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Distress in dementia care

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https://www.readbyqxmd.com/read/29762315/effectiveness-of-psychosocial-interventions-on-the-psychological-health-and-emotional-well-being-of-family-carers-of-people-with-dementia-following-residential-care-placement-a-systematic-review
#1
Deborah Brooks, Elaine Fielding, Elizabeth Beattie, Helen Edwards, Sonia Hines
OBJECTIVE: To identify, appraise and synthesize existing evidence regarding the effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia who have moved into residential care. INTRODUCTION: Many carers experience stress, guilt, grief and depression following placement of a relative with dementia into residential care. Psychosocial interventions to support family carers may help to improve psychological health and emotional well-being; however, evidence for such interventions delivered to family carers following placement has yet to be appraised and synthesized...
May 2018: JBI Database of Systematic Reviews and Implementation Reports
https://www.readbyqxmd.com/read/29747583/effect-of-the-wecareadvisor%C3%A2-on-family-caregiver-outcomes-in-dementia-a-pilot-randomized-controlled-trial
#2
Helen C Kales, Laura N Gitlin, Barbara Stanislawski, H Myra Kim, Katherine Marx, Molly Turnwald, Claire Chiang, Constantine G Lyketsos
BACKGROUND: Behavioral and psychological symptoms of dementia (BPSD) are universal and associated with multiple negative outcomes. This pilot randomized controlled trial (RCT) evaluated the effect of using the WeCareAdvisor, an innovative web-based tool developed to enable family caregivers to assess, manage, and track BPSD. METHODS: This RCT enrolled 57 dementia family caregivers from community and clinical settings in Ann Arbor, Michigan and Baltimore, Maryland...
May 10, 2018: BMC Geriatrics
https://www.readbyqxmd.com/read/29717622/a-cross-sectional-study-of-family-caregiver-burden-and-psychological-distress-linked-to-frailty-and-functional-dependency-of-a-relative-with-advanced-dementia
#3
Wilson Abreu, Debbie Tolson, Graham A Jackson, Nilza Costa
Psychological health of caregivers of people with dementia is a major public concern. This study sought to determine the relationship between caregiver burden, psychological distress, frailty and functional dependency of a relative with advanced dementia. Persons with dementia and their caregivers (102 dyads) participated in this Portuguese community based cross-sectional study. Data were collected using the Clinical Dementia Rating Scale, a sociodemographic questionnaire, the Zarit Burden Interview, the Brief Symptoms Inventory and the Edmonton Frail Scale...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29698251/effects-of-the-tailored-activity-program-in-brazil-tap-br-for-persons-with-dementia-a-randomized-pilot-trial
#4
Marcia M P C Novelli, Styfany C B Machado, Gabriela B Lima, Lais Cantatore, Barbara P Sena, Renata S Rodrigues, Camila I B Rodrigues, Mariana B F Canon, Catherine V Piersol, Ricardo Nitrini, Monica S Yassuda, Laura N Gitlin
OBJECTIVES: The objectives of this study were to evaluate the effects of the Tailored Activity Program-Brazilian version (TAP-BR), on behavioral symptoms and the quality of life (QOL) in persons with dementia, as well as on their caregivers, and on caregiver burden. MATERIALS AND METHODS: A 2-group randomized controlled trial with 30 dyads was conducted: the experimental group (n=15) received TAP-BR over 4 months, and a wait-list control group (n=15) received usual care...
April 25, 2018: Alzheimer Disease and Associated Disorders
https://www.readbyqxmd.com/read/29688046/exploring-good-practice-in-life-story-work-with-people-with-dementia-the-findings-of-a-qualitative-study-looking-at-the-multiple-views-of-stakeholders
#5
Kate Gridley, Yvonne Birks, Gillian Parker
Introduction Despite growing international interest in life story work as a tool for person-centred dementia care, there is little agreement on what constitutes good practice and little evidence from the perspectives of people with dementia or their family carers. Design and methods This paper reports the findings from the qualitative element of a larger study looking at the feasibility of evaluating life story work. Ten focus groups were held with 73 participants: four groups of people with dementia (25 participants); three with family carers (21 participants); and three with staff, professionals and volunteers with experience of life story work (27 participants)...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29649909/-music-memory-and-improved-swallowing-in-advanced-dementia
#6
Dan Cohen, Stephen G Post, Angela Lo, Robin Lombardo, Brandon Pfeffer
Background Dysphagia and difficulty with eating affects a significant portion of individuals with advanced dementia. Such problems with oral intake can have serious health consequences including mealtime distress, dehydration and malnutrition, aspiration, reduced quality of life, and increased mortality risk. Design We present the first data indicating that "Music & Memory" interventions improve swallowing in individuals with advanced dementia, thereby making oral feeding easier and potentially diminishing reliance on PEG...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29623525/what-are-the-caregivers-needs-on-dementia-care-an-integrated-qualitative-and-quantitative-assessment
#7
Ilaria Cova, N Travi, L Maggiore, V Cucumo, C Mariani, S Pomati
Dementia is one of the main causes of disability later in life. Interventions in support of patients with dementia aim at granting the highest level of independence in activities of daily living and at delivering the required facilities; formal and informal caregivers represent the interface between patients and health services. The aims of our study were to assess caregivers' perceived needs and to relate them to their own socio-cultural features and to patients' clinical characteristics. During three consecutive months, 50 caregivers of patients with dementia were interviewed about their needs in the assistance of subjects with dementia by means of three structured questionnaires (Caregiver Needs Assessment [CNA], Zarit Burden Inventory [ZBI], Neuropsychiatric Inventory-Questionnaire [NPI-Q]) and of two open-ended questions...
April 5, 2018: Neurological Sciences
https://www.readbyqxmd.com/read/29603347/the-experiences-and-preparedness-of-family-carers-for-best-interest-decision-making-of-a-relative-living-with-advanced-dementia-a-qualitative-study
#8
Gillian Carter, Dorry Mclaughlin, W George Kernohan, Peter Hudson, Mike Clarke, Katherine Froggatt, Peter Passmore, Kevin Brazil
AIM: To explore the experience and the preparedness of family carers in their caregiving role as best interest decision-makers of a relative living with advanced dementia. BACKGROUND: The prevalence of dementia is a global issue. The role of being a carer of a relative living with dementia does not necessarily lessen once they are admitted to a nursing home. Best interest decision-making including end-of-life care decisions need to be made and reaching these choices can be challenging...
March 30, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29579061/effects-of-cognitive-impairment-and-functional-limitation-on-depressive-symptoms-among-community-dwelling-older-korean-immigrants-in-the-u-s
#9
Bum Jung Kim, Lin Liu, Christabel Cheung, Joonhee Ahn
The present study examined the effects of cognitive impairment and functional limitation on depressive symptoms among older Korean American immigrants. The sample was drawn from a cross-sectional survey of 210 older Korean immigrants (aged 65 years or older) in Los Angeles County. Based on robust hierarchical regression, the study found that cognitive ability and functional status were significant explanatory factors related to depressive symptoms among older Korean immigrants. In addition, the interaction of instrumental activities of daily living (IADL) and cognitive function (MMSE) had a significant effect on depressive symptoms...
2018: PloS One
https://www.readbyqxmd.com/read/29575109/patterns-of-carer-distress-over-time-in-mild-dementia
#10
Ellen J Svendsboe, Ingelin Testad, Toril Terum, Assmus Jörg, Anne Corbett, Dag Aarsland, Arvid Rongve
OBJECTIVE: To study the level of carer reported distress in mild dementia, over a 3-year period. METHODS: This study is part of the Norwegian DemVest-study and utilises data from carers of people with mild dementia (n = 223). Those diagnosed with dementia with Lewy bodies (DLB, n = 63) and Alzheimer's disease (AD, n = 97) were included together with other dementia types (n = 63). The Relatives' Stress Scale was used to assess the level of reported distress in carers...
March 25, 2018: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29557193/managing-behavioural-and-psychological-symptoms-in-community-dwelling-older-people-with-dementia-2-a-systematic-review-of-qualitative-studies
#11
Andreas Braun, Daksha P Trivedi, Angela Dickinson, Laura Hamilton, Claire Goodman, Heather Gage, Kunle Ashaye, Steve Iliffe, Jill Manthorpe
Background People living with dementia often develop distressing behavioural and psychological symptoms (BPSD) that can affect their quality of life and the capacity of family carers and staff providing support at home. This systematic review of qualitative studies considers the views and experiences of people living with dementia and care providers about these symptoms and what helps to reduce their impact. Methods The two-stage review involved (a) An initial mapping of the literature to understand the range of BPSD, and how it is operationalised by different groups, to develop a search strategy; (b) A search of electronic databases from January 2000 to March 2015, updated in October 2016...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29557183/managing-behavioural-and-psychological-symptoms-in-community-dwelling-older-people-with-dementia-1-a-systematic-review-of-the-effectiveness-of-interventions
#12
Daksha P Trivedi, Andreas Braun, Angela Dickinson, Heather Gage, Laura Hamilton, Claire Goodman, Kunle Ashaye, Steve Iliffe, Jill Manthorpe
Background Two-thirds of people living with dementia live at home in the UK and many experience distressing behavioural and psychological symptoms. This systematic review evaluates the effectiveness of non-pharmacological interventions for behavioural and psychological symptoms among community-dwelling people living with dementia. Methods This two-stage review undertook an initial mapping of the literature followed by a systematic review of relevant randomised controlled trials. We searched electronic databases for pertinent studies reporting outcomes from interventions from January 2000 to March 2015 and updated searches in October 2016...
January 1, 2018: Dementia
https://www.readbyqxmd.com/read/29498777/emotional-distress-with-dementia-a-systematic-review-using-corpus-based-analysis-and-meta-ethnography
#13
REVIEW
Stephanie Petty, Kevin Harvey, Amanda Griffiths, Donna Maria Coleston, Tom Dening
OBJECTIVE: More understanding is needed about the emotional experiences of dementia from the perspective of the individual. This understanding can then inform the provision of health care to meet individual needs. This systematic review aimed to present all available descriptions of emotional distress and explanations for emotional distress experienced by individuals with dementia, articulated personally and by others. METHODS: A systematic mixed-method review identified literature that was screened and quality appraised...
May 2018: International Journal of Geriatric Psychiatry
https://www.readbyqxmd.com/read/29470586/implications-of-the-care-act-for-latino-caregivers
#14
Billy A Caceres, Adriana Perez
The Caregiver Advise, Record, Enable (CARE) Act has the potential to make a positive impact in the lives of Latino older adults and their caregivers. As Latino individuals are the fastest growing older adult population, the number of Latino families and caregivers is also expected to grow, particularly among those providing care for someone with Alzheimer's disease or other dementias. Caregiving has been considered a culturally embedded value among Latino individuals. Although few studies have focused on caregiving in this population, those that exist suggest that Latino caregivers struggle to find bilingual and bicultural support and information and show higher levels of distress and health disparities...
March 1, 2018: Journal of Gerontological Nursing
https://www.readbyqxmd.com/read/29381670/predictors-of-caregiver-distress-in-the-community-setting-using-the-home-care-version-of-the-resident-assessment-instrument
#15
Tim Pauley, Byung Wook Chang, Anne Wojtak, Gayle Seddon, John Hirdes
PURPOSE OF STUDY: The purpose of this study was to identify factors predictive of new onset and improved caregiver distress among informal caregivers providing assistance for clients receiving home care. PRIMARY PRACTICE SETTINGS: Home care. METHODOLOGY AND SAMPLE: The sample included 323,409 clients receiving home care from a Community Care Access Centre between March 2002 and March 2015 for whom data were available from two subsequent Resident Assessment Instrument-Home Care (RAI-HC) assessments...
March 2018: Professional Case Management
https://www.readbyqxmd.com/read/29356339/caregiver-active-participation-in-psychoeducational-intervention-improved-caregiving-skills-and-competency
#16
Sai-Hung Tang, Oi-I Chio, Ling-Hui Chang, Hui-Fen Mao, Li-Hua Chen, Ping-Keung Yip, Jen-Ping Hwang
AIM: To determine whether giving dementia caregivers active psychoeducational intervention is more efficacious than passive intervention for improving their caregiving skills and reducing their caregiving burden. METHODS: This study was a prospective, single-blinded, controlled trial with 43 caregiver/person-with-dementia dyads. The dyads were randomly assigned to the active psychoeducational intervention (AP) group, which used role-play, discussion, and development of problem-solving capacity to build up their caregiving skills and competence, or the passive psychoeducational intervention (PP) group, which gave caregivers educational materials on common caregiving strategies...
January 22, 2018: Geriatrics & Gerontology International
https://www.readbyqxmd.com/read/29351571/the-barriers-and-facilitators-for-recognising-distress-in-people-with-severe-dementia-on-general-hospital-wards
#17
G J E Crowther, C A Brennan, M I Bennett
Introduction: psychological symptoms and delirium are common, but underreported in people with dementia on hospital wards. Unrecognised and untreated symptoms can manifest as distress. Identifying distress accurately therefore could act as a trigger for better investigation and treatment of the underlying causes. The challenges faced by healthcare professionals to recognise and report distress are poorly understood. Methods: semi-structured interviews with a purposive sample of 25 healthcare professionals working with older people in general hospitals were conducted...
January 17, 2018: Age and Ageing
https://www.readbyqxmd.com/read/29322577/i-just-can-t-please-them-all-and-stay-sane-adult-child-caregivers-experiences-of-family-dynamics-in-care-giving-for-a-parent-with-dementia-in-australia
#18
Gemma Tatangelo, Marita McCabe, Ashley Macleod, Anastasia Konis
Family caregivers of people with dementia who live within the community often experience stress and poor quality of life due to their care-giving role. While there are many factors that affect this, one influential factor is the family context. This study focussed on adult child caregivers. It examined the specific ways that family dynamics contribute to adult child caregivers' distress in the context of caring for a parent with dementia. Semi-structured interviews were conducted with 17 participants who were adult child primary caregivers for a parent with dementia who was living within the community...
May 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29306500/nurses-perspectives-on-whether-medical-aid-in-dying-should-be-accessible-to-incompetent-patients-with-dementia-findings-from-a-survey-conducted-in-quebec-canada
#19
G Bravo, C Rodrigue, M Arcand, J Downie, M-F Dubois, S Kaasalaine, C M Hertogh, S Pautex, L Van den Block
We conducted a survey in a random sample of 514 Quebec nurses caring for the elderly to assess their attitudes towards extending medical aid in dying to incompetent patients and to explore associated factors. Attitudes were measured using clinical vignettes featuring a hypothetical patient with Alzheimer disease. Vignettes varied according to the stage of the disease (advanced or terminal) and the presence or absence of a written request. Of the 291 respondents, 83.5% agreed with the current legislation that allows physicians to administer aid in dying to competent patients who are at the end of life and suffer unbearably...
January 3, 2018: Geriatric Nursing
https://www.readbyqxmd.com/read/29212555/study-partners-should-be-required-in-preclinical-alzheimer-s-disease-trials
#20
REVIEW
Joshua D Grill, Jason Karlawish
BACKGROUND: In an effort to intervene earlier in Alzheimer's disease (AD), clinical trials are testing promising candidate therapies in preclinical disease. Preclinical AD trial participants are cognitively normal, functionally independent, and autonomous decision-makers. Yet, like AD dementia trials, preclinical trials require dual enrollment of a participant and a knowledgeable informant, or study partner. MAIN TEXT: The requirement of dyadic enrollment is a barrier to recruitment and may present unique ethical challenges...
December 6, 2017: Alzheimer's Research & Therapy
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