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https://www.readbyqxmd.com/read/29779949/disease-heritability-inferred-from-familial-relationships-reported-in-medical-records
#1
Fernanda C G Polubriaginof, Rami Vanguri, Kayla Quinnies, Gillian M Belbin, Alexandre Yahi, Hojjat Salmasian, Tal Lorberbaum, Victor Nwankwo, Li Li, Mark M Shervey, Patricia Glowe, Iuliana Ionita-Laza, Mary Simmerling, George Hripcsak, Suzanne Bakken, David Goldstein, Krzysztof Kiryluk, Eimear E Kenny, Joel Dudley, David K Vawdrey, Nicholas P Tatonetti
Heritability is essential for understanding the biological causes of disease but requires laborious patient recruitment and phenotype ascertainment. Electronic health records (EHRs) passively capture a wide range of clinically relevant data and provide a resource for studying the heritability of traits that are not typically accessible. EHRs contain next-of-kin information collected via patient emergency contact forms, but until now, these data have gone unused in research. We mined emergency contact data at three academic medical centers and identified 7...
May 15, 2018: Cell
https://www.readbyqxmd.com/read/29763392/should-family-be-permitted-in-a-trauma-bay
#2
Matthew Traylor
This essay explores how some of the arguments advanced for and against family presence during cardiopulmonary resuscitation might apply to the question of whether family should be permitted in the trauma bay. While the first section suggests that many of the proposed benefits might apply to family presence during trauma resuscitations, the second section contends that family presence in the trauma bay could detract from the quality of patient care, violate patient privacy, and be psychologically damaging for the witnessing family...
May 1, 2018: AMA Journal of Ethics
https://www.readbyqxmd.com/read/29754891/should-medical-students-follow-up-on-skin-biopsy-results-when-education-conflicts-with-patient-privacy
#3
Marissa L H Baranowski, Benjamin K Stoff
No abstract text is available yet for this article.
June 2018: Journal of the American Academy of Dermatology
https://www.readbyqxmd.com/read/29734885/patients-perception-of-dignity-in-iranian-general-hospital-settings
#4
Fahimeh Alsadat Hosseini, Marzieh Momennasab, Shahrzad Yektatalab, Armin Zareiyan
BACKGROUND: Dignified care is one of the main objectives of holistic care. Furthermore, paying attention to dignity as one of the fundamental rights of patients is extremely important. However, in many cases, the dignity of hospitalized patients is not considered. Dignity is an abstract concept, and comprehensive studies of the dignity of Iranian patients hospitalized in general hospital settings are limited. OBJECTIVE: The aim of this study was to explore the concept of dignity from the perspective of patients hospitalized in general hospital settings in Iran...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29732378/advancing-patient-centered-care-in-tuberculosis-management-a-mixed-methods-appraisal-of-video-directly-observed-therapy
#5
Samuel B Holzman, Avi Zenilman, Maunank Shah
Background: Directly observed therapy (DOT) remains an integral component of treatment support and adherence monitoring in tuberculosis care. In-person DOT is resource intensive and often burdensome for patients. Video DOT (vDOT) has been proposed as an alternative to increase treatment flexibility and better meet patient-specific needs. Methods: We conducted a pragmatic, prospective pilot implementation of vDOT at 3 TB clinics in Maryland. A mixed-methods approach was implemented to assess (1) effectiveness, (2) acceptability, and (3) cost...
April 2018: Open Forum Infectious Diseases
https://www.readbyqxmd.com/read/29726422/effectiveness-of-anonymization-methods-in-preserving-patients-privacy-a-systematic-literature-review
#6
Mostafa Langarizadeh, Azam Orooji, Abbas Sheikhtaheri
BACKGROUND: An ever growing for application of electronic health records (EHRs) has improved healthcare providers' communications, access to data for secondary use and promoted the quality of services. Patient's privacy has been changed to a great issue today since there are large loads of critical information in EHRs. Therefore, many privacy preservation techniques have been proposed and anonymization is a common one. OBJECTIVES: This study aimed to investigate the effectiveness of anonymization in preserving patients' privacy...
2018: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/29724740/effectiveness-of-a-computerised-system-of-patient-education-in-clinical-practice-a-longitudinal-nested-cohort-study
#7
Chia-Hsien Su, Tsai-Chung Li, Der-Yang Cho, Wei-Fen Ma, Yu-Shan Chang, Tsung-Han Lee, Li-Chi Huang
INTRODUCTION: Developing electronic health record information systems is an international trend for promoting the integration of health information and enhancing the quality of medical services. Patient education is a frequent intervention in nursing care, and recording the amount and quality of patient education have become essential in the nursing record. The aims of this study are (1): to develop a high-quality Patient Education Assessment and Description Record System (PEADRS) in the electronic medical record (2); to examine the effectiveness of the PEADRS on documentation and nurses' satisfaction (3); to facilitate communication and cooperation between professionals...
May 3, 2018: BMJ Open
https://www.readbyqxmd.com/read/29715061/guidelines-for-the-ethical-publication-of-facial-photographs-and-review-of-the-literature
#8
Katelyn G Bennett, Steven C Bonawitz, Christian J Vercler
Facial photography presents a unique ethical dilemma, as faces are difficult to deidentify for publication. We performed a review of the literature to examine current guidelines for the publication of facial photographs. We also reviewed societies' websites, journal requirements, and ethical and legal aspects of confidentiality. Most articles emphasized the importance of consent for photography and publication. Masking is not appropriate, but some journals continue to allow masking. Most legislation allows patients to restrict the uses of photographs...
January 1, 2018: Cleft Palate-craniofacial Journal
https://www.readbyqxmd.com/read/29703006/high-18f-fluorodeoxyglucose-uptake-in-primary-bilateral-adrenal-diffuse-large-b-cell-lymphomas-with-nongerminal-center-b-cell-phenotype-a-case-report
#9
Jing Zhou, Yigang Zhao, Zhengxing Gou
RATIONALE: Bilateral adrenal diffuse large B-cell lymphoma, nongerminal center B-cell phenotype (non-GCB DLBCL), is an uncommon malignancy that exhibits rapid development. Fluorine-18-fluorodeoxyglucose position emission tomography/computed tomography (CT) is extremely sensitive in distinguishing highly malignant tumors from benign tumors. PATIENT CONCERNS: We report a case of non-GCB DLBCL showing significantly high uptake of 18F-FDG on PET/CT examination. DIAGNOSES: Histopathological and immunohistochemical examination further confirmed that the bilateral adrenal masses were non-GCB DLBCL...
April 2018: Medicine (Baltimore)
https://www.readbyqxmd.com/read/29681040/balancing-between-privacy-and-patient-needs-for-health-information-in-the-age-of-participatory-health-and-social-media-a-scoping-review
#10
Mowafa Househ, Rebecca Grainger, Carolyn Petersen, Panagiotis Bamidis, Mark Merolli
OBJECTIVES:  With the increased use of participatory health enabling technologies, such as social media, balancing the need for health information with patient privacy and confidentiality has become a more complex and immediate concern. The purpose of this paper produced by the members of the IMIA Fbrticipatoiy Health and Social Media (PHSM) working group is to investigate patient needs for health information using participatory health enabling technologies, while balancing their needs for privacy and confidentiality...
April 22, 2018: Yearbook of Medical Informatics
https://www.readbyqxmd.com/read/29678079/implementing-modular-research-consents-using-ihe-advanced-patient-privacy-consents
#11
Bjoern Schreiweis, Tobias Bronsch, Angela Merzweiler, Bjoern Bergh
The re-use of healthcare information for biomedical research is increasing and with it the importance of a consent management framework implementing computable consents. Based on requirements concerning a consent representation the Advanced Patient Privacy Consents (APPC) Profile of Integrating the Healthcare Enterprise (IHE) is evaluated and mapped to these requirements. As IHE APPC was developed for computable patient consents, the mapping of consents for research projects is possible by re-using the elements defined...
2018: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/29677925/designing-an-authorization-system-based-on-patient-privacy-preferences-in-japan
#12
Kensuke Morris, Goshiro Yamamoto, Shusuke Hiragi, Shosuke Ohtera, Michi Sakai, Osamu Sugiyama, Kazuya Okamoto, Masayuki Nambu, Tomohiro Kuroda
High accessibility of Electronic Health Record systems can increase usability but creates simultaneously patients' anxieties about privacy issues. In order to reduce the privacy concerns, we focused on control and awareness, and designed an approach that can provide availability of patient's clinical data to doctors in two scenarios; (S1) direct control by the patient when they are conscious, (S2) control by a trusted representative when the patient is unconscious. In this paper, we show further analysis in a survey (n = 310, age range: 19-91) done to test the acceptability of our concept of a using a trusted representative and to further understand the concerns of Japanese citizens to improve our system design...
2018: Studies in Health Technology and Informatics
https://www.readbyqxmd.com/read/29671879/harnessing-mhealth-technologies-to-increase-physical-activity-and-prevent-cardiovascular-disease
#13
REVIEW
David I Feldman, W Theodore Robison, Justin M Pacor, Luke C Caddell, Erica B Feldman, Rachel L Deitz, Theodore Feldman, Seth S Martin, Khurram Nasir, Michael J Blaha
Cardiovascular prevention research has increasingly focused on mobile health (mHealth) technologies and their efficacy in helping individuals adhere to heart-healthy recommendations, including daily physical activity levels. By including the use of mHealth technologies in the discussion of physical activity recommendations, clinicians empower patients to play an active daily role in modifying their cardiovascular risk factor profile. In this review, we critically evaluate the mHealth and physical activity literature to determine how these tools may lower cardiovascular risk while providing real-time tracking, feedback and motivation on physical activity levels...
April 19, 2018: Clinical Cardiology
https://www.readbyqxmd.com/read/29655669/rate-of-contamination-of-hospital-privacy-curtains-in-a-burns-plastic-ward-a-longitudinal-study
#14
Kevin Shek, Rakesh Patidar, Zeenib Kohja, Song Liu, Justin P Gawaziuk, Monika Gawthrop, Ayush Kumar, Sarvesh Logsetty
BACKGROUND: Since hospital patient privacy curtains can harbor bacteria, are high-touch surfaces, and are cleaned infrequently, they may be involved in pathogen transmission. The aim of this longitudinal prospective study was to understand curtain contamination to inform curtain hygiene protocols, thereby minimizing the role of curtains in pathogen transmission. METHODS: Over 21 days, cultures of 10 freshly laundered curtains (8 test curtains surrounding patient beds and 2 controls in an unoccupied staff room) were taken in the Regional Burns/Plastics Unit...
April 11, 2018: American Journal of Infection Control
https://www.readbyqxmd.com/read/29619348/balancing-the-need-for-clinical-photography-with-patient-privacy-issues-the-search-for-a-secure-smartphone-application-to-take-and-store-clinical-photographs
#15
Danielle O Dumestre, Frankie O G Fraulin
Background: Physicians are increasingly using smartphones to take clinical photographs. This study evaluates a smartphone application for clinical photography that prioritizes and facilitates patient security. Methods: Ethics approval was obtained to trial a smartphone clinical photography application, PicSafe Medi. Calgary plastic surgeons and residents used the application to obtain informed consent and photograph patients. Surveys gauging the application's usability, consent process, and photograph storage/sharing were then sent to surgeons and patients...
November 2017: Plastic Surgery
https://www.readbyqxmd.com/read/29558850/respecting-the-privacy-of-hospitalized-patients-an-integrative-review
#16
Tayebeh Hasan Tehrani, Sadat Seyed Bagher Maddah, Masoud Fallahi-Khoshknab, Abbas Ebadi, Farahnaz Mohammadi Shahboulaghi, Mark Gillespie
BACKGROUND: Privacy is a complicated and obscure concept, which has special meanings in the healthcare environment; therefore, it is essential for healthcare providers to fully understand this concept. However, there is no universally accepted definition for this concept in the texts, and it has been interpreted differently, based on its application. AIM: To analyze and provide a clear and scientific definition for respect of privacy of hospitalized patients and identify the common aspects of this concept...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29551931/adaptive-medical-image-encryption-algorithm-based-on-multiple-chaotic-mapping
#17
Xiao Chen, Chun-Jie Hu
Digital images are now widely used in modern clinic diagnosis. The diagnostic images with confidential information related to patients' privacy are stored and transmitted via public networks. Secured schemes to guarantee confidentiality of patients' privacy are becoming more and more vital. This paper proposes an adaptive medical image encryption algorithm based on improved chaotic mapping in order to overcome the defects of the existing chaotic image encryption algorithm. First, the algorithm used Logistic-sine chaos mapping to scramble the plain image...
December 2017: Saudi Journal of Biological Sciences
https://www.readbyqxmd.com/read/29525767/effectiveness-of-evidence-based-treatments-of-fetal-alcohol-spectrum-disorders-in-children-and-adolescents-a-systematic-review-protocol
#18
Deepa Singal, Chantalle Menard, Christine J Neilson, Marni Brownell, Ana Hanlon-Dearman, Albert Chudley, Ryan Zarychanski, Ahmed Abou-Setta
INTRODUCTION: The aim of this paper is to provide a protocol for a systematic review assessing the effectiveness of evidence from randomised controlled trials comparing fetal alcohol spectrum disorders pharmacological and non-pharmacological interventions with placebo/dummy interventions or usual standards of care in children and adolescents (<18 years old). METHODS AND ANALYSIS: The following electronic databases will be searched: Medline (Ovid), Cumulative Index of Nursing and Allied Health Plus with Full text (EBSCO), Cochrane Central Register of Controlled Trials (Cochrane Library-Wiley), PsycINFO (ProQuest) and Proquest DissertationsandTheses will be searched from inception to March 2017 for relevant citations of published trials using individualised search strategies prepared for database...
March 9, 2018: BMJ Open
https://www.readbyqxmd.com/read/29504206/the-role-of-hipaa-omnibus-rules-in-reducing-the-frequency-of-medical-data-breaches-insights-from-an-empirical-study
#19
Niam Yaraghi, Ram D Gopal
Policy Points: Frequent data breaches in the US health care system undermine the privacy of millions of patients every year-a large number of which happen among business associates of the health care providers that continue to gain unprecedented access to patients' data as the US health care system becomes digitally integrated. Implementation of the HIPAA Omnibus Rules in 2013 has led to a significant decrease in the number of privacy breach incidents among business associates. CONTEXT: Frequent data breaches in the US health care system undermine the privacy of millions of patients every year...
March 2018: Milbank Quarterly
https://www.readbyqxmd.com/read/29500026/critical-care-health-informatics-collaborative-cchic-data-tools-and-methods-for-reproducible-research-a-multi-centre-uk-intensive-care-database
#20
Steve Harris, Sinan Shi, David Brealey, Niall S MacCallum, Spiros Denaxas, David Perez-Suarez, Ari Ercole, Peter Watkinson, Andrew Jones, Simon Ashworth, Richard Beale, Duncan Young, Stephen Brett, Mervyn Singer
OBJECTIVE: To build and curate a linkable multi-centre database of high resolution longitudinal electronic health records (EHR) from adult Intensive Care Units (ICU). To develop a set of open-source tools to make these data 'research ready' while protecting patient's privacy with a particular focus on anonymisation. MATERIALS AND METHODS: We developed a scalable EHR processing pipeline for extracting, linking, normalising and curating and anonymising EHR data. Patient and public involvement was sought from the outset, and approval to hold these data was granted by the NHS Health Research Authority's Confidentiality Advisory Group (CAG)...
April 2018: International Journal of Medical Informatics
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