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https://www.readbyqxmd.com/read/29425620/information-sources-of-self-care-strategies-for-persons-living-with-hiv
#1
Rebecca Schnall, Jianfang Liu, Sarah Iribarren
OBJECTIVES: A number of studies have been conducted to identify the self-care strategies that are used by persons living with chronic illnesses to manage their symptoms, but little work has been done to identify the primary information source for these self-care strategies. METHODS: We conducted an anonymous online survey with 1373 persons living with HIV to identify the self-care strategies they use to manage 28 commonly experienced symptoms. Following their report of their symptoms and self-care strategies, we asked an open-ended question to identify where the participant obtained the information...
March 2018: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/29353489/racial-and-socioeconomic-disparities-in-the-symptom-reporting-of-persons-living-with-hiv
#2
Rebecca Schnall, Karolynn Siegel, Haomiao Jia, Susan Olender, Sabina Hirshfield
Persons living with HIV (PLWH) today can survive decades with the disease, making the symptom experience much more relevant to their lifestyle and health outcomes. The goal of the research reported here was to assess the symptom reporting of PLWH in the Unites States (US) in the combined antiretroviral therapy (cART) age of the epidemic. We conducted an anonymous online survey of symptomatic PLWH in the US and asked participants to report the frequency and intensity of 28 frequently occurring symptoms in the past 30 days...
January 22, 2018: AIDS Care
https://www.readbyqxmd.com/read/29305343/health-information-technology-usability-evaluation-scale-health-itues-for-usability-assessment-of-mobile-health-technology-validation-study
#3
Rebecca Schnall, Hwayoung Cho, Jianfang Liu
BACKGROUND: Mobile technology has become a ubiquitous technology and can be particularly useful in the delivery of health interventions. This technology can allow us to deliver interventions to scale, cover broad geographic areas, and deliver technologies in highly tailored ways based on the preferences or characteristics of users. The broad use of mobile technologies supports the need for usability assessments of these tools. Although there have been a number of usability assessment instruments developed, none have been validated for use with mobile technologies...
January 5, 2018: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/29299790/mobile-health-technology-for-improving-symptom-management-in-low-income-persons-living-with-hiv
#4
Rebecca Schnall, Hwayoung Cho, Alexander Mangone, Adrienne Pichon, Haomiao Jia
Persons living with HIV (PLWH) are living longer but experiencing more adverse symptoms associated with the disease and its treatment. This study aimed to examine the impact of a mHealth application (app) comprised of evidence-based self-care strategies on the symptom experience of PLWH. We conducted a 12-week feasibility study with 80 PLWH who were randomized (1:1) to a mHealth app, mobile Video Information Provider (mVIP), with self-care strategies for improving 13 commonly experienced symptoms in PLWH or to a control app...
January 3, 2018: AIDS and Behavior
https://www.readbyqxmd.com/read/29056437/texting-to-increase-contraceptive-initiation-among-adolescents-in-the-emergency-department
#5
Lauren S Chernick, Melissa S Stockwell, Mengfei Wu, Paula M Castaño, Rebecca Schnall, Carolyn L Westhoff, John Santelli, Peter S Dayan
PURPOSE: To evaluate the feasibility and acceptability of a text messaging intervention to increase contraception among adolescent emergency department patients. METHODS: A pilot randomized controlled trial of sexually active females aged 14-19 receiving 3 months of theory-based, unidirectional educational and motivational texts providing reproductive health information versus standardized discharge instructions. Blinded assessors measured contraception initiation via telephone follow-up and health record review at 3 months...
October 19, 2017: Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine
https://www.readbyqxmd.com/read/29039384/a-mobile-video-information-provider-vip-for-dissemination-of-evidence-from-patient-centered-outcomes-research-for-improving-symptom-management
#6
Rebecca Schnall, Hwayoung Cho, Adrienne Pichon, Alexander Mangone
No abstract text is available yet for this article.
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28941571/characteristics-of-persons-living-with-hiv-who-have-informal-caregivers-in-the-cart-age-of-the-epidemic
#7
Rebecca Schnall, Sabina Hirshfield, Jianfang Liu, Karolynn Siegel, Melissa Gradilla
People living with HIV (PLWH) are aging and many suffer with multimorbidities, making caregiving a relevant and important area of study. The purpose of our study was to understand the occurrence and role of informal caregivers in the current stage of the HIV epidemic. We conducted a Web-based survey with 1,373 PLWH to assess: how many had an informal, unpaid caregiver; the type of relationship with the informal caregiver; and the number of hours the caregiver provided support each day. Among respondents, 333 had an informal caregiver...
September 7, 2017: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/28488165/self-management-strategies-for-coping-with-adverse-symptoms-in-persons-living-with-hiv-with-hiv-associated-non-aids-conditions
#8
Sarah Iribarren, Karolynn Siegel, Sabina Hirshfield, Susan Olender, Joachim Voss, Joseph Krongold, Heidi Luft, Rebecca Schnall
People living with HIV (PLWH) are living longer, but many are now affected by HIV-associated non-AIDS (HANA) conditions and their associated adverse symptoms. An online survey was conducted with 769 PLWH with HANA conditions in the US. Information was elicited on symptoms experienced, self-management strategies employed, and the helpfulness of these strategies. Open ended responses were collected for self-management strategies. A qualitative data analytic approach was used to organize the 4036 self-management strategies into thematic categories, with eight main categories emerging, including: taking medication, modifying activity, altering diet, seeking help, waiting, substance use, managing thoughts and attitudes, and altering the physical environment...
May 9, 2017: AIDS and Behavior
https://www.readbyqxmd.com/read/28401246/technology-mediated-interventions-and-quality-of-life-for-persons-living-with-hiv-aids-a-systematic-review
#9
Hwayoung Cho, Sarah Iribarren, Rebecca Schnall
BACKGROUND: As HIV/AIDS is considered a chronic disease; quality of life (QoL) has become an important focus for researchers and healthcare providers. Technology-mediated interventions have demonstrated improved clinical effectiveness in outcomes, such as viral suppression, for persons living with HIV/AIDS (PLWH). However, the evidence to support the impact of these interventions on QoL is lacking. OBJECTIVES: The aim of this paper was to assess the impact of technology-mediated interventions on QoL and to identify the instruments used to measure the QoL of PLWH...
April 12, 2017: Applied Clinical Informatics
https://www.readbyqxmd.com/read/28347445/scoping-review-and-evaluation-of-sms-text-messaging-platforms-for-mhealth-projects-or-clinical-interventions
#10
Sarah J Iribarren, William Brown, Rebecca Giguere, Patricia Stone, Rebecca Schnall, Nancy Staggers, Alex Carballo-Diéguez
OBJECTIVES: Mobile technology supporting text messaging interventions (TMIs) continues to evolve, presenting challenges for researchers and healthcare professionals who need to choose software solutions to best meet their program needs. The objective of this review was to systematically identify and compare text messaging platforms and to summarize their advantages and disadvantages as described in peer-reviewed literature. METHODS: A scoping review was conducted using four steps: 1) identify currently available platforms through online searches and in mHealth repositories; 2) expand evaluation criteria of an mHealth mobile messaging toolkit and integrate prior user experiences as researchers; 3) evaluate each platform's functions and features based on the expanded criteria and a vendor survey; and 4) assess the documentation of platform use in the peer-review literature...
May 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28168120/medial-knee-joint-contact-force-in-the-intact-limb-during-walking-in-recently-ambulatory-service-members-with-unilateral-limb-loss-a-cross-sectional-study
#11
Ross H Miller, Rebecca L Krupenevich, Alison L Pruziner, Erik J Wolf, Barri L Schnall
BACKGROUND: Individuals with unilateral lower limb amputation have a high risk of developing knee osteoarthritis (OA) in their intact limb as they age. This risk may be related to joint loading experienced earlier in life. We hypothesized that loading during walking would be greater in the intact limb of young US military service members with limb loss than in controls with no limb loss. METHODS: Cross-sectional instrumented gait analysis at self-selected walking speeds with a limb loss group (N = 10, age 27 ± 5 years, 170 ± 36 days since last surgery) including five service members with transtibial limb loss and five with transfemoral limb loss, all walking independently with their first prosthesis for approximately two months...
2017: PeerJ
https://www.readbyqxmd.com/read/28118922/predictors-of-willingness-to-use-a-smartphone-for-research-in-underserved-persons-living-with-hiv
#12
Rebecca Schnall, Hwayoung Cho, Allison Webel
OBJECTIVES: The burden of HIV/AIDS is borne disproportionally by a growing number of racial and ethnic minorities and socioeconomically disadvantaged individuals. Developing mHealth interventions for the everyday self-management needs of persons living with HIV (PLWH) can be challenging given the current constraints of the U.S. healthcare system, especially for those from underserved communities. In order to develop effective, evidence-based mHealth self-management interventions, we need a better understanding of the factors associated with mHealth research...
March 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28051875/a-health-related-quality-of-life-measure-for-use-in-patients-with-hiv-a-validation-study
#13
Rebecca Schnall, Jianfang Liu, Hwayoung Cho, Sabina Hirshfield, Karolynn Siegel, Susan Olender
In the United States, HIV has evolved from an acute disease to a chronic illness making health-related quality of life a pre-eminent goal for many persons living with HIV (PLWH). There have been a number of HIV-specific quality-of-life instruments developed, but little attention has been paid to the validation of standardized nondisease-specific quality-of-life instruments tailored to PLWH. The goal of this research was to validate the Patient-Reported Outcomes Measurement Information System (PROMIS)-29, a questionnaire that measures health-related quality of life in PLWH...
February 2017: AIDS Patient Care and STDs
https://www.readbyqxmd.com/read/27965842/a-head-and-neck-cancer-intervention-for-use-in-survivorship-clinics-a-protocol-for-a-feasibility-study
#14
Talya Salz, Mary S McCabe, Kevin C Oeffinger, Stacie Corcoran, Andrew J Vickers, Andrew L Salner, Ellen Dornelas, Rebecca Schnall, Nirupa J Raghunathan, Elizabeth Fortier, Shrujal S Baxi
BACKGROUND: Head and neck cancer survivors commonly experience severe long-term toxicities, late-occurring symptoms, and significant risks of the second primary malignancy and comorbid illnesses. With multiple simultaneous health issues, these complex cancer survivors often do not receive comprehensive health care that addresses their needs. A tool is needed to streamline and standardize comprehensive care for this cohort. METHODS/DESIGN: We designed the Head and Neck Survivorship Tool: Assessment and Recommendations (HN-STAR) to address health care challenges for head and neck cancer survivors...
2016: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/27687855/adolescent-female-text-messaging-preferences-to-prevent-pregnancy-after-an-emergency-department-visit-a-qualitative-analysis
#15
Lauren Stephanie Chernick, Rebecca Schnall, Melissa S Stockwell, Paula M Castaño, Tracy Higgins, Carolyn Westhoff, John Santelli, Peter S Dayan
BACKGROUND: Over 15 million adolescents use the emergency department (ED) each year in the United States. Adolescent females who use the ED for medical care have been found to be at high risk for unintended pregnancy. Given that adolescents represent the largest users of text messaging and are receptive to receiving text messages related to their sexual health, the ED visit represents an opportunity for intervention. OBJECTIVE: The aim of this qualitative study was to explore interest in and preferences for the content, frequency, and timing of an ED-based text message intervention to prevent pregnancy for adolescent females...
September 29, 2016: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/27665500/unraveling-the-meaning-of-patient-engagement-a-concept-analysis
#16
Tracy Higgins, Elaine Larson, Rebecca Schnall
OBJECTIVE: Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common definition. This study seeks to define the concept by identifying its attributes in the context of its use. METHODS: A concept analysis of the scientific literature in the health disciplines was performed using the Rogers method...
January 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/27593570/sociotechnical-analysis-of-health-information-exchange-consent-processes-in-an-hiv-clinic
#17
S Raquel Ramos, Peter Gordon, Suzanne Bakken, Rebecca Schnall
Federal regulations have encouraged the electronic sharing of protected health information (PHI). As an opt-in state, New York abides by an affirmative consent model where PHI is electronically shared only after written consent is obtained. The purpose of our study was to describe sociotechnical factors that influence health information exchange (HIE) consent for persons living with HIV (PLWH) at one clinic in New York City. We employed mixed methods to gather perceptions of facilitators and barriers to HIE consent...
November 2016: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/27422339/reliability-and-validity-of-the-patient-activation-measure-in-hospitalized-patients
#18
Jennifer E Prey, Min Qian, Susan Restaino, Judith Hibbard, Suzanne Bakken, Rebecca Schnall, Gloria Rothenberg, David K Vawdrey, Ruth Masterson Creber
OBJECTIVE: The purposes of this paper are to describe the internal consistency reliability and construct validity of the PAM-13 for hospitalized cardiology and oncology patients and to examine the predictors of low patient activation in the same population. METHODS: We evaluated the internal consistency reliability of the PAM-13 in the inpatient setting. Construct validity of the PAM-13 was then assessed using two approaches: expected known-groups differences between patients with planned and unplanned admissions PAM-13 levels and convergence of PAM-13 levels with other measures...
December 2016: Patient Education and Counseling
https://www.readbyqxmd.com/read/27332418/call-for-increased-patient-support-focus-review-and-evaluation-of-mobile-apps-for-tuberculosis-prevention-and-treatment
#19
Sarah Iribarren, Rebecca Schnall
Tuberculosis (TB) remains a major global public health problem and is a leading killer due to an infectious disease. Mobile applications (apps) could support TB prevention and treatment. App stores were searched and of the 1332 reviewed 24 met our inclusion criteria. For each app 11 functionalities were assessed. The majority were targeted towards clinicians (n=17), few patient focused (n=4). Most had fewer than 4 functions out of 11, inform and record being the highest. Peer reviewed publications were identified for 2 of the apps and 3 apps in testing stage were found in the grey literature...
2016: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/27332247/usabilty-evaluation-of-a-prototype-mobile-app-for-health-management-for-persons-living-with-hiv
#20
Rebecca Schnall, Suzanne Bakken, William Brown Iii, Alex Carballo-Dieguez, Sarah Iribarren
Mobile health (mHealth) applications (apps) have the potential to support self-management and improve health outcomes in persons living with HIV (PLWH). In this paper, we report on the final step in a three-stage user-centered design process for the development of a mHealth app for PLWH. We conducted a usability evaluation with 10 targeted end-users and a heuristic evaluation with 5 persons with informatics expertise to assess the usability of a prototype mHealth app for PLWH to manage their health. At the end of our usability evaluation, we finalized a Design Document that included the user interface design and functional specifications of the mHealth app...
2016: Studies in Health Technology and Informatics
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