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Pediatric palliative nursing care

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https://www.readbyqxmd.com/read/28186835/preparing-pediatric-healthcare-professionals-for-end-of-life-care-discussions-an-exploratory-study
#1
Amanda Henderson, Jeanine Young, Anthony Herbert, Natalie Bradford, Lee-Anne Pedersen
BACKGROUND: Preparedness to initiate end-of-life (EoL) discussions is a confronting and daunting task for all healthcare professionals. We conducted a group interview to explore healthcare professionals' experiences of preparing for EoL discussions with the patient and their family in a pediatric context. AIM: To identify what pediatric healthcare professionals consider important when preparing for an EoL discussion. METHODS: A qualitative design using a group interview...
February 10, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28077099/a-prospective-study-on-the-characteristics-and-subjects-of-pediatric-palliative-care-case-management-provided-by-a-hospital-based-palliative-care-team
#2
Charissa T Jagt-van Kampen, Marijke C Kars, Derk A Colenbrander, Diederik K Bosman, Martha A Grootenhuis, Huib N Caron, Antoinette Y N Schouten-van Meeteren
BACKGROUND: Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, utilization of different disciplines, and times of usage of a pediatric palliative care case management program compared for patients with malignant disease (MD) and non-malignant disease (NMD). METHODS: A three-month prospective study, with questionnaires filled in by members of a pediatric palliative care team (PPCT) for each contact with parents...
January 12, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28062351/training-the-workforce-description-of-a-longitudinal-interdisciplinary-education-and-mentoring-program-in-palliative-care
#3
Stacie Levine, Sean O'Mahony, Aliza Baron, Aziz Ansari, Catherine Deamant, Joel Frader, Ileana Leyva, Michael Marschke, Michael Preodor
CONTEXT: The rapid increase in demand for palliative care (PC) services has led to concerns regarding workforce shortages and threats to the resiliency of PC teams. OBJECTIVES: To describe the development, implementation, and evaluation of a regional interdisciplinary training program in PC. METHODS: Thirty nurse and physician fellows representing 22 health systems across the Chicago region participated in a two-year PC training program. The curriculum was delivered through multiple conferences, self-directed e-learning, and individualized mentoring by expert local faculty (mentors)...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28001471/pediatric-cancer-patients-important-end-of-life-issues-including-quality-of-life-a-survey-of-pediatric-oncologists-and-nurses-in-japan
#4
Yuko Nagoya, Mitsunori Miyashita, Hitoshi Shiwaku
BACKGROUND: Research into the key themes and concepts of quality of life (QOL) relevant to the end-of-life (EOL) care of pediatric cancer patients in the Japanese context is imperative. OBJECTIVE: This study aimed at identifying the key items and constructive concepts of QOL at EOL of pediatric cancer patients. DESIGN: In 2015, pediatricians and nurses were recruited from 163 pediatric oncology treatment facilities in Japan. The questionnaire was developed on the basis of a previous qualitative study...
December 21, 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27754765/nurses-experiences-of-spiritual-communication-with-seriously-iii-children
#5
Betty Ferrell, Elaine Wittenberg, Vanessa Battista, Gay Walker
OBJECTIVE: The goal of this study was to explore nurse experiences in communication with children about spiritual topics in order to develop training in this area. BACKGROUND: Although spiritual care is essential in pediatric palliative care, few providers receive training about communication with ill children about spirituality. METHODS: Researchers developed a brief survey to prompt nurses to reflect on pediatric palliative care experiences that included spiritual discussions...
November 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27650201/end-of-life-care-for-hispanic-children-a-study-of-california-medicaid-beneficiaries
#6
Lisa C Lindley, Laura V Trujillo
INTRODUCTION: More than 8,000 Hispanic children die annually in the United States; yet little is known about the end-of-life care utilized. The purpose of this study was to examine the children and family characteristics associated with end-of-life care for Hispanic children. METHOD: A sample of 370 Hispanic children was created, using the 2009-2010 California Medicaid data. The relationship between child and family characteristics and end-of-life care utilization (i...
December 2016: Hispanic Health Care International: the Official Journal of the National Association of Hispanic Nurses
https://www.readbyqxmd.com/read/27462957/exhaust-all-measures-ethical-issues-in-pediatric-end-of-life-care
#7
Kara J Thieleman, Cara Wallace, Andrea N Cimino, Heidi A Rueda
The death of a child may have a profound impact on parents, family members, and health care providers who provided care for the child. Unique challenges are faced by parents of seriously ill children as they must serve as the legal authority for health care decisions of children under age 18, although the child's wishes must also be considered. Social workers must balance core social work values, bioethical values, and psychosocial issues presented by such situations. While studies have been conducted with physicians and nurses regarding ethical issues in pediatric end-of-life care settings, little is known about how social workers experience these conflicts...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27369034/living-with-dying-in-the-pediatric-intensive-care-unit-a-nursing-perspective
#8
Debbie Stayer, Joan Such Lockhart
BACKGROUND: Despite reported challenges encountered by nurses who provide palliative care to children, few researchers have examined this phenomenon from the perspective of nurses who care for children with life-threatening illnesses in pediatric intensive care units. OBJECTIVES: To describe and interpret the essence of the experiences of nurses in pediatric intensive care units who provide palliative care to children with life-threatening illnesses and the children's families...
July 2016: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
https://www.readbyqxmd.com/read/27249541/the-spectrum-of-caregiving-in-palliative-care-for-serious-advanced-rare-diseases-key-issues-and-research-directions
#9
Lynn S Adams, Jeri L Miller, Patricia A Grady
Rare diseases are often life-limiting conditions, the majority of which require constant caregiving needs. The realization of a spectrum of palliative care throughout the trajectory of rare diseases could ensure individualized and caregiver-focused approaches to the care of patients and families. In June 2015, the National Institute of Nursing Research (NINR), the lead institute at the National Institutes of Health for end-of-life research, in conjunction with the National Center for Advancing Translational Sciences, Office of Rare Diseases Research (ORDR) held an interdisciplinary workshop on the unique challenges of caregiving and palliative care in adult and pediatric rare diseases...
July 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27188758/nurse-knowledge-work-environment-and-turnover-in-highly-specialized-pediatric-end-of-life-care
#10
Lisa C Lindley, Melanie J Cozad
OBJECTIVE: To examine the relationship between nurse knowledge, work environment, and registered nurse (RN) turnover in perinatal hospice and palliative care organizations. METHODS: Using nurse intellectual capital theory, a multivariate analysis was conducted with 2007 National Home and Hospice Care Survey data. RESULTS: Perinatal hospice and palliative care organizations experienced a 5% turnover rate. The professional experience of advanced practice nurses (APNs) was significantly related to turnover among RNs (β = -...
May 17, 2016: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/27140033/perceptions-of-palliative-care-in-the-nicu
#11
Alison J Falck, Sheela Moorthy, Brenda Hussey-Gardner
BACKGROUND AND PURPOSE: The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study objective was to examine provision of PC as experienced by mothers and healthcare providers (HCPs) of NICU patients with life-threatening illnesses. Palliative care components explored included communication, choices, comfort, psychosocial and spiritual needs, and coordination of care...
June 2016: Advances in Neonatal Care: Official Journal of the National Association of Neonatal Nurses
https://www.readbyqxmd.com/read/27137471/vulnerable-population-challenges-in-the-transformation-of-cancer-care
#12
Karen Meneses, Wendy Landier, J Nicholas Dionne-Odom
OBJECTIVES: To consider current trends and future strategies that will bring about change in cancer care delivery for vulnerable populations. DATA SOURCES: Institute of Medicine reports, literature review, clinical practice observations and experiences. CONCLUSION: Vulnerable populations are older adults, both minorities and the underserved, children, and individuals at end of life. These groups pose unique challenges that require health system changes and innovative nursing models to assure access to patient-centered care in the future...
May 2016: Seminars in Oncology Nursing
https://www.readbyqxmd.com/read/27044058/communication-during-palliative-care-and-end-of-life-perceptions-of-experienced-pediatric-oncology-nurses
#13
Kathleen E Montgomery, Kathleen J Sawin, Verna Hendricks-Ferguson
BACKGROUND: Communication between patients, families, and healthcare providers is a central component of end-of-life care. Nurse communication during palliative care (PC) and end of life (EOL) is a phenomenon with limited research. It is unclear how the level of nursing experience influences the perspectives of nurses communicating during EOL. OBJECTIVE: The aim of this study is to describe the commonalities of experienced nurses' perceptions of communicating during PC and EOL and perceptions of barriers and facilitators to effective communication...
March 2017: Cancer Nursing
https://www.readbyqxmd.com/read/26788836/an-order-protocol-for-respiratory-distress-acute-pain-crisis-in-pediatric-palliative-care-patients-medical-and-nursing-staff-perceptions
#14
Gwenaëlle Bidet, Lysanne Daoust, Michel Duval, Thierry Ducruet, Baruch Toledano, Nago Humbert, France Gauvin
BACKGROUND: An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family, the OPD is prescribed by the attending physician whenever judged appropriate. The OPD can then be initiated by the bedside nurse when necessary; the physician is notified after the first dose is administered. OBJECTIVES: The study objectives were to evaluate the perceptions and experience of the medical/nursing staff towards the use of the OPD...
March 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/26717305/feasibility-of-a-comfort-care-protocol-using-oral-transmucosal-medication-delivery-in-a-palliative-neonatal-population
#15
Caroline Drolet, Helene Roy, Julie Laflamme, Marie-Eve Marcotte
BACKGROUND: The oral transmucosal (OTM) route for administration of comfort medication in infants at the end-of-life has long been favored by our pediatric palliative care team but has rarely been described in the literature. OBJECTIVE: To determine the feasibility of implementing a standardized comfort care protocol using OTM medications in dying neonates. METHOD: A comfort protocol prescribing medication by the OTM route and standardized assessment were established...
April 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/26525299/impact-of-a-multifaceted-education-program-on-implementing-a-pediatric-palliative-care-guideline-a-pilot-study
#16
Charissa Thari Jagt-van Kampen, Leontien C M Kremer, A A Eduard Verhagen, Antoinette Y N Schouten-van Meeteren
BACKGROUND: A national clinical practice guideline for pediatric palliative care was published in 2013. So far there are only few reports available on whether an educational program fosters compliance with such a guideline implementation. We aimed to test the effect of the education program on actual compliance as well as documentation of compliance to the guideline. METHODS: We performed a prospective study with pre- and post-intervention evaluation on compliance to the guideline of the nurse specialists of a pediatric palliative care team for case management at a children's university hospital...
2015: BMC Medical Education
https://www.readbyqxmd.com/read/26467875/utilizing-the-pcics-nursing-guidelines-in-managing-the-cicu-patient
#17
REVIEW
Lindsey Justice, Misty Ellis, Cecilia St George-Hyslop, Amy Donnellan, Amiee Trauth, Brenda Drouillard, Claire Watt, Louise Callow
The Pediatric Cardiac Intensive Care Society (PCICS) Nursing Guidelines were developed to provide an evidence-based resource for bedside cardiac intensive care unit nursing care. Guideline topics include postoperative care, hemodynamic monitoring, arrhythmia management, and nutrition. These evidence-based care guidelines were presented at the 10th International Meeting of PCICS and have been utilized in the preparation of this article. They can be accessed at http://www.pcics.org/resources/pediatric-neonatal/...
October 2015: World Journal for Pediatric & Congenital Heart Surgery
https://www.readbyqxmd.com/read/26424764/community-palliative-care-nurses-challenges-and-coping-strategies-on-delivering-home-based-pediatric-palliative-care-a-qualitative-study
#18
LeeAi Chong, Adina Abdullah
OBJECTIVE: The aim of this study was to explore the experience of community palliative care nurses providing home care to children. METHOD: A qualitative study was conducted at the 3 community palliative care provider organizations in greater Kuala Lumpur from August to October 2014. Data were collected with semistructured interviews with 16 nurses who have provided care to children and was analyzed using thematic analysis. Two categories were identified: (1) challenges nurses faced and (2) coping strategies...
September 29, 2015: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/26252724/the-benefits-of-a-nurse-driven-patient-and-family-centered-pediatric-palliative-care-program
#19
Kari A Mastro, Joyce E Johnson, Nicole McElvery, Christa Preuster
This article describes the program and outcomes of a nurse driven, patient- and family-centered pediatric advanced comprehensive care team (PACCT) palliative program. This care delivery model improved patient outcomes by providing care across the healthcare continuum for pediatric patients. Since the inception of PACCT, no child has died on a ventilator in the pediatric ICU associated with end-of-life-related issues.
September 2015: Journal of Nursing Administration
https://www.readbyqxmd.com/read/26150677/predictors-of-intention-to-refer-to-pediatric-palliative-or-hospice-care
#20
Norma E Conner, Nizam Uddin
The purpose of this descriptive correlational study was to determine whether nurse characteristics, level of comfort with care of the dying, and spirituality predict intention to refer and timing of referral to pediatric palliative/hospice care. The Behavioral Model of Health Services Use served as the framework for this study. Data were collected from 105 pediatric nurses recruited from 7 patient units of one pediatric hospital. Regression analysis revealed several nurse factors (practice unit, years of experience, age, race/ethnicity) that predicted intent to refer and timing of referral to pediatric palliative/hospice care...
August 2016: American Journal of Hospice & Palliative Care
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