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multiple sclerosis and quality of life

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https://www.readbyqxmd.com/read/29344140/familial-genetic-tuberous-sclerosis-complex-associated-with-bilateral-giant-renal-angiomyolipoma-a-case-report
#1
Lina Wang, Dawei Ni, Lin Zhong, Jianbo Wang
Tuberous sclerosis complex (TSC) is an autosomal dominant disease involving multiple organs, but there are a limited number of reports on family TSC. In the present report, a case of a 52-year-old female with a familial genetic TSC, associated with bilateral giant renal angiomyolipoma, was described. The mother, second elder brother and daughter of the patient all exhibited TSC, but the clinical manifestations, and therapeutic prognosis between the family members were not the same. The present case report aimed at identifying an effective diagnostic method and treatment through additional study of familial genetic TSC, in order to prolong and improve the quality of life for patients with TSC...
December 2017: Oncology Letters
https://www.readbyqxmd.com/read/29343461/effects-of-psychiatric-comorbidity-in-immune-mediated-inflammatory-disease-protocol-for-a-prospective-study
#2
Ruth Ann Marrie, Lesley Graff, John R Walker, John D Fisk, Scott B Patten, Carol A Hitchon, Lisa M Lix, James Bolton, Jitender Sareen, Alan Katz, Lindsay I Berrigan, James J Marriott, Alexander Singer, Renée El-Gabalawy, Christine A Peschken, Ryan Zarychanski, Charles N Bernstein
BACKGROUND: Immune-mediated inflammatory diseases (IMID), such as inflammatory bowel disease (IBD), multiple sclerosis (MS), and rheumatoid arthritis (RA), are highly prevalent in Canada and the United States and result in substantial personal and societal burden. The prevalence of psychiatric comorbidities, primarily depression and anxiety, in IMID exceeds those in the general population by two- to threefold, but remains underdiagnosed and undertreated. Furthermore, the effects of psychiatric comorbidity on IMID are not well understood...
January 17, 2018: JMIR Research Protocols
https://www.readbyqxmd.com/read/29324506/a-pilot-mixed-methods-evaluation-of-ms-inform-a-self-directed-fatigue-management-resource-for-individuals-with-multiple-sclerosis
#3
Nadine Akbar, Karen Turpin, Julie Petrin, Penny Smyth, Marcia Finlayson
Fatigue management interventions for individuals with multiple sclerosis (MS) often feature structured programmes requiring repeated, in-person attendance that is not possible for all individuals. We sought to determine whether MS INFoRm, a self-directed fatigue management resource for individuals with MS, was worth further, more rigorous evaluation. Our indicators of worthiness were actual use of the resource by participants over 3 months, reductions in fatigue impact and increases in self-efficacy, and participant reports of changes in fatigue management knowledge and behaviours...
January 10, 2018: International Journal of Rehabilitation Research. Revue Internationale de Recherches de Réadaptation
https://www.readbyqxmd.com/read/29321706/validity-and-reliability-of-the-turkish-version-of-the-multiple-sclerosis-related-symptom-checklist
#4
Zeliha Tülek, Cansu Polat, Murat Kürtüncü, Mefkure Eraksoy
Introduction: Multiple sclerosis (MS) is a disease that causes different symptoms in each attack and has an individual-specific course. Detailed questioning and recording of MS symptoms is important for developing a management plan for individual-specific symptoms. The present study was planned to evaluate the validity and reliability of the Turkish version of "Multiple Sclerosis-Related Symptom Checklist" (MS-RS), which has been developed for patients to personally follow-up the symptoms they experience...
December 2017: Noro Psikiyatri Arsivi
https://www.readbyqxmd.com/read/29317954/a-multiple-treatment-comparison-of-eleven-disease-modifying-drugs-used-for-multiple-sclerosis
#5
Vida Hamidi, Elisabeth Couto, Tove Ringerike, Marianne Klemp
Background: Several disease-modifying drug therapies are available for the treatment of multiple sclerosis (MS). To ensure the most appropriate MS management, we assessed the effectiveness and cost-effectiveness of the disease-modifying medicines used for MS. Methods: We conducted a systematic review including 11 disease-modifying drugs used for treatment of adult patients diagnosed with relapsing-remitting MS. We performed a network meta-analysis using both direct and indirect evidence...
February 2018: Journal of Clinical Medicine Research
https://www.readbyqxmd.com/read/29317850/long-term-safety-and-real-world-effectiveness-of-fingolimod-in-relapsing-multiple-sclerosis
#6
REVIEW
Charlotte Druart, Souraya El Sankari, Vincent van Pesch
With a growing number of disease-modifying therapies becoming available for relapsing multiple sclerosis, there is an important need to gather real-world evidence data regarding long-term treatment effectiveness and safety in unselected patient populations. Although not providing as high a level of evidence as randomized controlled trials, and prone to bias, real-world studies from observational studies or registries nevertheless provide crucial information on real-world outcomes of a given therapy. In addition, evaluation of treatment satisfaction and impact on quality of life are increasingly regarded as complementary outcome measures...
2018: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29300228/loneliness-in-multiple-sclerosis-possible-antecedents-and-correlates
#7
Julia M Balto, Lara A Pilutti, Robert W Motl
PURPOSE: The prevalence and possible antecedents and correlates of loneliness in multiple sclerosis (MS) was examined. DESIGN: Cross-sectional, comparative study of MS (n = 63) and healthy adults (n = 21). METHODS: Data were collected using self-reports of loneliness and antecedents and correlates and analyzed using inferential statistics. FINDINGS: Those with MS had significantly higher loneliness scores than healthy adults (p < ...
January 3, 2018: Rehabilitation Nursing: the Official Journal of the Association of Rehabilitation Nurses
https://www.readbyqxmd.com/read/29289971/quality-of-life-and-social-support-in-patients-with-multiple-sclerosis
#8
Katarzyna Rosiak, Paweł Zagożdżon
OBJECTIVES: Quality of life and needforsocial support in persons diagnosed with multiple sclerosis (MS) are to a large extent determined by the degree of their disability. The aim of the study was to analyze an association between specific forms of MS, subjectively perceived quality of life and social support. METHODS: The study included subjects with established diagnosis of MS, treated at rehabilitation centers, hospitals and in a home setting, as well as the members of patient organizations...
October 29, 2017: Psychiatria Polska
https://www.readbyqxmd.com/read/29287781/beneficial-effects-of-oral-administration-of-c-phycocyanin-and-phycocyanobilin-in-rodent-models-of-experimental-autoimmune-encephalomyelitis
#9
Majel Cervantes-Llanos, Nielsen Lagumersindez-Denis, Javier Marín-Prida, Nancy Pavón-Fuentes, Viviana Falcon-Cama, Beatriz Piniella-Matamoros, Hanlet Camacho-Rodríguez, Julio Raúl Fernández-Massó, Carmen Valenzuela-Silva, Ivette Raíces-Cruz, Eduardo Pentón-Arias, Mauro Martins Teixeira, Giselle Pentón-Rol
The only three oral treatments currently available for multiple sclerosis (MS) target the relapsing forms of the disease and concerns regarding efficacy, safety and tolerability limit their use. Identifying novel oral disease-modifying therapies for MS, targeting both its inflammatory and neurodegenerative components is still a major goal. AIM: The scope of this study was to provide evidence that the oral administration of C-Phycocyanin (C-PC), the main biliprotein of the Spirulina platensis cyanobacteria and its tetrapyrrolic prosthetic group, Phycocyanobilin (PCB), exert ameliorating actions on rodent models of experimental autoimmune encephalomyelitis (EAE)...
December 26, 2017: Life Sciences
https://www.readbyqxmd.com/read/29280019/impact-of-short-term-cycle-ergometer-training-on-quality-of-life-cognition-and-depressive-symptomatology-in-multiple-sclerosis-patients-a-pilot-study
#10
Alison Barry, Owen Cronin, Aisling M Ryan, Brian Sweeney, Orna O'Toole, Andrew P Allen, Gerard Clarke, Ken D O'Halloran, Eric J Downer
In this pilot study, we investigate whether a routine cycle ergometry training programme has therapeutic potential in individuals with multiple sclerosis (MS) by improving quality of life (QOL) and depressive symptomatology, while ameliorating cognitive disturbances. Healthy volunteers and MS patients cycled for 30 min at 65-75% age-predicted maximal heart rate on a recumbent ergometer, with this session repeated twice a week for 8 weeks. QOL, depressive symptomatology and cognitive function were assessed pre- and post-exercise using the MS Quality of Life-54 (MSQOL-54) questionnaire, 16-item Quick Inventory of Depressive Symptomatology (QIDS-SR16) questionnaire and the Cambridge Neuropsychological Test Automated Battery (CANTAB), respectively...
December 26, 2017: Neurological Sciences
https://www.readbyqxmd.com/read/29275057/treatment-satisfaction-and-bothersome-bladder-bowel-sexual-symptoms-in-multiple-sclerosis
#11
Guoqiao Wang, Ruth Ann Marrie, Robert J Fox, Tuula Tyry, Stacey S Cofield, Gary R Cutter, Amber Salter
BACKGROUND: Bladder, bowel, and sexual symptoms are common among persons with multiple sclerosis (MS). We aimed to investigate the frequency and severity of bladder, bowel, and sexual symptoms, the relationships between these symptoms, satisfaction with treatment of these symptoms, and factors associated with symptom severity and treatment satisfaction. METHODS: In the fall 2010, we surveyed participants in the North American Research Committee on Multiple Sclerosis (NARCOMS) Registry regarding the severity of being bothered by bladder, bowel, and sexual symptoms, their satisfaction of health providers' inquiry and treatment with these symptoms, and whether their quality of life (QOL) had changed with the treatment...
December 14, 2017: Multiple Sclerosis and related Disorders
https://www.readbyqxmd.com/read/29260540/conservative-management-of-adult-neurogenic-lower-urinary-tract-dysfunction
#12
Paolo DI Benedetto, Enrico Finazzi-Agrò
Neurogenic lower urinary tract dysfunction (NLTUD) is commonly encountered in neuro-rehabilitation settings and is caused by a variety of pathologies. The management of spinal cord injury (SCI) has been the model of reference for the approach to NLTUD due to many other diseases of the central and peripheral nervous system. The decline in renal-related mortality in SCI patients after the introduction of clean intermittent catheterization in association with pharmacological treatment (antimuscarinics in particular), and the algorithms proposed since 1998 by the International Consultations on Incontinence underline the need of early assessment and treatment of urinary incontinence and/or urinary retention in neuropathic patients...
December 2017: European Journal of Physical and Rehabilitation Medicine
https://www.readbyqxmd.com/read/29258495/observational-study-of-patients-in-spain-with-amyotrophic-lateral-sclerosis-correlations-between-clinical-status-quality-of-life-and-dignity
#13
Yolanda Martínez-Campo, Christian Homedes, Ana Lazaro, Raquel Alarcón, David Campo, Mariona Riera, Raúl Domínguez, Mónica Povedano, Carlos Casasnovas
BACKGROUND: Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease that dramatically affects patients' quality of life (QoL) and dignity of life (DoL). We aimed to study the impact of ALS on QoL and DoL and how these evolve throughout the duration of the disease. METHODS: First, we performed an observational, descriptive study of 43 patients with ALS recruited from the ALS unit at our center and compared them with 20 healthy age- and sex-matched controls...
December 19, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/29250012/the-effectiveness-of-a-body-affective-mindfulness-intervention-for-multiple-sclerosis-patients-with-depressive-symptoms-a-randomized-controlled-clinical-trial
#14
Sara Carletto, Valentina Tesio, Martina Borghi, Diana Francone, Francesco Scavelli, Gabriella Bertino, Simona Malucchi, Antonio Bertolotto, Francesco Oliva, Riccardo Torta, Luca Ostacoli
Purpose: Mindfulness interventions have been shown to treat depressive symptoms and improve quality of life in patients with several chronic diseases, including multiple sclerosis, but to date most evaluation of the effectiveness of mindfulness interventions in multiple sclerosis have used patients receiving standard care as the control group. Hence we decided to evaluate the effectiveness of a group-based body-affective mindfulness intervention by comparing it with a psycho-educational intervention, by means of a randomized controlled clinical trial...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/29249687/male-incontinence-the-etiology-or-basis-of-treatment
#15
REVIEW
Austin G Hester, Alexander Kretschmer, Gopal Badlani
CONTEXT: Elderly men are an increasing proportion of the aging population in the 21st century. Urinary incontinence reduces the quality of life and increases the burden of care for the aging population. OBJECTIVE: The primary objective of this review is to explore the etiopathology of common causes of incontinence in aging male patients. The focus is on the algorithm of the initial evaluation of these patients from both a primary care and a urologic standpoint. EVIDENCE ACQUISITION: A nonsystematic review of the literature was performed in September 2017...
December 14, 2017: European Urology Focus
https://www.readbyqxmd.com/read/29238216/improved-health-related-quality-of-life-participation-and-autonomy-in-patients-with-treatment-resistant-chronic-pain-after-an-intensive-social-cognitive-intervention-with-the-participation-of-support-partners
#16
Peter Joseph Jongen, Rob P Ruimschotel, Y M Museler-Kreijns, Tmc Dragstra, L Duyverman, J Valkenburg-Vissers, J Cornelissen, R Lagrand, Rogier Donders, A Hartog
Despite the availability of various specific treatments, most patients with chronic pain (CP) consider their pain problem as undertreated. Recently, multiple sclerosis (MS) patients who were given an intensive 3-day social cognitive treatment with the participation of support partners experienced lasting improvements in health-related quality of life (HRQoL) and self-efficacy. In this study, a similar intervention was given to treatment-resistant CP patients with stressors, relational problems with support partner, and distress, anxiety or depression...
2017: Journal of Pain Research
https://www.readbyqxmd.com/read/29203325/-multiple-sclerosis-loss-of-functionality-and-gender
#17
Félix Bravo-González, Arturo Álvarez-Roldán
OBJECTIVE: To identify the type of support and assistance that patients with multiple sclerosis need in order to cope with the loss of functionality, and to show how gender affects the perception of these needs. METHOD: Interpretative-phenomenological qualitative study. LOCATION: Granada (Spain). Year: 2014. Intentional sample: 30 patients and 20 family caregivers. Data were gathered from 26 interviews and 4 focus groups. The data were coded and analysed with the NVivo programme...
December 1, 2017: Gaceta Sanitaria
https://www.readbyqxmd.com/read/29198279/neuropsychology-of-multiple-sclerosis-looking-back-and-moving-forward
#18
Ralph H B Benedict, John DeLuca, Christian Enzinger, Jeroen J G Geurts, Lauren B Krupp, Stephen M Rao
The neuropsychological aspects of multiple sclerosis (MS) have evolved over the past three decades. What was once thought to be a rare occurrence, cognitive dysfunction is now viewed as one of the most disabling symptoms of the disease, with devastating effects on patients' quality of life. This selective review will highlight major innovations and scientific discoveries in the areas of neuropathology, neuroimaging, diagnosis, and treatment that pertain to our understanding of the neuropsychological aspects of MS...
October 2017: Journal of the International Neuropsychological Society: JINS
https://www.readbyqxmd.com/read/29185533/depression-in-epilepsy-migraine-and-multiple-sclerosis-epidemiology-and-how-to-screen-for-it
#19
REVIEW
Nathalie Jetté, Farnaz Amoozegar, Scott B Patten
Purpose of review: To provide an overview of the epidemiology of depression in chronic neurologic conditions that can affect individuals throughout the lifespan (epilepsy, migraine, multiple sclerosis [MS]) and examine depression screening tools for adults with these conditions. Recent findings: Depression is common in neurologic conditions and can be associated with lower quality of life, higher health resource utilization, and poor adherence to treatment. It affects around 20%-30% of those with epilepsy, migraine, and MS, and evidence for a bidirectional association exists for each of these conditions...
April 2017: Neurology. Clinical Practice
https://www.readbyqxmd.com/read/29174060/feasibility-of-a-6-month-yoga-program-to-improve-the-physical-and-psychosocial-status-of-persons-with-multiple-sclerosis-and-their-family-members
#20
Turhan Kahraman, Asiye Tuba Ozdogar, Pinar Yigit, Ilknur Hosgel, Zaur Mehdiyev, Ozge Ertekin, Serkan Ozakbas
CONTEXT: To the best of our knowledge, there has been no study on yoga that includes both persons with multiple sclerosis (MS) and their family members. Because yoga has therapeutic effects in both persons with MS and healthy persons, we hypothesized that it would be an effective method to improve not only the physical and psychosocial status but also the time persons with MS and their family members spend together. OBJECTIVE: To examine the feasibility of a 6-month (long-term) yoga program to improve the physical and psychosocial status of persons with MS and their family members...
October 23, 2017: Explore: the Journal of Science and Healing
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