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https://www.readbyqxmd.com/read/29774494/peer-respites-a-qualitative-assessment-of-consumer-experience
#1
Elizabeth Siantz, Benjamin Henwood, Nicole McGovern, Joelle Greene, Todd Gilmer
This qualitative study explored the experiences of persons staying at two peer respites through interviews with 27 respite guests near the end of their stay and at 2-6 months following their stay. Trained peer interviewers conducted baseline and follow-up interviews. Peer respites can be beneficial spaces within the mental health system for guests to temporarily escape stressful situations while building relationships with other persons with mental illness, though some respondents were uncomfortable receiving services from peers, and several guests did not want to leave after their stay...
May 17, 2018: Administration and Policy in Mental Health
https://www.readbyqxmd.com/read/29768942/updated-meta-review-of-evidence-on-support-for-carers
#2
Jane Dalton, Sian Thomas, Melissa Harden, Alison Eastwood, Gillian Parker
Objective To update a 2010 meta-review of systematic reviews of effective interventions to support carers of ill, disabled, or older adults. In this article, we report the most promising interventions based on the best available evidence. Methods Rapid meta-review of systematic reviews published from January 2009 to 2016. Results Sixty-one systematic reviews were included (27 high quality, 25 medium quality, and nine low quality). The quality of reviews has improved since the original review, but primary studies remain limited in quality and quantity...
January 1, 2018: Journal of Health Services Research & Policy
https://www.readbyqxmd.com/read/29767825/-palliative-sedation-development-and-consensus-of-a-german-language-documentation-template
#3
C Klein, C Wittmann, K N Wendt, C Ostgathe, S Stiel
BACKGROUND: Palliative sedation (PS) serves as a therapeutic option in cases of otherwise intractable suffering. As the use of sedative and hypnotic medication in many diverse situations is a core competency of anesthesiology, anesthesiologists are confronted with questions of sedative therapy at the end of life in institutions for specialized palliative care, in intensive care units and intermediate care wards. In recent years a number of guidelines have been published internationally but so far no official guidelines exist in Germany...
May 16, 2018: Der Anaesthesist
https://www.readbyqxmd.com/read/29766598/dying-at-home-in-rural-residential-aged-care-a-mixed-methods-study-in-the-snowy-monaro-region-australia
#4
Suzanne Rainsford, Christine B Phillips, Nicholas J Glasgow, Roderick D MacLeod, Robert B Wiles
Residential aged care (RAC) is a significant provider of end-of-life care for people aged 65 years and older. Rural residents perceive themselves as different to their urban counterparts. Most studies describing place of death (PoD) in RAC are quantitative and reflect an urban voice. Using a mixed-methods design, this paper examines the PoD of 80 RAC residents (15 short-stay residents who died in RAC during respite or during an attempted step-down transition from hospital to home, and 65 permanent residents), within the rural Snowy Monaro region, Australia, who died between 1 February 2015 and 31 May 2016...
May 16, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29754783/therapeutic-spaces-of-care-farming-transformative-or-ameliorating
#5
Alexandra Kaley, Chris Hatton, Christine Milligan
Since Wil Gesler's earliest articulation (Gesler, 1992; Gesler, 1996) key thinkers in the field of therapeutic landscapes have sought to emphasise the embodied, contextual and wholly relational nature of the relationship that exists between people and place. However, the extant research has tended to focus on the relational healing experience as this occurs 'in the moment' and with reference to a specific location or site of healing, with less attention being paid to what happens to people when they return to their ordinary or everyday places...
May 4, 2018: Social Science & Medicine
https://www.readbyqxmd.com/read/29747564/reduse-reducing-antipsychotic-and-benzodiazepine-prescribing-in-residential-aged-care-facilities
#6
Juanita L Westbury, Peter Gee, Tristan Ling, Donnamay T Brown, Katherine H Franks, Ivan Bindoff, Aidan Bindoff, Gregory M Peterson
OBJECTIVE: To assess the impact of a multi-strategic, interdisciplinary intervention on antipsychotic and benzodiazepine prescribing in residential aged care facilities (RACFs). Design, setting: Prospective, longitudinal intervention in Australian RACFs, April 2014 - March 2016. PARTICIPANTS: 150 RACFs (with 12 157 residents) comprised the main participant group; two further groups were consultant pharmacists (staff education) and community pharmacies (prescribing data)...
May 14, 2018: Medical Journal of Australia
https://www.readbyqxmd.com/read/29732597/meeting-the-needs-of-young-adults-with-life-limiting-conditions-a-uk-survey-of-current-provision-and-future-challenges-for-hospices
#7
Katherine Knighting, Lucy Bray, Julia Downing, Andrew J Kirkcaldy, Tracy K Mitchell, Mary R O'Brien, Melissa Pilkington, Barbara A Jack
AIM: To seek views of UK children's and adult hospices on the availability and challenges of providing services for young adults with life-limiting conditions. BACKGROUND: Internationally there are a growing number of young adults with life-limiting conditions and/or complex needs which are degenerative, progressive and diverse and involve complex life-long symptom, medication management as well as palliative care. There are 55,721 young adults, aged 18-40 in England, which continues to increase...
May 6, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29716885/an-assistive-technology-system-that-provides-personalized-dressing-support-for-people-living-with-dementia-capability-study
#8
Winslow Burleson, Cecil Lozano, Vijay Ravishankar, Jisoo Lee, Diane Mahoney
BACKGROUND: Individuals living with advancing stages of dementia (persons with dementia, PWDs) or other cognitive disorders do not have the luxury of remembering how to perform basic day-to-day activities, which in turn makes them increasingly dependent on the assistance of caregivers. Dressing is one of the most common and stressful activities provided by caregivers because of its complexity and privacy challenges posed during the process. OBJECTIVE: In preparation for in-home trials with PWDs, the aim of this study was to develop and evaluate a prototype intelligent system, the DRESS prototype, to assess its ability to provide automated assistance with dressing that can afford independence and privacy to individual PWDs and potentially provide additional freedom to their caregivers (family members and professionals)...
May 1, 2018: JMIR Medical Informatics
https://www.readbyqxmd.com/read/29697186/respite-care-services-for-children-with-special-healthcare-needs-parental-perceptions
#9
Kim E Whitmore, Julia Snethen
PURPOSE: Parents of children with special healthcare needs may become overwhelmed with the ongoing caregiving needs of their children. Caring for a child with special healthcare needs is often challenging, requiring specialized training in many cases. As a result, parents can struggle to find qualified caregivers capable of providing them a break from the 24/7 care of their child. Respite care programs are designed to provide caregivers with a much-needed temporary break. The purpose of this study was to examine parental perceptions of utilizing a respite care program...
April 26, 2018: Journal for Specialists in Pediatric Nursing: JSPN
https://www.readbyqxmd.com/read/29681224/the-experience-of-a-recreational-camp-for-families-with-a-child-or-young-person-with-acquired-brain-injury
#10
Katrina J Luzinat, Penelope Analytis, Amelia J Hicks, Narelle Warren, Jennie L Ponsford
The Heads Together organisation provides a weekend camping programme for children with an acquired brain injury (ABI) and their families. Utilising a qualitative approach, this study explored family experiences of the Heads Together Camp (HTC) from the perspective of parents. Semi-structured interviews were conducted with 11 parents who had attended the camp. Thematic analysis identified six themes: ABI and the family; Apprehension and discomfort; Connections and community; Hope and perspective; Fun, relaxation and respite; and Family functioning...
April 22, 2018: Neuropsychological Rehabilitation
https://www.readbyqxmd.com/read/29669709/implementing-an-open-source-electronic-health-record-system-in-kenyan-health-care-facilities-case-study
#11
Naomi Muinga, Steve Magare, Jonathan Monda, Onesmus Kamau, Stuart Houston, Hamish Fraser, John Powell, Mike English, Chris Paton
BACKGROUND: The Kenyan government, working with international partners and local organizations, has developed an eHealth strategy, specified standards, and guidelines for electronic health record adoption in public hospitals and implemented two major health information technology projects: District Health Information Software Version 2, for collating national health care indicators and a rollout of the KenyaEMR and International Quality Care Health Management Information Systems, for managing 600 HIV clinics across the country...
April 18, 2018: JMIR Medical Informatics
https://www.readbyqxmd.com/read/29648908/support-needs-for-family-caregivers-of-clients-with-mental-illness-in-iran-a-qualitative-study
#12
Mohammad Akbari, Mousa Alavi, Alireza Irajpour, Jahangir Maghsoudi, Violeta Lopez, Michelle Cleary
This paper explored the support needs of family caregivers of people living with a mental illness in Iran. This descriptive study focused on the experiences of 20 family caregivers as well as the views of 29 professional support workers through individual face-to-face interviews. From these interviews three key themes emerged in regards to the care needs of family caregivers: (i) social support; (ii) emotional support; and (iii) safety and security. These themes highlighted the complex role of caring for a family member with a mental illness and the emotional, social and economic challenges that these caregivers experienced as a result...
April 12, 2018: Issues in Mental Health Nursing
https://www.readbyqxmd.com/read/29627933/care-wounds-precarious-vulnerability-and-the-potential-of-exposure
#13
Lauren Cubellis
What does it mean to offer care when the act of caring is wounding to its giver? For peer specialists-individuals with lived experience as patients in the psychiatric system-this question shapes how they use their own histories to provide support for individuals experiencing psychiatric crisis. Peer support is unique in the way it draws on empathetic resonance and depends on carefully deployed vulnerability; where one connects with others through the recognition of shared experience and mutual hurt. For peers, care works when this guidance, reassurance, and "being with"-all of which draw upon their own stories of traumatic history and variegated suffering-mitigate the present crisis being experienced by another...
April 7, 2018: Culture, Medicine and Psychiatry
https://www.readbyqxmd.com/read/29626801/study-protocol-a-montessori-approach-to-dementia-related-non-residential-respite-services-in-australia
#14
Andrew Hanna, James Donnelly, Christina Aggar
Given the social burden and significant cost of dementia care in Australia, finding evidence-based approaches that improve outcomes, maintain independence, and reduce the impact on patients and families is essential. Finding effective ways to train and assist the healthcare staff who support these individuals is also critical, as they are considered to be at risk of workplace stress, burnout, and other psychological disturbances which negatively affects standards of care. The current paper describes a protocol for evaluating the effects of a Montessori-based approach to dementia care, in non-residential respite centres...
March 27, 2018: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/29562361/community-reach-an-implementation-of-an-evidence-based-caregiver-program
#15
Sara J Czaja, Chin Chin Lee, Dolores Perdomo, David Loewenstein, Marina Bravo, Jerad H Moxley PhD, Richard Schulz
Background and Objectives: Family caregivers (CGs) are critical to the provision of long-term services and support for older adults. Numerous intervention programs to alleviate CG distress have been developed and evaluated yet few have been implemented in community settings. This paper describes and presents outcomes from Community REACH, a community implementation of the evidence-based Resources for Enhancing Alzheimer's Caregiver Health (REACH) II program. Research Design and Methods: Community REACH involved a partnership between REACH II investigators and United HomeCare Services (UHCS), a nonprofit home health organization that provides home health, personal care, companion, and respite services...
March 19, 2018: Gerontologist
https://www.readbyqxmd.com/read/29490657/-never-at-ease-family-carers-within-integrated-palliative-care-a-multinational-mixed-method-study
#16
Gülay Ateş, Anne Frederieke Ebenau, Csilla Busa, Ágnes Csikos, Jeroen Hasselaar, Birgit Jaspers, Johan Menten, Sheila Payne, Karen Van Beek, Sandra Varey, Marieke Groot, Lukas Radbruch
BACKGROUND: Family carers manage a wide range of responsibilities in the lives and care of patients receiving palliative care. They fulfil multiple roles and perform activities within different settings. This has immediate consequences on family carers' every-day lives. According to literature, family carers in palliative care are both part of the formal and informal care network, but also persons in need of support. This article aims to investigate 1) burdens and rewards associated with family caregiving and 2) what family carers find helpful in their contact with professionals from integrated palliative care initiatives (IPC-i) and other services...
March 1, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29488273/homeless-people-s-experiences-of-medical-respite-care-following-acute-hospitalisation-in-denmark
#17
Maja Pedersen, Camilla Bring, Nina Brünés, Ove Andersen, Janne Petersen, Mary Jarden
The aim of this study was to explore homeless people's health perspectives and experiences of a 2-week medical respite care programme following acute hospitalisation. There is a high level of health inequality when comparing the health status of homeless people to the general population, including increased mortality and morbidity. Homelessness predisposes an increased risk of infectious disease, cancer and chronic illness, such as diabetes and cardiovascular disease. Moreover, homeless people have a higher frequency of acute hospitalisation than general population estimates...
February 28, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29479250/children-with-medical-complexities-addressing-the-gaps-in-respite-care-during-transition-from-paediatrics-to-adult-health-care-in-ontario
#18
Michelle Porepa, Andrea Hoffman, Maryanne Fellin, Louise Kublick
Respite care is one integral component of the transition process from paediatric to adult health care, and is of particular importance to individuals with medical complexities. Numerous gaps that exist within the current system limit a child and family's ability to access quality respite care during a time when it is often most needed. Identifying and addressing these gaps in a systematic and collaborative way presents an opportunity to improve the quality of life for this vulnerable, ever growing population and their families...
October 2017: Paediatrics & Child Health
https://www.readbyqxmd.com/read/29475952/ccg-is-told-it-can-t-pull-%C3%A2-600-000-from-children-s-respite-centre
#19
Clare Dyer
No abstract text is available yet for this article.
February 23, 2018: BMJ: British Medical Journal
https://www.readbyqxmd.com/read/29424679/effects-of-respite-care-training-on-respite-provider-knowledge-and-confidence-and-outcomes-for-family-caregivers-receiving-respite-services
#20
Lynn Ackerman, Lois Sheaffer
Respite services are vital in supporting informal caregivers in need of a break from their caregiving duties. A respite training program aimed at developing respite provider competence and improving caregiver well-being was evaluated. Trainees experienced significant growth in their perceived respite knowledge and confidence to deliver respite from pretraining to posttraining. An objective core competency assessment confirmed posttraining knowledge in 10 core areas of respite. Family caregivers provided more favorable ratings on various measures of their well-being while receiving respite from a trained provider compared to before respite began and if respite were to end...
April 2018: Home Health Care Services Quarterly
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