information about the pathologies, specific information on behavioural disorders and specific aids to identify and manage their emotional reactions. The results of this preliminary study show a moderate significant benefit to the level of anxiety in the participants, taking into account the specific expectations of the carers and bringing to light further needs...
December 9, 2016: Gerontology & Geriatrics Education
https://www.readbyqxmd.com/read/27933718/constipation-in-older-people-a-consensus-statement
#2
Anton Emmanuel, Francesco Mattace-Raso, Maria Cristina Neri, Karl-Uwe Petersen, Enrique Rey, June Rogers
BACKGROUND AND AIMS: Chronic constipation is a serious medical condition that affects 30%-40% of people over 60 years old. Although not normally life threatening, constipation reduces quality of life by the same extent as diabetes and osteoarthritis. There are currently no Europe-wide guidelines for treating constipation in older people, although there is some country-level guidance for the general population. We have evaluated the existing guidance and best clinical practice to improve the care of older people with constipation...
December 9, 2016: International Journal of Clinical Practice
https://www.readbyqxmd.com/read/27931252/the-impact-of-advertising-patient-and-public-involvement-on-trial-recruitment-embedded-cluster-randomised-recruitment-trial
#3
Adwoa Hughes-Morley, Mark Hann, Claire Fraser, Oonagh Meade, Karina Lovell, Bridget Young, Chris Roberts, Lindsey Cree, Donna More, Neil O'Leary, Patrick Callaghan, Waquas Waheed, Peter Bower
BACKGROUND: Patient and public involvement in research (PPIR) may improve trial recruitment rates, but it is unclear how. Where trials use PPIR to improve design and conduct, many do not communicate this clearly to potential participants. Better communication of PPIR might encourage patient enrolment, as trials may be perceived as more socially valid, relevant and trustworthy. We aimed to evaluate the impact on recruitment of directly advertising PPIR to potential trial participants. METHODS: This is a cluster trial, embedded within a host trial ('EQUIP') recruiting service users diagnosed with severe mental illness...
December 8, 2016: Trials
https://www.readbyqxmd.com/read/27928772/barriers-and-facilitators-to-healthy-lifestyle-changes-in-minority-ethnic-populations-in-the-uk-a-narrative-review
#4
Naina Patel, Harriet Batista Ferrer, Freya Tyrer, Paula Wray, Azhar Farooqi, Melanie J Davies, Kamlesh Khunti
Minority ethnic populations experience a disproportionate burden of health inequalities compared with the rest of the population, including an increased risk of type 2 diabetes (T2DM). The purpose of this narrative review was to explore knowledge and attitudes around diabetes, physical activity and diet and identify barriers and facilitators to healthy lifestyle changes in minority ethnic populations in the UK. The narrative review focused on three key research topics in relation to barriers and facilitators to healthy lifestyle changes in minority adult ethnic populations: (i) knowledge and attitudes about diabetes risk; (ii) current behaviours and knowledge about physical activity and diet; and (iii) barriers and facilitators to living a healthier lifestyle...
December 7, 2016: Journal of Racial and Ethnic Health Disparities
https://www.readbyqxmd.com/read/27927944/self-efficacy-in-dementia-care-staff-experiences-from-the-care-home-context
#5
Alice Coates, Jane Fossey
Perceived self-efficacy is proposed to impact on the psychological health of dementia care staff. The current study adopted a qualitative methodology to increase understanding of the experiences of self-efficacious care assistants. Purposive sampling identified eight care assistants with high levels of self-efficacy. Data from semi-structured interviews were analysed using interpretative phenomenological analysis. Four themes captured experiences of 'feeling torn' between competing demands when providing care; a sense of 'togetherness and connection', included sub-themes of support, closeness and the value of engaging; 'emotional attunement' to resident's needs, including reciprocity of emotion, personal perspective-taking and empathy as guides to care...
December 7, 2016: Dementia
https://www.readbyqxmd.com/read/27927662/development-of-a-model-of-dementia-support-and-pathway-for-culturally-and-linguistically-diverse-communities-using-co-creation-and-participatory-action-research
#6
Dianne Goeman, Jordan King, Susan Koch
OBJECTIVE: To develop an inclusive model of culturally sensitive support, using a specialist dementia nurse (SDN), to assist people with dementia from culturally and linguistically diverse (CALD) communities and their carers to overcome barriers to accessing health and social care services. DESIGN: Co-creation and participatory action research, based on reflection, data collection, interaction and feedback from participants and stakeholders. SETTING: An SDN support model embedded within a home nursing service in Melbourne, Australia was implemented between October 2013 and October 2015...
December 7, 2016: BMJ Open
https://www.readbyqxmd.com/read/27927174/a-controlled-trial-of-implementing-a-complex-mental-health-intervention-for-carers-of-vulnerable-young-people-living-in-out-of-home-care-the-ripple-project
#7
Helen Herrman, Cathy Humphreys, Stephen Halperin, Katherine Monson, Carol Harvey, Cathrine Mihalopoulos, Susan Cotton, Penelope Mitchell, Tony Glynn, Anne Magnus, Lenice Murray, Josef Szwarc, Elise Davis, Sophie Havighurst, Patrick McGorry, Sam Tyano, Ida Kaplan, Simon Rice, Kristen Moeller-Saxone
BACKGROUND: Out-of-home care (OoHC) refers to young people removed from their families by the state because of abuse, neglect or other adversities. Many of the young people experience poor mental health and social function before, during and after leaving care. Rigorously evaluated interventions are urgently required. This publication describes the protocol for the Ripple project and notes early findings from a controlled trial demonstrating the feasibility of the work. The Ripple project is implementing and evaluating a complex mental health intervention that aims to strengthen the therapeutic capacities of carers and case managers of young people (12-17 years) in OoHC...
December 7, 2016: BMC Psychiatry
https://www.readbyqxmd.com/read/27927020/development-of-a-measure-of-therapy-provision-for-spasticity-management-in-the-paretic-lower-limb-the-leg-therapy-recording-schedule-legts
#8
Stephen Ashford, Diana Jackson, Lynne Turner-Stokes
PURPOSE: In rehabilitation studies, it is critical to understand the constituents of interventions. First, to enable replication of the work and second, to identify what treatments work best. The development of a tool to describe and quantify therapy interventions in the context of focal spasticity management is presented. METHODS: Potential intervention categories were identified from: (a) retrospective analysis of prospectively collected data from a cohort of patients (n = 62) receiving physical interventions in the context of botulinum toxin (BoNT) injection for leg spasticity and (b) cognitive de-briefing with Patient and Carer Advisory Group (PCAG) of patient and carer dyads (n = 8)...
December 7, 2016: Disability and Rehabilitation
https://www.readbyqxmd.com/read/27925563/working-in-partnership-with-patients-and-carers
#9
Lesley Baillie
Health policy and healthcare professional guidelines promote patient and carer involvement, which includes working in partnership with service users in all aspects of healthcare provision, research and education. This article explores the expectations for nurses to work in partnership with patients and carers, examines the definitions and theories of working in partnership and related concepts, as well as considering examples of partnership working in nursing practice.
December 7, 2016: Nursing Standard
https://www.readbyqxmd.com/read/27925546/recognising-the-nurses-who-show-commitment-to-carers
#10
Jen Kenward
In May 2014 NHS England published its Commitment to Carers. It shouldn't have been a big deal, but it was. For the first time since its formation, the NHS had a plan focusing on how to provide support for the health and wellbeing of unpaid carers - a plan that recognised that without the input of carers, the NHS and care services could not be sustained.
December 7, 2016: Nursing Standard
https://www.readbyqxmd.com/read/27925292/cognitive-impairment-in-parkinson-s-disease-impact-on-quality-of-life-of-carers
#11
R A Lawson, A J Yarnall, F Johnston, G W Duncan, T K Khoo, D Collerton, J P Taylor, D J Burn
BACKGROUND: The quality of life (QoL) of informal caregivers of people with Parkinson's disease (PD) (PwP) can be affected by the caring role. Because of cognitive symptoms and diminished activities of daily living, in addition to the management of motor symptoms, carers of PwP and cognitive impairment may experience increased levels of burden and poorer QoL compared with carers of PwP without cognitive impairment. This study aimed to investigate the impact of cognitive impairment in PD upon QoL of carers...
December 7, 2016: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/27923295/patient-and-staff-opinions-are-vital-in-debate-about-services
#12
(no author information available yet)
The NHS consults and collaborates with patients, carers and the public in a spirit of public involvement. This means that listening to, and acting on, feedback is important during the planning, redesigning and reconfiguring of services.
December 7, 2016: Emergency Nurse: the Journal of the RCN Accident and Emergency Nursing Association
https://www.readbyqxmd.com/read/27922780/community-matrons-as-problem-solvers-for-people-living-with-multi-co-morbid-disease
#13
Sue Randall, Colin Thunhurst, Gill Furze
Working with patients in their own homes gives community matrons an advantage of seeing patients in the context of their everyday lives. This allows comprehensive assessment of need with an aim of promoting health or promoting stability for people living with chronic disease. Complex issues are resolved through problem-solving and this can result in patients being maintained in their own homes and thus in reduced unplanned hospitalisation. Data were collected from participants using semi-structured interviews and audio diaries...
December 2, 2016: British Journal of Community Nursing
https://www.readbyqxmd.com/read/27922776/part-1-diagnosis-of-oral-diseases-in-the-housebound-patient
#14
Diana Critchlow
Oral disease is common the housebound population ( Tomson et al, 2015 ). There can be a significant impact on the wellbeing of a housebound individuals ( Locker et al, 2000 ), who tend to be elderly, with poorer systemic health ( Qiu et al, 2010 ) and barriers to accessing care ( Freeman, 1999 ). Access to dental care can be limited (Fox, 2010) and prevention of oral disease is therefore paramount. Community nurses are in an excellent position to promote good oral care to the housebound patient and to support family in carers in preventing oral disease...
December 2, 2016: British Journal of Community Nursing
https://www.readbyqxmd.com/read/27919714/initial-testing-of-a-behavioural-pain-assessment-tool-within-trauma-units
#15
Julie Gregory
Pain is common in trauma patients who may be older and also may have cognitive impairment leading to reduced communication about their pain. A number of observational pain assessment tools are available and have been found to have limited clinical usefulness. The Bolton Pain Assessment Tool (BPAT) was developed following a trial of three established tools and includes a section to involve family and/or close carers in the pain assessment process. The aim of this paper is to present the findings of initial testing of BPAT...
September 7, 2016: International Journal of Orthopaedic and Trauma Nursing
https://www.readbyqxmd.com/read/27918872/exploring-the-potential-for-family-carers-to-support-people-with-mental-illness-to-stop-smoking
#16
Sharon Lawn, Jenny Bowman, Paula Wye, John Wiggers
Cigarette smoking poses significant health burdens for people with mental illness. They die sooner than they should, and smoking is a major contributor to their high rates of morbid chronic physical health conditions and early mortality, compared to the general population. Family carers provide important support to people with mental illness. However, family carers' perspectives of smoking by their family members with mental illness are largely absent from the research literature and from practice, despite smoking rates remaining high and quit rates remaining low for this population...
December 5, 2016: Journal of Dual Diagnosis
https://www.readbyqxmd.com/read/27916344/advance-care-discussions-with-young-people-affected-by-life-limiting-neuromuscular-diseases-a-systematic-literature-review-and-narrative-synthesis
#17
Andy Hiscock, Isla Kuhn, Stephen Barclay
End of life care policy in the UK advocates open discussions between health professionals and patients as the end of life approaches. Despite well documented understanding of the progression of life-limiting neuromuscular diseases, the majority of patients affected by such conditions die without a formal end of life plan in place. We performed a systematic review to investigate conversations regarding end of life care between healthcare professionals and younger adult patients with life-limiting neuromuscular diseases...
November 21, 2016: Neuromuscular Disorders: NMD
https://www.readbyqxmd.com/read/27916019/promoting-early-dementia-diagnosis-a-video-designed-by-patients-for-patients
#18
Nina Baruch, Charlotte L Allan, Maureen Cundell, Samuel Clark, Brian Murray
Early diagnosis of dementia allows people to access effective treatment and make advance decisions while they still have capacity. We aimed to encourage people to attend memory clinic, in order to boost rates of diagnosis. We created a patient information video about Oxford Health NHS Foundation Trust Memory Clinics, to inform and empower those awaiting assessment and to promote early diagnosis. Fourteen people (patients, carers, and staff) were approached prior to developing the video to ascertain their views on the themes the video should cover...
December 5, 2016: International Psychogeriatrics
https://www.readbyqxmd.com/read/27915316/lack-of-screening-underlies-most-stage-5-retinopathy-of-prematurity-among-cases-presenting-to-a-tertiary-eye-center-in-india
#19
Rajvardhan Azad, Parijat Chandra, Anil Gangwe, Vivek Kumar
OBJECTIVE: To study the barriers to effective screening, early detection and treatment of Retinopathy of Prematurity leading to advanced disease. DESIGN: Cross-sectional study. SETTING: Tertiary eye care hospital in northern India. PARTICIPANTS: 115 babies with bilateral stage 5 ROP identified amongst 354 preterm infants examined over a one year period. METHODS: Information regarding gestational age, birthweight, duration of stay in nursery, duration of supplemental oxygen therapy and treatment details were obtained from discharge summary when available, and by interviewing carers...
November 7, 2016: Indian Pediatrics
https://www.readbyqxmd.com/read/27915259/-standing-outside-the-junkie-door-service-users-experiences-of-using-community-pharmacies-to-access-treatment-for-opioid-dependency
#20
Andrew Radley, Karen Melville, Phyllis Easton, Brian Williams, John F Dillon
AIM: To explore experiences of service users attending a community pharmacy to receive opiate replacement therapy (ORT). METHOD: Qualitative study involving seven focus groups undertaken within care centres and prison educational centre in Tayside, Scotland using 41 participants. Thematic analysis undertaken of experiences of different groups of service users and carers. RESULTS: Participants described the social context surrounding attendance at community pharmacies...
December 2, 2016: Journal of Public Health
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