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"Patient Privacy"

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https://www.readbyqxmd.com/read/28506329/what-to-do-when-a-patient-wants-to-record-a-patient-physician-interaction-in-the-emergency-department
#1
Brodie Nolan, Alun Ackery, Bryan Au
Recent technological advances allow for instantaneous high quality video and audio recordings with the touch of a button. In Canada, patient privacy is highly regulated by provincial legislation, although patients themselves have little in the way of laws or regulations to observe. Patients taking video recordings of their own medical care does not currently fall under any of the provincial privacy laws. With no such governance for the general public, patients generally have greater freedom to record a patient-physician interaction...
May 16, 2017: CJEM
https://www.readbyqxmd.com/read/28463208/ecg-data-encryption-then-compression-using-singular-value-decomposition
#2
Ting Yu Liu, Kuan Jen Lin, Hsi-Chun Wu
Electrocardiogram (ECG) monitoring systems are widely used in healthcare. ECG data must be compressed for transmission and storage. Furthermore, there is a need to be able to directly process biomedical signals in encrypted domains to ensure the protection of patients' privacy. Existing encryption-then-compression (ETC) approaches for multimedia using the state-of-the-art encryption techniques inevitably sacrifice the compression efficiency or signal quality. This paper presents the first ETC approach for processing ECG data...
April 27, 2017: IEEE Journal of Biomedical and Health Informatics
https://www.readbyqxmd.com/read/28437566/physical-therapists-perceptions-of-telephone-and-internet-video-mediated-service-models-for-exercise-management-of-people-with-osteoarthritis
#3
Belinda J Lawford, Kim L Bennell, Jessica Kasza, Rana S Hinman
OBJECTIVE: Investigate physical therapists' perceptions of, and willingness to use, telephone- and internet-mediated service models for exercise therapy for people with knee and/or hip osteoarthritis. METHODS: An internet-based survey of Australian physical therapists comprising three sections: i) demographic information; and 16 positively-framed perception statements about delivering exercise via ii) telephone and; iii) video over the internet, for people with hip and/or knee osteoarthritis...
April 24, 2017: Arthritis Care & Research
https://www.readbyqxmd.com/read/28436908/a-knowledge-constrained-access-control-model-for-protecting-patient-privacy-in-hospital-information-systems
#4
Runtong Zhang, Donghua Chen, Xiaopu Shang, Xiaomin Zhu, Kecheng Liu
Current access control mechanisms of the hospital information system can hardly identify the real access intention of system users. A relaxed access control increases the risk of compromise of patient privacy. To reduce unnecessary access of patient information by hospital staff, this paper proposes a Knowledge-Constrained Role-Based Access Control (KC-RBAC) model in which a variety of medical domain knowledge is considered in access control. Based on the proposed Purpose Tree and knowledge-involved algorithms, the model can dynamically define the boundary of access to the patient information according to the context, which helps protect patient privacy by controlling access...
April 24, 2017: IEEE Journal of Biomedical and Health Informatics
https://www.readbyqxmd.com/read/28432807/incidental-findings-in-student-ultrasound-models-implications-for-instructors
#5
Yonaton Siegel-Richman, John L Kendall
As ultrasonography continues to become integrated into undergraduate medical education, there have been concerns raised about the use of volunteer models and the ability to maintain patient privacy during scanning sessions. To date, there have been no reports on how instructors should manage situations in which incidental findings are made during educational ultrasonography sessions. We present three different examples of incidental findings that occurred at our institution and the various approaches taken by the instructors...
April 22, 2017: Journal of Ultrasound in Medicine: Official Journal of the American Institute of Ultrasound in Medicine
https://www.readbyqxmd.com/read/28423808/security-policy-and-infrastructure-in-the-context-of-a-multi-centeric-information-system-dedicated-to-autism-spectrum-disorder
#6
Mohamed Ben Said, Laurence Robel, Bernard Golse, Jean Philippe Jais
Autism spectrum disorders (ASD) are complex neuro-developmental disorders affecting children in their early age. The diagnosis of ASD relies on multidisciplinary investigations, in psychiatry, neurology, genetics, electrophysiology, neuro-imagery, audiology and ophthalmology. In order to support clinicians, researchers and public health decision makers, we designed an information system dedicated to ASD, called TEDIS. TEDIS was designed to manage systematic, exhaustive and continuous multi-centric patient data collection via secured Internet connections...
2017: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/28413115/rate-of-contamination-of-hospital-privacy-curtains-on-a-burns-and-plastic-surgery-ward-a-cross-sectional-study
#7
K Shek, R Patidar, Z Kohja, S Liu, J P Gawaziuk, M Gawthrop, A Kumar, S Logsetty
BACKGROUND: Surfaces in the patient environment may play a role in microbial transmission if they become colonized by bacteria. Patient privacy curtains are one such surface that may pose a high risk for transmission because they are high-contact surfaces, are infrequently cleaned, and healthcare workers are less likely to wash their hands after contacting inanimate objects such as curtains. AIM: To determine the amount and type of bacterial colonization of patient privacy curtains at a regional burns/plastic surgery unit...
March 16, 2017: Journal of Hospital Infection
https://www.readbyqxmd.com/read/28408005/balancing-the-optimal-and-the-feasible-a-practical-guide-for-setting-up-patient-registries-for-the-collection-of-real-world-data-for-health-care-decision-making-based-on-dutch-experiences
#8
Saskia de Groot, Naomi van der Linden, Margreet G Franken, Hedwig M Blommestein, Brenda Leeneman, Ellen van Rooijen, J J M Koos van der Hoeven, Michel W Wouters, Hans M Westgeest, Carin A Uyl-de Groot
OBJECTIVES: The aim of this article was to provide practical guidance in setting up patient registries to facilitate real-world data collection for health care decision making. METHODS: This guidance was based on our experiences and involvement in setting up patient registries in oncology in the Netherlands. All aspects were structured according to 1) mission and goals ("the Why"), 2) stakeholders and funding ("the Who"), 3) type and content ("the What"), and 4) identification and recruitment of patients, data handling, and pharmacovigilance ("the How")...
April 2017: Value in Health: the Journal of the International Society for Pharmacoeconomics and Outcomes Research
https://www.readbyqxmd.com/read/28399565/conducting-privacy-preserving-multivariable-propensity-score-analysis-when-patient-covariate-information-is-stored-in-separate-locations
#9
Justin Bohn, Wesley Eddings, Sebastian Schneeweiss
Distributed networks of health-care data sources are increasingly being utilized to conduct pharmacoepidemiologic database studies. Such networks may contain data that are not physically pooled but instead are distributed horizontally (separate patients within each data source) or vertically (separate measures within each data source) in order to preserve patient privacy. While multivariable methods for the analysis of horizontally distributed data are frequently employed, few practical approaches have been put forth to deal with vertically distributed health-care databases...
March 15, 2017: American Journal of Epidemiology
https://www.readbyqxmd.com/read/28363928/atraumatic-versus-traumatic-lumbar-puncture-needles-a-systematic-review-and-meta-analysis-protocol
#10
Siddharth Nath, Jetan H Badhiwala, Waleed Alhazzani, Farshad Nassiri, Emilie Belley-Cote, Alex Koziarz, Ashkan Shoamanesh, Laura Banfield, Wieslaw Oczkowski, Mike Sharma, Demetrios Sahlas, Kesava Reddy, Forough Farrokhyar, Sheila Singh, Sunjay Sharma, Nicole Zytaruk, Magdy Selim, Saleh A Almenawer
INTRODUCTION: Lumbar puncture is one of the oldest and most commonly performed procedures in medicine, used to diagnose and treat disease. Headache following lumbar puncture remains a frequent complication, causing significant patient discomfort and often requiring narcotic analgesia or invasive therapy. Needle tip design has been proposed to affect the incidence of headache postlumbar puncture, with pencil-point 'atraumatic' needles thought to reduce its incidence in comparison to bevelled 'traumatic' needles...
March 31, 2017: BMJ Open
https://www.readbyqxmd.com/read/28361730/safeguarding-confidentiality-in-electronic-health-records
#11
Akhil Shenoy, Jacob M Appel
Electronic health records (EHRs) offer significant advantages over paper charts, such as ease of portability, facilitated communication, and a decreased risk of medical errors; however, important ethical concerns related to patient confidentiality remain. Although legal protections have been implemented, in practice, EHRs may be still prone to breaches that threaten patient privacy. Potential safeguards are essential, and have been implemented especially in sensitive areas such as mental illness, substance abuse, and sexual health...
April 2017: Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal of Healthcare Ethics Committees
https://www.readbyqxmd.com/read/28358653/untapped-potential-of-observational-research-to-inform-clinical-decision-making-american-society-of-clinical-oncology-research-statement
#12
Kala Visvanathan, Laura A Levit, Derek Raghavan, Clifford A Hudis, Sandra Wong, Amylou Dueck, Gary H Lyman
ASCO believes that high-quality observational studies can advance evidence-based practice for cancer care and are complementary to randomized controlled trials (RCTs). Observational studies can generate hypotheses by evaluating novel exposures or biomarkers and by revealing patterns of care and relationships that might not otherwise be discovered. Researchers can then test these hypotheses in RCTs. Observational studies can also answer or inform questions that either have not been or cannot be answered by RCTs...
March 30, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
https://www.readbyqxmd.com/read/28357175/innovative-measures-to-combat-rare-diseases-in-china-the-national-rare-diseases-registry-system-larger-scale-clinical-cohort-studies-and-studies-in-combination-with-precision-medicine-research
#13
REVIEW
Peipei Song, Jiangjiang He, Fen Li, Chunlin Jin
China is facing the great challenge of treating the world's largest rare disease population, an estimated 16 million patients with rare diseases. One effort offering promise has been a pilot national project that was launched in 2013 and that focused on 20 representative rare diseases. Another government-supported special research program on rare diseases - the "Rare Diseases Clinical Cohort Study" - was launched in December 2016. According to the plan for this research project, the unified National Rare Diseases Registry System of China will be established as of 2020, and a large-scale cohort study will be conducted from 2016 to 2020...
February 2017: Intractable & Rare Diseases Research
https://www.readbyqxmd.com/read/28348183/smartphone-application-for-women-with-gestational-diabetes-mellitus-a-study-protocol-for-a-multicentre-randomised-controlled-trial
#14
Iren Borgen, Lisa Maria Garnweidner-Holme, Anne Flem Jacobsen, Kirsti Bjerkan, Seraj Fayyad, Pål Joranger, Anne Marie Lilleengen, Annhild Mosdøl, Josef Noll, Milada Cvancarova Småstuen, Laura Terragni, Liv Elin Torheim, Mirjam Lukasse
INTRODUCTION: The promotion of a healthy diet, physical activity and measurement of blood glucose levels are essential components in the care for women with gestational diabetes mellitus (GDM). Smartphones offer a new way to promote health behaviour. The main aim is to investigate if the use of the Pregnant+ app, in addition to standard care, results in better blood glucose levels compared with current standard care only, for women with GDM. METHODS AND ANALYSIS: This randomised controlled trial will include 230 pregnant women with GDM followed up at 5 outpatient departments (OPD) in the greater Oslo Region...
March 27, 2017: BMJ Open
https://www.readbyqxmd.com/read/28336803/facilitating-the-ethical-use-of-health-data-for-the-benefit-of-society-electronic-health-records-consent-and-the-duty-of-easy-rescue
#15
Sebastian Porsdam Mann, Julian Savulescu, Barbara J Sahakian
Advances in data science allow for sophisticated analysis of increasingly large datasets. In the medical context, large volumes of data collected for healthcare purposes are contained in electronic health records (EHRs). The real-life character and sheer amount of data contained in them make EHRs an attractive resource for public health and biomedical research. However, medical records contain sensitive information that could be misused by third parties. Medical confidentiality and respect for patients' privacy and autonomy protect patient data, barring access to health records unless consent is given by the data subject...
December 28, 2016: Philosophical Transactions. Series A, Mathematical, Physical, and Engineering Sciences
https://www.readbyqxmd.com/read/28302050/implementation-of-clinical-research-trials-using-web-based-and-mobile-devices-challenges-and-solutions
#16
EDITORIAL
Roy Eagleson, Luis Altamirano-Diaz, Alex McInnis, Eva Welisch, Stefanie De Jesus, Harry Prapavessis, Meghan Rombeek, Jamie A Seabrook, Teresa Park, Kambiz Norozi
BACKGROUND: With the increasing implementation of web-based, mobile health interventions in clinical trials, it is crucial for researchers to address the security and privacy concerns of patient information according to high ethical standards. The full process of meeting these standards is often made more complicated due to the use of internet-based technology and smartphones for treatment, telecommunication, and data collection; however, this process is not well-documented in the literature...
March 17, 2017: BMC Medical Research Methodology
https://www.readbyqxmd.com/read/28284408/-hospital-care-in-estonia-thoughts-on-patient-privacy
#17
REVIEW
Aline Schoenacker
A student nurse is doing a work placement in a hospital in Estonia. The care techniques are identical to those with which she is familiar. However, the application of concepts of privacy and modesty is somewhat different. A reflexive analysis of the situation ensures no hasty judgements are made and enables her to think about the place of her own representations.
March 2017: Revue de L'infirmière
https://www.readbyqxmd.com/read/28264187/making-trade-offs-for-safe-effective-and-secure-patient-care
#18
Dan Lyon
As the health care model evolves to deliver on demand care, patients are becoming more responsible and interested in their data. The security of the medical devices and connected systems becomes increasingly more important because it plays a significant role in achieving better patient outcomes. Diabetes patients are at the forefront of this evolution and yet on the receiving end of diabetic equipment manufacturers delivering systems that support secure care. In order to deliver the best patient outcomes, complex trade-offs are required, including (1) usability, (2) cost, (3) time to market, (4) device life cycle, and (5) patient privacy...
March 2017: Journal of Diabetes Science and Technology
https://www.readbyqxmd.com/read/28244455/epidemiological-and-survival-analysis-of-triple-negative-breast-cancer-cases-in-a-retrospective-multicenter-study
#19
MULTICENTER STUDY
R Sarin, L Khandrika, Rnm Hanitha, A Avula, M Batra, S Kaul, H Raj, S Shivkumar, S Gupta, E Khan, Tps Bhandari, Svss Prasad, V A Reddy, G Swarnalata, M Bakre, S Chatterjee, J Jain
INTRODUCTION: This is a retrospective study with data collected from breast cancer cases from five major Apollo Hospitals across India, as part of a biobanking process. One aspect of our study focused specifically on data from triple-negative breast cancer (TNBC) cases. The aim of this study was to analyze epidemiology, treatment options, and survival of the patients with TNBC. Our goal was to draw conclusions on the preponderance of the disease and also to understand the outcomes using the existing therapy options...
July 2016: Indian Journal of Cancer
https://www.readbyqxmd.com/read/28229366/mining-cancer-transcriptomes-bioinformatic-tools-and-the-remaining-challenges
#20
Thomas Milan, Brian T Wilhelm
The development of next-generation sequencing technologies has had a profound impact on the field of cancer genomics. With the enormous quantities of data being generated from tumor samples, researchers have had to rapidly adapt tools or develop new ones to analyse the raw data to maximize its value. While much of this effort has been focused on improving specific algorithms to get faster and more precise results, the accessibility of the final data for the research community remains a significant problem. Large amounts of data exist but are not easily available to researchers who lack the resources and experience to download and reanalyze them...
June 2017: Molecular Diagnosis & Therapy
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