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https://www.readbyqxmd.com/read/28205149/making-implicit-assumptions-explicit-in-the-costing-of-informal-care-the-case-of-head-and-neck-cancer-in-ireland
#1
Paul Hanly, Rebecca Maguire, Myles Balfe, Eleanor O'Sullivan, Linda Sharp
BACKGROUND: From a health service perspective, informal care is often viewed as a potentially cost-effective way of transferring costs out of the formal healthcare sector. However, informal care is not a free resource. OBJECTIVE: Our objective was to assess the impact of alternative valuation methods and key assumptions on the cost of informal care. METHODS: Informal carers who assisted in the care of a head and neck cancer survivor for at least 1 year were sent a postal questionnaire during January-June 2014 requesting information on time spent on caring tasks in the month prior to the survey...
February 15, 2017: PharmacoEconomics
https://www.readbyqxmd.com/read/28203067/silent-strain-of-caregiving-exploring-the-best-predictors-of-distress-in-family-carers-of-geriatric-patients
#2
Katarzyna Bień-Barkowska, Halina Doroszkiewicz, Barbara Bień
OBJECTIVES: The aim of this article was to identify the best predictors of distress suffered by family carers (FCs) of geriatric patients. METHODS: A cross-sectional study of 100 FC-geriatric patient dyads was conducted. The negative impact of care (NIoC) subscale of the COPE index was dichotomized to identify lower stress (score of ≤15 on the scale) and higher stress (score of ≥16 on the scale) exerted on FCs by the process of providing care. The set of explanatory variables comprised a wide range of sociodemographic and care-related attributes, including patient-related results from comprehensive geriatric assessments and disease profiles...
2017: Clinical Interventions in Aging
https://www.readbyqxmd.com/read/28196475/nutrition-and-dementia-care-developing-an-evidence-based-model-for-nutritional-care-in-nursing-homes
#3
Jane L Murphy, Joanne Holmes, Cindy Brooks
BACKGROUND: There is a growing volume of research to offer improvements in nutritional care for people with dementia living in nursing homes. Whilst a number of interventions have been identified to support food and drink intake, there has been no systematic research to understand the factors for improving nutritional care from the perspectives of all those delivering care in nursing homes. The aim of this study was to develop a research informed model for understanding the complex nutritional problems associated with eating and drinking for people with dementia...
February 14, 2017: BMC Geriatrics
https://www.readbyqxmd.com/read/28190370/variations-in-the-cost-of-formal-and-informal-health-care-for-patients-with-advanced-chronic-disease-and-refractory-breathlessness-a-cross-sectional-secondary-analysis
#4
Mendwas D Dzingina, Charles C Reilly, Claudia Bausewein, Caroline J Jolley, John Moxham, Paul McCrone, Irene J Higginson, Deokhee Yi
BACKGROUND: Refractory breathlessness in advanced chronic disease leads to high levels of disability, anxiety and social isolation. These result in high health-resource use, although this is not quantified. AIMS: To measure the cost of care for patients with advanced disease and refractory breathlessness and to identify factors associated with high costs. DESIGN: A cross-sectional secondary analysis of data from a randomised controlled trial...
February 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28176208/needs-perceived-support-and-hospital-readmissions-in-patients-with-severe-mental-illness
#5
Jose Guzman-Parra, Berta Moreno-Küstner, Fabio Rivas, Mercedes Alba-Vallejo, Javier Hernandez-Pedrosa, Fermin Mayoral-Cleries
People with severe mental illness have multiple and complex needs that often are not addressed. The purpose of this study was to analyse needs and support perceived and the relationship with hospital readmission. We assessed 100 patients with severe mental illness at discharge from an acute inpatient unit in terms of needs (Camberwell Assessment of Needs), clinical status (The Brief Psychiatric Rating Scale), and social functioning (Personal and Social Performance); we also followed up these patients for 1 year...
February 7, 2017: Community Mental Health Journal
https://www.readbyqxmd.com/read/28174225/supporting-shared-decision-making-for-older-people-with-multiple-health-and-social-care-needs-a-protocol-for-a-realist-synthesis-to-inform-integrated-care-models
#6
Frances Bunn, Claire Goodman, Jill Manthorpe, Marie-Anne Durand, Isabel Hodkinson, Greta Rait, Paul Millac, Sue L Davies, Bridget Russell, Patricia Wilson
INTRODUCTION: Including the patient or user perspective is a central organising principle of integrated care. Moreover, there is increasing recognition of the importance of strengthening relationships among patients, carers and practitioners, particularly for individuals receiving substantial health and care support, such as those with long-term or multiple conditions. The overall aims of this synthesis are to provide a context-relevant understanding of how models to facilitate shared decision-making (SDM) might work for older people with multiple health and care needs, and how they might be applied to integrated care models...
February 7, 2017: BMJ Open
https://www.readbyqxmd.com/read/28169822/-dying-well-seen-in-the-light-of-self-transcendence-and-transition-160-two-theories-of-care-helpful-to-nurses
#7
Pauline Laporte, Nicolas Vonarx
<ce:para>Accompanying a dying person up to and at the actual moment of death is a duty that often leaves carers at a loss. We shall show how far theoretical nursing knowledge can help practitioners who accompany the end of life by applying two theories of care : Reed’s theory of self-transcendence and Meleis’s theory of transition. Our interpretation of the theory of self-transcendence designates three points of reference in the concept of dying well. The first relates to the overtures prompted by the vulnerability that the context of dying inspires...
July 5, 2016: Recherche en Soins Infirmiers
https://www.readbyqxmd.com/read/28151831/the-nourishing-role-exploratory-qualitative-research-revealing-unmet-support-needs-in-family-carers-of-patients-with-advanced-cancer-and-eating-problems
#8
Jane B Hopkinson
BACKGROUND: Family carers of patients with advanced cancer living at home have an important role in providing the patient's food and drink. Little attention has been paid to the support needs, particularly of the nutrition needs, of family carers. OBJECTIVE: The aim of this study was to report support needs of family carers of patients with advanced cancer and eating problems. METHODS: The research is an inductive secondary analysis of baseline interview data from an exploratory trial conducted in the south of England...
February 2, 2017: Cancer Nursing
https://www.readbyqxmd.com/read/28144284/balancing-health-care-needs-in-a-changing-context-nursing-highlights-from-the-2016-european-oncology-nursing-society-congress-eons10-17-18-october-2016-dublin-ireland
#9
Danuta Lichosik, Rosario Caruso
European cancer nurses have to face many challenges as a result of the rapidly changing economic and political context in which balancing health care needs has become strategic for healthcare delivery. Currently, cancer nurses must overcome many obstacles arising from clinical, organisational, and educational issues. Within this scenario, the European Oncology Nursing Society (EONS) shaped its tenth congress programme to boost discussion and reflections, to share experiences and research, and to see how cancer nurses try to anticipate and embrace changes...
2017: Ecancermedicalscience
https://www.readbyqxmd.com/read/28130665/parent-s-use-of-the-internet-in-the-search-for-healthcare-information-and-subsequent-impact-on-the-doctor-patient-relationship
#10
S Harvey, A Memon, R Khan, F Yasin
BACKGROUND: The Internet is an unavoidable source of healthcare information. This information, both reliable and unreliable, has previously been shown to influence carer's decisions. AIMS: Our aim was to evaluate this information seeking behavior among parents and its subsequent potential impact on the doctor-patient relationship. METHOD: We undertook a cross-sectional questionnaire-based survey of paediatric outpatients. Enrollment took place over 4 weeks in March 2015...
January 27, 2017: Irish Journal of Medical Science
https://www.readbyqxmd.com/read/28124971/people-with-alzheimer-s-disease-and-their-spouse-caregivers-differences-in-perceptions-of-sexual-satisfaction
#11
Briony Dow, Sue Malta
Older informal caregivers aged 65+ years account for 34% of all carers in the USA (Family Caregivers Alliance, 2016), 22% in England and Wales (Carers UK, 2015), and 24% in Australia (Deloitte Access Economics, 2015). For many older carers, this means looking after their spouse or intimate partner who in many cases has dementia (Donnellan et al., 2015). As the incidence of dementia increases, the need to understand the impact of caring on these intimate relationships becomes more vital, so the experiences of spousal caregivers can be anticipated, validated, and supported...
February 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28124387/-shadowing-as-a-management-strategy-for-chemotherapy-outpatient-primary-support-persons
#12
Heather McKenzie, Kate White, Lillian Hayes, Scott Fitzpatrick, Keith Cox, Jo River
Despite growing numbers of patients with cancer receiving chemotherapy in outpatient settings and the corresponding increase in care demands on family and close friends, little is known about the experiences of those informal carers supporting people with cancer during their chemotherapy trajectories. Using an interpretivist theoretical framework, this study explored the experiences of primary support persons of chemotherapy outpatients through in-depth interviews with 17 participants nominated as their primary support persons by people receiving chemotherapy at a large tertiary hospital in Australia...
January 25, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28122614/clinical-decision-making-in-the-recognition-of-dying-a-qualitative-interview-study
#13
Paul Taylor, Dawn Dowding, Miriam Johnson
BACKGROUND: Recognising dying is an essential clinical skill for general and palliative care professionals alike. Despite the high importance, both identification and good clinical care of the dying patient remains extremely difficult and often controversial in clinical practice. This study aimed to answer the question: "What factors influence medical and nursing staff when recognising dying in end-stage cancer and heart failure patients?" METHODS: This study used a descriptive approach to decision-making theory...
January 25, 2017: BMC Palliative Care
https://www.readbyqxmd.com/read/28120168/self-care-of-long-term-conditions-patients-perspectives-and-their-limited-use-of-community-pharmacies
#14
Oladapo J Ogunbayo, Ellen I Schafheutle, Christopher Cutts, Peter R Noyce
Background Self-care support is an 'inseparable' component of quality healthcare for long-term conditions (LTCs). Evidence of how patients view and use community pharmacy (CP) to engage in self-care of LTCs is limited. Objective To explore patients' perspectives of engaging in self-care and use of CP for self-care support. Setting England and Scotland. Method Qualitative design employing semi-structured interviews. LTCs patients were recruited via general practitioners (GPs) and CPs. Interviews were conducted between May 2013 and June 2014; they were audio-recorded, transcribed verbatim and analysed thematically...
January 24, 2017: International Journal of Clinical Pharmacy
https://www.readbyqxmd.com/read/28111987/communities-of-clinical-practice-in-action-doing-whatever-it-takes
#15
Jessica Young, Chrystal Jaye, Tony Egan, Martyn Williamson, Anna Askerud, Peter Radue, Maree Penese
Burgeoning numbers of patients with long-term conditions requiring complex care have placed pressures on healthcare systems around the world. In New Zealand, complex patients are increasingly being managed within the community. The Community of Clinical Practice concept identifies the network of carers around an individual patient whose central participants share a common purpose of increasing that patient's well-being. We conducted a focused ethnography of nine communities of clinical practice in one general practice setting using participant observation and interviews, and examined the patients' medical records...
January 1, 2017: Health (London)
https://www.readbyqxmd.com/read/28107352/coping-well-with-advanced-cancer-a-serial-qualitative-interview-study-with-patients-and-family-carers
#16
Catherine Walshe, Diane Roberts, Lynda Appleton, Lynn Calman, Paul Large, Mari Lloyd-Williams, Gunn Grande
OBJECTIVES: To understand successful strategies used by people to cope well when living with advanced cancer; to explore how professionals can support effective coping strategies; to understand how to support development of effective coping strategies for patients and family carers. DESIGN: Qualitative serial (4-12 week intervals) interview study with people with advanced cancer and their informal carers followed by focus groups. The iterative design had a novel focus on positive coping strategies...
2017: PloS One
https://www.readbyqxmd.com/read/28105781/a-qualitative-study-exploring-medication-management-in-people-with-dementia-living-in-the-community-and-the-potential-role-of-the-community-pharmacist
#17
Ian D Maidment, Lydia Aston, Tiago Moutela, Chris G Fox, Andrea Hilton
BACKGROUND: The prevalence of dementia is increasing rapidly. People with dementia may be prescribed complex medication regimens, which may be challenging for them and any carers involved to safely manage. OBJECTIVE: To describe and understand the key challenges, in relation to medication issues, experienced by people with dementia and their informal carers dwelling in the community and the potential role of community pharmacists. DESIGN: Qualitative semi-structured interviews...
January 19, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28104058/intervening-early-with-family-members-during-first-episode-psychosis-an-evaluation-of-mental-health-nursing-psychoeducation-within-an-inpatient-unit
#18
Melissa Petrakis, Simon Laxton
Provision of psychoeducation to families of service users experiencing a first-episode psychosis has been found to assist with relapse prevention and promoting recovery for service users. Psychoeducation also assists families to reduce isolation and gain relevant information and support. This study aimed to clarify the role inpatient staff can best have with families, targeted to the acute phase and early stage of the illness. Family members were provided an inpatient carer psychoeducation meeting and recruited for a feedback interview 6 months later...
February 2017: Archives of Psychiatric Nursing
https://www.readbyqxmd.com/read/28102020/families-experiences-of-involvement-in-care-planning-in-mental-health-services-an-integrative-literature-review
#19
REVIEW
Owen Doody, Mary Pat Butler, Rosemary Lyons, Daniel Newman
INTRODUCTION: Mental health service policy stipulates that family carers be involved in care planning. AIM: To identify families experiences of care planning involvement in adult mental health services. METHOD: An integrative review where electronic databases and grey literature were searched for papers published between 01 Jan 2005 and 10 February 2016. RESULTS: Fifteen papers met the inclusion criteria. Thematic analysis generated three themes: (1)families experience of collaboration, (2)families perceptions of professionals and (3)families impressions of the care planning process...
January 19, 2017: Journal of Psychiatric and Mental Health Nursing
https://www.readbyqxmd.com/read/28100562/healthcare-organisation-and-delivery-for-people-with-dementia-and-comorbidity-a-qualitative-study-exploring-the-views-of-patients-carers-and-professionals
#20
Frances Bunn, Anne-Marie Burn, Louise Robinson, Marie Poole, Greta Rait, Carol Brayne, Johan Schoeman, Sam Norton, Claire Goodman
OBJECTIVES: People living with dementia (PLWD) have a high prevalence of comorbidty. The aim of this study was to explore the impact of dementia on access to non-dementia services and identify ways of improving service delivery for this population. DESIGN: Qualitative study involving interviews and focus groups. Thematic content analysis was informed by theories of continuity of care and access to care. SETTING: Primary and secondary care in the South and North East of England...
January 18, 2017: BMJ Open
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