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https://www.readbyqxmd.com/read/28208803/barriers-to-seeking-help-for-skin-cancer-detection-in-rural-australia
#1
Kate M Fennell, Kimberley Martin, Carlene J Wilson, Camilla Trenerry, Greg Sharplin, James Dollman
This study explores rural South Australians' barriers to help-seeking for skin cancer detection. A total of 201 randomly selected rural adults (18-94 years, 66% female) were presented with a skin-cancer-related scenario via telephone and were asked the extent to which various barriers would impede their help-seeking, based on an amended version of the Barriers to Help-Seeking Scale. Older (≥63 years) and less educated participants endorsed barriers more strongly than their younger, more educated counterparts in the following domains; "Concrete barriers and distrust of caregivers", "Emotional control", "Minimising problem and Normalisation", "Need for control and self-reliance" (every domain other than "Privacy")...
February 13, 2017: Journal of Clinical Medicine
https://www.readbyqxmd.com/read/28208593/context-sensing-system-analysis-for-privacy-preservation-based-on-game-theory
#2
Shengling Wang, Luyun Li, Weiman Sun, Junqi Guo, Rongfang Bie, Kai Lin
In a context sensing system in which a sensor-equipped mobile phone runs an unreliable context-aware application, the application can infer the user's contexts, based on which it provides personalized services. However, the application may sell the user's contexts to some malicious adversaries to earn extra profits, which will hinder its widespread use. In the real world, the actions of the user, the application and the adversary in the context sensing system affect each other, so that their payoffs are constrained mutually...
February 10, 2017: Sensors
https://www.readbyqxmd.com/read/28208389/effect-of-curvature-on-cholesteric-liquid-crystals-in-toroidal-geometries
#3
Ana R Fialho, Nelson R Bernardino, Nuno M Silvestre, Margarida M Telo da Gama
The confinement of liquid crystals inside curved geometries leads to exotic structures, with applications ranging from biosensors to optical switches and privacy windows. Here we study how curvature affects the alignment of a cholesteric liquid crystal. We model the system on the mesoscale using the Landau-de Gennes model. Our study was performed in three stages, analyzing different curved geometries from cylindrical walls and pores, to toroidal domains, in order to isolate the curvature effects. Our results show that the stresses introduced by the curvature influence the orientation of the liquid crystal molecules, and cause distortions in the natural periodicity of the cholesteric that depend on the radius of curvature, on the pitch, and on the dimensions of the system...
January 2017: Physical Review. E
https://www.readbyqxmd.com/read/28207365/using-social-media-as-a-research-recruitment-tool-ethical-issues-and-recommendations
#4
Luke Gelinas, Robin Pierce, Sabune Winkler, I Glenn Cohen, Holly Fernandez Lynch, Barbara E Bierer
The use of social media as a recruitment tool for research with humans is increasing, and likely to continue to grow. Despite this, to date there has been no specific regulatory guidance and there has been little in the bioethics literature to guide investigators and institutional review boards (IRBs) faced with navigating the ethical issues such use raises. We begin to fill this gap by first defending a nonexceptionalist methodology for assessing social media recruitment; second, examining respect for privacy and investigator transparency as key norms governing social media recruitment; and, finally, analyzing three relatively novel aspects of social media recruitment: (i) the ethical significance of compliance with website "terms of use"; (ii) the ethics of recruiting from the online networks of research participants; and (iii) the ethical implications of online communication from and between participants...
March 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/28190457/public-attitudes-toward-consent-and-data-sharing-in-biobank-research-a-large-multi-site-experimental-survey-in-the-us
#5
Saskia C Sanderson, Kyle B Brothers, Nathaniel D Mercaldo, Ellen Wright Clayton, Armand H Matheny Antommaria, Sharon A Aufox, Murray H Brilliant, Diego Campos, David S Carrell, John Connolly, Pat Conway, Stephanie M Fullerton, Nanibaa' A Garrison, Carol R Horowitz, Gail P Jarvik, David Kaufman, Terrie E Kitchner, Rongling Li, Evette J Ludman, Catherine A McCarty, Jennifer B McCormick, Valerie D McManus, Melanie F Myers, Aaron Scrol, Janet L Williams, Martha J Shrubsole, Jonathan S Schildcrout, Maureen E Smith, Ingrid A Holm
Individuals participating in biobanks and other large research projects are increasingly asked to provide broad consent for open-ended research use and widespread sharing of their biosamples and data. We assessed willingness to participate in a biobank using different consent and data sharing models, hypothesizing that willingness would be higher under more restrictive scenarios. Perceived benefits, concerns, and information needs were also assessed. In this experimental survey, individuals from 11 US healthcare systems in the Electronic Medical Records and Genomics (eMERGE) Network were randomly allocated to one of three hypothetical scenarios: tiered consent and controlled data sharing; broad consent and controlled data sharing; or broad consent and open data sharing...
February 4, 2017: American Journal of Human Genetics
https://www.readbyqxmd.com/read/28188012/-end-of-life-care-difficulties-in-intensive-care-units-the-nurses-perspective
#6
Juan Francisco Velarde-García, Raquel Luengo-González, Raquel González-Hervías, Sergio González-Cervantes, Beatriz Álvarez-Embarba, Domingo Palacios-Ceña
OBJECTIVE: To describe the difficulties perceived by nursing staff in the delivery of end-of-life care to critically ill patients within intensive care units (ICU). METHOD: A descriptive phenomenological qualitative study was performed. A purposeful and snowball sampling of nursing staff with at least 1 year's previous experience working in an ICU was conducted. Twenty-two participants were enrolled. Data collection strategies included in-depth unstructured and semi-structured interviews and researcher's field notes...
February 7, 2017: Gaceta Sanitaria
https://www.readbyqxmd.com/read/28186611/-ethical-issues-of-oocyte-donation
#7
Yanjin Liu, Libai Cai
The birth and development of oocyte donation technology have brought hope for women with poor ovarian reserve and repeated failure for in vitro fertilization, as well as for those with chromosomal abnormalities, premature ovarian failure, or at perimenopausal or menopausal stages. It has not only preserved their reproductive right, but also stabilized their families and increased social harmony. However, this technology does not only involve infertile couples themselves, but also social and ethical issues concerning their families and the society...
February 10, 2017: Zhonghua Yi Xue Yi Chuan Xue za Zhi, Zhonghua Yixue Yichuanxue Zazhi, Chinese Journal of Medical Genetics
https://www.readbyqxmd.com/read/28186028/deriving-a-set-of-privacy-specific-heuristics-for-the-assessment-of-phrs-personal-health-records
#8
Riccardo F Furano, Andre Kushniruk, Jeff Barnett
With the emergence of personal health record (PHR) platforms becoming more widely available, this research focused on the development of privacy heuristics to assess PHRs regarding privacy. Existing sets of heuristics are typically not application specific and do not address patient-centric privacy as a main concern prior to undergoing PHR procurement. A set of privacy specific heuristics were developed based on a scoping review of the literature. An internet-based commercially available, vendor specific PHR application was evaluated using the derived set of privacy specific heuristics...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28186026/enabling-adolescent-electronic-access-to-personal-health-information
#9
Cassandra Frazer, Fraser Ratchford, Joan Roch
In Canada, every individual has a right to their personal health information (PHI). As the use of consumer digital health solutions expands across Canada it is evident that a better understanding of the application of this right to individuals under the age of majority is needed. Research was undertaken between December 2015 and March 2016 which focused on various aspects of adolescent electronic access to PHI. The study included a privacy legal framework review; an environmental scan and literature review; a pan-Canadian survey and focus groups...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28185723/hiv-testing-preferences-among-msm-members-of-an-lgbt-community-organization-in-los-angeles
#10
Alexandra Medline, Joseph Daniels, Robert Marlin, Sean Young, Greg Wilson, Emily Huang, Jeffrey D Klausner
Lack of regular HIV testing puts African American, Asian, and Latino men who have sex with men (MSM) at high risk for HIV infection. Rapid self-testing may be an effective option for these men. We explored acceptability, preferences, and usability of HIV self-test kits with MSM of color using semi-structured focus groups to discuss HIV testing history, reasons for testing, and self-testing preferences. Participants (n = 21) lived in Los Angeles, identified as MSM of color, and were 18-35 years of age. Discussions were audio-recorded, transcribed, and analyzed using grounded theory...
January 12, 2017: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/28182294/is-there-a-right-to-the-death-of-the-foetus
#11
Eric Mathison, Jeremy Davis
At some point in the future - perhaps within the next few decades - it will be possible for foetuses to develop completely outside the womb. Ectogenesis, as this technology is called, raises substantial issues for the abortion debate. One such issue is that it will become possible for a woman to have an abortion, in the sense of having the foetus removed from her body, but for the foetus to be kept alive. We argue that while there is a right to an abortion, there are reasons to doubt that there is a right to the death of the foetus...
February 9, 2017: Bioethics
https://www.readbyqxmd.com/read/28179693/perceptions-of-rural-women-about-contraceptive-usage-in-district-khushab-punjab
#12
Aqeela Tabassum, Yasir Nawaz Manj, Tahira Rehman Gunjial, Salma Nazir
OBJECTIVE: To identify the perceptions of rural women about modern contraceptive methods and to ascertain the psycho-social and economic attitude of women about family planning methods. METHODS: This cross-sectional study was conducted at the University of Sargodha, Sargodha, Pakistan, from December 2014 to March 2015, and comprised married women. The sample was selected using multistage sampling technique through Fitzgibbon table. They were interviewed regarding use of family planning methods...
December 2016: JPMA. the Journal of the Pakistan Medical Association
https://www.readbyqxmd.com/read/28178727/applying-ethical-and-legal-principles-to-new-technology-the-university-of-auckland-faculty-of-medical-and-health-sciences-policy-taking-and-sharing-images-of-patients
#13
Monique Jonas, Phillipa Malpas, Kate Kersey, Alan Merry, Warwick Bagg
AIMS: To develop a policy governing the taking and sharing of photographic and radiological images by medical students. METHODS: The Rules of the Health Information Privacy Code 1994 and the Code of Health and Disability Services Consumers' Rights were applied to the taking, storing and sharing of photographic and radiological images by medical students. Stakeholders, including clinicians, medical students, lawyers at district health boards in the Auckland region, the Office of the Privacy Commissioner and the Health and Disability Commissioner were consulted and their recommendations incorporated...
January 27, 2017: New Zealand Medical Journal
https://www.readbyqxmd.com/read/28178214/enabling-secure-xmpp-communications-in-federated-iot-clouds-through-xep-0027-and-saml-sasl-sso
#14
Antonio Celesti, Maria Fazio, Massimo Villari
Nowadays, in the panorama of Internet of Things (IoT), finding a right compromise between interactivity and security is not trivial at all. Currently, most of pervasive communication technologies are designed to work locally. As a consequence, the development of large-scale Internet services and applications is not so easy for IoT Cloud providers. The main issue is that both IoT architectures and services have started as simple but they are becoming more and more complex. Consequently, the web service technology is often inappropriate...
February 7, 2017: Sensors
https://www.readbyqxmd.com/read/28178197/rippas-a-ring-based-privacy-preserving-aggregation-scheme-in-wireless-sensor-networks
#15
Kejia Zhang, Qilong Han, Zhipeng Cai, Guisheng Yin
Recently, data privacy in wireless sensor networks (WSNs) has been paid increased attention. The characteristics of WSNs determine that users' queries are mainly aggregation queries. In this paper, the problem of processing aggregation queries in WSNs with data privacy preservation is investigated. A Ring-based Privacy-Preserving Aggregation Scheme (RiPPAS) is proposed. RiPPAS adopts ring structure to perform aggregation. It uses pseudonym mechanism for anonymous communication and uses homomorphic encryption technique to add noise to the data easily to be disclosed...
February 7, 2017: Sensors
https://www.readbyqxmd.com/read/28176926/parental-opinions-regarding-an-opt-out-consent-process-for-inpatient-pediatric-prospective-observational-research-in-the-us
#16
Danielle M Fernandes, Allison P Roland, Marilyn C Morris
OBJECTIVE: To explore parental opinions regarding opt-out consent for inpatient pediatric prospective observational research in the US. STUDY DESIGN: A series of handouts describing hypothetical observational research studies with opt-out consent were reviewed by parents of hospitalized children. A verbal survey explored parental opinions about the proposed consent process. RESULTS: A total of 166 parents reviewed the handout and completed the survey...
2017: Pragmatic and Observational Research
https://www.readbyqxmd.com/read/28173720/offering-architects-insights-into-experiences-of-living-with-dementia-a-case-study-on-orientation-in-space-time-and-identity
#17
Iris Van Steenwinkel, Chantal Van Audenhove, Ann Heylighen
Due to memory loss, people with dementia are increasingly disorientated in space, time, and identity, which causes profound experiences of insecurity, anxiety, and homesickness. In the case study presented in this article, we explored how architecture can support people in coping with this challenge. We took a novel approach to offer architects insights into experiences of living with dementia. Starting from a critical realist and constructionist approach, we combined ethnographic techniques with an architectural analysis...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28171783/attitudes-regarding-the-national-forensic-dna-database-survey-data-from-the-general-public-prison-inmates-and-prosecutors-offices-in-the-republic-of-serbia
#18
Smilja Teodorović, Dragan Mijović, Una Radovanović Nenadić, Marina Savić
Worldwide, the establishment of national forensic DNA databases has transformed personal identification in the criminal justice system over the past two decades. It has also stimulated much debate centering on ethical issues, human rights, individual privacy, lack of safeguards and other standards. Therefore, a balance between effectiveness and intrusiveness of a national DNA repository is an imperative and needs to be achieved through a suitable legal framework. On its path to the European Union (EU), the Republic of Serbia is required to harmonize its national policies and legislation with the EU...
January 21, 2017: Forensic Science International. Genetics
https://www.readbyqxmd.com/read/28168059/quality-of-breast-cancer-information-on-the-internet-by-african-organizations-an-appraisal
#19
REVIEW
Cynthia Pomaa Akuoko
Objective. The aim of this study was to appraise the quality of information on BC available at websites run by organizations in Africa. Methods. Three searches were conducted using Google search engine to generate a list of websites. The identified websites were assessed using European Commission (EC) quality criteria for health-related websites, which comprises different assessment areas including, completeness, transparency and honesty, authority, privacy and data protection, updating of information, accountability, and accessibility...
2017: International Journal of Breast Cancer
https://www.readbyqxmd.com/read/28166481/the-benefits-risks-and-costs-of-privacy-patient-preferences-and-willingness-to-pay
#20
David E Trachtenbarg, Carl Asche, Shweta Ramsahai, Joy Duling, Jinma Ren
OBJECTIVE: Multiple surveys show patients want medical privacy, however, there are costs to maintain privacy. There are also risks if information is not shared. A review of previous surveys found most surveys asked questions about patient's privacy concerns and willingness to share their medical information. We found only one study that asked about sharing medical information for better care and no survey that asked patients about the risk, cost or comparison between medical privacy and privacy in other areas...
February 6, 2017: Current Medical Research and Opinion
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