Luke Harper, Nathalie Botto, Matthieu Peycelon, Jean-Luc Michel, Marc-David Leclair, Sarah Garnier, Pauline Clermidi, Alexis Arnaud, Anne Dariel, Eric Dobremez, Alice Faure, Laurent Fourcade, Nadia Boudaoud, Yann Chaussy, Laetitia Huiart, Valery Bocquet, Cyril Ferdynus, Frédérique Sauvat
INTRODUCTION: Childhood chronic diseases affect family functioning and well-being. The aim of this study was to measure the impact of caring for a child with PUV, and the factors that most impact the burden of care. PATIENTS AND METHOD: We gave a questionnaire on the familial impact of having a child with posterior urethral valves to all parents of a child included in the CIRCUP trial from 2015 onwards. The questionnaire included questions about the parents' demographics, health, professional, financial and marital status and how these evolved since the child's birth as well as the "impact on family scale" (IOFS), which gives a total score ranging from 15 (no impact) to 60 (maximum impact)...
2023: Frontiers in Pediatrics