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Hospice and palliative care

Negar Chooback, Shilo Lefresne, Sally C Lau, Cheryl Ho
PURPOSE: Patients with epidermal growth factor receptor (EGFR) mutation-positive (EGFRm) non-small-cell lung cancer commonly experience disease progression in the CNS. Here, we assess the impact of CNS disease on resource utilization and outcomes in patients who are EGFRm. METHODS: We completed a retrospective review of all advanced patients who were EGFRm, referred to BC Cancer, and treated with a first- and/or second-generation EGFR tyrosine kinase inhibitor from 2010 to 2015...
September 14, 2018: Journal of Oncology Practice
Shane Sinclair, Priya Jaggi, Thomas F Hack, Susan E McClement, Shelley Raffin-Bouchal, Pavneet Singh
BACKGROUND: A lack of evidence and psychometrically sound measures of compassion necessitated the development of the first known, empirically derived, theoretical Patient Compassion Model (PCM) generated from qualitative interviews with advanced cancer inpatients. We aimed to assess the credibility and transferability of the PCM across diverse palliative populations and settings. METHODS: Semi-structured, audio-recorded qualitative interviews were conducted with 20 patients with life-limiting diagnoses, recruited from 4 settings (acute care, homecare, residential care, and hospice)...
September 13, 2018: BMC Palliative Care
Kathleen Broglio, Marianne Matzo
An evidence-based approach to analgesia in those on medication-assisted treatment. ABSTRACT: Medication-assisted treatment for opioid use disorder (OUD), which incorporates methadone, buprenorphine, or naltrexone, has been shown to reduce all-cause mortality rates in patients with this disease-and the numbers of patients receiving such treatment is substantial. In 2016, among U.S. patients with OUD, nearly 350,000 were treated with methadone, more than 60,000 were treated with buprenorphine, and more than 10,000 were treated with naltrexone...
September 11, 2018: American Journal of Nursing
Mali K Schneiter, Mohana B Karlekar, Marta A Crispens, Lauren S Prescott, Alaina J Brown
PURPOSE: To evaluate the role of specialty palliative care consultation (PCC) on end of life care outcomes among terminally ill gynecologic oncology patients. METHODS: Retrospective chart review of currently deceased gynecologic oncology patients seen at a single, academic institution between October 2006 and October 2016. Clinical characteristics and outcomes were examined using descriptive statistics and logistic regression. RESULTS: Two hundred and four patients were eligible...
September 12, 2018: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
Anna W LaVigne, Babe Gaolebale, Goitseone Maifale-Mburu, Surbhi Grover
BACKGROUND: A rising tide of cancers and other chronic diseases, alongside the ongoing HIV/AIDS epidemic, has created an increasing demand for palliative care in Africa. Yet, few African nations have established effective palliative care programs. In Botswana, the escalating HIV/AIDS crisis revealed an unmet need for holistic care, prompting efforts to expand palliative care education and policy, and target curricular and health system integration in the years that followed. Despite numerous successes, Botswana continues to face barriers to palliative care development...
August 7, 2018: Annals of Palliative Medicine
Shunichi Nakagawa, A Reshad Garan
No abstract text is available yet for this article.
August 29, 2018: JAMA Cardiology
Janet Diffin, Gail Ewing, Gill Harvey, Gunn Grande
BACKGROUND: The Carer Support Needs Assessment Tool (CSNAT) intervention is an evidence-based, person-centered approach to carer assessment and support within palliative care. As such, it requires a change in practice from a practitioner- to a carer-led assessment and support process. A paucity of research has investigated factors affecting implementation of evidence-based interventions within palliative care. OBJECTIVE: To examine differences between high and low adopters of the CSNAT intervention in terms of practitioner attitudes to the intervention and organizational context...
August 27, 2018: Worldviews on Evidence-based Nursing
Nathan A Boucher, Janet H Bull, Sarah H Cross, Christine Kirby, J Kelly Davis, Donald H Taylor
CONTEXT: Palliative care model delivered by two large hospices and palliative care providers. OBJECTIVES: To understand study participants' knowledge of palliative care and acceptability of a new community-based palliative care model. METHODS: Semi-structured interview with patients and caregivers; focus groups with taxpayers. Descriptive content analysis with an inductive approach. RESULTS: Across 10 interviews and 4 focus groups (n=4 to 10 per group) there was varying knowledge of palliative care...
August 24, 2018: Journal of Pain and Symptom Management
Adrienne Kegye, Szabolcs Takács, Borbála Ries, Ágnes Zana, Katalin Hegedűs
INTRODUCTION: The Professional Quality of Life Scale, measuring the quality of professional life, has been developed to examine the positive and negative changes in the work of those who have undergone extremely stressful experiences. The quality of life of the personnel of palliative-hospice teams may be influenced physically as well as emotionally by their every-day experiences of suffering, death, dying and the patients' traumas. AIM: The aim of the study was the examination of the psychometric features and factor structure of the Hungarian version of the Professional Quality of Life Scale questionnaire, which can measure compassion fatigue and satisfaction, secondary traumatisation and burnout...
September 2018: Orvosi Hetilap
Panagiotis Pentaris, Louise L Thomsen
Research has abundantly demonstrated a strong relationship between culture, religion, and the experiences of death, dying, and bereavement. Consequently, cultural competence and a religiously sensitive practice have become highly relevant to social policies and professional practice. However, our current knowledge of culturally competent and religiously sensitive end-of-life care is primarily context specific, with little space for generalizability. This article reports on findings from a qualitative comparative analysis of two nation-specific studies that examined religious literacy and cultural competency, respectively, among palliative-care professionals, drawing on similarities and attempting to identify further applicability of nation-centered knowledge...
August 24, 2018: Omega
Debra E Roberts, Robert G Holloway, Benjamin P George
Background: Hospital stays for patients discharged to post-acute care are longer and more costly than routine discharges. Issues disrupting patient flow from hospital to post-acute care facilities are an underrecognized strain on hospital resources. We sought to quantify the burden of medically unnecessary hospital days for inpatients with neurologic illness and planned discharge to post-acute care facilities. Methods: We conducted a retrospective evaluation of hospital discharge delays for patients with neurologic disease and plans for discharge to post-acute care...
August 2018: Neurology. Clinical Practice
Laura M Holdsworth, Heather Gage, Peter Williams, Claire Butler
Background: Measuring service use and costs is an important aspect of service delivery evaluation. In end-of-life care, there is heavy reliance on care by family/friends (informal carers) and this should be reflected in the total cost of care alongside formal services. The Ambulatory and Home Care Record, developed in Canada, is both comprehensive in coverage and validated for collecting data on formal and informal caring. This study aimed to adapt and pilot the Ambulatory and Home Care Record questionnaire for use in the UK within a study evaluating a new palliative care service...
2018: Pilot and Feasibility Studies
Charles F von Gunten, Nicole Haller
No abstract text is available yet for this article.
August 2018: Journal of Palliative Medicine
Dulce M Cruz-Oliver, Martha Abshire, Oscar Cepeda, Patricia Burhanna, Jennifer Johnson, David Vera Velazquez, Jennifer Chen, Karim Diab, Kara Christopher, Miriam Rodin
BACKGROUND: Benefits of palliative care have been extensively described; however, reports on adherence to national quality indicators are limited. OBJECTIVES: This study focuses on describing the characteristics of patients who were seen at an urban academic hospital and their care team's adherence to 5 out of 10 Measuring What Matters (MWM) quality indicators. DESIGN: Retrospective chart review Setting/Subjects: Patients seen by inpatient palliative care service from January 2014 to December 2015 in an urban academic hospital...
August 21, 2018: Journal of Palliative Medicine
Signe Peterson Flieger, Erica Spatz, Emily J Cherlin, Leslie A Curry
BACKGROUND: Despite substantial efforts to integrate palliative care and improve advance care planning, both are underutilized. Quality improvement initiatives focused on reducing mortality may offer an opportunity for facilitating engagement with palliative care and advance care planning. OBJECTIVE: In the context of an initiative to reduce acute myocardial infarction (AMI) mortality, we examined challenges and opportunities for engaging palliative care and improving advance care planning...
August 20, 2018: American Journal of Hospice & Palliative Care
Clare White, Jenny Sproule, Paula Brogan, Max Watson
BACKGROUND: Patient held records need to be evaluated in palliative care settings. OBJECTIVES: To evaluate how patients, families and professionals in a specialist palliative setting use a patient held record created through close consultation with patients and carers. METHODS: A mixed methods prospective longitudinal cohort study in the UK-adult patients under community specialist palliative care nurse review or attending day hospice were given questionnaires at record introduction and after 4-6 weeks...
August 18, 2018: BMJ Supportive & Palliative Care
Tracy Shamas, Sarah Gillespie-Heyman
One aspect of palliative medicine that has been underexplored is the perspective of veterans either facing critical life-limiting illness or at the end of life. The needs of veterans differ not only because military culture affects how veterans cope with their illness but also because exposure-related factors (combat and environmental) differ between military branches. In this paper, we describe two cases involving end-of-life care for veterans with combat trauma and describe individualized approaches to their care...
August 1, 2018: AMA Journal of Ethics
Ya-Lan Shih, Yu-Ching Hsu, Wei-Hsin Chiu, Co-Shi Chantal Chao
Preparing for a good death is an important and meaningful concept in Chinese culture because people hope to know residual life to make effort for their unfinished business. However, the family of terminally ill patients with cancer may be annoyed and frustrated about unexpected bereavement if they have unresolved conflicts with the loved one, missing a chance for declaring love, untimely apologizing and saying goodbye. The study aimed to explore this difficult issue. The medical records of 121 deceased terminally ill patients with cancer at National Cheng Kung University Hospital between December 2010 and February 2012 were reviewed...
September 2018: Holistic Nursing Practice
Praveen Adusumilli, Lingaraj Nayak, Vidya Viswanath, Leela Digumarti, Raghunadha Rao Digumarti
Introduction: Desisting from disease directed treatment in the past weeks of life is a quality criterion in oncology service. Patients with advanced cancer have unrealistic expectations from chemotherapy and hold on to it as a great source of hope. Many oncologists continue futile and unnecessary treatments, instead of conveying to the patients the lack of benefit, resulting in delayed referral for palliative care (PC). Materials and Methods: This is a retrospective analysis of case records from June 2014 to December 2015...
July 2018: South Asian Journal of Cancer
Cathy J Silloway, Toni L Glover, Brian J Coleman, Sheri Kittelson
Bereavement services are often provided as components of hospice and palliative care plans, including emotional, psychosocial, and spiritual support provided to individuals and families to assist with grief, loss, and adjustment after the death of a loved one. Patient- and family-centered care is a hallmark of palliative care. Moreover, bereavement counseling is offered as a hospice care benefit that is covered by Medicare and various private insurance plans. However, not all hospital-based palliative care programs offer bereavement support...
August 15, 2018: Journal of Social Work in End-of-life & Palliative Care
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