Karam Elsolh, Amy Li, Malini Hu, Samir Seleq, Emma Neary, Nikko Gimpaya, Michael A Scaffidi, Teruko Kishibe, Rishad Khan, Samir C Grover
BACKGROUND: Interest in patient and public involvement in research has grown. Medical, health, and social care research has demonstrated several benefits of patient and public engagement, such as empowering user input and reducing attrition rates in clinical trials. To date, no study has reviewed patient engagement in inflammatory bowel disease (IBD). We aimed to describe the benefits, challenges, and best practices of patient engagement in IBD research. METHODS: We performed a systematic search on MEDLINE, EMBASE, and Cochrane for all clinical IBD research studies in which patients were involved in the research process (1946- 2023)...
April 2024: Journal of the Canadian Association of Gastroenterology