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https://www.readbyqxmd.com/read/29452519/patient-engagement-in-clinical-trials-the-clinical-trials-transformation-initiative-s-leadership-from-theory-to-practical-implementation
#1
Bray Patrick-Lake
Patient engagement is an increasingly important aspect of successful clinical trials. Over the past decade, as patient group involvement in clinical trials has continued to increase and diversify, the Clinical Trials Transformation Initiative has not only recognized the crucial role patients play in improving the clinical trial enterprise but also made a deep commitment to help grow and shape the emerging field of patient engagement. This article describes the evolution of patient engagement including the origins of the patient engagement movement; barriers to successful engagement and remaining challenges to full and valuable collaboration between patient groups and trial sponsors; and Clinical Trials Transformation Initiative's role in influencing the field through organizational practices, formal project work and resulting recommendations, and external advocacy efforts...
February 2018: Clinical Trials: Journal of the Society for Clinical Trials
https://www.readbyqxmd.com/read/29449199/implementation-of-digital-awareness-strategies-to-engage-patients-and-providers-in-a-lung-cancer-screening-program-retrospective-study
#2
Dana L Jessup, McKinley Glover Iv, Dania Daye, Lynda Banzi, Philip Jones, Garry Choy, Jo-Anne O Shepard, Efrén J Flores
BACKGROUND: Lung cancer is the leading cause of cancer-related deaths in the United States. Despite mandated insurance coverage for eligible patients, lung cancer screening rates remain low. Digital platforms, including social media, provide a potentially valuable tool to enhance health promotion and patient engagement related to lung cancer screening (LCS). OBJECTIVE: The aim was to assess the effectiveness of LCS digital awareness campaigns on utilization of low-dose computed tomography (LDCT) and visits to institutional online educational content...
February 15, 2018: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29445521/a-method-for-co-creation-of-an-evidence-based-patient-workbook-to-address-alcohol-use-when-quitting-smoking-in-primary-care-a-case-study
#3
Nadia Minian, Aliya Noormohamed, Laurie Zawertailo, Dolly Baliunas, Norman Giesbrecht, Bernard Le Foll, Jürgen Rehm, Andriy Samokhvalov, Peter L Selby
Plain English summary: The purpose of this paper is to describe a patient engagement event designed to create an educational workbook with smokers who drink alcohol at harmful levels. The goal was to create a workbook that combined scientific evidence with patients' values, preferences, and needs. Fourteen adult smokers who drink alcohol were invited to the Centre for Addiction and Mental Health (CAMH) to take part in a four-hour event to help design the workbook with the CAMH research team...
2018: Research involvement and engagement
https://www.readbyqxmd.com/read/29444687/psychometric-properties-of-the-medical-outcomes-study-social-support-survey-among-methadone-maintenance-patients-in-ho-chi-minh-city-vietnam-a-validation-study
#4
Long Quynh Khuong, Tuong-Vi Thi Vu, Van-Anh Ngoc Huynh, Truc Thanh Thai
BACKGROUND: Social support plays a crucial role in the treatment and recovery process of patients engaging in methadone maintenance treatment (MMT). However, there is a paucity of research about social support among MMT patients, possibly due to a lack of appropriate measuring tools. This study aimed to evaluate the psychometric properties of the Vietnamese version of the Medical Outcomes Study: Social Support Survey (MOS-SSS) among MMT patients. METHODS: A cross-sectional survey of 300 patients was conducted in a methadone clinic in Ho Chi Minh City, Vietnam...
February 14, 2018: Substance Abuse Treatment, Prevention, and Policy
https://www.readbyqxmd.com/read/29441204/relationships-between-compulsive-exercise-quality-of-life-psychological-distress-and-motivation-to-change-in-adults-with-anorexia-nervosa
#5
Sarah Young, Stephen Touyz, Caroline Meyer, Jon Arcelus, Paul Rhodes, Sloane Madden, Kathleen Pike, Evelyn Attia, Ross D Crosby, Phillipa Hay
Background: For people with anorexia nervosa (AN), compulsive exercise is characterized by extreme concerns about the perceived negative consequences of stopping/reducing exercise, dysregulation of affect, and inflexible exercise routines. It is associated with increased eating disorder psychopathology and poor clinical outcome. However, its relationships with two important clinical issues, quality of life (QoL) and motivation to change, are currently unknown. This study aimed to assess the cross-sectional relationships between compulsive exercise, QoL, psychological distress (anxiety and depressive symptoms, and obsessive-compulsive traits) and motivation to change in patients with AN...
2018: Journal of Eating Disorders
https://www.readbyqxmd.com/read/29440051/cold-forced-open-water-swimming-a-natural-intervention-to-improve-postoperative-pain-and-mobilisation-outcomes
#6
Tom B Mole, Pieter Mackeith
Postoperative neuropathic pain exacerbated by movement is poorly understood and difficult to treat but a relatively common complication of surgical procedures such as endoscopic thoracic sympathectomy. Here, we describe a case of unexpected, immediate, complete and sustained remission of postoperative intercostal neuralgia after the patient engaged in an open-water swim in markedly cold conditions. Though an incidental chance association is possible, the clear temporal proximity linking the swim with pain remission makes a causal relationship possible...
February 12, 2018: BMJ Case Reports
https://www.readbyqxmd.com/read/29436308/development-and-validation-of-the-consumer-health-activation-index
#7
Michael S Wolf, Samuel G Smith, Anjali U Pandit, David M Condon, Laura M Curtis, James Griffith, Rachel O'Conor, Steven Rush, Stacy C Bailey, Gordon Kaplan, Vincent Haufle, David Martin
BACKGROUND: Although there has been increasing interest in patient engagement, few measures are publicly available and suitable for patients with limited health literacy. OBJECTIVE: We sought to develop a Consumer Health Activation Index (CHAI) for use among diverse patients. METHODS: Expert opinion, a systematic literature review, focus groups, and cognitive interviews with patients were used to create and revise a potential set of items...
February 1, 2018: Medical Decision Making: An International Journal of the Society for Medical Decision Making
https://www.readbyqxmd.com/read/29428868/mapping-the-cancer-patient-information-landscape-a-comparative-analysis-of-patient-groups-across-europe-and-north-america
#8
Mark Lawler, Gillian Prue, Ian Banks, Kate Law, Peter Selby, Gordon McVie, Richard Sullivan
AIM: Little is known about how patient groups provide information for patients. We invited 838 patient groups from Europe and North America to participate in an online survey. METHODS: The survey covered: (i) availability, accessibility and quality of information provided; (ii) methods by which patient groups communicate; (iii) ways in which patient groups acquire information and confirm its veracity/accuracy; (iv) how people access information online. RESULTS: European patient groups were significantly less effective in providing medical-related information than their North American counterparts in: clinical trials, potential causes of cancer, medical research, diagnosis/screening, symptoms, treatments (all p < 0...
February 8, 2018: European Journal of Cancer
https://www.readbyqxmd.com/read/29425623/why-hospitals-adopt-patient-engagement-functionalities-at-different-speeds-a-moderated-trend-analysis
#9
O Elijah Asagbra, Darrell Burke, Huigang Liang
OBJECTIVE: To investigate acute care hospitals' adoption speed of patient engagement health information technology (HIT) functionalities from 2008 to 2013 and how this speed is contingent on environmental factors and hospital characteristics. METHODS: Data on non-government acute care hospitals located in the United States was obtained from merging three databases: the American Hospital Association's (AHA) annual survey information technology supplement, AHA annual survey, and the Area Health Resource File (AHRF)...
March 2018: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/29425575/effect-of-a-patient-engagement-tool-on-positive-airway-pressure-adherence-analysis-of-a-german-healthcare-provider-database
#10
Holger Woehrle, Michael Arzt, Andrea Graml, Ingo Fietze, Peter Young, Helmut Teschler, Joachim H Ficker
OBJECTIVE/BACKGROUND: This study investigated the addition of a real-time feedback patient engagement tool on positive airway pressure (PAP) adherence when added to a proactive telemedicine strategy. PATIENTS/METHODS: Data from a German healthcare provider (ResMed Healthcare Germany) were retrospectively analyzed. Patients who first started PAP therapy between 1 September 2009 and 30 April 2014, and were managed using telemedicine (AirView™; proactive care) or telemedicine + patient engagement tool (AirView™ + myAir™; patient engagement) were eligible...
January 2018: Sleep Medicine
https://www.readbyqxmd.com/read/29423981/embedding-routine-health-checks-for-adults-with-intellectual-disabilities-in-primary-care-practice-nurse-perceptions
#11
S Macdonald, J Morrison, C A Melville, M Baltzer, L MacArthur, S A Cooper
BACKGROUND: Adults with intellectual disabilities (IDs) have consistently poorer health outcomes than the general population. There is evidence that routine health checks in primary care may improve outcomes. We conducted a randomised controlled trial of practice nurse led health checks. Here, we report findings from the nested qualitative study. AIM: To explore practice nurse perceptions and experience of delivering an anticipatory health check for adults with IDs...
February 9, 2018: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/29422711/opportunities-for-audiologists-to-use-patient-centered-communication-during-hearing-device-monitoring-encounters
#12
REVIEW
Corinne K Coleman, Karen Muñoz, Clarissa W Ong, Grayson M Butcher, Lauri Nelson, Michael Twohig
Patient-centered care incorporates patient's priorities, values, and goals. Audiologists can increase patient engagement when they use patient-centered principles during communication. Recent research, however, has revealed counseling gaps in audiology that could be detrimental to the intervention process. The present study sought to understand the extent patient-centered communication strategies were used during hearing device monitoring visits by analyzing audio recordings. Counseling portions of the appointments were transcribed using conversation analysis...
February 2018: Seminars in Hearing
https://www.readbyqxmd.com/read/29415734/patient-engagement-in-canada-a-scoping-review-of-the-how-and-what-of-patient-engagement-in-health-research
#13
REVIEW
Elizabeth Manafo, Lisa Petermann, Ping Mason-Lai, Virgnia Vandall-Walker
BACKGROUND: Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence about its impact have influenced the uptake, implementation and ongoing evolution of patient engagement. The present study aims to conduct a scoping review to identify methods for and outcomes of patient engagement in health research. METHODS: An adaptation of the scoping review methodology originally described by Arksey and O'Malley and updated by Levac, Colquhoun and O'Brien was applied...
February 7, 2018: Health Research Policy and Systems
https://www.readbyqxmd.com/read/29412543/improved-patient-engagement-for-lgbt-populations-addressing-factors-related-to-sexual-orientation-gender-identity-for-effective-health-information-management
#14
(no author information available yet)
No abstract text is available yet for this article.
March 2017: Journal of AHIMA
https://www.readbyqxmd.com/read/29411660/patient-engagement-in-health-technology-assessment-what-constitutes-meaningful-and-how-we-might-get-there
#15
Julia Abelson
No abstract text is available yet for this article.
January 1, 2018: Journal of Health Services Research & Policy
https://www.readbyqxmd.com/read/29409360/british-columbia-ministry-of-health-patients-as-partners-a-transformational-approach
#16
Sherry Bar, Kristen Grant, Sirisha Asuri, Shannon Holms
Patients as Partners is a quality improvement initiative of the British Columbia Ministry of Health (the Ministry) that aims to bring patient voice, choice, and representation to the forefront of healthcare through collaboration with patients, families, non-governmental organizations, funded partners, regional health authorities, and healthcare providers. A spectrum of patient engagement activities, including capacity building and self-management support, occur through partnerships at the individual patient and provider, community, and system levels...
January 1, 2018: Healthcare Management Forum
https://www.readbyqxmd.com/read/29401514/patient-and-provider-experiences-with-active-surveillance-a-scoping-review
#17
Claire Kim, Frances C Wright, Nicole J Look Hong, Gary Groot, Lucy Helyer, Pamela Meiers, May Lynn Quan, Robin Urquhart, Rebecca Warburton, Anna R Gagliardi
OBJECTIVE: Active surveillance (AS) represents a fundamental shift in managing select cancer patients that initiates treatment only upon disease progression to avoid overtreatment. Given uncertain outcomes, patient engagement could support decision-making about AS. Little is known about how to optimize patient engagement for AS decision-making. This scoping review aimed to characterize research on patient and provider communication about AS, and associated determinants and outcomes. METHODS: MEDLINE, EMBASE, CINAHL, and The Cochrane Library were searched from 2006 to October 2016...
2018: PloS One
https://www.readbyqxmd.com/read/29401211/shared-decision-making-during-inpatient-rounds-opportunities-for-improvement-in-patient-engagement-and-communication
#18
Rebecca Blankenburg, Joan F Hilton, Patrick Yuan, Stephanie Rennke, Brad Monash, Stephanie M Harman, Debbie S Sakai, Poonam Hosamani, Adeena Khan, Ian Chua, Eric Huynh, Lisa Shieh, Lijia Xie
BACKGROUND: Shared decision-making (SDM) improves patient engagement and may improve outpatient health outcomes. Little is known about inpatient SDM. OBJECTIVE: To assess overall quality, provider behaviors, and contextual predictors of SDM during inpatient rounds on medicine and pediatrics hospitalist services. DESIGN: A 12-week, cross-sectional, single-blinded observational study of team SDM behaviors during rounds, followed by semistructured patient interviews...
February 5, 2018: Journal of Hospital Medicine: An Official Publication of the Society of Hospital Medicine
https://www.readbyqxmd.com/read/29400092/partnering-with-parents-to-advance-child-health-research
#19
Janet A Curran, Andrea Bishop, Jill Chorney, Lauren MacEachern, Rebecca Mackay
Although patient engagement in research is widely touted as an important foundation for improving the relevance and sustainability of research findings, there is little consensus on how to do it in practice. This article describes our research team's experiences working with and engaging parents throughout the entire research process to reach full partnership in the identification, conduct, and dissemination of research. Our report of these experiences includes lessons learned along the way regarding how healthcare and research organizations can better support researchers and patients to achieve successful partnerships...
January 1, 2018: Healthcare Management Forum
https://www.readbyqxmd.com/read/29396389/mobile-diabetes-intervention-study-of-patient-engagement-and-impact-on-blood-glucose-mixed-methods-analysis
#20
Charlene Connolly Quinn, Erin C Butler, Krystal K Swasey, Michelle D Shardell, Michael D Terrin, Erik A Barr, Ann L Gruber-Baldini
BACKGROUND: Successful treatment of diabetes includes patient self-management behaviors to prevent or delay complications and comorbid diseases. On the basis of findings from large clinical trials and professional guidelines, diabetes education programs and health providers prescribe daily regimens of glucose monitoring, healthy eating, stress management, medication adherence, and physical activity. Consistent, long-term commitment to regimens is challenging. Mobile health is increasingly being used to assist patients with lifestyle changes and self-management behaviors between provider visits...
February 2, 2018: JMIR MHealth and UHealth
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