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Bioethical Narratives

Clayton J Baker, Margie Hodges Shaw, Christopher J Mooney, Susan Dodge-Peters Daiss, Stephanie Brown Clark
Qualitative and quantitative research on the impact of medical and health humanities teaching in baccalaureate education is sparse. This paper reviews recent studies of the impact of medical and health humanities coursework in pre-health professions education and describes a pilot study of baccalaureate students who completed semester-long medical humanities courses in the Division of Medical Humanities & Bioethics at the University of Rochester. The study format was an email survey. All participants were current or former baccalaureate students who had taken one or more courses in literature and narrative in medicine, bioethics, history of medicine, and/or visual arts and healthcare during the past four years...
June 7, 2017: Journal of Medical Humanities
Mahshid Zohouri, Mitra Amini, Mohammad Mehdi Sagheb
INTRODUCTION: Medical students should be familiar with the end of life ethical issues and its considerations. For teaching end of life care to medical students, literature is a source of excellent narratives of patients with experiences of terminally ill condition in their journey through suffering and one of the most favourite bioethics literature readings has been the death of Ivan Ilych by Tolstoy. We used this novel to show medical students end of life events and suffering and asked them to write a reflective essay on it...
April 2017: Journal of Advances in Medical Education & Professionalism
Silvia Camporesi, Maria Vaccarella, Mark Davis
"Public Trust in Expert Knowledge: Narrative, Ethics, and Engagement" examines the social, cultural, and ethical ramifications of changing public trust in the expert biomedical knowledge systems of emergent and complex global societies. This symposium was conceived as an interdisciplinary project, drawing on bioethics, the social sciences, and the medical humanities. We settled on public trust as a topic for our work together because its problematization cuts across our fields and substantive research interests...
March 2017: Journal of Bioethical Inquiry
Camilo Hernán Manchola Castillo, Jan Helge Solbakk
Recently, the involvement of various authors coming from the social sciences and the arts has reinforced the humanistic component of bioethics. Their contributions vary from very theoretical perspectives to rather practical ones. In this paper, Martha Nussbaum's books, The Fragility of Goodness (1986), Love's Knowledge (1990), Cultivating Humanity (1997) and Creating Capabilities (2011) are analysed from the vantage point of narrative bioethics. It is argued that Nussbaum's notions of 'Narrative', 'Imagination' and 'Cultivation' open up the possibility of developing an action-oriented form of narrative bioethics, that is, a bioethics committed to social action and justice...
January 13, 2017: Medical Humanities
Daniel Z Buchman, Anita Ho, Daniel S Goldberg
Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded...
March 2017: Journal of Bioethical Inquiry
Christophe B Pipon, Marie-Ève Lemoine, Maude Laliberté, Bryn Williams-Jones, Dan Bustillos, Anonymous One, Anonymous Two, Ashley K Fernandes, Anonymous Three, Thomas D Harter, D Micah Hester, Anonymous Four, Mary Faith Marshall, Philip M Rosoff, Giles R Scofield
No abstract text is available yet for this article.
2016: Narrative Inquiry in Bioethics
Lesley Henderson, Simon Carter
There has been considerable interest in images of medicine in popular science fiction and in representations of doctors in television fiction. Surprisingly little attention has been paid to doctors administering space medicine in science fiction. This article redresses this gap. We analyse the evolving figure of 'the doctor' in different popular science fiction television series. Building upon debates within Medical Sociology, Cultural Studies and Media Studies we argue that the figure of 'the doctor' is discursively deployed to act as the moral compass at the centre of the programme narrative...
December 2016: Medical Humanities
Luca Valera, María Teresa Russo, Giuseppe Curcio
More and more seems to be necessary to find new ways of communication between medical doctors and bioethicists in order to build a shared vocabulary and to prevent conflicts: many bioethical problems seem to be caused by the lack of dialogue between them, which both seem to speak two different languages. Improving this dialogue means searching new languages and innovative forms of communication: the narration could be a really effective tool to enhance the physicians' and bioethicist's moral conscience, since it facilitates reasoning on someone's particular experience, and, ultimately, on our experience...
May 2016: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
Genie Nicole Giaimo
No abstract text is available yet for this article.
December 0: Literature and Medicine
Radhika H Pandya, Radha Shukla, Alpa P Gor, Barna Ganguly
The principles of bioethics have been identified as important requirements for training basic medical doctors. Till now, various modalities have been used for teaching bioethics, such as lectures, followed by a small case-based discussion, case vignettes or debates among students. For effective teaching-learning of bioethics, it is necessary to integrate theory and practice rather than merely teach theoretical constructs without helping the students translate those constructs into practice. Classroom teaching can focus on the theoretical knowledge of professional relationships, patient-doctor relationships, issues at the beginning and end of life, reproductive technologies, etc...
July 2016: Indian Journal of Medical Ethics
James M DuBois, Ana S Iltis, Susan G DuBois
Twelve personal narratives address the impact of political influence on bioethics. Three commentary articles explore these stories and suggest lessons that can be learned from them. The commentators come from backgrounds that include bioethics, medicine, educational psychology, health care management, and philosophy.
2016: Narrative Inquiry in Bioethics
Emma Day, Louise Jones, Richard Langner, Myra Bluebond-Langner
BACKGROUND: Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS: To identify recent empirical research on decision-making regarding care and treatment in adolescent cancer: (1) to synthesise evidence to define the role of adolescents, parents and healthcare professionals in the decision-making process and (2) to identify gaps in research...
December 2016: Palliative Medicine
Arthur W Frank
Narrative ethics holds that if you ask someone what goodness is, as a basis of action, most people will first appeal to various abstractions, each of which can be defined only by other abstractions that in turn require further definition. If you persist in asking what each of these abstractions actually means, eventually that person will have to tell you a story and expect you to recognize goodness in the story. Goodness and badness need stories to make them thinkable and to translate them into individual and collective actions...
May 2016: Hastings Center Report
Shaun A Stevenson, Stuart J Murray
No abstract text is available yet for this article.
May 2016: American Journal of Bioethics: AJOB
Aviad Raz, Christina Schües, Nadja Wilhelm, Christoph Rehmann-Sutter
To explore how cultural beliefs are reflected in different popular views of pre-implantation genetic diagnosis for human leukocyte antigen match (popularly known as "savior siblings"), we compare the reception and interpretations, in Germany and Israel, of the novel/film My Sister's Keeper. Qualitative analysis of reviews, commentaries and posts is used to classify and compare normative assessments of PGD for HLA and how they reproduce, negotiate or oppose the national policy and its underlying cultural and ethical premises...
June 2017: Journal of Medical Humanities
Pierre Pariseau-Legault, Frédéric Doutrelepont
During the last decades, medical paternalism was rejected in favour of the patient's right to self-determination and, by extension, to its right to consent or refuse care offered to him. In the clinical setting, the obligation to inform user and to obtain its free and informed consent about such care is widely recognized, but rarely problematized. The aim of this paper is to analyze the construct of a consent to care and the different conceptualizations of autonomy that are part of this juridical vehicle. A socio-legal analysis was conducted through a narrative review of literature relative to nursing sciences, humanities, philosophy and bioethics, and legal sciences...
December 2015: Recherche en Soins Infirmiers
Jonathan Montgomery
Bioethics can be considered as a topic, an academic discipline (or combination of disciplines), a field of study, an enterprise in persuasion. The historical specificity of the forms bioethics takes is significant, and raises questions about some of these approaches. Bioethics can also be considered as a governance practice, with distinctive institutions and structures. The forms this practice takes are also to a degree country specific, as the paper illustrates by drawing on the author's UK experience. However, the UNESCO Universal Declaration on Bioethics can provide a starting point for comparisons provided that this does not exclude sensitivity to the socio-political context...
March 2016: Health Care Analysis: HCA: Journal of Health Philosophy and Policy
Matthew Thomann
In Abidjan, Côte d'Ivoire, 18% of men who have sex with men (MSM) are HIV-positive. Based on ethnographic research conducted among HIV peer educators and activists in Abidjan, I examine their narratives and hand-drawn maps of city space. I draw on a methodological process of map-making to examine research participants' evaluations of neighborhoods and link these evaluations to debates over national and cultural belonging in Côte d'Ivoire. I suggest a moral geography emerges from the maps and narratives and ask what the bioethical implications of moral geography are in the context of service delivery and activism among sexual minorities...
2016: Journal of Homosexuality
Elizabeth Freeman
For this contribution to the special issue on "Mapping Queer Bioethics," the author offers a reflection on the nature of the literary, written word as the ethically fraught site of queer bioethics. By invoking the historical tendencies and tropes of the clinical case history alongside a seminal text by Gertrude Stein, the author at once asks if we should liberate a queer bioethics from biomedical discourse via mainstream narrative; or if we should see this strategy as unavoidably housed in narrative forms of storytelling because it echoes the tropes and stakes of the clinical, pathologized case history as regards queer sensibilities...
2016: Journal of Homosexuality
Peter A Kahn
Bioethics in America positions itself as a totalizing discipline, capable of providing guidance to any individual within the boundaries of a health or medical setting. Yet the religiously observant or those driven by spiritual values have not universally accepted decisions made by "secular" bioethics, and as a result, religious bioethical thinkers and adherents have developed frameworks and rich counter-narratives used to fend off encroachment by policies perceived as threatening. This article uses brain death in Jewish law, the case of Jahi McMath, and vaccination refusal to observe how the religious system of ethics is presently excluded from bioethics and its implications...
October 2016: Journal of Religion and Health
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