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Hospice and palliative care

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https://www.readbyqxmd.com/read/30016123/end-of-life-care-preference-examination-of-chinese-adults-with-children-and-those-who-lost-their-only-child
#1
Yan Liang, Hong Liang, Jing Wang, Hanzhang Xu, Bei Wu
BACKGROUND: Little is known about the end-of-life (EOL) care preference and its associated factors among community-dwelling adults in Mainland China. This study investigated the EOL care preference and its associated factors among community-dwelling Chinese adults in Shanghai, China. METHODS: A cross-sectional survey was conducted in Shanghai, China, from April to June in 2013. A total of 1200 older adults aged 60 years and older and another 200 middle-aged and older adults aged 45 years and older who lost their only child were included in the current study...
July 17, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/30009621/social-work-assessment-and-outcomes-measurement-in-hospice-and-palliative-care
#2
Dona J Reese, Ellen L Csikai
While psychosocial assessment is required in hospice, no requirement exists for documentation of psychosocial outcomes. Social work research has identified the psychosocial and spiritual domains most often and appropriate for social workers to address, and standardized assessment tools have been developed by social workers based on this research. The aims of this study were to document the current use of standardized assessment measures for assessment and documenting outcomes and specifically the use of the Social Work Assessment Tool...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/30005657/a-qualitative-study-of-health-care-professionals-views-and-experiences-of-paediatric-advance-care-planning
#3
Barbara A Jack, Tracy K Mitchell, Mary R O'Brien, Sergio A Silverio, Katherine Knighting
BACKGROUND: Good end-of-life care planning is vital to ensure optimal care is provided for patients and their families. Two key factors are open and honest advance care planning conversations between the patient (where possible), family, and health care professionals, focusing on exploring what their future wishes are; and the development of an advance care plan document. However, in paediatric and neonatal settings, there has been little research to demonstrate how advance care planning conversations take place...
July 13, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/30004303/is-specialized-palliative-cancer-care-associated-with-use-of-antineoplastic-treatment-at-the-end-of-life-a-population-based-cohort-study
#4
Kirstine Skov Benthien, Mathilde Adsersen, Morten Aagaard Petersen, Eva Soelberg Vadstrup, Per Sjøgren, Mogens Groenvold
BACKGROUND: The use of chemotherapy in the last 14 days of life should be as low as possible. AIM: To study the factors related to the use of chemotherapy in the last 14 days of life and the factors related to concurrent antineoplastic treatment and specialized palliative care. DESIGN: This was a population-based cohort study. The data were collected from the Danish Register of Causes of Death, the Danish National Patient Register, and the Danish Palliative Care Database...
July 1, 2018: Palliative Medicine
https://www.readbyqxmd.com/read/29996659/family-caregivers-confidence-caring-for-relatives-in-hospice-care-at-home-an-exploratory-qualitative-study
#5
Jacek T Soroka, Katherine Froggatt, Sara Morris
OBJECTIVES: Although the experiences of family caregivers have received attention, little research has specifically explored caregivers' confidence. Evidence shows that caregivers of hospice patients do not feel confident or prepared to care for relatives or friends who die at home. AIM: We aimed to elicit the views, feelings, and experiences of primary caregivers who provide unpaid care to dying family members in the home setting to better understand what contributes to their confidence during end-of-life care...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29993207/points-pearls-emergency-department-management-of-dyspnea-in-the-dying-patient
#6
Ashley Shreves, Trevor R. Pour, Nachi Gupta, Jeffrey Nusbaum
Dyspnea is one of the most distressing symptoms experienced by dying patients, and it is a common reason for such patients to seek care in the emergency department. Many underlying disease states and acute illnesses cause shortness of breath at the end of life, and management tends to be symptomatic rather than diagnostic, particularly in those for whom comfort is the most important goal. Opioids are the most effective and widely studied agents available for palliation of dyspnea in this population, while adjuvant therapies such as oxygen, noninvasive positive pressure ventilation, and hand-held fans may also be used...
July 1, 2018: Emergency Medicine Practice
https://www.readbyqxmd.com/read/29986594/sociodemographic-characteristics-and-lengths-of-stay-associated-with-acute-palliative-care-a-10-year-national-perspective
#7
Maximiliano Mendieta, Alysa Miller
Patient demographics and characteristics are essential components associated with length of stay in hospice. Race, age, gender, health insurance status, income level, and location of hospice care services are indicators that are associated with differing lengths of stay. Hospice care demand is on the rise, and with 70 million boomers retiring in the next few decades, demand is expected to increase. It is because of demand that exploring the factors that affect a patient's length of stay is essential for understanding beneficiary care and family experience...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29986593/a-few-good-men-it-s-not-easy-recruiting-male-hospice-palliative-care-volunteers
#8
Stephen Claxton-Oldfield, Willa McCaffrey-Noviss, Robert Hicks
Two studies were conducted to explore how to engage male volunteers in hospice palliative care. Four male hospice palliative care volunteers were interviewed in study 1. The men agreed that a direct approach is best when it comes to recruiting male volunteers, especially a personal story or testimonial. Two different volunteer position descriptions were created for study 2: one description was similar to what might appear on a community-based hospice palliative care program's web site or in a newspaper ad looking for visiting hospice palliative care volunteers; the other description was in the form of a personal testimonial ostensibly written by a male hospice palliative care volunteer describing his role through examples of interactions he has had with patients and patients' family members...
January 1, 2018: American Journal of Hospice & Palliative Care
https://www.readbyqxmd.com/read/29981577/evaluation-of-the-palliative-symptom-burden-score-psbs-in-a-specialised-palliative-care-unit-of-a-university-medical-centre-a-longitudinal-study
#9
Katharina Fetz, Hendrik Vogt, Thomas Ostermann, Andrea Schmitz, Christian Schulz-Quach
BACKGROUND: The implementation of standardised, valid and reliable measurements in palliative care is subject to practical and methodological challenges. One aspect of ongoing discussion is the value of systematic proxy-based assessment of symptom burden in palliative care. In 2011, an expert-developed proxy-based instrument for the assessment of symptom burden in palliative patients, the Palliative Symptom Burden Score (PSBS), was implemented at the Specialised Palliative Care Unit of the University Medical Centre in Dusseldorf, Germany...
July 7, 2018: BMC Palliative Care
https://www.readbyqxmd.com/read/29978799/-survey-on-the-accompanying-experience-of-palliative-hospice-volunteers-in-peking-union-medical-college-hospital
#10
Xin Tao, Xiao-Hong Ning
Objective To investigate the experience of accompanying dying patients among hospice and palliative care (HPC) volunteers. Methods By applying the methodologies of phenomenological research and participatory observation,the experiences,awareness,and expectations of accompanying dying patients of 10 volunteers in our center were investigated. Results The experiences of 10 volunteers in HPC could be summarized into three subjects:volunteer personal cognition,volunteer demand and family support,and volunteers' expectations of hospital and society...
June 28, 2018: Zhongguo Yi Xue Ke Xue Yuan Xue Bao. Acta Academiae Medicinae Sinicae
https://www.readbyqxmd.com/read/29978798/-needs-of-continuing-education-on-hospice-and-palliative-care-in-china-a-questionnaire-based-survey
#11
Nan Ge, Xuan Qu, Xiao-Hong Ning, Xiao-Hong Liu
Objective To analyzed the current situations and needs of the continuing education on hospice and palliative care (HPC) in China based on the response from trainees in the 2016 National Hospice and Palliative Medicine Training Program. Methods A questionnaire-based survey was performed among 141 trainees who attended the program held by Peking Union Medical College Hospital in 2016. The questionnaire items included the awareness and knowledge of HPC,learning Objective s,learning gains,and future plans. Results The trainees came from 19 provinces and municipalities...
June 28, 2018: Zhongguo Yi Xue Ke Xue Yuan Xue Bao. Acta Academiae Medicinae Sinicae
https://www.readbyqxmd.com/read/29975599/intensity-of-end-of-life-care-for-patients-with-hematologic-malignancies-and-the-role-of-race-ethnicity
#12
Kedar Kirtane, Lois Downey, Stephanie J Lee, J Randall Curtis, Ruth A Engelberg
BACKGROUND: Racial/ethnic minority patients with nonhematologic malignancies (non-HM) have lower rates of hospice care, advance directive use, and palliative care utilization than non-Hispanic white (NHW) patients. Less is known regarding racial/ethnic minority patients with hematologic malignancies (HM). OBJECTIVES: To study hospital utilization among racial/ethnic minority patients with HM and compare end-of-life outcome measures to patients with non-HM. METHODS: We performed a retrospective cohort study (2010-2015) using electronic health records from an integrated academic health center to study differences in hospital utilization patterns and documentation of advance care planning between patients with HM and non-HM...
July 5, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29971206/hemodialysis-as-a-life-sustaining-treatment-at-the-end-of-life
#13
Sung Joon Shin, Jae Hang Lee
The Act on Decisions on Life-Sustaining Treatment for Patients in Hospice and Palliative Care or at the End of Life came into effect on February 4th, 2018, in South Korea. Based on the Act, all Koreans over the age of 19 years can decide whether to refuse life-sustaining treatments at the end of life via advance directive or physician orders. Hemodialysis is one of the options designated in the Act as a life-sustaining treatment that can be withheld or withdrawn near death. However, hemodialysis has unique features...
June 2018: Kidney Research and Clinical Practice
https://www.readbyqxmd.com/read/29960618/new-dimensions-in-palliative-care-cardiology
#14
REVIEW
Michael Slawnych
The landscape of patient care at the beginning of the 19th century was dramatically different than it is today. With few good treatment options, illness courses were generally brief. Near the end of life, patients were attended to by spiritual advisors, not health care professionals. Death typically occurred at home, surrounded by friends and family. Moving to the present time, decades of medical advances have significantly improved life expectancy. Cardiology has particularly benefited from many of these advances...
July 2018: Canadian Journal of Cardiology
https://www.readbyqxmd.com/read/29957100/defining-provider-prioritized-domains-of-quality-in-pediatric-home-based-hospice-and-palliative-care-a-study-of-the-ohio-pediatric-palliative-care-and-end-of-life-network
#15
Rachel Thienprayoon, Evaline Alessandrini, Millicent Frimpong-Manso, Daniel Grossoehme
BACKGROUND: In 2017, the Ohio Pediatric Palliative Care and End-of-Life Network (OPPEN) published nine domains of high-quality care for pediatric home-based hospice and palliative care (HBHPC). Eight domains established by the National Consensus Project (NCP) were validated for pediatric HBHPC, and a ninth domain of "Continuity and Coordination of Care" was added. OBJECTIVE: The aim of this study was to establish definition criteria for each of these domains...
June 29, 2018: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/29952257/using-simulation-modelling-to-test-the-impact-of-future-demand-for-end-of-life-care
#16
Eileen Florence Pepler, Janet Davidson, Douglas McGregor, Keith Poore, Stephen Brown, Joy Pridie
Health systems globally are exploring new models of care to address the increasing demand for palliative, hospice, and end-of-life care. Yet few tools exist at the population level to explore "what if" scenarios and test, in a "cost avoidance environment," the impact of these new care models on policy, workforce, technology, and funding. This article introduces the application of scenario-based "what if" thinking and discrete event simulation in strategic planning for a not-for-profit hospice organization...
July 2018: Healthcare Management Forum
https://www.readbyqxmd.com/read/29949707/emergency-department-management-of-dyspnea-in-the-dying-patient
#17
Ashley Shreves, Trevor R Pour
Dyspnea is one of the most distressing symptoms experienced by dying patients, and it is a common reason for such patients to seek care in the emergency department. Many underlying disease states and acute illnesses cause shortness of breath at the end of life, and management tends to be symptomatic rather than diagnostic, particularly in those for whom comfort is the most important goal. Opioids are the most effective and widely studied agents available for palliation of dyspnea in this population, while adjuvant therapies such as oxygen, noninvasive positive pressure ventilation, and hand-held fans may also be used...
July 2018: Emergency Medicine Practice
https://www.readbyqxmd.com/read/29936639/dementia-care-at-end-of-life-current-approaches
#18
REVIEW
Mairead M Bartley, Laura Suarez, Reem M A Shafi, Joshua M Baruth, Amanda J M Benarroch, Maria I Lapid
PURPOSE OF REVIEW: Dementia is a progressive and life-limiting condition that can be described in three stages: early, middle, and late. This article reviews current literature on late-stage dementia. RECENT FINDINGS: Survival times may vary across dementia subtypes. Yet, the overall trajectory is characterized by progressive decline until death. Ideally, as people with dementia approach the end of life, care should focus on comfort, dignity, and quality of life...
June 23, 2018: Current Psychiatry Reports
https://www.readbyqxmd.com/read/29935969/palliative-care-competencies-and-readiness-for-independent-practice-a-report-on-the-american-academy-of-hospice-and-palliative-medicine-review-of-the-united-states-medical-licensing-step-examinations
#19
Elise C Carey, Miguel Paniagua, Laura J Morrison, Stacie K Levine, Jeffrey C Klick, Gary T Buckholz, Joseph Rotella, Julie Bruno, Solomon Liao, Robert M Arnold
BACKGROUND: We reviewed USMLE Step examinations for palliative care (PC) content, assessing whether they tested PC knowledge necessary for graduating medical students and residents applying for licensure. METHODS: Eight PC physicians reviewed three complete examination forms and a focused 509-item bundle of multiple-choice questions (MCQs) identified by the USMLE content outline as potentially assessing PC content. Reviewers determined MCQs to be PC items if the patient was seriously ill and PC knowledge was required to answer correctly...
June 21, 2018: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/29929381/connecting-personal-experiences-of-loss-and-professional-practices-in-advance-care-planning-and-end-of-life-care-a-survey-of-providers
#20
Cara L Wallace, Dulce M Cruz-Oliver, Jennifer E Ohs, Leslie Hinyard
BACKGROUND: Although practitioners overwhelmingly agree on the importance of advance care planning (ACP) and preparing for the end of life (EOL), the process is fraught with barriers. OBJECTIVE: The goal of this research was to explore potential connections between providers' own personal experiences and current professional practices in ACP and EOL care. DESIGN: A cross-sectional survey design, gathering voluntary, anonymous responses from participants between August and December 2016...
January 1, 2018: American Journal of Hospice & Palliative Care
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