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(Rebecca Schnall)

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https://www.readbyqxmd.com/read/28488165/self-management-strategies-for-coping-with-adverse-symptoms-in-persons-living-with-hiv-with-hiv-associated-non-aids-conditions
#1
Sarah Iribarren, Karolynn Siegel, Sabina Hirshfield, Susan Olender, Joachim Voss, Joseph Krongold, Heidi Luft, Rebecca Schnall
People living with HIV (PLWH) are living longer, but many are now affected by HIV-associated non-AIDS (HANA) conditions and their associated adverse symptoms. An online survey was conducted with 769 PLWH with HANA conditions in the US. Information was elicited on symptoms experienced, self-management strategies employed, and the helpfulness of these strategies. Open ended responses were collected for self-management strategies. A qualitative data analytic approach was used to organize the 4036 self-management strategies into thematic categories, with eight main categories emerging, including: taking medication, modifying activity, altering diet, seeking help, waiting, substance use, managing thoughts and attitudes, and altering the physical environment...
May 9, 2017: AIDS and Behavior
https://www.readbyqxmd.com/read/28401246/technology-mediated-interventions-and-quality-of-life-for-persons-living-with-hiv-aids-a-systematic-review
#2
Hwayoung Cho, Sarah Iribarren, Rebecca Schnall
BACKGROUND: As HIV/AIDS is considered a chronic disease; quality of life (QoL) has become an important focus for researchers and healthcare providers. Technology-mediated interventions have demonstrated improved clinical effectiveness in outcomes, such as viral suppression, for persons living with HIV/AIDS (PLWH). However, the evidence to support the impact of these interventions on QoL is lacking. OBJECTIVES: The aim of this paper was to assess the impact of technology-mediated interventions on QoL and to identify the instruments used to measure the QoL of PLWH...
April 12, 2017: Applied Clinical Informatics
https://www.readbyqxmd.com/read/28347445/scoping-review-and-evaluation-of-sms-text-messaging-platforms-for-mhealth-projects-or-clinical-interventions
#3
Sarah J Iribarren, William Brown, Rebecca Giguere, Patricia Stone, Rebecca Schnall, Nancy Staggers, Alex Carballo-Diéguez
OBJECTIVES: Mobile technology supporting text messaging interventions (TMIs) continues to evolve, presenting challenges for researchers and healthcare professionals who need to choose software solutions to best meet their program needs. The objective of this review was to systematically identify and compare text messaging platforms and to summarize their advantages and disadvantages as described in peer-reviewed literature. METHODS: A scoping review was conducted using four steps: 1) identify currently available platforms through online searches and in mHealth repositories; 2) expand evaluation criteria of an mHealth mobile messaging toolkit and integrate prior user experiences as researchers; 3) evaluate each platform's functions and features based on the expanded criteria and a vendor survey; and 4) assess the documentation of platform use in the peer-review literature...
May 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28168120/medial-knee-joint-contact-force-in-the-intact-limb-during-walking-in-recently-ambulatory-service-members-with-unilateral-limb-loss-a-cross-sectional-study
#4
Ross H Miller, Rebecca L Krupenevich, Alison L Pruziner, Erik J Wolf, Barri L Schnall
BACKGROUND: Individuals with unilateral lower limb amputation have a high risk of developing knee osteoarthritis (OA) in their intact limb as they age. This risk may be related to joint loading experienced earlier in life. We hypothesized that loading during walking would be greater in the intact limb of young US military service members with limb loss than in controls with no limb loss. METHODS: Cross-sectional instrumented gait analysis at self-selected walking speeds with a limb loss group (N = 10, age 27 ± 5 years, 170 ± 36 days since last surgery) including five service members with transtibial limb loss and five with transfemoral limb loss, all walking independently with their first prosthesis for approximately two months...
2017: PeerJ
https://www.readbyqxmd.com/read/28118922/predictors-of-willingness-to-use-a-smartphone-for-research-in-underserved-persons-living-with-hiv
#5
Rebecca Schnall, Hwayoung Cho, Allison Webel
OBJECTIVES: The burden of HIV/AIDS is borne disproportionally by a growing number of racial and ethnic minorities and socioeconomically disadvantaged individuals. Developing mHealth interventions for the everyday self-management needs of persons living with HIV (PLWH) can be challenging given the current constraints of the U.S. healthcare system, especially for those from underserved communities. In order to develop effective, evidence-based mHealth self-management interventions, we need a better understanding of the factors associated with mHealth research...
March 2017: International Journal of Medical Informatics
https://www.readbyqxmd.com/read/28051875/a-health-related-quality-of-life-measure-for-use-in-patients-with-hiv-a-validation-study
#6
Rebecca Schnall, Jianfang Liu, Hwayoung Cho, Sabina Hirshfield, Karolynn Siegel, Susan Olender
In the United States, HIV has evolved from an acute disease to a chronic illness making health-related quality of life a pre-eminent goal for many persons living with HIV (PLWH). There have been a number of HIV-specific quality-of-life instruments developed, but little attention has been paid to the validation of standardized nondisease-specific quality-of-life instruments tailored to PLWH. The goal of this research was to validate the Patient-Reported Outcomes Measurement Information System (PROMIS)-29, a questionnaire that measures health-related quality of life in PLWH...
February 2017: AIDS Patient Care and STDs
https://www.readbyqxmd.com/read/27965842/a-head-and-neck-cancer-intervention-for-use-in-survivorship-clinics-a-protocol-for-a-feasibility-study
#7
Talya Salz, Mary S McCabe, Kevin C Oeffinger, Stacie Corcoran, Andrew J Vickers, Andrew L Salner, Ellen Dornelas, Rebecca Schnall, Nirupa J Raghunathan, Elizabeth Fortier, Shrujal S Baxi
BACKGROUND: Head and neck cancer survivors commonly experience severe long-term toxicities, late-occurring symptoms, and significant risks of the second primary malignancy and comorbid illnesses. With multiple simultaneous health issues, these complex cancer survivors often do not receive comprehensive health care that addresses their needs. A tool is needed to streamline and standardize comprehensive care for this cohort. METHODS/DESIGN: We designed the Head and Neck Survivorship Tool: Assessment and Recommendations (HN-STAR) to address health care challenges for head and neck cancer survivors...
2016: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/27687855/adolescent-female-text-messaging-preferences-to-prevent-pregnancy-after-an-emergency-department-visit-a-qualitative-analysis
#8
Lauren Stephanie Chernick, Rebecca Schnall, Melissa S Stockwell, Paula M Castaño, Tracy Higgins, Carolyn Westhoff, John Santelli, Peter S Dayan
BACKGROUND: Over 15 million adolescents use the emergency department (ED) each year in the United States. Adolescent females who use the ED for medical care have been found to be at high risk for unintended pregnancy. Given that adolescents represent the largest users of text messaging and are receptive to receiving text messages related to their sexual health, the ED visit represents an opportunity for intervention. OBJECTIVE: The aim of this qualitative study was to explore interest in and preferences for the content, frequency, and timing of an ED-based text message intervention to prevent pregnancy for adolescent females...
September 29, 2016: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/27665500/unraveling-the-meaning-of-patient-engagement-a-concept-analysis
#9
Tracy Higgins, Elaine Larson, Rebecca Schnall
OBJECTIVE: Patient engagement has been credited with contributing to improved outcomes and experiences of care. Patient engagement has become a widely used term, but remains a poorly understood concept in healthcare. Citations for the term have increased throughout the healthcare-related disciplines without a common definition. This study seeks to define the concept by identifying its attributes in the context of its use. METHODS: A concept analysis of the scientific literature in the health disciplines was performed using the Rogers method...
January 2017: Patient Education and Counseling
https://www.readbyqxmd.com/read/27593570/sociotechnical-analysis-of-health-information-exchange-consent-processes-in-an-hiv-clinic
#10
S Raquel Ramos, Peter Gordon, Suzanne Bakken, Rebecca Schnall
Federal regulations have encouraged the electronic sharing of protected health information (PHI). As an opt-in state, New York abides by an affirmative consent model where PHI is electronically shared only after written consent is obtained. The purpose of our study was to describe sociotechnical factors that influence health information exchange (HIE) consent for persons living with HIV (PLWH) at one clinic in New York City. We employed mixed methods to gather perceptions of facilitators and barriers to HIE consent...
November 2016: Journal of the Association of Nurses in AIDS Care: JANAC
https://www.readbyqxmd.com/read/27422339/reliability-and-validity-of-the-patient-activation-measure-in-hospitalized-patients
#11
Jennifer E Prey, Min Qian, Susan Restaino, Judith Hibbard, Suzanne Bakken, Rebecca Schnall, Gloria Rothenberg, David K Vawdrey, Ruth Masterson Creber
OBJECTIVE: The purposes of this paper are to describe the internal consistency reliability and construct validity of the PAM-13 for hospitalized cardiology and oncology patients and to examine the predictors of low patient activation in the same population. METHODS: We evaluated the internal consistency reliability of the PAM-13 in the inpatient setting. Construct validity of the PAM-13 was then assessed using two approaches: expected known-groups differences between patients with planned and unplanned admissions PAM-13 levels and convergence of PAM-13 levels with other measures...
December 2016: Patient Education and Counseling
https://www.readbyqxmd.com/read/27332418/call-for-increased-patient-support-focus-review-and-evaluation-of-mobile-apps-for-tuberculosis-prevention-and-treatment
#12
Sarah Iribarren, Rebecca Schnall
Tuberculosis (TB) remains a major global public health problem and is a leading killer due to an infectious disease. Mobile applications (apps) could support TB prevention and treatment. App stores were searched and of the 1332 reviewed 24 met our inclusion criteria. For each app 11 functionalities were assessed. The majority were targeted towards clinicians (n=17), few patient focused (n=4). Most had fewer than 4 functions out of 11, inform and record being the highest. Peer reviewed publications were identified for 2 of the apps and 3 apps in testing stage were found in the grey literature...
2016: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/27332247/usabilty-evaluation-of-a-prototype-mobile-app-for-health-management-for-persons-living-with-hiv
#13
Rebecca Schnall, Suzanne Bakken, William Brown Iii, Alex Carballo-Dieguez, Sarah Iribarren
Mobile health (mHealth) applications (apps) have the potential to support self-management and improve health outcomes in persons living with HIV (PLWH). In this paper, we report on the final step in a three-stage user-centered design process for the development of a mHealth app for PLWH. We conducted a usability evaluation with 10 targeted end-users and a heuristic evaluation with 5 persons with informatics expertise to assess the usability of a prototype mHealth app for PLWH to manage their health. At the end of our usability evaluation, we finalized a Design Document that included the user interface design and functional specifications of the mHealth app...
2016: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/27271295/extensive-sequencing-of-seven-human-genomes-to-characterize-benchmark-reference-materials
#14
COMMENT
Justin M Zook, David Catoe, Jennifer McDaniel, Lindsay Vang, Noah Spies, Arend Sidow, Ziming Weng, Yuling Liu, Christopher E Mason, Noah Alexander, Elizabeth Henaff, Alexa B R McIntyre, Dhruva Chandramohan, Feng Chen, Erich Jaeger, Ali Moshrefi, Khoa Pham, William Stedman, Tiffany Liang, Michael Saghbini, Zeljko Dzakula, Alex Hastie, Han Cao, Gintaras Deikus, Eric Schadt, Robert Sebra, Ali Bashir, Rebecca M Truty, Christopher C Chang, Natali Gulbahce, Keyan Zhao, Srinka Ghosh, Fiona Hyland, Yutao Fu, Mark Chaisson, Chunlin Xiao, Jonathan Trow, Stephen T Sherry, Alexander W Zaranek, Madeleine Ball, Jason Bobe, Preston Estep, George M Church, Patrick Marks, Sofia Kyriazopoulou-Panagiotopoulou, Grace X Y Zheng, Michael Schnall-Levin, Heather S Ordonez, Patrice A Mudivarti, Kristina Giorda, Ying Sheng, Karoline Bjarnesdatter Rypdal, Marc Salit
The Genome in a Bottle Consortium, hosted by the National Institute of Standards and Technology (NIST) is creating reference materials and data for human genome sequencing, as well as methods for genome comparison and benchmarking. Here, we describe a large, diverse set of sequencing data for seven human genomes; five are current or candidate NIST Reference Materials. The pilot genome, NA12878, has been released as NIST RM 8398. We also describe data from two Personal Genome Project trios, one of Ashkenazim Jewish ancestry and one of Chinese ancestry...
June 7, 2016: Scientific Data
https://www.readbyqxmd.com/read/27177591/smartphone-applications-to-support-tuberculosis-prevention-and-treatment-review-and-evaluation
#15
REVIEW
Sarah J Iribarren, Rebecca Schnall, Patricia W Stone, Alex Carballo-Diéguez
BACKGROUND: Tuberculosis (TB) remains a major global health problem and is the leading killer due to a single infectious disease. Mobile health (mHealth)-based tools such as smartphone apps have been suggested as tools to support TB control efforts (eg, identification, contact tracing, case management including patient support). OBJECTIVE: The purpose of this review was to identify and assess the functionalities of mobile apps focused on prevention and treatment of TB...
May 13, 2016: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/27153226/ani-emerging-leaders-project-point-of-care-technology-for-hiv-prevention-and-management
#16
Rebecca Schnall
No abstract text is available yet for this article.
May 2016: Computers, Informatics, Nursing: CIN
https://www.readbyqxmd.com/read/27134323/empowering-patients-and-community-online-evaluation-of-the-aids-community-information-outreach-program
#17
Nicole Dancy-Scott, Maxine L Rockoff, Gale A Dutcher, Alla Keselman, Rebecca Schnall, Elliot R Siegel, Suzanne Bakken
The AIDS Community Information Outreach Program (ACIOP) was created in 1994 to assist the affected community in utilizing electronic HIV/AIDS information resources. Nearly 300 competitive awards have been made to mostly community-based organizations. A formal evaluation was undertaken to determine the performance and impact of the ACIOP. A mixed methods design combined quantitative abstractions and summarization of 47 awardee final reports from 44 organizations, and qualitative telephone interviews with 17 individuals representing 20 projects...
2014: Information Services & Use
https://www.readbyqxmd.com/read/26903153/a-user-centered-model-for-designing-consumer-mobile-health-mhealth-applications-apps
#18
Rebecca Schnall, Marlene Rojas, Suzanne Bakken, William Brown, Alex Carballo-Dieguez, Monique Carry, Deborah Gelaude, Jocelyn Patterson Mosley, Jasmine Travers
BACKGROUND: Mobile technologies are a useful platform for the delivery of health behavior interventions. Yet little work has been done to create a rigorous and standardized process for the design of mobile health (mHealth) apps. This project sought to explore the use of the Information Systems Research (ISR) framework as guide for the design of mHealth apps. METHODS: Our work was guided by the ISR framework which is comprised of 3 cycles: Relevance, Rigor and Design...
April 2016: Journal of Biomedical Informatics
https://www.readbyqxmd.com/read/26885813/information-motivation-and-behavioral-skills-of-high-risk-young-adults-to-use-the-hiv-self-test
#19
William Brown, Alex Carballo-Diéguez, Rita Marie John, Rebecca Schnall
HIV self tests (HIVST) have the potential to increase testing among young adults. However, little is known about high-risk young adults' perception of the HIVST as a risk reduction tool and how they would use the HIVST in their everyday lives. Our study sought to examine these factors. Twenty-one ethnically diverse participants (ages 18-24) used the HIVST at our study site, completed surveys, and underwent an in-depth interview. Descriptive statistics were used to analyze the survey responses, and interview data were coded using constructs from the information-motivation-behavioral skills model...
September 2016: AIDS and Behavior
https://www.readbyqxmd.com/read/26829415/impact-of-mandatory-hiv-screening-in-the-emergency-department-a-queuing-study
#20
Nan Liu, Patricia W Stone, Rebecca Schnall
To improve HIV screening rates, New York State in 2010 mandated that all persons 13-64 years receiving health care services, including care in emergency departments (EDs), be offered HIV testing. Little attention has been paid to the effect of screening on patient flow. Time-stamped ED visit data from patients eligible for HIV screening, 7,844 of whom were seen by providers and 767 who left before being seen by providers, were retrieved from electronic health records in one adult ED. During day shifts, 10% of patients left without being seen, and during evening shifts, 5% left without being seen...
April 2016: Research in Nursing & Health
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