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transition from child centered to adult healthcare systems

Wendy F Bower, Deborah Christie, Mario DeGennaro, Pallavi Latthe, Ann Raes, Rodrigo L P Romao, Arash Taghizadeh, Dan Wood, Christopher R J Woodhouse, Stuart B Bauer
INTRODUCTION: Children with urinary tract disorders managed by teams, or individual pediatricians, urologists, nephrologists, gastroenterologists, neurologists, psychologists, and nurses at some point move from child-centered to adult-centered health systems. The actual physical change is referred to as the transfer whilst the process preceding this move constitutes transition of care. Our aims are twofold: to identify management and health-service problems related to children with congenital or acquired urological conditions who advance into adulthood and the clinical implications this has for long-term health and specialist care; and, to understand the issues facing both pediatric and adult-care clinicians and to develop a systems-approach model that meets the needs of young adults, their families and the clinicians working within adult services...
March 2017: Neurourology and Urodynamics
Ellen McLaughlin Carroll
Health care transition (HCT) describes the purposeful, planned movement of adolescents from child to adult-orientated care. The purpose of this qualitative study is to uncover the meaning of transition to adult-centered care as experienced by young adults with cerebral palsy (YA-CP) through the research question: What are the lived experiences of young adults with cerebral palsy transitioning from pediatric to adult healthcare? Six females and 3 males, aged 19-25 years of age, who identified as carrying the diagnosis of cerebral palsy without cognitive impairment, were interviewed...
September 2015: Journal of Pediatric Nursing
Natasha Bollegala, Geoffrey C Nguyen
The incidence of inflammatory bowel disease (IBD), comprising Crohn's disease (CD) and ulcerative colitis (UC), has increased in pediatric populations over the last decade. Patients diagnosed during childhood often survive well into adulthood, and therefore their healthcare requires transfer to an adult gastroenterologist, usually at age 18 years. Transition has been defined in the literature as the "purposeful planned movement of adolescents and young adults with chronic conditions from child-centered to adult-oriented health care systems" (Blum et al...
2015: Gastroenterology Research and Practice
Inmaculada Calvo, Jordi Antón, Sagrario Bustabad, Marisol Camacho, Jaime de Inocencio, M Luz Gamir, Jenaro Graña, Lucía La Cruz, Juan Carlos López Robledillo, Marta Medrano, Rosa Merino, Consuelo Modesto, Esmeralda Nuñez, M Jesús Rua, Vicenç Torrente-Segarra, Carmen Vargas, Loreto Carmona, Estíbaliz Loza
To develop recommendations on the transition from pediatric care to adult care in patients with chronic inflammatory rheumatic diseases with childhood onset based. Recommendations were generated following nominal group methodology and Delphi technique. A panel of 16 experts was established. A systematic literature review (on transitional care) and a narrative review were performed and presented to the panel in the first panel meeting to be discussed. A first draft of recommendations was generated and circulated...
October 2015: Rheumatology International
Felippe Borlot, Jose F Tellez-Zenteno, Anita Allen, Anfal Ali, O Carter Snead, Danielle M Andrade
OBJECTIVES: Children with severe chronic epilepsy are living longer, and they eventually transition to the adult health care system. Additional research is required to better define the population that is being transferred and the qualifications of those who are assuming their care. We aimed to evaluate the complexity of epilepsy patients transitioning between tertiary centers, and to evaluate neurologists' confidence in dealing with childhood-onset epilepsies. METHODS: Patients aged from 18 to 25 years were divided into two groups: Group 1 comprised patients referred from the pediatric tertiary center; and Group 2 comprised patients referred from the community...
October 2014: Epilepsia
Alison Moriarty Daley, Lois S Sadler, Heather Dawn Reynolds
Clinicians across disciplines and practice settings are likely to encounter adolescents who are at risk for a pregnancy. In 2010, 34.2/1000 15-19-year-old teens had a live birth in the United States, many more will seek care for a pregnancy scare or options counseling. Teen mothers are also at risk for a second or higher-order pregnancy during adolescence. This paper provides clinicians with adolescent-friendly clinical and counseling strategies for pregnancy prevention, pre- and post-pregnancy test counseling, pregnancy-related care, and a review of the developmental challenges encountered by teens in the transition to parenthood...
April 2013: Current Problems in Pediatric and Adolescent Health Care
Patricia Flatley Brennan, Stephen Downs, Gail Casper
Project HealthDesign, a multi-year, multi-site project sponsored by the Robert Wood Johnson Foundation with additional support from the California HealthCare Foundation, is designed to stimulate innovation in personal health records (PHRs). Project HealthDesign teams employed user-centered design processes to create designs and prototypes of computer-based applications to support and enhance human health for a wide range of patients, from children with chronic health conditions to elders transitioning from hospital to home...
October 2010: Journal of Biomedical Informatics
Rowena Remorino, Judy Taylor
BACKGROUND: Transition is a planned movement of adolescents with chronic physical and medical conditions from child-centered to adult-oriented healthcare systems as opposed to a purely administrative event. OBJECTIVE: To evaluate the transition of pediatric kidney transplant recipients to the adult service at Guy's Hospital between 2000 and 2001 as compared with best practice from the literature, and to establish client satisfaction with the process. DESIGN: Data were collected by means of a retrospective review of case notes, clinician interview, and a patient satisfaction questionnaire, and analyzed by a single reviewer...
December 2006: Progress in Transplantation
Kathleen B Blomquist
PURPOSE: Healthy People 2010, the U.S. government's goal for a healthier nation, calls for improved data collection to understand the health status of relatively small population groups, such as young adults with disabilities. This study looks at the transition outcomes of graduates of pediatric systems of care for children with disabilities and chronic conditions. METHODS: Young adult graduates of a state program for children with special healthcare needs and a specialty children's hospital were sent a mail survey that focused on their healthcare access and use, insurance status, health behaviors and perceptions, education, work, and markers of independent living...
May 2006: Orthopaedic Nursing
J E Barnette, F Clendenen
BACKGROUND: Shawnee Hills, Inc., formally began the transition to critical pathways in January 1996. The goal was to design and implement a service delivery model with clearly defined clinical paths and appropriate and functional technical support systems. No specific goal date for full implementation was designated; however, the intent was to move into the new system in a manner that allowed both consumer and employee participation in the planning process and to accommodate the organization's transition from a fee-for-service to a capitated model of contracting for services...
May 1996: Best Practices and Benchmarking in Healthcare: a Practical Journal for Clinical and Management Application
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