Carolyn C Foster, Aaron J Kaat, Avani V Shah, Caroline A Hodgson, Lindsey P Hird-McCorry, Angela Janus, Philip Swanson, Liana F Massey, Anna De Sonia, David Cella, Denise M Goodman, Matthew M Davis, Theresa A Laguna
INTRODUCTION: Outpatient monitoring of children using invasive home mechanical ventilation (IHMV) is recommended, but access to care can be difficult. This study tested if remote (home-based) data collection was feasible and acceptable in chronic IHMV management. METHODS: A codesign study was conducted with an IHMV program, home nurses, and English- and Spanish-speaking parent-guardians of children using IHMV (0-17 years; n = 19). After prototyping, parents used a remote patient monitoring (RPM) bundle to collect patient heart rate, respiratory rate (RR), oxygen saturation, end-tidal carbon dioxide (EtCO2 ), and ventilator pressure/volume over 8 weeks...
September 13, 2023: Pediatric Pulmonology