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https://www.readbyqxmd.com/read/28330476/factors-associated-with-the-quality-of-life-of-family-caregivers-for-leukemia-patients-in-china
#1
Hongjuan Yu, Limin Li, Chaojie Liu, Weidong Huang, Jin Zhou, Wenqi Fu, Yi Ma, Si Li, Yuying Chang, Guoxiang Liu, Qunhong Wu
BACKGROUND: The leukemia affects not only the quality of life (QOL) of patients with the disease but also that of their family caregivers (FCs). The research studies on QOL of FCs for leukemia patients are limited. This study aimed to evaluate the QOL of FCs for leukemia patients in Heilongjiang province, China. METHODS: A cross-sectional questionnaire survey was undertaken with 309 FCs for leukemia patients recruited from three hospitals in Heilongjiang province...
March 23, 2017: Health and Quality of Life Outcomes
https://www.readbyqxmd.com/read/28279395/resilience-model-for-parents-of-children-with-cancer-in-mainland-china-an-exploratory-study
#2
Zeng Jie Ye, Hong Zhong Qiu, Peng Fei Li, Mu Zi Liang, Shu Ni Wang, Xiao Ming Quan
PURPOSE: Parents have psychosocial functions that are critical for the entire family. Therefore, when their child is diagnosed with cancer, it is important that they exhibit resilience, which is the ability to preserve their emotional and physical well-being in the face of stress. The Resilience Model for Parents of Children with Cancer (RMP-CC) was developed to increase our understanding of how resilience is positively and negatively affected by protective and risk factors, respectively, in Chinese parents with children diagnosed with cancer...
April 2017: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/28276169/intergenerational-transfers-and-informal-care-for-disabled-elderly-persons-in-china-evidence-from-charls
#3
Xiaoting Liu, Bei Lu, Zhixin Feng
Aiming at 'ageing healthier and ageing better', a certain amount of high-quality informal care should be available for elderly persons with physical disability as formal care is barely accessible in China. The demographic transition and family structural changes have dramatically weakened traditional norms of filial piety and the structure of intergenerational transfers. This article employed nationwide representative data from the first wave (2011) of Chinese Health and Retirement Longitudinal Study (CHARLS) in order to identify the duration of informal care provision at home for frail elders (1122 in rural areas and 577 in urban areas, total 1699), measured in monthly hours, before estimating the associations between intergenerational transfers and the received time of informal care with Tobit Model analysis...
March 9, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/28274209/mental-health-literacy-about-schizophrenia-and-depression-a-survey-among-chinese-caregivers-of-patients-with-mental-disorder
#4
Shubao Chen, Qiuxia Wu, Chang Qi, Huiqiong Deng, Xuyi Wang, Haoyu He, Jiang Long, Yifan Xiong, Tieqiao Liu
OBJECTIVE: To investigate the knowledge of schizophrenia and depression among caregivers of patients with mental disorder in China. METHOD: A convenience sample of 402 caregivers at the Department of Psychiatry of a general hospital in China was investigated (response rate 95.7%), using vignettes based investigation methodology. RESULTS: The number of caregivers using the term "depression" to describe the depression vignette was 43.6%, which was significantly higher than the number of caregivers using the term "schizophrenia" to describe the schizophrenia one (28...
March 9, 2017: BMC Psychiatry
https://www.readbyqxmd.com/read/28258510/assessing-the-accuracy-of-the-modified-chinese-autism-spectrum-rating-scale-and-social-responsiveness-scale-for-screening-autism-spectrum-disorder-in-chinese-children
#5
Bingrui Zhou, Hao Zhou, Lijie Wu, Xiaobing Zou, Xuerong Luo, Eric Fombonne, Yi Wang, Weili Yan, Xiu Xu
The reported prevalence of autism spectrum disorder (ASD) has been increasing rapidly in many parts of the world. However, data on its prevalence in China are largely missing. Here, we assessed the suitability of the modified Chinese version of a newly-developed ASD screening tool, the Modified Chinese Autism Spectrum Rating Scales (MC-ASRS) in screening for ASD in Chinese children aged 6-12 years, through comparison with the Social Responsiveness Scale (SRS) that has been widely used for ASD screening. We recruited the parents/caregivers of 1588 typically-developing children and 190 children with ASD aged 6-12 years to complete the MC-ASRS and SRS, and evaluated the validity of both scales in discriminating children with ASD from those developing typically...
April 2017: Neuroscience Bulletin
https://www.readbyqxmd.com/read/28258501/construct-validity-of-the-17-item-benefit-finding-scale-in-chinese-cancer-patients-and-their-family-caregivers-a-cross-sectional-study
#6
Qiuping Li, Yi Lin, Yinghua Xu, Huiya Zhou, Liping Yang, Yongyong Xu
PURPOSE: With increasing interest in, and growing recognition of, the importance of evaluating benefit finding (BF) in cancer practice, the construct validity of a majority of the instruments that claim to assess BF, however, requires further validation. The purpose of the present study is to evaluate the construct validity of the 17-item Benefit Finding Scale (BFS) in Chinese cancer patient-caregiver dyads and to evaluate the association between the BFS patients and the BFS caregivers...
March 3, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28252843/chinese-family-caregivers-of-stroke-survivors-determinants-of-caregiving-burden-within-the-first-six-months
#7
Yanhong Han, Yilan Liu, Xuelin Zhang, Wilson Tam, Jing Mao, Violeta Lopez
AIMS AND OBJECTIVES: To describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over six-months. BACKGROUND: Socio-cultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers' burden and its determinants. DESIGN: This is a prospective longitudinal study. METHODS: A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6-month period at 1 to 2 days before discharge (T1), 3 weeks (T2), 3 months (T3), and 6 months (T4) post-discharge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index, and the Centre for Epidemiological Studies-Depression...
March 2, 2017: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/28219846/changing-caregiving-relationships-for-older-home-based-chinese-people-in-a-transitional-stage-trends-factors-and-policy-implications
#8
Lijuan Gu, Mark W Rosenberg, Juxin Zeng
BACKGROUND: In the transitional stage of socioeconomic development, the traditional practice of home-based care in China is being tested. The evolution and factors of home-based care utilization are the prerequisites for the formulation of a support policy. However, no extant research has studied home-based elder care on a national scale. AIM: This paper aims to examine changing caregiving relationships nationwide for home-based elderly individuals and investigate the changing factors of care utilization in a ten-year period, with special attention to the effects of "location" on care patterns...
May 2017: Archives of Gerontology and Geriatrics
https://www.readbyqxmd.com/read/28203332/status-and-determinants-of-motor-impairment-in-preschool-children-from-migrant-families-in-china
#9
Hua Jin, Jing Hua, Jianqiang Shen, Lijuan Feng, Guixiong Gu
BACKGROUND: Although poor health conditions and decreased developmental levels have been investigated in migrant children, no study in China has focused on these children's individual motor development. OBJECTIVES: This study aims to explore the prevalence of motor impairment in Chinese migrant children and to determine the contributory factors. PATIENTS AND METHODS: In this cross-sectional study, a structured questionnaire was administered to primary caregivers of preschool children aged 3 - 6 (n = 2,976) in ten kindergartens from two districts of Suzhou, China, to assess the children's home socioeconomic status and motor environment, that is, the presence of affordances for motor development...
October 2016: Iranian Journal of Pediatrics
https://www.readbyqxmd.com/read/28166478/a-caregiving-experience-in-a-singaporean-chinese-family
#10
See Mieng Tan
No abstract text is available yet for this article.
February 6, 2017: Journal of Social Work in End-of-life & Palliative Care
https://www.readbyqxmd.com/read/28157100/efficacy-and-safety-of-donepezil-in-chinese-patients-with-severe-alzheimer-s-disease-a-randomized-controlled-trial
#11
Jianping Jia, Cuibai Wei, Longfei Jia, Yi Tang, Junhua Liang, Aihong Zhou, Fangyu Li, Lu Shi, Rachelle S Doody
BACKGROUND: Donepezil has been used worldwide for the treatment of severe Alzheimer's disease (AD). Whether it is also appropriate for severe AD in Chinese patients remains unknown. OBJECTIVE: To determine whether donepezil is effective and tolerable for Chinese patients with severe AD. METHODS: The present study was a 24-week, multicenter, double-blind, randomized, placebo-controlled, parallel-group study conducted at 38 investigational hospitals in China...
2017: Journal of Alzheimer's Disease: JAD
https://www.readbyqxmd.com/read/28135117/an-11-year-study-of-home-hospice-service-trends-in-singapore-from-2000-to-2010
#12
Benedict John Ho, Ramaswamy Akhileswaran, Grace Su Yin Pang, Gerald Choon Huat Koh
BACKGROUND: Hospice care is most appropriate when a patient no longer benefits from curative treatment and has limited life expectancy. These patients may suffer from any type of life-limiting illness, including end-stage cancer, end-stage heart disease, end-stage renal failure, AIDS, and Alzheimer's disease, among other illnesses. Patients are managed on their pain and symptoms and home hospice care manages these patients in the comfort of their own home, enabling patients to spend their last days with dignity and have a good quality of life...
January 30, 2017: Journal of Palliative Medicine
https://www.readbyqxmd.com/read/28122529/monetary-costs-of-alzheimer-s-disease-in-china-protocol-for-a-cluster-randomised-observational-study
#13
RANDOMIZED CONTROLLED TRIAL
Fangyu Li, Shuoqi Chen, Cuibai Wei, Jianping Jia
BACKGROUND: Alzheimer's disease (AD) is the most common type of dementia. International multilateral cost-of-illness (COI) studies have revealed that the cost of treating this disease is huge, which places a significant burden on patients' families and their healthcare systems. However, no such studies have been conducted in China. This study estimates the monetary costs of patients with AD in mainland China. METHODS: This study planned to start in October 2015 and to finish in March 2016...
January 25, 2017: BMC Neurology
https://www.readbyqxmd.com/read/28090700/the-mandarin-chinese-version-of-the-beach-centre-family-quality-of-life-scale-development-and-psychometric-properties-in-taiwanese-families-of-children-with-developmental-delay
#14
S-J Chiu, P-T Chen, Y-T Chou, L-Y Chien
BACKGROUND: Early intervention (EI) practitioners provide individualised family-centred services to enhance the quality of life (QOL) of families of children with developmental delay (DD). Family QOL (FQOL) could be an important outcome indictor for EI, but there is no measurement tool for FQOL in Mandarin Chinese. The purpose of this study was to translate the Beach Centre FQOL Scale (BCFQOL) into Mandarin Chinese and to examine the psychometric properties of the scale in families of children with DD...
January 16, 2017: Journal of Intellectual Disability Research: JIDR
https://www.readbyqxmd.com/read/28057424/sundown-syndrome-sleep-quality-and-walking-among-community-dwelling-people-with-alzheimer-disease
#15
Yen-Hua Shih, Ming-Chyi Pai, Ying-Che Huang, Jing-Jy Wang
PURPOSES: Sundown syndrome and sleep disturbances cause people with Alzheimer disease (PAD) and caregivers suffering. Studies have indicated that physical exercise could have a positive impact on sundown syndrome, yet no research has ever explored the relationship between walking and sundown syndrome. The aims of this study were to examine the relationship between sundown syndrome and sleep quality, and determine whether the severity of dementia, sleep quality, and weekly duration of walking influenced sundown syndrome, and to assess differences in sundown syndrome and sleep quality in relation to the accompanying walker and weekly duration of walking among people with Alzheimer disease living in the community...
January 2, 2017: Journal of the American Medical Directors Association
https://www.readbyqxmd.com/read/28027858/culture-and-diet-among-chinese-american-children-aged-9-13%C3%A2-years-a-qualitative-study
#16
Cassandra S Diep, Randall Leung, Debbe I Thompson, Beverly J Gor, Tom Baranowski
OBJECTIVE: To examine Chinese American children's behaviors, food preferences, and cultural influences on their diet. DESIGN: Qualitative individual interviews using constructs from the proposed model of dietary acculturation. SETTING: Community centers and Chinese schools in Houston, TX. PARTICIPANTS: Twenty-five Chinese American children aged 9-13 years. PHENOMENON OF INTEREST: Diet, favorite restaurants, and parents' cooking and grocery shopping habits...
December 24, 2016: Journal of Nutrition Education and Behavior
https://www.readbyqxmd.com/read/28001334/coping-strategies-of-taiwanese-children-with-autism-spectrum-disorders
#17
Wei-Chih Chin, Kuo-Yu Chao, Hsueh-Ling Chang, Hsin-Mei Li, Sue-Hsien Chen
AIMS AND OBJECTIVES: To explore and describe the coping experiences of children with autism spectrum disorders in Taiwan. BACKGROUND: Children with autism spectrum disorders are faced with daily social and living challenges, which can cause stress. Chinese culture emphasises discipline and obedience, which may influence coping strategies of children with autism spectrum disorders in Taiwan. DESIGN: This qualitative study employed an exploratory descriptive design...
December 21, 2016: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/27968890/patient-physician-trust-in-china-a-workshop-summary
#18
Cheris S C Chan, Yu Cheng, Yali Cong, Zhizheng Du, Shanlian Hu, Amanda Kerrigan, Arthur Kleinman, Mengfeng Li, Benjamin Liebman, Yonghui Ma, Jing-Bao Nie, Daniel F C Tsai, Duujian Tsai, Joseph D Tucker, Lijie Wang, Bonnie Wong, William C W Wong, Zeping Xiao, Juncai Xu, Yunxiang Yan, Yang Yang, Daqing Zhang, Mingjie Zhao, Jianfeng Zhu, Wei Zhu
BACKGROUND: Patient-physician mistrust has become deeply embedded in medical clinics within a wide variety of settings, including many in China. The purpose of this research was to develop a series of actionable policy recommendations to rebuild patient-physician trust in China. METHODS: Our interdisciplinary group included experts in medicine, public health, philosophy, ethics, law, regulation, China studies, anthropology, sociology, and communications. Recommendations were identified by team members and presented at a two-day workshop at the Harvard Center, Shanghai, China...
October 2016: Lancet
https://www.readbyqxmd.com/read/27968876/persistent-effects-of-parental-migration-on-psychosocial-wellbeing-of-left-behind-children-in-two-chinese-provinces-a-cross-sectional-survey
#19
Chenyue Zhao, Feng Wang, Leah Li, Xudong Zhou, Therese Hesketh
BACKGROUND: Lengthy separation from migrant parents raises concerns for the wellbeing of 60 million left-behind children (LBC) in rural China. This study aimed to investigate the effect of current and previous parental migration on the psychosocial wellbeing of left-behind children, and the mitigating or exacerbating factors in family care and support. METHODS: Children were recruited from schools by random stratified sampling in rural Zhejiang and Guizhou provinces where out-migration was high...
October 2016: Lancet
https://www.readbyqxmd.com/read/27968862/breastfeeding-rates-in-china-a-cross-sectional-survey-and-estimate-of-benefits-of-improvement
#20
Zhenyu Yang, Jianqiang Lai, Dongmei Yu, Yifan Duan, Xuehong Pang, Shan Jiang, Ye Bi, Jie Wang, Liyun Zhao, Shian Yin
BACKGROUND: Breastfeeding is the gold standard for infant and young child feeding. Increased rates of breastfeeding could reduce morbidity and mortality for both children and mothers. In addition, breastfed children could have better cognitive development, persisting through later life. However, quantitative data are scarce on the effect of improved breastfeeding rates in China. The objectives of this study were to assess current breastfeeding rates and to analyse the potential effect of improved breastfeeding rates in China...
October 2016: Lancet
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