keyword
MENU ▼
Read by QxMD icon Read
search

Pediatric quality life

keyword
https://www.readbyqxmd.com/read/29912762/oral-and-otorhinolaryngological-findings-in-adults-who-were-diagnosed-with-pediatric-onset-crohn-s-disease-a-controlled-study
#1
Anu Haaramo, Heikki Alapulli, Liisa Aine, Jetta Tuokkola, Ulla Saarnisto, Risto P Roine, Anne Pitkäranta, Kaija-Leena Kolho
BACKGROUND: Up to 50% of pediatric patients with Crohn's disease (CD) report oral manifestations, but less is known about their oral health when they become adults. GOALS: Our aim was to provide detailed descriptions of the presence of oral and otorhinolaryngological manifestations in patients with pediatric onset CD once they reached adulthood, to look for predisposing factors and to compare the findings to matched controls. STUDY: Adult patients diagnosed with CD in childhood at the Children's Hospital, University of Helsinki, Finland, after 2000 were invited for a follow-up appointment in 2016 and 24 were examined by a dentist and otorhinolaryngologist...
June 16, 2018: Journal of Clinical Gastroenterology
https://www.readbyqxmd.com/read/29912034/vestibular-rehabilitation-is-associated-with-visuovestibular-improvement-in-pediatric-concussion
#2
Eileen P Storey, Douglas J Wiebe, Bernadette A DʼAlonzo, Kim Nixon-Cave, Janet Jackson-Coty, Arlene M Goodman, Matthew F Grady, Christina L Master
BACKGROUND AND PURPOSE: Vision and vestibular-related deficits are common after concussion and are associated with prolonged recovery times, substantially impacting the quality of life for children. The utility of targeted vestibular rehabilitation for these deficits in children after concussion is unknown. The purpose of this study was to determine whether active vestibular rehabilitation is associated with an improvement in visuovestibular signs and symptoms in children with concussion...
July 2018: Journal of Neurologic Physical Therapy: JNPT
https://www.readbyqxmd.com/read/29910839/primary-and-secondary-caregiver-reports-of-quality-of-life-in-pediatric-asthma-are-they-comparable
#3
Robin S Everhart, Jessica L Greenlee, Marcia A Winter, Barbara H Fiese
Purpose: This study aimed to compare primary and secondary caregiver QOL within families of children with asthma and determine the potential importance of including secondary caregiver QOL in clinical and research settings. Methods: Participants included 118 families of children with asthma that had primary and secondary caregivers. Families completed measures in a single research session. Caregivers reported on QOL, psychological functioning, and family burden; children completed a measure of QOL...
June 2018: Applied Research in Quality of Life
https://www.readbyqxmd.com/read/29909229/functional-evaluation-of-bilateral-subtalar-arthroereisis-for-the-correction-of-flexible-flatfoot-in-children-1-year-follow-up
#4
Paolo Caravaggi, Giada Lullini, Lisa Berti, Sandro Giannini, Alberto Leardini
BACKGROUND: Flexible flatfoot (FFF) is a common alteration of the foot diagnosed in the pediatric population causing pain and decreased quality of life. Surgical treatment via arthroereisis of the subtalar joint can be recommended when non-invasive options do not result in sufficient pain relief. While clinical outcome of subtalar joint arthroereisis is generally positive, no functional evaluation has thus far been reported following surgery. RESEARCH QUESTION: The aim of this study was to assess the effects of two arthroereisis implants for the correction of bilateral FFF on foot and lower limb biomechanics during gait...
June 11, 2018: Gait & Posture
https://www.readbyqxmd.com/read/29905942/quality-of-life-in-patients-with-proton-treated-pediatric-medulloblastoma-results-of-a-prospective-assessment-with-5-year-follow-up
#5
Sophia C Kamran, Saveli I Goldberg, Karen A Kuhlthau, Miranda P Lawell, Elizabeth A Weyman, Sara L Gallotto, Clayton B Hess, Mary S Huang, Alison M Friedmann, Annah N Abrams, Shannon M MacDonald, Margaret B Pulsifer, Nancy J Tarbell, David H Ebb, Torunn I Yock
BACKGROUND: To the authors' knowledge, health-related quality of life (HRQOL) outcomes are not well described in patients with medulloblastoma. The use of proton radiotherapy (RT) may translate into an improved HRQOL. In the current study, the authors report long-term HRQOL in patients with proton-treated pediatric medulloblastoma. METHODS: The current study was a prospective cohort HRQOL study of patients with medulloblastoma who were treated with proton RT and enrolled between August 5, 2002, and October 8, 2015...
June 15, 2018: Cancer
https://www.readbyqxmd.com/read/29901909/oral-diseases-in-children-with-acute-lymphoblastic-leukemia-with-chemotherapy-treatment
#6
María Lilia Adriana Juárez-López, Marlen Nicolett Solano-Silva, Rodolfo Fragoso-Ríos, Francisco Murrieta-Pruneda
Background: Pediatric patients with acute lymphoblastic leukemia (ALL) usually develop oral manifestations due to the disease itself, as well as side effects of chemotherapy that severely affect their health and quality of life. The aim of this paperis to determine the prevalence of oral diseases in pediatric all patients with and without chemotherapy and its relation to the different phases of chemotherapy. Methods: A cross-sectional observational study was conducted in 103 pediatric patients with all between 3-15 years...
March 2018: Revista Médica del Instituto Mexicano del Seguro Social
https://www.readbyqxmd.com/read/29901560/health-status-and-health-related-quality-of-life-measurement-in-pediatric-cancer-clinical-trials-an-examination-of-the-dfci-00-01-acute-lymphoblastic-leukemia-protocol
#7
Charlene Rae, William Furlong, David Feeny, Rana Couchman, Lewis Silverman, Stephen Sallan, Caroline Laverdiere, Luis Clavell, Bruno Michon, Kara Kelly, Eric Larsen, Eleanor Pullenayegum, Uma Athale, Ronald Barr
Health-related quality of life (HRQL) improved progressively during therapy and beyond in children treated for acute lymphoblastic leukemia on the Dana-Farber Cancer Institute (DFCI) 95-01 protocol. This study aimed to validate that trajectory in a successor study (DFCI 00-01) and to compare the HRQL of patients in the 2 studies. Children aged above 5 years were assessed during each phase of treatment (N=4) and 2 years after completion of therapy. Health status and HRQL were measured using Health Utilities Index (HUI) instruments, HUI2 and HUI3...
June 12, 2018: Journal of Pediatric Hematology/oncology
https://www.readbyqxmd.com/read/29899786/posterior-quadrantic-dysplasia-mri-diagnosis-of-a-lesser-known-cause-of-pediatric-intractable-epilepsy
#8
Anjuna Reghunath, Rohini Gupta Ghasi, Abhimanyu Bhargava, Narinder Kumar Bhambri
Posterior quadrantic dysplasia (PQD) is a rare cause of pediatric intractable epilepsy. It is a sporadic cortical development malformation that involves the posterior three lobes of a single hemisphere and spares the frontal cortex. Very few cases have been reported in the literature, mostly as anecdotal reports or as a part of large series of refractory epilepsy. It is essential to know about this lesser known entity and differentiate it from other more common similar anomalies such as multilobar cortical dysplasia and hemimegalencephaly as new motor-sparing neurosurgical disconnective procedures have led to dramatically reduced mortality and morbidity rates, apart from gifting the affected children a better quality of life...
January 2018: Journal of Pediatric Neurosciences
https://www.readbyqxmd.com/read/29896269/beneficial-effects-of-dexmedetomidine-on-early-postoperative-cognitive-dysfunction-in-pediatric-patients-with-tonsillectomy
#9
Chuanlai Han, Rong Fu, Weifu Lei
According to clinical investigations, early postoperative cognitive dysfunction is the most common adverse event in pediatric patients after tonsillectomy. A previous study has indicated that dexmedetomidine (DEX) is an efficient drug for the treatment of postoperative cognitive dysfunction. However, the efficacy of DEX in alleviating early postoperative cognitive dysfunction in pediatric patients following tonsillectomy has remained elusive, which was therefore assessed in the present study. A total of 186 children presenting with cognitive dysfunction subsequent to tonsillectomy were recruited to analyze the efficacy of DEX...
July 2018: Experimental and Therapeutic Medicine
https://www.readbyqxmd.com/read/29896152/a-review-of-scales-to-evaluate-sleep-disturbances-in-movement-disorders
#10
REVIEW
Mónica M Kurtis, Roberta Balestrino, Carmen Rodriguez-Blazquez, Maria João Forjaz, Pablo Martinez-Martin
Patients with movement disorders have a high prevalence of sleep disturbances that can be classified as (1) nocturnal sleep symptoms, such as insomnia, nocturia, restless legs syndrome (RLS), periodic limb movements (PLM), obstructive sleep apnea (OSA), and REM sleep behavior disorder; and (2) diurnal problems that include excessive daytime sleepiness (EDS) and sleep attacks. The objective of this review is to provide a practical overview of the most relevant scales that assess these disturbances to guide the choice of the most useful instrument/s depending on the line of research or clinical focus...
2018: Frontiers in Neurology
https://www.readbyqxmd.com/read/29895662/acute-lymphoblastic-leukemia-in-adolescent-and-young-adults-treat-as-adults-or-as-children
#11
Nicolas Boissel, André Baruchel
Adolescent and young adult (AYA) patients with acute lymphoblastic leukemia (ALL) are recognized as a unique population with specific characteristics and needs. In adolescents aged 15-20 years old, the use of full pediatric protocols is supported by many comparative studies of pediatric and adult cooperative groups. In young adults, growing evidence suggests that pediatric-inspired or even fully pediatric approaches may also dramatically improve outcomes, leading to long-term survival rates of almost 70%, despite diminishing indications of hematopoietic stem cell transplantation...
June 12, 2018: Blood
https://www.readbyqxmd.com/read/29895509/usefulness-of-chromogenic-assays-for-potency-assignment-and-recovery-of-plasma-derived-fviii-and-fix-concentrates-or-their-recombinant-long-acting-therapeutic-equivalents-with-potential-application-in-treated-pediatric-hemophiliac-patients
#12
REVIEW
Jean Amiral, Jerard Seghatchian
On demand and prophylaxis usage of FVIII/ FIX concentrates for the therapeutic management of hemophilia has greatly changed quality of life, and healthy life span of affected patients. Availability of recombinant therapeutic FVIII and FIX products, and of their long-acting variants, further improves the treatment constraints, and progressively permits to hemophiliacs to have an almost normal way of life. Unlimited amounts of recombinant or engineered substitutive products become available, and open new avenues for extending the benefits of prophylaxis to all hemophiliac patients, not only in economically advanced territories, but also in emerging and developing countries, worldwide...
May 16, 2018: Transfusion and Apheresis Science
https://www.readbyqxmd.com/read/29894448/neurologic-outcomes-after-extracorporeal-membrane-oxygenation-a-systematic-review
#13
Katharine Boyle, Ryan Felling, Alvin Yiu, Wejdan Battarjee, Jamie McElrath Schwartz, Cynthia Salorio, Melania M Bembea
OBJECTIVES: The goal of this systematic review of the literature was to summarize neurologic outcomes following neonatal and pediatric extracorporeal membrane oxygenation. DATA SOURCES: We conducted electronic searches of PubMed, Scopus, Web of Science, CINAHL, Cochrane, and EMBASE. STUDY SELECTION: Inclusion criteria included publication dates 2000-2016, patient ages 0-18 years, and use of standardized measures to evaluate outcomes after extracorporeal membrane oxygenation...
June 11, 2018: Pediatric Critical Care Medicine
https://www.readbyqxmd.com/read/29893947/depression-and-quality-of-life-in-siblings-of-children-with-cancer-after-group-intervention-participation-a-randomized-control-trial
#14
Maru Barrera, Eshetu Atenafu, Paul C Nathan, Fiona Schulte, Kelly Hancock
Objective: The objective of this study was to (1) assess the effects of a group intervention called Siblings Coping Together on siblings' psychosocial adjustment compared with controls; (2) explore the potential moderating effect of siblings' gender; and (3) investigate whether the intervention was more effective for siblings with more depressive symptoms at baseline. Methods: This was a repeated measure, parallel randomized controlled trial (RCT) with two groups...
June 8, 2018: Journal of Pediatric Psychology
https://www.readbyqxmd.com/read/29893197/-schistosoma-mansoni-mass-drug-administration-regimens-and-their-effect-on-morbidity-among-schoolchildren-over-a-5-year-period-kenya-2010-2015
#15
Anita D Sircar, Pauline N M Mwinzi, Isaac O Onkanga, Ryan E Wiegand, Susan P Montgomery, W Evan Secor
Schistosomiasis control programs are designed to reduce morbidity by providing mass drug administration (MDA) of praziquantel to at-risk populations. We compared morbidity markers between two cohorts of Kenyan schoolchildren that initially had high prevalence of Schistosoma mansoni infections. One cohort ( N = 416 at year 1) received four rounds of annual MDA in a community-wide treatment (CWT) strategy. The other cohort ( N = 386 at year 1) received school-based treatment (SBT) every other year over the 4-year period...
June 11, 2018: American Journal of Tropical Medicine and Hygiene
https://www.readbyqxmd.com/read/29887168/objective-and-subjective-improvement-in-children-with-idiopathic-detrusor-overactivity-after-intravesical-botulinum-toxin-injection-a-preliminary-report
#16
Ghazi M Al Edwan, Hammam H Mansi, Omar Nabeeh M Atta, Mohammad M Shaath, Rawand Al Adwan, Waleed Mahafza, Kameel M Afram, Omar Ababneh, Deema Al Adwan, Muheilan M Muheilan
OBJECTIVE: The purpose of this study is to evaluate the effect of Intravesical Botulinum toxin injection on the symptoms and urodynamic parameters in pediatric patients with idiopathic overactive bladder (iOAB) refractory to medical treatment. MATERIALS AND METHODS: The study was designed as an open-label uncontrolled therapeutic clinical trial. The eligible patients who underwent Intravesical botulinum toxin injection were evaluated before treatment. The evaluation included a 7-day paper bladder diary to assess OAB symptoms (frequency, urgency urinary incontinence (UUI) and nocturnal enuresis (NE)), filling the Arabic International Consultation on Incontinence Questionnaire-Urinary Incontinence Short Form (ICIQ-UI short form), and conducting urodynamic study...
May 21, 2018: Journal of Pediatric Surgery
https://www.readbyqxmd.com/read/29886487/transition-of-care-from-childhood-to-adulthood-congenital-adrenal-hyperplasia
#17
Anne Bachelot
Deficiency of the 21-hydroxylase enzyme is the most common form of congenital adrenal hyperplasia (CAH), accounting for more than 95% of the cases. With the advent of newborn screening and hormone replacement therapy, most children with CAH survive into adulthood. Adolescents and adults with CAH experience a number of complications, including short stature, obesity, infertility, impaired bone mineral density, and reduced quality of life. Transition from pediatric to adult care and management of long-term complications are challenging for both patients and practitioners...
2018: Endocrine Development
https://www.readbyqxmd.com/read/29883657/lower-urinary-tract-dysfunction-and-associated-pons-volume-in-wolfram-syndrome
#18
Kyle O Rove, Gino J Vricella, Tamara Hershey, Muang H Thu, Heather M Lugar, Joel Vetter, Bess A Marshall, Paul F Austin
INTRODUCTION: Wolfram syndrome (WFS) is a neurodegenerative disorder characterized by childhood-onset diabetes mellitus, optic nerve atrophy, diabetes insipidus, hearing impairment and commonly bladder and bowel dysfunction. We hypothesize that there is an association between smaller pons, which contains the pontine micturition center, and abnormal lower urinary tract function. MATERIALS AND METHODS: Patients with genetically confirmed WFS attend an annual multidisciplinary research clinic...
June 5, 2018: Journal of Urology
https://www.readbyqxmd.com/read/29882304/primary-hyperoxaluria-orthodontic-management-in-a-pediatric-patient-a-case-report
#19
A P Cazzolla, K Zhurakivska, D Ciavarella, M G Lacaita, G Favia, N F Testa, G Marzo, V La Carbonara, G Troiano, L Lo Muzio
AIMS: The aim of this study is to report the case of the orthodontic treatment in a patient affected by primary hyperoxaluria type 1 and subjected to a combinate liver-kidney transplant. METHODS AND RESULTS: The 9-year patient was admitted to our department for the presence of facial dysmorphism. The patient was affected by primary hyperoxaluria type 1 and has undergone a combined liver-kidney transplantation. At the time of the visit, he was in treatment with immunosuppressive drugs and received a corticosteroid and an antibiotic therapy monthly...
June 8, 2018: Special Care in Dentistry
https://www.readbyqxmd.com/read/29881715/an-update-from-the-pediatric-proton-consortium-registry
#20
Clayton B Hess, Daniel J Indelicato, Arnold C Paulino, William F Hartsell, Christine E Hill-Kayser, Stephanie M Perkins, Anita Mahajan, Nadia N Laack, Ralph P Ermoian, Andrew L Chang, Suzanne L Wolden, Victor S Mangona, Young Kwok, John C Breneman, John P Perentesis, Sara L Gallotto, Elizabeth A Weyman, Benjamin V M Bajaj, Miranda P Lawell, Beow Y Yeap, Torunn I Yock
Background/objectives: The Pediatric Proton Consortium Registry (PPCR) was established to expedite proton outcomes research in the pediatric population requiring radiotherapy. Here, we introduce the PPCR as a resource to the oncology community and provide an overview of the data available for further study and collaboration. Design/methods: A multi-institutional registry of integrated clinical, dosimetric, radiographic, and patient-reported data for patients undergoing proton radiation therapy was conceived in May 2010...
2018: Frontiers in Oncology
keyword
keyword
103993
1
2
Fetch more papers »
Fetching more papers... Fetching...
Read by QxMD. Sign in or create an account to discover new knowledge that matter to you.
Remove bar
Read by QxMD icon Read
×

Search Tips

Use Boolean operators: AND/OR

diabetic AND foot
diabetes OR diabetic

Exclude a word using the 'minus' sign

Virchow -triad

Use Parentheses

water AND (cup OR glass)

Add an asterisk (*) at end of a word to include word stems

Neuro* will search for Neurology, Neuroscientist, Neurological, and so on

Use quotes to search for an exact phrase

"primary prevention of cancer"
(heart or cardiac or cardio*) AND arrest -"American Heart Association"