keyword
MENU ▼
Read by QxMD icon Read
search

Palliative care and hospice

keyword
https://www.readbyqxmd.com/read/29439104/costs-at-the-end-of-life-perspectives-for-north-carolina
#1
Natalie C Ernecoff, Sally C Stearns
Many elders require supportive services, with many costs covered by Medicaid. Once terminal illness sets in, palliative care and hospice may help control cost while ensuring quality. This commentary reviews trends in cost at the end of life and describes selected strategies to improve patient-centered care in North Carolina.
January 2018: North Carolina Medical Journal
https://www.readbyqxmd.com/read/29431580/what-we-do-key-activities-of-an-outpatient-palliative-care-team-at-an-academic-cancer-center
#2
Kara Bischoff, Eleanor Yang, Gayle Kojimoto, Nancy Shepard Lopez, Sarah Holland, Brook Calton, Sarah H Adkins, Stephanie Cheng, Bruce J Miller, Michael W Rabow
BACKGROUND: Outpatient palliative care (PC) has been shown to positively impact quality of life and decrease healthcare utilization, but there are limited data describing what activities render these benefits. OBJECTIVE: Describe the topics addressed by an outpatient PC team during scheduled visits. DESIGN: Longitudinal cohort study. SETTING: The Symptom Management Service, an ambulatory PC program at an academic comprehensive cancer center...
February 12, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29427739/predictors-of-late-palliative-care-referral-in-children-with-cancer
#3
Erica C Kaye, Jonathan Jerkins, Courtney A Gushue, Samantha DeMarsh, April Sykes, Zhaohua Lu, Jennifer M Snaman, Lindsay Blazin, Liza-Marie Johnson, Deena R Levine, R Ray Morrison, Justin N Baker
CONTEXT: Early integration of palliative care (PC) in the management of children with high-risk cancer is widely endorsed by patients, families, clinicians, and national organizations. However, optimal timing for PC consultation is not standardized, and variables that influence timing of PC integration for children with cancer remain unknown. OBJECTIVES: To investigate associations between demographic, disease, treatment, and end-of-life attributes and timing of PC consultation for children with high-risk cancer enrolled on a PC service...
February 7, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29425055/caring-for-life-limiting-illness-in-ethiopia-a-mixed-methods-assessment-of-outpatient-palliative-care-needs
#4
Eleanor Anderson Reid, Esayas Kebede Gudina, Nicola Ayers, Wondimagegnu Tigineh, Yoseph Mamo Azmera
BACKGROUND: Palliative care aims to reduce physical suffering and the emotional, spiritual, and psychosocial distress of life-limiting illness. Palliative care is a human right, yet there are vast disparities in its provision: of the 40 million people globally in need of palliative care, less than 10% receive it, largely in high-income countries. There is a particular paucity of data on palliative care needs across the spectrum of incurable disease in Ethiopia. OBJECTIVES: The aims of this research were to assess the overall burden of life-limiting illness, the costs associated with life-limiting illness, and barriers to accessing palliative care in Ethiopia...
February 9, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29421848/characterization-conservation-and-loss-of-dignity-at-the-end-of-life-in-the-emergency-department-a-qualitative-protocol
#5
Cayetano Fernández-Sola, José Granero-Molina, María Del Mar Díaz-Cortés, Francisca Rosa Jiménez-López, Pablo Roman-López, Encarnación Saez-Molina, Cayetano José Aranda-Torres, José María Muñoz-Terrón, María Paz García-Caro, José Manuel Hernández-Padilla
AIMS: to explore and understand the experiences of terminally-ill patients and their relatives regarding dignity during end-of-life care in the emergency department. BACKGROUND: the respect given to the concept of dignity is significantly modifying the clinical relationship and the care framework involving the end-of-life patient in palliative care units, critical care units, hospices and their own homes. This situation is applicable to in-hospital emergency departments, where there is a lack of research which takes the experiences of end-of-life patients and their relatives into account...
February 8, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29421163/rasch-analysis-of-the-edmonton-symptom-assessment-system-esas
#6
Emma Sprague, Richard J Siegert, Oleg Medvedev, Margaret H Roberts
CONTEXT: The Edmonton Symptom Assessment System (ESAS) is a widely used multi-symptom assessment tool in cancer and palliative care settings but its psychometric properties have not been widely tested using modern psychometric methods such as Rasch analysis. OBJECTIVES: To apply Rasch analysis to the ESAS in a community palliative care setting and determine its suitability for assessing symptom burden in this group. METHODS: ESAS data collected from 229 patients enrolled in a community hospice service were evaluated using a partial credit Rasch model with RUMM2030 software...
February 5, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29420142/the-surprise-question-and-identification-of-palliative-care-needs-among-hospitalized-patients-with-advanced-hematologic-or-solid-malignancies
#7
Kathryn Elizabeth Hudson, Steven Paul Wolf, Gregory P Samsa, Arif H Kamal, Amy Pickar Abernethy, Thomas William LeBlanc
BACKGROUND: Little is known about quality of life (QOL), depression, and end-of-life (EOL) outcomes among hospitalized patients with advanced cancer. OBJECTIVE: To assess whether the surprise question identifies inpatients with advanced cancer likely to have unmet palliative care needs. DESIGN: Prospective cohort study and long-term follow-up. SETTING/SUBJECTS: From 2008 to 2010, we enrolled 150 inpatients at Duke University with stage III/IV solid tumors or lymphoma/acute leukemia and whose physician would not be surprised if they died in less than one year...
February 8, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29414846/pediatric-palliative-care-in-infants-and-neonates
#8
REVIEW
Brian S Carter
The application of palliative and hospice care to newborns in the neonatal intensive care unit (NICU) has been evident for over 30 years. This article addresses the history, current considerations, and anticipated future needs for palliative and hospice care in the NICU, and is based on recent literature review. Neonatologists have long managed the entirety of many newborns' short lives, given the relatively high mortality rates associated with prematurity and birth defects, but their ability or willingness to comprehensively address of the continuum of interdisciplinary palliative, end of life, and bereavement care has varied widely...
February 7, 2018: Children
https://www.readbyqxmd.com/read/29412842/palliative-care-for-dementia
#9
REVIEW
Jonathan T Stewart, Susan K Schultz
With the growing care needs for the older population at the end of their lives, there has been a substantial increase in attention to the management of the patient with dementia in hospice and palliative care services. This article reviews issues in access to care and the optimal management of the patient with dementia, particularly in the context of neuropsychiatric complexities. Special issues such as delirium, cachexia, behavioral symptoms, and pain management are addressed. Future challenges in research such as the development of better prognostic models are noted as well as the importance of attention to access to care...
March 2018: Psychiatric Clinics of North America
https://www.readbyqxmd.com/read/29410071/the-growing-demand-for-hospice-and-palliative-medicine-physicians-will-the-supply-keep-up
#10
Dale Lupu, Leo Quigley, Nicholas Mehfoud, Edward S Salsberg
CONTEXT: The need for hospice and palliative care is growing rapidly as the population increases and ages and as both hospice and palliative care become more accepted. Hospice and palliative medicine (HPM) is a relatively new physician specialty, currently training 325 new fellows annually. Given the time needed to increase the supply of specialty trained physicians, it is important to assess future needs to guide planning for future training capacity. OBJECTIVES: We modeled the need for and supply of specialist HPM physicians through the year 2040 to determine whether training capacity should continue growing...
February 1, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29402110/addressing-the-cultural-spiritual-and-religious-perspectives-of-palliative-care
#11
Hodan Nalayeh
Healthcare services are often out of sync with cultural, spiritual and religious perspectives on health, death, and grieving. This dissonance affects attitudes and behaviours in seeking and utilizing end-of-life health services and can lead to poor clinical communication, misunderstanding, and anxiety as patients, families and health providers interact during a serious illness. To address a gap in cultural-specific information Canadian Virtual Hospice launched LivingMyCulture.ca-an evidence-informed collection of videos of immigrants, refugees, and Indigenous people sharing their stories about the intersection of culture, spirituality, and religion with their experiences of advanced illness, palliative care, and grief...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402106/creating-a-sustainable-participatory-palliative-care-programme-in-an-urban-slum-in-dhaka-bangladesh
#12
Nezamuddin Ahmad
The Centre for Palliative Care, based at the only medical university [Bangabandhu Sheikh Mujib Medical University (BSMMU)] in Dhaka, Bangladesh, in collaboration with Worldwide Hospice Palliative Care Alliance, piloted a one-year project focussed on improving the quality of life of 100 older people and their families in two slum settings in Dhaka. This project was developed following the identification of significant palliative care needs of older people in the slum settings. In addition, the project was formed in response to the absence of programmes delivering palliative care to the poorest and most marginalised in poor urban settings, in a sustainable manner within the context of the low development of palliative care and the human and financial resource limitations in Bangladesh...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402100/collaborative-model-used-to-develop-a-resource-guide-for-communities-to-enhance-their-palliative-and-end-of-life-care-the-case-of-alberta-canada
#13
Kyle Whitfield
In response to the desire of community organizations in Alberta for information and guidance as they seek to improve palliative and end of life care in their communities, a large number of organizations collaborated to develop a resource guide. In order to achieve this goal, it was first necessary to identify the common information needs of Alberta communities as they pursue their vision for improving local Palliative and End-of-Life Care. A committee comprised of representatives from Alberta Health Services, Alberta Health, Alberta Hospice Palliative Care Association, Hospice Societies, University researchers, Indigenous Health and Palliative Care physicians surveyed numerous community groups and stakeholders about their information needs...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402096/collaborative-and-participatory-approaches-to-building-community-capacity-for-palliative-and-end-of-life-care
#14
Martin LaBrie
People living in rural and smaller urban areas near Calgary experience difficulty accessing palliative care services which are concentrated in metropolitan areas. The Cumming School of Medicine, Alberta Health Services and community hospice palliative care societies in two rural communities have been working to develop a partnership that incorporates local health system resources and community initiatives in supporting individuals and families living with progressive, life-limiting illnesses. This presentation will provide an understanding of how academic institutions and health services can collaborate with community members to enhance capacity for end of life care, and enrich communities in the process...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29402095/community-capacity-development-to-enhance-hospice-palliative-care-in-alberta-canada-communities-evidence-demonstrating-the-value-of-a-community-engaged-model
#15
Kyle Whitfield
Our study explored the value of a community engaged model for good hospice care in three rural communities in Alberta, Canada. When communities are highly engaged in planning and implementing hospice care in their communities, our study discovered that they have key characteristics: that volunteerism needs to be balanced to prevent burnout; that the local knowledge of community members is used in a number of ways to plan and provide good hospice care; that a variety of resources, infrastructure, policies and expertise are used by the community to nurture community-focused palliative care initiatives...
January 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29400598/circumstances-of-hospital-admissions-in-palliative-care-a-cross-sectional-survey-of-patients-admitted-to-hospital-with-palliative-care-needs
#16
Jackie Robinson, Merryn Gott, Rosemary Frey, Christine Ingleton
BACKGROUND: On average, people will experience 2.28 hospital admissions in the last year of life with the likelihood of a hospital admission increasing in the last 2 weeks of life. Reducing hospital admissions has become a focus for high-income countries as they work to manage the financial implications of an ageing population. However, the circumstances by which patients with palliative care needs are admitted to hospital remain poorly understood. AIM: To explore the circumstances of hospital admissions for patients with palliative care needs...
February 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29395315/patterns-of-palliative-care-referral-in-ovarian-cancer-a-single-institution-5%C3%A2-year-retrospective-analysis
#17
Roni Nitecki, Elisabeth J Diver, Mihir M Kamdar, David M Boruta, Marcela C Del Carmen, Rachel M Clark, Annekathryn Goodman, John O Schorge, Whitfield B Growdon
BACKGROUND: The American Society of Clinical Oncology recommends that patients with advanced cancer receive dedicated palliative care services early in their disease course. This investigation serves to understand how palliative care services are utilized for ovarian cancer patients in a tertiary referral center. METHODS: We conducted a retrospective review of women treated for ovarian cancer at our institution from 2010 through 2015. Clinical variables included presence and timing of palliative care referral...
January 27, 2018: Gynecologic Oncology
https://www.readbyqxmd.com/read/29393840/palliative-care-professional-s-perceptions-of-barriers-and-challenges-to-accessing-children-s-hospice-and-palliative-care-services-in-south-east-london-a-preliminary-study
#18
Panagiotis Pentaris, Danai Papadatou, Alice Jones, Georgina M Hosang
OBJECTIVES: Several barriers have been identified as preventing or delaying accessing to children's palliative care services. The aim of this study is to further explore such barriers from palliative care professionals' perspective from two London boroughs. METHODS: Qualitative- five children's palliative care professionals perceptions obtained from semi-structured interviews. RESULTS: Three themes emerged: availability and adequacy of child palliative care (e...
February 2, 2018: Death Studies
https://www.readbyqxmd.com/read/29389725/end-of-life-communication-nurses-cocreating-the-closing-composition-with-patients-and-families
#19
Mary J Isaacson, Mary E Minton
Communication is imperative for end-of-life decision-making; however, descriptions of key strategies used by nurses are missing. A phenomenological approach was used to interpret interviews from 10 hospice/palliative nurses. The overarching pattern is the closing composition. Key communication strategies/patterns include establishing context, acknowledging through attentive listening, making it safe for them to die, planning goals of care, and being honest. Essential is the awareness that nurse, patient, and family all hold expertise in the subject matter...
January 2018: ANS. Advances in Nursing Science
https://www.readbyqxmd.com/read/29389224/perspectives-on-palliative-care-in-cancer-clinical-trials-diverse-meanings-from-multidisciplinary-cancer-care-providers
#20
Michelle A Mollica, Erin E Kent, Kathleen M Castro, Erin M Ellis, Rebecca A Ferrer, Angela L Falisi, Anna Gaysynsky, Grace C Huang, Martha A Palan, Wen-Ying Sylvia Chou
BACKGROUND: Palliative care (PC) is often misunderstood as exclusively pertaining to end-of-life care, which may be consequential for its delivery. There is little research on how PC is operationalized and delivered to cancer patients enrolled in clinical trials. OBJECTIVE: We sought to understand the diverse perspectives of multidisciplinary oncology care providers caring for such patients in a teaching hospital. METHODS: We conducted qualitative semistructured interviews with 19 key informants, including clinical trial principal investigators, oncology fellows, research nurses, inpatient and outpatient nurses, spiritual care providers, and PC fellows...
February 1, 2018: Journal of Palliative Medicine
keyword
keyword
11134
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"