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https://www.readbyqxmd.com/read/28342726/noninvasive-prenatal-testing-for-fetal-aneuploidy-and-single-gene-disorders
#1
REVIEW
Hannah Skrzypek, Lisa Hui
Our concept of nucleic acid biology has advanced dramatically over the past two decades, with a growing appreciation that cell-free DNA (cfDNA) fragments are present in all body fluids including plasma. In no other field has plasma DNA been as rapidly translated into clinical practice as in noninvasive prenatal testing (NIPT) for fetal chromosome abnormalities. NIPT is a screening test that requires confirmation with diagnostic testing, but other applications of cfDNA provide diagnostic information and do not require invasive testing...
February 28, 2017: Best Practice & Research. Clinical Obstetrics & Gynaecology
https://www.readbyqxmd.com/read/28327382/health-assessment-instruments-for-people-with-intellectual-disabilities-a-systematic-review
#2
REVIEW
E J Bakker-van Gijssel, P L B J Lucassen, T C Olde Hartman, L van Son, W J J Assendelft, H M J van Schrojenstein Lantman-de Valk
BACKGROUND: People with intellectual disabilities (ID) experience health disparities and are less likely to undergo recommended age- and gender-specific screening and health promotion. New diagnoses are frequently missed. Assessments with the aid of health assessment instruments are a way to address these problems. AIM: The aim of this review is to find the available health assessment instruments for people with ID used in primary care and evaluate their quality...
March 16, 2017: Research in Developmental Disabilities
https://www.readbyqxmd.com/read/28322487/methodology-for-senior-proof-guidelines-a-practice-example-from-the-netherlands
#3
Barbara C van Munster, Johanna E A Portielje, Andrea B Maier, Arend J Arends, Johannes J A de Beer
RATIONALE, AIMS AND OBJECTIVES: Evidence-based guidelines constitute a foundation for medical decision making. It is often unclear whether recommendations in general guidelines also apply to older people. This study aimed to develop a methodology to increase the focus on older people in the development of guidelines. METHODS: The methodology distinguishes 4 groups of older people: (1) relatively healthy older people; (2) older people with 1 additional specific (interfering) comorbid condition; (3) older people with multimorbidity; and (4) vulnerable older people...
March 21, 2017: Journal of Evaluation in Clinical Practice
https://www.readbyqxmd.com/read/28320376/how-to-make-carer-involvement-in-mental-health-inpatient-units-happen-a-focus-group-study-with-patients-carers-and-clinicians
#4
Domenico Giacco, Aysegul Dirik, Justina Kaselionyte, Stefan Priebe
BACKGROUND: Carers are family members or friends who support people with a mental health problem without being paid. Carer involvement in mental health treatment has been consistently supported by research evidence and promoted by policies but its implementation rates are poor. Particularly when patients are treated in inpatient units, carers often report being left without information or being excluded from decisions about treatment. In this study we have explored, along with staff perspectives, views of patients and carers who had a recent experience of inpatient mental health care on how to improve the implementation of carer involvement in inpatient care...
March 21, 2017: BMC Psychiatry
https://www.readbyqxmd.com/read/28317329/predicting-psychological-distress-of-informal-carers-of-individuals-with-major-depression-or-bipolar-disorder
#5
David Wasley, Samantha Eden
Caring for someone with a mental illness is associated with high levels of burden and psychological distress. Understanding these factors could be important to prevent the development of physical and mental health problems in carers. The purpose of the present study was to determine the contribution of coping styles and social support in predicting the psychological distress reported by informal carers (IC) of individuals with major depression or bipolar disorder. IC (n = 72) of adults with a diagnosed depressive illness were recruited from mental health organizations within the community setting...
March 19, 2017: International Journal of Mental Health Nursing
https://www.readbyqxmd.com/read/28303618/australian-mental-health-consumers-and-carers-expect-more-health-management-information-from-community-pharmacy
#6
Jasmina Fejzic, Kathy Knox, Hendrika Laetitia Hattingh, Amary Mey, Denise McConnell, Amanda J Wheeler
OBJECTIVE: To identify the health management information needs of Australian mental health consumers and carers and explore the role of community pharmacy in meeting those needs. METHOD: Interviews and focus groups were conducted with a purposive convenience sample of 74 mental health consumers and carers across three Australian states, representing metropolitan, rural and remote settings, including those with culturally and linguistically diverse backgrounds. Recruitment and interviews continued until data saturation was reached...
March 16, 2017: International Journal of Pharmacy Practice
https://www.readbyqxmd.com/read/28294463/information-sharing-with-respite-care-services-for-older-adults-a-qualitative-exploration-of-carers-experiences
#7
Linda C McSwiggan, Judith Marston, Martin Campbell, Timothy B Kelly, Thilo Kroll
Respite services play an important role in supporting older adults and their carers. When an older person is unable to fully represent themselves, provision of respite care relies on effective information-sharing between carers and respite staff. This study aimed to explore, from carers' perspectives, the scope, quality and fit of information-sharing between carers, older people and respite services. An explorative, cross-sectional qualitative study involving a purposive sample of 24 carers, recruited via carer support groups and community groups in voluntary organisations, was undertaken in North East Scotland...
March 10, 2017: Health & Social Care in the Community
https://www.readbyqxmd.com/read/28294461/the-construction-of-help-during-radiotherapy-re-defining-informal-care
#8
Lynda Appleton, Elizabeth Perkins
OBJECTIVES: This paper will explore how help is constructed during and following radiotherapy for patients with cancer. METHODS: Grounded theory methods were used in the study to explore the way in which family members and friends constructed a role for themselves in relation to patients receiving radiotherapy. A total of 22 helpers were interviewed. Patients were being treated for a range of cancers including breast, prostate, colorectal and head and neck. RESULTS: Respondents in this study consistently defined themselves as 'helpers' rather than 'carers'...
March 11, 2017: Psycho-oncology
https://www.readbyqxmd.com/read/28294303/a-disease-disorder-illness-or-condition-how-to-label-epilepsy
#9
A J Noble, A Robinson, A G Marson
The International League Against Epilepsy (ILAE) is an important source of guidance for health professionals when it comes to epilepsy. Their latest recommendation that epilepsy should no longer be called a "disorder," but a "disease" has though caused controversy. The ILAE contends the change will improve epilepsy's image. Some clinicians and other organizations fear the change may not though be accepted by patients as in common parlance "disease" can be associated with "contagiousness"/"infection." To allow practicing clinicians to make informed judgements about what language they use, we completed the first study to assess the preferences of those with epilepsy and significant others and explore if any of their characteristics were associated with preference...
March 14, 2017: Acta Neurologica Scandinavica
https://www.readbyqxmd.com/read/28290064/-symposium-the-future-of-informal-care
#10
Marjolein Broese van Groenou, Alice de Boer, Kim Putters, Kène Henkens, Henk Nies, Pearl A Dykstra, Hanna van Solinge, Cretien van Campen, Sjoerd Kooiker
Due to the reform of long term care in 2015, there is growing concern about whether groups at risk receive the care they need. People in need of care have to rely more on help from their social network. The increased need for informal care requires resilience and organizational skills of families, but also of volunteers, professionals and employers. What does this mean for the provision of informal care in the next decennia? The symposium 'The future of informal care', organized on January 26 2017 by the National Institute for Social Research and the Institute for Societal Resilience of the Vrije Universiteit, addressed possible answers to this question...
March 13, 2017: Tijdschrift Voor Gerontologie en Geriatrie
https://www.readbyqxmd.com/read/28287850/five-challenges-to-ethical-communication-for-interprofessional-paediatric-practice-a-social-work-perspective
#11
Clare Delany, Angela Richards, Helen Stewart, Lauren Kosta
In paediatric clinical care, what is said to a parent or carer as well as when, where, and how it is said, directly advances or diminishes parents' capacities to understand available options and to contribute to decisions about treatment for their child. This makes interprofessional and patient communication an ethical endeavour. Social workers are uniquely situated to observe, participate in, and provide an active link in the communication between families and other health team members. This article reports phenomenological research exploring ethical issues encountered by social workers in their everyday practice communicating with families and other health professionals in a paediatric hospital context in Australia...
March 13, 2017: Journal of Interprofessional Care
https://www.readbyqxmd.com/read/28282723/the-development-and-validation-of-the-dementia-quality-of-life-scale-for-older-family-carers-dqol-oc
#12
Deborah C Oliveira, Catherine Vass, Aimee Aubeeluck
PURPOSE: Little is known about how caregiving affects the quality of life (QoL) of older family carers and no dementia and age-specific QoL scale is available for use with this population. This study aimed to develop and validate a unique dementia caregiving- and age-specific tool - the 'Dementia Quality of Life Scale for Older Family Carers' (DQoL-OC). METHODS: The scale items were identified in focus groups with older family carers in the UK. Content and face validity were evaluated by a panel of six experts...
March 2, 2017: Aging & Mental Health
https://www.readbyqxmd.com/read/28281406/the-contributions-of-family-care-givers-at-end-of-life-a-national-post-bereavement-census-survey-of-cancer-carers-hours-of-care-and-expenditures
#13
Christine Rowland, Barbara Hanratty, Mark Pilling, Bernard van den Berg, Gunn Grande
BACKGROUND: Family members provide vital care at end of life, enabling patients to remain at home. Such informal care contributes significantly to the economy while supporting patients' preferences and government policy. However, the value of care-givers' contributions is often underestimated or overlooked in evaluations. Without information on the activities and expenditures involved in informal care-giving, it is impossible to provide an accurate assessment of carers' contribution to end-of-life care...
April 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28280291/the-impact-of-congestion-charging-on-social-capital
#14
Luke A Munford
We analyse a new data set to examine how congestion charging policies affect an individual's investment social capital. We exploit a (quasi-) natural experiment - the implementation of the Western Extension Zone (WEZ) to the London Congestion Charging zone in 2007. We measure investment in social capital by using the frequency of visits to friends and family before and after the implementation of the WEZ. Using longitudinal data collected in January and November 2007 made available by Transport for London, we perform difference-in-difference analysis, using both OLS and interval regression, with the treatment group defined as those who used a car to make visits pre-WEZ...
March 2017: Transportation Research. Part A, Policy and Practice
https://www.readbyqxmd.com/read/28276132/profiles-of-alzheimer-s-caregivers-in-spain-social-educational-and-laboral-characteristics
#15
Manuel Ruiz-Adame Reina, María Carmen González-Camacho, José Enrique Romero-García, Luís María Sánchez-Reyes Fernández
BACKGROUND: A person suffering from dementia needs increasing help from another person, who, in most cases, is a female family member. Times are changing and this traditional role can no longer be maintained. AIM: The aim of this research was mainly centred on ascertaining the profile of caregivers and to find out how determinants such as age, sex and educational level and living conditions led people to assume that role. METHODS: A survey was designed and applied to 925 caregivers (778 of which were analysed) with the collaboration of the Alzheimer's Associations of Andalucía (Spain)...
March 9, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/28274778/understanding-patient-and-relative-carer-experience-of-hip-fracture-in-acute-care-a-qualitative-study-protocol
#16
Lorena Saletti-Cuesta, Elizabeth Tutton, Debbie Langstaff, Keith Willett
BACKGROUND: This paper presents a qualitative study protocol focusing on older peoples' experience of recovery in acute care following hip fracture and also the experiences of their family or informal carers. There is limited evidence regarding older people and their relatives'/carers' experiences of recovery in acute care. AIM: The study had two research questions. First what is the experience of older people who have suffered a fractured hip and secondly what is the relatives'/carers' experience of being alongside a person who has suffered a fractured hip? METHODS: The methodology chosen is phenomenology using the methods of interviewing and participant observation...
September 9, 2016: International Journal of Orthopaedic and Trauma Nursing
https://www.readbyqxmd.com/read/28270199/linking-families-with-pre-school-children-from-healthcare-services-to-community-resources-a-systematic-review-protocol
#17
Jacky Burns, David I Conway, Wendy Gnich, Lorna M D Macpherson
BACKGROUND: Poor health and health inequalities persist despite increasing investment in health improvement programmes across high-income countries. Evidence suggests that to reduce health inequalities, a range of activities targeted at different levels within society and throughout the life course should be employed. There is a particular focus on addressing inequalities in early years as this may influence the experience of health in adulthood. To address the wider determinants of health at a community level, a key intervention which can be considered is supporting patients to access wider community resources...
March 8, 2017: Systematic Reviews
https://www.readbyqxmd.com/read/28266281/evaluating-the-effectiveness-of-different-approaches-to-home-support-for-people-in-later-stage-dementia-a-protocol-for-an-observational-study
#18
Helen Chester, Paul Clarkson, Jane Hughes, Ian Russell, Joan Beresford, Linda Davies, David Jolley, Julie Peconi, Fiona Poland, Chris Roberts, Caroline Sutcliffe, David Challis
BACKGROUND: Dementia is a major health problem with a growing number of people affected by the condition, both directly and indirectly through caring for someone with dementia. Many live at home but little is known about the range and intensity of the support they receive. Previous studies have mainly reported on discrete services within a single geographical area. This paper presents a protocol for study of different services across several sites in England. The aim is to explore the presence, effects, and cost-effectiveness of approaches to home support for people in later stage dementia and their carers...
March 7, 2017: International Psychogeriatrics
https://www.readbyqxmd.com/read/28263704/how-could-health-information-be-improved-recommended-actions-from-the-victorian-consultation-on-health-literacy
#19
Sophie J Hill, Tanya A Sofra
Objective Health literacy is on the policy agenda. Accessible, high-quality health information is a major component of health literacy. Health information materials include print, electronic or other media-based information enabling people to understand health and make health-related decisions. The aim of the present study was to present the findings and recommended actions as they relate to health information of the Victorian Consultation on Health Literacy.Methods Notes and submissions from the 2014 Victorian Consultation workshops and submissions were analysed thematically and a report prepared with input from an advisory committee...
March 7, 2017: Australian Health Review: a Publication of the Australian Hospital Association
https://www.readbyqxmd.com/read/28251445/a-phenomenological-construct-of-caring-among-spouses-following-acute-coronary-syndrome
#20
Janice Gullick, Mark Krivograd, Susan Taggart, Susana Brazete, Lise Panaretto, John Wu
The aim of this study was interpret the existential construct of family caring following Acute Coronary Syndrome. Family support is known to have a positive impact on recovery and adjustment after cardiac events. Few studies provide philosophically-based, interpretative explorations of carer experience following a spouse's ischaemic event. As carer experiences, behaviours and meaning-making may impact on the quality of the support they provide to patients, further understanding could improve both patient outcomes and family experience...
March 1, 2017: Medicine, Health Care, and Philosophy
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