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"Patient engagement"

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https://www.readbyqxmd.com/read/29241142/unmet-needs-burden-of-treatment-and-patient-engagement-in-multiple-sclerosis-a-combined-perspective-from-the-ms-in-the-21st-century-steering-group
#1
Peter Rieckmann, Diego Centonze, Irina Elovaara, Gavin Giovannoni, Eva Havrdová, Jurg Kesselring, Gisela Kobelt, Dawn Langdon, Sarah A Morrow, Celia Oreja-Guevara, Sven Schippling, Christoph Thalheim, Heidi Thompson, Patrick Vermersch, Karen Aston, Birgit Bauer, Christy Demory, Maria Paz Giambastiani, Jana Hlavacova, Jocelyne Nouvet-Gire, George Pepper, Maija Pontaga, Emma Rogan, Chrystal Rogalski, Pieter van Galen, Ali-Frédéric Ben-Amor
BACKGROUND: Patient engagement is vital in multiple sclerosis (MS) in order to optimise outcomes for patients, society and healthcare systems. It is essential to involve all stakeholders in potential solutions, working in a multidisciplinary way to ensure that people with MS (PwMS) are included in shared decision-making and disease management. To start this process, a collaborative, open environment between PwMS and healthcare professionals (HCPs) is required so that similarities and disparities in the perception of key areas in patient care and unmet needs can be identified...
November 21, 2017: Multiple Sclerosis and related Disorders
https://www.readbyqxmd.com/read/29235132/mitochondrial-donation-patient-engagement-and-narratives-of-hope
#2
Cathy Herbrand, Rebecca Dimond
This article develops the sociology of hope and patient engagement by exploring how patients' perceptions and actions are shaped by narratives of hope surrounding the clinical introduction of novel reproductive techniques. In 2015, after extensive public debates, the UK became the first country to legalise a mitochondrial donation technique aimed at preventing the transmission of inherited disorders. The article draws on the accounts of twenty-two women of reproductive age who are at risk of having a child with mitochondrial disease and would be the potential target of the technique...
December 12, 2017: Sociology of Health & Illness
https://www.readbyqxmd.com/read/29233950/should-lifestyles-be-a-criterion-for-healthcare-rationing-evidence-from-a-portuguese-survey
#3
Ana Pinto Borges, Micaela Pinho
BACKGROUND: We evaluated whether different personal responsibilities should influence the allocation healthcare resources and whether attitudes toward the penalization of risk behaviours vary among individual's sociodemographic characteristics and health related habits. STUDY DESIGN: A cross-sectional study. METHODS: We developed an online survey and made it available on various social networks for six months, during 2015. The sample covered the population aged 18 yr and older living in Portugal and we got 296 valid answers...
November 18, 2017: Journal of Research in Health Sciences
https://www.readbyqxmd.com/read/29229238/effectiveness-of-an-automated-digital-remote-guidance-and-telemonitoring-platform-on-costs-readmissions-and-complications-after-hip-and-knee-arthroplasties
#4
Benjamin I Rosner, Marc Gottlieb, William N Anderson
BACKGROUND: The impact of a new class of automated digital patient engagement (DPE) platforms on potentially avoidable costs, hospital admissions, and complications after discharge following hip and knee arthroplasties has not been established. METHODS: We conducted a multicenter observational cohort study comparing claims data for potentially avoidable costs, hospital admissions, and complications for 90 days after discharge following hip and knee arthroplasties at 10 practice sites in CA and NV...
December 2, 2017: Journal of Arthroplasty
https://www.readbyqxmd.com/read/29229155/use-of-game-theory-to-model-patient-engagement-after-surgery-a-qualitative-analysis
#5
Stephen A Castellanos, Gerardo Buentello, Diana Gutierrez-Meza, Angela Forgues, Lisa Haubert, Avo Artinyan, Cameron L Macdonald, James W Suliburk
BACKGROUND: Patient engagement is challenging to define and operationalize. Qualitative analysis allows us to explore patient perspectives on this topic and establish themes. A game theoretic signaling model also provides a framework through which to further explore engagement. METHODS: Over a 6-mo period, thirty-eight interviews were conducted within 6 wk of discharge in patients undergoing thyroid, parathyroid, or colorectal surgery. Interviews were transcribed, anonymized, and analyzed using the NVivo 11 platform...
January 2018: Journal of Surgical Research
https://www.readbyqxmd.com/read/29225906/patient-engagement-in-kidney-research-opportunities-and-challenges-ahead
#6
REVIEW
Amber O Molnar, Moumita Barua, Ana Konvalinka, Kara Schick-Makaroff
Purpose of Review: Patient engagement in research is increasingly recognized as an important component of the research process and may facilitate translation of research findings. To heighten awareness on this important topic, this review presents opportunities and challenges of patient engagement in research, drawing on specific examples from 4 areas of Canadian kidney research conducted by New Investigators in the Kidney Research Scientist Core Education and National Training (KRESCENT) Program...
2017: Canadian Journal of Kidney Health and Disease
https://www.readbyqxmd.com/read/29225812/the-utility-of-whole-body-vibration-exercise-in-haemodialysis-patients-a-pilot-study
#7
Arthur Doyle, Karen Chalmers, David J Chinn, Fiona McNeill, Nicola Dall, Christopher H Grant
Background: Exercise improves physical capacity in patients with end-stage renal disease on haemodialysis (HD), but few patients engage in it. Whole-body vibration exercise (WBVE) is a novel protocol that has been shown to benefit frail elderly patients' rehabilitation. We assessed the utility of WBVE before HD sessions and tested methods to inform the design of a randomized controlled trial (RCT). Methods: Physical condition and quality of life were assessed at enrolment and repeated 2 weeks later in a pilot study of 49 patients undergoing regular HD...
December 2017: Clinical Kidney Journal
https://www.readbyqxmd.com/read/29217503/impact-of-an-electronic-health-record-integrated-personal-health-record-on-patient-participation-in-health-care-development-and-randomized-controlled-trial-of-myhealthkeeper
#8
Borim Ryu, Nari Kim, Eunyoung Heo, Sooyoung Yoo, Keehyuck Lee, Hee Hwang, Jeong-Whun Kim, Yoojung Kim, Joongseek Lee, Se Young Jung
BACKGROUND: Personal health record (PHR)-based health care management systems can improve patient engagement and data-driven medical diagnosis in a clinical setting. OBJECTIVE: The purpose of this study was (1) to demonstrate the development of an electronic health record (EHR)-tethered PHR app named MyHealthKeeper, which can retrieve data from a wearable device and deliver these data to a hospital EHR system, and (2) to study the effectiveness of a PHR data-driven clinical intervention with clinical trial results...
December 7, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29217389/competencies-for-engaging-high-needs-patients-in-primary-care
#9
Michael J Yedidia
BACKGROUND: Patients who heavily utilize hospitals and emergency departments frequently have complex needs requiring services spanning medical, behavioral, and social service sectors. This study identifies essential competencies for caring for high-needs patients and highlights their importance to primary care delivery. METHODS: Transcripts of in-depth interviews with 30 clinical and administrative staff at 23 complex care programs across the United States were analyzed using standard qualitative techniques...
December 4, 2017: Healthcare
https://www.readbyqxmd.com/read/29217342/cinematic-rendering-of-cardiac-ct-volumetric-data-principles-and-initial-observations
#10
Steven P Rowe, Pamela T Johnson, Elliot K Fishman
BACKGROUND: Cinematic rendering (CR) a new method of 3D computed tomography (CT) volumetric visualization that produces photorealistic images. As with traditional 3D visualization methods, CR may prove to be of value in providing important information when evaluating regions of complex anatomy such as the heart. METHODS: The gated, IV contrast-enhanced chest CT angiogram data from three recent patients were evaluated with CR. Image comparision demonstrates the difference between CR and traditional volume rendering (VR), owing to a more complex lighting model that enhances surface detail and produces realistic shadows to add depth to 3D visualizations...
December 2, 2017: Journal of Cardiovascular Computed Tomography
https://www.readbyqxmd.com/read/29216753/the-impact-of-safety-plans-in-an-outpatient-clinic
#11
Jess Zonana, Jessica Simberlund, Paul Christos
BACKGROUND: Safety plans are recommended as tools to mitigate suicide risk; however, their effectiveness remains unclear. AIM: To evaluate the impact of safety plans on patient care at an outpatient mental health clinic. METHOD: In this retrospective chart review, patients' treatment engagement, health-care utilization, and risk behaviors were measured. Patients served as their own historical controls, and we compared outcomes in the 6 months before and 6 months after creation of safety plans...
December 8, 2017: Crisis
https://www.readbyqxmd.com/read/29216669/-it-is-up-to-you-a-qualitative-study-of-inequalities-in-healthcare-from-the-patient-s-perspective
#12
Sara Lena Schröder, Olaf Martin, Martin Mlinarić, Matthias Richter
Objective The aim of this qualitative study was to explore inequalities in healthcare from the patient's perspective. Methods 44 semi-structured interviews with patients, aged 59-80 years, were conducted at the university hospital in Halle, Germany in 2014 and 2015. We analyzed the narratives following inductive qualitative content analysis. Results Most of the patients (82%) perceived inequalities in healthcare. Dimensions of healthcare inequalities from the patient's perspective were regional differences, type of health insurance, quality of physicians and the patients themselves (Income, Age)...
December 7, 2017: Das Gesundheitswesen
https://www.readbyqxmd.com/read/29214596/preparing-for-the-future-of-rare-diseases
#13
Stephen C Groft, Manuel Posada de la Paz
Members of the rare disease community have devoted significant financial and personnel resources to address the numerous issues surrounding rare diseases. The past has been devoted to developing an emphasis on rare diseases including an emphasis on research studies or locating information on rare diseases and the requirements and limitations of conducting clinical trials with small patient populations. The expanded role of patient advocacy organizations and patient engagement in all aspects of clinical research continues to gain acceptance within the research community...
2017: Advances in Experimental Medicine and Biology
https://www.readbyqxmd.com/read/29214577/patient-empowerment-and-involvement-in-research
#14
Lilisbeth Perestelo-Pérez, Amado Rivero-Santana, Analia Abt-Sacks, Ana Toledo-Chavarri, Noe Brito, Yolanda Álvarez-Pérez, Nerea González-Hernández, Pedro Serrano-Aguilar
Patients with rare diseases often face difficulties in clinical care due to the low prevalence of their diseases and the resulting healthcare professionals' lack of expertise. Valid and standardized guidelines for clinical management are also lacking due to the scarcity of research and the variability of the clinical expressivity within each disease. In addition, in cases of rare diseases, the patient and health professional relationship may not fit with the traditional assumptions of medical care. Although the communication process between patients and healthcare professionals shares most of the general features of the standard patient-health professional interaction, rare diseases may be burdened with additional issues...
2017: Advances in Experimental Medicine and Biology
https://www.readbyqxmd.com/read/29204434/a-qualitative-study-of-patients-experiences-of-participating-in-space-for-copd-a-self-management-programme-of-activity-coping-and-education
#15
Lindsay D Apps, Samantha L Harrison, Katy E Mitchell, Johanna E A Williams, Nicky Hudson, Sally J Singh
The aim of this study was to understand experiences of participation in a supported self-management programme for chronic obstructive pulmonary disease (COPD). There is a wealth of clinical trials examining the outcomes of self-management interventions for individuals with COPD, but current understanding regarding patients' perspectives of such complex interventions is limited. Further insight may help to tailor self-management interventions and maximise patient engagement. Semi-structured interviews were conducted with individuals participating in a self-management programme, SPACE for COPD...
October 2017: ERJ Open Research
https://www.readbyqxmd.com/read/29201580/multimodality-3d-superposition-and-automated-whole-brain-tractography-comprehensive-printing-of-the-functional-brain
#16
Sanjay Konakondla, Cameron J Brimley, Jesna Mathew Sublett, Edward Stefanowicz, Sarah Flora, Gino Mongelluzzo, Clemens M Schirmer
Whole brain tractography using diffusion tensor imaging (DTI) sequences can be used to map cerebral connectivity; however, this can be time-consuming due to the manual component of image manipulation required, calling for the need for a standardized, automated, and accurate fiber tracking protocol with automatic whole brain tractography (AWBT). Interpreting conventional two-dimensional (2D) images, such as computed tomography (CT) and magnetic resonance imaging (MRI), as an intraoperative three-dimensional (3D) environment is a difficult task with recognized inter-operator variability...
September 29, 2017: Curēus
https://www.readbyqxmd.com/read/29195735/benefit-of-social-media-on-patient-engagement-and-satisfaction-results-of-a-9-month-qualitative-pilot-study-using-facebook
#17
Vikrom K Dhar, Young Kim, Justin T Graff, Andrew D Jung, Jennifer Garrett, Lauren E Dick, Jenifer Harris, Shimul A Shah
BACKGROUND: Despite the potential benefits of social media, health care providers are often hesitant to engage patients through these sites. Our aim was to explore how implementation of social media may affect patient engagement and satisfaction. METHODS: In September 2016 a Facebook support group was created for liver transplant patients to use as a virtual community forum. Data including user demographics and group activity were reviewed. A survey was conducted evaluating users' perceptions regarding participation in the group...
November 29, 2017: Surgery
https://www.readbyqxmd.com/read/29186982/a-randomized-controlled-trial-of-strategies-to-improve-family-members-preparedness-for-surrogate-decision-making
#18
Michael J Green, Lauren J Van Scoy, Andrew J Foy, Renee R Stewart, Ramya Sampath, Jane R Schubart, Erik B Lehman, Anne E F Dimmock, Ashley M Bucher, Lisa S Lehmann, Alyssa F Harlow, Chengwu Yang, Benjamin H Levi
OBJECTIVE: To evaluate 2 strategies for preparing family members for surrogate decision-making. DESIGN: A 2 × 2 factorial, randomized controlled trial testing whether: (1) comprehensive online advance care planning (ACP) is superior to basic ACP, and (2) having patients engage in ACP together with family members is superior to ACP done by patients alone. SETTING: Tertiary care centers in Hershey, Pennsylvania, and Boston, Massachusetts. PARTICIPANTS: Dyads of patients with advanced, severe illness (mean age 64; 46% female; 72% white) and family members who would be their surrogate decision-makers (mean age 56; 75% female; 75% white)...
January 1, 2017: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29185532/sharing-notes-with-patients-a-review-of-current-practice-and-considerations-for-neurologists
#19
Melissa M Yu, Allison L Weathers, Allan D Wu, David A Evans
Improved patient engagement is a critical consideration in the new payment climate. Releasing progress notes for patients to view may improve patient involvement and engagement in their care. Patients perceive benefit from viewing physician progress notes. As initial studies involved only primary care physicians, specialist physicians may have specific considerations when releasing notes to patients. This article provides a framework for neurologists to implement a note release policy in their practice.
April 2017: Neurology. Clinical Practice
https://www.readbyqxmd.com/read/29184905/frequency-of-in-home-internet-use-among-prekidney-and-postkidney-transplant-patients-facilitators-and-barriers-to-use-and-trends-over-time
#20
Mark B Lockwood, Karen Dunn-Lopez, Larisa Burke, Yolanda T Becker, Milda Saunders
Background: As health-related communications become digitized, strategies to increase adoption of these Web-based platforms are needed. The purpose of this study was to assess facilitators and barriers to in-home Internet use among prekidney and postkidney transplant patients. Methods: A single center, cross-sectional survey of 240 consecutive patients of all levels of technological proficiency who presented to an urban transplant center in the United States. The Patient Information and Technology Assessment consists of 6 demographic questions, 3 disease-related questions, and 8 technology-related questions...
November 2017: Transplantation Direct
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