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https://www.readbyqxmd.com/read/27889691/development-of-a-culturally-competent-service-to-improve-academic-functioning-for-latino-survivors-of-acute-lymphoblastic-leukemia-methodological-considerations
#1
Laura Bava, Alexis Johns, David R Freyer, Kathleen Ruccione
Many survivors of childhood acute lymphoblastic leukemia (ALL) develop neurocognitive deficits that compromise academic functioning, especially in the presence of sociodemographic risk factors. The extent to which these risk factors coexist for Latino ALL survivors is not well described, but with shifts in U.S. demographics and improved survival in ALL, culturally competent interventions are needed. The Achieving Best Cognitive Successes after Cancer service was designed and implemented by a team representing nursing, medicine, psychology, and social work...
November 25, 2016: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/27846827/nurses-perceptions-acceptance-and-use-of-a-novel-in-room-pediatric-icu-technology-testing-an-expanded-technology-acceptance-model
#2
Richard J Holden, Onur Asan, Erica M Wozniak, Kathryn E Flynn, Matthew C Scanlon
BACKGROUND: The value of health information technology (IT) ultimately depends on end users accepting and appropriately using it for patient care. This study examined pediatric intensive care unit nurses' perceptions, acceptance, and use of a novel health IT, the Large Customizable Interactive Monitor. METHODS: An expanded technology acceptance model was tested by applying stepwise linear regression to data from a standardized survey of 167 nurses. RESULTS: Nurses reported low-moderate ratings of the novel IT's ease of use and low to very low ratings of usefulness, social influence, and training...
November 15, 2016: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/27824801/parent-perceptions-of-family-social-supports-in-families-with-children-with-epilepsy
#3
Kim A Decker, Wendy R Miller, Janice M Buelow
PURPOSE AND BACKGROUND: When a child is diagnosed with epilepsy, not only has the child's life been disrupted but also the family's sense of normalcy. Although there is considerable literature discussing family concerns and social support issues in families with chronically ill children, a major gap lies in the exploration of how the specifics of childhood epilepsy affect parents and family operations. The purpose of this study was to identify psychosocial care needs of parents of children with epilepsy...
December 2016: Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses
https://www.readbyqxmd.com/read/27803894/promotion-of-the-transition-of-adult-patients-with-childhood-onset-chronic-diseases-among-pediatricians-in-japan
#4
Yuko Ishizaki, Hirohiko Higashino, Kazunari Kaneko
The transition of adult patients with childhood-onset chronic diseases (APCCD) from pediatric to adult health-care systems has recently received worldwide attention. However, Japan is lagging behind European countries and North America as this concept of health-care transition was introduced only 10 years ago. In Japan, before the introduction of this concept, APCCD were referred to as "carryover patients," who were often considered a burden in pediatric practice. In the late 1990s, groups composed of pediatric nephrologists, developmental and behavioral pediatricians, pediatric nurses, and special education teachers researching the quality of life of adult patients with chronic kidney disease began to discuss the physical and psychosocial problems of APCCD...
2016: Frontiers in Pediatrics
https://www.readbyqxmd.com/read/27802949/clinical-nurse-participation-at-family-conferences-in-the-pediatric-intensive-care-unit
#5
Anne C Watson, Tessie W October
BACKGROUND: Clinical nurses attend family conferences in the intensive care unit, but their role during these meetings is not yet fully understood. OBJECTIVES: To assess perceived and observed contributions of the clinical nurse during family conferences. METHODS: Prospective cross-sectional survey and review of 40 audio-recorded family conferences conducted in the 44-bed pediatric intensive care unit of an urban pediatric hospital. RESULTS: Survey responses from 47 nurses were examined...
November 2016: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
https://www.readbyqxmd.com/read/27736871/determinants-of-treatment-abandonment-in-childhood-cancer-results-from-a-global-survey
#6
Paola Friedrich, Catherine G Lam, Geetinder Kaur, Elena Itriago, Raul C Ribeiro, Ramandeep S Arora
BACKGROUND: Understanding and addressing treatment abandonment (TxA) is crucial for bridging the pediatric cancer survival gap between high-income (HIC) and low-and middle-income countries (LMC). In childhood cancer, TxA is defined as failure to start or complete curative cancer therapy and known to be a complex phenomenon. With rising interest on causes and consequences of TxA in LMC, this study aimed to establish the lay-of-the-land regarding determinants of TxA globally, perform and promote comparative research, and raise awareness on this subject...
2016: PloS One
https://www.readbyqxmd.com/read/27666266/health-care-system-for-children-and-adolescents-in-slovenia
#7
Mojca Juričič, Polonca Truden Dobrin, Sonja Paulin, Margareta Seher Zupančič, Nataša Bratina
Slovenia's health system is financed by a Bismarckian type of social insurance system with a single insurer for a statutory health insurance, which is fully regulated by national legislation and administered by the Health Insurance Institute of Slovenia. The health insurance system is mandatory, providing almost universal coverage (98.5% of the population). Children and adolescents have the right to compulsory health insurance as family members of an insured person until the end of their regular education. Slovenia has a lower number of physicians per capita than both the European Union and the Central and Eastern Europe countries...
October 2016: Journal of Pediatrics
https://www.readbyqxmd.com/read/27666264/the-russian-child-health-care-system
#8
Alexander Baranov, Leyla Namazova-Baranova, Valeriy Albitskiy, Natalia Ustinova, Rimma Terletskaya, Olga Komarova
We present a historical and analytical overview of the Russian child health care system describing strengths and challenges of the system. Main indicators of social environment and children's health, general demographics, and socioeconomic factors of Russia are described. The Russian health care system has preserved positive elements of the former Soviet model of pediatric care. However, beginning in 1991, it has been altered greatly in its funding and management. The child health care system is composed of a special network of outpatient and inpatient facilities...
October 2016: Journal of Pediatrics
https://www.readbyqxmd.com/read/27589599/pediatric-neurosurgery-telemedicine-clinics-a-model-to-provide-care-to-geographically-underserved-areas-of-the-united-states-and-its-territories
#9
Hector E James
OBJECTIVE The author describes the creation, structuring, and development of a pediatric neurosurgery telemedicine clinic (TMC) to provide telehealth across geographical, time, social, and cultural barriers. METHODS In July 2009 the University of Florida (UF) Division of Pediatric Neurosurgery received a request from the Southeast Georgia Health District (Area 9-2) to provide a TMC to meet regional needs. The Children's Medical Services (CMS) of the State of Georgia installed telemedicine equipment and site-to-site connectivity...
December 2016: Journal of Neurosurgery. Pediatrics
https://www.readbyqxmd.com/read/27468512/depression-anxiety-and-quality-of-life-in-children-and-adolescents-with-sickle-cell-disease
#10
REVIEW
J Kelly Graves, Christopher Hodge, Eufemia Jacob
The relationships among depression, anxiety, and quality of life were tested, as were the effects of age, gender, and pain frequency on these variables in children (n = 44) and adolescents (n = 31) with sickle cell disease. Participants completed the Revised Child Anxiety and Depression Scale (ROADS) and the Pediatric Quality of Life (PedQL Generic Model). The mean and standard deviation for summary RCADS scores for the majority of participants were below the clinical thresholds of T < 65, indicating low risk for depression (n = 65; 89...
May 2016: Pediatric Nursing
https://www.readbyqxmd.com/read/27462957/exhaust-all-measures-ethical-issues-in-pediatric-end-of-life-care
#11
Kara J Thieleman, Cara Wallace, Andrea N Cimino, Heidi A Rueda
The death of a child may have a profound impact on parents, family members, and health care providers who provided care for the child. Unique challenges are faced by parents of seriously ill children as they must serve as the legal authority for health care decisions of children under age 18, although the child's wishes must also be considered. Social workers must balance core social work values, bioethical values, and psychosocial issues presented by such situations. While studies have been conducted with physicians and nurses regarding ethical issues in pediatric end-of-life care settings, little is known about how social workers experience these conflicts...
July 2016: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/27454331/development-of-the-pedsql%C3%A2-epilepsy-module-focus-group-and-cognitive-interviews
#12
Katherine W Follansbee-Junger, Krista A Mann, Shanna M Guilfoyle, Diego A Morita, James W Varni, Avani C Modi
UNLABELLED: Youth with epilepsy have impaired health-related quality of life (HRQOL). Existing epilepsy-specific HRQOL measures are limited by not having parallel self- and parent-proxy versions, having a restricted age range, not being inclusive of children with developmental disabilities, or being too lengthy for use in a clinical setting. Generic HRQOL measures do not adequately capture the idiosyncrasies of epilepsy. The purpose of the present study was to develop items and content validity for the PedsQL™ Epilepsy Module...
September 2016: Epilepsy & Behavior: E&B
https://www.readbyqxmd.com/read/27430053/-child-grief-accompaniment-in-the-context-of-nursing
#13
Detlef Bongartz
No abstract text is available yet for this article.
May 2016: Kinderkrankenschwester: Organ der Sektion Kinderkrankenpflege
https://www.readbyqxmd.com/read/27384208/sleep-quality-of-life-and-mood-of-nursing-professionals-of-pediatric-intensive-care-units
#14
Priscilla Caetano Guerra, Nilton Ferraro Oliveira, Maria Teresa de Sande E Lemos Ramos Ascensão Terreri, Claudio Arnaldo Len
OBJECTIVE: To assess sleep, quality of life and mood of nursing professionals of pediatric intensive care units. METHOD: Quantitative, cross-sectional and descriptive study. Professionals grouped by morning, afternoon and evening shifts were assessed by means of the instruments: Morningness-Eveningness Questionnaire; Pittsburgh Sleep Quality Index; Epworth Sleepiness Scale; Generic questionnaire for the assessment of quality of life (SF-36); Beck Depression Inventory; Beck Anxiety Inventory; State-Trait Anxiety Inventory...
April 2016: Revista da Escola de Enfermagem da U S P
https://www.readbyqxmd.com/read/27280128/self-perceived-attitudes-toward-interprofessional-collaboration-and-interprofessional-education-among-different-health-care-professionals-in-pediatrics
#15
Sebastian Felix Nepomuk Bode, Marianne Giesler, Andrea Heinzmann, Marcus Krüger, Christine Straub
Interprofessional education (IPE) is the basis for interprofessional collaboration (IPC) in health care systems. It has beneficial effects for both patients and health care professionals. IPC is paramount for adequate care of patients and their families, especially in pediatrics. To determine the attitudes of medical doctors (n=121), nurses (n=15), psychologists (n=14), and social workers (n=19) toward IPE and IPC in a tertiary pediatric university teaching hospital, as well as the inpatient and outpatient settings in pediatrics, we developed a questionnaire with 21 items in four categories based on established questionnaires...
2016: GMS Journal for Medical Education
https://www.readbyqxmd.com/read/27234780/caring-difficulties-and-coping-strategies-for-pediatric-organ-transplant-recipients-and-their-families-during-dark-recovery-experiences-in-the-hospital-perspective-of-health-professionals-in-taiwan
#16
F-C Yang, F Jong Shih, M-H Hsieh, S-S Wang, F Jin Shih
BACKGROUND: This study explored caring difficulties and the reliable coping strategies for pediatric organ transplant recipients (POTR) and their families during their dark recovery experiences (DRE) in the hospital from the perspectives of Taiwan organ transplant health professionals (OTHP) in Taiwan. METHODS: A qualitative design was used with a purposive sample of OT surgeons (OTS) and nurses. Data were collected by face-to-face in-depth interviews and analyzed by content analysis...
April 2016: Transplantation Proceedings
https://www.readbyqxmd.com/read/27209053/-why-is-perinatal-and-infant-mortality-high-in-the-seine-saint-denis-district-a-consultation-with-healthcare-providers-using-a-delphi-process
#17
P Sauvegrain, R Rico-Berrocal, J Zeitlin
OBJECTIVE: In Seine-Saint-Denis, stillbirth and infant mortality rates are markedly higher than in other French departments. Before implementing an audit on stillbirths and neonatal deaths in 2014, we carried out a Delphi consensus process with healthcare providers to generate research hypotheses. MATERIALS AND METHODS: A Delphi process in 3 questionnaires was conducted in 2013 with 32 healthcare providers (pediatricians, obstetricians, general practitioners, midwives, social workers, psychologists, pediatric nurses) and user representatives...
May 18, 2016: Journal de Gynécologie, Obstétrique et Biologie de la Reproduction
https://www.readbyqxmd.com/read/27124994/team-based-approach-to-obesity-management
#18
Kayce Shealy, Sarah Wagner, Jennifer Clements, Ashley Pugh
No abstract text is available yet for this article.
September 2014: Journal of the South Carolina Medical Association
https://www.readbyqxmd.com/read/27115716/efficacy-of-training-interprofessional-spiritual-care-generalists
#19
Mary R Robinson, Mary Martha Thiel, Kezia Shirkey, David Zurakowski, Elaine C Meyer
BACKGROUND: Provision of spiritual/religious (S/R) care has been associated with improvements in patient care, patient-provider relationships, and resource utilization. Clinicians identify a lack of training in S/R care as the primary impediment. The purpose of the study was to evaluate the effectiveness of one-day, simulation-based workshops to prepare interprofessional clinicians to function as capable, confident, and ethical spiritual care generalists. METHODS: Interprofessional practitioners (physicians, nurses, social workers, psychologists, child life specialists) in a quaternary care academic pediatric hospital participated in daylong Spiritual Generalist workshops utilizing professional actors to learn requisite spiritual generalist skills...
August 2016: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27091248/describing-pediatric-hospital-discharge-planning-care-processes-using-the-omaha-system
#20
Diane E Holland, Catherine E Vanderboom, Adriana M Delgado, Marianne E Weiss, Karen A Monsen
PURPOSE: Although discharge planning (DP) is recognized as a critical component of hospital care, national initiatives have focused on older adults, with limited focus on pediatric patients. We aimed to describe patient problems and targeted interventions as documented by social workers or DP nurses providing specialized DP services in a children's hospital. METHODS: Text from 67 clinical notes for 28 patients was mapped to a standardized terminology (Omaha System)...
May 2016: Applied Nursing Research: ANR
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