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https://www.readbyqxmd.com/read/28919021/developing-the-tissue-viability-seating-guidelines
#1
Melanie Stephens, Carol Bartley, Ria Betteridge, Ray Samuriwo
BACKGROUND: Costs for the prevention and management of pressure ulcers have increased significantly with limited published advice from health and social care organisations on seating and preventing pressure ulcers. At the request of the UK Tissue Viability Society the aim of the publication was to develop a practical guide for people, carers and health and social care professionals on how the research and evidence base on pressure ulcer prevention and management can be applied to those who remain seated for extended periods of time...
September 13, 2017: Journal of Tissue Viability
https://www.readbyqxmd.com/read/28915904/tiga-cub-manualised-psychoanalytic-child-psychotherapy-versus-treatment-as-usual-for-children-aged-5-11-years-with-treatment-resistant-conduct-disorders-and-their-primary-carers-study-protocol-for-a-randomised-controlled-feasibility-trial
#2
Elizabeth Edginton, Rebecca Walwyn, Kayleigh Burton, Robert Cicero, Liz Graham, Sadie Reed, Sandy Tubeuf, Maureen Twiddy, Alex Wright-Hughes, Lynda Ellis, Dot Evans, Tom Hughes, Nick Midgley, Paul Wallis, David Cottrell
BACKGROUND: The National Institute for Health and Care Excellence (NICE) recommends evidence-based parenting programmes as a first-line intervention for conduct disorders (CD) in children aged 5-11 years. As these are not effective in 25-33% of cases, NICE has requested research into second-line interventions. Child and Adolescent Psychotherapists (CAPTs) address highly complex problems where first-line treatments have failed and there have been small-scale studies of Psychoanalytic Child Psychotherapy (PCP) for CD...
September 15, 2017: Trials
https://www.readbyqxmd.com/read/28906549/developing-a-protocol-to-identify-and-prioritise-research-questions-for-psoriasis-a-james-lind-alliance-priority-setting-partnership
#3
R Majeed-Ariss, M McPhee, C Bundy, C E M Griffiths, H Young
BACKGROUND: Psoriasis affects over two million people in the UK. It confers a significant psychological and social impact on individuals and an associated high economic cost to the National Health Service. There are many unanswered questions about psoriasis. OBJECTIVES: 1. To develop a protocol in order to work with patients, families, carers and healthcare professionals to identify psoriasis uncertainties. 2. To agree by consensus a top ten list of psoriasis uncertainties...
September 14, 2017: British Journal of Dermatology
https://www.readbyqxmd.com/read/28905485/public-expenditure-costs-of-carers-leaving-employment-in-england-2015-2016
#4
Linda Pickard, Derek King, Nicola Brimblecombe, Martin Knapp
In the context of global population ageing, the reconciliation of employment and unpaid caring is becoming an important social issue. The estimation of the public expenditure costs of carers leaving employment is a valuable measure that is of considerable interest to policy makers. In 2012, the Personal Social Services Research Unit estimated that the public expenditure costs of unpaid carers leaving employment in England were approximately £1.3 billion a year, based on the costs of Carer's Allowance and lost tax revenues on forgone incomes...
September 14, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/28898740/transition-from-children-s-to-adult-services-for-young-adults-with-life-limiting-conditions-a-realist-review-of-the-literature
#5
REVIEW
Helen Kerr, Jayne Price, Honor Nicholl, Peter O'Halloran
BACKGROUND: Improvements in care and treatment have led to more young adults with life-limiting conditions living beyond childhood, which means they must make the transition from children's to adult services. This has proved a challenging process for both young adults and service providers, with complex transition interventions interacting in unpredictable ways with local contexts. OBJECTIVES: To explain how intervention processes interact with contextual factors to help transition from children's to adult services for young adults with life-limiting conditions...
June 23, 2017: International Journal of Nursing Studies
https://www.readbyqxmd.com/read/28891356/benefits-and-burdens-family-caregivers-experiences-of-assistive-technology-at-in-everyday-life-with-persons-with-young-onset-dementia-yod
#6
Torhild Holthe, Rita Jentoft, Cathrine Arntzen, Kirsten Thorsen
BACKGROUND: People with dementia and their family caregivers may benefit from assistive technology (AT), but knowledge is scarce about family carers' (FC) experiences and involvement in the use of AT in everyday life. AIM: To examine the FC roles and experiences with AT as means of supporting people with young onset-dementia (YOD). METHOD: Qualitative interview study with follow-up design. Repeated semi-structured interviews were conducted with 13 FC of people with YOD, participating in an ongoing intervention study investigating the families' use and experiences of AT in everyday life...
September 11, 2017: Disability and Rehabilitation. Assistive Technology
https://www.readbyqxmd.com/read/28890797/defining-patient-centricity-with-patients-for-patients-and-caregivers-a-collaborative-endeavour
#7
Guy Yeoman, Patricia Furlong, Michael Seres, Helena Binder, Helena Chung, Vincenzo Garzya, Rachel Rm Jones
BACKGROUND: Patient engagement is an essential aspect in the research/development of biopharmaceutical products and disease management. Improving the lives of patients requires a deep understanding of their medical conditions, experiences, needs and priorities. However, a consistent definition of patient centricity is lacking. A series of initiatives was conducted to define patient centricity and its important principles impacting the biopharmaceutical industry. METHODS: Interviews, questionnaires and literature reviews were conducted involving key stakeholders to initially identify issues of importance to patients, healthcare providers and payers...
April 2017: BMJ Innovations
https://www.readbyqxmd.com/read/28890585/ageing-and-elderly-care-in-the-arab-region-policy-challenges-and-opportunities
#8
Shereen Hussein, Mohamed Ismail
Populations are expected to age rapidly in the Arab countries during the coming few decades. However, the current evidence base indicates that many countries in the region are not paying attention to this demographic phenomenon. This is a particular concern as longevity is often accompanied by many years of ill health and disability and most of the countries in the region continue to rely on the family as the primary source of elder care. While the family, and particularly women, are expected to provide increasing support for longer, they are faced by a set of socio-demographic changes that may hinder their ability to provide such care...
2017: Ageing International
https://www.readbyqxmd.com/read/28884353/a-prospective-longitudinal-investigation-of-the-dis-continuity-of-mental-health-difficulties-between-mid-to-late-childhood-and-the-predictive-role-of-familial-factors
#9
Cliodhna O'Connor, Udo Reulbach, Blanaid Gavin, Fiona McNicholas
Understanding individual variation in the continuity of youth mental health difficulties is critical for identifying the factors that promote recovery or chronicity. This study establishes the proportion of children showing psychopathology at 9 years, whose pathology had either remitted or persisted at 13. It describes the socio-demographic and clinical profiles of these groups, and examines the factors in 9-year-olds' familial environments that predict longitudinal remission vs. persistence of psychopathology...
September 7, 2017: European Child & Adolescent Psychiatry
https://www.readbyqxmd.com/read/28883746/clinical-impact-of-early-diagnosis-of-autism-on-the-prognosis-and-parent-child-relationships
#10
REVIEW
Jennifer Harrison Elder, Consuelo Maun Kreider, Susan N Brasher, Margaret Ansell
Autism spectrum disorder (ASD) refers to a lifelong condition that usually appears in late infancy or early childhood, and is characterized by social and communication deficits that impede optimal functioning. Despite widespread research and greater public awareness, ASD has an unclear etiology and no known cure, making it difficult to acquire accurate and timely diagnoses. In addition, once an ASD diagnosis is made, parents find it challenging to navigate the healthcare system and determine which interventions are most effective and appropriate for their child...
2017: Psychology Research and Behavior Management
https://www.readbyqxmd.com/read/28882139/the-influence-of-institutional-discourses-on-the-work-of-informal-carers-an-institutional-ethnography-from-the-perspective-of-informal-carers
#11
Guro Wisth Øydgard
BACKGROUND: The growing numbers of seniors worldwide and the need for support and services that follow from a higher standard of living have led to an increased focus on scarce benefits and limited human resources. At the same time, many western countries have had to make welfare cuts to balance budgets. This has brought the contributions of informal carers to the fore. Thus far, the focus has generally been on the need for the informal carers to receive information and support; to enable them to contribute...
September 7, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28881038/experience-of-the-waiting-area-as-perceived-by-haemodialysis-patients-and-family-carers
#12
Yoonsoo Kim, Miyoung Kim, Pratibha Bhandari, Sujin Choi
AIM: To identify the meaning of the waiting area based on the experiences of haemodialysis patients and their carers and to develop an optimal social environment for meaningful nursing care. BACKGROUND: Haemodialysis patients require treatment three times a week and they and their carers spend much of their time in waiting areas, where they experience a unique culture. Limited qualitative research has focused on the culture of the waiting area among haemodialysis patients in South Korea...
September 7, 2017: Journal of Advanced Nursing
https://www.readbyqxmd.com/read/28879828/potential-of-telepresence-robots-to-enhance-social-connectedness-in-older-adults-with-dementia-an-integrative-review-of-feasibility
#13
Wendy Moyle, Urska Arnautovska, Tamara Ownsworth, Cindy Jones
BACKGROUND: Socially assistive robots are increasingly used as a therapeutic tool for people with dementia, as a means to improve quality of life through social connection. This paper presents a mixed-method integrative review of telepresence robots used to improve social connection of people with dementia by enabling real-time communication with their carers. METHODS: A systematic search of Medline, ProQuest, PubMed, Scopus, Web of Science, CINAHL, EMBASE, and the Cochrane library was conducted to gather available evidence on the use of telepresence robots, specifically videoconferencing, to improve social connectedness, in people with dementia...
September 7, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28879243/development-and-testing-of-a-cognitive-behavioral-therapy-resource-for-children-s-dental-anxiety
#14
J Porritt, H Rodd, A Morgan, C Williams, E Gupta, J Kirby, C Creswell, T Newton, K Stevens, S Baker, S Prasad, Z Marshman
Cognitive Behavioral Therapy (CBT) is an evidence-based treatment for dental anxiety; however, access to therapy is limited. The current study aimed to develop a self-help CBT resource for reducing dental anxiety in children, and to assess the feasibility of conducting a trial to evaluate the treatment efficacy and cost-effectiveness of such an intervention. A mixed methods design was employed. Within phase 1, a qualitative "person-based" approach informed the development of the self-help CBT resource. This also employed guidelines for the development and evaluation of complex interventions...
January 2017: JDR Clinical and Translational Research
https://www.readbyqxmd.com/read/28877842/improving-health-literacy-about-dementia-among-older-chinese-and-vietnamese-australians
#15
Betty Haralambous, Paulene Mackell, Xiaoping Lin, Marcia Fearn, Briony Dow
The number of older people in the population is increasing faster than for any other age group. This population growth, while positive, is associated with increasing incidence of chronic and progressive diseases such as dementia. This requires older people to navigate services that may not be designed to meet their needs. This issue can be further amplified in culturally and linguistically diverse populations who often have limited English language proficiency and limited knowledge of diseases such as dementia...
September 7, 2017: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/28875738/an-evaluation-of-discharge-documentation-for-people-with-dementia-discharged-home-from-hospital-a-cross-sectional-pilot-study
#16
Ashley Kable, Dimity Pond, Carolyn Hullick, Lynnette Chenoweth, Anne Duggan, John Attia, Christopher Oldmeadow
This study evaluated discharge documentation for people with dementia who were discharged home, against expected discharge criteria and determined relationships between compliance scores and outcomes. This cross-sectional study audited discharge documentation and conducted a post discharge survey of carers. There were 73 eligible discharges and clinically significant documentation deficits for people with dementia included: risk assessments of confusion (48%), falls and pressure injury (56%); provision of medication dose-decision aids (53%), provision of contact information for patient support groups (6%) and advance care planning (9%)...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28874150/what-are-families-most-grateful-for-after-receiving-palliative-care-content-analysis-of-written-documents-received-a-chance-to-improve-the-quality-of-care
#17
María Aparicio, Carlos Centeno, José Miguel Carrasco, Antonio Barbosa, María Arantzamendi
BACKGROUND: Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers undergoing bereavement of a palliative care home service in order to identify factors of quality of care. METHODS: Qualitative exploratory study based on documentary analysis...
September 6, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28871796/alzheimers-disease-and-caregiving-a-meta-analytic-review-comparing-the-mental-health-of-primary-carers-to-controls
#18
Mandy Ma, Diana Dorstyn, Lynn Ward, Shaun Prentice
OBJECTIVES: To quantitatively review the literature comparing depressed mood, anxiety and psychological distress in caregivers (CGs) of older adults with Alzheimer's disease (AD) with non-caregivers (NCGs) Methods: Eighteen independent studies comparing AD CGs (N = 2378) with NCGs (N = 70,035) were evaluated in accordance with the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. Standardised mean differences (Hedges' g) with associated 95% confidence intervals and p-values were calculated using a random-effects model...
September 5, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28871622/-heartfailurematters-org-an-educational-website-for-patients-and-carers-from-the-heart-failure-association-of-the-european-society-of-cardiology-objectives-use-and-future-directions
#19
Kim P Wagenaar, Frans H Rutten, Leonie Klompstra, Yusuf Bhana, Floor Sieverink, Frank Ruschitzka, Petar M Seferovic, Mitja Lainscak, Massimo F Piepoli, Berna D L Broekhuizen, Anna Strömberg, Tiny Jaarsma, Arno W Hoes, Kenneth Dickstein
AIMS: In 2007, the Heart Failure Association of the European Society of Cardiology (ESC) launched the information website heartfailurematters.org (HFM site) with the aim of creating a practical tool through which to provide advice and guidelines for living with heart failure to patients, their carers, health care professionals and the general public worldwide. The website is managed by the ESC at the European Heart House and is currently available in nine languages. The aim of this study is to describe the background, objectives, use, lessons learned and future directions of the HFM site...
September 4, 2017: European Journal of Heart Failure
https://www.readbyqxmd.com/read/28868574/racial-minority-group-interest-in-direct-to-consumer-genetic-testing-findings-from-the-pgen-study
#20
Latrice Landry, Daiva Elena Nielsen, Deanna Alexis Carere, J Scott Roberts, Robert C Green
There is little information regarding direct-to-consumer (DTC) personal genetic testing (PGT) in non-White racial minorities. Using a web-based survey, we compared the pretest interests and attitudes toward DTC-PGT of racial minority and White DTC-PGT customers of 23andMe and Pathway Genomics using chi-square tests and multinomial regression. Data were available for 1487 participants (1389 White, 44 Black, and 54 Asian). Survey responses were similar across racial groups, although a greater proportion of Blacks compared to Whites reported being "very interested" in genetic information related to traits (91...
September 4, 2017: Journal of Community Genetics
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