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(Rebecca Schnall)

Rebecca Schnall, Jianfang Liu, Hwayoung Cho, Sabina Hirshfield, Karolynn Siegel, Susan Olender
In the United States, HIV has evolved from an acute disease to a chronic illness making health-related quality of life a pre-eminent goal for many persons living with HIV (PLWH). There have been a number of HIV-specific quality-of-life instruments developed, but little attention has been paid to the validation of standardized nondisease-specific quality-of-life instruments tailored to PLWH. The goal of this research was to validate the Patient-Reported Outcomes Measurement Information System (PROMIS)-29, a questionnaire that measures health-related quality of life in PLWH...
January 4, 2017: AIDS Patient Care and STDs
Talya Salz, Mary S McCabe, Kevin C Oeffinger, Stacie Corcoran, Andrew J Vickers, Andrew L Salner, Ellen Dornelas, Rebecca Schnall, Nirupa J Raghunathan, Elizabeth Fortier, Shrujal S Baxi
BACKGROUND: Head and neck cancer survivors commonly experience severe long-term toxicities, late-occurring symptoms, and significant risks of the second primary malignancy and comorbid illnesses. With multiple simultaneous health issues, these complex cancer survivors often do not receive comprehensive health care that addresses their needs. A tool is needed to streamline and standardize comprehensive care for this cohort. METHODS/DESIGN: We designed the Head and Neck Survivorship Tool: Assessment and Recommendations (HN-STAR) to address health care challenges for head and neck cancer survivors...
2016: Pilot and Feasibility Studies
Lauren Stephanie Chernick, Rebecca Schnall, Melissa S Stockwell, Paula M Castaño, Tracy Higgins, Carolyn Westhoff, John Santelli, Peter S Dayan
BACKGROUND: Over 15 million adolescents use the emergency department (ED) each year in the United States. Adolescent females who use the ED for medical care have been found to be at high risk for unintended pregnancy. Given that adolescents represent the largest users of text messaging and are receptive to receiving text messages related to their sexual health, the ED visit represents an opportunity for intervention. OBJECTIVE: The aim of this qualitative study was to explore interest in and preferences for the content, frequency, and timing of an ED-based text message intervention to prevent pregnancy for adolescent females...
September 29, 2016: Journal of Medical Internet Research
Tracy Higgins, Elaine Larson, Rebecca Schnall
OBJECTIVE: Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common definition. This study seeks to define the concept by identifying its attributes in the context of its use. METHODS: A concept analysis of the scientific literature in the health disciplines was performed using the Rogers method...
January 2017: Patient Education and Counseling
S Raquel Ramos, Peter Gordon, Suzanne Bakken, Rebecca Schnall
Federal regulations have encouraged the electronic sharing of protected health information (PHI). As an opt-in state, New York abides by an affirmative consent model where PHI is electronically shared only after written consent is obtained. The purpose of our study was to describe sociotechnical factors that influence health information exchange (HIE) consent for persons living with HIV (PLWH) at one clinic in New York City. We employed mixed methods to gather perceptions of facilitators and barriers to HIE consent...
November 2016: Journal of the Association of Nurses in AIDS Care: JANAC
Jennifer E Prey, Min Qian, Susan Restaino, Judith Hibbard, Suzanne Bakken, Rebecca Schnall, Gloria Rothenberg, David K Vawdrey, Ruth Masterson Creber
OBJECTIVE: The purposes of this paper are to describe the internal consistency reliability and construct validity of the PAM-13 for hospitalized cardiology and oncology patients and to examine the predictors of low patient activation in the same population. METHODS: We evaluated the internal consistency reliability of the PAM-13 in the inpatient setting. Construct validity of the PAM-13 was then assessed using two approaches: expected known-groups differences between patients with planned and unplanned admissions PAM-13 levels and convergence of PAM-13 levels with other measures...
December 2016: Patient Education and Counseling
Sarah Iribarren, Rebecca Schnall
Tuberculosis (TB) remains a major global public health problem and is a leading killer due to an infectious disease. Mobile applications (apps) could support TB prevention and treatment. App stores were searched and of the 1332 reviewed 24 met our inclusion criteria. For each app 11 functionalities were assessed. The majority were targeted towards clinicians (n=17), few patient focused (n=4). Most had fewer than 4 functions out of 11, inform and record being the highest. Peer reviewed publications were identified for 2 of the apps and 3 apps in testing stage were found in the grey literature...
2016: Studies in Health Technology and Informatics
Rebecca Schnall, Suzanne Bakken, William Brown Iii, Alex Carballo-Dieguez, Sarah Iribarren
Mobile health (mHealth) applications (apps) have the potential to support self-management and improve health outcomes in persons living with HIV (PLWH). In this paper, we report on the final step in a three-stage user-centered design process for the development of a mHealth app for PLWH. We conducted a usability evaluation with 10 targeted end-users and a heuristic evaluation with 5 persons with informatics expertise to assess the usability of a prototype mHealth app for PLWH to manage their health. At the end of our usability evaluation, we finalized a Design Document that included the user interface design and functional specifications of the mHealth app...
2016: Studies in Health Technology and Informatics
Justin M Zook, David Catoe, Jennifer McDaniel, Lindsay Vang, Noah Spies, Arend Sidow, Ziming Weng, Yuling Liu, Christopher E Mason, Noah Alexander, Elizabeth Henaff, Alexa B R McIntyre, Dhruva Chandramohan, Feng Chen, Erich Jaeger, Ali Moshrefi, Khoa Pham, William Stedman, Tiffany Liang, Michael Saghbini, Zeljko Dzakula, Alex Hastie, Han Cao, Gintaras Deikus, Eric Schadt, Robert Sebra, Ali Bashir, Rebecca M Truty, Christopher C Chang, Natali Gulbahce, Keyan Zhao, Srinka Ghosh, Fiona Hyland, Yutao Fu, Mark Chaisson, Chunlin Xiao, Jonathan Trow, Stephen T Sherry, Alexander W Zaranek, Madeleine Ball, Jason Bobe, Preston Estep, George M Church, Patrick Marks, Sofia Kyriazopoulou-Panagiotopoulou, Grace X Y Zheng, Michael Schnall-Levin, Heather S Ordonez, Patrice A Mudivarti, Kristina Giorda, Ying Sheng, Karoline Bjarnesdatter Rypdal, Marc Salit
The Genome in a Bottle Consortium, hosted by the National Institute of Standards and Technology (NIST) is creating reference materials and data for human genome sequencing, as well as methods for genome comparison and benchmarking. Here, we describe a large, diverse set of sequencing data for seven human genomes; five are current or candidate NIST Reference Materials. The pilot genome, NA12878, has been released as NIST RM 8398. We also describe data from two Personal Genome Project trios, one of Ashkenazim Jewish ancestry and one of Chinese ancestry...
June 7, 2016: Scientific Data
Sarah J Iribarren, Rebecca Schnall, Patricia W Stone, Alex Carballo-Diéguez
BACKGROUND: Tuberculosis (TB) remains a major global health problem and is the leading killer due to a single infectious disease. Mobile health (mHealth)-based tools such as smartphone apps have been suggested as tools to support TB control efforts (eg, identification, contact tracing, case management including patient support). OBJECTIVE: The purpose of this review was to identify and assess the functionalities of mobile apps focused on prevention and treatment of TB...
2016: JMIR MHealth and UHealth
Rebecca Schnall
No abstract text is available yet for this article.
May 2016: Computers, Informatics, Nursing: CIN
Nicole Dancy-Scott, Maxine L Rockoff, Gale A Dutcher, Alla Keselman, Rebecca Schnall, Elliot R Siegel, Suzanne Bakken
The AIDS Community Information Outreach Program (ACIOP) was created in 1994 to assist the affected community in utilizing electronic HIV/AIDS information resources. Nearly 300 competitive awards have been made to mostly community-based organizations. A formal evaluation was undertaken to determine the performance and impact of the ACIOP. A mixed methods design combined quantitative abstractions and summarization of 47 awardee final reports from 44 organizations, and qualitative telephone interviews with 17 individuals representing 20 projects...
2014: Information Services & Use
Rebecca Schnall, Marlene Rojas, Suzanne Bakken, William Brown, Alex Carballo-Dieguez, Monique Carry, Deborah Gelaude, Jocelyn Patterson Mosley, Jasmine Travers
BACKGROUND: Mobile technologies are a useful platform for the delivery of health behavior interventions. Yet little work has been done to create a rigorous and standardized process for the design of mobile health (mHealth) apps. This project sought to explore the use of the Information Systems Research (ISR) framework as guide for the design of mHealth apps. METHODS: Our work was guided by the ISR framework which is comprised of 3 cycles: Relevance, Rigor and Design...
April 2016: Journal of Biomedical Informatics
William Brown, Alex Carballo-Diéguez, Rita Marie John, Rebecca Schnall
HIV self tests (HIVST) have the potential to increase testing among young adults. However, little is known about high-risk young adults' perception of the HIVST as a risk reduction tool and how they would use the HIVST in their everyday lives. Our study sought to examine these factors. Twenty-one ethnically diverse participants (ages 18-24) used the HIVST at our study site, completed surveys, and underwent an in-depth interview. Descriptive statistics were used to analyze the survey responses, and interview data were coded using constructs from the information-motivation-behavioral skills model...
September 2016: AIDS and Behavior
Nan Liu, Patricia W Stone, Rebecca Schnall
To improve HIV screening rates, New York State in 2010 mandated that all persons 13-64 years receiving health care services, including care in emergency departments (EDs), be offered HIV testing. Little attention has been paid to the effect of screening on patient flow. Time-stamped ED visit data from patients eligible for HIV screening, 7,844 of whom were seen by providers and 767 who left before being seen by providers, were retrieved from electronic health records in one adult ED. During day shifts, 10% of patients left without being seen, and during evening shifts, 5% left without being seen...
April 2016: Research in Nursing & Health
Ruth Masterson Creber, Jennifer Prey, Beatriz Ryan, Irma Alarcon, Min Qian, Suzanne Bakken, Steven Feiner, George Hripcsak, Fernanda Polubriaginof, Susan Restaino, Rebecca Schnall, Philip Strong, David Vawdrey
BACKGROUND: Patients who are better informed and more engaged in their health care have higher satisfaction with health care and better health outcomes. While patient engagement has been a focus in the outpatient setting, strategies to engage inpatients in their care have not been well studied. We are undertaking a study to assess how patients' information needs during hospitalization can be addressed with health information technologies. To achieve this aim, we developed a personalized inpatient portal that allows patients to see who is on their care team, monitor their vital signs, review medications being administered, review current and historical lab and test results, confirm allergies, document pain scores and send questions and comments to inpatient care providers...
March 2016: Contemporary Clinical Trials
Negar Aliabadi, Alex Carballo-Dieguez, Suzanne Bakken, Marlene Rojas, William Brown, Monique Carry, Jocelyn Patterson Mosley, Deborah Gelaude, Rebecca Schnall
HIV remains a significant public health problem among men who have sex with men (MSM). MSM comprise 2% of the U.S. population, but constitute 56% of persons living with HIV. Mobile health technology is a promising tool for HIV prevention. The purpose of this study was to identify the desired content, features and functions of a mobile application (app) for HIV prevention in high-risk MSM. We conducted five focus group sessions with 33 MSM. Focus group recordings were transcribed and coded using themes informed by the information-motivation-behavioral (IMB) skills model...
December 2015: AIDS Education and Prevention: Official Publication of the International Society for AIDS Education
Kristine M Kulage, Rebecca Schnall, Kathleen T Hickey, Jasmine Travers, Kerri Zezulinski, Franklin Torres, Janine Burgess, Elaine L Larson
BACKGROUND: Schools of nursing spend considerable time and finances pursuing federal research funding, yet the costs of such efforts are unknown. PURPOSE: The purpose of this study was to determine the time and costs to a school of nursing to prepare a National Institutes of Health grant application. METHOD: We prospectively recorded time and calculated costs in grant preparation undertaken by principal investigators and research administrators in one school of nursing...
November 2015: Nursing Outlook
Rebecca Schnall, Rita Marie John, Alex Carballo-Dieguez
The purpose of this study was to understand high-risk young adults' use of the rapid human immunodeficiency virus (HIV) self-test. The highest rate of new HIV infections occurs in people between 15 and 24 years. Improving identification of young people infected with HIV is a critical public health priority. The first rapid HIV self-testing kit was approved in the US in 2012. Despite the product's promise, its use by untrained young adults is not well-understood. We conducted a mixed methods study using surveys, a think-aloud protocol, observations, and in-depth interviews...
April 2016: AIDS and Behavior
Rebecca Schnall, Jocelyn Patterson Mosley, Sarah J Iribarren, Suzanne Bakken, Alex Carballo-Diéguez, William Brown Iii
BACKGROUND: There is preliminary evidence that mobile health (mHealth) apps are feasible, attractive, and an effective platform for the creation of self-management tools for persons living with HIV (PLWH). As a foundation for the current study, we conducted formative research using focus groups, participatory design sessions, and usability evaluation methods to inform the development of a health management app for PLWH. The formative research resulted in identification of the following functional requirements of a mHealth app for self-management: (1) communication between providers and peers, (2) medication reminders, (3) medication log, (4) lab reports, (5) pharmacy information, (6) nutrition and fitness, (7) resources (eg, social services, substance use, video testimonials), (8) settings, and (9) search function...
2015: JMIR MHealth and UHealth
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