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https://www.readbyqxmd.com/read/28430396/patient-and-caregiver-perspectives-on-decision-support-for-symptom-and-quality-of-life-management-during-cancer-treatment-implications-for-ehealth
#1
Mary E Cooley, Manan M Nayak, Janet L Abrahm, Ilana M Braun, Michael S Rabin, Jane Brzozowski, Christopher Lathan, Donna L Berry
OBJECTIVES: Adequate symptom and quality-of-life (SQL) management is a priority during cancer treatment. eHealth is a timely way to enhance patient-engagement, facilitate communication and improve health outcomes. The objectives of this study were to describe patient and caregivers' perspectives for providing, processing and managing SQL data to enhance communication and identify desired components for decision support. METHODS: Data were collected from 64 participants through questionnaires and focus groups...
April 21, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/28427471/quality-of-life-and-healthcare-service-utilization-among-methadone-maintenance-patients-in-a-mountainous-area-of-northern-vietnam
#2
Long Hoang Nguyen, Lan Huong Thi Nguyen, Victoria L Boggiano, Canh Dinh Hoang, Hung Van Nguyen, Huong Thi Le, Hai Quan Le, Tho Dinh Tran, Bach Xuan Tran, Carl A Latkin, Nabil Zary, Minh Thuc Thi Vu
BACKGROUND: The expansion of methadone maintenance treatment in mountainous areas in still limited and little is known about its health impacts on drug users. This study aimed to examine health-related quality of life (HRQOL) and health care access among patients engaging in methadone maintenance treatment (MMT) in Tuyen Quang, a mountainous province in Vietnam. METHODS: We conducted a cross-sectional survey with 241 patients conveniently recruited in two MMT clinics (Son Duong and Tuyen Quang)...
April 20, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28425002/beyond-study-participants-a-framework-for-engaging-patients-in-the-selection-or-development-of-clinical-outcome-assessments-for-evaluating-the-benefits-of-treatment-in-medical-product-development
#3
Hilary Wilson, Ebony Dashiell-Aje, Milena Anatchkova, Karin Coyne, Asha Hareendran, Nancy Kline Leidy, Colleen A McHorney, Kathy Wyrwich
BACKGROUND: Patients are participating more actively in health care decision-making with regard to their health, as well as in the broader realm of assessing the value of medical products and influencing decisions about their registration and reimbursement. There is an increasing trend to include patients' perspectives throughout the stages of medical product development by broadening the traditional study-participant role to that of an active partner throughout the process. Including patients in the selection and development of clinical outcome assessments (COAs) to evaluate the benefit of treatment is particularly important...
April 19, 2017: Quality of Life Research
https://www.readbyqxmd.com/read/28422968/the-impact-of-a-point-of-care-testing-device-on-cvd-risk-assessment-completion-in-new-zealand-primary-care-practice-a-cluster-randomised-controlled-trial-and-qualitative-investigation
#4
Sue Wells, Natasha Rafter, Timothy Kenealy, Geoff Herd, Kyle Eggleton, Rose Lightfoot, Kim Arcus, Angela Wadham, Yannan Jiang, Chris Bullen
OBJECTIVES: To assess the effect of a point of care (POC) device for testing lipids and HbA1c in addition to testing by community laboratory facilities (usual practice) on the completion of cardiovascular disease (CVD) risk assessments in general practice. METHODS: We conducted a pragmatic, cluster randomised controlled trial in 20 New Zealand general practices stratified by size and rurality and randomised to POC device plus usual practice or usual practice alone (controls)...
2017: PloS One
https://www.readbyqxmd.com/read/28415991/clinical-patient-registry-recruitment-and-retention-a-survey-of-patients-in-two-chronic-disease-registries
#5
Daniel H Solomon, Nancy A Shadick, Michael E Weinblatt, Michelle Frits, Christine Iannaccone, Agnes Zak, Joshua R Korzenik
BACKGROUND: The collection of routine clinical data in the setting of research registries can serve an important role in understanding real world care. However, relatively little is known about the patient experience in registries, motivating us to survey patients enrolled in two chronic disease registries. METHODS: We conducted similar surveys in two disease-based registries based at one academic medical center in the US. One group of patients with rheumatoid arthritis (RA) had been enrolled in a registry, and we focused on retention factors...
April 17, 2017: BMC Medical Research Methodology
https://www.readbyqxmd.com/read/28415852/internal-health-locus-of-control-predicts-willingness-to-track-health-behaviors-online-and-with-smartphone-applications-%C3%A2
#6
Brooke L Bennett, Carly M Goldstein, Emily C Gathright, Joel W Hughes, Janet D Latner
Given rising technology use across all demographic groups, digital interventions offer a potential strategy for increasing access to health information and care. Research is lacking on identifying individual differences that impact willingness to use digital interventions, which may affect patient engagement. Health locus of control, the amount of control an individual believes they have over their own health, may predict willingness to use mobile health (mHealth) applications ('apps') and online trackers. A cross-sectional study (n = 276) was conducted to assess college students' health locus of control beliefs and willingness to use health apps and online trackers...
April 17, 2017: Psychology, Health & Medicine
https://www.readbyqxmd.com/read/28407144/the-north-american-primary-care-research-group-s-patient-and-clinician-engagement-program-pace-demystifying-patient-engagement-through-a-dyad-model
#7
Jessica Sand, Maret Felzien, Ray Haeme, Hazel Tapp, Diane Derkowski, John M Westfall
Background.: Community engagement in research is essential for translating the best evidence into community and clinical practice to improve the health and well-being of the population. Objective.: North American Primary Care Research Group's Redundant Patient and Clinician Engagement Program (PaCE) program aims to develop a robust community of patients and primary care providers with knowledge and understanding of the unique features of patient-centred outcomes research related to primary care in order to advocate for and engage in research...
April 12, 2017: Family Practice
https://www.readbyqxmd.com/read/28405252/patient-engagement-in-pharmacy-practice-research
#8
Damilola Adesanoye, Lisa Guirguis
No abstract text is available yet for this article.
March 2017: Canadian Pharmacists Journal: CPJ, Revue des Pharmaciens du Canada: RPC
https://www.readbyqxmd.com/read/28400250/assessment-of-self-care-and-medication-adherence-in-individuals-with-mental-health-conditions
#9
Lisa J Bible, Kristin A Casper, Jennifer L Seifert, Kyle A Porter
OBJECTIVES: This descriptive study explored whether patients with mental health conditions engage in personal medicine (self-care activities) as part of their treatment regimen. Personal medicine is patient-identified and -initiated activities of self-care that can improve mental health through various means, including physical activity, social engagement, and spiritual connectedness. The purpose of this study was to explore patient engagement in personal medicine within an underserved population and to evaluate the impact self-care might have on self-reported medication use and adherence and patient perception of mental health control...
April 8, 2017: Journal of the American Pharmacists Association: JAPhA
https://www.readbyqxmd.com/read/28398629/treatment-experiences-of-latinas-after-diagnosis-of-breast-cancer
#10
Steven J Katz, Lauren P Wallner, Paul H Abrahamse, Nancy K Janz, Kathryn A Martinez, Dean A Shumway, Ann S Hamilton, Kevin C Ward, Kenneth A Resnicow, Sarah T Hawley
BACKGROUND: The authors examined racial/ethnic differences in patient perspectives regarding their breast cancer treatment experiences. METHODS: A weighted random sample of women newly diagnosed with breast cancer between 2013 and 2015 in Los Angeles County and Georgia were sent surveys 2 months after undergoing surgery (5080 women; 70% response rate). The analytic sample was limited to patients residing in Los Angeles County (2397 women). RESULTS: The pattern of visits with different specialists before surgery was found to be similar across racial/ethnic groups...
April 11, 2017: Cancer
https://www.readbyqxmd.com/read/28395394/patients-perceptions-of-a-pressure-ulcer-prevention-care-bundle-in-hospital-a-qualitative-descriptive-study-to-guide-evidence-based-practice
#11
Shelley Roberts, Marianne Wallis, Elizabeth McInnes, Tracey Bucknall, Merrilyn Banks, Lauren Ball, Wendy Chaboyer
BACKGROUND: Pressure ulcers place a significant burden on patients and hospitals. Our team developed and tested a pressure ulcer prevention care bundle (PUPCB) in a cluster randomized trial. As part of the process evaluation conducted alongside the trial, we explored patients' perceptions of the intervention. AIMS: To identify patients' perceptions and experiences of a PUPCB in hospital. METHODS: This qualitative descriptive study explored the perceptions of a subset of patients who participated in a trial testing the PUPCB across four intervention hospitals...
April 10, 2017: Worldviews on Evidence-based Nursing
https://www.readbyqxmd.com/read/28391345/new-approaches-to-trials-in-glomerulonephritis
#12
Jonathan C Craig, Allison Tong, Giovanni F M Strippoli
Randomized controlled trials are required to reliably identify interventions to improve the outcomes for people with glomerulonephritis (GN). Unfortunately, although easier, observational studies are inherently unreliable even though the findings of both study designs agree most of the time. Currently there are ∼790 trials in GN, but suboptimal design and reporting, together with small sample sizes, mean that they may not be reliable for decision making. If the history is somewhat bleak, the future looks bright, with recent initiatives to improve the quality, size and relevance of clinical trials in nephrology, including greater patient engagement, trial networks, core outcome sets, registry-based trials and adaptive designs...
January 1, 2017: Nephrology, Dialysis, Transplantation
https://www.readbyqxmd.com/read/28388933/forging-new-paths-in-diabetes-prevention-findit-study-protocol-for-a-randomized-controlled-trial
#13
Jeffrey T Kullgren, Bradley Youles, Shaina Shetty, Caroline Richardson, Angela Fagerlin, Michele Heisler
BACKGROUND: Prediabetes is an asymptomatic condition in which patients' blood glucose levels are higher than normal but do not meet diagnostic criteria for type 2 diabetes mellitus (T2DM). A key window of opportunity to increase engagement of patients with prediabetes in strategies to prevent T2DM is when they are screened for T2DM and found to have prediabetes, yet the effects of this screening and brief counseling are unknown. METHODS: In this parallel-design randomized controlled trial we will recruit 315 non-diabetic patients from the Ann Arbor VA Medical Center (AAVA) who have one or major risk factors for T2DM and an upcoming primary care appointment at the AAVA, but have not had a hemoglobin A1c (HbA1c) test to screen for T2DM in the previous 12 months...
April 8, 2017: Trials
https://www.readbyqxmd.com/read/28387794/engaging-african-american-women-in-research-an-approach-to-eliminate-health-disparities-in-the-african-american-community
#14
Joedrecka S Brown Speights, Alexandra C H Nowakowski, Jessica De Leon, M Miaisha Mitchell, Ivana Simpson
Objective: To explore the success of community-based participatory research [CBPR] in engaging African American women to achieve health equity by elucidating community, trust, communication and impact. Recommendations helpful for researchers interested in engaging communities to achieve health equity in the USA are included. Inroduction: African American women experience health disparities of multifactorial etiology and are underrepresented in research. CBPR is a collaborative approach that incorporates perspectives, which address the intricate determinants of health and has been reported as an effective means to address health disparities...
April 6, 2017: Family Practice
https://www.readbyqxmd.com/read/28384076/ehealth-literacy-patient-engagement-in-identifying-strategies-to-encourage-use-of-patient-portals-among-older-adults
#15
Eboni G Price-Haywood, Jewel Harden-Barrios, Robin Ulep, Qingyang Luo
Innovations in chronic disease management are growing rapidly as advancements in technology broaden the scope of tools. Older adults are less likely to be willing or able to use patient portals or smartphone apps for health-related tasks. The authors conducted a cross-sectional survey of older adults (ages ≥50) with hypertension or diabetes to examine relationships between portal usage, interest in health-tracking tools, and eHealth literacy, and to solicit practical solutions to encourage technology adoption...
April 6, 2017: Population Health Management
https://www.readbyqxmd.com/read/28382403/meaningful-patient-engagement-in-inflammatory-arthritis-development-of-the-patient-motivation-questionnaire
#16
Y El Miedany, Maha El Gaafary, Sally Youssef, Nadia El Aroussy
The objective of this study is to develop a questionnaire for evaluating the patient's "motivation" and assess the psychometric properties of that measure in patients with chronic inflammatory arthritis. Using Rasch analysis and questions item pool, content analysis, and semi-structured group discussion, the questionnaire was developed including 10-item scale (0-10 on VAS scale). Construct validity was assessed by correlating the questionnaire score to parameters of disease activity (DAS-28, ASDAS, and DAPSA scores), functional disability, quality of life, patient self-helplessness measure, as well as the patients' compliance to therapy...
April 5, 2017: Clinical Rheumatology
https://www.readbyqxmd.com/read/28378246/engagement-in-care-of-high-risk-hepatitis-c-patients-with-interferon-free-direct-acting-antiviral-therapies
#17
John B Dever, Julie H Ducom, Ariel Ma, Joseph Nguyen, Lin Liu, Ann Herrin, Erik J Groessl, Samuel B Ho
BACKGROUND AND AIMS: The extent to which hepatitis C (HCV) treatment uptake is improved following introduction of interferon-free direct-acting antiviral (DAA) treatments is unknown. The purpose of this study was to determine HCV patient engagement and barriers to care for accessing DAA treatments in a real-world setting. METHODS: Patients with HCV viremia at high risk for fibrosis were identified using the Veterans Affairs (VA) registry within San Diego's VA in October 2014...
April 4, 2017: Digestive Diseases and Sciences
https://www.readbyqxmd.com/read/28371819/the-effects-of-patient-education-on-patient-safety-can-we-change-patient-perceptions-and-attitudes-lessons-from-the-armed-forces-capital-hospital-in-korea
#18
JinOk An, Seung Ju Kim, Sohee Park, Ki Tae Moon, Eun-Cheol Park
Objective: Strategies to promote patient involvement in medical error prevention have been implemented, but little is known about the effects of education on changes in perceptions and attitudes about patients' own safety. Design: We administered a survey to military personnel admitted to the Armed Forces Capital Hospital. Responses were classified according to perception and attitude. Setting: Single military hospital in Korea. Participants: A total of 483 completed surveys were included in our study; 252 of the respondents received safety education at admission...
March 28, 2017: International Journal for Quality in Health Care
https://www.readbyqxmd.com/read/28369722/components-of-comprehensive-and-effective-transitional-care
#19
Mary D Naylor, Elizabeth C Shaid, Deborah Carpenter, Brianna Gass, Carol Levine, Jing Li, Ann Malley, Kathleen McCauley, Huong Q Nguyen, Heather Watson, Jane Brock, Brian Mittman, Brian Jack, Suzanne Mitchell, Becky Callicoatte, John Schall, Mark V Williams
Transitional care (TC) has received widespread attention from researchers, health system leaders, clinicians, and policy makers as they attempt to improve health outcomes and reduce preventable hospital readmissions, yet little is known about the critical elements of effective TC and how they relate to patients' and caregivers' needs and experiences. To address this gap, the Patient-Centered Outcomes Research Institute (PCORI) funded a national study, Achieving patient-centered Care and optimized Health In care transitions by Evaluating the Value of Evidence (Project ACHIEVE)...
April 3, 2017: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/28369066/socioeconomic-factors-explain-suboptimal-adherence-to-antiretroviral-therapy-among-hiv-infected-australian-adults-with-viral-suppression
#20
Krista J Siefried, Limin Mao, Stephen Kerr, Lucette A Cysique, Thomas M Gates, John McAllister, Anthony Maynard, John de Wit, Andrew Carr
BACKGROUND: Missing more than one tablet of contemporary antiretroviral therapy (ART) per month increases the risk of virological failure. Recent studies evaluating a comprehensive range of potential risk factors for suboptimal adherence are not available for high-income settings. METHODS: Adults on ART with undetectable viral load (UDVL) were recruited into a national, multi-centre cohort, completing a comprehensive survey assessing demographics, socio-economic indicators, physical health, well-being, life stressors, social supports, HIV disclosure, HIV-related stigma and discrimination, healthcare access, ART regimen, adherence, side effects, costs and treatment beliefs...
2017: PloS One
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