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https://www.readbyqxmd.com/read/28234647/childbirth-and-new-mother-experiences-of-arab-migrant-women
#1
Hala Bawadi, Muayyad M Ahmad
PURPOSE: To explore the experience of childbirth and becoming a new mother for Arab migrant women in the United Kingdom. STUDY DESIGN & METHODS: Hermeneutic phenomenology design was used to investigate the childbirth and early mothering experience of migrant Arab Muslim women from several countries to United Kingdom. Purposive sampling was chosen. Data collection was conducted through in-depth interviews. RESULTS: The emerging theme "displacement and reformation of the self" includes four subthemes from analyses of participants' interviews...
March 2017: MCN. the American Journal of Maternal Child Nursing
https://www.readbyqxmd.com/read/28233908/self-management-interventions-in-pediatric-epilepsy-what-is-the-level-of-evidence
#2
REVIEW
Janelle L Wagner, Avani C Modi, Erica K Johnson, Ross Shegog, Cam Escoffery, Yvan Bamps, Joan K Austin, Rebecca J Schultz, Sarah MapelLentz, Gigi Smith
OBJECTIVE: To respond to recommendations put forth by the Institute of Medicine to improve self-management resources for youth with epilepsy by conducting a systematic review of the self-management literature in pediatric epilepsy. METHODS: Inclusion criteria: youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and/or their caregivers, published 1985-2014 in English, and conducted in countries with a very high human development index. Abstract and keywords had to explicitly refer to "self-care" (pre-1996) and/or self-management (post-1996)...
February 24, 2017: Epilepsia
https://www.readbyqxmd.com/read/28233696/a-multimedia-self-management-intervention-to-prepare-cancer-patients-and-family-caregivers-for-lung-surgery-and-postoperative-recovery
#3
Virginia Sun, Dan J Raz, Nora Ruel, Walter Chang, Loretta Erhunmwunsee, Karen Reckamp, Brian Tiep, Betty Ferrell, Ruth McCorkle, Jae Y Kim
BACKGROUND: The purpose of this study was to evaluate the feasibility and acceptability of a multimedia self-management (MSM) intervention to prepare patients and family caregivers for lung surgery. PATIENTS AND METHODS: This is a quasi-experimental, 2-group, sequential enrollment pilot study of a 4-session multimedia intervention (audio/visual + print) to enhance self-management and quality of life (QOL) for patients and family caregivers. The intervention, Preparing for Lung Surgery, begins before surgery, and continues through hospitalization and discharge, with 2 telephone support sessions after discharge...
February 2, 2017: Clinical Lung Cancer
https://www.readbyqxmd.com/read/28233343/a-pilot-randomized-trial-of-two-cognitive-rehabilitation-interventions-for-mild-cognitive-impairment-caregiver-outcomes
#4
Andrea V Cuc, Dona E C Locke, Noah Duncan, Julie A Fields, Charlene Hoffman Snyder, Sherrie Hanna, Angela Lunde, Glenn E Smith, Melanie Chandler
OBJECTIVE: This study aims to provide effect size estimates of the impact of two cognitive rehabilitation interventions provided to patients with mild cognitive impairment: computerized brain fitness exercise and memory support system on support partners' outcomes of depression, anxiety, quality of life, and partner burden. METHODS: A randomized controlled pilot trial was performed. RESULTS: At 6 months, the partners from both treatment groups showed stable to improved depression scores, while partners in an untreated control group showed worsening depression over 6 months...
February 24, 2017: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/28232851/proximal-foundations-of-jealousy-expectations-of-exclusivity-in-the-infant-s-first-year-of-life
#5
Sybil L Hart
In this synthesis, we summarize studies that yielded evidence of jealousy in young infants. To shed light on this phenomenon, we present evidence that jealousy's foundation rests on history of dyadic interactions with caregivers which engender infants' expectations of exclusivity, and on maturation of sociocognitive capacities that enable infants to evaluate whether an exchange between their caregiver and another child represents a violation of that expectation. We conclude with a call for greater study of the antecedents and sequelae of both normative and atypical presentations of jealousy...
October 2016: Emotion Review: Journal of the International Society for Research on Emotion
https://www.readbyqxmd.com/read/28232640/mothers-attitude-to-the-use-of-a-combined-oral-contraceptive-pill-by-their-daughters-for-menstrual-disorders-or-contraception
#6
K W Yiu, S Sc Chan, T Kh Chung
INTRODUCTION: Mothers' attitude may affect use of combined oral contraceptive pills by their daughters. We explored Chinese mothers' knowledge of and attitudes towards the use of combined oral contraceptive pills by their daughters for menstrual disorders or contraception, and evaluate the factors affecting their attitude. METHODS: This survey was conducted from October 2012 to March 2013, and recruited Chinese women who attended a gynaecology clinic or accompanied their daughter to a gynaecology clinic, and who had one or more daughters aged 10 to 18 years...
February 24, 2017: Hong Kong Medical Journal, Xianggang Yi Xue za Zhi
https://www.readbyqxmd.com/read/28232515/home-palliative-care-works-but-how-a-meta-ethnography-of-the-experiences-of-patients-and-family-caregivers
#7
REVIEW
Vera P Sarmento, Marjolein Gysels, Irene J Higginson, Barbara Gomes
OBJECTIVE: To understand patients and family caregivers' experiences with home palliative care services, in order to identify, explore and integrate the key components of care that shape the experiences of service users. METHODS: We performed a meta-ethnography of qualitative evidence following PRISMA recommendations for reporting systematic reviews. The studies were retrieved in 5 electronic databases (MEDLINE, EMBASE, PsycInfo, BNI, CINAHL) using 3 terms and its equivalents ('Palliative', 'Home care', 'Qualitative research') combined with 'AND', complemented with other search strategies...
February 23, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28232147/long-term-pain-and-recovery-after-major-pediatric-surgery-a-qualitative-study-with-teens-parents-and-perioperative-care-providers
#8
Jennifer A Rabbitts, Rachel V Aaron, Emma Fisher, Emily A Lang, Caroline Bridgwater, Gabrielle Ghafari Tai, Tonya M Palermo
: Research developing targeted treatment focused on coping with children's long-term pain after surgery is needed due to the high prevalence of chronic pain after surgery. This qualitative study aimed to 1) understand the child's and family's experiences of pain over the course of their surgical experience, and 2) gather stakeholder input regarding potential barriers and facilitators of perioperative intervention delivery. Fifteen children ages 10-18 years who underwent recent major surgery, their primary caregivers, and 17 perioperative healthcare providers were interviewed...
February 20, 2017: Journal of Pain: Official Journal of the American Pain Society
https://www.readbyqxmd.com/read/28231860/perceptions-of-adolescents-sexual-and-reproductive-health-and-rights-a-cross-sectional-study-in-lahore-district-pakistan
#9
Sarosh Iqbal, Rubeena Zakar, Muhammad Zakria Zakar, Florian Fischer
BACKGROUND: Sexual and reproductive health (SRH) is a significant aspect of adolescents' growth, safeguarded by SRH rights (SRHR). Despite various global efforts to promote adolescents SRHR (ASRHR), the majority of adolescents still lack awareness and autonomy to access SRH related information and services. This research aimed to explore the knowledge and perceptions of adolescents' sexual and reproductive health rights and highlights key constraints hindering adolescents from accessing and exercising SRHR in the district of Lahore, Pakistan...
February 23, 2017: BMC International Health and Human Rights
https://www.readbyqxmd.com/read/28231857/missed-opportunities-for-timely-diagnosis-of-pediatric-lupus-in-south-africa-a-qualitative-study
#10
Laura B Lewandowski, Melissa H Watt, Laura E Schanberg, Nathan M Thielman, Christiaan Scott
BACKGROUND: Systemic Lupus Erythematosus (SLE) is a serious multisystem autoimmune disease, which is more aggressive in children and people of African descent. In South Africa, pediatric SLE (pSLE) patients are at high risk for severe disease. Similar to pSLE worldwide, South African children and adolescents with SLE require subspecialized medical care. The aim of this study is to describe the care-seeking experiences of families and examine factors that contribute to delays in the diagnosis of pSLE...
February 23, 2017: Pediatric Rheumatology Online Journal
https://www.readbyqxmd.com/read/28231823/content-validity-and-clinical-meaningfulness-of-the-hfmse-in-spinal-muscular-atrophy
#11
Maria C Pera, Giorgia Coratti, Nicola Forcina, Elena S Mazzone, Mariacristina Scoto, Jacqueline Montes, Amy Pasternak, Anna Mayhew, Sonia Messina, Maria Sframeli, Marion Main, Robert Muni Lofra, Tina Duong, Danielle Ramsey, Sally Dunaway, Rachel Salazar, Lavinia Fanelli, Matthew Civitello, Roberto de Sanctis, Laura Antonaci, Leonardo Lapenta, Simona Lucibello, Marika Pane, John Day, Basil T Darras, Darryl C De Vivo, Francesco Muntoni, Richard Finkel, Eugenio Mercuri
BACKGROUND: Reports on the clinical meaningfulness of outcome measures in spinal muscular atrophy (SMA) are rare. In this two-part study, our aim was to explore patients' and caregivers' views on the clinical relevance of the Hammersmith Functional Motor Scale Expanded- (HFMSE). METHODS: First, we used focus groups including SMA patients and caregivers to explore their views on the clinical relevance of the individual activities included in the HFMSE. Then we asked caregivers to comment on the clinical relevance of possible changes of HFMSE scores over time...
February 23, 2017: BMC Neurology
https://www.readbyqxmd.com/read/28231685/unmet-psychosocial-needs-in-adolescents-with-inflammatory-bowel-disease
#12
(no author information available yet)
BACKGROUND: Inflammatory bowel diseases (IBD) are severe medical conditions with adverse impact on the quality of life of both children and their caregivers. IBD are associated with many limitations in personal and interpersonal functioning, and it also restricts the patients' ability to use the full potential (extent) of their capabilities. With the progress and humanization in society, the issue of patients' needs became an important topic; however, the psychosocial functioning and quality of life of adolescents suffering from IBD and their caregivers have been understudied...
October 24, 2016: Neuro Endocrinology Letters
https://www.readbyqxmd.com/read/28231682/unmet-needs-of-the-patients-with-obsessive-compulsive-disorder
#13
(no author information available yet)
BACKGROUND: Obsessive compulsive disorder (OCD) is a disabling mental disorder with the chronic and difficult course. The disorder is accompanied by numerous limitations in personal and interpersonal functioning. OCD decreases the quality of life and the chance to maintain relationships and professional status. The patients with OCD often experience a severe disabling course of the disorder. Even the individuals, who follow treatment advice, are often still highly symptomatic. In the last decade, the concept of the needs has been assessed as an extent of the traditional outcome evaluation in order to focus on the identification of the specific needs of the patients and their relatives, improve the patients´ overall mental condition and quality of life, and also to increase the treatment effectiveness of the mental disorders...
October 24, 2016: Neuro Endocrinology Letters
https://www.readbyqxmd.com/read/28231594/-conception-and-preliminary-evaluation-of-a-rehabilitation-attending-counseling-service-for-caregivers-of-stroke-patients
#14
J Jungbauer, T Krieger, M Floren
This paper presents the pilot project "The Caregivers' Guide", which is financed by the German Federal Ministry of Education and Research (BMBF). The project's concept is outreach-oriented and personal, giving constant support to relatives of stroke patients throughout rehabilitation. Its effects were reviewed in an accompanying study. A combination of qualitative and quantitative methods was chosen to gather data on the experiences and assessments of the caregivers, as well as changes during the counselling process...
February 23, 2017: Die Rehabilitation
https://www.readbyqxmd.com/read/28230629/point-of-injury-tourniquet-application-during-operation-protective-edge-what-de-we-learn
#15
Amir Shlaifer, Avraham Yitzhak, Erez N Baruch, Avi Shina, Alexandra Satanovsky, Amiram Shovali, Ofer Almog, Elon Glassberg
BACKGROUND: Hemorrhage is a leading cause of preventable death on the battlefield. Timely tourniquet application to massively bleeding extremity wounds is critical for casualty survival albeit with reported adverse effects to extremity integrity. The aim of this study was to describe the immediate and short term outcomes of point of injury (POI) tourniquet applications during 'Operation Protective Edge' (OPE). METHODS: A case series study regarding tourniquet application at the POI during OPE was collected...
February 23, 2017: Journal of Trauma and Acute Care Surgery
https://www.readbyqxmd.com/read/28229624/do-step-and-biological-grandparents-show-differences-in-investment-and-emotional-closeness-with-their-grandchildren
#16
Peter B Gray, Elizabeth Brogdon
Human children are raised by a variety of caregivers including grandparents. A few studies have assessed potential differences in direct caregiving, financial expenditures, and emotional closeness between biological and step-grandparents. Drawing upon kin selection theory, we hypothesized that step-grandparents would provide less care and be less emotionally close to grandchildren than would biological grandparents. A sample of 341 heterosexual U.S. adults 25-35 years of age in a long-term partnership and with a biological child 5 years of age or younger were recruited via Amazon Mechanical Turk...
January 2017: Evolutionary Psychology: An International Journal of Evolutionary Approaches to Psychology and Behavior
https://www.readbyqxmd.com/read/28229610/coping-with-celiac-disease-how-heavy-is-the-burden-for-caregivers
#17
Francesca Ferretti, Federica Branchi, Bernardo Dell'Osso, Dario Conte, Luca Elli
BACKGROUND: Celiac disease (CD) is the most common chronic enteropathy demanding a lifelong gluten-free diet. OBJECTIVE: The aim of the study was to identify and estimate the subjective burden of caregivers of celiac patients. METHODS: A cross-sectional observational study was conducted during the regional meeting of the Italian Society for the Celiac Disease in April 2014. A written self-administered anonymous questionnaire enquired into caregivers' demographic profile, natural history of patients' disease and caregivers' self-reported degree of burden at the onset of symptoms (T0), at CD diagnosis (T1) and during follow-up (T2)...
February 23, 2017: Revista Española de Enfermedades Digestivas
https://www.readbyqxmd.com/read/28229487/the-mourning-process-of-older-people-with-dementia-who-lost-their-spouse
#18
Akiko Watanabe, Sayuri Suwa
AIMS: To explore the mourning process of people with dementia who have lost their spouse, using family caregivers' and professionals' perspectives and to devise grief care for people with dementia. BACKGROUND: There have been studies on the loss of one's spouse; however, little is known about widows and widowers with dementia as they may find it hard to tell their perception and feelings to others accurately because of cognitive impairment. DESIGN: Qualitative descriptive study using semi-structured interviews...
February 22, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28229126/assessing-quality-of-life-in-alzheimer-s-disease-implications-for-clinical%C3%A2-trials
#19
Kristin Kahle-Wrobleski, Wenyu Ye, David Henley, Ann Marie Hake, Eric Siemers, Yun-Fei Chen, Hong Liu-Seifert
INTRODUCTION: Characterization of the quality of life (QOL) in Alzheimer's disease (AD) scale within the context of a clinical trial may inform its applicability in future trials. METHODS: Using data from 1322 patients enrolled in two phase-III studies (EXPEDITION 1 [NCT00905372] and 2 [NCT00904683]) of intravenous solanezumab in outpatients with mild AD dementia, correlations between patient- and caregiver-assessed QOL and between QOL and clinical outcome measures were examined...
2017: Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring
https://www.readbyqxmd.com/read/28228451/african-american-stroke-survivors-more-caregiving-time-but-less-caregiving-burden
#20
Lesli E Skolarus, Vicki A Freedman, Chunyang Feng, James F Burke
BACKGROUND: Blacks have higher stroke incidence and experience greater poststroke disability than whites. To optimize care for stroke survivors, it is important to understand the amount of care that they receive and the implications for stroke caregivers. METHODS AND RESULTS: Data from 2 nationally representative, population-based studies, the NHATS (National Health and Aging Trends Study) linked to the NSOC (National Study of Caregiving), were used to identify elderly stroke survivors and their caregivers...
February 2017: Circulation. Cardiovascular Quality and Outcomes
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