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https://www.readbyqxmd.com/read/29776002/the-chaos-of-hospitalisation-for-patients-with-critical-limb-ischaemia-approaching-major-amputation
#1
Susan Monaro, Sandra West, Jana Pinkova, Janice Gullick
AIMS AND OBJECTIVES: To illuminate the hospital experience for patients and families when major amputation has been advised for critical limb ischaemia (CLI). BACKGROUND: CLI creates significant burden to the health system and the family, particularly as the person with CLI approaches amputation. Major amputation is often offered as a late intervention for CLI in response to the marked deterioration of an ischaemic limb, and functional decline from reduced mobility, intractable pain, infection and/or toxaemia...
May 18, 2018: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/29772602/engagement-of-a-person-with-dementia-scale-establishing-content-validity-and-psychometric-properties
#2
Cindy Jones, Billy Sung, Wendy Moyle
AIM: To develop and psychometrically test the Engagement of a Person with Dementia Scale. BACKGROUND: It is important to study engagement in people with dementia when exploring the effectiveness of psychosocial interventions that can promote meaningful activity, stimulation and wellbeing, through an increase in positive emotions and an improvement in quality of life. The Engagement of a Person with Dementia Scale was developed based on current literature and previous research work on a video coding tool to ascertain the effect of psychosocial interventions on engagement in people with dementia...
May 17, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29771469/health-literacy-in-pressure-injury-findings-from-a-mixed-methods-study-of-community-based-patients-and-carers
#3
Lisa A Durrant, James Taylor, Helen Thompson, Kim Usher, Debra Jackson
The present study, drawn from a larger mixed-methods case study, provides insights into the health literacy of community-based patients with pressure injuries, and their carers, and critically analyzes the patient information resources available; crucial because health literacy is associated with patient care and outcomes for patients. Two datasets were used to better understand patient literacy in relation to pressure injury: (i) narratives from patients and carers; and (ii) analysis of patient education resources...
May 17, 2018: Nursing & Health Sciences
https://www.readbyqxmd.com/read/29770320/evaluation-of-a-residential-mental-health-recovery-service-in-north-queensland
#4
REVIEW
Marion Heyeres, Irina Kinchin, Elise Whatley, Lisa Brophy, Jon Jago, Thomas Wintzloff, Steve Morton, Vinitta Mosby, Narayan Gopalkrishnan, Komla Tsey
Background: Evidence shows that subacute mental health recovery occurs best when a person remains active within the community and fulfils meaningful and satisfying roles of their choosing. Several residential care services that incorporate these values have been established in Australia and overseas. Aims: This study describes (a) the development of an evaluation framework for a new subacute residential mental health recovery service in regional Australia and (b) reports on the formative evaluation outcomes...
2018: Frontiers in Public Health
https://www.readbyqxmd.com/read/29769257/optimum-hospice-at-home-services-for-end-of-life-care-protocol-of-a-mixed-methods-study-employing-realist-evaluation
#5
Claire Butler, Charlotte Brigden, Heather Gage, Peter Williams, Laura Holdsworth, Kay Greene, Bee Wee, Stephen Barclay, Patricia Wilson
INTRODUCTION: Hospice at home (HAH) services aim to enable patients to be cared for and die in their place of choice, if that is at home, and to achieve a 'good death'. There is a considerable range of HAH services operating in England. The published evidence focuses on evaluations of individual services which vary considerably, and there is a lack of consistency in terms of the outcome measures reported. The evidence, therefore, does not provide generalisable information, so the question 'What are the features of hospice at home service models that work, for whom, and under what circumstances?' remains unanswered...
May 16, 2018: BMJ Open
https://www.readbyqxmd.com/read/29764278/eating-well-living-well-and-weight-management-a-co-produced-semi-qualitative-study-of-barriers-and-facilitators-experienced-by-adults-with-intellectual-disabilities
#6
A J Doherty, S P Jones, U Chauhan, Jme Gibson
Adults with intellectual disabilities in England experience health inequalities. They are more likely than their non-disabled peers to be obese and at risk of serious medical conditions such as heart disease, stroke and type 2 diabetes. This semi-qualitative study engaged adults with intellectual disabilities in a co-production process to explore their perceived barriers and facilitators to eating well, living well and weight management. Nineteen participants with intellectual disabilities took part in four focus groups and one wider group discussion...
January 1, 2018: Journal of Intellectual Disabilities: JOID
https://www.readbyqxmd.com/read/29764174/healthy-end-of-life-project-help-a-progress-report-on-implementing-community-guidance-on-public-health-palliative-care-initiatives-in-australia
#7
Andrea Grindrod, Bruce Rumbold
BACKGROUND: Contemporary end of life care policies propose increasing community capacity by developing sustainable skills, policies, structures, and resources to support members of a community in caring for each other at the end of life. Public health approaches to palliative care provide strategies to bring this about. Practical implementation can however be ineffective, principally due to failures to grasp the systemic nature of public health interventions, or to ensure that programs are managed and owned by community members, not the professionals who may have introduced them...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29764172/developing-compassionate-communities-in-australia-through-collective-caregiving-a-qualitative-study-exploring-network-centred-care-and-the-role-of-the-end-of-life-sector
#8
Debbie Horsfall
BACKGROUND: The new public health palliative care movement calls for a move away from an individualised model of caregiving to a whole of community approach which will increase expectations on community carers. In order to avoid carer isolation, exploitation and potential burnout there is then a very real need to understand environments and relationships which support collective community caregiving. In this research we explored in-home caring networks to understand if and how network centred care supports carers of the dying while developing a whole of community approach...
April 2018: Annals of Palliative Medicine
https://www.readbyqxmd.com/read/29761582/blended-diets-for-gastrostomy-fed-children-and-young-people-a-scoping-review
#9
REVIEW
Anne Breaks, Christina Smith, Steven Bloch, Sally Morgan
BACKGROUND: The present review aimed to identify what is known about the use of blended diets in gastrostomy fed children and young people (i.e. children and young people refers to those who are aged up to 25 years with special educational needs or a disability in accordance with Part 3 of the Children and Family Act 2014; within the review, the word children is used for simplicity but encompasses young people too) and to identify gaps in the literature on this topic to inform future research and policy...
May 15, 2018: Journal of Human Nutrition and Dietetics: the Official Journal of the British Dietetic Association
https://www.readbyqxmd.com/read/29754408/the-impact-of-early-psychosocial-intervention-on-self-efficacy-of-care-recipient-carer-dyads-living-with-early-stage-dementia-a-mixed-methods-study
#10
G Stockwell-Smith, W Moyle, U Kellett
AIM: To evaluate the effect of a targeted community-based psychosocial intervention on self-efficacy outcomes for care recipient/carer dyads living with early-stage dementia. BACKGROUND: There is increasing interest in the role of self-efficacy and self-management structures in determining positive outcomes for people with dementia. The assumption is that care recipient/carer dyads who receive early support to identify and adjust to dementia related changes will cope better in the long-term...
May 13, 2018: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/29745042/managing-medications-for-individuals-living-with-a-dementia-evaluating-a-web-based-information-resource-for-informal-carers
#11
Frances Horne, Pippa Burns, Victoria Traynor, Robyn Gillespie, Judy Mullan, Amanda Baker, Lindsey Harrison, Khin Than Win
AIMS: The purpose of the study was to evaluate the usefulness of the "Managing Medicines for People with Dementia" (www.dementiameds.com) website for informal carers. BACKGROUND: The management of medications for individuals living with a dementia by informal carers is a neglected area of care. We know that informal carers find it difficult accessing reliable and comprehensive information about medications. We also know that the Internet is a contemporary and growing medium through which consumers access health information...
May 10, 2018: International Journal of Older People Nursing
https://www.readbyqxmd.com/read/29743729/the-value-of-a-year-s-general-education-for-reducing-the-symptoms-of-dementia
#12
Robert J Brent
We present a method for estimating the benefits of years of education for reducing dementia symptoms based on the cost savings that would accrue from continuing independent living rather than relying on formal or informal carers. Our method for estimating the benefits of education involves three steps: first taking a year of education and seeing how much this lowers dementia, second using this dementia reduction and estimating how much independent living is affected and third applying the change in caregiving costs associated with the independent living change...
2018: Applied Economics
https://www.readbyqxmd.com/read/29739780/research-priorities-in-health-communication-and-participation-international-survey-of-consumers-and-other-stakeholders
#13
Anneliese Synnot, Peter Bragge, Dianne Lowe, Jack S Nunn, Molly O'Sullivan, Lidia Horvat, Allison Tong, Debra Kay, Davina Ghersi, Steve McDonald, Naomi Poole, Noni Bourke, Natasha Lannin, Danny Vadasz, Sandy Oliver, Karen Carey, Sophie J Hill
OBJECTIVE: To identify research priorities of consumers and other stakeholders to inform Cochrane Reviews in 'health communication and participation' (including such concepts as patient experience, shared decision-making and health literacy). SETTING: International. PARTICIPANTS: We included anyone with an interest in health communication and participation. Up to 151 participants (18-80 years; 117 female) across 12 countries took part, including 48 consumers (patients, carers, consumer representatives) and 75 professionals (health professionals, policymakers, researchers) (plus 25 people who identified as both)...
May 8, 2018: BMJ Open
https://www.readbyqxmd.com/read/29739282/young-people-who-display-harmful-sexual-behaviors-and-their-families-a-qualitative-systematic-review-of-their-experiences-of-professional-interventions
#14
Fiona Campbell, Andrew Booth, Simon Hackett, Anthea Sutton
It is estimated that 30-50% of all childhood sexual abuse involves other young people as perpetrators. The treatment of harmful sexual behavior (HSB) in young people has evolved from interventions developed for use with adult perpetrators of sexual offenses. Increasingly, these approaches were not seen as appropriate for use with young people. The purpose of this qualitative systematic review was to establish what intervention components are viewed as acceptable or useful by young people and their families in order to inform the development of interventions for young people with HSB...
January 1, 2018: Trauma, Violence & Abuse
https://www.readbyqxmd.com/read/29732644/a-pharmacy-carer-support-service-obtaining-new-insight-into-carers-in-the-community
#15
Sara S McMillan, Michelle A King, Helen Stapleton, Adem Sav, Fiona Kelly, Amanda J Wheeler
OBJECTIVES: Unpaid carers have many and varied responsibilities in society, which can include medication management for the person they support. However, the potential for Australian community pharmacies to better assist carers is relatively unexplored. This mixed-methods study investigated the acceptability of a local carer support service by trained community pharmacy staff, including issues regarding the implementation and impact of this service. METHODS: Staff from 11 community pharmacies in South East Queensland, Australia, were trained to deliver a six-step carer support service between September 2016 and March 2017...
May 6, 2018: International Journal of Pharmacy Practice
https://www.readbyqxmd.com/read/29729535/the-emotional-and-behavioural-symptom-trajectories-of-children-in-long-term-out-of-home-care-in-an-english-local-authority
#16
Rachel M Hiller, Michelle C St Clair
The significant mental health needs of young people in out-of-home care has been well-documented. However, there is little empirical evidence on the timing or development of these difficulties, once these young people have been removed from the maltreatment-environment. Such information may provide useful clinical insight in to how problems develop and persist and whether intervention timings may allow for the prevention of later mental health problems. The current service-data study explored the emotional and behavioural symptom trajectories of 207 young people under the long-term care of a local authority in the South West of England, over their first five years in the care system...
May 1, 2018: Child Abuse & Neglect
https://www.readbyqxmd.com/read/29728097/understanding-the-ups-and-downs-of-living-well-the-voices-of-people-experiencing-early-mental-health-recovery
#17
Nicola Hancock, Jennifer Smith-Merry, Glenda Jessup, Sarah Wayland, Allison Kokany
BACKGROUND: The aim of this study was to better understand early-stage mental health recovery experiences of people living with severe and persistent mental illness and complex needs. METHODS: Semi-structured, in-depth interviews were conducted with 13 people engaged in an Australian program specifically designed for people facing complex barriers to their recovery. Interview data were analysed thematically using constant comparative methods. RESULTS: Participants described engaging with seven interconnecting aspects of early recovery: (1) engaging with the challenge of recovery; (2) struggling for a secure and stable footing; (3) grieving for what was and what could have been; (4) seeking and finding hope; (5) navigating complex relationships; (6) connecting with formal and informal support, and finally, (7) juggling a complexity of health issues...
May 4, 2018: BMC Psychiatry
https://www.readbyqxmd.com/read/29726625/sharing-information-about-diagnosis-and-outcome-of-first-episode-psychosis-in-patients-presenting-to-early-intervention-services
#18
Saeed Farooq, Debra J Green, Swaran P Singh
AIM: First-episode psychosis (FEP) can be a serious and debilitating disease, but there is limited literature on how to inform patients and carers about its diagnosis and outcome. We aimed to examine the attitudes, practices and views of clinicians working in Early Intervention Service about sharing information on diagnosis and outcome of FEP. METHODS: A 26-item questionnaire was sent electronically to clinical staff who have been involved in the discussion of FEP diagnosis in Early Intervention Services in the West Midlands, UK...
May 4, 2018: Early Intervention in Psychiatry
https://www.readbyqxmd.com/read/29725927/how-to-establish-a-successful-bowel-management-programme-in-children-a-tertiary-paediatric-centre-experience
#19
Ann M Costigan, Stephanie Orr, Abdulrahman E Alshafei, Brice A Antao
BACKGROUND: Bowel management is a term used to describe a medical approach to the management of faecal incontinence. AIMS: To present the outcomes of an individualised bowel management programme developed by a tertiary paediatric centre and evaluate contributory factors for successful bowel management in children. METHODS: A retrospective review of children attending a bowel management clinic in a tertiary centre in Dublin, Ireland, over 5 years (2010-2015)...
May 3, 2018: Irish Journal of Medical Science
https://www.readbyqxmd.com/read/29704916/social-exclusion-in-adult-informal-carers-a-systematic-narrative-review-of-the-experiences-of-informal-carers-of-people-with-dementia-and-mental-illness
#20
REVIEW
Nan Greenwood, Gillian Mezey, Raymond Smith
Social exclusion has a negative impact on quality of life. People living with dementia or mental health disorders as well as informal carers have been separately described as socially excluded. The objective of this systematic narrative review was to examine the extent to which social exclusion experienced by adult informal carers of people living with dementia or severe mental health disorders has been identified and described in research literature. It synthesised qualitative and quantitative evidence and included the perspectives of carers themselves and of professionals...
June 2018: Maturitas
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