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Bioethical Narratives

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https://www.readbyqxmd.com/read/29110730/a-meta-science-for-a-global-bioethics-and-biomedicine
#1
David S Basser
BACKGROUND: As suggested by Shook and Giordano, understanding and therefore addressing the urgent international governance issues around globalizing bio-medical/technology research and applications is limited by the perception of the underlying science. METHODS: A philosophical methodology is used, based on novel and classical philosophical reflection upon existent literature, clinical wisdoms and narrative theory to discover a meta-science and telos of humankind for the development of a relevant and defendable global biomedical bioethics...
November 7, 2017: Philosophy, Ethics, and Humanities in Medicine: PEHM
https://www.readbyqxmd.com/read/28901599/balancing-bioethics-by-sensing-the-aesthetic
#2
Paul Macneill
This article is critical of "bioethics" as it is widely understood and taught, noting in particular an emphasis given to philosophical justification, reason and rationality. It is proposed that "balancing" bioethics be achieved by giving greater weight to practice and the aesthetic: Defined in terms of sensory perception, emotion and feeling. Each of those three elements is elaborated as a non-cognitive capacity and, when taken together, comprise aesthetic sensitivity and responsiveness. This is to recognise the aesthetic as a productive element in bioethics as practice...
October 2017: Bioethics
https://www.readbyqxmd.com/read/28890451/in-the-matter-of-stories
#3
Hilde Lindemann
This essay lays out some of the many resources that a background in literary studies has to offer bioethics. After identifying four useful characteristics of stories, it briefly discusses some kinds of moral work that stories can be put to, including countering ethically undesirable stories and modeling ethically troubling situations. Stories can be invoked in our moral reasoning, compared and parsed, and used to teach moral lessons. They can help us discern which moral concepts are operative in a specific instance...
2017: Perspectives in Biology and Medicine
https://www.readbyqxmd.com/read/28819920/-no-country-for-old-men-huxley-s-brave-new-world-and-the-value-of-old-age
#4
Maren Linett
This article inserts Aldous Huxley's Brave New World (1932) into a bioethical conversation about the value of old age and old people. Exploring literary treatments of bioethical questions can supplement conversations within bioethics proper, helping to reveal our existing assumptions and clear the way for more considered views; indeed, as Peter Swirski has argued, literary texts can serve as thought experiments that illuminate the ramifications of philosophical ideas. This essay examines the novel's representation of a society without old people in conjunction with ideas about aging and life narratives put forward by philosophers and bioethicists such as Ezekiel Emanuel, Gilbert Meilaender, and Alasdair MacIntyre...
August 17, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28806989/maximising-value-from-a-united-kingdom-biomedical-research-centre-study-protocol
#5
Trisha Greenhalgh, Pavel V Ovseiko, Nick Fahy, Sara Shaw, Polly Kerr, Alexander D Rushforth, Keith M Channon, Vasiliki Kiparoglou
BACKGROUND: Biomedical Research Centres (BRCs) are partnerships between healthcare organisations and universities in England. Their mission is to generate novel treatments, technologies, diagnostics and other interventions that increase the country's international competitiveness, to rapidly translate these innovations into benefits for patients, and to improve efficiency and reduce waste in healthcare. As NIHR Oxford BRC (Oxford BRC) enters its third 5-year funding period, we seek to (1) apply the evidence base on how best to support the various partnerships in this large, multi-stakeholder research system and (2) research how these partnerships play out in a new, ambitious programme of translational research...
August 14, 2017: Health Research Policy and Systems
https://www.readbyqxmd.com/read/28760245/hymenoplasty-and-muslim-patients-islamic-ethico-legal-perspectives
#6
Mohammad H Bawany, Aasim I Padela
BACKGROUND: Hymenoplasty, commonly called "revirginization," is a controversial procedure that pushes the scope of medical practice to satisfy cultural and/or religious "needs." AIM: To outline the sociocultural contexts underlying patient requests for hymenoplasty and present Islamic juridical views on the moral status of hymenoplasty for Muslim patients. METHODS: Narrative review of the extant bioethics literature and leading Islamic ethico-legal verdicts...
August 2017: Journal of Sexual Medicine
https://www.readbyqxmd.com/read/28589308/the-medical-humanities-effect-a-pilot-study-of-pre-health-professions-students-at-the-university-of-rochester
#7
Clayton J Baker, Margie Hodges Shaw, Christopher J Mooney, Susan Dodge-Peters Daiss, Stephanie Brown Clark
Qualitative and quantitative research on the impact of medical and health humanities teaching in baccalaureate education is sparse. This paper reviews recent studies of the impact of medical and health humanities coursework in pre-health professions education and describes a pilot study of baccalaureate students who completed semester-long medical humanities courses in the Division of Medical Humanities & Bioethics at the University of Rochester. The study format was an email survey. All participants were current or former baccalaureate students who had taken one or more courses in literature and narrative in medicine, bioethics, history of medicine, and/or visual arts and healthcare during the past four years...
June 7, 2017: Journal of Medical Humanities
https://www.readbyqxmd.com/read/28367463/fourth-year-medical-students-reflective-writing-on-death-of-ivan-ilych-a-qualitative-study
#8
Mahshid Zohouri, Mitra Amini, Mohammad Mehdi Sagheb
INTRODUCTION: Medical students should be familiar with the end of life ethical issues and its considerations. For teaching end of life care to medical students, literature is a source of excellent narratives of patients with experiences of terminally ill condition in their journey through suffering and one of the most favourite bioethics literature readings has been the death of Ivan Ilych by Tolstoy. We used this novel to show medical students end of life events and suffering and asked them to write a reflective essay on it...
April 2017: Journal of Advances in Medical Education & Professionalism
https://www.readbyqxmd.com/read/28144901/investigating-public-trust-in-expert-knowledge-narrative-ethics-and-engagement
#9
Silvia Camporesi, Maria Vaccarella, Mark Davis
"Public Trust in Expert Knowledge: Narrative, Ethics, and Engagement" examines the social, cultural, and ethical ramifications of changing public trust in the expert biomedical knowledge systems of emergent and complex global societies. This symposium was conceived as an interdisciplinary project, drawing on bioethics, the social sciences, and the medical humanities. We settled on public trust as a topic for our work together because its problematization cuts across our fields and substantive research interests...
March 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28087727/bioethics-and-imagination-towards-a-narrative-bioethics-committed-to-social-action-and-justice
#10
Camilo Hernán Manchola Castillo, Jan Helge Solbakk
Recently, the involvement of various authors coming from the social sciences and the arts has reinforced the humanistic component of bioethics. Their contributions vary from very theoretical perspectives to rather practical ones. In this paper, Martha Nussbaum's books, The Fragility of Goodness (1986), Love's Knowledge (1990), Cultivating Humanity (1997) and Creating Capabilities (2011) are analysed from the vantage point of narrative bioethics. It is argued that Nussbaum's notions of 'Narrative', 'Imagination' and 'Cultivation' open up the possibility of developing an action-oriented form of narrative bioethics, that is, a bioethics committed to social action and justice...
January 13, 2017: Medical Humanities
https://www.readbyqxmd.com/read/28005251/investigating-trust-expertise-and-epistemic-injustice-in-chronic-pain
#11
Daniel Z Buchman, Anita Ho, Daniel S Goldberg
Trust is central to the therapeutic relationship, but the epistemic asymmetries between the expert healthcare provider and the patient make the patient, the trustor, vulnerable to the provider, the trustee. The narratives of pain sufferers provide helpful insights into the experience of pain at the juncture of trust, expert knowledge, and the therapeutic relationship. While stories of pain sufferers having their testimonies dismissed are well documented, pain sufferers continue to experience their testimonies as being epistemically downgraded...
March 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/27763418/narrative-symposium-political-influence-on-bioethical-deliberation
#12
Christophe B Pipon, Marie-Ève Lemoine, Maude Laliberté, Bryn Williams-Jones, Dan Bustillos, Anonymous One, Anonymous Two, Ashley K Fernandes, Anonymous Three, Thomas D Harter, D Micah Hester, Anonymous Four, Mary Faith Marshall, Philip M Rosoff, Giles R Scofield
No abstract text is available yet for this article.
2016: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/27694600/doctors-in-space-ships-biomedical-uncertainties-and-medical-authority-in-imagined-futures
#13
Lesley Henderson, Simon Carter
There has been considerable interest in images of medicine in popular science fiction and in representations of doctors in television fiction. Surprisingly little attention has been paid to doctors administering space medicine in science fiction. This article redresses this gap. We analyse the evolving figure of 'the doctor' in different popular science fiction television series. Building upon debates within Medical Sociology, Cultural Studies and Media Studies we argue that the figure of 'the doctor' is discursively deployed to act as the moral compass at the centre of the programme narrative...
December 2016: Medical Humanities
https://www.readbyqxmd.com/read/27637191/the-dialogue-between-medical-doctors-and-bioethicists-rethinking-experience-to-improve-medical-education
#14
Luca Valera, María Teresa Russo, Giuseppe Curcio
More and more seems to be necessary to find new ways of communication between medical doctors and bioethicists in order to build a shared vocabulary and to prevent conflicts: many bioethical problems seem to be caused by the lack of dialogue between them, which both seem to speak two different languages. Improving this dialogue means searching new languages and innovative forms of communication: the narration could be a really effective tool to enhance the physicians' and bioethicist's moral conscience, since it facilitates reasoning on someone's particular experience, and, ultimately, on our experience...
May 2016: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
https://www.readbyqxmd.com/read/27545476/memory-brains-and-narratives-the-humanities-as-a-testing-ground-for-bioethical-scenario-building
#15
Genie Nicole Giaimo
No abstract text is available yet for this article.
December 0: Literature and Medicine
https://www.readbyqxmd.com/read/27474694/personal-experience-narratives-by-students-a-teaching-learning-tool-in-bioethics
#16
Radhika H Pandya, Radha Shukla, Alpa P Gor, Barna Ganguly
The principles of bioethics have been identified as important requirements for training basic medical doctors. Till now, various modalities have been used for teaching bioethics, such as lectures, followed by a small case-based discussion, case vignettes or debates among students. For effective teaching-learning of bioethics, it is necessary to integrate theory and practice rather than merely teach theoretical constructs without helping the students translate those constructs into practice. Classroom teaching can focus on the theoretical knowledge of professional relationships, patient-doctor relationships, issues at the beginning and end of life, reproductive technologies, etc...
July 2016: Indian Journal of Medical Ethics
https://www.readbyqxmd.com/read/27346808/introduction-political-influence-on-bioethical-deliberation
#17
James M DuBois, Ana S Iltis, Susan G DuBois
Twelve personal narratives address the impact of political influence on bioethics. Three commentary articles explore these stories and suggest lessons that can be learned from them. The commentators come from backgrounds that include bioethics, medicine, educational psychology, health care management, and philosophy.
2016: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/27160700/current-understanding-of-decision-making-in-adolescents-with-cancer-a-narrative-systematic-review
#18
REVIEW
Emma Day, Louise Jones, Richard Langner, Myra Bluebond-Langner
BACKGROUND: Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS: To identify recent empirical research on decision-making regarding care and treatment in adolescent cancer: (1) to synthesise evidence to define the role of adolescents, parents and healthcare professionals in the decision-making process and (2) to identify gaps in research...
December 2016: Palliative Medicine
https://www.readbyqxmd.com/read/27150414/truth-telling-companionship-and-witness-an-agenda-for-narrative-ethics
#19
Arthur W Frank
Narrative ethics holds that if you ask someone what goodness is, as a basis of action, most people will first appeal to various abstractions, each of which can be defined only by other abstractions that in turn require further definition. If you persist in asking what each of these abstractions actually means, eventually that person will have to tell you a story and expect you to recognize goodness in the story. Goodness and badness need stories to make them thinkable and to translate them into individual and collective actions...
May 2016: Hastings Center Report
https://www.readbyqxmd.com/read/27111373/aboriginal-bioethics-as-critical-bioethics-the-virtue-of-narrative
#20
Shaun A Stevenson, Stuart J Murray
No abstract text is available yet for this article.
May 2016: American Journal of Bioethics: AJOB
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