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https://www.readbyqxmd.com/read/29260487/bilingual-cancer-genetic-education-modules-for-the-deaf-community-development-and-evaluation-of-the-online-video-material
#1
Patrick Boudreault, Alicia Wolfson, Barbara Berman, Vickie L Venne, Janet S Sinsheimer, Christina Palmer
Health information about inherited forms of cancer and the role of family history in cancer risk for the American Sign Language (ASL) Deaf community, a linguistic and cultural community, needs improvement. Cancer genetic education materials available in English print format are not accessible for many sign language users because English is not their native or primary language. Per Center for Disease Control and Prevention recommendations, the level of literacy for printed health education materials should not be higher than 6th grade level (~ 11 to 12 years old), and even with this recommendation, printed materials are still not accessible to sign language users or other nonnative English speakers...
December 20, 2017: Journal of Genetic Counseling
https://www.readbyqxmd.com/read/29241444/willingness-to-pay-for-flexible-working-conditions-of-people-with-type-2-diabetes-discrete-choice-experiments
#2
M A Nexo, B Cleal, Lise Hagelund, I Willaing, K Olesen
BACKGROUND: The increasing number of people with chronic diseases challenges workforce capacity. Type 2 diabetes (T2D) can have work-related consequences, such as early retirement. Laws of most high-income countries require workplaces to provide accommodations to enable people with chronic disabilities to manage their condition at work. A barrier to successful implementation of such accommodations can be lack of co-workers' willingness to support people with T2D. This study aimed to examine the willingness to pay (WTP) of people with and without T2D for five workplace initiatives that help individuals with type 2 diabetes manage their diabetes at work...
December 15, 2017: BMC Public Health
https://www.readbyqxmd.com/read/29231285/co-research-with-adults-with-intellectual-disability-a-systematic-review
#3
REVIEW
Claudio Di Lorito, Alessandro Bosco, Linda Birt, Angela Hassiotis
BACKGROUND: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. METHOD: Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed, and information relevant to the process of working with co-researchers was extracted and thematically analysed...
December 12, 2017: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29211256/population-profiles-associated-with-severe-functioning-difficulties-and-disability-among-two-to-four-years-old-children-in-mexico
#4
Rosalba Rojas-Martínez, Filipa de Castro, Aremis Villalobos, Martín Romero, Betania Allen, Celia Hubert, Tonatiuh Barrientos-Gutiérrez, Eduardo Lazcano-Ponce
OBJECTIVE: To describe the prevalence and factors associated with severe child functioning difficulties and disability (CFD) among two to four year old children in Mexico, and estimates the probability of presenting CFD based on specific population profiles. MATERIALS AND METHODS: The sample consists of 5 104 children who participated in the National Survey of Children and Women 2015 (ENIM). We used post-estimation exploration by computing predicted values of CFD to interpret the logistic models for discrete combinations of the independent variables...
July 2017: Salud Pública de México
https://www.readbyqxmd.com/read/29210350/rotavirus-vaccine-will-improve-child-survival-by-more-than-just-preventing-diarrhea-evidence-from-bangladesh
#5
Senjuti Saha, Mathuram Santosham, Manzoor Hussain, Robert E Black, Samir K Saha
Despite the high burden of rotavirus diarrhea, uptake of rotavirus vaccines in Asia remains low. This primarily stems from a perception of rotavirus as a non-life-threatening pathogen amidst a background of competing health priorities and limited resources. In the largest pediatric hospital of Bangladesh, where there is a fierce competition for beds, we found that between November 2015 and October 2016, 12% of 23,064 admissions were due to gastrointestinal infections, 54% of which were caused by rotavirus. One in four cases requiring hospitalization, or 5,879 cases, was refused because of unavailability of beds...
December 4, 2017: American Journal of Tropical Medicine and Hygiene
https://www.readbyqxmd.com/read/29173284/development-of-patient-centered-disability-status-questions-to-address-equity-in-care
#6
Megan A Morris, Tara Lagu, Allysha Maragh-Bass, Juliette Liesinger, Joan M Griffin
BACKGROUND: Patients with disabilities experience disparities in accessing and receiving high-quality health care services as compared to patients without disabilities. To address the disparities, health care organizations need to identify which of their patients have disabilities to track quality of care and provide appropriate health care accommodations. To date, no evidence-based sets of disability questions exist that serve these purposes. A study was conducted to identify patient-centered disability questions for health care organizations to determine which patients require health care accommodations and to track the quality of care experienced by patients with disabilities...
December 2017: Joint Commission Journal on Quality and Patient Safety
https://www.readbyqxmd.com/read/29096528/the-presence-of-co-morbid-mental-health-problems-in-a-cohort-of-adolescents-with-chronic-fatigue-syndrome
#7
Maria Elizabeth Loades, Katharine A Rimes, Sheila Ali, Kate Lievesley, Trudie Chalder
OBJECTIVE: To report on the prevalence of mental health disorders in adolescents with chronic fatigue syndrome (CFS) and to compare the diagnoses identified by a brief clinician-administered psychiatric interview with self-report screening questionnaires. DESIGN: Cross-sectional study. SETTING: Consecutive attenders to specialist CFS clinics in the United Kingdom. PATIENTS: N = 52 adolescents, age 12-18 years with CFS...
October 1, 2017: Clinical Child Psychology and Psychiatry
https://www.readbyqxmd.com/read/29072479/postsecondary-students-with-psychiatric-disabilities-identify-core-services-and-key-ingredients-to-supporting-education-goals
#8
Kathleen Biebel, Raphael Mizrahi, Heather Ringeisen
OBJECTIVE: Accessing and successfully completing postsecondary educational opportunities may be challenging for those living with psychiatric disabilities. This exploratory study highlights the experiences of individuals with psychiatric disabilities participating in postsecondary educational support initiatives. METHOD: Investigators conducted case studies with 3 education support initiatives across the United States. Focus groups revealed what concrete supported education services were helpful and key ingredients in delivering education supports...
October 26, 2017: Psychiatric Rehabilitation Journal
https://www.readbyqxmd.com/read/29068261/health-information-infrastructure-for-people-with-intellectual-and-developmental-disabilities-i-dd-living-in-supported-accommodation-communication-co-ordination-and-integration-of-health-information
#9
Maria R Dahm, Andrew Georgiou, Susan Balandin, Sophie Hill, Bronwyn Hemsley
People with intellectual and/or developmental disability (I/DD) commonly have complex health care needs, but little is known about how their health information is managed in supported accommodation, and across health services providers. This study aimed to describe the current health information infrastructure (i.e., how data and information are collected, stored, communicated, and used) for people with I/DD living in supported accommodation in Australia. It involved a scoping review and synthesis of research, policies, and health documents relevant in this setting...
October 25, 2017: Health Communication
https://www.readbyqxmd.com/read/29053750/middle-aged-individuals-with-thalidomide-embryopathy-have-undergone-few-surgical-limb-procedures-and-demonstrate-a-high-degree-of-physical-independence
#10
Shadi A Ghassemi Jahani, Aina Danielsson, Jon Karlsson, Helena Brisby
BACKGROUND: Thalidomide is known to have induced thalidomide embryopathy (TE) in more than 10,000 live-born children worldwide between 1957-1962. AIM: The aim of this study was to investigate the need for orthopaedic surgery and limb orthosis in relation to function and physical independence in middle-aged individuals with TE. METHODS: 13 women/18 men with a mean age of 45.8 (SD 1.1) years were included. Information about limb surgery, the use of orthotic devices, jobs, accommodation, disability adjustments and personal assistants was collected...
2017: PloS One
https://www.readbyqxmd.com/read/29041821/gender-matters-in-the-transition-to-employment-for-young-adults-with-physical-disabilities
#11
Sally Lindsay, Elaine Cagliostro, Mikhaela Albarico, Neda Mortaji, Dilakshan Srikanthan
PURPOSE: The purpose of this study was to explore the role of gender in the transition to employment for young adults with physical disabilities. METHODS: This study drew on in-depth interviews with a purposive sample of 33 participants (23 youth and 10 clinicians). The youth in our sample included 13 females (mean age 22.9) and 10 males (mean age 21.3) who had various types of physical disabilities. The person-environment-occupation (PEO) model informed our analysis...
October 17, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29035638/evaluation-of-the-effectiveness-of-a-novel-gait-trainer-in-increasing-the-functionality-of-individuals-with-motor-impairment-a-case-series
#12
Eitan Raveh, Isabella Schwartz, Naama Karniel, Sigal Portnoy
Regaining the ability to independently ambulate following a physical disability can increase functional ability and participation of patients in daily life. Gait trainers are assistive devices that enable body support and provide safety during gait. However, most conventional gait trainers are pre-configured to a constant position, therefore not suitable for practicing sit-to-stand function, and require assistance from a caregiver in order to mount the device from a sitting position. We therefore evaluated the effectiveness of a dynamically-adjusting gait trainer, designed to provide independence and safety during gait and various activities, in both lab setting and at home in four subjects (one female, three males, ages 32-79 years) with limited ambulation...
October 16, 2017: Assistive Technology: the Official Journal of RESNA
https://www.readbyqxmd.com/read/28979218/is-there-a-downside-of-job-accommodations-an-employee-perspective-on-individual-change-processes
#13
Julia M Kensbock, Stephan A Boehm, Kirill Bourovoi
By modifying the work environments, work routines, and work tasks of employees with health restrictions, organizations can effectively help them continue to perform their jobs successfully. As such, job accommodations are an effective tool to secure the continued employment of aging workers who develop disabilities across their life span. However, while accommodations tackle health-related performance problems, they might create new challenges on the part of the affected employee. Building on the organizational change and accommodations literatures, we propose a theoretical framework of negative experiences during accommodation processes and apply it to qualitative data from group interviews with 73 manufacturing workers at a German industrial company who were part of the company's job accommodation program...
2017: Frontiers in Psychology
https://www.readbyqxmd.com/read/28960114/work-organisational-practices-and-margin-of-manoeuver-during-work-reintegration
#14
Fergal O'Hagan
BACKGROUND: Many individuals of working age experience cardiovascular disease and are disabled from work as a result. The majority of research in cardiac work disability has focused on individual biological and psychological factors influencing work disability despite evidence of the importance of social context in work disability. In this article, the focus is on work and organisational features influencing the leeway (margin of manoeuvre) workers are afforded during work reintegration...
September 29, 2017: Disability and Rehabilitation
https://www.readbyqxmd.com/read/28931434/long-term-outcome-of-autistic-spectrum-disorder-a-retrospective-case-study-in-a-southern-italian-region
#15
Francesca Felicia Operto, Federica Martino, Annalisa Rinaldi, Angelo Cerracchio, Giovanni Salvati, Mariano Orza, Claudia Lembo, Gianvito Panzarino, Claudia Di Paolantonio, Alberto Verrotti, Giovanni Farello, Giangennaro Coppola
BACKGROUND: Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder, characterized by impaired social communication and restricted and repetitive behaviours, as well as associated features including intellectual disability and impaired sensorimotor function. Despite a growing interest in this devastating disorder for families and young parents, there are no certainties as regards its aetiology, although a significant genetic background is considered to be important. Since there is little information about the social adaptation and quality of life of patients with Autism Spectrum Disorder, we decided to study and evaluate the long-term outcome and quality of life in a sample of children, adolescent and young adults...
September 20, 2017: Italian Journal of Pediatrics
https://www.readbyqxmd.com/read/28924919/use-of-accessible-examination-tables-in-the-primary-care-setting-a-survey-of-physical-evaluations-and-patient-attitudes
#16
Megan A Morris, Allysha C Maragh-Bass, Joan M Griffin, Lila J Finney Rutten, Tara Lagu, Sean Phelan
BACKGROUND: Accessible diagnostic equipment, including height-adjustable examination tables, is necessary to accommodate patients with disabilities. Studies demonstrate that only a minority of clinics provide accessible equipment. For clinics with this equipment, no studies have examined the use of such equipment in routine clinical care. OBJECTIVE: In primary care clinics with and without height-adjustable examination tables, we compared the frequency and variation in physical evaluations on examination tables and patients' perceptions of quality care...
December 2017: Journal of General Internal Medicine
https://www.readbyqxmd.com/read/28922180/qualitative-case-studies-of-professional-level-workers-with-traumatic-brain-injuries-a-contextual-approach-to-job-accommodation-and-retention
#17
Richard T Roessler, Phillip D Rumrill, Stuart P Rumrill, Deborah L Minton, Deborah J Hendricks, Elaine Sampson, Callista Stauffer, Marcia J Scherer, Amanda Nardone, Anne Leopold, Karen Jacobs, Eileen Elias
BACKGROUND: Traumatic brain injury (TBI) is a multi-systemic disability that causes a wide range of difficulties with personal and social functioning. METHODS: Four individuals with TBI participated in an evaluation of barriers to their continued employment following graduation from college. A trained interviewer completed the Work Experience Survey (WES) in teleconsultation sessions with each participant. RESULTS: Researchers applied a qualitative case study research design...
September 14, 2017: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/28922173/accommodating-individuals-with-traumatic-brain-injury-an-analysis-of-employer-initiated-cases-handled-by-the-job-accommodation-network
#18
D J Hendricks, Elaine Sampson
BACKGROUND: The Job Accommodation Network (JAN) has provided customized accommodation information to employers, individuals with disabilities, and their representatives (e.g., family, rehabilitation counselors, union representatives) since 1983. For each inquiry where such information is sought, detailed records are maintained regarding the type of inquiries made and the information provided. OBJECTIVE: The objective of the current study is to present a descriptive analysis of the employer-initiated cases related to traumatic brain injury (TBI) handled by the accommodation specialists at JAN during the five years from 2012 through 2016...
September 14, 2017: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/28893075/classroom-acoustics-as-a-consideration-for-inclusive-education-in-south-africa
#19
Coralie Van Reenen, Catherine Karusseit
BACKGROUND: It can hardly be disputed that a school environment should be conducive or, at the very least, not prohibitive to effective learning. The provision of fair, equal and barrier-free access to education is referred to as inclusive education. South Africa supports a policy of inclusive schooling, striving to accommodate all children, including those with disabilities, in mainstream schools. This article sets out to prove that noise control in classrooms is a relevant, yet neglected, aspect of inclusive classroom design in South Africa and requires specific attention...
September 8, 2017: South African Journal of Communication Disorders. die Suid-Afrikaanse Tydskrif Vir Kommunikasieafwykings
https://www.readbyqxmd.com/read/28876218/deaf-workers-in-restaurant-retail-and-hospitality-sector-employment-harnessing-research-to-promote-advocacy
#20
Hayley Stokar
A quarter-century after the passage of the Americans with Disabilities Act (ADA, 1990 ), workplace accommodation is still a struggle for deaf employees and their managers. Many challenges are the result of communication barriers that can be overcome through much needed-although often absent-advocacy and training. This article highlights the literature on the employment of deaf individuals in the United States service industries of food service, retail, and hospitality conducted from 2000 to 2016. Exploring dimensions of both hiring and active workplace accommodation, suggestions are made for how social work advocates can harness information and strengthen their approaches for educating managers and supporting workers...
July 2017: Journal of Social Work in Disability & Rehabilitation
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