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Bioethical Narratives

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https://www.readbyqxmd.com/read/29748717/ethical-challenges-in-resuscitation
#1
REVIEW
Spyros D Mentzelopoulos, Anne-Marie Slowther, Zoe Fritz, Claudio Sandroni, Theodoros Xanthos, Clifton Callaway, Gavin D Perkins, Craig Newgard, Eleni Ischaki, Robert Greif, Erwin Kompanje, Leo Bossaert
PURPOSE: A rapidly evolving resuscitation science provides more effective treatments to an aging population with multiple comorbidites. Concurrently, emergency care has become patient-centered. This review aims to describe challenges associated with the application of key principles of bioethics in resuscitation and post-resuscitation care; propose actions to address these challenges; and highlight the need for evidence-based ethics and consensus on ethical principles interpretation. METHODS: Following agreement on the article's outline, subgroups of 2-3 authors provided narrative reviews of ethical issues concerning autonomy and honesty, beneficence/nonmaleficence and dignity, justice, specific practices/circumstances such as family presence during resuscitation, and emergency research...
May 10, 2018: Intensive Care Medicine
https://www.readbyqxmd.com/read/29657164/doctor-in-the-family-stories-and-dilemmas-surrounding-illness-in-relatives
#2
Lauren B Smith
This symposium includes twelve personal narratives from physicians with family members or close personal friends with medical illnesses. This issue also includes three commentaries on these narratives by scholars in the fields of bioethics, sociology, and law. The aim of this issue is to explore the benefits and potential harms that may arise when physicians are involved in the care of relatives, a role often fraught with conflicting moral obligations.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/29520736/family-resemblances-human-reproductive-cloning-as-an-example-for-reconsidering-the-mutual-relationships-between-bioethics-and-science-fiction
#3
Solveig L Hansen
In the traditions of narrative ethics and casuistry, stories have a well-established role. Specifically, illness narratives provide insight into patients' perspectives and histories. However, because they tend to see fiction as an aesthetic endeavour, practitioners in these traditions often do not realize that fictional stories are valuable moral sources of their own. In this paper I employ two arguments to show the mutual relationship between bioethics and fiction, specifically, science fiction. First, both discourses use imagination to set a scene and determine a perspective...
March 8, 2018: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/29495934/the-moral-experiences-of-pediatric-nurses-in-brazil-engagement-and-relationships
#4
Raissa Passos Dos Santos, Eliane Tatsch Neves, Franco Carnevale
BACKGROUND: Pediatric nursing care involves many significant ethical challenges. Although nurses are broadly recognized as professionals with relevant knowledge about children and families, little is known about how nurses experience ethical concerns in their everyday practice. OBJECTIVE: The objective of this study was to better understand the moral experiences and related moral distress experiences of nurses working in pediatric settings in Brazil. DESIGN: Interpretative phenomenological study conducted through narrative interviews...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29368169/disciplining-bioethics-the-debate-over-human-embryo-research-a-grumpy-%C3%A2-review-of-j-benjamin-hurlbut-2017-experiments-in-democracy-human-embryo-research-and-the-politics-of-bioethics-columbia-university-press-new-york-978-0-231-17954-6-376-pp
#5
Giulia Cavaliere
J. Benjamin Hurlbut's book Experiments in Democracy: Human Embryo Research and the Politics of Bioethics is an historiographical analysis of the American debate over embryo research. It covers more than four decades of this debate and uses key actors, bodies, and events as empirical evidence for its analysis. At a first glance, it might seem like a book that tells a story, but Experiments in Democracy is much more than that. Hurlbut uses the chapters of this narrative as case studies through which to examine practices of deliberative democracy and the role played by scientists and ethicists in the deliberative processes concerning embryo research and the governance thereof...
January 24, 2018: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/29110730/a-meta-science-for-a-global-bioethics-and-biomedicine
#6
David S Basser
BACKGROUND: As suggested by Shook and Giordano, understanding and therefore addressing the urgent international governance issues around globalizing bio-medical/technology research and applications is limited by the perception of the underlying science. METHODS: A philosophical methodology is used, based on novel and classical philosophical reflection upon existent literature, clinical wisdoms and narrative theory to discover a meta-science and telos of humankind for the development of a relevant and defendable global biomedical bioethics...
November 7, 2017: Philosophy, Ethics, and Humanities in Medicine: PEHM
https://www.readbyqxmd.com/read/28901599/balancing-bioethics-by-sensing-the-aesthetic
#7
Paul Macneill
This article is critical of "bioethics" as it is widely understood and taught, noting in particular an emphasis given to philosophical justification, reason and rationality. It is proposed that "balancing" bioethics be achieved by giving greater weight to practice and the aesthetic: Defined in terms of sensory perception, emotion and feeling. Each of those three elements is elaborated as a non-cognitive capacity and, when taken together, comprise aesthetic sensitivity and responsiveness...
October 2017: Bioethics
https://www.readbyqxmd.com/read/28890451/in-the-matter-of-stories
#8
Hilde Lindemann
This essay lays out some of the many resources that a background in literary studies has to offer bioethics. After identifying four useful characteristics of stories, it briefly discusses some kinds of moral work that stories can be put to, including countering ethically undesirable stories and modeling ethically troubling situations. Stories can be invoked in our moral reasoning, compared and parsed, and used to teach moral lessons. They can help us discern which moral concepts are operative in a specific instance...
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28819920/-no-country-for-old-men-huxley-s-brave-new-world-and-the-value-of-old-age
#9
Maren Linett
This article inserts Aldous Huxley's Brave New World (1932) into a bioethical conversation about the value of old age and old people. Exploring literary treatments of bioethical questions can supplement conversations within bioethics proper, helping to reveal our existing assumptions and clear the way for more considered views; indeed, as Peter Swirski has argued, literary texts can serve as thought experiments that illuminate the ramifications of philosophical ideas. This essay examines the novel's representation of a society without old people in conjunction with ideas about aging and life narratives put forward by philosophers and bioethicists such as Ezekiel Emanuel, Gilbert Meilaender, and Alasdair MacIntyre...
August 17, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28806989/maximising-value-from-a-united-kingdom-biomedical-research-centre-study-protocol
#10
Trisha Greenhalgh, Pavel V Ovseiko, Nick Fahy, Sara Shaw, Polly Kerr, Alexander D Rushforth, Keith M Channon, Vasiliki Kiparoglou
BACKGROUND: Biomedical Research Centres (BRCs) are partnerships between healthcare organisations and universities in England. Their mission is to generate novel treatments, technologies, diagnostics and other interventions that increase the country's international competitiveness, to rapidly translate these innovations into benefits for patients, and to improve efficiency and reduce waste in healthcare. As NIHR Oxford BRC (Oxford BRC) enters its third 5-year funding period, we seek to (1) apply the evidence base on how best to support the various partnerships in this large, multi-stakeholder research system and (2) research how these partnerships play out in a new, ambitious programme of translational research...
August 14, 2017: Health Research Policy and Systems
https://www.readbyqxmd.com/read/28760245/hymenoplasty-and-muslim-patients-islamic-ethico-legal-perspectives
#11
REVIEW
Mohammad H Bawany, Aasim I Padela
BACKGROUND: Hymenoplasty, commonly called "revirginization," is a controversial procedure that pushes the scope of medical practice to satisfy cultural and/or religious "needs." AIM: To outline the sociocultural contexts underlying patient requests for hymenoplasty and present Islamic juridical views on the moral status of hymenoplasty for Muslim patients. METHODS: Narrative review of the extant bioethics literature and leading Islamic ethico-legal verdicts...
August 2017: Journal of Sexual Medicine
https://www.readbyqxmd.com/read/28589308/the-medical-humanities-effect-a-pilot-study-of-pre-health-professions-students-at-the-university-of-rochester
#12
Clayton J Baker, Margie Hodges Shaw, Christopher J Mooney, Susan Dodge-Peters Daiss, Stephanie Brown Clark
Qualitative and quantitative research on the impact of medical and health humanities teaching in baccalaureate education is sparse. This paper reviews recent studies of the impact of medical and health humanities coursework in pre-health professions education and describes a pilot study of baccalaureate students who completed semester-long medical humanities courses in the Division of Medical Humanities & Bioethics at the University of Rochester. The study format was an email survey. All participants were current or former baccalaureate students who had taken one or more courses in literature and narrative in medicine, bioethics, history of medicine, and/or visual arts and healthcare during the past four years...
December 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28367463/fourth-year-medical-students-reflective-writing-on-death-of-ivan-ilych-a-qualitative-study
#13
Mahshid Zohouri, Mitra Amini, Mohammad Mehdi Sagheb
INTRODUCTION: Medical students should be familiar with the end of life ethical issues and its considerations. For teaching end of life care to medical students, literature is a source of excellent narratives of patients with experiences of terminally ill condition in their journey through suffering and one of the most favourite bioethics literature readings has been the death of Ivan Ilych by Tolstoy. We used this novel to show medical students end of life events and suffering and asked them to write a reflective essay on it...
April 2017: Journal of Advances in Medical Education & Professionalism
https://www.readbyqxmd.com/read/28144901/investigating-public-trust-in-expert-knowledge-narrative-ethics-and-engagement
#14
Silvia Camporesi, Maria Vaccarella, Mark Davis
"Public Trust in Expert Knowledge: Narrative, Ethics, and Engagement" examines the social, cultural, and ethical ramifications of changing public trust in the expert biomedical knowledge systems of emergent and complex global societies. This symposium was conceived as an interdisciplinary project, drawing on bioethics, the social sciences, and the medical humanities. We settled on public trust as a topic for our work together because its problematization cuts across our fields and substantive research interests...
March 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28087727/bioethics-and-imagination-towards-a-narrative-bioethics-committed-to-social-action-and-justice
#15
Camilo Hernán Manchola Castillo, Jan Helge Solbakk
Recently, the involvement of various authors coming from the social sciences and the arts has reinforced the humanistic component of bioethics. Their contributions vary from very theoretical perspectives to rather practical ones. In this paper, Martha Nussbaum's books, The Fragility of Goodness (1986), Love's Knowledge (1990), Cultivating Humanity (1997) and Creating Capabilities (2011) are analysed from the vantage point of narrative bioethics. It is argued that Nussbaum's notions of 'Narrative', 'Imagination' and 'Cultivation' open up the possibility of developing an action-oriented form of narrative bioethics, that is, a bioethics committed to social action and justice...
January 13, 2017: Medical Humanities
https://www.readbyqxmd.com/read/28005251/investigating-trust-expertise-and-epistemic-injustice-in-chronic-pain
#16
Daniel Z Buchman, Anita Ho, Daniel S Goldberg
Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded...
March 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/27763418/narrative-symposium-political-influence-on-bioethical-deliberation
#17
Christophe B Pipon, Marie-Ève Lemoine, Maude Laliberté, Bryn Williams-Jones, Dan Bustillos, Anonymous One, Anonymous Two, Ashley K Fernandes, Anonymous Three, Thomas D Harter, D Micah Hester, Anonymous Four, Mary Faith Marshall, Philip M Rosoff, Giles R Scofield
No abstract text is available yet for this article.
2016: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/27694600/doctors-in-space-ships-biomedical-uncertainties-and-medical-authority-in-imagined-futures
#18
Lesley Henderson, Simon Carter
There has been considerable interest in images of medicine in popular science fiction and in representations of doctors in television fiction. Surprisingly little attention has been paid to doctors administering space medicine in science fiction. This article redresses this gap. We analyse the evolving figure of 'the doctor' in different popular science fiction television series. Building upon debates within Medical Sociology, Cultural Studies and Media Studies we argue that the figure of 'the doctor' is discursively deployed to act as the moral compass at the centre of the programme narrative...
December 2016: Medical Humanities
https://www.readbyqxmd.com/read/27637191/the-dialogue-between-medical-doctors-and-bioethicists-rethinking-experience-to-improve-medical-education
#19
Luca Valera, María Teresa Russo, Giuseppe Curcio
More and more seems to be necessary to find new ways of communication between medical doctors and bioethicists in order to build a shared vocabulary and to prevent conflicts: many bioethical problems seem to be caused by the lack of dialogue between them, which both seem to speak two different languages. Improving this dialogue means searching new languages and innovative forms of communication: the narration could be a really effective tool to enhance the physicians' and bioethicist's moral conscience, since it facilitates reasoning on someone's particular experience, and, ultimately, on our experience...
May 2016: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
https://www.readbyqxmd.com/read/27545476/memory-brains-and-narratives-the-humanities-as-a-testing-ground-for-bioethical-scenario-building
#20
Genie Nicole Giaimo
No abstract text is available yet for this article.
December 0: Literature and Medicine
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