Niina Eklund, Cäcilia Engels, Michael Neumann, Andrzej Strug, Esther van Enckevort, Ronny Baber, Margreet Bloemers, Annelies Debucquoy, Aad van der Lugt, Heimo Müller, Lauri Parkkonen, Philip R Quinlan, Esmond Urwin, Petr Holub, Kaisa Silander, Gabriele Anton
Introduction: The Minimum Information About BIobank Data Sharing (MIABIS) is a biobank-specific terminology enabling the sharing of biobank-related data for different purposes across a wide range of database implementations. After 4 years in use and with the first version of the individual-level MIABIS component Sample , Sample donor, and Event , it was necessary to revise the terminology, especially to include biobanks that work more in the data domain than with samples. Materials & Methods: Nine use-cases representing different types of biobanks, studies, and networks participated in the development work...
March 18, 2024: Biopreservation and Biobanking