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https://www.readbyqxmd.com/read/29154724/understanding-how-a-palliative-specific-patient-reported-outcome-intervention-works-to-facilitate-patient-centred-care-in-advanced-heart-failure-a-qualitative-study
#1
Pauline M Kane, Clare I Ellis-Smith, Barbara A Daveson, Karen Ryan, Niall G Mahon, Brendan McAdam, Regina McQuillan, Cecelia Tracey, Christine Howley, Geraldine O'Gara, Caroline Raleigh, Irene J Higginson, Fliss Em Murtagh, Jonathan Koffman
BACKGROUND: Palliative care needs of patients with chronic heart failure are poorly recognised. Policy makers advise a patient-centred approach to holistically assess patients' needs and care goals. Patient-reported outcome measures are proposed to facilitate patient-centred care. AIM: To explore whether and how a palliative care-specific patient-reported outcome intervention involving the Integrated Palliative care Outcome Scale influences patients' experience of patient-centred care in nurse-led chronic heart failure disease management clinics...
November 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29149618/effectiveness-of-a-patient-centred-empowerment-based-intervention-programme-among-patients-with-poorly-controlled-type-2-diabetes-a-randomised-controlled-trial
#2
Li Cheng, Janet W H Sit, Kai-Chow Choi, Sek-Ying Chair, Xiaomei Li, Yuning Wu, Junhong Long, Meihua Tao
BACKGROUND: Despite extensive efforts and advances in evidence-based diabetes management, poor glycaemic control still remains a challenge in many countries. There is a paucity of research addressing the needs of patients with poorly controlled type 2 diabetes, or exploring the effectiveness of empowerment-based interventions in this vulnerable population. OBJECTIVES: To evaluate the effectiveness of a patient-centred, empowerment-based programme on glycaemic control and self-management behaviours among patients with poorly controlled type 2 diabetes...
November 3, 2017: International Journal of Nursing Studies
https://www.readbyqxmd.com/read/29145885/future-perspectives-in-melanoma-research-melanoma-bridge-napoli-november-30th-3rd-december-2016
#3
Paolo A Ascierto, Sanjiv S Agarwala, Gennaro Ciliberto, Sandra Demaria, Reinhard Dummer, Connie P M Duong, Soldano Ferrone, Silvia C Formenti, Claus Garbe, Ruth Halaban, Samir Khleif, Jason J Luke, Lluis M Mir, Willem W Overwijk, Michael Postow, Igor Puzanov, Paul Sondel, Janis M Taube, Per Thor Straten, David F Stroncek, Jennifer A Wargo, Hassane Zarour, Magdalena Thurin
Major advances have been made in the treatment of cancer with targeted therapy and immunotherapy; several FDA-approved agents with associated improvement of 1-year survival rates became available for stage IV melanoma patients. Before 2010, the 1-year survival were quite low, at 30%; in 2011, the rise to nearly 50% in the setting of treatment with Ipilimumab, and rise to 70% with BRAF inhibitor monotherapy in 2013 was observed. Even more impressive are 1-year survival rates considering combination strategies with both targeted therapy and immunotherapy, now exceeding 80%...
November 16, 2017: Journal of Translational Medicine
https://www.readbyqxmd.com/read/29143629/from-erasure-to-opportunity-a-qualitative-study-of-the-experiences-of-transgender-men-around-pregnancy-and-recommendations-for-providers
#4
Alexis Hoffkling, Juno Obedin-Maliver, Jae Sevelius
BACKGROUND: Some transgender men retain their uterus, get pregnant, and give birth. However, societal attitudes about gender have erected barriers to openly being pregnant and giving birth as a transgender man. Little research exists regarding transgender men's reproductive needs. Anecdotal observations suggest that social change and increasing empowerment of transgender men may result in increasing frequency and openness about pregnancy and birth. Specific needs around conception, pregnancy, and newborn care may arise from transphobia, exogenous testosterone exposure, or from having had (or desiring) gender-affirming surgery...
November 8, 2017: BMC Pregnancy and Childbirth
https://www.readbyqxmd.com/read/29143236/the-making-of-informed-choice-in-midwifery-a-feminist-experiment-in-care
#5
Margaret E MacDonald
This paper is about the clinical principle of informed choice-the hallmark feature of the midwifery model of care in Ontario, Canada. Drawing on ethnographic history interviews with midwives, I trace the origins of the idea of informed choice to its roots in the social movement of midwifery in North America in the late 1960s and 1970s. At that time informed choice was not the distinctive feature of midwifery but was deeply embedded what I call midwifery's feminist experiment in care. But as midwifery in Ontario transitioned from a social movement to a full profession within the formal health care system, informed choice was strategically foregrounded in order to make the midwifery model of care legible and acceptable to a skeptical medical profession, conservative law makers, and a mainstream clientele...
November 15, 2017: Culture, Medicine and Psychiatry
https://www.readbyqxmd.com/read/29137501/parkinsonnet-a-low-cost-health-care-innovation-with-a-systems-approach-from-the-netherlands
#6
Bas R Bloem, Lonneke Rompen, Nienke M de Vries, Ab Klink, Marten Munneke, Patrick Jeurissen
ParkinsonNet, a low-cost innovation to optimize care for patients with Parkinson disease, was developed in 2004 as a network of physical therapists in several regions in the Netherlands. Since that time, the network has achieved full national reach, with 70 regional networks and around 3,000 specifically trained professionals from 12 disciplines. Key elements include the empowerment of professionals who are highly trained and specialized in Parkinson disease, the empowerment of patients by education and consultation, and the empowerment of integrated multidisciplinary teams to better address and manage the disease...
November 2017: Health Affairs
https://www.readbyqxmd.com/read/29136284/patient-outcomes-of-genetic-counseling-assessing-the-impact-of-different-approaches-to-family-history-collection
#7
C Slomp, E Morris, A Inglis, A Lehman, J Austin
No studies have evaluated whether different modalities for collection of family history data influence patient outcomes of genetic counseling. We retrospectively compared outcomes of genetic counseling between patients whose family history (Fhx) was collected: a) via telephone prior to their appointment (FhxPrior), or b) during the appointment (FhxDuring). We used a psychiatric genetic counseling clinic database, where information about demographics and Fhx timing is recorded and patients complete the Genetic Counseling Outcomes Scale (GCOS, measuring empowerment) and Illness Management Self-Efficacy Scale (IMSES) immediately prior to (T1) and one-month after their appointment (T2)...
November 14, 2017: Clinical Genetics
https://www.readbyqxmd.com/read/29120260/physiotherapists-encounters-with-obese-patients-exploring-how-embodied-approaches-gain-significance
#8
Karen Synne Groven, Kristin Heggen
BACKGROUND: Obesity is regarded as a modern lifestyle problem, causing illness, stigma, discrimination, and psychological problems. To help patients avoid these problems, physiotherapists increasingly engage in lifestyle programs specialized in weight loss. OBJECTIVE: To explore how physiotherapists' encounters with patients diagnosed as "obese" acquire significance for their development as clinicians. METHOD: The material draws on semi-structured interviews with eight physiotherapists...
November 9, 2017: Physiotherapy Theory and Practice
https://www.readbyqxmd.com/read/29116022/enhancing-mental-and-physical-health-of-women-through-engagement-and-retention-empower-a-protocol-for-a-program-of-research
#9
Alison B Hamilton, Melissa M Farmer, Tannaz Moin, Erin P Finley, Ariel J Lang, Sabine M Oishi, Alexis K Huynh, Jessica Zuchowski, Sally G Haskell, Bevanne Bean-Mayberry
BACKGROUND: The Enhancing Mental and Physical health of Women through Engagement and Retention or EMPOWER program represents a partnership with the US Department of Veterans Health Administration (VA) Health Service Research and Development investigators and the VA Office of Women's Health, National Center for Disease Prevention and Health Promotion, Primary Care-Mental Health Integration Program Office, Women's Mental Health Services, and the Office of Patient Centered Care and Cultural Transformation...
November 7, 2017: Implementation Science: IS
https://www.readbyqxmd.com/read/29111940/medical-culture-s-bias-to-actively-intervene-can-undermine-patient-empowerment-and-welfare
#10
Bradley Partridge, Erin O'Connor
No abstract text is available yet for this article.
November 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29111939/sowing-the-seed-for-patient-empowerment
#11
Anita Ho, Kim Jameson, Arnold Eiser
No abstract text is available yet for this article.
November 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29111936/empowerment-failure-how-shortcomings-in-physician-communication-unwittingly-undermine-patient-autonomy
#12
Peter A Ubel, Karen A Scherr, Angela Fagerlin
Many health care decisions depend not only upon medical facts, but also on value judgments-patient goals and preferences. Until recent decades, patients relied on doctors to tell them what to do. Then ethicists and others convinced clinicians to adopt a paradigm shift in medical practice, to recognize patient autonomy, by orienting decision making toward the unique goals of individual patients. Unfortunately, current medical practice often falls short of empowering patients. In this article, we reflect on whether the current state of medical decision making effectively promotes patients' health care goals...
November 2017: American Journal of Bioethics: AJOB
https://www.readbyqxmd.com/read/29108859/-spanish-translation-and-validation-of-the-empathic-30-questionnaire-to-measure-parental-satisfaction-in-intensive-care-units
#13
Francisco Javier Pilar Orive, Jasone Basabe Lozano, Aurora López Zuñiga, Yolanda M López Fernández, Julene Escudero Argaluza, Jos M Latour
INTRODUCTION: Few validated surveys measuring parental satisfaction in the Paediatric Intensive Care Unit (PICU) are available, and none of them in Spanish language. The aim of this study is to translate and validate the questionnaire EMpowerment of PArents in THe Intensive Care (EMPATHIC). This questionnaire measures parental perceptions of paediatric intensive care-related satisfaction items in the Spanish language. MATERIAL AND METHODS: A prospective cohort study was carried out using questionnaires completed by relatives of children (range 0-17 years old) admitted into a tertiary PICU...
November 3, 2017: Anales de Pediatría: Publicación Oficial de la Asociación Española de Pediatría (A.E.P.)
https://www.readbyqxmd.com/read/29108423/linking-nurses-clinical-leadership-to-patient-care-quality-the-role-of-transformational-leadership-and-workplace-empowerment
#14
Sheila Boamah
Background While improving patient safety requires strong nursing leadership, there has been little empirical research that has examined the mechanisms by which leadership influences patient safety outcomes. Aim To test a model examining relationships among transformational leadership, structural empowerment, staff nurse clinical leadership, and nurse-assessed adverse patient outcomes. Methods A cross-sectional survey was conducted with a randomly selected sample of 378 registered nurses working in direct patient care in acute care hospitals across Ontario, Canada...
January 1, 2017: Canadian Journal of Nursing Research, Revue Canadienne de Recherche en Sciences Infirmières
https://www.readbyqxmd.com/read/29107452/effectiveness-of-patient-empowerment-over-stress-related-to-knee-arthroplasty-surgery
#15
Jorge Mario Garzón-Rey, Adriana Arza-Valdés, Montserrat Nuevo-Gayoso, Jordi Aguiló
OBJECTIVE: This study aims to show evidence of the Empowerment Session's effectiveness through measurements of surgery related emotional stress before and after this session. METHOD: The study was performed on 41 patients with knee arthroplasty surgery prescription by measuring the evolution of their emotional stress generated by surgery expectative, during the empowerment session. Two sets of measurements per patient were performed, before and after the empowerment session...
October 26, 2017: Enfermería Clínica
https://www.readbyqxmd.com/read/29102483/the-digital-environment-in-men-s-sexual-disorders-a-systematic-review
#16
E García-Cruz, J Romero-Otero, M Fode, A Alcaraz
CONTEXT: The revolution of digital technologies constitutes a new setting for the patient-physician relationship and provides patients with a scenario of privacy and universal access to a vast amount of information. However, there is little information on how digital resources are used and what their advantages and disadvantages are. OBJECTIVES: To explore the scope of the scientific research on the use of digital technology related to men's sexual disorders and to analyze the primary sources of digital information related to this field...
November 1, 2017: Actas Urologicas Españolas
https://www.readbyqxmd.com/read/29097058/the-quality-of-discharge-care-planning-in-acute-stroke-care-influencing-factors-and-association-with-postdischarge-outcomes
#17
Nadine E Andrew, Doreen Busingye, Natasha A Lannin, Monique F Kilkenny, Dominique A Cadilhac
BACKGROUND: Comprehensive discharge planning is important for successful transitions from hospital to home after stroke. The aim of this study was to describe the quality of discharge planning received by patients discharged home from acute care, identify factors associated with a positive discharge experience, and assess the influence of discharge quality on outcomes. METHOD: Patients discharged to the community and registered in the Australian Stroke Clinical Registry in 2014 were invited to participate...
October 30, 2017: Journal of Stroke and Cerebrovascular Diseases: the Official Journal of National Stroke Association
https://www.readbyqxmd.com/read/29076592/the-impact-of-primary-nursing-care-pattern-results-from-a-before-after-study
#18
Alberto Dal Molin, Claudia Gatta, Chiara Boggio Gilot, Rachele Ferrua, Tiziana Cena, Marie Manthey, Antonella Croso
AIMS AND OBJECTIVES: The aim of this study was to explore the effect of "Primary Nursing" on nursing-sensitive patient outcomes, staff-related outcomes, and organization-related outcomes. BACKGROUND: Primary Nursing is one example of a care pattern that has recently been implemented in many countries. DESIGN: Before-after study METHODS: This study was conducted in an Italian hospital. We observed patient-related outcomes (pressure ulcers, falls, urinary tract infection and venous catheter infection) in 2,857 inpatients before the implementation of Primary Nursing and in 3,169 inpatients after its implementation...
October 27, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29075134/the-multidisciplinary-team-meeting-in-the-uk-from-the-patients-perspective-comments-and-observations-from-cholangiocarcinoma-patients-and-their-families
#19
Helen Morement, Rachel Harrison, Simon D Taylor-Robinson
BACKGROUND: The multidisciplinary team (MDT) meeting has become the hallmark for cancer care in the UK. While standardizing care through adherence to guidelines, the MDT process can make the decision-making process somewhat remote from the patient perspective. The Cholangiocarcinoma Charity (AMMF) is the UK's only cholangiocarcinoma charity and is at the forefront of patient empowerment for those with this condition and for their families. It provides much needed support not only via personal contact but also through its website and on the social media platforms, Facebook and Twitter...
2017: International Journal of General Medicine
https://www.readbyqxmd.com/read/29073310/opportunities-and-challenges-for-improving-the-patient-experience-in-the-acute-and-postacute-care-setting-using-patient-portals-the-patient-s-perspective
#20
Anuj K Dalal, David W Bates, Sarah Collins
Efforts to improve the patient experience are increasingly focusing on engaging patients and their "care partners" by using patient portals. The Acute Care Patient Portal Task Force was supported by the Gordon and Betty Moore Foundation to convene a national meeting of an interdisciplinary group of stakeholders, including patient advocates, to consider how the acute and postacute care patient experience can be improved by using patient-facing technologies. We identified key opportunities and challenges for enhancing cognitive support, promoting respect while maintaining boundaries, and facilitating patient and family empowerment through the lens of the patient...
October 18, 2017: Journal of Hospital Medicine: An Official Publication of the Society of Hospital Medicine
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