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informal carer

Aileen L Bergström, Elizabeth Hanson
BACKGROUND: A growing number of studies of informal carers of older people reveal positive results concerning support via Information and Communication Technologies (ICT). Systematic examination of factors that have a potential impact on carer outcomes are needed to inform future research. OBJECTIVE: To explore studies concerning ICT support of adult carers of older people and to identify study characteristics that have a potential impact on carer outcomes. METHODS: This integrative review includes 123 studies published since 2005...
February 5, 2018: Technology and Disability
Amy Heath, Lindsay B Carey, Susan Chong
This exploratory study considered the role of informal carers and their decision-making regarding various aged care services that supposedly support their ageing relatives. Consideration was given to the stressors and overall well-being of informal carers and the support services they did or did not receive during their time of caregiving. A questionnaire was utilised to gain exploratory quantitative and qualitative data plus basic demographic information from informal carers who connected with a single caregiver association based in Victoria, Australia...
March 9, 2018: Journal of Religion and Health
Jagnoor Jagnoor, Sheree Bekker, Shobha Chamania, Tom Potokar, Rebecca Ivers
OBJECTIVES: This study aimed to identify priority policy issues and health system research questions associated with recovery outcomes for burns survivors in India. DESIGN: Qualitative inquiry; data were collected through semistructured in-depth interviews and focus group discussions. SETTING: Nine sites in urban and rural settings across India, through primary, secondary and tertiary health facilities. PARTICIPANTS: Healthcare providers, key informants, burns survivors and/or their carers...
March 8, 2018: BMJ Open
Mei Ling Lim, Bei Yi Paulynn Yong, Mei Qi Maggie Mar, Shin Yuh Ang, Mei Mei Chan, Madeleine Lam, Ngian Choo Janet Chong, Violeta Lopez
BACKGROUND: The number of patients on home enteral nutrition (HEN) is on the increase due to advancement in technology and shift in focus of providing care from acute to community care settings. AIM: This study aimed to explore the experiences of community nurses and home carers, in caring for patients on HEN. METHODS: A mixed-method approach was adopted. (i) A face-to-face survey design was used to elicit experience of carers of patients on HEN...
March 8, 2018: Journal of Clinical Nursing
Helen Convey, Janet Holt, Barbara Summers
AIMS: This study explored the feasibility of using Construal Level Theory to analyse proxy decision maker thinking about a hypothetical ethical dilemma, relating to a person who has dementia. BACKGROUND: Proxy decision makers make decisions on behalf of individuals who are living with dementia when dementia affects that individual's decision making ability. Ethical dilemmas arise because there is a need to balance the individual's past and contemporary values and views...
March 8, 2018: Journal of Advanced Nursing
Philippa Fibert, Clare Relton, Tessa Peasgood, David Daley
Background: Attention deficit hyperactivity disorder (ADHD) is a common and growing problem and a leading cause of child referrals to Child and Adult Mental Health Services (CAMHS). It is a drain on resources across nationally funded support agencies and associated with negative outcomes such as early criminality, school disruption and antisocial behaviour. Mainstream interventions (pharmacological and behavioural) demonstrate effectiveness whilst implemented, but are costly, often have unwanted side effects and do not appear to be affecting long-term outcomes...
2018: Pilot and Feasibility Studies
Martin Nagl-Cupal, Julia Hauprich
Children and adolescents with caring responsibilities are an uncontested reality in our society. Most are hidden from public view, and they perform a broad range of caring activities for chronically ill or disabled family members. The research literature has accumulated a comprehensive body of knowledge about young carers' personal needs. However, knowledge and understanding are limited regarding the needs of young carers' families. This knowledge can contribute to preventing children and adolescents from assuming inappropriate caring roles...
March 5, 2018: Health & Social Care in the Community
Tamer Yazar, Hülya Olgun Yazar, Esra Yancar Demir, Fatih Özdemir, Soner Çankaya, Özgür Enginyurt
In this study, the aims were to assess the mental health state of carers for patients with Alzheimer-type dementia (AD) according to stage of disease and to collect data with the aim of determining precautions to reduce the load of the patient and disease on the carer. The study included 120 patients with stages determined, according to the clinical dementia rating scale (CDR), and 120 patient relatives above the age of 18 who cared for these patients every day, for the whole day or part of the day, and who accepted participation in the research...
March 5, 2018: Neurological Sciences
Mohanraj Karunanithi, Qing Zhang
Australian population aged over 65 years is 14% (3.3 million) and this expected to increase to 21% by 2053 (8.3 million), of which 1.9% to 4.2% is attributed to Australians over 85 years. With increase in ageing, there is high prevalence in long-term health conditions and more likely multiple visits to the doctors or the hospitals, particularly when one's functional condition declines. This adds burden to the already stretched health system such as the overcrowding of emergency departments in hospitals. This is partly due to many ageing patients with high care needs occupying significant number of hospital beds because they are waiting for entry to the limited placements in residential care...
2018: Studies in Health Technology and Informatics
Lynne Parkinson, Annie Banbury, Anne Livingstone, Steven Gordon, Biplob Ray, Louise Byrne, Susan Nancarrow, Chris Doran, Margaret McAllister, Carrie Petersen, Sonja Pedell, Denise Wood
In rural Australia, knowledge and utilisation of support by informal carers is lacking. During the caregiving period, socioemotional support from family and friends plays an important role in sustaining caregiving activities. Post-care, these social networks facilitate adjustment to role change and dealing with grief. Developing and improving access to peer support to enable carers to effectively cope with the challenges of caring may positively influence their caring experience. The primary objective of this project is to examine the response of isolated rural carers for older people with dementia to a videoconference (VC) based peer support and information program...
2018: Studies in Health Technology and Informatics
Reema Harrison, Merrilyn Walton, Patrick Kelly, Elizabeth Manias, Christine Jorm, Jennifer Smith-Merry, Rick Iedema, Karen Luxford, Amalie Dyda
Objective: Evidence of the patient experience of hospitalization is an essential component of health policy and service improvement but studies often lack a representative population sample or do not examine the influence of patient and hospital characteristics on experiences. We address these gaps by investigating the experiences of a large cohort of recently hospitalized patients aged 45 years and over in New South Wales (NSW), Australia who were identified using data linkage. Design: Cross-sectional survey...
March 1, 2018: International Journal for Quality in Health Care
Loretta M Isaac, Elaine Buggy, Anita Sharma, Athena Karberis, Kim M Maddock, Kathryn M Weston
Purpose The patient-centred management of people with cognitive impairment admitted to acute health care facilities can be challenging. The TOP5 intervention utilises carers' expert biographical and social knowledge of the patient to facilitate personalised care. The purpose of this paper is to explore whether involvement of carers in the TOP5 initiative could improve patient care and healthcare delivery. Design/methodology/approach A small-scale longitudinal study was undertaken in two wards of one acute teaching hospital...
March 12, 2018: International Journal of Health Care Quality Assurance
David Morton, Thoko Mayekiso, Peter Cunningham
Community home-based care (CHBC) is a critical component of non-formal care in communities in Africa that have a high prevalence of HIV and tuberculosis (TB). Community carers consisting primarily of volunteers are critical role players in African healthcare systems and particularly in South Africa's strategy to fight HIV and AIDS. This paper explores the structural barriers volunteer caregivers need to overcome to provide quality CHBC. The researchers used two focus group discussions with key informants (each with four participants), and semi-structured interviews with six key informants to collect data relating to the meaning of quality CHBC...
March 2018: African Journal of AIDS Research: AJAR
Natalie Heynsbergh, Leila Heckel, Mari Botti, Patricia M Livingston
BACKGROUND: Carers looking after someone with cancer often experience negative impacts on their own health. M-health interventions have been designed to provide information and support to patients and their carers. However, the effectiveness of technology-based interventions for carers is less well understood. The objectives were to assess the feasibility, useability and acceptability of technology-based interventions among carers of people living with cancer. METHODS: A systematic search of the CINAHL, MEDLINE and PSYCINFO databases was performed using terms related to web-based interventions and smartphone applications, carers and cancer...
March 2, 2018: BMC Cancer
Catharine Jenkins, Gerald Feldman
AIMS AND OBJECTIVES: The aim of the study was to identify pre-clinical signs of dementia by exploring the experiences of family care-givers and professional care assistants. BACKGROUND: Dementia results in disability, emotional strain and financial loss for people with dementia, family members and nations. Informal identification of social and behavioural risk signifiers could facilitate timely interventions with potential to delay onset of serious disability. DESIGN: A retrospective qualitative approach using a naturalistic interpretive design was used...
March 1, 2018: Journal of Clinical Nursing
Bob Woods, Laura O'Philbin, Emma M Farrell, Aimee E Spector, Martin Orrell
BACKGROUND: This updated Cochrane Review of reminiscence therapy (RT) for dementia was first published in 1998, and last updated in 2005. RT involves the discussion of memories and past experiences with other people using tangible prompts such as photographs or music to evoke memories and stimulate conversation. RT is implemented widely in a range of settings using a variety of formats. OBJECTIVES: To assess the effects of RT on people living with dementia and their carers, taking into account differences in its implementation, including setting (care home, community) and modality (group, individual)...
March 1, 2018: Cochrane Database of Systematic Reviews
Eve Udino, Margot Perez, Claudio Carere, Patrizia d'Ettorre
An intriguing question in behavioral biology is whether consistent individual differences (called animal personalities) relate to variation in cognitive performance because commonly measured personality traits may be associated with risk-reward trade-offs. Social insects, whose learning abilities have been extensively characterized, show consistent behavioral variability, both at colony and at individual level. We investigated the possible link between personality traits and learning performance in the carpenter ant Camponotus aethiops ...
October 2017: Current Zoology
Rebecca Lauren Morris, Susan Jill Stocks, Rahul Alam, Sian Taylor, Carly Rolfe, Steven William Glover, Joanne Whitcombe, Stephen M Campbell
OBJECTIVES: To identify the top 10 unanswered research questions for primary care patient safety research. DESIGN: A modified nominal group technique. SETTING: UK. PARTICIPANTS: Anyone with experience of primary care including: patients, carers and healthcare professionals. 341 patients and 86 healthcare professionals submitted questions. MAIN OUTCOMES: A top 10, and top 30, future research questions for primary care patient safety...
February 28, 2018: BMJ Open
Vanessa Elaine Muirhead, Zahidul Quayyum, Donal Markey, Sally Weston-Price, Annette Kimber, Wayne Rouse, Cynthia M Pine
OBJECTIVES: To assess the number of parents who visited community pharmacies in London seeking pain medications for their children's pain and specifically for oral pain, to identify which health services parents contacted before their pharmacy visit and to estimate the cost to the National Health Service (NHS) when children with oral pain who visit pharmacies also see health professionals outside dentistry. DESIGN: A cross-sectional study. SETTING: 1862 pharmacies in London in November 2016-January 2017...
February 28, 2018: BMJ Open
Gülay Ateş, Anne Frederieke Ebenau, Csilla Busa, Ágnes Csikos, Jeroen Hasselaar, Birgit Jaspers, Johan Menten, Sheila Payne, Karen Van Beek, Sandra Varey, Marieke Groot, Lukas Radbruch
BACKGROUND: Family carers manage a wide range of responsibilities in the lives and care of patients receiving palliative care. They fulfil multiple roles and perform activities within different settings. This has immediate consequences on family carers' every-day lives. According to literature, family carers in palliative care are both part of the formal and informal care network, but also persons in need of support. This article aims to investigate 1) burdens and rewards associated with family caregiving and 2) what family carers find helpful in their contact with professionals from integrated palliative care initiatives (IPC-i) and other services...
March 1, 2018: BMC Palliative Care
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