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"Patient Privacy"

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https://www.readbyqxmd.com/read/28302050/implementation-of-clinical-research-trials-using-web-based-and-mobile-devices-challenges-and-solutions
#1
EDITORIAL
Roy Eagleson, Luis Altamirano-Diaz, Alex McInnis, Eva Welisch, Stefanie De Jesus, Harry Prapavessis, Meghan Rombeek, Jamie A Seabrook, Teresa Park, Kambiz Norozi
BACKGROUND: With the increasing implementation of web-based, mobile health interventions in clinical trials, it is crucial for researchers to address the security and privacy concerns of patient information according to high ethical standards. The full process of meeting these standards is often made more complicated due to the use of internet-based technology and smartphones for treatment, telecommunication, and data collection; however, this process is not well-documented in the literature...
March 17, 2017: BMC Medical Research Methodology
https://www.readbyqxmd.com/read/28284408/-hospital-care-in-estonia-thoughts-on-patient-privacy
#2
REVIEW
Aline Schoenacker
A student nurse is doing a work placement in a hospital in Estonia. The care techniques are identical to those with which she is familiar. However, the application of concepts of privacy and modesty is somewhat different. A reflexive analysis of the situation ensures no hasty judgements are made and enables her to think about the place of her own representations.
March 2017: Revue de L'infirmière
https://www.readbyqxmd.com/read/28264187/making-trade-offs-for-safe-effective-and-secure-patient-care
#3
Dan Lyon
As the health care model evolves to deliver on demand care, patients are becoming more responsible and interested in their data. The security of the medical devices and connected systems becomes increasingly more important because it plays a significant role in achieving better patient outcomes. Diabetes patients are at the forefront of this evolution and yet on the receiving end of diabetic equipment manufacturers delivering systems that support secure care. In order to deliver the best patient outcomes, complex trade-offs are required, including (1) usability, (2) cost, (3) time to market, (4) device life cycle, and (5) patient privacy...
March 2017: Journal of Diabetes Science and Technology
https://www.readbyqxmd.com/read/28244455/epidemiological-and-survival-analysis-of-triple-negative-breast-cancer-cases-in-a-retrospective-multicenter-study
#4
R Sarin, L Khandrika, Rnm Hanitha, A Avula, M Batra, S Kaul, H Raj, S Shivkumar, S Gupta, E Khan, Tps Bhandari, Svss Prasad, V A Reddy, G Swarnalata, M Bakre, S Chatterjee, J Jain
INTRODUCTION: This is a retrospective study with data collected from breast cancer cases from five major Apollo Hospitals across India, as part of a biobanking process. One aspect of our study focused specifically on data from triple-negative breast cancer (TNBC) cases. The aim of this study was to analyze epidemiology, treatment options, and survival of the patients with TNBC. Our goal was to draw conclusions on the preponderance of the disease and also to understand the outcomes using the existing therapy options...
July 2016: Indian Journal of Cancer
https://www.readbyqxmd.com/read/28229366/mining-cancer-transcriptomes-bioinformatic-tools-and-the-remaining-challenges
#5
Thomas Milan, Brian T Wilhelm
The development of next-generation sequencing technologies has had a profound impact on the field of cancer genomics. With the enormous quantities of data being generated from tumor samples, researchers have had to rapidly adapt tools or develop new ones to analyse the raw data to maximize its value. While much of this effort has been focused on improving specific algorithms to get faster and more precise results, the accessibility of the final data for the research community remains a significant problem. Large amounts of data exist but are not easily available to researchers who lack the resources and experience to download and reanalyze them...
February 22, 2017: Molecular Diagnosis & Therapy
https://www.readbyqxmd.com/read/28166481/the-benefits-risks-and-costs-of-privacy-patient-preferences-and-willingness-to-pay
#6
David E Trachtenbarg, Carl Asche, Shweta Ramsahai, Joy Duling, Jinma Ren
OBJECTIVE: Multiple surveys show that patients want medical privacy; however, there are costs to maintaining privacy. There are also risks if information is not shared. A review of previous surveys found that most surveys asked questions about patient's privacy concerns and willingness to share their medical information. We found only one study that asked about sharing medical information for better care and no survey that asked patients about the risk, cost or comparison between medical privacy and privacy in other areas...
March 12, 2017: Current Medical Research and Opinion
https://www.readbyqxmd.com/read/28155206/ethical-perspectives-on-recommending-digital-technology-for-patients-with-mental-illness
#7
REVIEW
Michael Bauer, Tasha Glenn, Scott Monteith, Rita Bauer, Peter C Whybrow, John Geddes
The digital revolution in medicine not only offers exciting new directions for the treatment of mental illness, but also presents challenges to patient privacy and security. Changes in medicine are part of the complex digital economy based on creating value from analysis of behavioral data acquired by the tracking of daily digital activities. Without an understanding of the digital economy, recommending the use of technology to patients with mental illness can inadvertently lead to harm. Behavioral data are sold in the secondary data market, combined with other data from many sources, and used in algorithms that automatically classify people...
December 2017: International Journal of Bipolar Disorders
https://www.readbyqxmd.com/read/28129194/securemed-secure-medical-computation-using-gpu-accelerated-homomorphic-encryption-scheme
#8
Alhassan Khedr, Glenn Gulak
Sharing the medical records of individuals among healthcare providers and researchers around the world can accelerate advances in medical research. While the idea seems increasingly practical due to cloud data services, maintaining patient privacy is of paramount importance. Standard encryption algorithms help protect sensitive data from outside attackers but they cannot be used to compute on this sensitive data while being encrypted. Homomorphic Encryption (HE) presents a very useful tool that can compute on encrypted data without the need to decrypt it...
January 23, 2017: IEEE Journal of Biomedical and Health Informatics
https://www.readbyqxmd.com/read/28110993/observers-in-the-medical-setting
#9
Joel M Geiderman
Requests for observation experiences are common in the emergency department and other medical settings. There is little guidance in the literature or in professional societies' polices about who should be granted this privilege. This article reviews the ethical and legal issues that should be taken into account when one decides whether to allow observers in the medical setting. At the heart of the issue is patient privacy. This article recommends that institutions have policies in place that address these activities and suggests content for such policies...
January 19, 2017: Annals of Emergency Medicine
https://www.readbyqxmd.com/read/28095843/the-tidal-waves-of-connected-health-devices-with-healthcare-applications-consequences-on-privacy-and-care-management-in-european-healthcare-systems
#10
Francois-André Allaert, Noël-Jean Mazen, Louis Legrand, Catherine Quantin
BACKGROUND: The market for Connected Health Devices (CHD) with healthcare applications is growing fast and should be worth several billion euros in turnover in the coming years. Their development will completely transform the organisation of our healthcare system, profoundly change the way patients are managed and revolutionizes disease prevention. MAIN BODY: The CHD with healthcare applications is a tidal wave that has societal impact calling into question the privacy of patients' personal and healthcare information and its protection in secure systems...
January 17, 2017: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/28094638/how-to-remove-an-indwelling-urinary-catheter-in-female-patients
#11
Alison Bardsley
Rationale and key points This article aims to assist nurses to undertake the removal of an indwelling urinary catheter in female patients in a safe, timely, effective and patient-centred manner, while maintaining the patient's privacy and dignity. It is important for the nurse to be competent in undertaking this procedure, and to be aware of local and national policies on catheter removal. » Indwelling urinary catheters should be changed only when clinically necessary, or according to the manufacturer's guidelines...
January 4, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28077035/nurses-online-behaviour-lessons-for-the-nursing-profession
#12
Janet Green
Social networking has become an extremely popular online activity, however like many activities on the internet, there are some privacy risks and concerns associated with its use. In recent years an increasing number of nurses have been censured or asked to appear before regulatory or registering authorities for unprofessional behaviour on social media sites. Problem behaviours identified include: inappropriate content and postings, crossing professional boundaries and breaching patient privacy and confidentiality...
January 12, 2017: Contemporary Nurse
https://www.readbyqxmd.com/read/28025748/patient-derived-xenograft-pdx-models-in-basic-and-translational-breast-cancer-research
#13
Lacey E Dobrolecki, Susie D Airhart, Denis G Alferez, Samuel Aparicio, Fariba Behbod, Mohamed Bentires-Alj, Cathrin Brisken, Carol J Bult, Shirong Cai, Robert B Clarke, Heidi Dowst, Matthew J Ellis, Eva Gonzalez-Suarez, Richard D Iggo, Peter Kabos, Shunqiang Li, Geoffrey J Lindeman, Elisabetta Marangoni, Aaron McCoy, Funda Meric-Bernstam, Helen Piwnica-Worms, Marie-France Poupon, Jorge Reis-Filho, Carol A Sartorius, Valentina Scabia, George Sflomos, Yizheng Tu, François Vaillant, Jane E Visvader, Alana Welm, Max S Wicha, Michael T Lewis
Patient-derived xenograft (PDX) models of a growing spectrum of cancers are rapidly supplanting long-established traditional cell lines as preferred models for conducting basic and translational preclinical research. In breast cancer, to complement the now curated collection of approximately 45 long-established human breast cancer cell lines, a newly formed consortium of academic laboratories, currently from Europe, Australia, and North America, herein summarizes data on over 500 stably transplantable PDX models representing all three clinical subtypes of breast cancer (ER+, HER2+, and "Triple-negative" (TNBC))...
December 2016: Cancer Metastasis Reviews
https://www.readbyqxmd.com/read/28025730/automated-facial-recognition-of-computed-tomography-derived-facial-images-patient-privacy-implications
#14
Connie L Parks, Keith L Monson
The recognizability of facial images extracted from publically available medical scans raises patient privacy concerns. This study examined how accurately facial images extracted from computed tomography (CT) scans are objectively matched with corresponding photographs of the scanned individuals. The test subjects were 128 adult Americans ranging in age from 18 to 60 years, representing both sexes and three self-identified population (ancestral descent) groups (African, European, and Hispanic). Using facial recognition software, the 2D images of the extracted facial models were compared for matches against five differently sized photo galleries...
April 2017: Journal of Digital Imaging: the Official Journal of the Society for Computer Applications in Radiology
https://www.readbyqxmd.com/read/28007583/towards-a-privacy-preserving-cohort-discovery-framework-for-clinical-research-networks
#15
Jiawei Yuan, Bradley Malin, François Modave, Yi Guo, William R Hogan, Elizabeth Shenkman, Jiang Bian
BACKGROUND: The last few years have witnessed an increasing number of clinical research networks (CRNs) focused on building large collections of data from electronic health records (EHRs), claims, and patient-reported outcomes (PROs). Many of these CRNs provide a service for the discovery of research cohorts with various health conditions, which is especially useful for rare diseases. Supporting patient privacy can enhance the scalability and efficiency of such processes; however, current practice mainly relies on policy, such as guidelines defined in the Health Insurance Portability and Accountability Act (HIPAA), which are insufficient for CRNs (e...
December 19, 2016: Journal of Biomedical Informatics
https://www.readbyqxmd.com/read/27995826/patient-staff-and-clinician-perspectives-on-implementing-electronic-communications-in-an-interdisciplinary-rural-family-health-practice
#16
Feng Chang, Thivaher Paramsothy, Matthew Roche, Nishi S Gupta
Aim To conduct an environmental scan of a rural primary care clinic to assess the feasibility of implementing an e-communications system between patients and clinic staff. BACKGROUND: Increasing demands on healthcare require greater efficiencies in communications and services, particularly in rural areas. E-communications may improve clinic efficiency and delivery of healthcare but raises concerns about patient privacy and data security. METHODS: We conducted an environmental scan at one family health team clinic, a high-volume interdisciplinary primary care practice in rural southwestern Ontario, Canada, to determine the feasibility of implementing an e-communications system between its patients and staff...
December 20, 2016: Primary Health Care Research & Development
https://www.readbyqxmd.com/read/27957310/evaluation-of-patients-rights-observance-according-to-patients-rights-charter-in-educational-hospitals-affiliated-to-mashhad-university-of-medical-sciences-medical-staffs-views
#17
Alireza Sabzevari, Mohammad Ali Kiani, Masumeh Saeidi, Seyed Ali Jafari, Hamidreza Kianifar, Hamid Ahanchian, Lida Jarahi, Mohsen Zakerian
INTRODUCTION: To supply quality services and healthcare, it is evident that medical ethics and patients' rights, while providing medical and healthcare services need to be observed. This study was conducted to evaluate observance of the Patients' Rights Charter among medical staff of educational hospitals affiliated to Mashhad University of Medical Sciences. METHODS: This cross-sectional study was conducted in four educational hospitals in Mashhad on eighty physicians, nurses, nurse aids and medical students...
October 2016: Electronic Physician
https://www.readbyqxmd.com/read/27925381/doctors-use-of-mobile-devices-in-the-clinical-setting-a-mixed-methods-study
#18
Arany Nerminathan, Amanda Harrison, Megan Phelps, Karen M Scott, Shirley Alexander
BACKGROUND: Mobile device use has become almost ubiquitous in daily life and therefore includes use by doctors in clinical settings. There has been little study as to the patterns of use and impact this has on doctors in the workplace and how negatively or positively it impacts at the point of care. AIM: To explore how doctors use mobile devices in the clinical setting and understand drivers for use. METHODS: A mixed methods study was used with doctors in a paediatric and adult teaching hospital in 2013...
March 2017: Internal Medicine Journal
https://www.readbyqxmd.com/read/27897013/harnessing-big-data-for-precision-medicine-infrastructures-and-applications
#19
Kun-Hsing Yu, Steven N Hart, Rachel Goldfeder, Qiangfeng Cliff Zhang, Stephen C J Parker, Michael Snyder
Precision medicine is a health management approach that accounts for individual differences in genetic backgrounds and environmental exposures. With the recent advancements in high-throughput omics profiling technologies, collections of large study cohorts, and the developments of data mining algorithms, big data in biomedicine is expected to provide novel insights into health and disease states, which can be translated into personalized disease prevention and treatment plans. However, petabytes of biomedical data generated by multiple measurement modalities poses a significant challenge for data analysis, integration, storage, and result interpretation...
2016: Pacific Symposium on Biocomputing
https://www.readbyqxmd.com/read/27867450/preserving-patient-privacy-when-sharing-same-disease-data
#20
Xiaoping Liu, Xiao-Bai Li, Luvai Motiwalla, Wenjun Li, Hua Zheng, Patricia D Franklin
Medical and health data are often collected for studying a specific disease. For such same-disease microdata, a privacy disclosure occurs as long as an individual is known to be in the microdata. Individuals in same-disease microdata are thus subject to higher disclosure risk than those in microdata with different diseases. This important problem has been overlooked in data-privacy research and practice, and no prior study has addressed this problem. In this study, we analyze the disclosure risk for the individuals in same-disease microdata and propose a new metric that is appropriate for measuring disclosure risk in this situation...
October 2016: ACM Journal of Data and Information Quality
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