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Amanda Roze des Ordons, Tasnim Sinuff, Henry T Stelfox, Jane Kondejewski, Shane Sinclair
CONTEXT: Spiritual distress contributes to patient and family experiences of care. OBJECTIVES: To map the literature on how seriously ill patients and their family members experience spiritual distress within inpatient settings. METHODS: Our scoping review included 4 databases using search terms 'existential' or 'spiritual' combined with 'angst', 'anxiety', 'distress', 'stress' or 'anguish'. We included original research describing experiences of spiritual distress among adult patients or family members within inpatient settings and instrument validation studies...
March 13, 2018: Journal of Pain and Symptom Management
John W Wax, Amy W An, Nicole Kosier, Timothy E Quill
Voluntary stopping of eating and drinking (VSED) is a deliberate, self-initiated attempt to hasten death in the setting of suffering refractory to optimal palliative interventions or prolonged dying that a person finds intolerable. Individuals who consider VSED tend to be older, have a serious but not always imminently terminal illness, place a high value on independence, and have significant illness burden. VSED can theoretically be performed independent of clinician assistance and therefore avoids many of the ethical and legal concerns associated with physician-assisted dying or other palliative measures of last resort, However, VSED is an intense process fraught with new sources of somatic and emotional suffering for individuals and their caregivers, so VSED is best supervised by an experienced, well-informed clinician who can provide appropriate pre-intervention assessment, anticipatory guidance, medical treatment of symptoms, and emotional support...
March 2018: Journal of the American Geriatrics Society
Thomas R Egnew
Many clinicians may feel poorly prepared to manage patient suffering resulting from the travails of chronic illness. This essay explores the thesis that chronically and terminally ill patients can be holistically healed by transcending the suffering occasioned by the degradations of their illnesses. Suffering is conveyed as a story and clinicians can encourage healing by co-constructing patients' illness stories. By addressing the inevitable existential conflicts uncovered in patients' narratives and helping them edit their stories to promote acceptance and meaning, suffering can be transcended...
March 2018: Annals of Family Medicine
Zhengjia Ren, Meng Gao, Mark Yang, Wei Qu
After Sichuan earthquake, a few dedicated teams of psychological volunteers have been committed to helping the survivors of the disaster for a long period. Their personal transformation experiences were absent in the literatures. The purpose of this qualitative research was to adopt a qualitative research to examine individuals' lived experiences of personal transformation after long-term disaster mental health services. The study interviewed 10 psychological counselors, 3 psychiatric nurses, 4 psychiatrist, and 6 social workers...
March 10, 2018: Journal of Religion and Health
Magdalena Elcoro, Martín Agrest
The concept of "recovery" is still controversial as to what its principal components/dimensions are. From the perspective of a mental health professional, recovery is related to a clinical improvement and to a higher functioning. However, from a users' perspective, its major component is related to hope and having a meaningful life. The present paper analyses recovery by studying English and Spanish scales designed to measure recovery. A total of 44 recovery scales were found, of which only 19 had been made public, evaluated personal recovery from a users' perspective, used a Likert scale for all items and could be adapted to different contexts...
November 2017: Vertex: Revista Argentina de Psiquiatriá
Denise Andrea Harris, Kirsten Jack, Christopher Wibberley
AIM: The aim of this study was to explore the meaning of living with uncertainty for people diagnosed with motor neurone disease (MND). BACKGROUND: MND is a progressive neurodegenerative condition resulting in multiple needs, arising from the complex nature of the disease trajectory. People with MND are often required to make decisions for symptom management and end-of-life care. Research into the lived experience of MND has previously highlighted: the shock of receiving such a diagnosis and prognosis; subsequent concerns relating to the future and loss; and the existential suffering for a person with MND...
March 8, 2018: Journal of Clinical Nursing
Liying Ying, Lai Har Wu, Xiangli Wu, Jing Shu, Alice Yuen Loke
BACKGROUND/OBJECTIVES: Infertility affects both women and men in the physical, emotional, existential, and interpersonal realms. When couples seek in vitro fertilisation (IVF) treatment, they further suffer from the difficulties of the treatment and the uncertainty of its outcome. The aim of this study was to develop a preliminary conceptual framework for couples undergoing IVF treatment to give health professionals a better understanding of the experiences of such couples, and to guide the development of an intervention...
January 5, 2018: Journal of Reproductive and Infant Psychology
Hsieh Fushing, Tania Roy
We demonstrate that gaps and distributional patterns embedded within real-valued measurements are inseparable biological and mechanistic information contents of the system. Such patterns are discovered through data-driven possibly gapped histogram, which further leads to the geometry-based analysis of histogram (ANOHT). Constructing a possibly gapped histogram is a complex problem of statistical mechanics due to the ensemble of candidate histograms being captured by a two-layer Ising model. This construction is also a distinctive problem of Information Theory from the perspective of data compression via uniformity...
February 2018: Royal Society Open Science
Maricel Oró-Piqueras
This article aims at analysing four of Julian Barnes's novels with protagonists either entering or in their old age in order to discern to what extent conceptions of ageing, old age and death are depicted in Barnes's fiction and develop throughout his writing career. Barnes's memoir Nothing to Be Frightened Of (2008) will also be central in the discussion, since, in it, the author reflects on conceptions of old age and death from different philosophers and authors intermingling them with his own personal experience and that of his family, specially his parents...
March 2018: Journal of Aging Studies
Michael M Graham, Dominique Delbeke, Hossein Jadvar
No abstract text is available yet for this article.
March 2018: Journal of the American College of Radiology: JACR
Celina F Estacio, Phyllis N Butow, Melanie R Lovell, Skye T Dong, Josephine M Clayton
CONTEXT: Understanding patients' symptom experiences is essential to providing effective clinical care. The discussion between patients and physicians of symptom meaning and its significance, however, is ill understood. OBJECTIVES: To investigate palliative care physicians' understanding of symptom meaning, and their experiences of and attitudes towards the discussion of symptom meaning with patients. METHODS: Semi-structured interviews were conducted (N = 17) across Sydney, Australia...
March 3, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Christina Tomei, Sophie Lebel, Christine Maheu, Monique Lefebvre, Cheryl Harris
PURPOSE: Among cancer survivors, fear of cancer recurrence (FCR) is the most frequently reported unmet need. Despite this, research on psychosocial interventions that target FCR is limited. To address this gap, an individual cognitive-existential psychotherapy intervention for FCR was pilot tested via small-scale RCT. METHODS: Participants were recruited via study posters, healthcare professionals' referrals, and an electronic hospital database. Twenty-five female cancer survivors were randomized to experimental or wait-list control groups...
March 2, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Marco Warth, Jens Kessler, Josien van Kampen, Beate Ditzen, Hubert J Bardenheuer
OBJECTIVES: Music therapy (MT) holds a promising potential to meet emotional and existential needs in palliative care patients. The aim of the present pilot study was to assess the feasibility, acceptance and potential effectiveness of a novel MT intervention to improve life closure and spiritual well-being of terminally ill patients with cancer receiving palliative care. METHODS: The 'Song of Life' (SOL) intervention was provided on two consecutive sessions containing a biographical interview and a live performance of a song with high biographical relevance to the patient in a lullaby style...
March 2, 2018: BMJ Supportive & Palliative Care
Victor Grech
Carrying out research beyond that which is required by one's work/academic obligations, and teaching and training others so that one can be replaced or even surpassed, are both metamotivational. The Write a Scientific Paper (WASP) course provides a metamotivational outlet for senior academics to impart their collective experiences to WASP delegates in this crucial aspect of career progress.
February 27, 2018: Early Human Development
Tessie W October
No abstract text is available yet for this article.
March 2018: Pediatric Critical Care Medicine
Catherine Green
BACKGROUND: Today, when nurses are expected to manage large stores of data while providing precision care to individuals or groups of patients, it seems more important than ever that we understand the nature of nursing. Recently, there has been a renewed interest in examining what nursing is and how a clear understanding would impact nursing practice. OBJECTIVE: The goal of this article is to review an ontological account of nursing that seeks to understand the nature of nursing by showing the relation between the goal and structure of nursing care in association with the persons who are its recipients and practitioners...
March 2018: Nursing Research
Margareta Sjöblom, Kerstin Öhrling, Catrine Kostenius
PURPOSE: The aim of this study was to describe and gain more knowledge about the phenomenon of the inner child in relation to health and well-being reflected in events during childhood experienced by adults. METHOD: In this hermeneutical phenomenological study, 20 adults, 10 men and 10 women aged 22-68, were interviewed. RESULTS: The analysis of the data illuminated the phenomenon of the inner child in one theme: Gaining useful life lessons through childhood experiences, made up by four sub-themes: Sharing relationships, playing to heal, being strong or frail and supporting the next generation...
December 2018: International Journal of Qualitative Studies on Health and Well-being
Ingrid Bolmsjö, Per-Anders Tengland, Margareta Rämgård
BACKGROUND: According to ethical guidelines, healthcare professionals should be able to provide care that allows for the patients' values, customs and beliefs, and the existential issues that are communicated through them. One widely discussed issue is existential loneliness. However, much of the debate dealing with existential loneliness concludes that both the phenomenon and the concept are quite vague. AIM: To clarify what constitutes existential loneliness, and to describe its lived experiences...
January 1, 2018: Nursing Ethics
Aoife Moran
Individuals with kidney failure on outpatient hemodialysis therapy may experience many biopsycho social complications and existential concerns. Consequently, there is a need to implement a process of advance care planning to effectively meet the extensive needs of these individuals. However, this article suggests there are various barriers in some outpatient hemodialysis facilities that may hinder the introduction of advance care planning. This article provides a critical discussion of some of these elements, including increased time pressure, nurse-patient communication, and the nurse-patient relationship...
January 2018: Nephrology Nursing Journal: Journal of the American Nephrology Nurses' Association
Nasreen Lalani, Wendy Duggleby, Joanne Olson
BACKGROUND: Family caregivers experience spiritual and existential concerns while caring for their terminally ill family members. AIM: To evaluate and synthesise studies on spirituality among family caregivers in palliative care. DESIGN: An integrative literature review of peer-reviewed articles published between 2000 and 2016. SAMPLE: Participants were family caregivers (parents, spouses, relatives or friends) caring for an adult (age>18 years) family member with a terminal illness in a palliative care setting...
February 2, 2018: International Journal of Palliative Nursing
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