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https://www.readbyqxmd.com/read/27874996/patients-self-perceived-burden-caregivers-burden-and-quality-of-life-for-als-patients-a-cross-sectional-study
#1
Dan Geng, RuWei Ou, XiaoHui Miao, LiHong Zhao, QianQian Wei, XuePing Chen, Yan Liang, HuiFang Shang, Rong Yang
OBJECTIVES: This study surveys the quality of life (QOL) of amyotrophic lateral sclerosis (ALS) patients and the factors associated with ALS patients' self-perceived burden (SPB) and their caregivers' burden. BACKGROUND: Burdens of patients with ALS and their caregivers in Chinese population are largely unknown. DESIGN: A cross-sectional study was conducted among 81 pairs of ALS patients and their caregivers. METHODS: ALS patients' SPB and caregivers' burden were assessed by the Self-Perceived Burden Scale (SPBS) and Zarit-Burden Interview (ZBI), respectively...
November 22, 2016: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/27870906/qualities-of-life-of-patients-with-psychotic-disorders-and-their-family-caregivers-comparison-between-hospitalised-and-community-based-treatment-in-beijing-china
#2
Lizheng Guan, Yingqiang Xiang, Xin Ma, Yongzhen Weng, Wannian Liang
BACKGROUND: Community healthcare in mainland China is still at an early stage. The qualities of life (QOLs) of patients with psychotic disorders undergoing rehabilitation in hospitals or in the community, as well as those of their caregivers, may differ from each other. OBJECTIVES: The study was performed to evaluate the QOL of patients with psychotic disorders and assess the differences in the QOLs between patients receiving care in diverse settings (hospital vs...
2016: PloS One
https://www.readbyqxmd.com/read/27865248/the-chinese-version-of-hospital-anxiety-and-depression-scale-psychometric-properties-in-chinese-cancer-patients-and-their-family-caregivers
#3
Qiuping Li, Yi Lin, Caiping Hu, Yinghua Xu, Huiya Zhou, Liping Yang, Yongyong Xu
PURPOSE: The Hospital Anxiety and Depression Scale (HADS) acts as one of the most frequently used self-reported measures in cancer practice. The evidence for construct validity of HADS, however, remains inconclusive. The objective of this study is to evaluate the psychometric properties of the Chinese version HADS (C-HADS) in terms of construct validity, internal consistency reliability, and concurrent validity in dyads of Chinese cancer patients and their family caregivers. METHODS: This was a cross-sectional study, conducted in multiple centers: one hospital in each of the seven different administrative regions in China from October 2014 to May 2015...
December 2016: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/27843319/effects-of-multiple-training-modalities-in-patients-with-alzheimer-s-disease-a-pilot-study
#4
Shu-Yu Tai, Chia-Ling Hsu, Shu-Wan Huang, Tzu-Chiao Ma, Wen-Chien Hsieh, Yuan-Han Yang
OBJECTIVE: This pilot study investigated the effects of multiple training modalities on cognition, neuropsychiatric symptoms, caregivers' burden, and quality of life in patients with Alzheimer's disease (AD). PATIENTS AND METHODS: This intervention study was conducted in 24 patients with AD aged ≥65 years with a Clinical Dementia Rating (CDR) score of 0.5-1. The patients were assigned to receive multiple training modalities (1 hour for each training: Tai Chi, calligraphy, and drawing) over a 6-week period in either the experimental group (n=14) or the comparison group (n=10)...
2016: Neuropsychiatric Disease and Treatment
https://www.readbyqxmd.com/read/27832415/household-financial-burden-of-phenylketonuria-and-its-impact-on-treatment-in-china-a-cross-sectional-study
#5
Lin Wang, Hui Zou, Fang Ye, Kundi Wang, Xiaowen Li, Zhihua Chen, Jie Chen, Bingjuan Han, Weimin Yu, Chun He, Ming Shen
BACKGROUND: Phenylketonuria (PKU) is a rare inborn disease, which, untreated, leading to severe neurobehavioral dysfunction. Considering its complexity, the management of PKU may bring a formidable economic burden to parents and caregivers. It is still unknown what the out-of-pocket expenses are for a patient with PKU in China. This paper explores the household financial burden of classical PKU and its impact on Chinese families in a quantitative manner for the first time. METHODS: A non-interventional and observational study was conducted at the China-Japan Friendship Hospital, one of the national centers for inherited metabolic disorders in China...
November 10, 2016: Journal of Inherited Metabolic Disease
https://www.readbyqxmd.com/read/27827331/culturally-specific-evaluation-of-inhaler-techniques-in-asthma
#6
Iraj Poureslami, Jessica Shum, Laura Nimmon, J Mark FitzGerald
BACKGROUND: Little work has been done on identifying the impact of educational materials developed by immigrant patients themselves, along with their caregivers and health professionals in terms of inhaler use technique. The purpose of this study was to evaluate understanding of physicians' instructions on asthma management and inhaler techniques in Punjabi and Chinese subjects using educational interventions in their native languages. METHODS: Eighty-seven subjects with asthma were randomly assigned to either one of 3 experimental groups (physician-led video, subject-generated community video, or both) or a control group (educational pamphlet)...
December 2016: Respiratory Care
https://www.readbyqxmd.com/read/27793197/self-administered-acupressure-for-symptom-management-among-chinese-family-caregivers-with-caregiver-stress-a-randomized-wait-list-controlled-trial
#7
Agnes Tiwari, Lixing Lao, Amy Xiao-Min Wang, Denise Shuk Ting Cheung, Mike Ka Pui So, Doris Sau Fung Yu, Terry Yat Sang Lum, Helina Yin King Yuk Fung, Jerry Wing Fai Yeung, Zhang-Jin Zhang
BACKGROUND: Caregiving can be stressful, potentially creating physical and psychological strain. Substantial evidence has shown that family caregivers suffer from significant health problems arising from the demands of caregiving. Although there are programs supporting caregivers, there is little evidence regarding their effectiveness. Acupressure is an ancient Chinese healing method designed to restore the flow of Qi (vital energy) by applying external pressure to acupoints. A randomized, wait-list controlled trial was developed to evaluate the effectiveness of a self-administered acupressure intervention on caregiver stress (primary objective) and stress-related symptoms of fatigue, insomnia, depression, and health-related quality of life (secondary objectives) in Chinese caregivers of older family members...
October 28, 2016: BMC Complementary and Alternative Medicine
https://www.readbyqxmd.com/read/27778318/oral-hygiene-care-for-critically-ill-patients-to-prevent-ventilator-associated-pneumonia
#8
REVIEW
Fang Hua, Huixu Xie, Helen V Worthington, Susan Furness, Qi Zhang, Chunjie Li
BACKGROUND: Ventilator-associated pneumonia (VAP) is defined as pneumonia developing in people who have received mechanical ventilation for at least 48 hours. VAP is a potentially serious complication in these patients who are already critically ill. Oral hygiene care (OHC), using either a mouthrinse, gel, toothbrush, or combination, together with aspiration of secretions, may reduce the risk of VAP in these patients. OBJECTIVES: To assess the effects of oral hygiene care on incidence of ventilator-associated pneumonia in critically ill patients receiving mechanical ventilation in hospital intensive care units (ICUs)...
October 25, 2016: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/27769737/parent-satisfaction-with-primary-repair-of-paediatric-cleft-lip-in-southwest-china
#9
P Ha, C Li, B Shi
The purpose of this study was to investigate the key factors in relation to parent satisfaction with the primary repair of paediatric cleft lip. One hundred and ninety-five children born with cleft lip and/or palate aged between 3 months and 1 year were recruited, along with their caregivers. All patients underwent primary cleft lip repair, and a telephone interview was held with their main caregivers at 3 months postoperative. The level of satisfaction with each item included in a simplified Cleft Evaluation Profile was ascertained and recorded...
October 18, 2016: International Journal of Oral and Maxillofacial Surgery
https://www.readbyqxmd.com/read/27759181/experiences-of-caring-for-a-sibling-with-schizophrenia-in-a-chinese-context-a-neglected-issue
#10
Cheng-I Yang, Min-Yun Hsieh, Li-Hung Lee, Shu-Ling Chen
Adult clients with schizophrenia are primarily cared for by their ageing parents. When the parents become ill or die, siblings are considered to be responsible for taking over the caregiving role. However, little is known about caregiving for a sibling with schizophrenia, and no studies have explored this phenomenon in an Asian context. The aim of the present descriptive, qualitative study was to understand the experiences of being the primary caregiver of a sibling with schizophrenia. Data were collected from 10 siblings of currently-hospitalized patients diagnosed with schizophrenia using semistructured, in-depth interviews...
October 19, 2016: International Journal of Mental Health Nursing
https://www.readbyqxmd.com/read/27713806/obese-chinese-primary-school-students-and-low-self-esteem-a-cross-sectional-study
#11
Zhang Xue-Yan, Li Dong-Mei, Xu Dan-Dan, Zhou Le-Shan
OBJECTIVES: The aim of this study was to examine several factors related to low self-esteem among obese Chinese primary-school students. METHODS: A cross-sectional study was conducted between June 2009 and June 2010. A total of 1,410 primary-school students (China grades 4 - 6) in Changsha city were divided into normal weight (n = 1,084), overweight (n = 211), and obese groups (n = 115) according to world health organization (WHO) growth standards for body mass index (BMI)...
August 2016: Iranian Journal of Pediatrics
https://www.readbyqxmd.com/read/27670236/psychotic-like-experiences-trauma-and-related-risk-factors-among-left-behind-children-in-china
#12
Meng Sun, Zhimin Xue, Wen Zhang, Rui Guo, Aimin Hu, Yihui Li, Tumbwene Elieza Mwansisya, Li Zhou, Chang Liu, Xudong Chen, Xiaojun Huang, Haojuan Tao, Jingcheng Shi, Zhening Liu, Robert Rosenheck
BACKGROUND: Large scale migration of workers due to wage differences across regions of China has separated millions of children, called "left-behind children" from their parents. Psychotic-like experiences (PLEs) are thought to be associated with childhood deprivation and may predict later psychotic disorders but have not been studied in this potentially vulnerable population. METHODS: Data were collected from representative samples of students in thirteen middle schools in the Xiangxi region and Changsha city of Hunan province (N=6623), of whom 1360 (21...
September 23, 2016: Schizophrenia Research
https://www.readbyqxmd.com/read/27641829/psychological-well-being-of-older-chinese-american-grandparents-caring-for-grandchildren
#13
Fengyan Tang, Ling Xu, Iris Chi, XinQi Dong
The rapid increase in grandparents caring for grandchildren has received growing attention, but little research has focused on Chinese-American grandparents and their caregiving experiences. Drawing on cross-sectional data from the Population Study of Chinese Elderly-a community-engaged, epidemiological study of Chinese-American adults aged 60 and older, the relationships between caregiving experiences and psychological well-being were examined. Of 2,365 older adults who answered the question about grandparent caregiving, 818 (35%) were designated as caregivers, spending an average of 12 hours a week on childcare...
November 2016: Journal of the American Geriatrics Society
https://www.readbyqxmd.com/read/27617565/perceptions-and-acceptability-of-receiving-sms-self-care-messages-in-chinese-patients-with-heart-failure-an-inpatient-survey
#14
Xiao Li, Chen Chen, Mo-Ying Qu, Zhi Li, Ying Xu, Xue-Fei Duan, Xi Chen, Qing Zhang, Gui-Ying You
BACKGROUND: Self-care is critical for postdischarge heart failure (HF) patients. Short message service (SMS) is a promising way to promote HF self-care. OBJECTIVE: The aim of this study is to investigate knowledge status in Chinese HF patients, as well as the acceptance of SMS as a way to improve self-care. METHODS: A survey using a self-developed questionnaire was conducted in patients with decompensated HF 2 days before discharge. RESULTS: A total of 540 patients completed the survey...
September 10, 2016: Journal of Cardiovascular Nursing
https://www.readbyqxmd.com/read/27609507/factors-associated-with-prolonged-length-of-stay-in-older-patients
#15
Hui Jin Toh, Zhen Yu Lim, Philip Yap, Terence Tang
INTRODUCTION: Prolonged stay in acute hospitals increases the risks of hospital-acquired infections in older patients, and disrupts patient flow and access to care due to bed shortages. Therefore, factors associated with prolonged length of stay (pLOS) among older patients (aged over 78 years) in a tertiary hospital were investigated to identify potentially modifiable risk factors that could help direct interventions to reduce pLOS. METHODS: During a three-month period from January 2013 to March 2013, 72 patients with pLOS (length of stay [LOS] ≥ 21 days) were identified and compared to 281 randomly selected control patients (LOS < 21 days) for demographic and clinical variables using univariate and multivariate logistic regression analyses...
September 9, 2016: Singapore Medical Journal
https://www.readbyqxmd.com/read/27604843/health-information-sources-for-different-types-of-information-used-by-chinese-patients-with-cancer-and-their-family-caregivers
#16
Bo Xie, Zhaohui Su, Yihao Liu, Mo Wang, Ming Zhang
CONTEXT: Little is known about the information sources of Chinese patients with cancer and their family caregivers, yet this knowledge is critical for providing patient-centred care. OBJECTIVE: To assess and compare the information sources used by Chinese patients with cancer and their family caregivers. DESIGN: The validated Health Information Wants Questionnaire (HIWQ) was translated and administered in March 2014. SETTING: The oncology department of a general hospital in south-west China...
September 7, 2016: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/27581655/effectiveness-of-a-smartphone-app-on-improving-immunization-of-children-in-rural-sichuan-province-china-a-cluster-randomized-controlled-trial
#17
Li Chen, Xiaozhen Du, Lin Zhang, Michelle Helena van Velthoven, Qiong Wu, Ruikan Yang, Ying Cao, Wei Wang, Lihui Xie, Xiuqin Rao, Yanfeng Zhang, Jeanne Catherine Koepsell
BACKGROUND: The aim of this study was to assess the effectiveness of an EPI smartphone application (EPI app) on improving vaccination coverage in rural Sichuan Province, China. METHODS: This matched-pair cluster randomized controlled study included 32 village doctors, matched in 16 pairs, and took place from 2013 to 2015. Village doctors in the intervention group used the EPI app and reminder text messages while village doctors in the control group used their usual procedures and text messages...
2016: BMC Public Health
https://www.readbyqxmd.com/read/27570761/the-association-between-family-and-parental-factors-and-obesity-among-children-in-nanchang-china
#18
Peng Zhang, Hongjiao Wu, Xiaojun Zhou, Yuanan Lu, Zhaokang Yuan, Justin B Moore, Jay E Maddock
BACKGROUND: With rapid economic development in China, traditional patterns of health behaviors are changing, concurrent with a rise in childhood obesity. While the home environment and parenting behaviors are modifiable factors that could be targeted for intervention, little is known about their relationship with children's health behaviors. Therefore, the purpose of this study was to investigate the relationship between obesity and home and parenting factors in Chinese children. METHODS: A cross-sectional survey was conducted in Nanchang, China in 2013 with caregivers (N = 470) of a child between the ages of 2 and 10 years...
2016: Frontiers in Public Health
https://www.readbyqxmd.com/read/27529264/the-attitudes-of-chinese-cancer-patients-and-family-caregivers-toward-advance-directives
#19
Qiu Zhang, Chuanbo Xie, Shanghang Xie, Qing Liu
Advance directives (ADs) have been legislated in many countries to protect patient autonomy regarding medical decisions at the end of life. China is facing a serious cancer burden and cancer patients' quality at the end of life should be a concern. However, limited studies have been conducted locally to gather information about attitudes toward ADs. The purpose of this study was to investigate the attitudes of Chinese cancer patients and family caregivers toward ADs and to explore the predictors that are associated with attitudes...
2016: International Journal of Environmental Research and Public Health
https://www.readbyqxmd.com/read/27501199/correlates-of-perceived-social-support-in-chinese-adult-child-caregivers-of-parent-stroke-survivors
#20
Yuqin Pan, Patricia S Jones
BACKGROUND: Prevalence of stroke and traditional filial responsibility involve adult children in caregiving to their parent stroke survivors in China. Support resources are insufficient because of the shrinking size of the family and the underdeveloped support system. PURPOSE: The aim of this study was to identify the correlates of perceived social support among adult child caregivers of parent stroke survivors in China. METHODS: A cross-sectional correlational design was used in this study...
August 5, 2016: Journal of Nursing Research: JNR
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