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Patient empowerment

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https://www.readbyqxmd.com/read/29344533/the-effect-of-family-centered-empowerment-program-on-self-efficacy-of-adolescents-with-thalassemia-major-a-randomized-controlled-clinical-trial
#1
Leili Borimnejad, Soroor Parvizy, Hamid Haghaani, Belgheis Sheibani
Background: Chronic nature of thalassemia causes changes in different aspects of life in patients, including their self-efficacy. The aim of this study was to determine the effect of family-centered empowerment program on the self-efficacy of adolescents with Thalassemia major. Methods: A quasi-experimental study was performed on adolescents with thalassemia major in 2013 in Bandar Abbas, Iran. The participants were divided into intervention and control groups, respectively...
January 2018: International Journal of Community Based Nursing and Midwifery
https://www.readbyqxmd.com/read/29343088/creating-and-testing-regulatory-focus-messages-to-enhance-medication-adherence
#2
Ashley O'Connor, Amy Ladebue, Jamie Peterson, Ryan Davis, Susan Jung Grant, Marina McCreight, Anne Lambert-Kerzner
Objectives Strategies were explored to improve patient adherence to cardioprotective medications by borrowing from a motivational framework used in psychology, regulatory focus theory. The current study is part of a larger randomized control trial and was aimed at understanding what written educational messages, based on patients' regulatory focus tendency, resonated with each individual as a potential reminder to take medications. This study was also aimed at understanding why messages resonated with the patients...
January 1, 2018: Chronic Illness
https://www.readbyqxmd.com/read/29339126/addressing-the-impact-and-unmet-needs-of-nonadherence-in-asthma-and-chronic-obstructive-pulmonary-disease-where-do-we-go-from-here
#3
Richard Dekhuijzen, Federico Lavorini, Omar S Usmani, Job F M van Boven
Nonadherence to treatment, and its associated health and economic burden, is particularly problematic in asthma and chronic obstructive pulmonary disease management because of heterogeneous patient populations and the need for an inhaled route of drug administration. Symptom variability, comorbidities, and device switching further add to suboptimal adherence rates. As opposed to controlled clinical trials, real-life studies show consistently low inhaler adherence in daily practice, yet exact adherence rates have long been affected by disagreement on standardized definitions...
January 12, 2018: Journal of Allergy and Clinical Immunology in Practice
https://www.readbyqxmd.com/read/29337459/-psychiatry
#4
Philippe Conus, Charlène Tripalo, Christel Vaudan, Pascale Ferrari, Pierre Lequin, Charles Bonsack
Children of patients with psychiatric disorders are at higher risk to develop a psychiatric illness. In addition, phases of crisis and hospitalization of the parent are often traumatizing to the children, especially during childhood. Although a specific offer to face these issues is compulsory in some countries, such is not the case in Switzerland. In this paper we describe the implementation of a special offer for children of parents with mental illness (Famille +) in the service of general psychiatry at the Department of psychiatry of the Lausanne University hospital in Switzerland...
January 10, 2018: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29336111/beyond-mere-pill-taking-sms-reminders-for-hiv-treatment-adherence-delivered-to-mobile-phones-of-clients-in-a-community-support-network-in-australia
#5
Limin Mao, Andrew Buchanan, Horas Tze Hoo Wong, Asha Persson
SMS reminders sent to personal mobiles are increasingly used by clinical services to promote patient engagement, including adherence to antiretroviral treatment (ART) for HIV. From August to September 2015, a 6-week, randomised SMS reminder for ART adherence intervention was implemented among 98 HIV-positive clients of Australian's largest HIV charitable organisation located in Sydney. This was followed by a mixed-method evaluation, comprising a self-completed online survey and a one-to-one interview. Of the 62 survey participants, all being men, the majority were gay (85...
January 15, 2018: Health & Social Care in the Community
https://www.readbyqxmd.com/read/29335237/-why-do-they-need-to-check-me-patient-participation-through-ehealth-and-the-doctor-patient-relationship-qualitative-study
#6
Christiane Grünloh, Gunilla Myreteg, Åsa Cajander, Hanife Rexhepi
BACKGROUND: Roles in the doctor-patient relationship are changing and patient participation in health care is increasingly emphasized. Electronic health (eHealth) services such as patient accessible electronic health records (PAEHRs) have been implemented to support patient participation. Little is known about practical use of PAEHR and its effect on roles of doctors and patients. OBJECTIVE: This qualitative study aimed to investigate how physicians view the idea of patient participation, in particular in relation to the PAEHR system...
January 15, 2018: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29334523/not-a-straight-line-patient-s-experiences-of-prostate-cancer-and-their-journey-through-the-healthcare-system
#7
Kristina Schildmeijer, Oscar Frykholm, Åsa Kneck, Mirjam Ekstedt
BACKGROUND: Cancer and its treatment can severely impact quality of life, giving rise to complex needs with respect to follow-up care. To support patient needs and increase efficiency of care with limited resources, the Swedish government has launched national reforms to redesign cancer care pathways. OBJECTIVE: The aim of this study was to explore how prostate cancer patients experience their journey through the healthcare system when their care is provided according to the standardized care pathway, as described in healthcare policy documents...
January 12, 2018: Cancer Nursing
https://www.readbyqxmd.com/read/29325927/health-care-access-and-quality-for-persons-with-disability-patient-and-provider-recommendations
#8
Heather F McClintock, Jibby E Kurichi, Frances K Barg, Alice Krueger, Patrice M Colletti, Krizia A Wearing, Hillary R Bogner
BACKGROUND: Significant disparities in health care access and quality persist between persons with disabilities (PWD) and persons without disabilities (PWOD). Little research has examined recommendations of patients and providers to improve health care for PWD. OBJECTIVE: We sought to explore patient and health care provider recommendations to improve health care access and quality for PWD through focus groups in the physical world in a community center and in the virtual world in an online community...
December 30, 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/29324966/advanced-practice-nursing-in-pediatric-urology-experience-report-in-the-federal-district
#9
Bruna Marcela Lima de Souza, Cristiane Feitosa Salviano, Gisele Martins
OBJECTIVE: To describe the creation and implementation of the extension program Advanced Practice Nursing in Pediatric Urology, developed in the outpatient clinic of a teaching hospital in the Federal District. METHOD: This is an experience report regarding the implementation of an outpatient service aimed at children and adolescents with symptoms of bladder and bowel dysfunction. RESULTS: Because it is an extension program linked to the university, it follows a different model of care, valuing empowerment, informed and shared decision making, which results in a stronger bond between patients, family and the Pediatric Urology nursing team...
January 2018: Revista Brasileira de Enfermagem
https://www.readbyqxmd.com/read/29324539/trial-of-optimal-personalised-care-after-treatment-gynaecological-cancer-topcat-g-a-randomized-feasibility-trial
#10
Val Morrison, Llinos H Spencer, Nikki Totton, Kirstie Pye, Seow Tien Yeo, Caryl Butterworth, Liz Hall, Rhiannon Whitaker, Rhiannon Tudor Edwards, Laura J Timmis, Zoe Hoare, Richard D Neal, Clare Wilkinson, Simon Leeson
OBJECTIVE: This study aimed to evaluate the feasibility of completing a parallel-group randomized controlled trial to compare usual follow-up care for women who have completed treatment of gynecological cancer against a nurse-led telephone intervention, known as Optimal Personalised Care After Treatment-Gynaecological. METHODS: The unblinded trial aimed to recruit patients who had completed treatment of cervical, endometrial, epithelial ovarian, or vulval cancer within the previous 3 months at 3 North Wales hospitals...
January 10, 2018: International Journal of Gynecological Cancer
https://www.readbyqxmd.com/read/29323628/use-of-telehealth-as-a-new-model-for-following-intermittent-claudication-and-promoting-patient-expertise
#11
Meritxell Davins Riu, Xavier Borràs Pérez, Vicenç Artigas Raventós, Elisabet Palomera Fanegas, Mateu Serra Prat, Jesus Alós Villacrosa
BACKGROUND: A change in healthcare systems is needed, due to the increased prevalence of chronic diseases. Patient empowerment improves results in terms of patient quality of life (QoL) and satisfaction. INTRODUCTION: We have developed a telehealth program Control Telehealth Claudication Intermittent (CONTECI) for patients with peripheral arterial disease (PAD), aimed at enhancing patient satisfaction and QoL, while improving health system efficiency. MATERIALS AND METHODS: We conducted a randomized clinical trial of patients with PAD, at the intermittent claudication stage...
January 11, 2018: Telemedicine Journal and E-health: the Official Journal of the American Telemedicine Association
https://www.readbyqxmd.com/read/29310613/efficacy-of-a-telephone-outcall-program-to-reduce-caregiver-burden-among-caregivers-of-cancer-patients-protect-a-randomised-controlled-trial
#12
Leila Heckel, Kate M Fennell, John Reynolds, Anna Boltong, Mari Botti, Richard H Osborne, Cathrine Mihalopoulos, Jacquie Chirgwin, Melinda Williams, Cadeyrn J Gaskin, David M Ashley, Patricia M Livingston
BACKGROUND: Informal caregivers provide extended support to people with cancer but they receive little support from the health care system to assist them in their caring role. The aim of this single-blind, multi-centre, randomised controlled trial was to test the efficacy of a telephone outcall program to reduce caregiver burden and unmet needs, and improve psychological well-being among cancer caregivers, as well as evaluating the potential impact on patient outcomes. METHODS: Cancer patient/caregiver dyads (N = 216) were randomised to a telephone outcall program (n = 108) or attention control group (n = 108)...
January 8, 2018: BMC Cancer
https://www.readbyqxmd.com/read/29308705/predictors-of-empowerment-in-individuals-with-type-2-diabetes-mellitus
#13
Hamdiye Arda Sürücü, Dilek Büyükkaya Besen
INTRODUCTION: Type 2 diabetes is a chronic, progressive disease that has reached pandemic proportions. In Turkey, the frequency of diabetes in individuals aged 20 years or older has been reported to be 13.7% compared with the worldwide prevalence of 8.5%. Empowerment has been correlated with improvement in diabetic self-management capabilities and glycemic control. The purpose of this study was to examine predictors of "empowerment" in individuals with type 2 diabetes from Turkey. METHOD: This was a secondary analysis with a cross-sectional correlation design using stepwise linear regression to evaluate previously collected data from 220 type 2 diabetic individuals in Turkey from January through July 2014...
December 1, 2017: Journal of Transcultural Nursing: Official Journal of the Transcultural Nursing Society
https://www.readbyqxmd.com/read/29301563/factors-related-to-negative-feelings-experienced-by-emergency-department-patients-and-accompanying-persons-an-israeli-study
#14
Simha F Landau, Judy Bendalak, Gila Amitay, Ohad Marcus
BACKGROUND: Studies on hospital violence have emphasized the importance of staff- service recipient interaction in leading to violent incidents. These incidents are the extreme result of service recipients' frustration and anger in their interaction with staff. The aim of this study was to analyze factors related to negative experiences of emergency department (ED) patients and accompanying persons in Israeli hospitals. METHODS: Structured interviews with 692 participants in seven major general Israeli hospitals: 322 patients and 370 accompanying persons...
January 4, 2018: Israel Journal of Health Policy Research
https://www.readbyqxmd.com/read/29290571/-individual-patient-satisfaction-gesundes-kinzigtal-interim-results-of-a-trend-study
#15
Achim Siegel, Wilhelm Niebling
INTRODUCTION: The integrated health care pilot model "Gesundes Kinzigtal" (GK) is recognized as a reference model for integrated healthcare in Germany. The aim of GK is to improve the health of the insured persons and, at the same time, to decrease their healthcare costs compared to usual care. The evaluation of GK has so far shown that GK might reach this aim. However, there are still no evaluation studies on GK focusing on patient-reported outcomes. This gap needs to be closed by a trend study, which is the main topic of this paper: We present interim results of this study, focusing on patient satisfaction with GK, insured persons' self-reported change of health behavior, their knowledge on health maintenance, and health-related quality of life...
December 28, 2017: Zeitschrift Für Evidenz, Fortbildung und Qualität Im Gesundheitswesen
https://www.readbyqxmd.com/read/29280679/do-online-health-communities-enhance-patient-physician-relationship-an-assessment-of-the-impact-of-social-support-and-patient-empowerment
#16
Anne-Francoise Audrain-Pontevia, Loick Menvielle
The diffusion of the Web 2.0 has made it possible for patients to exchange on online health communities, defined as computer-mediated communities dedicated to health topics, wherein members can build relationships with other members. It is now acknowledged that online health communities provide users not only with medical information but also with social support with no time or geographical boundaries. However, in spite of their considerable interest, there is still a paucity of research as to how online health communities alter the patient-physician relationship...
January 1, 2017: Health Services Management Research
https://www.readbyqxmd.com/read/29277376/-transcultural-adaptation-into-spanish-of-the-patient-empowerment-in-long-term-conditions-questionnaire
#17
Paloma Garcimartin, Yolanda Pardo-Cladellas, Jose-Maria Verdú-Rotellar, Pilar Delgado-Hito, Monica Astals-Vizcaino, Josep Comin-Colet
PURPOSE: To describe the process of translation and cultural adaptation of the Patient empowerment in long-term condition to the Spanish language. DESIGN: Translation, cross-cultural adaptation, and pilot testing (cognitive debriefing) LOCATION: Primary and Hospital care. PARTICIPANTS: Ten patients admitted to a cardiology department of a University Hospital MAIN MEASUREMENTS: 1) Direct translation, 2) conciliation and synthesis of the versions by expert panel, 3) back- translation, 4) agreement on the back-translated version with the author of the original version, 5) analysis of comprehensibility through cognitive interviews...
December 22, 2017: Atencion Primaria
https://www.readbyqxmd.com/read/29277347/adherence-to-blood-pressure-and-glucose-recommendations-in-chronic-kidney-disease-hospital-inpatients-clinical-inertia-and-patient-adherence
#18
Fergus William Gardiner, Ezekiel Uba Nwose, Phillip Taderera Bwititi, Judith Crockett, Lexin Wang
AIMS: To determine the extent to which targets for blood pressure (BP) (<140.90 mmHg) and random blood glucose level (BGL) (<7.7 mmol/L) control in patients with chronic kidney disease (CKD) are achieved; and the extent clinical inertia affects BP and glucose control in CKD and diabetes mellitus (DM). METHODS: Data was collected from the 1st January 2015 until 31st December 2015 on key patient pathology, admission reason, final discharge diagnosis, and information concerning clinical guideline adherence...
December 16, 2017: Diabetes & Metabolic Syndrome
https://www.readbyqxmd.com/read/29277160/elderly-patients-and-gps-perspectives-of-patient-gp-communication-concerning-polypharmacy-a-qualitative-interview-study
#19
Andrea C Schöpf, Maike von Hirschhausen, Erik Farin, Andy Maun
Aim The aim of this study was to explore elderly patients' and general practitioners' (GPs') perceptions of communication about polypharmacy, medication safety and approaches for empowerment. BACKGROUND: To manage polypharmacy, GPs need to know patients' real medication consumption. However, previous research has shown that patients do not always volunteer all information about their medication regimen, for example, such as the intake of over-the-counter medication or the alteration or discontinuation of prescribed medication...
December 26, 2017: Primary Health Care Research & Development
https://www.readbyqxmd.com/read/29277099/financial-incentives-for-medicaid-beneficiaries-with-diabetes-lessons-learned-from-hi-praise-an-observational-study-and-randomized-controlled-trial
#20
Ritabelle Fernandes, Chuan C Chinn, Dongmei Li, Timothy Halliday, Timothy B Frankland, Christina M B Wang, Zi Wang, Misha Morioka, Robin G Arndt, Rebecca Rude Ozaki
PURPOSE: The Hawaii Patient Reward and Incentives to Support Empowerment (HI-PRAISE) project examined the impact of financial incentives on Medicaid beneficiaries with diabetes. DESIGN: Observational pre-post study and randomized controlled trial (RCT). SETTING: Federally qualified health centers (FQHCs) and Hawaii Kaiser Permanente. PARTICIPANTS: The observational study included 2003 Medicaid beneficiaries with diabetes from FQHCs...
January 1, 2017: American Journal of Health Promotion: AJHP
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