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https://www.readbyqxmd.com/read/29149787/the-role-of-the-home-environment-in-dementia-care-and-support-systematic-review-of-qualitative-research
#1
Dia Soilemezi, Amy Drahota, John Crossland, Rebecca Stores
Background The domestic home is the preferred site for care provision for people with dementia and their families, therefore creating a dementia and caring friendly home environment is crucial. This systematic review synthesised qualitative studies to explore the role of the home environment and identify potential barriers and facilitators in home dementia care and support to inform future practice and research. Methods A systematic search in 12 databases identified international qualitative literature on perceptions and experiences of community-dwelling people with dementia, family and formal carers regarding the role of the home environment and ways to tackle daily challenges...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/29148073/adaptation-and-validation-of-the-voices-sf-questionnaire-for-evaluation-of-end-of-life-care-in-sweden
#2
Anna O'Sullivan, Joakim Öhlen, Anette Alvariza, Cecilia Håkanson
OBJECTIVES: Instruments for evaluating end-of-life care by voicing experiences of family members have previously been lacking in Sweden. The objective of this study was therefore to adapt and validate the VOICES (SF) questionnaire to evaluate quality of end-of-life care in Sweden. The VOICES (SF) [Views of Informal Carers - Evaluation of Services (Short form)] is a questionnaire about bereaved relatives' experiences of care in the last three months of life of a deceased family member...
November 17, 2017: Scandinavian Journal of Caring Sciences
https://www.readbyqxmd.com/read/29139220/creating-and-facilitating-change-for-person-centred-coordinated-care-p3c-the-development-of-the-organisational-change-tool-p3c-oct
#3
Jane Horrell, Helen Lloyd, Thavapriya Sugavanam, James Close, Richard Byng
BACKGROUND: Person Centred Coordinated Care (P3C) is a UK priority for patients, carers, professionals, commissioners and policy makers. Services are developing a range of approaches to deliver this care with a lack of tools to guide implementation. METHODOLOGY: A scoping review and critical examination of current policy, key literature and NHS guidelines, together with stakeholder involvement led to the identification of domains, subdomains and component activities (processes and behaviours) required to deliver P3C...
November 15, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29138202/development-of-a-discussion-tool-to-enable-well-being-by-providing-choices-for-people-with-dementia-a-qualitative-study-incorporating-codesign-and-participatory-action-research
#4
Dianne Patricia Goeman, Marissa Dickins, Steve Iliffe, Dimity Pond, Fleur O'Keefe
OBJECTIVE: To codesign a discussion tool to facilitate negotiation of risk between health professionals, people with dementia and carers. METHODS: A qualitative approach using codesign. Thematic analysis was used to analyse interviews and focus groups with people with dementia, carers, healthcare staff and healthy older people exploring the issue of risk in dementia, the acceptability and development of a discussion tool. RESULTS: Sixty-one participants identified the breadth, depth and complexity of risk in dementia care and the need for individualised solutions...
November 14, 2017: BMJ Open
https://www.readbyqxmd.com/read/29133284/the-association-of-health-literacy-and-electronic-health-literacy-with-self-efficacy-coping-and-caregiving-perceptions-among-carers-of-people-with-dementia-research-protocol-for-a-descriptive-correlational-study
#5
Areti Efthymiou, Nicos Middleton, Andreas Charalambous, Evridiki Papastavrou
BACKGROUND: In the last decade, electronic health (eHealth) literacy has attracted the attention of the scientific community, as it is associated with the self-management of patients with chronic diseases and the quality and cost of care. It is estimated that 80% of people with chronic diseases are cared for at home by a family member, friend, or relative. Informal carers are susceptible to physical and mental health problems, as well as social and financial hardships. Nevertheless, there seems to be a research gap in terms of carers' needs, skills, and available resources in the age of new technologies, with the vital role of eHealth literacy of the carers remaining unexplored...
November 13, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/29130869/effects-of-a-museum-based-social-prescription-intervention-on-quantitative-measures-of-psychological-wellbeing-in-older-adults
#6
Linda J Thomson, Bridget Lockyer, Paul M Camic, Helen J Chatterjee
AIMS: To assess psychological wellbeing in a novel social prescription intervention for older adults called Museums on Prescription and to explore the extent of change over time in six self-rated emotions ('absorbed', 'active', 'cheerful', 'encouraged', 'enlightened' and 'inspired'). METHODS: Participants ( n = 115) aged 65-94 years were referred to museum-based programmes comprising 10 weekly sessions, by healthcare and third sector organisations using inclusion criteria (e...
November 1, 2017: Perspectives in Public Health
https://www.readbyqxmd.com/read/29130380/measuring-the-quality-of-end-of-life-care-development-testing-and-cultural-validation-of-the-danish-version-of-views-of-informal-carers-evaluation-of-services-short-form
#7
Lone Ross, Mette Asbjoern Neergaard, Morten Aagaard Petersen, Mogens Groenvold
BACKGROUND: The perspectives of patients and relatives are important in the improvement of the quality of health care. However, the quality of end-of-life care has not been systematically evaluated in Scandinavia. AIM: To develop or adapt and subsequently validate a questionnaire assessing the quality of end-of-life care in Denmark. The questionnaire was intended for bereaved relatives in order to assess the quality of care in the last 3 months of the patient's life and the circumstances surrounding death...
November 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/29128777/a-systematic-review-of-heart-failure-dyadic-self-care-interventions-focusing-on-intervention-components-contexts-and-outcomes
#8
REVIEW
Harleah G Buck, Anna Stromberg, Misook L Chung, Kristine A Donovan, Karen Harkness, Allison M Howard, Naoko Kato, Randall Polo, Lorraine S Evangelista
BACKGROUND: Having support from an informal carer is important for heart failure patients. Carers have the potential to improve patient self-care. At the same time, it should be acknowledged that caregiving could affect the carer negatively and cause emotional reactions of burden and stress. Dyadic (patient and informal carer) heart failure self-care interventions seek to improve patient self-care such as adherence to medical treatment, exercise training, symptom monitoring and symptom management when needed...
October 19, 2017: International Journal of Nursing Studies
https://www.readbyqxmd.com/read/29128379/active-sms-based-influenza-vaccine-safety-surveillance-in-australian-children
#9
Alexis Pillsbury, Helen Quinn, Patrick Cashman, Alan Leeb, Kristine Macartney
INTRODUCTION: Australia's novel, active surveillance system, AusVaxSafety, monitors the post-market safety of vaccines in near real time. We analysed cumulative surveillance data for children aged 6 months to 4 years who received seasonal influenza vaccine in 2015 and/or 2016 to determine: adverse event following immunisation (AEFI) rates by vaccine brand, age and concomitant vaccine administration. METHODS: Parent/carer reports of AEFI occurring within 3 days of their child receiving an influenza vaccine in sentinel immunisation clinics were solicited by Short Message Service (SMS) and/or email-based survey...
November 8, 2017: Vaccine
https://www.readbyqxmd.com/read/29128255/patients-experience-of-the-monitoring-of-free-flaps-after-reconstruction-for-oral-cancer
#10
H Nazir, D Lowe, S N Rogers
Regular monitoring of free flaps is essential after microvascular free tissue transfer, but the frequency and duration of the observations vary between units and there is no consensus nationally. Best practice can be informed by the feedback of patients, but as we know of no such studies, we did a cross-sectional survey of a consecutive group of patients after free tissue transfer to find out what they thought about monitoring. We designed a study-specific questionnaire after consultation with the patient and carer forum, and sent it to 150 patients who had had free tissue transfer in the maxillofacial department at Aintree University Hospital during 2015 and 2016...
November 8, 2017: British Journal of Oral & Maxillofacial Surgery
https://www.readbyqxmd.com/read/29125321/two-futures-financial-and-practical-realities-for-parents-of-living-with-a-life-limited-child
#11
Duncan C Randall
Today more and more children are living with complex health care needs, many of these children are living with life limiting and/or threatening conditions, some are medically fragile. To live a childhood these children must live in communities and with their families. In most cases this means the child's carers, their parents, most often their mothers, are required to undertake a great deal of the child's care. During a project on parental coping I became aware of the ways in which parents were restructuring their working lives in order to meet the demands of the nursing and medical care needs of their children...
November 10, 2017: Compr Child Adolesc Nurs
https://www.readbyqxmd.com/read/29124944/human-rights-of-refugee-survivors-of-sexual-and-gender-based-violence-with-communication-disability
#12
Julie Marshall, Helen Barrett
Article 19 of the Universal Declaration of Human Rights (United Nations, 1948 ) states that all people have the right to seek, receive and impart information using any means. Ensuring that people with communication disability achieve this right is inherently challenging. For people with communication disability, who are refugee-survivors of sexual and gender-based violence (SGBV), additional human rights are challenged, including the right to education, protection from discrimination, a safe place to live, security of person and legal protection...
November 10, 2017: International Journal of Speech-language Pathology
https://www.readbyqxmd.com/read/29122807/contribution-of-the-voluntary-sector-to-mental-health-crisis-care-in-england-protocol-for-a-multimethod-study
#13
Karen Newbigging, John Mohan, James Rees, Jenny Harlock, Alex Davis
INTRODUCTION: Timely access to the right kind of support for people experiencing a mental health crisis can be problematic. The voluntary sector (VS) plays a key role in providing support and enabling access, but there is a knowledge gap concerning its contribution and interface with public services in mental health crisis care. This study aims to address this. METHODS AND ANALYSIS: The study has three empirical elements: (1) a national survey of voluntary sector organisations (VSOs) in England and national stakeholder interviews to develop a typology of organisations and interventions provided by VSOs; (2) detailed mapping of VS services in two regions through interviews and extending the national survey; (3) four case studies, identified from the regional mapping, of VS mental health crisis services and their interface with National Health Service (NHS) and local authority services, at both a system and individual level...
November 8, 2017: BMJ Open
https://www.readbyqxmd.com/read/29122225/-web-visit-patterns-for-the-clinical-practice-guidelines-for-management-of-depressive-disorder-and-alcohol-abuse-dependence
#14
Fernando Suárez-Obando, Carlos Gómez Restrepo
INTRODUCTION: Clinical practice guidelines (CPG) are a set of recommendations for professionals, patients, and families, in order to make decisions about health care. The CPG respond to the need for concise, accurate, practical, and up to date information. In the field of mental health, Colombia has developed three GPC; alcohol (GPC-OH), depression (GPC-TDA), and schizophrenia. OBJECTIVES: To describe the Web Portal traffic related to psychiatry guidelines, with emphasis on the number of visits, distribution throughout Colombian cities, and estimating user behaviour patterns...
October 2017: Revista Colombiana de Psiquiatría
https://www.readbyqxmd.com/read/29121850/the-challenge-of-involving-elderly-patients-in-primary-care-by-using-an-electronic-communication-tool-with-their-professionals-a-mixed-methods-study
#15
Catharina Carolina De Jong, Wynand J G Ros, Mia Van Leeuwen, Guus Schrijvers
BACKGROUND: Elderly patients in primary care often have multiple health problems,with different healthcare professionals involved. For consistency in care, it is required that communication amongst professionals and patient-systems (patient and informal-carers) be well tuned. Electronic-communication can make it easier for patient-system to be active in care. OBJECTIVE: To examine whether an e-communication tool (Congredi) designed for professionals, including a care plan and secure e-mail, is usable for patient-systems and what their experiences are...
November 8, 2017: Journal of Innovation in Health Informatics
https://www.readbyqxmd.com/read/29120529/user-experience-and-care-for-older-people-transitioning-from-hospital-to-home-patients-and-carers-perspectives
#16
Jacqueline Allen, Alison M Hutchinson, Rhonda Brown, Patricia M Livingston
BACKGROUND: Transitioning from hospital to home is challenging for many older people living with chronic health conditions. Transitional care facilitates safe and timely transfer of patients between levels of care and across care settings and includes communication between practitioners, assessment and planning, preparation, medication reconciliation, follow-up care and self-management education. To date, there is limited understanding of how to actively involve care recipient service users in transitional care...
November 9, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/29119866/exploring-service-users-carers-and-professionals-perspectives-and-experiences-of-current-antipsychotic-prescribing-a-qualitative-study
#17
Kamelia Harris, Helen Brooks, Garry Lythgoe, Penny Bee, Karina Lovell, Richard J Drake
Objectives Shared decision-making is the pinnacle of patient-centred care; mental health stakeholders value shared decision-making but find it difficult to enact. The objective was to compare and synthesise mental health stakeholder views on antipsychotic prescribing in one NHS Trust, to understand potential reasons for the difficult enactment of shared decision-making in practice. Methods We conducted 12 interviews and 5 focus groups with 33 mental health stakeholders, after obtaining their informed consent...
December 2017: Chronic Illness
https://www.readbyqxmd.com/read/29105505/development-and-pilot-testing-of-the-focus-on-the-person-form-supporting-care-transitions-for-people-with-dementia
#18
Elissa Burton, Susan Slatyer, Mary Bronson, Pam Nichols, Eleanor Quested, Andrew Hill, Sean Maher, Samar Aoun, Keith D Hill, Yukiko Kuno, Chris Toye
When people with dementia are hospitalised, their capacity to communicate with the staff may be limited, compounding risks of distress and other adverse outcomes. Opportunities for carers to share relevant information to inform appropriate person-centred care are also limited. This four-phase mixed methods study aimed to develop an evidence-based family carer-staff communication form, the Focus on the Person form, to address this concern. In Phase I, a literature review plus consultation with clinicians and carers informed form development...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/29102998/development-of-a-clinical-pharmacy-model-within-an-australian-home-nursing-service-using-co-creation-and-participatory-action-research-the-visiting-pharmacist-vip-study
#19
Rohan A Elliott, Cik Yin Lee, Christine Beanland, Dianne P Goeman, Neil Petrie, Barbara Petrie, Felicity Vise, June Gray
OBJECTIVE: To develop a collaborative, person-centred model of clinical pharmacy support for community nurses and their medication management clients. DESIGN: Co-creation and participatory action research, based on reflection, data collection, interaction and feedback from participants and other stakeholders. SETTING: A large, non-profit home nursing service in Melbourne, Australia. PARTICIPANTS: Older people referred to the home nursing service for medication management, their carers, community nurses, general practitioners (GPs) and pharmacists, a multidisciplinary stakeholder reference group (including consumer representation) and the project team...
November 3, 2017: BMJ Open
https://www.readbyqxmd.com/read/29101142/protocol-for-a-national-prevalence-study-of-advance-care-planning-documentation-and-self-reported-uptake-in-australia
#20
Rasa Ruseckaite, Karen M Detering, Sue M Evans, Veronica Perera, Lynne Walker, Craig Sinclair, Josephine M Clayton, Linda Nolte
INTRODUCTION: Advance care planning (ACP) is a process between a person, their family/carer(s) and healthcare providers that supports adults at any age or stage of health in understanding and sharing their personal values, life goals and preferences regarding future medical care. The Australian government funds a number of national initiatives aimed at increasing ACP uptake; however, there is currently no standardised Australian data on formal ACP documentation or self-reported uptake...
November 3, 2017: BMJ Open
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