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https://www.readbyqxmd.com/read/28432807/incidental-findings-in-student-ultrasound-models-implications-for-instructors
#1
Yonaton Siegel-Richman, John L Kendall
As ultrasonography continues to become integrated into undergraduate medical education, there have been concerns raised about the use of volunteer models and the ability to maintain patient privacy during scanning sessions. To date, there have been no reports on how instructors should manage situations in which incidental findings are made during educational ultrasonography sessions. We present three different examples of incidental findings that occurred at our institution and the various approaches taken by the instructors...
April 22, 2017: Journal of Ultrasound in Medicine: Official Journal of the American Institute of Ultrasound in Medicine
https://www.readbyqxmd.com/read/28423808/security-policy-and-infrastructure-in-the-context-of-a-multi-centeric-information-system-dedicated-to-autism-spectrum-disorder
#2
Mohamed Ben Said, Laurence Robel, Bernard Golse, Jean Philippe Jais
Autism spectrum disorders (ASD) are complex neuro-developmental disorders affecting children in their early age. The diagnosis of ASD relies on multidisciplinary investigations, in psychiatry, neurology, genetics, electrophysiology, neuro-imagery, audiology and ophthalmology. In order to support clinicians, researchers and public health decision makers, we designed an information system dedicated to ASD, called TEDIS. TEDIS was designed to manage systematic, exhaustive and continuous multi-centric patient data collection via secured Internet connections...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423806/protecting-privacy-of-genomic-information
#3
Jaime Delgado, Silvia Llorente, Daniel Naro
The ISO/IEC committee in charge of standardizing the well-known MPEG audiovisual standards has launched, in cooperation with the ISO committee on Biotechnology, a new activity for efficient compressed storage and transmission of genomic information. The paper presents proposals for adding privacy and security to such in-progress standards.
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423805/preventing-unintended-disclosure-of-personally-identifiable-data-following-anonymisation
#4
Chris Smith
Errors and anomalies during the capture and processing of health data have the potential to place personally identifiable values into attributes of a dataset that are expected to contain non-identifiable values. Anonymisation focuses on those attributes that have been judged to enable identification of individuals. Attributes that are judged to contain non-identifiable values are not considered, but may be included in datasets that are shared by organisations. Consequently, organisations are at risk of sharing datasets that unintendedly disclose personally identifiable values through these attributes...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423787/it-infrastructure-of-an-oncological-trial-where-xenografts-inform-individual-second-line-treatment-decision
#5
Doris Lindoerfer, Ulrich Mansmann
Translational clinical research is often characterized by a unidirectional information flow from clinical to molecular data by using phenotypes to elucidate molecular disease processes. Here we present the RESIST study which uses xenograft information for individual treatment decisions after resistance to a specific anticancer treatment establishing a bidirectional information flow between patient and molecular biology. The paper discusses the specific challenges related to the IT infrastructure for such bidirectional translational projects and proposes solutions...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423786/prevalence-estimation-of-protected-health-information-in-swedish-clinical-text
#6
Aron Henriksson, Maria Kvist, Hercules Dalianis
Obscuring protected health information (PHI) in the clinical text of health records facilitates the secondary use of healthcare data in a privacy-preserving manner. Although automatic de-identification of clinical text using machine learning holds much promise, little is known about the relative prevalence of PHI in different types of clinical text and whether there is a need for domain adaptation when learning predictive models from one particular domain and applying it to another. In this study, we address these questions by training a predictive model and using it to estimate the prevalence of PHI in clinical text written (1) in different clinical specialties, (2) in different types of notes (i...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423775/combining-different-privacy-preserving-record-linkage-methods-for-hospital-admission-data
#7
Jürgen Stausberg, Andreas Waldenburger, Christian Borgs, Rainer Schnell
Record linkage (RL) is the process of identifying pairs of records that correspond to the same entity, for example the same patient. The basic approach assigns to each pair of records a similarity weight, and then determines a certain threshold, above which the two records are considered to be a match. Three different RL methods were applied under privacy-preserving conditions on hospital admission data: deterministic RL (DRL), probabilistic RL (PRL), and Bloom filters. The patient characteristics like names were one-way encrypted (DRL, PRL) or transformed to a cryptographic longterm key (Bloom filters)...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423747/establishment-of-requirements-and-methodology-for-the-development-and-implementation-of-greymatters-a-memory-clinic-information-system
#8
Archana Tapuria, Matt Evans, Vasa Curcin, Tony Austin, Nathan Lea, Dipak Kalra
INTRODUCTION: The aim of the paper is to establish the requirements and methodology for the development process of GreyMatters, a memory clinic system, outlining the conceptual, practical, technical and ethical challenges, and the experiences of capturing clinical and research oriented data along with the implementation of the system. METHODS: The methodology for development of the information system involved phases of requirements gathering, modeling and prototype creation, and 'bench testing' the prototype with experts...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28423156/creation-of-an-internal-teledermatology-store-and-forward-system-in-an-existing-electronic-health-record-a-pilot-study-in-a-safety-net-public-health-and-hospital-system
#9
Zachary A Carter, Shauna Goldman, Kristen Anderson, Xiaxiao Li, Linda S Hynan, Benjamin F Chong, Arturo R Dominguez
Importance: External store-and-forward (SAF) teledermatology systems operate separately from the primary health record and have many limitations, including care fragmentation, inadequate communication among clinicians, and privacy and security concerns, among others. Development of internal SAF workflows within existing electronic health records (EHRs) should be the standard for large health care organizations for delivering high-quality dermatologic care, improving access, and capturing other telemedicine benchmark data...
April 19, 2017: JAMA Dermatology
https://www.readbyqxmd.com/read/28422614/electronic-follow-up-of-developing-world-cleft-patients-a-digital-dream
#10
Tom W M Walker, Ambika Chadha, William Rodgers, Caroline Mills, Peter Ayliffe
OBJECTIVE: To identify potential access to telemedicine follow-up of children with clefts operated on a humanitarian mission. METHODS: A cross-sectional study of parents of children presenting to a humanitarian cleft lip and palate mission in a Provincial Hospital in the Philippines. A purpose designed questionnaire was used to assess access to electronic and digital resources that could be used to aid follow-up. Forty-five (N = 45) parents of children having primary cleft lip and or palate surgery participated...
April 19, 2017: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
https://www.readbyqxmd.com/read/28419149/mobile-health-treatment-support-intervention-for-hiv-and-tuberculosis-in-mozambique-perspectives-of-patients-and-healthcare-workers
#11
José António Nhavoto, Åke Grönlund, Gunnar O Klein
BACKGROUND: Studies have been conducted in developing countries using SMS to communicate with patients to reduce the number of missed appointments and improve retention in treatment, however; very few have been scaled up. One possible reason for this could be that patients or staff are dissatisfied with the method in some way. This paper reports a study of patients' and healthcare workers' (HCW) views on an mHealth intervention aiming to support retention in antiretroviral therapy (ART) and tuberculosis (TB) treatment in Mozambique...
2017: PloS One
https://www.readbyqxmd.com/read/28419019/complexities-of-consent-ethics-in-the-pediatric-emergency-department
#12
Naomi Dreisinger, Nathan Zapolsky
Informed consent is a communicative process of sharing information with patients, which helps assure their understanding of the information provided and asks for their permission to proceed. Informed consent allows a patient or a patient's family to use his or her own value system to determine the need for a particular procedure or test. Asking a patient for permission to treat requires the provider to respect the patient's autonomy through allowing him or her to be an active part of the decision-making process...
April 18, 2017: Pediatric Emergency Care
https://www.readbyqxmd.com/read/28417473/ophthalmology-patients-interest-in-online-access-to-clinic-notes-at-three-us-clinics
#13
Bryan S Lee, Natalia V Oster, Galen Y Chen, Leona L Ding, Janice D Walker, Joann G Elmore
PURPOSE: This study aimed to understand patients' perceptions about potential benefits and harms of accessing their own ophthalmology clinic notes via an electronic patient portal as part of the OpenNotes initiative. METHODS: The authors conducted a cross-sectional, in-person survey of ophthalmology patients at three US eye clinics. The paper survey was self-administered or administered with assistance from study staff before or after patients' clinical visits. The authors used descriptive statistics to summarise patient characteristics and patient attitudes about accessing their ophthalmology notes online...
April 17, 2017: Ophthalmic & Physiological Optics: the Journal of the British College of Ophthalmic Opticians (Optometrists)
https://www.readbyqxmd.com/read/28415857/sharing-data-to-build-a-medical-information-commons-from-bermuda-to-the-global-alliance
#14
Robert Cook-Deegan, Rachel A Ankeny, Kathryn Maxson Jones
The Human Genome Project modeled its open science ethos on nematode biology, most famously through daily release of DNA sequence data based on the 1996 Bermuda Principles. That open science philosophy persists, but daily, unfettered release of data has had to adapt to constraints occasioned by the use of data from individual people, broader use of data not only by scientists but also by clinicians and individuals, the global reach of genomic applications and diverse national privacy and research ethics laws, and the rising prominence of a diverse commercial genomics sector...
April 17, 2017: Annual Review of Genomics and Human Genetics
https://www.readbyqxmd.com/read/28413409/self-optical-coherence-tomography-and-angiography
#15
Ahmad M Mansour
PURPOSE: To present a new concept of self-optical coherence tomography (OCT) and self-OCT angiography. METHODS: The operator sits in the patient seat and manipulates the instrument body via the joystick with the dominant hand, while the dominant index is ready to press the capture button and while focusing on the fixation target. One senior ophthalmologist judged various OCT machines for ease of self-scan during a major ophthalmic convention. Separately, self-scans were also captured using a single OCT machine by one senior ophthalmologist and 5 junior optometrists and the scans were analyzed for both centration and image quality value (IQV), and compared to regular scans done by an operator...
January 2017: Case Reports in Ophthalmology
https://www.readbyqxmd.com/read/28413115/rate-of-contamination-of-hospital-privacy-curtains-on-a-burns-and-plastic-surgery-ward-a-cross-sectional-study
#16
K Shek, R Patidar, Z Kohja, S Liu, J P Gawaziuk, M Gawthrop, A Kumar, S Logsetty
BACKGROUND: Surfaces in the patient environment may play a role in microbial transmission if they become colonized by bacteria. Patient privacy curtains are one such surface that may pose a high risk for transmission because they are high-contact surfaces, are infrequently cleaned, and healthcare workers are less likely to wash their hands after contacting inanimate objects such as curtains. AIM: To determine the amount and type of bacterial colonization of patient privacy curtains at a regional burns/plastic surgery unit...
March 16, 2017: Journal of Hospital Infection
https://www.readbyqxmd.com/read/28410576/knowledge-and-attitude-regarding-pharmacogenetics-among-formerly-pregnant-women-in-the-netherlands-and-their-interest-in-pharmacogenetic-research
#17
Aizati N A Daud, Eefke L Bergsma, Jorieke E H Bergman, Hermien E K De Walle, Wilhelmina S Kerstjens-Frederikse, Bert J Bijker, Eelko Hak, Bob Wilffert
BACKGROUND: Pharmacogenetics is an emerging field currently being implemented to improve safety when prescribing drugs. While many women who take drugs during pregnancy would likely benefit from such personalized drug therapy, data is lacking on the awareness towards pharmacogenetics among women. We aim to determine the level of knowledge and acceptance of formerly pregnant women in the Netherlands regarding pharmacogenetics and its implementation, and their interest in pharmacogenetic research...
April 14, 2017: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/28408360/technology-use-and-preferences-for-mobile-phone-based-hiv-prevention-and-treatment-among-black-young-men-who-have-sex-with-men-exploratory-research
#18
Ian W Holloway, Terrell Ja Winder, Charles Herbert Lea, Diane Tan, Donte Boyd, David Novak
BACKGROUND: Black young men who have sex with men (BYMSM) experience higher human immunodeficiency virus (HIV) incidence than their white and Latino counterparts. OBJECTIVE: The aim of our study was to understand BYMSM's preferences for mobile phone-based HIV prevention and treatment in order to inform culturally tailored interventions to reduce the spread of HIV and improve HIV treatment outcomes in this population. METHODS: Qualitative focus groups (N=6) with BYMSM aged 18-29 years (N=41; 46%, 19/41 HIV-positive) were conducted to elucidate their preferences for the design and delivery of mobile phone-based HIV prevention and treatment interventions...
April 13, 2017: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/28408005/balancing-the-optimal-and-the-feasible-a-practical-guide-for-setting-up-patient-registries-for-the-collection-of-real-world-data-for-health-care-decision-making-based-on-dutch-experiences
#19
Saskia de Groot, Naomi van der Linden, Margreet G Franken, Hedwig M Blommestein, Brenda Leeneman, Ellen van Rooijen, J J M Koos van der Hoeven, Michel W Wouters, Hans M Westgeest, Carin A Uyl-de Groot
OBJECTIVES: The aim of this article was to provide practical guidance in setting up patient registries to facilitate real-world data collection for health care decision making. METHODS: This guidance was based on our experiences and involvement in setting up patient registries in oncology in the Netherlands. All aspects were structured according to 1) mission and goals ("the Why"), 2) stakeholders and funding ("the Who"), 3) type and content ("the What"), and 4) identification and recruitment of patients, data handling, and pharmacovigilance ("the How")...
April 2017: Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research
https://www.readbyqxmd.com/read/28406392/the-right-to-a-human-in-the-loop-political-constructions-of-computer-automation-and-personhood
#20
Meg Leta Jones
Contributing to recent scholarship on the governance of algorithms, this article explores the role of dignity in data protection law addressing automated decision-making. Delving into the historical roots of contemporary disputes between information societies, notably European Union and Council of Europe countries and the United States, reveals that the regulation of algorithms has a rich, culturally entrenched, politically relevant backstory. The article compares the making of law concerning data protection and privacy, focusing on the role automation has played in the two regimes...
April 2017: Social Studies of Science
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