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https://www.readbyqxmd.com/read/29110728/how-a-diverse-research-ecosystem-has-generated-new-rehabilitation-technologies-review-of-nidilrr-s-rehabilitation-engineering-research-centers
#1
REVIEW
David J Reinkensmeyer, Sarah Blackstone, Cathy Bodine, John Brabyn, David Brienza, Kevin Caves, Frank DeRuyter, Edmund Durfee, Stefania Fatone, Geoff Fernie, Steven Gard, Patricia Karg, Todd A Kuiken, Gerald F Harris, Mike Jones, Yue Li, Jordana Maisel, Michael McCue, Michelle A Meade, Helena Mitchell, Tracy L Mitzner, James L Patton, Philip S Requejo, James H Rimmer, Wendy A Rogers, W Zev Rymer, Jon A Sanford, Lawrence Schneider, Levin Sliker, Stephen Sprigle, Aaron Steinfeld, Edward Steinfeld, Gregg Vanderheiden, Carolee Winstein, Li-Qun Zhang, Thomas Corfman
Over 50 million United States citizens (1 in 6 people in the US) have a developmental, acquired, or degenerative disability. The average US citizen can expect to live 20% of his or her life with a disability. Rehabilitation technologies play a major role in improving the quality of life for people with a disability, yet widespread and highly challenging needs remain. Within the US, a major effort aimed at the creation and evaluation of rehabilitation technology has been the Rehabilitation Engineering Research Centers (RERCs) sponsored by the National Institute on Disability, Independent Living, and Rehabilitation Research...
November 6, 2017: Journal of Neuroengineering and Rehabilitation
https://www.readbyqxmd.com/read/29017993/views-of-community-managers-on-knowledge-co-creation-in-online-communities-for-people-with-disabilities-qualitative-study
#2
Julia Amann, Sara Rubinelli
BACKGROUND: The use of online communities to promote end user involvement and co-creation in the product and service innovation process is well documented in the marketing and management literature. Whereas online communities are widely used for health care service provision and peer-to-peer support, only little is known about how they could be integrated into the health care innovation process. OBJECTIVE: The overall objective of this qualitative study was to explore community managers' views on and experiences with knowledge co-creation in online communities for people with disabilities...
October 10, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/28993099/recognising-older-frail-patients-near-the-end-of-life-what-next
#3
Magnolia Cardona-Morrell, Ebony Lewis, Sanjay Suman, Cilla Haywood, Marcella Williams, Audrey-Anne Brousseau, Sally Greenaway, Ken Hillman, Elsa Dent
Frailty is a state of vulnerability resulting from cumulative decline in many physiological systems during a lifetime. It is progressive and considered largely irreversible, but its progression may be controlled and can be slowed down and its precursor -pre-frailty- can be treated with multidisciplinary intervention. The aim of this narrative review is to provide an overview of the different ways of measuring frailty in community settings, hospital, emergency, general practice and residential aged care; suggest occupational groups who can assess frailty in various services; discuss the feasibility of comprehensive geriatric assessments; and summarise current evidence of its management guidelines...
October 6, 2017: European Journal of Internal Medicine
https://www.readbyqxmd.com/read/28828037/concordance-of-the-indian-mental-healthcare-act-2017-with-the-world-health-organization-s-checklist-on-mental-health-legislation
#4
Richard M Duffy, Brendan D Kelly
BACKGROUND: India is revising its mental health legislation with the Indian Mental Healthcare Act 2017 (IMHA). When implemented, this legislation will apply to over 1.25 billion people. In 2005, the World Health Organization (WHO) published a Resource Book (WHO-RB) on mental health, human rights and legislation, including a checklist of 175 specific items to be addressed in mental health legislation or policy in individual countries. Even following the publication of the United Nations Convention on the Rights of Persons with Disabilities (CRPD) (2006), the WHO-RB remains the most comprehensive checklist for mental health legislation available, rooted in UN and WHO documents and providing the most systematic, detailed framework for human rights analysis of mental health legislation...
2017: International Journal of Mental Health Systems
https://www.readbyqxmd.com/read/28792274/global-regional-and-national-prevalence-incidence-and-disability-adjusted-life-years-for-oral-conditions-for-195-countries-1990-2015-a-systematic-analysis-for-the-global-burden-of-diseases-injuries-and-risk-factors
#5
REVIEW
N J Kassebaum, A G C Smith, E Bernabé, T D Fleming, A E Reynolds, T Vos, C J L Murray, W Marcenes
The Global Burden of Disease 2015 study aims to use all available data of sufficient quality to generate reliable and valid prevalence, incidence, and disability-adjusted life year (DALY) estimates of oral conditions for the period of 1990 to 2015. Since death as a direct result of oral diseases is rare, DALY estimates were based on years lived with disability, which are estimated only on those persons with unmet need for dental care. We used our data to assess progress toward the Federation Dental International, World Health Organization, and International Association for Dental Research's oral health goals of reducing the level of oral diseases and minimizing their impact by 2020...
April 2017: Journal of Dental Research
https://www.readbyqxmd.com/read/28768061/why-and-how-are-we-living-longer
#6
Thomas B L Kirkwood
What is the topic of this review? The reasons for the continuing increase in human life expectancy are examined in the light of progress in understanding the physiological basis of ageing. Prospects for further extending the health span - the period free of age-related disability and disease - are critically assessed. What advances does it highlight? No active programming directly causes ageing, which instead results as a side effect of how evolution optimises the physiological allocation of resources between growth, reproduction and maintenance...
August 2, 2017: Experimental Physiology
https://www.readbyqxmd.com/read/28760730/designing-serious-computer-games-for-people-with-moderate-and-advanced-dementia-interdisciplinary-theory-driven-pilot-study
#7
Chariklia Tziraki, Rakel Berenbaum, Daniel Gross, Judith Abikhzer, Boaz M Ben-David
BACKGROUND: The field of serious games for people with dementia (PwD) is mostly driven by game-design principals typically applied to games created by and for younger individuals. Little has been done developing serious games to help PwD maintain cognition and to support functionality. OBJECTIVES: We aimed to create a theory-based serious game for PwD, with input from a multi-disciplinary team familiar with aging, dementia, and gaming theory, as well as direct input from end users (the iterative process)...
July 31, 2017: JMIR Serious Games
https://www.readbyqxmd.com/read/28544078/emergency-medical-services-providers-perspective-of-end-of-life-decision-making-for-people-with-intellectual-disabilities
#8
Jacqueline McGinley, Deborah P Waldrop, Brian Clemency
BACKGROUND: Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. METHODS: This exploratory-descriptive study incorporated mixed methods to analyse data collected consecutively (surveys, n = 239; interviews, n = 48) with EMS providers from five agencies...
November 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28404488/understanding-differences-between-caregivers-and-non-caregivers-in-completer-rates-of-chronic-disease-self-management-program
#9
J Shi, P McCallion, L A Ferretti
OBJECTIVES: The Chronic Disease Self-Management Program (CDSMP) was developed to advance participants' self-care of chronic illness and may be offered to both individuals with chronic conditions and their caregivers. Previous studies of CDSMP have identified multiple resulting health benefits for participants as well as factors associated with participants' completion rates. This study investigated differences on these issues between caregiving and non-caregiving participants. STUDY DESIGN: Secondary analysis using regression analysis to predict the outcome...
June 2017: Public Health
https://www.readbyqxmd.com/read/28324029/vital-directions-for-health-and-health-care-priorities-from-a-national-academy-of-medicine-initiative
#10
Victor J Dzau, Mark B McClellan, J Michael McGinnis, Sheila P Burke, Molly J Coye, Angela Diaz, Thomas A Daschle, William H Frist, Martha Gaines, Margaret A Hamburg, Jane E Henney, Shiriki Kumanyika, Michael O Leavitt, Ruth M Parker, Lewis G Sandy, Leonard D Schaeffer, Glenn D Steele, Pamela Thompson, Elias Zerhouni
Importance: Recent discussion has focused on questions related to the repeal and replacement of portions of the Affordable Care Act (ACA). However, issues central to the future of health and health care in the United States transcend the ACA provisions receiving the greatest attention. Initiatives directed to certain strategic and infrastructure priorities are vital to achieve better health at lower cost. Objectives: To review the most salient health challenges and opportunities facing the United States, to identify practical and achievable priorities essential to health progress, and to present policy initiatives critical to the nation's health and fiscal integrity...
April 11, 2017: JAMA: the Journal of the American Medical Association
https://www.readbyqxmd.com/read/28320228/living-as-a-person-using-a-lower-limb-prosthesis-in-nepal
#11
Anna Järnhammer, Beatrice Andersson, Prakash Raj Wagle, Lina Magnusson
PURPOSE: The purpose of this study is to explore experiences of persons in Nepal using lower-limb prostheses, in relation to specific articles in the Convention on the Rights of Persons with Disabilities that consider mobility, education, health, rehabilitation, and work and employment. METHOD: Qualitative interviews were conducted with 16 persons using lower limb prostheses. Content analysis was applied to the data. RESULTS: Six themes emerged: The lower-limb prosthesis is essential for mobility and daily life; Limited mobility in challenging terrain and request for reduced pain when using prosthesis; Difficulties in finding and sustaining employment emphasized the importance of vocational training; Appreciation of comprehensive rehabilitation together with other persons with amputations, but covering related costs is a struggle; Satisfied with health care, but concerned that it creates debt and dependence upon others; and finally, Limited ability creates negative self-image and varied attitudes in other people...
March 21, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28286237/retrospectively-supervised-click-decoder-calibration-for-self-calibrating-point-and-click-brain-computer-interfaces
#12
Beata Jarosiewicz, Anish A Sarma, Jad Saab, Brian Franco, Sydney S Cash, Emad N Eskandar, Leigh R Hochberg
Brain-computer interfaces (BCIs) aim to restore independence to people with severe motor disabilities by allowing control of acursor on a computer screen or other effectors with neural activity. However, physiological and/or recording-related nonstationarities in neural signals can limit long-term decoding stability, and it would be tedious for users to pause use of the BCI whenever neural control degrades to perform decoder recalibration routines. We recently demonstrated that a kinematic decoder (i.e. a decoder that controls cursor movement) can be recalibrated using data acquired during practical point-and-click control of the BCI by retrospectively inferring users' intended movement directions based on their subsequent selections...
November 2016: Journal of Physiology, Paris
https://www.readbyqxmd.com/read/28217688/advancing-community-based-falls-prevention-programs-for-older-adults-the-work-of-the-administration-for-community-living-administration-on-aging
#13
Kristie Kulinski, Casey DiCocco, Shannon Skowronski, Phantane Sprowls
The mission of the Administration for Community Living (ACL) is to maximize the independence, well-being, and health of older adults, people with disabilities across the lifespan, and their families and caregivers. In direct alignment with this mission is ACL's support of evidence-based falls prevention programs in communities throughout the United States. Since 2014, the Administration on Aging (AoA), part of ACL, has invested nearly $14 million in entities such as state agencies, nonprofits, and universities to expand access to proven community-based falls prevention programs...
2017: Frontiers in Public Health
https://www.readbyqxmd.com/read/27939089/the-resolve-trial-for-people-with-chronic-low-back-pain-protocol-for-a-randomised-clinical-trial
#14
Matthew K Bagg, Markus Hübscher, Martin Rabey, Benedict M Wand, Edel O'Hagan, G Lorimer Moseley, Tasha R Stanton, Chris G Maher, Stephen Goodall, Sopany Saing, Neil E O'Connell, Hannu Luomajoki, James H McAuley
INTRODUCTION: Low back pain is the leading worldwide cause of disability, and results in significant personal hardship. Most available treatments, when tested in high-quality randomised, controlled trials, achieve only modest improvements in pain, at best. Recently, treatments that target central nervous system function have been developed and tested in small studies. Combining treatments that target central nervous system function with traditional treatments directed towards functioning of the back is a promising approach that has yet to be tested in adequately powered, prospectively registered, clinical trials...
January 2017: Journal of Physiotherapy
https://www.readbyqxmd.com/read/27809645/experiences-and-perspectives-on-advance-care-planning-among-individuals-living-with-serious-physical-disabilities
#15
Suzanne E Mitchell, Gabriela M Weigel, Sabrina K A Stewart, Morgan Mako, John F Loughnane
BACKGROUND: Despite frequent encounters with the healthcare system and high risk for secondary conditions, it is unclear how frequently individuals living with serious physical disabilities document advance directives (AD) or engage in advance care planning (ACP). Their perspectives on these topics are largely unknown. OBJECTIVE: We aimed to characterize the perspectives of individuals with serious physical disabilities receiving care from two different healthcare delivery settings on the value of AD and ACP...
February 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/27783772/-the-process-of-the-institutionalization-of-sport-for-individuals-with-disabilities-in-brazil-a-federal-legislative-analysis
#16
Tuany Defaveri Begossi, Janice Zarpellon Mazo
The scope of this study was to analyze the legal norms that have underpinned the alignment of organizational structures in the area of sports directed to individuals with disabilities in Brazil. The theoretical and methodological benchmark of the New Cultural History was based on the analysis of legal documents, as well as oral sources, which consist of three interviews with athletes who have experienced the period before the creation of the Brazilian Paralympic Committee. These sources were subjected to the technique of document analysis...
October 2016: Ciência & Saúde Coletiva
https://www.readbyqxmd.com/read/27143236/sarcopenia-and-dynapenia-in-patients-with-parkinsonism
#17
Michela Barichella, Giovanna Pinelli, Laura Iorio, Erica Cassani, Angela Valentino, Chiara Pusani, Valentina Ferri, Carlotta Bolliri, Marianna Pasqua, Gianni Pezzoli, Giuseppe Frazzitta, Emanuele Cereda
OBJECTIVES: To estimate prevalence of sarcopenia and dynapenia in outpatients with Parkinson disease (PD) and to investigate their association with the features of the disease. DESIGN: Cross-sectional study. SETTING: A specialized tertiary care center. PARTICIPANTS: Consecutive patients (n = 364) aged 65 years or older, affected by parkinsonian syndromes. MEASUREMENTS: Skeletal muscle mass (SMM), as well as strength and gait speed (GS) were assessed by bioimpedence analysis, handgrip dynamometry, and the 4-meter walking test, respectively...
July 1, 2016: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/27124611/remote-physical-activity-monitoring-in-neurological-disease-a-systematic-review
#18
REVIEW
Valerie A J Block, Erica Pitsch, Peggy Tahir, Bruce A C Cree, Diane D Allen, Jeffrey M Gelfand
OBJECTIVE: To perform a systematic review of studies using remote physical activity monitoring in neurological diseases, highlighting advances and determining gaps. METHODS: Studies were systematically identified in PubMed/MEDLINE, CINAHL and SCOPUS from January 2004 to December 2014 that monitored physical activity for ≥24 hours in adults with neurological diseases. Studies that measured only involuntary motor activity (tremor, seizures), energy expenditure or sleep were excluded...
2016: PloS One
https://www.readbyqxmd.com/read/27030166/opioids-for-the-palliation-of-refractory-breathlessness-in-adults-with-advanced-disease-and-terminal-illness
#19
REVIEW
Hayley Barnes, Julie McDonald, Natasha Smallwood, Renée Manser
BACKGROUND: Breathlessness is a common and disabling symptom which affects many people with advanced cardiorespiratory disease and cancer. The most effective treatments are aimed at treating the underlying disease. However, this may not always be possible, and symptomatic treatment is often required in addition to maximal disease-directed therapy. Opioids are increasingly being used to treat breathlessness, although their mechanism of action is still not completely known. A few good sized, high quality trials have been conducted in this area...
March 31, 2016: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/26808613/health-services-use-and-costs-in-people-with-intellectual-disability-building-a-context-knowledge-base-for-evidence-informed-policy
#20
REVIEW
Luis Salvador-Carulla, Steve Symonds
PURPOSE OF REVIEW: We summarize the research published between 2011 and 2015 in healthcare utilization and costs for persons with intellectual disabilities/intellectual developmental disorders with a particular focus on context studies for evidence-informed policy. RECENT FINDINGS: Persons with intellectual disability show higher unmet needs and lower use of promotion and prevention services and generic health services. Use of generic psychiatric services varies across countries...
March 2016: Current Opinion in Psychiatry
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