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https://www.readbyqxmd.com/read/28072590/incorporating-the-patient-s-perspective-in-outcomes-research
#1
Betty Hsiao, Liana Fraenkel
PURPOSE OF REVIEW: Incorporation of the patients' perspective in clinical research is critical to ensure that outcomes measured reflect those, which matter most to patients. This review summarizes recent efforts to include the patients' perspective in the development of outcome measures and the importance of encouraging patient participation in decision-making and self-management. RECENT FINDINGS: Since the inclusion of fatigue as a patient-endorsed core outcome measure in rheumatoid arthritis (RA) trials, OMERACT has been instrumental in advocating for patient involvement in the development of core domains and instruments; current endeavors include cultivating an understanding of remission through the eyes of patients and gaining a sense of how to measure features of pain and 'stiffness' deemed as important to patients...
January 7, 2017: Current Opinion in Rheumatology
https://www.readbyqxmd.com/read/28069150/symptoms-and-self-care-following-pancreaticoduodenectomy-perspectives-from-patients-and-healthcare-professionals-foundation-for-an-interactive-ict-application
#2
Tina Gustavell, Kay Sundberg, Catharina Frank, Yvonne Wengström, Maria Browall, Ralf Segersvärd, Ann Langius-Eklöf
PURPOSE: Poor prognosis and a problematic recovery period after pancreaticoduodenectomy means that patients may benefit from early detection of symptoms and support for self-management. Interactive Information and Communication Technology tools can be used for this purpose, but the content needs to be relevant to patients as well as healthcare professionals. To facilitate development of the content of an application for this purpose, the aim of this study was to explore common symptoms and self-care in the first six months after pancreaticoduodenectomy, as identified by patients and healthcare professionals...
February 2017: European Journal of Oncology Nursing: the Official Journal of European Oncology Nursing Society
https://www.readbyqxmd.com/read/28062329/managing-symptoms-enhancing-patients-self-management-knowledge-and-skills-for-surgical-recovery
#3
REVIEW
Jan Odom-Forren, Susan Wesmiller
OBJECTIVES: To review postoperative symptoms experienced by patients following surgery for cancer and discuss focused, evidenced-based methods to teach the patient acute pain and symptom management to include both pharmacological and non-pharmacological strategies. DATA SOURCES: Peer reviewed articles and national guidelines. CONCLUSION: Although significant advances have been made in providing effective acute pain control, pain remains a serious consequence after cancer surgery...
January 3, 2017: Seminars in Oncology Nursing
https://www.readbyqxmd.com/read/28058570/self-management-education-interventions-for-patients-with-cancer-a-systematic-review
#4
REVIEW
Doris Howell, Tamara Harth, Judy Brown, Cathy Bennett, Susan Boyko
PURPOSE: This systematic review was intended to identify the effectiveness and inclusion of essential components of self-management education interventions to support patients with cancer in developing the skills needed for effective self-management of their disease and the acute or immediate, long-term, and late harmful effects of treatments. METHODS: Self-management education interventions were included if they were randomized controlled trials (RCTs) containing at least one of the eight core elements outlined by the research team...
January 5, 2017: Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer
https://www.readbyqxmd.com/read/28027042/effectiveness-of-occupational-therapy-interventions-for-adults-with-rheumatoid-arthritis-a-systematic-review
#5
Patricia Siegel, Melissa Tencza, Beverly Apodaca, Janet L Poole
OBJECTIVE: We reviewed the efficacy of occupational therapy-related interventions for adults with rheumatoid arthritis. METHOD: We examined 51 Level I studies (19 physical activity, 32 psychoeducational) published 2000-2014 and identified from five databases. Interventions that focused solely on the upper or lower extremities were not included. RESULTS: Findings related to key outcomes (activities of daily living, ability, pain, fatigue, depression, self-efficacy, disease symptoms) are presented...
January 2017: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://www.readbyqxmd.com/read/28027041/effectiveness-of-occupational-therapy-interventions-for-adults-with-fibromyalgia-a-systematic-review
#6
Janet L Poole, Patricia Siegel
OBJECTIVE: This systematic review addresses the effectiveness of occupational therapy-related interventions for adults with fibromyalgia. METHOD: We examined the literature published between January 2000 and June 2014. A total of 322 abstracts from five databases were reviewed. Forty-two Level I studies met the inclusion criteria. Studies were evaluated primarily with regard to the following outcomes: daily activities, pain, depressive symptoms, fatigue, and sleep...
January 2017: American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association
https://www.readbyqxmd.com/read/28025359/how-do-patients-with-chronic-pain-benefit-from-a-peer-supported-pain-self-management-intervention-a-qualitative-investigation
#7
Marianne S Matthias, Marina Kukla, Alan B McGuire, Matthew J Bair
OBJECTIVE: Peer support is a novel and under-studied approach to the management of chronic pain. This study's purpose was to uncover the elements of a peer-supported self-management intervention that are perceived by participants as essential to achieving positive changes. DESIGN: Qualitative, semi-structured interviews. METHODS: Veterans and veteran peer coaches who participated in a pilot study of peer support Improving Pain using Peer-Reinforced Self-Management Strategies (IMPPRESS, NCT01748227) took part in qualitative semi-structured interviews after completing the 4-month intervention...
December 2016: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
https://www.readbyqxmd.com/read/28025355/does-a-brief-educational-session-produce-positive-change-for-individuals-waiting-for-tertiary-chronic-pain-services
#8
Anne L J Burke, Linley A Denson, Jane L Mathias
OBJECTIVES: To examine: 1) whether a single brief pre-clinic educational session improved the well-being and quality of life of individuals entering the wait-list for a tertiary chronic pain (CP) service; and 2) the impact of waiting for services on these outcomes. METHODS: Participants were 346 adults, with basic English skills and non-urgent triage codes, who were recruited on referral to a tertiary Australian metropolitan CP unit. Participants were randomized across two conditions: "treatment as usual" (normal wait-list) and "experimental" (normal wait-list plus a 3-hour CP educational session)...
December 2016: Pain Medicine: the Official Journal of the American Academy of Pain Medicine
https://www.readbyqxmd.com/read/28008004/adolescent-and-parent-treatment-goals-in-an-internet-delivered-chronic-pain-self-management-program-does-agreement-of-treatment-goals-matter
#9
Emma Fisher, Maggie H Bromberg, Gabrielle Tai, Tonya M Palermo
OBJECTIVE : To assess whether adolescent-parent agreement on treatment goals as part of an Internet-delivered cognitive-behavioral pain intervention was associated with adolescent outcomes. METHODS : 122 adolescent-parent dyads selected two treatment goals. Pain intensity and pain-related disability were assessed at pre-treatment, post-treatment, and 6- and 12-month follow-ups. We compared dyads who had goal agreement versus no agreement. RESULTS : 74 dyads (61%) agreed on one or more treatment goals, most commonly going to school, sports, and sleep...
December 21, 2016: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/28003177/substitution-of-usual-perioperative-care-by-ehealth-to-enhance-postoperative-recovery-in-patients-undergoing-general-surgical-or-gynecological-procedures-study-protocol-of-a-randomized-controlled-trial
#10
Eva van der Meij, Judith Af Huirne, Esther Va Bouwsma, Johanna M van Dongen, Caroline B Terwee, Peter M van de Ven, Chantal M den Bakker, Suzan van der Meij, W Marchien van Baal, Wouter Kg Leclercq, Peggy Maj Geomini, Esther Cj Consten, Steven E Schraffordt Koops, Paul Jm van Kesteren, Hein Bac Stockmann, A Dorien Ten Cate, Paul Hp Davids, Petrus C Scholten, Baukje van den Heuvel, Frederieke G Schaafsma, Wilhelmus Jhj Meijerink, H Jaap Bonjer, Johannes R Anema
BACKGROUND: Due to the strong reduction in the length of hospital stays in the last decade, the period of in-hospital postoperative care is limited. After discharge from the hospital, guidance and monitoring on recovery and resumption of (work) activities are usually not provided. As a consequence, return to normal activities and work after surgery is hampered, leading to a lower quality of life and higher costs due to productivity loss and increased health care consumption. OBJECTIVE: With this study we aim to evaluate whether an eHealth care program can improve perioperative health care in patients undergoing commonly applied abdominal surgical procedures, leading to accelerated recovery and to a reduction in costs in comparison to usual care...
December 21, 2016: JMIR Research Protocols
https://www.readbyqxmd.com/read/28001268/the-evolving-role-of-physical-therapists-in-the-long-term-management-of-chronic-low-back-pain-longitudinal-care-using-assisted-self-management-strategies
#11
Paul F Beattie, Sheri P Silfies, Max Jordon
Background: Longitudinal studies have shown that the symptoms of chronic low back pain (CLBP) will follow an episodic trajectory characterized by periods of high and low pain intensity that can persist for many years. There is a growing belief that the contemporary approach of limiting physical therapy to short, but intense courses of treatment for (CLBP) may be sub-optimal because these limited "windows" of clinical care are not congruent with the natural history of this condition. Recent research has suggested that people with CLBP undergo substantial, and individualized long-term variations in the neural processing of nociception over time...
November 2016: Brazilian Journal of Physical Therapy
https://www.readbyqxmd.com/read/27999063/antibiotic-prescribing-in-patients-with-self-reported-sore-throat
#12
Nishchay Mehta, Anne Schilder, Ellen Fragaszy, Hannah E R Evans, Oliver Dukes, Logan Manikam, Paul Little, Sarah C Smith, Andrew Hayward
OBJECTIVES: To investigate the predictors of general practitioner (GP) consultation and antibiotic use in those developing sore throat. METHODS: We conducted a prospective population-based cohort study on 4461 participants in two rounds (2010-11) from 1897 households. RESULTS: Participants reported 2193 sore throat illnesses, giving a community sore throat incidence of 1.57/ person-year. 13% of sore throat illnesses led to a GP consultation and 56% of these consultations led to antibiotic use...
December 20, 2016: Journal of Antimicrobial Chemotherapy
https://www.readbyqxmd.com/read/27993899/barriers-to-self-management-of-chronic-pain-in-primary-care-a-qualitative-focus-group-study
#13
Katy Gordon, Helen Rice, Nick Allcock, Pamela Bell, Martin Dunbar, Steve Gilbert, Heather Wallace
BACKGROUND: Supported self-management is a recommended intervention for chronic pain. Effective self-management should enable an individual to reduce the impact of pain on their everyday life. Clinical guidelines suggest primary care services have a role to play in supporting self-management of chronic pain. AIM: To examine the opinions of primary care healthcare professionals (HCPs) and people with chronic pain and their carers, in order to identify possible barriers to the facilitation and adoption of self-management...
December 19, 2016: British Journal of General Practice: the Journal of the Royal College of General Practitioners
https://www.readbyqxmd.com/read/27979754/design-of-the-integrative-medical-group-visits-randomized-control-trial-for-underserved-patients-with-chronic-pain-and-depression
#14
Paula Gardiner, Anna Sophia Lestoquoy, Katherine Gergen-Barnett, Brian Penti, Laura F White, Robert Saper, Lisa Fredman, Sarah Stillman, N Lily Negash, Pamela Adelstein, Ivy Brackup, Christine Farrell-Riley, Karim Kabbara, Lance Laird, Suzanne Mitchell, Jane M Liebschutz
BACKGROUND: Given the public health crisis of opioid overprescribing for pain, there is a need for evidence-based non pharmacological treatment options that effectively reduce pain and depression. We aim to examine the effectiveness of the Integrative Medical Group Visits (IMGV) model in reducing chronic pain and depressive symptoms, as well as increasing pain self-management. METHODS: This paper details the study design and implementation of an ongoing randomized controlled trial of the IMGV model as compared to primary care visits...
December 12, 2016: Contemporary Clinical Trials
https://www.readbyqxmd.com/read/27965887/evaluating-acupuncture-and-standard-care-for-pregnant-women-with-back-pain-the-ease-back-pilot-randomised-controlled-trial-isrctn49955124
#15
Annette Bishop, Reuben Ogollah, Bernadette Bartlam, Panos Barlas, Melanie A Holden, Khaled M Ismail, Sue Jowett, Martyn Lewis, Alison Lloyd, Christine Kettle, Jesse Kigozi, Nadine E Foster
BACKGROUND: Low back pain (LBP) and pelvic girdle pain (PGP) during pregnancy are common and often accepted as a 'normal' part of pregnancy. Many women receive little in the way of treatment, and yet pain interferes with sleep, daily activities and work and leads to increasing requests for induction of labour or elective caesarean section. The aim of this study was to assess the feasibility of a full RCT evaluating the benefit of acupuncture for pregnancy-related back pain. METHODS: This study is a single-centre, three-arm pilot RCT in one large maternity unit and associated antenatal and physiotherapy clinics...
2016: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/27965852/testing-the-feasibility-of-a-knowledge-translation-intervention-designed-to-improve-chiropractic-care-for-adults-with-neck-pain-disorders-study-protocol-for-a-pilot-cluster-randomized-controlled-trial
#16
Prakash Dhopte, Sara Ahmed, Nancy Mayo, Simon French, Jeffrey A Quon, André Bussières
BACKGROUND: Neck pain in adults is common and a leading cause of physical disability. Recently, a guideline was developed for the management of non-specific neck pain (NSNP) with an aim to improve the quality of the delivery of chiropractic care. One key guideline recommendation is to undertake multimodal care for patients with NSNP. The aim of this pilot study is to determine the feasibility of implementing a multifaceted knowledge translation intervention by promoting the use of multimodal care by chiropractors managing patients with NSNP...
2016: Pilot and Feasibility Studies
https://www.readbyqxmd.com/read/27938361/evaluation-of-the-efficacy-of-a-short-course-personalized-self-management-and-intensive-spa-therapy-intervention-as-active-prevention-of-musculoskeletal-disorders-of-the-upper-extremities-muska-a-research-protocol-for-a-randomized-controlled-trial
#17
Charlotte Lanhers, Bruno Pereira, Chloé Gay, Christian Hérisson, Christine Levyckyj, Arnaud Dupeyron, Emmanuel Coudeyre
BACKGROUND: Musculoskeletal disorders (MSDs) constitute a major occupational health problem in the working population, substantially impacting the quality of life of employees. They also cause considerable economic cost to the healthcare system, with, notably, the reimbursement of treatments and compensation for lost income. MSDs manifest as localized pain or functional difficulty in one or more anatomical areas, such as the cervical spine, shoulder, elbow, hand, and wrist. Although prevalence varies depending on the region considered and the method of assessment, a prevalence of 30% is found in different epidemiological studies...
December 9, 2016: BMC Musculoskeletal Disorders
https://www.readbyqxmd.com/read/27932895/are-patients-and-doctors-accounts-of-the-first-specialist-consultation-for-chronic-back-pain-in-agreement
#18
Kathy B White, John Lee, Amanda C de C Williams
INTRODUCTION: The first consultation at a specialist pain clinic is potentially a pivotal event in a patient's pain history, affecting treatment adherence and engagement with longer term self-management. What doctors communicate to patients about their chronic pain and how patients interpret doctors' messages and explanations in pain consultations are under-investigated, particularly in specialist care. Yet, patients value personalized information about their pain problem. PATIENTS AND METHODS: Sixteen patients in their first specialist pain clinic consultation and the doctors they consulted were interviewed shortly after the consultation...
2016: Journal of Pain Research
https://www.readbyqxmd.com/read/27928501/patient-prioritization-of-comorbid-chronic-conditions-in-the-veteran-population-implications-for-patient-centered-care
#19
Lorilei M Richardson, Jennifer N Hill, Bridget M Smith, Erica Bauer, Frances M Weaver, Howard S Gordon, Kevin T Stroupe, Timothy P Hogan
OBJECTIVE: Patients with comorbid chronic conditions may prioritize some conditions over others; however, our understanding of factors influencing those prioritizations is limited. In this study, we sought to identify and elaborate a range of factors that influence how and why patients with comorbid chronic conditions prioritize their conditions. METHODS: We conducted semi-structured, one-on-one interviews with 33 patients with comorbidities recruited from a single Veterans Health Administration Medical Center...
2016: SAGE Open Medicine
https://www.readbyqxmd.com/read/27919369/informing-the-development-of-an-internet-based-chronic-pain-self-management-program
#20
Amédé Gogovor, Regina Visca, Claudine Auger, Lucie Bouvrette-Leblanc, Iphigenia Symeonidis, Lise Poissant, Mark A Ware, Yoram Shir, Natacha Viens, Sara Ahmed
BACKGROUND: Self-management can optimize health outcomes for individuals with chronic pain (CP), an increasing fiscal and social burden in Canada. However, self-management is rarely integrated into the regular care (team activities and medical treatment) patients receive. Health information technology offers an opportunity to provide regular monitoring and exchange of information between patient and care team. OBJECTIVE: To identify information needs and gaps in chronic pain management as well as technology features to inform the development of an Internet-based self-management program...
January 2017: International Journal of Medical Informatics
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