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https://www.readbyqxmd.com/read/30005080/are-maternal-healthcare-services-accessible-to-vulnerable-group-a-study-among-women-with-disabilities-in-rural-nepal
#1
Hridaya Raj Devkota, Emily Murray, Maria Kett, Nora Groce
BACKGROUND: Studies report that vulnerable groups like people with disabilities have less access to healthcare. This study compares health service access between women with and without disabilities in general and explores the challenges encountered by women with disabilities in accessing maternal healthcare services during pregnancy. METHODS: A mixed method study was conducted in Rupandehi district of Nepal implementing a cross-sectional survey among 354 women including 79 women with disabilities, supplemented by 43 in-depth interviews...
2018: PloS One
https://www.readbyqxmd.com/read/29986684/smart-medical-beds-in-patient-care-environments-of-the-twenty-first-century-a-state-of-art-survey
#2
Ignacio Ghersi, Mario Mariño, Mónica Teresita Miralles
BACKGROUND: Recent scientific achievements and technological advances have brought forward a massive display of new or updated medical devices, enabled with highly-developed embedded-control functions and interactivity. From the final decade of the twentieth century, medical beds have particularly been affected by this surge, taking on new forms and functions, while accommodating to established properties that have become well-known for these devices. The past fifteen years have also brought forward changes to conceptual frameworks, concerning the product design and manufacturing processes (standards), as well as the patient (perspectives on patient-care environments and accessibility)...
July 9, 2018: BMC Medical Informatics and Decision Making
https://www.readbyqxmd.com/read/29947457/-i-don-t-want-to-take-any-risks-even-if-it-s-gonna-mean-this-service-user-is-gonna-be-happier-a-thematic-analysis-of-community-support-staff-perspectives-on-delivering-transforming-care
#3
Adam Clifford, P J Standen, Jo Jones
BACKGROUND: Transforming Care is making mixed progress in supporting people with intellectual and developmental disabilities, and complex needs, move to more appropriate specialist accommodations closer to home. Community support staff often spend greatest amounts of time with service-users, yet are some of the least heard voices about why placements succeed and fail to varying extents. METHOD: Managers and support staff (n = 13), working in ostensibly "specialist" community placements, were interviewed about perceived barriers and facilitators to implementing Transforming Care...
June 27, 2018: Journal of Applied Research in Intellectual Disabilities: JARID
https://www.readbyqxmd.com/read/29911164/zdaly-an-adjusted-indicator-to-estimate-the-burden-of-zoonotic-diseases
#4
Paul R Torgerson, Simon Rüegg, Brecht Devleesschauwer, Bernadette Abela-Ridder, Arie H Havelaar, Alexandra P M Shaw, Jonathan Rushton, Niko Speybroeck
The burden of human diseases in populations, or for an individual, is frequently estimated in terms of one of a number of Health Adjusted Life Years (HALYs). The Disability Adjusted Life Year (DALY) is a widely accepted HALY metric and is used by the World Health Organization and the Global Burden of Disease studies. Many human diseases are of animal origin and often cause ill health and production losses in domestic animals. The economic losses due to disease in animals are usually estimated in monetary terms...
June 2018: One Health
https://www.readbyqxmd.com/read/29909232/load-distribution-on-the-foot-and-lofstrand-crutches-of-amputee-football-players
#5
Yasar Tatar, Nejla Gercek, Nusret Ramazanoglu, Irfan Gulmez, Selda Uzun, Goktug Sanli, Cengiz Karagozoglu, Hasan Birol Cotuk
BACKGROUND: Amputee football is a worldwide popular sport with positive physical and psychological effects on the disabled. Amputee players use their hands dominantly for locomotion. However, the effect of using upper extremity which is not accommodated to loading is not very well known. RESEARCH QUESTION: The objective of this study was to determine the load distribution of amputee football players during walking, running and kicking the ball. METHODS: This study was conducted with 15 certified amputee football players (age 24...
June 9, 2018: Gait & Posture
https://www.readbyqxmd.com/read/29863624/the-prevalence-of-traumatic-brain-injury-and-on-campus-service-utilization-among-undergraduate-students
#6
Sam Meske, Joseph B Hazzard, Meng Ni, Tyler Hanson, Lucas Van Horn, Josh Smith
OBJECTIVE: (1) To examine the prevalence of college-aged students on campus who had a history of concussion(s) or traumatic brain injury (TBI) and associated symptoms and (2) to evaluate the rate of campus service utilization among students who had a TBI. SETTING: A representative sampling, randomly selected campus-wide e-mail was sent out with a Qualtrics online survey. PARTICIPANTS: College-aged students (N = 466, n = 429) at a northeastern US university responded and consented to participate in the online survey...
May 31, 2018: Journal of Head Trauma Rehabilitation
https://www.readbyqxmd.com/read/29863527/sensory-sensitivity-and-symptom-severity-represent-unique-dimensions-of-chronic-pain-a-mapp-research-network-study
#7
Andrew Schrepf, David A Williams, Robert Gallop, Bruce Naliboff, Neil Basu, Chelsea Kaplan, Daniel E Harper, Richard Landis, J Quentin Clemens, Eric Strachan, James W Griffith, Niloofar Afari, Afton Hassett, Michel A Pontari, Daniel J Clauw, Steven E Harte
Chronic Overlapping Pain Conditions (COPCs) are characterized by aberrant central nervous system processing of pain. This 'centralized pain' phenotype has been described using a large and diverse set of symptom domains, including the spatial distribution of pain, pain intensity, fatigue, mood imbalances, cognitive dysfunction, altered somatic sensations, and hypersensitivity to external stimuli. Here we used three cohorts, including patients with Urologic Chronic Pelvic Pain Syndrome (UCPPS), a mixed pain cohort with other COPCs, and healthy individuals (total n = 1039) from the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network to explore the factor structure of symptoms of centralized pain...
May 28, 2018: Pain
https://www.readbyqxmd.com/read/29850438/intellectual-disability-rights-and-inclusive-citizenship-in-south-africa-what-can-a-scoping-review-tell-us
#8
REVIEW
Charlotte Capri, Lameze Abrahams, Judith McKenzie, Ockert Coetzee, Siyabulela Mkabile, Manuel Saptouw, Andrew Hooper, Peter Smith, Colleen Adnams, Leslie Swartz
Background: Intellectual disability (ID) is the most prevalent disability in the world. People with intellectual disability (PWID) frequently experience extreme violations of numerous human rights. Despite greater prevalence in South Africa than in high-income countries, most ID research currently comes from the Global North. This leaves us with few contextually sensitive studies to draw from to advance inclusive citizenship. Objectives: Our scoping review aims to investigate pertinent ID rights issues in South Africa, synthesise quantitative and qualitative studies, and provide a synopsis of available evidence on which to base future work...
2018: African Journal of Disability
https://www.readbyqxmd.com/read/29804470/cognitive-behavioral-longitudinal-assessment-in-als-the-italian-edinburgh-cognitive-and-behavioral-als-screen-ecas
#9
Barbara Poletti, Federica Solca, Laura Carelli, Andrea Faini, Fabiana Madotto, Annalisa Lafronza, Alessia Monti, Stefano Zago, Andrea Ciammola, Antonia Ratti, Nicola Ticozzi, Sharon Abrahams, Vincenzo Silani
OBJECTIVE: The study presents data on the longitudinal administration of the Italian Edinburgh Cognitive and Behavioral ALS Screen (ECAS). We investigated cognitive-behavioral performance in a group of ALS patients over time and the feasibility of repeating the ECAS longitudinally compared with standard neuropsychological tests. Finally, correlations between clinical/genetic and cognitive/behavioral data were considered. METHODS: One hundred and sixty-eight ALS patients were tested at baseline (T0 )...
August 2018: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
https://www.readbyqxmd.com/read/29798832/teams-tele-exercise-and-multiple-sclerosis-a-tailored-telerehabilitation-mhealth-app-participant-centered-development-and-usability-study
#10
Mohanraj Thirumalai, James H Rimmer, George Johnson, Jereme Wilroy, Hui-Ju Young, Tapan Mehta, Byron Lai
BACKGROUND: People with multiple sclerosis face varying levels of disability and symptoms, thus requiring highly trained therapists and/or exercise trainers to design personalized exercise programs. However, for people living in geographically isolated communities, access to such trained professionals can be challenging due to a number of barriers associated with cost, access to transportation, and travel distance. Generic mobile health exercise apps often fall short of what people with multiple sclerosis need to become physically active (ie, exercise content that has been adapted to accommodate a wide range of functional limitations)...
May 24, 2018: JMIR MHealth and UHealth
https://www.readbyqxmd.com/read/29788749/university-life-with-asd-faculty-knowledge-and-student-needs
#11
Sasha M Zeedyk, Yasamine Bolourian, Jan Blacher
Increasingly, young adults with autism spectrum disorder are attending 4-year universities. The transition to adulthood can be challenging for these students, and university life poses its own set of demands. The present article takes a mixed-methods approach by including two studies utilizing complementary methodologies. Through in-depth interviews with students with autism spectrum disorder ( n = 13) and college professors ( n = 18), the purpose of the first study was to evaluate the experiences and needs of college students with autism spectrum disorder and identify the knowledge that faculty members possessed about working with these students...
May 1, 2018: Autism: the International Journal of Research and Practice
https://www.readbyqxmd.com/read/29787341/standardized-outcome-measures-for-cerebral-palsy-among-physiotherapists-in-southwestern-nigeria-awareness-use-barriers-and-facilitators
#12
Adebimpe O Obembe, Omotara Dada, Adetomola O Balogun, Olufemi W Ojo, Olubusola E Johnson
The use of outcome measures for assessing progress in the management and treatment of cerebral palsy (CP) is widely recommended. This study was, therefore, carried out to determine awareness and use of standardized outcome measures among physiotherapists managing CP in Nigeria. Barriers to and facilitators for the use of outcome measures were also investigated. This was a descriptive study involving 138 physiotherapists from selected hospitals in southwestern Nigeria. A self-administered questionnaire was used to obtain relevant information on socio-demographics, awareness, use, barriers to, and facilitators for the use of seven standardized outcome measures...
May 22, 2018: Physiotherapy Theory and Practice
https://www.readbyqxmd.com/read/29785228/evaluating-the-utility-of-a-structured-clinical-protocol-for-reducing-the-impact-of-behavioural-and-psychological-symptoms-of-dementia-in-progressive-neurological-diseases-a-pilot-study
#13
Nicholas P Ryan, Laura Scott, Maryanne McPhee, Susan Mathers, Marie-Claire Davis, Roxanne Maule, Fiona Fisher
Objectives: Behavioural and psychological symptoms of dementia (BPSD) cause significant distress to both aged care residents and staff. Despite the high prevalence of BPSD in progressive neurological diseases (PNDs) such as multiple sclerosis, Huntington's disease, and Parkinson's disease, the utility of a structured clinical protocol for reducing BPSD has not been systematically evaluated in PND populations. Method: Staff ( n = 51) and individuals with a diagnosis of PND ( n = 13) were recruited into the study, which aimed to evaluate the efficacy of a PND-specific structured clinical protocol for reducing the impact of BPSD in residential aged care (RAC) and specialist disability accommodation (SDA) facilities...
2018: Behavioural Neurology
https://www.readbyqxmd.com/read/29772924/access-to-care-among-children-with-disabilities-enrolled-in-the-masshealth-commonhealth-buy-in-program
#14
Melissa Hirschi, Angela Wangari Walter, Kasey Wilson, Kate Jankovsky, Beth Dworetzky, Meg Comeau, Sara S Bachman
Children with disabilities utilize more health-care services and incur higher costs than other children do. Medicaid Buy-In programs for children with disabilities have the potential to increase access to benefits while reducing out-of-pocket costs for families whose income exceeds Medicaid eligibility. This study sought to understand how parents and caregivers of Massachusetts children with disabilities perceive access to care under CommonHealth, Massachusetts's Medicaid Buy-In program. Parents and caregivers ( n = 615) whose children were enrolled in CommonHealth participated in a survey assessing the impact of the program...
January 1, 2018: Journal of Child Health Care: for Professionals Working with Children in the Hospital and Community
https://www.readbyqxmd.com/read/29764342/barriers-to-and-facilitators-of-employment-for-people-with-psychiatric-disabilities-in-africa-a-scoping-review
#15
I D Ebuenyi, E V Syurina, J F G Bunders, B J Regeer
BACKGROUND: Despite the importance of inclusive employment, described in Goal 8 of the Sustainable Development Goals (SDGs), employment of persons with psychiatric disabilities in Africa is lower than among the general population. OBJECTIVE: The aim of this scoping review is to explore evidence related to the barriers to and facilitators of employment of persons with psychiatric disabilities in Africa. METHODS: A literature search was conducted using six relevant electronic databases of articles published between 1990 and 2017...
2018: Global Health Action
https://www.readbyqxmd.com/read/29763271/adults-with-developmental-disabilities-a-comprehensive-approach-to-medical-care
#16
Clarissa Kripke
Developmental disabilities are attributable to a cognitive impairment, physical impairment, or both. They manifest during the developmental period from birth to early adulthood, and are likely to continue indefinitely. The life expectancy of most persons with developmental disabilities now approaches that of the general population. According to the neurodiversity model of care, developmental disability is accepted as a valued part of human neurologic diversity. The social model focuses on improving participation in society with accommodations such as adaptive equipment or improvements to the social and physical environment...
May 15, 2018: American Family Physician
https://www.readbyqxmd.com/read/29758387/exploring-the-impact-of-disability-on-self-determination-measurement
#17
Cristina Mumbardó-Adam, Joan Guàrdia-Olmos, Climent Giné
BACKGROUND: Self-determination is a psychological construct that applies to both the general population and to individuals with disabilities that can be self-determined with adequate accommodations and opportunities. As the relevance of self-determination-related skills in life has been recently acknowledged, researchers have created a measure to assess self-determination in adolescents and young adults with and without disabilities. The Self-Determination Inventory: Student Report (Spanish interim version) is empirically being validated into Spanish...
July 2018: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/29752027/reducing-challenging-behaviour-of-adults-with-intellectual-disabilities-in-supported-accommodation-a-cluster-randomized-controlled-trial-of-setting-wide-positive-behaviour-support
#18
Peter McGill, Leah Vanono, Will Clover, Emmett Smyth, Vivien Cooper, Lisa Hopkins, Nick Barratt, Christopher Joyce, Kate Henderson, Sheila Sekasi, Susy Davis, Roy Deveau
BACKGROUND: Improving the quality of social care through the implementation of setting-wide positive behaviour support (SWPBS) may reduce and prevent challenging behaviour. METHOD: Twenty-four supported accommodation settings were randomized to experimental or control conditions. Settings in both groups had access to individualized PBS either via the organisation's Behaviour Support Team or from external professionals. Additionally, within the experimental group, social care practice was reviewed and improvement programmes set going...
May 8, 2018: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/29733052/the-efficacy-and-efficiency-of-disability-management-in-job-retention-and-job-reintegration-a-systematic-review
#19
Marlies Lefever, Saskia Decuman, François Perl, Lutgart Braeckman, Dominique Van de Velde
BACKGROUND: Disability management (DM) is a systematic method to ensure job-retention and job-reintegration in competitive employment for individuals with a disability. There is evidence that 'returning to work' has a positive impact on the individual, the company and on the society. However, a clear overview of the efficacy and efficiency of the DM programs is scarce. OBJECTIVE: To systematically review the efficacy and efficiency of the disability management programs...
2018: Work: a Journal of Prevention, Assessment, and Rehabilitation
https://www.readbyqxmd.com/read/29703092/hearing-loss-and-work-participation-a-cross-sectional-study-in-norway
#20
Elisabeth Vigrestad Svinndal, Jorunn Solheim, Marit By Rise, Chris Jensen
OBJECTIVE: To study work participation of persons with hearing loss, and associations with hearing disabilities, self-reported workability, fatigue and work accommodation. DESIGN: Cross-sectional internet-based survey. STUDY SAMPLE: A total of 10,679 persons with hearing loss within working-age were invited to answer the survey, where 3330 answered (35.6%). RESULTS: Degree of hearing loss was associated with low workability, fatigue and work place accommodation, while sick leave was associated with fatigue...
April 27, 2018: International Journal of Audiology
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