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https://www.readbyqxmd.com/read/28931027/characteristics-of-informal-caregivers-who-provide-transportation-assistance-to-older-adults
#1
David W Eby, Lisa J Molnar, Lidia P Kostyniuk, Renée M St Louis, Nicole Zanier
The study aim was to gain a better understanding of the characteristics of informal caregivers who provide transportation assistance and to explore the types and frequency of this assistance. A telephone survey was administered to a representative sample of 268 informal caregivers (age 45-80) who provide transportation assistance to older adults (age 70 and older) in Michigan. Responses were analyzed overall and by the caregiver sex and care recipient age. Informal transportation caregivers were: most often women; on average 61 years old; generally college educated; employed full- or part-time jobs; relatively healthy; providing care to a parent/family member 1-4 times per week, living close to the care recipient; and providing assistance by giving rides...
2017: PloS One
https://www.readbyqxmd.com/read/28930704/holding-ashley-x-bestowing-identity-through-caregiving-in-profound-intellectual-disability
#2
Lisa Freitag, Joan Liaschenko
The controversy over the so-called Ashley Treatment (AT), a series of medical procedures that inhibited both growth and sexual development in the body of a profoundly intellectually impaired girl, usually centers either on Ashley's rights, including a right to an intact, unaltered body, or on Ashley's parents' rights to make decisions for her. The claim made by her parents, that the procedure would improve their ability to care for her, is often dismissed as inappropriate or, at best, irrelevant. We argue, however, that caregiving is a central issue in the controversy, as Ashley's need for caregiving is a defining characteristic of her life...
2017: Journal of Clinical Ethics
https://www.readbyqxmd.com/read/28930703/nine-lessons-from-ashley-and-her-parents
#3
Edmund G Howe
Parents' love for their child, even a child who has severe impairments, may give them much joy and quality in their life. This is also the case for caregivers of adults with severe cognitive impairments, such as end-stage dementia. How can clinicians work with these parents and caregivers and help them?
2017: Journal of Clinical Ethics
https://www.readbyqxmd.com/read/28929901/the-dementia-friendly-emergency-department-an-innovation-to-reducing-incompatibilities-at-the-local-level
#4
Belinda Parke, Kathleen F Hunter
Emergency Departments (EDs) are an integral part of the Canadian healthcare system. Older people living with dementia challenge EDs. They have complex health profiles that pose multiple challenges for staff. The current one-size-fits-all approach that aids efficiency in a technologically dependent hospital setting may not always serve older people living with dementia, their caregivers, or staff well. The premise that older people living with dementia are a problem for Canadian EDs must be reconsidered. Understanding the complexity of the situation is aided by the dementia-friendly ED framework...
January 2017: Healthcare Management Forum
https://www.readbyqxmd.com/read/28929831/culturally-appropriate-assessment-of-functioning-in-diverse-children-development-and-preliminary-validation-of-the-fx-ii-scale-in-mexico
#5
Lauren M Haack, Eva A Araujo
OBJECTIVE: We sought to develop and provide preliminary validation for a questionnaire evaluating functioning related to ADHD (i.e., the FX-II) with a particularly underserved group (i.e., Mexican youth). METHOD: 191 Mexican raters completed the FX-II alongside measures of ADHD symptoms, impairment, cultural values, and demographics: 127 raters were caregivers of treatment-naïve youth (i.e., community sample); 32 raters were caregivers and 32 raters were teachers of youth participating in a school-based program for attention/behavior concerns (i...
September 1, 2017: Journal of Attention Disorders
https://www.readbyqxmd.com/read/28929069/our-experience-of-treating-wide-spectrum-of-external-ear-canal-atresia-of-different-etiologies-in-pediatric-patients
#6
Kranti Bhavana
External auditory canal atresia (EACA) is a common otologic condition. Etiology can vary from congenital to acquired causes. It causes considerable difficulty to the patient. Bilateral ear canal atresia in children can lead to speech delays due to hearing impairment caused by this condition. Though easily diagnosed it is one of the most difficult conditions to treat. Acquired conditions can affect any age group. Restenosis following treatment is very common. This article focuses on the treatment of EACA due to different etiologies and emphasizes on special points of surgical treatment and follow up...
September 2017: Indian Journal of Otolaryngology and Head and Neck Surgery
https://www.readbyqxmd.com/read/28928682/differences-in-action-style-recognition-in-children-with-autism-spectrum-disorders
#7
Giuseppe Di Cesare, Laura Sparaci, Annalisa Pelosi, Luigi Mazzone, Giulia Giovagnoli, Deny Menghini, Emanuele Ruffaldi, Stefano Vicari
Vitality form is a term, originally introduced by Stern (2010), to describe "how" an action is performed. The capacity to perceive the vitality form of others' actions is a fundamental element of social interactions and a basic way of relating to and understanding others' behaviors. Although vitality forms characterize all human interactions, few studies have addressed their role in social and communicative disorders such as autism. The aim of the present study is to evaluate the ability to recognize different vitality forms during the observation of different motor actions in a group of children with autism spectrum disorders (ASD) compared to typically developing controls (TD)...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28928593/a-complication-after-percutaneous-nephrolithotomy-anesthesia-mumps
#8
Ezgi Erkiliç, Elvin Kesimci, Aysun Yüngül, Ferit Alaybeyoğlu, Mustafa Aksoy
Some surgical procedures performed under moderate and sometimes extreme positions expose patients to nonphysiological changes. Especially, the manipulations of a patient in prone and lateral decubitus position might increase complications. Anesthesia mumps has been reported as one of these complications. It has been found to be rare but known entity associated with patients of all age groups and all surgical positions. We herein describe an early noticed acute case of unilateral anesthesia mumps that developed after endotracheal intubation in prone position in a 54-year-old female...
July 2017: Anesthesia, Essays and Researches
https://www.readbyqxmd.com/read/28928109/components-and-outcomes-of-internet-based-interventions-for-caregivers-of-older-adults-systematic-review
#9
REVIEW
Cassioppée Guay, Claudine Auger, Louise Demers, W Ben Mortenson, William C Miller, Dominique Gélinas-Bronsard, Sara Ahmed
BACKGROUND: When trying to access interventions to improve their well-being and quality of life, family caregivers face many challenges. Internet-based interventions provide new and accessible opportunities to remotely support them and can contribute to reducing their burden. However, little is known about the link existing between the components, the use of behavior change techniques, and the outcomes of these Internet-based interventions. OBJECTIVE: This study aimed to provide an update on the best available evidence about the efficacy of Internet-based interventions for caregivers of older adults...
September 19, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/28928027/development-of-a-sexual-needs-rehabilitation-framework-in-women-post-spinal-cord-injury-a-study-from-iran
#10
Raziyeh Maasoumi, Fatemeh Zarei, Effat Merghati-Khoei, Taylor Lawson, Seyyed Hasan Emami-Razavi
OBJECTIVE: To develop a sexual needs rehabilitation framework in women post spinal cord injury (SCI) DESIGN: Mixed-methods study SETTING: Brain and Spinal Cord Injury Research Center (BASIR), Neuroscience Institute, Tehran University of Medical Sciences, Tehran, Iran PARTICIPANTS: Married women with at least one year passed injury INTERVENTION: Not applicable METHODS: This study was designed in three steps; primary needs assessment with quantitative and qualitative methods, prioritizing identified needs by expert panels, and developing framework...
September 16, 2017: Archives of Physical Medicine and Rehabilitation
https://www.readbyqxmd.com/read/28927983/the-digital-divide-in-adoption-and-use-of-mobile-health-technology-among-caregivers-of-pediatric-surgery-patients
#11
Emma C Hamilton, Faiez Saiyed, Charles C Miller, Arturo Eguia, Alexandra C Fonseca, George P Baum, KuoJen Tsao, Mary T Austin
PURPOSE: The purpose of this study was to identify mobile Health (mHealth) technology utilization among caregivers of pediatric surgery patients. METHODS: We provided a modified version of the 2012 mobile health survey from the Pew Research Center to English and Spanish-speaking caregivers of children aged <18years presenting to pediatric surgical outpatient clinics from June to July of 2016. RESULTS: A total of 171 caregivers completed the survey and included 57 (34%) whites, 30 (18%) blacks, 75 (44%) Hispanics, and 6 (4%) other races...
September 1, 2017: Journal of Pediatric Surgery
https://www.readbyqxmd.com/read/28927518/relations-among-internalized-stigmatization-depressive-symptom-frequency-and-family-loading-in-first-degree-caregivers-of-the-patients-treated-in-the-psychiatry-clinic-of-a-state-hospital
#12
Funda Gumus, Gul Dikec, Gul Ergun
No abstract text is available yet for this article.
October 2017: Archives of Psychiatric Nursing
https://www.readbyqxmd.com/read/28927504/psychiatric-mental-health-nurses-and-family-caregivers-creating-synergy
#13
EDITORIAL
Joyce J Fitzpatrick
No abstract text is available yet for this article.
October 2017: Archives of Psychiatric Nursing
https://www.readbyqxmd.com/read/28927472/service-use-advance-planning-and-lifestyle-changes-following-cognitive-screening-in-primary-healthcare-in-singapore
#14
Jamie Jia Yan Lee, Claire L Thompson, Muhammad Amin Shaik, Esther Wan, Christopher Li-Hsian Chen, Yan Hong Dong
BACKGROUND: Despite recent interest in community-based screening programs to detect undiagnosed cognitive disorder, little is known about whether screening leads to further diagnostic evaluation, or the effects of such programs in terms of actual changes in patient or caregiver behavior. This study followed up informants of older adults (i.e. caregivers of patients who completed informant-based screening regarding the patient) following participation in a study screening for undiagnosed memory problems, to explore uptake of further diagnostic evaluation or treatment, advance planning or preparations, lifestyle changes, medication adherence, and use of support services...
September 20, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28927310/psychometric-evaluation-of-the-scandinavian-version-of-the-caregiver-priorities-and-child-health-index-of-life-with-disabilities
#15
Katina Pettersson, Kari Marte Bjerke, Reidun Jahnsen, John Öhrvik, Elisabet Rodby-Bousquet
PURPOSE: To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP). METHODS: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis...
September 19, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28926672/everyday-decision-making-in-individuals-with-early-stage-alzheimer-s-disease-an-integrative-review-of-the-literature
#16
Rebecca Davis, Mary K Ziomkowski, Amy Veltkamp
Individuals with Alzheimer's disease (AD) demonstrate fluctuation in cognitive abilities that can affect their ability to make decisions. Everyday decision making encompasses the types of decisions about typical daily activities, such as what to eat, what to do, and what to wear. Everyday decisions are encountered many times per day by individuals with AD/dementia and their caregivers. However, not much is known about the ability of individuals with AD/dementia to make these types of decisions. The purpose of the current literature review was to synthesize the evidence regarding everyday decision making in individuals with early-stage AD/dementia...
September 1, 2017: Research in Gerontological Nursing
https://www.readbyqxmd.com/read/28926598/-if-he-could-speak-he-would-be-able-to-point-out-who-does-those-things-to-him-experiences-of-violence-and-access-to-child-protection-among-children-with-disabilities-in-uganda-and-malawi
#17
Lena Morgon Banks, Susan A Kelly, Nambusi Kyegombe, Hannah Kuper, Karen Devries
INTRODUCTION: There is growing evidence that children with disabilities face an increased risk of violence globally. While child protection mechanisms to prevent and respond to violence-including formal government systems and more informal programmes and activities run by local communities or NGOs-are slowly becoming operationalised in low- and- middle-income countries, little is known about whether existing mechanisms are disability-inclusive. The aim of this study is to provide a better understanding of children with disabilities' experiences of violence and their access to available child protection mechanisms in low resource settings...
2017: PloS One
https://www.readbyqxmd.com/read/28926328/-morbidity-in-the-dependent-elderly-cared-by-home-teams-of-the-national-network-of-continued-integrated-care-in-the-lisbon-and-tagus-valley-cross-sectional-study
#18
Paula Broeiro-Gonçalves
INTRODUCTION: In Portugal, the National Network of Continuing Integrated Care's mission is to take care of new health and social needs. The aim of the study was to know the disease burden and disability of the elderly (75 and over) cared by the integrated continuing care teams. MATERIAL AND METHODS: A cross-sectional study carried out in a sample of 230 participants, from 25 teams randomly selected in the region of Lisbon and Tagus Valley. Data were collected at the patient's home trough caregiver's interviewing...
August 31, 2017: Acta Médica Portuguesa
https://www.readbyqxmd.com/read/28926157/evaluation-of-a-palliative-and-hospice-care-telephone-hotline-for-severely-affected-multiple-sclerosis-patients-and-their-caregivers
#19
Julia Strupp, Bernadette Groebe, Andrea Knies, Michaela Mai, Raymond Voltz, Heidrun Golla
BACKGROUND: Palliative and hospice care (PHC) still highly focus on cancer patients. OBJECTIVES: To connect severely affected Multiple Sclerosis (MS) patients and caregivers to PHC, a nationwide hotline was implemented facilitating access to PHC. METHODS: The hotline was designed in cooperation with the German Multiple Sclerosis Society. Self-disclosed information given by callers was documented using case report forms supplemented by personal notes...
September 19, 2017: European Journal of Neurology: the Official Journal of the European Federation of Neurological Societies
https://www.readbyqxmd.com/read/28924681/family-caregivers-to-adults-with-cancer-the-consequences-of-caring
#20
Anna-Leila Williams
A person living with cancer will potentially have some degree of physical, cognitive, and/or psychological impairment, periods of unemployment, financial concerns, social isolation, and existential questions, any or all of which can impact the family and friends who surround them. In our current era of health care, patients with cancer receive invasive diagnostic studies and aggressive treatment as outpatients, and then convalesce at home. As such, cancer family caregivers are de facto partners with the healthcare team...
2018: Recent Results in Cancer Research
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