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adult cerebral palsy

O Laporta-Hoyos, J Ballester-Plané, P Póo, A Macaya, M Meléndez-Plumed, E Vázquez, I Delgado, L Zubiaurre-Elorza, V L Botellero, A Narberhaus, E Toro-Tamargo, D Segarra, R Pueyo
PURPOSE: Quality of life (QOL) is a key outcome for people with cerebral palsy (CP), and executive functioning is an important predictor of QOL in other health-related conditions. Little is known about this association in CP or about its neural substrate. We aim to analyze the influence of executive functioning (including cognitive flexibility) as well as that of other psychological, motor, communication and socioeconomic variables on QOL and to identify neuroanatomical areas related to QOL in adolescents and adults with CP...
October 20, 2016: Quality of Life Research
Sylvie Chokron, Gordon N Dutton
Cerebral visual impairment (CVI) has become the primary cause of visual impairment and blindness in children in industrialized countries. Its prevalence has increased sharply, due to increased survival rates of children who sustain severe neurological conditions during the perinatal period. Improved diagnosis has probably contributed to this increase. As in adults, the nature and severity of CVI in children relate to the cause, location and extent of damage to the brain. In the present paper, we define CVI and how this impacts on visual function...
2016: Frontiers in Psychology
Nancy Bagatell, Dara Chan, Kimberly Karrat Rauch, Deborah Thorpe
BACKGROUND: The transition to adulthood, the gradual change in roles and responsibilities, is identified as a challenging time for adolescents and young adults with physical disabilities, including those with cerebral palsy. Health care, education, employment, independent living, and community engagement have been identified as areas of concern. However, relatively little research has been done to understand the experiences, perceptions, and needs of individuals with cerebral palsy as they transition toward adulthood...
October 3, 2016: Disability and Health Journal
Keith M Godfrey, Rebecca M Reynolds, Susan L Prescott, Moffat Nyirenda, Vincent W V Jaddoe, Johan G Eriksson, Birit F P Broekman
In addition to immediate implications for pregnancy complications, increasing evidence implicates maternal obesity as a major determinant of offspring health during childhood and later adult life. Observational studies provide evidence for effects of maternal obesity on her offspring's risks of obesity, coronary heart disease, stroke, type 2 diabetes, and asthma. Maternal obesity could also lead to poorer cognitive performance and increased risk of neurodevelopmental disorders, including cerebral palsy. Preliminary evidence suggests potential implications for immune and infectious-disease-related outcomes...
October 10, 2016: Lancet Diabetes & Endocrinology
Suzie Mudge, Juliet Rosie, Susan Stott, Denise Taylor, Nada Signal, Kathryn McPherson
OBJECTIVE: To enhance understanding of the experiences of ageing with cerebral palsy (CP) in adulthood with a particular focus on experiences with health services. DESIGN: A qualitative descriptive methodology was applied to capture adults' views of ageing with CP and related interactions with health services. Semistructured interviews were undertaken with data systematically coded and interpreted by grouping information into categories. Themes that encompassed the categories were identified through thematic analysis...
October 13, 2016: BMJ Open
Andrew O Frank, Lorraine H De Souza
This article aims to describe the clinical features of electric powered indoor/outdoor wheelchair (EPIOC) users with cerebral palsy (CP) that are problematic to optimal prescription and to explore comorbidities, features of CP, and conditions secondary to disability impacting on equipment provision for children and adults. The method is a cross-sectional study of EPIOC users (n = 102) with a primary diagnosis of CP. This is a retrospective review of electronic and case note records of EPIOC recipients attending a specialist wheelchair service in 2007-2008...
October 7, 2016: Assistive Technology: the Official Journal of RESNA
C Morin, C Ursu, C Delecourt
INTRODUCTION: The everyday life of a non-ambulatory adolescent or young adult with cerebral palsy can be severely impaired by a painful or stiff hip. The usual surgical solutions such as proximal femoral resection (PFR) are not entirely satisfactory for pain relief, and are mutilating. HYPOTHESIS: A retrospective study assessed the impact of total hip replacement (THR) on such impairment, on the hypothesis that it is more effective than PFR in relieving pain, without aggravating disability...
September 30, 2016: Orthopaedics & Traumatology, Surgery & Research: OTSR
J Fluss, M Dinomais, M Kossotoroff, C Vuillerot, S Darteyre, S Chabrier
Over the last decade considerable advances have been made in the identification, understanding and management of pediatric arterial ischemic stroke. Such increasing knowledge has also brought new perspectives and interrogations in the current acute and rehabilitative care of these patients. Areas covered: In developed countries, focal cerebral arteriopathy is one of the most common causes of arterial ischemic stroke in childhood and imaging features are well characterized. However, there are ongoing debates regarding its underlying mechanisms, natural evolution and proper management...
October 12, 2016: Expert Review of Neurotherapeutics
Jeanne Montastruc, Philippe Marque, Florence Moulis, Véronique Bourg, Valérie Lambert, Geneviève Durrieu, Jean-Louis Montastruc, François Montastruc
AIM: The aim of this study was to assess the risk of adverse drug reactions (ADRs) with botulinum neurotoxin type A (BoNT-A) in children with cerebral palsy (CP) using the World Health Organization global individual case safety report (ICSR) database, VigiBase. METHOD: We extracted all children ICSRs for ADRs with BoNT-A used as anti-spastic drug in CP recorded between 1995 and 2015 in VigiBase. We also performed a case/non-case method (disproportionality analysis) to assess the link between exposure to BoNT-A and each ADR of interest in children and adults, calculating reporting odds ratios (RORs)...
September 28, 2016: Developmental Medicine and Child Neurology
Laetitia Houx, Hélène Saudreau, Philippe Galien, Christelle Pons, Marion Roquet, Ronan Garlantezec, Sylvain Brochard
OBJECTIVE: A better understanding of the perception of the rehabilitative and medical care's by persons with cerebral palsy (CP) and their families may help in providing better adherence to these cares. The main objective of this study was to assess overall satisfaction, self-perception of effectiveness and tolerance of the rehabilitative and medical cares in individuals with CP. MATERIAL AND METHODS: This was a cross-sectional questionnaire-based study. A total of 950 questionnaires were sent to French Britain children and adults with CP...
September 2016: Annals of Physical and Rehabilitation Medicine
Julia Hamonet-Torny
OPINION/FEEDBACK: INTRODUCTION: Despite of the politique for social inclusion leaded since the last decade, many specialized institutions for disabled children remained in France. This institutional field is varied and heterogenous, so difficult to understand from the exterior, particularly from the healthcare sector. The aim of this study was to evaluate the needs of the children accompanied within the Motor Education Institute of Couzeix in order to identify more precise indications to the placement...
September 2016: Annals of Physical and Rehabilitation Medicine
Sruthi P Thomas, Zhaoxing Pan, David M Robertson, Allison Frickman, James J Carollo, Patricia C Heyn
No abstract text is available yet for this article.
September 2016: PM & R: the Journal of Injury, Function, and Rehabilitation
Erik Berg, Øystein A Haaland, Kristin B Feragen, Charles Filip, Hallvard A Vindenes, Dag Moster, Rolv T Lie, Åse Sivertsen
Importance: Parents regularly express concern about long-term health outcomes for children who are born with an oral cleft. Objective: To assess whether oral clefts affect the health and ability to work of young adults. Design, Setting, and Participants: A population-based cohort study was conducted on all individuals born in Norway between calendar years 1967 and 1992 (n = 1 490 401). All patients treated for clefts in Norway during the study period were invited to participate (n = 2860)...
September 26, 2016: JAMA Pediatrics
Miriam Yumi Matsui, Lilian Chrystiane Giannasi, Sandra Regina Freitas Batista, Jose Benedito Oliveira Amorim, Claudia S Oliveira, Luis Vicente F Oliveira, Monica Fernandes Gomes
OBJECTIVE: The aim of the present study was to compare the electromyographic activity of masticatory muscles of adult patients with different degrees of oral motor impairment (cerebral palsy) with the electromyographic activity of healthy individuals in a control group. Electromyographic activity was compared when the masticatory muscles were at rest and in motion. DESIGN: Thirty adult patients with cerebral palsy and 30 subjects without neuromotor disorders were enrolled in the present study...
September 1, 2016: Archives of Oral Biology
Gina M Cambareri, Dana W Giel, Aaron P Bayne, Sean Corbett, Elleson Schurtz, Larisa Kovacevic, Troy Sukhu, Michael Yap, George Chiang
OBJECTIVE: To determine if 24-hour urinary parameters in children with nephrolithiasis across four institutions were influenced by body mass index (BMI). MATERIALS AND METHODS: The 24-hour urinary parameters obtained from children with nephrolithiasis between 2000-2013 were stratified by BMI percentile ≥85th and <85th (overweight and obese patients versus healthy weight, respectively). A total of 206 children were included in the study. Exclusion criteria included patients with a history of spina bifida, neurogenic bladder, cerebral palsy and patients on medical treatment before the first 24-hour urine collection...
September 15, 2016: Urology
(no author information available yet)
Background Transitioning from child to adult healthcare services can be difficult and distressing for families. The co-ordination and communication between services needs to be improved.
September 12, 2016: Nursing Children and Young People
Laura Brunton, Sarah Hall, Adrienne Passingham, Julie Wulff, Rich Delitala
PURPOSE: To describe the prevalence, location, severity, and daily impact of pain reported by youth and young adults with cerebral palsy (CP). A secondary aim was to identify any significant associations between the constructs of interest. METHOD: An observational study of 112 participants with CP to understand their experience of pain through a questionnaire. Participants were 56 males and 55 females with a mean age of 18y 9mo (SD 4y 5mo). RESULTS: Pain was reported by 75% of males and 89% of females...
September 2, 2016: Journal of Pediatric Rehabilitation Medicine
Marco Tramontano, Giovanni Morone, Andrea Curcio, Giulia Temperoni, Alessandra Medici, Daniela Morelli, Carlo Caltagirone, Stefano Paolucci, Marco Iosa
BACKGROUND: Dual task paradigm is common mechanism of daily life, it is often used for investigating the effect on cognitive processing of motor behavior. AIM: In the present study we investigate the dual task interference during walking on upright gait stability. DESIGN: cross-sectional study. SETTING: Inpatient neurorehabilitation unit and children neurorehabilitation unit. POPULATION: Eighty-five subjects were enrolled, divided into five groups: healthy young, healthy elderly, children with typical development, children with cerebral palsy and adults with stroke in subacute phase...
August 30, 2016: European Journal of Physical and Rehabilitation Medicine
Gursharan Kalsi, Nicola R Fry, Adam P Shortland
BACKGROUND: Our understanding of the interaction of muscle bellies and their tendons in individuals with muscle pathology is limited. Knowledge of these interactions may inform us of the effects of musculoskeletal pathologies on muscle-tendon dynamics and the subsequent neurological control strategies used in gait. Here, we investigate gastrocnemius muscle-tendon interaction in typically-developing (TD) adults and children, and in children with spastic cerebral palsy (SCP). METHODS: We recruited six TD adults (4 female; mean age: 34 yrs...
October 3, 2016: Journal of Biomechanics
T W Pin, W Ls Chan, C L Chan, K H Foo, K Hw Fung, L K Li, T Cl Tsang
INTRODUCTION: Children with developmental disabilities usually move from the paediatric to adult health service after the age of 18 years. This clinical transition is fragmented in Hong Kong. There are no local data for adolescents with developmental disabilities and their families about the issues they face during the clinical transition. This pilot study aimed to explore and collect information from adolescents with developmental disabilities and their caregivers about their transition from paediatric to adult health care services in Hong Kong...
October 2016: Hong Kong Medical Journal, Xianggang Yi Xue za Zhi
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