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https://www.readbyqxmd.com/read/28731821/trust-in-physicians-continuity-and-coordination-of-care-and-quality-of-death-in-patients-with-advanced-cancer
#1
Jun Hamano, Tatsuya Morita, Sakiko Fukui, Yoshiyuki Kizawa, Satoru Tunetou, Yasuo Shima, Makoto Kobayakawa, Maho Aoyama, Mitsunori Miyashita
BACKGROUND: Provider-centered factors contribute to unexplained variation in the quality of death (QOD). The relationship between healthcare providers (HCPs) and patients, bidirectional communication, and consistency of longitudinal care planning are important provider-centered factors. OBJECTIVE: To explore whether the level of trust in HCPs, the quality of continuity of care, and the level of coordination of care among home HCPs are associated with the QOD for cancer patients dying at home...
July 21, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28727892/end-of-life-experiences-of-family-caregivers-of-deceased-patients-with-cancer-a-nation-wide-survey
#2
Kayo Hirooka, Hiroyuki Otani, Tatsuya Morita, Tomofumi Miura, Hiroki Fukahori, Maho Aoyama, Yoshiyuki Kizawa, Yasuo Shima, Satoru Tsuneto, Mitsunori Miyashita
OBJECTIVES: The purpose of this study was (1) to describe the end-of-life experience of family caregivers of cancer patients, (2) to describe talking about death and dying of the patient to minor children, and (3) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. METHODS: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned...
July 20, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/28724551/evaluation-of-a-pilot-police-led-suicide-early-alert-surveillance-strategy-in-the-uk
#3
Grant James McGeechan, Catherine Richardson, Kevin Weir, Lynn Wilson, Gillian O'Neill, Dorothy Newbury-Birch
INTRODUCTION: Those bereaved by suicide are at increased risk of psychological harm, which can be reduced with the provision of timely support. This paper outlines an evaluation of a pilot police-led suicide strategy, in comparison to a coroner-led suicide strategy looking at the number, and length of time it takes for deaths to be recorded for each strategy. Additionally, the police-led strategy offers timely contact from support services for bereaved individuals. We examined what impact this offer of support had on the capacity of support services...
July 19, 2017: Injury Prevention: Journal of the International Society for Child and Adolescent Injury Prevention
https://www.readbyqxmd.com/read/28724471/what-influences-diet-quality-in-older-people-a-qualitative-study-among-community-dwelling-older-adults-from-the-hertfordshire-cohort-study-uk
#4
Ilse Bloom, Wendy Lawrence, Mary Barker, Janis Baird, Elaine Dennison, Avan Aihie Sayer, Cyrus Cooper, Sian Robinson
OBJECTIVE: To explore influences on diet in a group of community-dwelling older adults in the UK. DESIGN: Data were collected through focus group discussions with older people; discussions were audio-recorded, transcribed verbatim and transcripts analysed thematically. SETTING: Hertfordshire, UK. SUBJECTS: Participants were sampled purposively from the Hertfordshire Cohort Study, focusing on those whose diets had been assessed at two time points: 1998-2001 and 2011...
July 20, 2017: Public Health Nutrition
https://www.readbyqxmd.com/read/28720010/determinants-and-predictors-of-grief-severity-and-persistence-the-rotterdam-study
#5
Jelena Milic, Taulant Muka, M Arfan Ikram, Oscar H Franco, Henning Tiemeier
OBJECTIVE: We aimed to explore correlates and predictors of bereavement severity and persistence (triggered by "loss of a loved one"; referent group partner loss) in the Rotterdam cohort. METHOD: We used linear regression to examine factors associated with grief severity using a cross-sectional analysis and logistic regression to determine prospective associations. RESULTS: Cross-sectionaly, females, child-lost, higher depressive symptoms, lower education, and difficulties in daily activities were independently associated with a higher bereavement severity...
July 1, 2017: Journal of Aging and Health
https://www.readbyqxmd.com/read/28714809/reticence-in-disclosure-of-hiv-infection-and-reasons-for-bereavement-impact-on-perinatally-infected-adolescents-mental-health-and-understanding-of-hiv-treatment-and-prevention-in-johannesburg-south-africa
#6
Nataly Woollett, Vivian Black, Lucie Cluver, Heena Brahmbhatt
Survival rates of perinatally infected HIV-positive adolescents (PIA) are increasing in sub-Saharan Africa. There is a gap in understanding how disclosure and bereavement have an impact on PIA beliefs and understanding of their HIV infection and its management. In-depth interviews were conducted with 25 purposively selected adolescents aged 13-19 years from 5 public health clinics in Johannesburg, South Africa. Data were analysed using NVivo 10 using a thematic approach. PIA experience incomplete disclosure both of their HIV status and reasons for their bereavements, which limits their understanding of how they became infected, vertical transmission and prevention options like prevention of mother-to-child transmission (PMTCT)...
July 17, 2017: African Journal of AIDS Research: AJAR
https://www.readbyqxmd.com/read/28711756/meaningful-communication-prior-to-death-but-not-presence-at-the-time-of-death-itself-is-associated-with-better-outcomes-on-measures-of-depression-and-complicated-grief-among-bereaved-family-members-of-cancer-patients
#7
Hiroyuki Otani, Saran Yoshida, Tatsuya Morita, Maho Aoyama, Yoshiyuki Kizawa, Yasuo Shima, Satoru Tsuneto, Mitsunori Miyashita
CONTEXT: Few studies have explored the clinical significance of the family's presence or absence at the moment of a patient's death and meaningful communication (saying "goodbye") in terms of post-bereavement outcomes. OBJECTIVES: To explore the potential association between the family's depression/complicated grief and their presence at the moment of a patient's death and the patient's communication with the family. METHODS: A nationwide questionnaire survey was conducted on 965 family members of cancer patients who had died at palliative care units...
July 12, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28706105/how-people-with-dementia-and-carers-understand-and-react-to-social-functioning-changes-in-mild-dementia-a-uk-based-qualitative-study
#8
David Singleton, Naaheed Mukadam, Gill Livingston, Andrew Sommerlad
OBJECTIVES: To analyse people with dementia and their family carers' attribution of social changes in dementia and the consequences of these attributions. DESIGN: Qualitative study, using a semi-structured interview guide. Individual interviews continued to theoretical saturation. Two researchers independently analysed interview transcripts. SETTING AND PARTICIPANTS: People with mild dementia and family carers purposively selected from London-based memory services for diverse demographic characteristics to encompass a range of experiences...
July 12, 2017: BMJ Open
https://www.readbyqxmd.com/read/28705039/the-associations-of-complicated-grief-depression-posttraumatic-growth-and-hope-among-bereaved-youth
#9
Alison Salloum, Anne Bjoerke, Carly Johnco
Research on the association between complicated grief (CG), hope, and posttraumatic growth (PTG) among bereaved youth is limited. Measures of CG, depression, hope, and PTG were completed by 85 youth (aged 7-18 years). Results indicated a strong positive relationship between CG and depressive symptoms, an inverse relationship between hope and depressive symptoms, and a moderate positive relationship between hope and PTG. There was no significant association between CG and hope or between CG and PTG. Higher levels of CG and lower levels of hope independently predicted greater depressive symptoms, but PTG did not...
January 1, 2017: Omega
https://www.readbyqxmd.com/read/28701233/bereavement-support-standards-and-bereavement-care-pathway-for-quality-palliative-care
#10
Peter Hudson, Chris Hall, Alison Boughey, Audrey Roulston
OBJECTIVE: Provision of bereavement support is an essential component of palliative care service delivery. While bereavement support is integral to palliative care, it is typically insufficiently resourced, under-researched, and not systematically applied. Our aim was to develop bereavement standards to assist palliative care services to provide targeted support to family caregivers. METHOD: We employed a multiple-methods design for our study, which included: (1) a literature review, (2) a survey of palliative care service providers in Australia, (3) interviews with national (Australian) and international experts, (4) key stakeholder workshops, and (5) a modified Delphi-type survey...
July 13, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28701115/comparing-facilitator-priorities-of-suicide-survivor-support-groups-a-cross-cultural-comparison-between-japanese-and-american-groups
#11
William Feigelman, Beverly Feigelman, Daisuke Kawashima, Keisuke Shiraga, Kenji Kawano
A total of 56 Japanese and 59 American survivor of suicide support group facilitators were asked to rank the mutual aid objectives of their groups following Shulman's scheme in terms of their frequency and importance. Both American and Japanese facilitators showed an emphasis on personal adaptation goals (such as helping bereaved feel less isolated in their grief or encouraging bereaved to share their coping with loss experiences) over collective goals (such as raising monies for more research on mental illness or trying to combat societal suicide stigma in their local communities)...
August 2017: Omega
https://www.readbyqxmd.com/read/28699697/the-experiences-of-staff-who-support-people-with-intellectual-disability-on-issues-about-death-dying-and-bereavement-a-metasynthesis
#12
Ailsa J Lord, Stephen Field, Ian C Smith
BACKGROUND: Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff supporting adults with intellectual disabilities with issues of death, dying and bereavement. METHOD: Thirteen papers were identified following a systematic review of six databases...
July 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/28695618/quality-predictors-of-parental-satisfaction-after-birth-of-infants-with-life-limiting-conditions
#13
Charlotte Wool, Victoria J Kain, Joana Mendes, Brian S Carter
AIM: This study examines parental satisfaction with care received in the context of a life-limiting fetal diagnosis and subsequent birth. METHODS: Survey methods were utilized to embed the Quality Indicators (QI) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: "The Voice of Parents". RESULTS: The web-based survey had a final sample of N=405 parent responders. Overall, parents reported satisfaction with care (80...
July 11, 2017: Acta Paediatrica
https://www.readbyqxmd.com/read/28693466/the-provision-of-generalist-and-specialist-palliative-care-for-patients-with-non-malignant-respiratory-disease-in-the-north-and-republic-of-ireland-a-qualitative-study
#14
Clare Mc Veigh, Joanne Reid, Philip Larkin, Sam Porter, Peter Hudson
BACKGROUND: Previous research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemented in clinical practice and are void of guidance regarding palliative care for patients with bronchiectasis, another form of non-malignant respiratory disease. The aim of this research was to explore generalist and specialist palliative care service provision for people with non-malignant respiratory disease in the North and Republic of Ireland...
July 11, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28684392/supporting-patients-who-are-bereaved
#15
M Katherine Shear, Stephanie Muldberg, Vyjeyanthi Periyakoil
No abstract text is available yet for this article.
July 6, 2017: BMJ: British Medical Journal
https://www.readbyqxmd.com/read/28682106/posttraumatic-growth-in-bereaved-parents-a-multidimensional-model-of-associated-factors
#16
Sara Albuquerque, Isabel Narciso, Marco Pereira
OBJECTIVE: Although the death of a child is a devastating event, recent evidence shows that personal growth is a relevant outcome of parents' grief. This study aimed to examine the factors associated with posttraumatic growth (PTG) and to propose a multidimensional model consisting of sociodemographic, situational, and intrapersonal and interpersonal factors. METHOD: A sample (N = 197; 89.8% female; mean age = 39.44 years) of bereaved parents completed the Post-Traumatic Growth Inventory-Short Form, the 14-Item Resilience Scale, the Continuing Bonds Scale, and the Dyadic Coping Inventory...
July 6, 2017: Psychological Trauma: Theory, Research, Practice and Policy
https://www.readbyqxmd.com/read/28679346/closeness-and-conflict-with-the-deceased-exploring-the-factor-structure-of-the-quality-of-relationships-inventory-in-a-bereaved-student-sample
#17
Jamison S Bottomley, Melissa A Smigelsky, Randy G Floyd, Robert A Neimeyer
With mounting empirical evidence that interpersonal closeness and conflict with the deceased prior to death are significant predictors of grief reactions following loss, accurate empirical examination of these two constructs is of high importance. Despite the utility of the Quality of Relationships Inventory (QRI) in numerous domains of research, the original instrument was not constructed with a predeath, mourner-decedent relationship in mind. Therefore, this study clarified the factor structure of a modified QRI focusing on major dimensions of the predeath relationship with the deceased-dynamics that could have strong implications for the survivor's bereavement trajectory...
January 1, 2017: Omega
https://www.readbyqxmd.com/read/28678673/factorial-structure-of-the-persistent-complex-bereavement-inventory-testing-a-hierarchical-factor-model
#18
Sherman A Lee
The present study examined the validity of deriving a global or general measure of grief from the Persistent Complex Bereavement Inventory using an on-line survey of 180 bereaved adults. Confirmatory factor analyzes indicated that a hierarchical factor structure best fit the data such that an overarching, general grief factor accounted for the covariation among three first-order symptom clusters. The construct validity of this grief factor was further supported by correlations with related variables such as negative religious coping, neuroticism, meaning-made, and post-traumatic growth...
July 5, 2017: Death Studies
https://www.readbyqxmd.com/read/28676063/the-associations-between-religion-bereavement-and-depression-among-hong-kong-nurses
#19
Teris Cheung, Paul H Lee, Paul S F Yip
BACKGROUND: This paper is to examine the associations between religion, bereavement and depression among nursing professionals using a cross-sectional survey design. There is little empirical evidence in Asia suggesting that religion may either increase or lower the likelihood of nursing professionals being depressed. METHODS: We analyzed the results of a Mental Health Survey soliciting data from 850 Hong Kong nurses (aged 21-59, 178 males) regarding their mental well-being and associated factors, including participants' socio-economic profile and recent life-events...
July 4, 2017: BMC Research Notes
https://www.readbyqxmd.com/read/28673257/experiences-of-end-of-life-amongst-family-carers-of-people-with-advanced-dementia-longitudinal-cohort-study-with-mixed-methods
#20
Kirsten J Moore, Sarah Davis, Anna Gola, Jane Harrington, Nuriye Kupeli, Victoria Vickerstaff, Michael King, Gerard Leavey, Irwin Nazareth, Louise Jones, Elizabeth L Sampson
BACKGROUND: Many studies have examined the mental health of carers of people with dementia. Few have examined their experiences in the advanced stages of disease and into bereavement. We aimed to understand the experiences of carers during advanced dementia exploring the links between mental health and experiences of end of life care. METHODS: Mixed methods longitudinal cohort study. Thirty-five family carers of people with advanced dementia (6 at home, 29 in care homes) were recruited and assessed monthly for up to nine months or until the person with dementia died, then at two and seven months into bereavement...
July 3, 2017: BMC Geriatrics
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