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Bioethical Narratives

Christophe B Pipon, Marie-Ève Lemoine, Maude Laliberté, Bryn Williams-Jones, Dan Bustillos, Anonymous One, Anonymous Two, Ashley K Fernandes, Anonymous Three, Thomas D Harter, D Micah Hester, Anonymous Four, Mary Faith Marshall, Philip M Rosoff, Giles R Scofield
No abstract text is available yet for this article.
2016: Narrative Inquiry in Bioethics
Lesley Henderson, Simon Carter
There has been considerable interest in images of medicine in popular science fiction and in representations of doctors in television fiction. Surprisingly little attention has been paid to doctors administering space medicine in science fiction. This article redresses this gap. We analyse the evolving figure of 'the doctor' in different popular science fiction television series. Building upon debates within Medical Sociology, Cultural Studies and Media Studies we argue that the figure of 'the doctor' is discursively deployed to act as the moral compass at the centre of the programme narrative...
September 30, 2016: Medical Humanities
Luca Valera, María Teresa Russo, Giuseppe Curcio
More and more seems to be necessary to find new ways of communication between medical doctors and bioethicists in order to build a shared vocabulary and to prevent conflicts: many bioethical problems seem to be caused by the lack of dialogue between them, which both seem to speak two different languages. Improving this dialogue means searching new languages and innovative forms of communication: the narration could be a really effective tool to enhance the physicians' and bioethicist's moral conscience, since it facilitates reasoning on someone's particular experience, and, ultimately, on our experience...
May 2016: Cuadernos de Bioética: Revista Oficial de la Asociación Española de Bioética y Ética Médica
Genie Nicole Giaimo
No abstract text is available yet for this article.
2016: Literature and Medicine
Radhika H Pandya, Radha Shukla, Alpa P Gor, Barna Ganguly
The principles of bioethics have been identified as important requirements for training basic medical doctors. Till now, various modalities have been used for teaching bioethics, such as lectures, followed by a small case-based discussion, case vignettes or debates among students. For effective teaching-learning of bioethics, it is necessary to integrate theory and practice rather than merely teach theoretical constructs without helping the students translate those constructs into practice. Classroom teaching can focus on the theoretical knowledge of professional relationships, patient-doctor relationships, issues at the beginning and end of life, reproductive technologies, etc...
July 2016: Indian Journal of Medical Ethics
James M DuBois, Ana S Iltis, Susan G DuBois
Twelve personal narratives address the impact of political influence on bioethics. Three commentary articles explore these stories and suggest lessons that can be learned from them. The commentators come from backgrounds that include bioethics, medicine, educational psychology, health care management, and philosophy.
2016: Narrative Inquiry in Bioethics
Emma Day, Louise Jones, Richard Langner, Myra Bluebond-Langner
BACKGROUND: Policy guidance and bioethical literature urge the involvement of adolescents in decisions about their healthcare. It is uncertain how roles and expectations of adolescents, parents and healthcare professionals influence decision-making and to what extent this is considered in guidance. AIMS: To identify recent empirical research on decision-making regarding care and treatment in adolescent cancer: (1) to synthesise evidence to define the role of adolescents, parents and healthcare professionals in the decision-making process and (2) to identify gaps in research...
May 9, 2016: Palliative Medicine
Arthur W Frank
Narrative ethics holds that if you ask someone what goodness is, as a basis of action, most people will first appeal to various abstractions, each of which can be defined only by other abstractions that in turn require further definition. If you persist in asking what each of these abstractions actually means, eventually that person will have to tell you a story and expect you to recognize goodness in the story. Goodness and badness need stories to make them thinkable and to translate them into individual and collective actions...
May 2016: Hastings Center Report
Shaun A Stevenson, Stuart J Murray
No abstract text is available yet for this article.
May 2016: American Journal of Bioethics: AJOB
Aviad Raz, Christina Schües, Nadja Wilhelm, Christoph Rehmann-Sutter
To explore how cultural beliefs are reflected in different popular views of pre-implantation genetic diagnosis for human leukocyte antigen match (popularly known as "savior siblings"), we compare the reception and interpretations, in Germany and Israel, of the novel/film My Sister's Keeper. Qualitative analysis of reviews, commentaries and posts is used to classify and compare normative assessments of PGD for HLA and how they reproduce, negotiate or oppose the national policy and its underlying cultural and ethical premises...
March 22, 2016: Journal of Medical Humanities
Pierre Pariseau-Legault, Frédéric Doutrelepont
During the last decades, medical paternalism was rejected in favour of the patient's right to self-determination and, by extension, to its right to consent or refuse care offered to him. In the clinical setting, the obligation to inform user and to obtain its free and informed consent about such care is widely recognized, but rarely problematized. The aim of this paper is to analyze the construct of a consent to care and the different conceptualizations of autonomy that are part of this juridical vehicle. A socio-legal analysis was conducted through a narrative review of literature relative to nursing sciences, humanities, philosophy and bioethics, and legal sciences...
December 2015: Recherche en Soins Infirmiers
Jonathan Montgomery
Bioethics can be considered as a topic, an academic discipline (or combination of disciplines), a field of study, an enterprise in persuasion. The historical specificity of the forms bioethics takes is significant, and raises questions about some of these approaches. Bioethics can also be considered as a governance practice, with distinctive institutions and structures. The forms this practice takes are also to a degree country specific, as the paper illustrates by drawing on the author's UK experience. However, the UNESCO Universal Declaration on Bioethics can provide a starting point for comparisons provided that this does not exclude sensitivity to the socio-political context...
March 2016: Health Care Analysis: HCA: Journal of Health Philosophy and Policy
Matthew Thomann
In Abidjan, Côte d'Ivoire, 18% of men who have sex with men (MSM) are HIV-positive. Based on ethnographic research conducted among HIV peer educators and activists in Abidjan, I examine their narratives and hand-drawn maps of city space. I draw on a methodological process of map-making to examine research participants' evaluations of neighborhoods and link these evaluations to debates over national and cultural belonging in Côte d'Ivoire. I suggest a moral geography emerges from the maps and narratives and ask what the bioethical implications of moral geography are in the context of service delivery and activism among sexual minorities...
2016: Journal of Homosexuality
Elizabeth Freeman
For this contribution to the special issue on "Mapping Queer Bioethics," the author offers a reflection on the nature of the literary, written word as the ethically fraught site of queer bioethics. By invoking the historical tendencies and tropes of the clinical case history alongside a seminal text by Gertrude Stein, the author at once asks if we should liberate a queer bioethics from biomedical discourse via mainstream narrative; or if we should see this strategy as unavoidably housed in narrative forms of storytelling because it echoes the tropes and stakes of the clinical, pathologized case history as regards queer sensibilities...
2016: Journal of Homosexuality
Peter A Kahn
Bioethics in America positions itself as a totalizing discipline, capable of providing guidance to any individual within the boundaries of a health or medical setting. Yet the religiously observant or those driven by spiritual values have not universally accepted decisions made by "secular" bioethics, and as a result, religious bioethical thinkers and adherents have developed frameworks and rich counter-narratives used to fend off encroachment by policies perceived as threatening. This article uses brain death in Jewish law, the case of Jahi McMath, and vaccination refusal to observe how the religious system of ethics is presently excluded from bioethics and its implications...
October 2016: Journal of Religion and Health
Bruce Jennings, Angus Dawson
No abstract text is available yet for this article.
September 2015: Hastings Center Report
John H Davidson
The "curative potential" in almost any clinical setting depends on a caregiver establishing and maintaining an empathic connection with patients so as to achieve "narrative competence" in discerning and acting in accord with their preferences and best interests. The "narrative medicine" model of shared "close reading of literature and reflective writing" among clinicians as a means of fostering a capacity for clinical empathy has gained validation with recent empirical studies demonstrating the enhancement of theory of mind (ToM), broadly conceived as empathy, in readers of literary fiction...
April 2015: Rambam Maimonides Medical Journal
Jeremy Sugarman
Despite concern that patients in the intensive care unit (ICU) may not be treated with respect and dignity, there is not conceptual clarity regarding what constitutes such treatment. In addition, measures specific to treatment with respect and dignity in the ICU are unavailable. Accordingly, a multidisciplinary group developed a conceptual model for treatment with respect and dignity in the ICU and used mixed methods to gather data on this issue. This effort included interviews with patients and families, focus groups with health care professionals, and direct observations...
2015: Narrative Inquiry in Bioethics
Ariel Cairns, James M DuBois
Ten qualitative research articles published from July 2013 through June 2014 on ethical topics in healthcare and health research are examined here. Full reference information is given for each article. A brief summary of the background, objectives, methods, results and conclusions is offered. These articles were chosen based on the quality of the work done and how well the work fits the interests of Narrative Inquiry in Bioethics readers.
2014: Narrative Inquiry in Bioethics
(no author information available yet)
Twelve personal narratives address the challenges, benefits, and pitfalls of integrating religion with medical and nursing practice. Three commentary articles explore these stories and suggest lessons that can be learned from them. The commentators come from backgrounds that include bioethics, medical practice, and spiritual studies.
2014: Narrative Inquiry in Bioethics
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