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care of patients at the end of life

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https://www.readbyqxmd.com/read/29928457/talking-about-end-of-life-care-in-a-timely-manner
#1
Frank W J M Smeenk, Laurien A Schrijver, Hennie C J van Bavel, Eric F J van de Laar
In 2014, a group of physicians of the Catharina Hospital in Eindhoven (The Netherlands) started a project called "Talking about end-of-life care in a timely manner". Just like others in the country, the Eindhoven group noticed that regularly, very frail elderly people were admitted to hospital in acute situations without there ever having been conversations about their wishes concerning treatment options at the end of life. The project aimed to prevent unnecessary admissions and treatments for these frail patients by stimulating physicians, patients and informal caregivers to start conversations about end-of-life care together at an earlier stage...
December 2017: Breathe
https://www.readbyqxmd.com/read/29925364/the-interaction-of-socioeconomic-status-with-place-of-death-a-qualitative-analysis-of-physician-experiences
#2
Joshua Wales, Allison M Kurahashi, Amna Husain
BACKGROUND: Home is a preferred place of death for many people; however, access to a home death may not be equitable. The impact of socioeconomic status on one's ability to die at home has been documented, yet there remains little literature exploring mechanisms that contribute to this disparity. By exploring the experiences and insights of physicians who provide end-of-life care in the home, this study aims to identify the factors perceived to influence patients' likelihood of home death and describe the mechanisms by which they interact with socioeconomic status...
June 20, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29925332/development-modelling-and-pilot-testing-of-a-complex-intervention-to-support-end-of-life-care-provided-by-danish-general-practitioners
#3
Anna Kirstine Winthereik, Mette Asbjoern Neergaard, Anders Bonde Jensen, Peter Vedsted
BACKGROUND: Most patients in end-of-life with life-threatening diseases prefer to be cared for and die at home. Nevertheless, the majority die in hospitals. GPs have a pivotal role in providing end-of-life care at patients' home, and their involvement in the palliative trajectory enhances the patient's possibility to stay at home. The aim of this study was to develop and pilot-test an intervention consisting of continuing medical education (CME) and electronic decision support (EDS) to support end-of-life care in general practice...
June 20, 2018: BMC Family Practice
https://www.readbyqxmd.com/read/29925244/examining-interventions-designed-to-support-shared-decision-making-and-subsequent-patient-outcomes-in-palliative-care-a-systematic-review-of-the-literature
#4
Dawon Baik, Hwayoung Cho, Ruth M Masterson Creber
BACKGROUND: Shared decision making (SDM) is a key attribute of patient-centered care, which empowers palliative care patients to be able to make optimal medical decisions about end-of-life treatments based on their own values and preferences. AIM: The aim of this systematic literature review is to detail and compare interventions supporting SDM over the last 10 years (January 2008 to December 2017) and to analyze patient/caregiver outcomes at the end of life. METHODS: This review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29924837/barriers-and-facilitators-for-gps-in-dementia-advance-care-planning-a-systematic-integrative-review
#5
Bram Tilburgs, Myrra Vernooij-Dassen, Raymond Koopmans, Hans van Gennip, Yvonne Engels, Marieke Perry
BACKGROUND: Due to the disease's progressive nature, advance care planning (ACP) is recommended for people with early stage dementia. General practitioners (GPs) should initiate ACP because of their longstanding relationships with their patients and their early involvement with the disease, however ACP is seldom applied. AIM: To determine the barriers and facilitators faced by GPs related to ACP with people with dementia. DATA SOURCES: We systematically searched the relevant databases for papers published between January 1995 and December 2016, using the terms: primary healthcare, GP, dementia, and ACP...
2018: PloS One
https://www.readbyqxmd.com/read/29914452/chemotherapy-and-palliative-care-near-end-of-life-examining-the-appropriateness-at-a-cancer-institute-for-colorectal-cancer-patients
#6
Ilaria Massa, Oriana Nanni, Flavia Foca, Marco Maltoni, Stefania Derni, Nicola Gentili, Giovanni Luca Frassineti, Andrea Casadei Gardini, Martina Valgiusti, Dino Amadori, Elena Prati, Mattia Altini, Davide Gallegati, Elisabetta Sansoni
BACKGROUND: Appropriate cessation of chemotherapy and timely referral of patients to hospice services are crucial for the quality of care near death. We investigated the quality of care in our Cancer Institute in very advanced metastatic colorectal cancer patients treated in real life. PATIENTS AND METHODS: We performed a retrospective analysis of electronic medical data of patients with metastatic colorectal cancer who were candidates for chemotherapy during the study period (1 January 2007-30 June 2014) and died before 31 December 2014...
June 19, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29914132/taking-one-s-own-life-in-hospital-patients-and-health-care-professionals-vis-%C3%A3-vis-the-tension-between-assisted-suicide-and-suicide-prevention-in-switzerland
#7
Stella Reiter-Theil, Charlotte Wetterauer, Irena Anna Frei
In Switzerland, the practice of lay right-to-die societies (RTDS) organizing assisted suicide (AS) is tolerated by the state. Patient counseling and accompaniment into the dying process is overtaken by RTDS lay members, while the role of physicians may be restricted to prescribing the mortal dose after a more or less rigorous exploration of the patient’s decisional capacity. However, Swiss health care facilities and professionals are committed to providing suicide prevention. Despite the liberal attitude in society, the legitimacy of organized AS is ethically questioned...
June 15, 2018: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/29913923/national-guidelines-for-evaluating-pain-patients-legal-right-to-prioritised-health-care-at-multidisciplinary-pain-clinics-in-norway-implemented-2009
#8
Karen Walseth Hara, Petter Borchgrevink
Background All nations are posed with the challenge of deciding how to allocate limited health care resources. A Patients' Rights Law from 1999 gives patients in Norway with a serious health condition, for which there is efficacious and cost-effective treatment, a legal right to receive health care from the National Health Care system. Methods Recently national guidelines have been produced for implementing these legal rights within 32 fields of specialist health care. One of these fields deals with serious chronic pain conditions...
December 29, 2017: Scandinavian Journal of Pain
https://www.readbyqxmd.com/read/29913864/multidisciplinary-pain-treatment-which-patients-do-benefit
#9
Tarja Heiskanen, Risto P Roine, Eija Kalso
Background The prevalence of chronic non-malignant pain in developed countries is high, ranging from 14% to 50%. Patients with chronic pain are active users of health-care services and they report impaired health-related quality of life (HRQoL) when compared with the general population. Psychological distress has been identified as one of the risk factors for pain chronicity. Depression, anxiety and negative beliefs are associated with pain interference and perceived disability. Multidisciplinary pain management (MPM) aims to rehabilitating chronic pain patients by addressing both physical, psychological, social and occupational factors related to the pain problem...
December 29, 2017: Scandinavian Journal of Pain
https://www.readbyqxmd.com/read/29913743/somatocognitive-therapy-in-the-management-of-chronic-gynaecological-pain-a-review-of-the-historical-background-and-results-of-a-current-approach
#10
Gro Killi Haugstad, Unni Kirste, Siv Leganger, Elin Haakonsen, Tor S Haugstad
Historic background and development of our somatocognitive approach Mensendieck physiotherapy of the Oslo School is a tradition of physiotherapy founded by the American physician Bess Mensendieck, a contemporary and fellow student of Sigmund Freud at the Paris School of Neurology. It builds on the principles of functional anatomy and the theories of motor learning. We have further developed the theory and practice from this physiotherapy tradition, challenged by the enormous load of patients with longstanding, incapacitating pain on western health care systems, by seeking to incorporate inspirational ideas from body oriented dynamic psychotherapy and cognitive psychotherapy...
December 29, 2017: Scandinavian Journal of Pain
https://www.readbyqxmd.com/read/29903540/the-role-of-the-nurse-at-the-end-of-the-life-of-a-critically-ill-patient
#11
M González-Rincón, P Díaz de Herrera-Marchal, M L Martínez-Martín
OBJECTIVE: Analyze the role of the nurse at the end of the life of a critically ill patient. METHOD: Bibliographic review from a search of the health science databases such as PubMed, CINAHL, Cuiden, Scopus, Cochrane, as well as specialized platforms, general and thematic browsers. The limits were language (English or Spanish) and publication date (2005-2015). RESULTS: 180 articles met the inclusion criteria, and 16 of them were selected for analysis...
June 11, 2018: Enfermería Intensiva
https://www.readbyqxmd.com/read/29902554/resource-use-during-the-last-6-months-of-life-among-copd-patients-a-population-level-study
#12
Kristof Faes, Joachim Cohen, Lieven Annemans
CONTEXT: Chronic obstructive pulmonary disease (COPD) patients often have several comorbidities, such as cardiovascular diseases (CVD) or lung cancer (LC), which might influence resource use in the final months of life. However, no previous studies documented resource use in end-of-life COPD patients at a population level, thereby differentiating whether COPD patients die of their COPD, CVD or LC. AIM: To describe end-of-life resource use in people diagnosed with COPD and compare this resource use between those dying of COPD, CVD and LC...
June 11, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29900665/end-of-life-care-of-oncology-inpatients-are-we-getting-it-right
#13
Monique Batten, Bella Nguyen, Brandon Burke, Hilman Harryanto, Imogen Mitchell, Alison Davis
AIM: To examine the current patterns of end-of-life care of medical oncology patients dying in an Australian tertiary acute hospital setting in order to determine potential areas for improvement. METHODS: A retrospective observational study was undertaken of 295 consecutive adult medical oncology inpatients dying between 2010 and 2015. Charts were reviewed for evidence of (1) resuscitation plans, (2) acute interventions in the 48-h period prior to death, (3) palliative care involvement and (4) recognition of the dying patient and comfort care plans...
June 13, 2018: Asia-Pacific Journal of Clinical Oncology
https://www.readbyqxmd.com/read/29897838/psychological-distress-and-compassion-fatigue-among-hospice-nurses-the-mediating-role-of-self-esteem-and-negative-affect
#14
Michael D Barnett, Itzel A Ruiz
BACKGROUND: Compassion fatigue among health care professionals has negative effects on patient care. Providing end-of-life care, hospice nurses may be particularly at risk for compassion fatigue. OBJECTIVE: The purpose of this study was to investigate self-esteem and affect as mediators between psychological distress and compassion fatigue among hospice nurses (N = 90). DESIGN AND MEASUREMENTS: Hospice nurses working in a health care setting were recruited to complete a survey...
June 13, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29895515/an-ehealth-program-for-patients-undergoing-a-total-hip-arthroplasty-protocol-for-a-randomized-controlled-trial
#15
Rosemary Saunders, Karla Seaman, Catherine Ashford, Trudy Sullivan, Judith McDowall, Lisa Whitehead, Beverley Ewens, Kathryn Pedler, Karen Gullick
BACKGROUND: Total hip arthroplasty is an effective surgical procedure commonly used worldwide for patients suffering the disabling effects of osteoarthritis when medical therapy is unsuccessful. Traditionally pre- and postoperative information for patients undergoing a hip arthroplasty has been provided by paper-based methods. Electronic health (eHealth) programs to support individualized patient education on preoperative preparation, in-patient care, and home rehabilitation have the potential to increase patient engagement, enhance patient recovery, and reduce potential postoperative complications...
June 12, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29895297/improving-pathways-to-primary-health-care-among-lgbtq-populations-and-health-care-providers-key-findings-from-nova-scotia-canada
#16
Jacqueline Gahagan, Montse Subirana-Malaret
BACKGROUND: This study explores the perceived barriers to primary health care as identified among a sample of Lesbian, Gay, Bisexual, Transgender, and Queer (LGBTQ) identified individuals and health care providers in Nova Scotia, Canada. These findings, based on a province-wide anonymous online survey, suggest that additional efforts are needed to improve pathways to primary health among LGBTQ populations and in deepening our understanding of how to advance the unique primary health needs of these populations...
June 13, 2018: International Journal for Equity in Health
https://www.readbyqxmd.com/read/29887389/what-happens-at-the-end-of-life-using-linked-administrative-health-data-to-understand-healthcare-usage-in-the-last-year-of-life-in-new-zealand
#17
Richard Hamblin, Nikolai Minko, Carl Shuker, Jennifer Hill, Alan F Merry
The end of life is often associated with increased use of healthcare services. This increased use can include over-medicalisation, or over-treatment with interventions designed to cure that are likely futile in people who are dying. This is an issue with medical, ethical, and financial dimensions, and has implications for health policy, funding and the structure of care delivery. We measured the annual use of nine pre-defined public healthcare services between 1 January 2008 and 31 December 2012 by elderly New Zealanders (65-99 years old) in their last year of life and compared it with that of the cohort of elderly New Zealanders who used healthcare in the period but did not die...
May 25, 2018: Health Policy
https://www.readbyqxmd.com/read/29886795/effectiveness-of-palliative-care-services-a-population-based-study-of-end-of-life-care-for-cancer-patients
#18
Rossana De Palma, Daniela Fortuna, Sarah E Hegarty, Daniel Z Louis, Rita Maria Melotti, Maria Luisa Moro
BACKGROUND: Multiple studies demonstrate substantial utilization of acute hospital care and, potentially excessive, intensive medical and surgical treatments at the end-of-life. AIM: To evaluate the relationship between the use of home and facility-based hospice palliative care for patients dying with cancer and service utilization at the end of life. DESIGN: Retrospective, population-level study using administrative databases. The effect of palliative care was analyzed between coarsened exact matched cohorts and evaluated through a conditional logistic regression model...
June 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29886792/ambulance-staff-and-end-of-life-hospital-admissions-a-qualitative-interview-study
#19
Sarah Hoare, Michael P Kelly, Larissa Prothero, Stephen Barclay
BACKGROUND: Hospital admissions for end-of-life patients, particularly those who die shortly after being admitted, are recognised to be an international policy problem. How patients come to be transferred to hospital for care, and the central role of decisions made by ambulance staff in facilitating transfer, are under-explored. AIM: To understand the role of ambulance staff in the admission to hospital of patients close to the end of life. DESIGN: Qualitative interviews, using particular patient cases as a basis for discussion, analysed thematically...
June 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29885547/exploring-the-quality-of-the-dying-and-death-experience-in-the-emergency-department-an-integrative-literature-review
#20
REVIEW
Kay J McCallum, Debra Jackson, Helen Walthall, Helen Aveyard
AIM: The aim of this integrative literature review was to explore the quality of the dying and death experience in the Emergency Department from the perspective of staff and carers. BACKGROUND: Death in the Emergency Department is common. Understanding the quality of the death and dying experience of patients and their family members is crucial to building knowledge and improving care. DESIGN: Systematic integrative literature review reported following the PRISMA guidelines...
May 23, 2018: International Journal of Nursing Studies
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