keyword
https://read.qxmd.com/read/38648088/needs-and-experiences-with-health-care-providers-of-adult-rare-disease-patients-and-caregivers-of-people-with-rare-diseases-protocol-for-a-qualitative-study
#1
JOURNAL ARTICLE
Tina Černe, Eva Turk, Spela Mirosevic, Danica Rotar Pavlič
BACKGROUND: Rare diseases in Europe are defined as diseases with a prevalence of less than 5 per 10,000 people. Despite their individual rarity, the total number of rare diseases is considerable. Rare diseases are often chronic and complex, affecting physical, mental, and neurological health. People with rare diseases face challenges such as delayed diagnosis, limited medical support, and financial burden. Caregivers, usually family members, bear significant physical and emotional burdens...
April 22, 2024: JMIR Research Protocols
https://read.qxmd.com/read/38647719/application-of-the-stanford-biodesign-framework-in-healthcare-innovation-training-and-commercialization-of-market-appropriate-products-a-scoping-review
#2
REVIEW
Joelle Yan Xin Chua, Enci Mary Kan, Phin Peng Lee, Shefaly Shorey
The Stanford Biodesign needs-centric framework can guide healthcare innovators to successfully adopt the 'Identify, Invent and Implement' framework and develop new healthcare innovations products to address patients' needs. This scoping review explored the application of the Stanford Biodesign framework for healthcare innovation training and the development of novel healthcare innovative products. Seven electronic databases were searched from their respective inception dates till April 2023: PubMed, Embase, CINAHL, PsycINFO, Web of Science, Scopus, ProQuest Dissertations, and Theses Global...
April 22, 2024: Journal of Medical Systems
https://read.qxmd.com/read/38647438/practical-training-concept-for-perfusionists-at-the-heart-and-diabetes-center-nordrhein-westfalen
#3
REVIEW
Christian Klüß, André Giesbrecht, Markus Rudloff, Vera von Dossow, Eugen Sandica, Jan Gummert
BACKGROUND: Increasing regulations and requirements of advisory bodies, in particular the Joint Federal Committee and the Medical Service of the health insurance funds, make it necessary to employ only demonstrably well-trained perfusionists. The minimum requirement for this staff is EBCP certification. Currently there is limited availability of such specialists on the German market. Therefore, the qualification of young people in this area is of central importance. The aim of this paper is to strengthen the training of perfusionists at our centre, to standardise the process and to provide the respective student with a "roadmap" to their internship...
April 22, 2024: Perfusion
https://read.qxmd.com/read/38647232/delays-in-sexual-health-care-among-patients-attending-new-york-city-sexual-health-clinics-during-the-covid-19-pandemic-march-2020-to-february-2021
#4
JOURNAL ARTICLE
Jennifer Tang, Addie Crawley, Kelly Jamison, Athena Wong, Stephen Eng, Caroline Zhang, Isabella Navia, Carlos Cubas, Preeti Pathela
BACKGROUND: Public health emergencies can lead to reduced or suspended services in sexual health clinics (SHCs), raising questions about optimal ways to maintain access to care. We examined changes in sexual behaviors, HIV pre-exposure prophylaxis (PrEP) use, telehealth preference, and correlates of delayed sexual health care among patients attending New York City (NYC) publicly funded SHCs during the COVID-19 pandemic. METHODS: 470 patients from four SHCs (July-September 2021) completed a self-administered survey that collected data on access to sexual health care, overall and over three distinct time periods [Spring 2020 (COVID-19 wave 1), Summer 2020, Fall 2020/Winter 2021 (COVID-19 wave 2)]...
April 19, 2024: Sexually Transmitted Diseases
https://read.qxmd.com/read/38646454/post-trial-access-to-implantable-neural-devices-an-exploratory-international-survey
#5
JOURNAL ARTICLE
Nathan Higgins, John Gardner, Anna Wexler, Philipp Kellmeyer, Kerry O'Brien, Adrian Carter
OBJECTIVES: Clinical trials of innovative neural implants are rapidly increasing and diversifying, but little is known about participants' post-trial access to the device and ongoing clinical care. This exploratory study examines common practices in the planning and coordination of post-trial access to neurosurgical devices. We also explore the perspectives of trial investigators on the barriers to post-trial access and ongoing care, as well as ethical questions related to the responsibilities of key stakeholder groups...
2024: BMJ surgery, interventions, & health technologies
https://read.qxmd.com/read/38646040/making-research-everybody-s-business-innovation-to-introduce-foundation-doctors-to-research
#6
Kath Higgins, Rayah Ahmed, Sally Schreder, Pratik Choudhary, Nigel Brunskill, Rachel Parry, Melanie Davies
In order to train a future workforce able to meet the needs of its patients it is vital to ensure that opportunities to engage in research are inbuilt to training programmes. This strategy meets national recommendations recently published by NIHR, RCP and GMC. A nationally funded expansion of 'standard' Foundation programmes offers a unique opportunity to develop innovative new posts which include exposure to clinical research. In NHSE Midlands a pilot Foundation Year two (F2) post in Diabetes Research was implemented in August 2022, embedded into a standard Foundation programme...
March 2024: Future Healthcare Journal
https://read.qxmd.com/read/38646017/obstacles-in-basic-health-service-when-dealing-with-covid-19-a-reflection-for-improvement
#7
JOURNAL ARTICLE
Putri Chairani Eyanoer, Fotarisman Zaluchu
BACKGROUND & AIMS: COVID-19 has been in control since mass vaccination and other coordinated efforts have been conducted. The WHO has even made an announcement to stop the public health emergency of international concern (PHEIC) toward COVID-19. Because of the very massive impacts of COVID-19, it is necessary to have a reflection toward what we have gone through to obtain information from inside the health service by interviewing the health officers who were the frontliners in fighting the disease during the pandemic...
2024: Journal of Multidisciplinary Healthcare
https://read.qxmd.com/read/38645794/emerging-health-care-leaders-lessons-from-a-novel-leadership-and-community-building-program
#8
JOURNAL ARTICLE
Andrea Martani, Agne Ulyte, Dominik Menges, Emily Reeves, Milo A Puhan, Rolf Heusser
BACKGROUND: Although there are guidelines and ideas on how to improve public health education, translating innovative approaches into actual training programs remains challenging. In this article, we provide an overview of some initiatives that tried to put this into action in different parts of the world, and present the Emerging Health Care Leader (EHCL), a novel training program developed in Switzerland. POLICY OPTIONS AND RECOMMENDATIONS: Looking at the experience of the EHCL, we propose policymakers and other interested stakeholders who wish to help reform public health education to support these initiatives not only through funding, but by valuing them through the integration of early career healthcare leaders in projects where their developing expertise can be practically applied...
2024: Public Health Reviews
https://read.qxmd.com/read/38644526/impact-of-income-and-financial-subsidies-on-oral-health-care-utilization-among-persons-with-disabilities-in-singapore
#9
JOURNAL ARTICLE
Sharon Hui Xuan Tan, Gabriel Keng Yan Lee, Charlene Enhui Goh, Huei Jinn Tong, Janice Cheah Ping Chuang, Kok-Yang Ang, David Guang Xu Lim, Xiaoli Gao
BACKGROUND/AIM(S): Globally, studies have shown that the dental disease burden among persons with intellectual and/or developmental disabilities (IDD) is high and can be attributed to lower utilization levels of dental services. The aim of the study was to assess the influence of income and financial subsidies on the utilization of dental care services among persons with IDD in Singapore. METHODS: Between August 2020 and August 2021, a cross-sectional study was conducted via centres offering Early Intervention Programme for Infants and Children, special education schools and adult associations in Singapore serving persons with IDD...
April 21, 2024: Community Dentistry and Oral Epidemiology
https://read.qxmd.com/read/38644160/associations-of-preoperative-anaemia-with-healthcare-resource-use%C3%A2-and-outcomes-after-colorectal-surgery-a-population-based-cohort-study
#10
JOURNAL ARTICLE
Lily J Park, Husein Moloo, Tim Ramsay, Kednapa Thavorn, Justin Presseau, Terry Zwiep, Guillaume Martel, P J Devereaux, Robert Talarico, Daniel I McIsaac
BACKGROUND: Preoperative anaemia is common in patient undergoing colorectal surgery. Understanding the population-level costs of preoperative anaemia will inform development and evaluation of anaemia management at health system levels. METHODS: This was a population-based cohort study using linked, routinely collected data, including residents from Ontario, Canada, aged ≥18 yr who underwent an elective colorectal resection between 2012 and 2022. Primary exposure was preoperative anaemia (haemoglobin <130 g L-1 in males; <120 g L-1 in females)...
April 20, 2024: British Journal of Anaesthesia
https://read.qxmd.com/read/38643167/end-of-life-care-in-germany-between-2016-and-2020-a-repeated-cross-sectional-analysis-of-statutory-health-insurance-data
#11
JOURNAL ARTICLE
Katharina van Baal, Melissa Hemmerling, Jona Theodor Stahmeyer, Stephanie Stiel, Kambiz Afshar
BACKGROUND: The Hospice and Palliative Care Act of 2015 aimed at developing and regulating the provision of palliative care (PC) services in Germany. As a result of the legal changes, people with incurable diseases should be enabled to experience their final stage of life including death according to their own wishes. However, it remains unknown whether the act has impacted end-of-life care (EoLC) in Germany. OBJECTIVE: The present study examined trends in EoLC indicators for patients who died between 2016 and 2020, in the context of Lower Saxony, Germany...
April 20, 2024: BMC Palliative Care
https://read.qxmd.com/read/38642520/profits-over-care-an-analysis-of-the-relationship-between-corporate-capitalism-in-the-healthcare-industry-and-cancer-mortality-in-the-united-states
#12
JOURNAL ARTICLE
Teresa Perry, Alexandra Bernasek
The characteristic features of 21st-century corporate capitalism - monopoly and financialization - are increasingly being recognized by public health scholars as undermining the foundations of human health. While the "vectors" through which this is occurring are well known - poverty, inequality, climate change among others - locating the root cause of this process in the nature and institutions of contemporary capitalism is relatively new. Researchers have been somewhat slow to study the relationship between contemporary capitalism and human health...
April 12, 2024: Social Science & Medicine
https://read.qxmd.com/read/38640940/global-burden-associated-with-85-pathogens-in-2019-a-systematic-analysis-for-the-global-burden-of-disease-study-2019
#13
JOURNAL ARTICLE
(no author information available yet)
BACKGROUND: Despite a global epidemiological transition towards increased burden of non-communicable diseases, communicable diseases continue to cause substantial morbidity and mortality worldwide. Understanding the burden of a wide range of infectious diseases, and its variation by geography and age, is pivotal to research priority setting and resource mobilisation globally. METHODS: We estimated disability-adjusted life-years (DALYs) associated with 85 pathogens in 2019, globally, regionally, and for 204 countries and territories...
April 16, 2024: Lancet Infectious Diseases
https://read.qxmd.com/read/38640480/psychometric-evaluation-of-a-tablet-based-tool-to-detect-mild-cognitive-impairment-in-older-adults-mixed-methods-study
#14
JOURNAL ARTICLE
Josephine McMurray, AnneMarie Levy, Wei Pang, Paul Holyoke
BACKGROUND: With the rapid aging of the global population, the prevalence of mild cognitive impairment (MCI) and dementia is anticipated to surge worldwide. MCI serves as an intermediary stage between normal aging and dementia, necessitating more sensitive and effective screening tools for early identification and intervention. The BrainFx SCREEN is a novel digital tool designed to assess cognitive impairment. This study evaluated its efficacy as a screening tool for MCI in primary care settings, particularly in the context of an aging population and the growing integration of digital health solutions...
April 19, 2024: Journal of Medical Internet Research
https://read.qxmd.com/read/38639981/untreated-psychiatric-and-substance-use-disorders-among-caregivers-with-children-reported-to-child-protective-services
#15
JOURNAL ARTICLE
Tami L Mark, Melissa Dolan, Benjamin Allaire, William Parish, Claire Strack, Diana Poehler, Emily Madden, Valeria Butler
IMPORTANCE: Mental and substance use disorders can interfere with parents' ability to care for their children and are associated with a greater likelihood of child protective services involvement to address child maltreatment. Parent engagement in psychiatric and substance use disorder treatment can prevent child maltreatment and family separations. OBJECTIVE: To determine whether caregivers with psychiatric or substance use disorders whose children were referred to child protective services received Medicaid-funded psychiatric or substance use disorder treatment...
April 5, 2024: JAMA health forum
https://read.qxmd.com/read/38639865/multi-sector-stakeholder-consensus-on-tackling-the-complex-health-and-social-needs-of-the-growing-population-of-people-leaving-prison-in-older-age
#16
JOURNAL ARTICLE
Ye In Jane Hwang, Stephen Hampton, Adrienne Lee Withall, Phillip Snoyman, Katrina Forsyth, Tony Butler
BACKGROUND: As populations age globally, cooperation across multi-sector stakeholders is increasingly important to service older persons, particularly those with high and complex health and social needs. One such population is older people entering society after a period of incarceration in prison. The 'ageing epidemic' in prisons worldwide has caught the attention of researchers, governments and community organisations, who identify challenges in servicing this group as they re-enter the community...
April 19, 2024: Health & Justice
https://read.qxmd.com/read/38639815/-nutrition-counseling-in-medical-practices-a%C3%A2-cross-sectional-study
#17
JOURNAL ARTICLE
Hannah Luisa Mertens, Andrea Kaifie
INTRODUCTION: The purpose of this study was to assess the status of nutrition care and counseling in German medical practices, including physicians' nutrition interest and knowledge, existing obstacles, and possible ways of improving nutrition care. METHODS: After development and a two-stage pretest, questionnaires with 32 items were distributed to all resident doctors of general medicine, internal medicine, gynecology and obstetrics, orthopedics, and occupational medicine in Aachen (n = 360) in early spring 2022...
April 19, 2024: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz
https://read.qxmd.com/read/38639814/initiating-a-fetal-cardiac-program-from-scratch-in-low-and-middle-income-countries-structure-challenges-and-hopes-for-solutions
#18
REVIEW
Shaimaa Rakha
Although fetal cardiac programs are well established in developed countries, establishing an efficient program in low- and middle-income countries (LMICs) is still considered a significant challenge. Substantial obstacles usually face the initiation of fetal cardiac service from scratch in LMICs. The primary structural frame of a successful fetal cardiac program is described in detail, emphasizing the required team members. The potential challenges for starting fetal cardiac services in LMICs include financial, awareness-related, prenatal obstetric screening, sociocultural, psychosocial, and social support factors...
April 19, 2024: Pediatric Cardiology
https://read.qxmd.com/read/38639145/-international-classification-of-health-interventions-of-world-health-organization-as-the-basis-for-a-new-nomenclature-of-medical-rehabilitation-services
#19
JOURNAL ARTICLE
G N Ponomarenko, K N Petrishcheva
UNLABELLED: The development of health care system, including medical rehabilitation, in the Russian Federation is required updating nomenclature of simple and complex medical services and establishing its detailed list. The latter should integrate international experience and features of domestic health care system. OBJECTIVE: To analyze the structure of International Classification of Health Interventions (ICHI) of World Health Organization (WHO) and the possibilities of its practical application in domestic medical rehabilitation system...
2024: Voprosy Kurortologii, Fizioterapii, i Lechebnoĭ Fizicheskoĭ Kultury
https://read.qxmd.com/read/38637857/research-ethics-and-artificial-intelligence-for-global-health-perspectives-from-the-global-forum-on-bioethics-in-research
#20
JOURNAL ARTICLE
James Shaw, Joseph Ali, Caesar A Atuire, Phaik Yeong Cheah, Armando Guio Español, Judy Wawira Gichoya, Adrienne Hunt, Daudi Jjingo, Katherine Littler, Daniela Paolotti, Effy Vayena
BACKGROUND: The ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue for attention in policy, research, and practice. In this paper we report on central themes related to challenges and strategies for promoting ethics in research involving AI in global health, arising from the Global Forum on Bioethics in Research (GFBR), held in Cape Town, South Africa in November 2022. METHODS: The GFBR is an annual meeting organized by the World Health Organization and supported by the Wellcome Trust, the US National Institutes of Health, the UK Medical Research Council (MRC) and the South African MRC...
April 18, 2024: BMC Medical Ethics
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