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John L O'Dwyer, Amy M Russell, Louise D Bryant, Rebecca E A Walwyn, Alexandra M Wright-Hughes, Elizabeth H Graham, Judy M Wright, Shaista Meer, Jacqueline Birtwistle, Amanda J Farrin, Allan O House, Claire T Hulme
Background: The challenges of conducting research with hard to reach vulnerable groups are particularly pertinent for people with learning disabilities. Data collection methods for previous cost and cost-effectiveness analyses of health and social care interventions targeting people with learning disabilities have relied on health care/health insurance records or data collection forms completed by the service provider rather than by people with learning disabilities themselves. This paper reports on the development and testing of data collection methods for an economic evaluation within a randomised controlled trial (RCT) for a supported self-management programme for people with mild/moderate learning disabilities and type 2 diabetes...
2018: Pilot and Feasibility Studies
Alireza Esteghamati, Farhad Hosseinpanah, Seyed Adel Jahed, Hadi Harati, Mohammad Taghi Cheraghchi Bashi Astaneh, Hormoz Kaykhanzadeh, Sara Sedaghat
Diabetes prevalence and deaths attributable to diabetes continue to rise across globally. Diabetes Self-Management Education and Support (DSME/S) is a critical resource designed to help people with diabetes (PWD) successfully selfmanage their disease; however, its utilization is too low. In the Islamic Republic of Iran, there are currently limited structured educational programmes and no national standards for DSME/S protocol. In response to this, the GABRIC Diabetes Education Association (GDEA) has been developed as a school for diabetics, which has a comprehensive DSME/S programme for PWD with 18 distinct courses on 5 levels for 8 target groups...
April 5, 2018: Eastern Mediterranean Health Journal, la Revue de Santé de la Méditerranée Orientale
Çiğdem Çetin, Fatma Cebeci
Information technology and the Internet are rapidly becoming effective tools for teaching. Selfmanagement skills are important for adaptation and long-term survival in kidney recipients. Web-based training may help patients develop self-management skills through information access. This literature review aimed to determine the effects of Web-based educational intervention on self-management in kidney recipients. The Internet supports effective health education intervention strategies by providing a learning environment that is always available...
March 2018: Experimental and Clinical Transplantation
Yu-Jie Guo, Qing Tang, Yu Gu
This article reviews the literature addressing assessment instruments about various aspects of self-efficacy in patients with chronic kidney disease (CKD). Each scale's structure, reliability, validity, and clinical application are described in detail. When selecting assessment tools to measure the self-efficacy level of patients with CKD, we should take the suitable subjects and application scope into account. With valid and reliable measurement tools, researchers and clinical nurses can assess and stimulate the self-efficacy of patients with CKD more effectively and carry out targeted nursing interventions so as to improve patients' self-efficacy level...
March 2017: Nephrology Nursing Journal: Journal of the American Nephrology Nurses' Association
Heather E Cuevas, Sharon A Brown
Type 2 diabetes is associated with increased morbidity and mortality in Hispanics but few studies have been done to differentiate diabetes effects in Hispanic subgroups, such as Cuban Americans. The purpose of this review was to characterize the studies conducted on Cuban Americans with type 2 diabetes with the aim of updating knowledge related to physiologic factors, psychologic factors, and diabetes selfmanagement. An extensive literature search located 18 studies that met the inclusion criteria for this review...
October 2017: Journal of Immigrant and Minority Health
Yolanda V Martínez, Stephen M Campbell, Mark Hann, Peter Bower
OBJECTIVE: To evaluate the relative importance of selfmanagement (SM) and quality of care (QoC) inpredicting glycaemic control in patients with type 2 diabetes. MATERIALS AND METHODS: A longitudinal cohort study was conducted in 204 adults diagnosed with type 2 diabetes. Self-management and quality of care were measured at baseline. HbA1c was measured at baseline and at six-month follow-up. RESULTS: None of the measures of self-management were significantly associated with HbA1c...
August 2016: Salud Pública de México
Marylyn M Mcewen, Alice Pasvogel, Carolyn L Murdaugh
BACKGROUND AND PURPOSE: Type 2 diabetes mellitus (T2DM) self-management among Hispanic adults occurs in a family context. Self-efficacy (SE) affects T2DM self-management behaviors; however, no instruments are available to measure family diabetes self-efficacy. The study's purpose was to test the psychometric properties of the Family Self-Efficacy for Diabetes Scale (FSE). METHODS: Family members (n = 113) of adults with T2DM participated. Psychometric analysis included internal consistency reliability and concurrent and construct validity...
2016: Journal of Nursing Measurement
David A Williams
Cognitive-Behavioral Therapy (CBT) is a formal therapeutic approach that encourages selfmanagement of illnesses in accordance with the BioPsychoSocial model. CBT is composed of numerous skills grounded in known principles of behavioral and cognitive change. Each skill is designed to influence one of the facets associated with the perception of pain (i.e., sensory factors, emotional factors, or cognitive factors). Across the various Central Sensitivity Syndromes (CSS), CBT is thought to be beneficial to at least a portion of individuals afflicted...
2016: Current Rheumatology Reviews
Angèle A G C Jonker, Hannie C Comijs, Kees C P M Knipscheer, Dorly J H Deeg
BACKGROUND: When health declines, older persons may benefit from an intervention program that strengthens their self-management and empowers them to keep in control of their own body and life. Therefore we conducted a Randomized Controlled Trial using the Chronic Disease Self-Management Program (CDSMP) in a sample of 169 older persons in frail health and in need of elderly care. METHODS: We assessed psychological coping resources and wellbeing, pre- and posttreatment and at 6-month follow-up, and investigated whether specific subgroups would benefit in particular from the intervention...
2015: BMC Geriatrics
Guillermo Fajardo-Ortiz, Miguel Ángel Fernández-Ortega, Armando Ortiz-Montalvo, Roberto Antonio Olivares-Santos
This article presents elements to better understand health systems from the complety paradigm, innovative perspective that offers other ways in the conception of the scientific knowledge prevalent away from linear, characterized by the arise of emerging dissociative and behaviors, based on the intra and trans-disciplinarity concepts such knowledges explain and understand in a different way what happens in the health systems with a view to efficiency and effectiveness. The complexity paradigm means another way of conceptualizing the knowledge, is different from the prevalent epistemology, is still under construction does not separate, not isolated, is not reductionist, or fixed, does not solve the problems, but gives other bases to know them and study them, is a different strategy, a perspective that has basis in the systems theory, informatics and cybernetics beyond traditional knowledge, the positive logics, the newtonian physics and symmetric mathematics, in which everything is centered and balanced, joint the "soft sciences and hard sciences", it has present the Social Determinants of Health and organizational culture...
January 2015: Cirugia y Cirujanos
Bin Zhou, Yiwei Gu
BACKGROUND: Many community dwelling individuals with schizophrenia do not take medications regularly and, thus, are prone to frequent relapses. AIM: Evaluate the effectiveness of self-management training on adherence to medications and relapse among individuals with chronic schizophrenia living in the community. METHODS: A total of 201 individuals with chronic schizophrenia living in the urban and rural communities of Shanghai Municipality were randomized into a treatment as usual control group (n=98) or a selfmanagement intervention group (n=103) that received weekly self-management skills training for 6 months followed by 24 months of monthly group booster sessions in which a community health worker reviewed patients' self-management checklists...
December 2014: Shanghai Archives of Psychiatry
Blair H Smith
Blair H Smith, MD, MEd, FRCGP, FRCP, Edin, qualified in medicine at the University of Glasgow (Scotland, UK) in 1987, and as a general practitioner in 1993. He is the Professor of Population Science at the University of Dundee (Scotland, UK), having previously been the Professor of Primary Care Medicine at the University of Aberdeen (Scotland, UK). He is also a general practitioner with the Peterhead Medical Practice (Aberdeenshire, Scotland, UK). His research on the epidemiology and primary care management of chronic (neuropathic) pain has been widely published with more than 100 original research articles in peer-reviewed medical journals, and numerous related book chapters...
May 2013: Pain Management
G J Teunissen, M A Visse, T A Abma
Currently, patients are expected to take control over their health and their life and act as independent users and consumers. Simultaneously, health care policy demands patients are expected to self manage their disease. This article critically questions whether this is a realistic expectation. The paper presents the auto-ethnographic narrative of the first author, which spans a period of 27 years, from 1985 to 2012. In total nine episodes were extracted from various notes, conversations and discussions in an iterative process...
September 2015: Health Care Analysis: HCA: Journal of Health Philosophy and Policy
Sunny Wijesinghe, Cindy Mendelson
Sri Lanka has experienced an increase in the rate of type 2 diabetes. Selfmanagement of diabetes among Sri Lanka's Buddhist nuns, who depend on food donations and limit physical activity in accord with the monastic code of conduct, presents unique challenges and has not been previously studied. The purpose of this focused ethnographic study of 10 Buddhist nuns was to understand how they managed their illness within the restrictions on diet and physical activity. Three themes-duty, devotion, and detachment-explained and described their health behavior regarding type 2 diabetes within the context of their daily routines and obligations...
December 2013: Journal of Religion and Health
Christian Simhandl, Barbara König
OBJECTIVE: The psychiatric day hospital of the county hospital Neunkirchen was opened in 2003. All patients of the first year were followed up after one year to review and evaluate our support proposal. RESEARCH DESIGN: The data of all patients who were admitted in the first year were collected before admission, at discharge and after a 1 year follow up period. 57,7% also did psychological questionnaires about psychiatric symptoms, existential orientation, state of health, impairment and selfmanagement ability at all 3 dates...
2011: Neuropsychiatrie: Klinik, Diagnostik, Therapie und Rehabilitation
Steven Promislow, John R Walker, Mohammed Taheri, Charles Noah Bernstein
BACKGROUND: the Internet is an increasingly important source of health information. OBJECTIVE: to assess how well common websites answered patients' questions regarding inflammatory bowel disease (IBD). METHODS: thirty websites were identified and evaluated. Based on a previous survey of patient information needs, a comprehensive question list was developed in the three following areas: medical information (seven items), medical treatment (six items) and selfmanagement (eight items)...
November 2010: Canadian Journal of Gastroenterology, Journal Canadien de Gastroenterologie
Hilary Pinnock, Mike Thomas, Ioanna Tsiligianni, Karin Lisspers, Anders Østrem, Björn Ställberg, Osman Yusuf, Dermot Ryan, Johan Buffels, Jochen W L Cals, Niels H Chavannes, Svein Høegh Henrichsen, Arnulf Langhammer, Elena Latysheva, Christos Lionis, John Litt, Thys van der Molen, Nick Zwar, Sian Williams
AIM: Respiratory diseases are a public health issue throughout the world, with high prevalence and morbidity. This Research Needs Statement from the International Primary Care Respiratory Group (IPCRG) aims to highlight unanswered questions on the management of respiratory diseases that are of importance to practising primary care clinicians. METHODS: An informal but inclusive consultation process was instigated in 2009. Draft statements in asthma, rhinitis, COPD, tobacco dependence, and respiratory infections were circulated widely to IPCRG members, other recognised experts, and representatives from a range of economic and healthcare backgrounds...
June 2010: Primary Care Respiratory Journal: Journal of the General Practice Airways Group
Hilary Pinnock, Monica Fletcher, Steve Holmes, Duncan Keeley, Jane Leyshon, David Price, Richard Russell, Jenny Versnel, Bronwen Wagstaff
Globally, asthma morbidity remains unacceptably high. If outcomes are to be improved, it is crucial that routine review consultations in primary care are performed to a high standard. Key components of a review include: * Assessment of control using specific morbidity questions to elucidate the presence of symptoms, in conjunction with the frequency of use of short-acting bronchodilators and any recent history of acute attacks * After consideration of the diagnosis, and an assessment of compliance, inhaler technique, smoking status, triggers, and rhinitis, identification of poor control should result in a step-up of treatment in accordance with evidence-based guideline recommendations * Discussion should address understanding of the condition, patient-centred management goals and attitudes to regular treatment, and should include personalised self-management education Regular review of people with asthma coupled with provision of self-management education improves outcomes...
March 2010: Primary Care Respiratory Journal: Journal of the General Practice Airways Group
Katherine D Lippa, Helen Altman Klein, Valerie L Shalin
OBJECTIVE: To assess the relationship between decision making and successful diabetes self-management. BACKGROUND: Patients with type II diabetes make routine but critical self-management decisions. METHOD: We conducted cognitive task analysis interviews with 18 patients to examine problem detection, functional relationships, problem-solving strategies, and types of knowledge used to make self-management decisions. We expected that these decision processes would be related to behavioral adherence and glycemic control...
February 2008: Human Factors
Ren-Long Jan, Jiu-Yao Wang, Mei-Chih Huang, Shin-Mu Tseng, Huey-Jen Su, Li-Fan Liu
A randomized, controlled trial was conducted to assess the effectiveness of Blue Angel for Asthma Kids, an Internet-based interactive asthma educational and monitoring program, used in the management of asthmatic children. One hundred sixty-four (n = 164) pediatric patients with persistent asthma were enrolled and randomized into two study groups for a 12-week controlled trial. The intervention group had 88 participants who were taught to monitor their peak expiratory flows (PEF) and asthma symptoms daily on the Internet...
June 2007: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
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