keyword
https://read.qxmd.com/read/38132004/alexithymia-in-adult-autism-clinic-service-users-relationships-with-sensory-processing-differences-and-mental-health
#21
JOURNAL ARTICLE
Emily Josyfon, Debbie Spain, Charlotte Blackmore, Declan Murphy, Bethany Oakley
Mental health difficulties commonly co-occur with autism, especially in autistic people accessing clinic services, impacting substantially on quality-of-life. Alexithymia (difficulty describing/identifying feelings) and sensory processing differences are prevalent traits in autism that have been associated with depression/anxiety in autistic community samples. However, it is important to better understand interrelationships between these traits in clinical populations to improve identification of service-user needs...
December 7, 2023: Healthcare (Basel, Switzerland)
https://read.qxmd.com/read/38117420/siblings-forward-development-of-a-new-program-to-engage-siblings-of-autistic-adults-in-future-planning
#22
JOURNAL ARTICLE
Kristin A Long, Jade LaRochelle, Monica Gordillo, Emily M Pariseau, Melissa G DeCelle, Gael Orsmond
The adult service system does not adequately meet the needs of autistic adults, prompting families to continue their supportive roles. Siblings frequently assume these roles when parents are no longer able to do so, often without preparation or planning. We received feedback on the proposed Siblings FORWARD (Focusing on Relationships, Well-being, and Responsibility aheaD) program concept, which would involve 6-7 individualized sessions over ~ 3 months and would facilitate siblings' proactive future planning involvement with their autistic family member...
December 20, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/38116056/a-blog-based-study-of-autistic-adults-experiences-of-aloneness-and-connection-and-the-interplay-with-well-being-corpus-based-and-thematic-analyses
#23
JOURNAL ARTICLE
Stephanie Petty, Shannon Allen, Hannah Pickup, Bethannie Woodier
BACKGROUND: Autistic adults appear to be more vulnerable to mental ill health, with loneliness being a variable associated with multiple outcomes of poorer well-being. However, a description of meaningful social connection that is suitable for autistic adults is missing from this research, along with a missing understanding of the conditions that contribute to well-being. METHODS: In this study, autistic adults' experiences of connectedness and aloneness were systematically searched for within data collected from blogs...
December 1, 2023: Autism in adulthood: challenges and management
https://read.qxmd.com/read/38116054/exploring-identity-importance-for-autistic-adults-and-associations-with-disclosure-experiences-a-brief-report
#24
JOURNAL ARTICLE
Abigail M A Love, Ru Ying Cai, Chris Edwards, Vicki Gibbs
BACKGROUND: A strong autistic identity can help to support mental well-being, reduce anxiety and depression, increase self-esteem, and strengthen a shared community for autistic people. Autistic people are regularly faced with a decision to disclose their autistic identity to others and report a range of experiences after disclosure. The purpose of this brief report was to examine the association between identity and disclosure decisions in a sample of autistic adults to gather preliminary evidence justifying future research...
December 1, 2023: Autism in adulthood: challenges and management
https://read.qxmd.com/read/38116052/promoting-quality-of-life-suggestions-for-mental-health-care-providers-working-with-young-autistic-adults
#25
JOURNAL ARTICLE
Susan W White, Carol Schall, Jin Delos Santos, Brenna B Maddox, Ashleigh Hillier, Laura Klinger, Cara Pugliese
There is a growing population of autistic adults in need of supports from a service delivery system that, at present, fails to accommodate their needs adequately and equitably. Unfortunately, there is a shortage of trained behavioral health service providers to meet the needs of young autistic adults. Quality of life (QoL), or one's perception of, and satisfaction with, life in relation to held goals and expectations, has been identified as a key outcome of interest by autistic self-advocates. By supporting autistic clients to hone their strengths and interests, integrate various aspects of their identity, identify goals, and connect to appropriate resources, providers can promote clients' self-knowledge and self-determination, in the service of improving QoL...
December 1, 2023: Autism in adulthood: challenges and management
https://read.qxmd.com/read/38116050/-i-ve-spent-my-whole-life-striving-to-be-normal-internalized-stigma-and-perceived-impact-of-diagnosis-in-autistic-adults
#26
JOURNAL ARTICLE
Yunhe Huang, Julian N Trollor, Kitty-Rose Foley, Samuel R C Arnold
BACKGROUND: Receiving an autism diagnosis in adulthood often leads to improved self-understanding and deeper self-reflection, which can have major impacts on people's well-being and sense of identity. However, autism diagnosis also exposes individuals to societal stigma, which may become internalized over time. This study aimed to explore relationships between psychological and service-related impacts of diagnosis and internalized stigma using mixed methods. METHODS: One hundred forty-three autistic adults completed an online survey involving impact of diagnosis domains of Self-Understanding, Well-being, Clinician Support, and Service Access, internalized stigma, and open-ended questions on beliefs about autism diagnosis...
December 1, 2023: Autism in adulthood: challenges and management
https://read.qxmd.com/read/38076678/case-report-familial-case-with-autism-spectrum-and-bipolar-disorder-showing-a-20q11-21-microduplication-including-tm9sf4
#27
Marly Simoncini, Miriam Violi, Angelo Valetto, Veronica Bertini, Francy Cruz-Sanabria, Leonardo Massoni, Liliana Dell'Osso, Claudia Carmassi
Autism spectrum disorder (ASD) is characterized by multifactorial etiology and high heritability but can be challenging to be diagnosed, especially in cases presenting subthreshold symptoms with no cognitive or language impairment, which may not be identified until adulthood but may occur in family members of subjects with ASD. This study explores the possible correlation between a genomic imbalance and clinical phenotypes in a family case of a proband with ASD, with subjects presenting full-blown or subthreshold ASD and/or mood disorders...
2023: Frontiers in Psychiatry
https://read.qxmd.com/read/38043369/relationship-between-abnormal-intrinsic-functional-connectivity-of-subcortices-and-autism-symptoms-in-high-functioning-adults-with-autism-spectrum-disorder
#28
JOURNAL ARTICLE
Jing Shang, Erwei Shen, Yang Yu, Aiying Jin, Xuemei Wang, Dehui Xiang
PURPOSE: This study explores subcortices and their intrinsic functional connectivity (iFC) in autism spectrum disorder (ASD) adults and investigates their relationship with clinical severity. METHODS: Resting-state functional magnetic resonance imaging (rs-fMRI) data were acquired from 74 ASD patients, and 63 gender and age-matched typically developing (TD) adults. Independent component analysis (ICA) was conducted to evaluate subcortical patterns of basal ganglia (BG) and thalamus...
November 23, 2023: Psychiatry Research. Neuroimaging
https://read.qxmd.com/read/38025472/an-individual-supported-program-to-enhance-placement-in-a-sheltered-work-environment-of-autistic-individuals-mostly-with-intellectual-disability-a-prospective-observational-case-series-in-an-italian-community-service
#29
JOURNAL ARTICLE
Roberta Maggio, Laura Turriziani, Caterina Campestre, Marcella Di Cara, Emanuela Tripodi, Caterina Impallomeni, Angelo Quartarone, Claudio Passantino, Francesca Cucinotta
INTRODUCTION: Autism spectrum disorder is a lifelong neurodevelopmental disorder. The profile of functioning in autistic people is very heterogeneous, and it is necessary to take into account individual characteristics to better support integration in the workplace. However, unemployment rates are higher for autistic people than for other types of disabilities. We present a prospective case series to explore the feasibility and efficacy of an individual-supported program to enhance placement in a sheltered work environment delivered by an Italian community day care center...
2023: Frontiers in Psychiatry
https://read.qxmd.com/read/38012112/functional-connectivity-in-autism-spectrum-disorder-evaluated-using-rs-fmri-and-dki
#30
JOURNAL ARTICLE
Yasuhito Nagai, Eiji Kirino, Shoji Tanaka, Chie Usui, Rie Inami, Reiichi Inoue, Aki Hattori, Wataru Uchida, Koji Kamagata, Shigeki Aoki
We evaluated functional connectivity (FC) in patients with adult autism spectrum disorder (ASD) using resting-state functional MRI (rs-fMRI) and diffusion kurtosis imaging (DKI). We acquired rs-fMRI data from 33 individuals with ASD and 33 healthy controls (HC) and DKI data from 18 individuals with ASD and 17 HC. ASD showed attenuated FC between the right frontal pole (FP) and the bilateral temporal fusiform cortex (TFusC) and enhanced FC between the right thalamus and the bilateral inferior division of lateral occipital cortex, and between the cerebellar vermis and the right occipital fusiform gyrus (OFusG) and the right lingual gyrus, compared with HC...
November 27, 2023: Cerebral Cortex
https://read.qxmd.com/read/37934395/psychometric-properties-of-psychosexual-functioning-survey-among-autistic-and-non-autistic-adults-adapting-the-self-report-teen-transition-inventory-to-the-u-s-context
#31
JOURNAL ARTICLE
Xihan Yang, Linda Dekker, Kirstin Greaves-Lord, Eileen T Crehan
Psychosexual functioning is an important aspect of human development and relationships. A previous study investigated psychosexual functioning of autistic adolescents using the Teen Transition Inventory (TTI), but there is a lack of comprehensive measurement of psychosexual functioning among autistic and non-autistic (NA) adults. To address this gap, the current study adapted the self-report TTI to the Psychosexual Functioning Survey (PSFS) and presented it to 131 autistic (n = 59) and NA adults (n = 72) in the U...
November 7, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/37933262/a-protocol-for-the-development-and-assessment-of-a-non-pharmacological-intervention-designed-to-improve-cognitive-skills-of-adults-with-intellectual-disabilities-a-mixed-method-design
#32
JOURNAL ARTICLE
Aristi Alopoudi, Marina Makri, Batuhan Alişoğlu, Abdullah Doğan, Antonino Imbesi, Mehmetcan Karakoyun, Alexis Lacapelle, Marco Aurelio Navarro Roux, Alexia Pissa, Magda Tsolaki
AIM: This paper describes the steps of a protocol for developing and assessing a non-pharmacological intervention, specifically a Serious Game, with the goal of improving eight cognitive skills in adults with Intellectual Disabilities. Serious games that focus on one deficit and/or are restricted to one disorder have been developed to improve the cognitive skills of people with Intellectual Disabilities. There is a lack of a single tool that targets various cognitive skills as well as a broader spectrum of disorders...
2023: Journal of Multidisciplinary Healthcare
https://read.qxmd.com/read/37914836/factors-that-influence-the-daily-living-skills-of-autistic-adults-the-importance-of-opportunity
#33
JOURNAL ARTICLE
Shin Er Teh, Le Thao Vy Vo, Vanessa H Bal
While existing literature has demonstrated that Daily Living Skills (DLS) performance of autistic individuals is lower than what is expected of their age and cognitive abilities, limited studies have examined DLS in autistic adults. This study aimed to understand the influence of intellectual function (IQ) and contextual factors (i.e., provision of opportunities) on autistic individuals' DLS performance. Participants included 33 autistic individuals ranging in age from 16 to 35 years. Their caregivers were administered the Vineland Adaptive Behavior Scales, 3rd edition's (Vineland-3) caregiver interview form...
November 1, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/37882493/disclosing-an-autism-diagnosis-improves-ratings-of-candidate-performance-in-employment-interviews
#34
JOURNAL ARTICLE
Jade Eloise Norris, Rachel Prosser, Anna Remington, Laura Crane, Katie Maras
Employment interviews are challenging for many autistic people, for example, due to difficulties with interpreting questions. Autistic people also have differences in non-verbal communication, such as emotional expression, eye-contact, and gestures, with research showing that these factors negatively affect first impressions. Some studies have shown that perceptions of autistic people are more positive when the person observing them, such as an interviewer, is already aware of their diagnosis. However, previous research has not studied how disclosing one's autism diagnosis affects perceptions of a candidate undergoing a full employment interview...
October 26, 2023: Autism: the International Journal of Research and Practice
https://read.qxmd.com/read/37856002/mental-health-providers-perspectives-on-what-helps-and-hinders-in-psychotherapy-for-autistic-adults-with-co-occurring-mental-health-problems
#35
JOURNAL ARTICLE
Theresa Jubenville-Wood, David B Nicholas, Jonathan Weiss, Sharon Cairns
Autistic adults experience disproportionate rates of co-occurring mental health problems. Psychotherapy has been recognized as an appropriate treatment approach, but evidence is limited. Researchers used a qualitative research paradigm to explore the experiences of mental health providers who provide psychotherapy to autistic adults. The Enhanced Critical Incident Technique was used to interview 13 mental health providers regarding perceptions of facilitating therapy with autistic adults. This research highlights challenges to providing psychotherapy to autistic adults while also illuminating ways that mental health providers have worked to ameliorate such challenges and create positive experiences in therapy...
October 19, 2023: Journal of Autism and Developmental Disorders
https://read.qxmd.com/read/37846479/barriers-to-healthcare-and-a-triple-empathy-problem-may-lead-to-adverse-outcomes-for-autistic-adults-a-qualitative-study
#36
JOURNAL ARTICLE
Sebastian Ck Shaw, Laura Carravallah, Mona Johnson, Jane O'Sullivan, Nicholas Chown, Stuart Neilson, Mary Doherty
Autistic people live with more mental and physical health conditions and, on average, die younger than non-autistic people. Despite widespread commitments to tackling these issues, autistic people still report various barriers to accessing healthcare. This article aims to explore the area in depth, from the perspective of autistic people. This research benefits from being led by autistic people, for autistic people - all of the researchers are autistic, and most of us are also medical doctors. Data, in the form of written comments and stories, were collected as part of a large survey...
October 17, 2023: Autism: the International Journal of Research and Practice
https://read.qxmd.com/read/37776020/comparison-of-network-structures-between-autistic-and-non-autistic-adults-and-autism-subgroups-a-focus-on-demographic-psychological-and-lifestyle-factors
#37
JOURNAL ARTICLE
Tulsi A Radhoe, Joost A Agelink van Rentergem, Carolien Torenvliet, Annabeth P Groenman, Wikke J van der Putten, Hilde M Geurts
There are large differences in the level of demographic, psychological, and lifestyle characteristics between autistic and non-autistic adults but also among autistic people. Our goal was to test whether these differences correspond to differences in underlying relationships between these characteristics-also referred to as network structure-to determine which characteristics (and relationships between them) are important. We tested differences in network structure in (1) autistic and non-autistic adults and (2) two previously identified subgroups of autistic adults...
September 29, 2023: Autism: the International Journal of Research and Practice
https://read.qxmd.com/read/37728250/social-self-efficacy-and-mental-well-being-in-autistic-adults-exploring-the-role-of-social-identity
#38
JOURNAL ARTICLE
Lorna Camus, Gnanathusharan Rajendran, Mary Elizabeth Stewart
In the past, research has suggested that autistic people are not able to communicate well with non-autistic people because of autistic people's communication difficulties. However, newer theories question this conclusion. It is now thought that the communication difficulties may be because autistic and non-autistic people both struggle to understand each other. This study explores how these differences in shared understanding relate to autistic people's mental well-being, confidence in social situations and social identities (groups that we belong to and that influence how we see ourselves)...
September 20, 2023: Autism: the International Journal of Research and Practice
https://read.qxmd.com/read/37727115/-living-in-a-world-that-s-not-about-us-the-impact-of-everyday-life-on-the-health-and-wellbeing-of-autistic-women-and-gender-diverse-people
#39
JOURNAL ARTICLE
Rachel Grove, Hayley Clapham, Tess Moodie, Sarah Gurrin, Gabrielle Hall
BACKGROUND: Autistic women and gender diverse people have specific needs related to their physical and mental health. They also experience more barriers to accessing services. While there are autobiographical accounts of the 'invisible' challenges that autistic women and gender diverse people face day-to-day, there has been limited research that explores how these experiences impact health and wellbeing. OBJECTIVES: This study aimed to understand the everyday experiences of autistic women and gender diverse people, and their impact on health and wellbeing...
2023: Women's Health
https://read.qxmd.com/read/37698532/stress-and-well-being-in-autistic-adults-exploring-the-moderating-role-of-coping
#40
JOURNAL ARTICLE
Melanie Muniandy, Amanda L Richdale, Lauren P Lawson
The wider stress literature points to negative associations between stress and well-being. Similarly, the use of engagement coping strategies and disengagement coping strategies in the face of stress are related to improved and reduced well-being respectively. However, in the autistic population stress and coping research is limited to date, and the extent to which coping may moderate the relationship between stress and well-being is not known. Using data from an Australian online study, we explored the potential moderating (i...
September 12, 2023: Autism Research: Official Journal of the International Society for Autism Research
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