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https://www.readbyqxmd.com/read/28102020/families-experiences-of-involvement-in-care-planning-in-mental-health-services-an-integrative-literature-review
#1
REVIEW
Owen Doody, Mary Pat Butler, Rosemary Lyons, Daniel Newman
INTRODUCTION: Mental health service policy stipulates that family carers be involved in care planning. AIM: To identify families experiences of care planning involvement in adult mental health services. METHOD: An integrative review where electronic databases and grey literature were searched for papers published between 01 Jan 2005 and 10 February 2016. RESULTS: Fifteen papers met the inclusion criteria. Thematic analysis generated three themes: (1)families experience of collaboration, (2)families perceptions of professionals and (3)families impressions of the care planning process...
January 19, 2017: Journal of Psychiatric and Mental Health Nursing
https://www.readbyqxmd.com/read/28100562/healthcare-organisation-and-delivery-for-people-with-dementia-and-comorbidity-a-qualitative-study-exploring-the-views-of-patients-carers-and-professionals
#2
Frances Bunn, Anne-Marie Burn, Louise Robinson, Marie Poole, Greta Rait, Carol Brayne, Johan Schoeman, Sam Norton, Claire Goodman
OBJECTIVES: People living with dementia (PLWD) have a high prevalence of comorbidty. The aim of this study was to explore the impact of dementia on access to non-dementia services and identify ways of improving service delivery for this population. DESIGN: Qualitative study involving interviews and focus groups. Thematic content analysis was informed by theories of continuity of care and access to care. SETTING: Primary and secondary care in the South and North East of England...
January 18, 2017: BMJ Open
https://www.readbyqxmd.com/read/28100215/a-discrete-event-simulation-model-to-evaluate-the-use-of-community-services-in-the-treatment-of-patients-with-parkinson-s-disease-in-the-united-kingdom
#3
Reda Lebcir, Eren Demir, Raheelah Ahmad, Christos Vasilakis, David Southern
BACKGROUND: The number of people affected by Parkinson's disease (PD) is increasing in the United Kingdom driven by population ageing. The treatment of the disease is complex, resource intensive and currently there is no known cure to PD. The National Health Service (NHS), the public organisation delivering healthcare in the UK, is under financial pressures. There is a need to find innovative ways to improve the operational and financial performance of treating PD patients. The use of community services is a new and promising way of providing treatment and care to PD patients at reduced cost than hospital care...
January 18, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28095943/sleep-disturbances-in-caregivers-of-patients-with-advanced-cancer-a-systematic-review
#4
Kirstin F Maltby, Christine R Sanderson, Elizabeth A Lobb, Jane L Phillips
OBJECTIVE: Sleep disturbances are a common issue for those who provide informal care to someone with a life-limiting condition. The negative consequences of poor sleep are well documented. The purpose of the present study was to determine the sleep patterns of caregivers of patients with advanced cancer. METHOD: An extensive systematic review of studies reporting empirical sleep data was undertaken in 2015 in accordance with the PRISMA Statement. A total of eight electronic databases were searched, with no date restrictions imposed...
January 18, 2017: Palliative & Supportive Care
https://www.readbyqxmd.com/read/28095284/family-carers-perspectives-on-integrated-community-care-in-the-czech-republic
#5
Eva Křížová, Hana Janečková, Jaromír Běláček
AIM: The problem of family care for people dependent on another person has only recently become a focus of research. As demand for health and social services has not been adequately met by public service providers, growing attention has been given to informal care and the integration of families within systems of health and social care at the community level. This paper presents the results of a survey on informal carers' views and opinions under the current conditions of social support in the Czech Republic...
December 2016: Central European Journal of Public Health
https://www.readbyqxmd.com/read/28095117/parents-asthma-information-needs-and-preferences-for-school-based-asthma-support
#6
Noha Abdullah Al Aloola, Lisa Nissen, Huda Abdullaziz Alewairdhi, Nawaf Al Faryan, Bandana Saini
Objectives This study sought to investigate parents' needs and preferences for school-based asthma support in Saudi Arabian primary schools. Methods Semi-structured qualitative interviews were conducted in the period between November 2015 and February 2016, with a convenience sample that comprised Saudi parents and carers of children with asthma. Recruitment of participants was primarily driven through Saudi primary schools; passive snowballing and social networks were used to boost participation rates further...
January 17, 2017: Journal of Asthma: Official Journal of the Association for the Care of Asthma
https://www.readbyqxmd.com/read/28094909/integrated-working-for-enhanced-health-care-in-english-nursing-homes
#7
Glenda Cook, Anne McNall, Juliana Thompson, Philip Hodgson, Lynne Shaw, Daniel Cowie
BACKGROUND: The increasingly complex nature of care home residents' health status means that this population requires significant multidisciplinary team input from health services. To address this, a multisector and multiprofessional enhanced healthcare programme was implemented in nursing homes across Gateshead Council in Northern England. STUDY AIMS: To explore the views and experiences of practitioners, social care officers, and carers involved in the enhanced health care in care home programme, in order to develop understanding of the service delivery model and associated workforce needs for the provision of health care to older residents...
January 2017: Journal of Nursing Scholarship
https://www.readbyqxmd.com/read/28094634/my-pancreas
#8
(no author information available yet)
This app has been designed for patients facing a diagnosis of pancreatic cancer. It acts as an information resource for family members, carers and friends.
January 4, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28091407/clinical-characteristics-of-patients-with-drug-induced-liver-injury
#9
Li-Xia Yang, Cheng-Yuan Liu, Lun-Li Zhang, Ling-Ling Lai, Ming Fang, Chong Zhang
BACKGROUND: Drug is an important cause of liver injury and accounts for up to 40% of instances of fulminant hepatic failure. Drug-induced liver injury (DILI) is increasing while the diagnosis becomes more difficult. Though many drugs may cause DILI, Chinese herbal medicines have recently emerged as a major cause due to their extensive use in China. We aimed to provide drug safety information to patients and health carers by analyzing the clinical and pathological characteristics of the DILI and the associated drug types...
2017: Chinese Medical Journal
https://www.readbyqxmd.com/read/28077155/modem-a-comprehensive-approach-to-modelling-outcome-and-costs-impacts-of-interventions-for-dementia-protocol-paper
#10
Adelina Comas-Herrera, Martin Knapp, Raphael Wittenberg, Sube Banerjee, Ann Bowling, Emily Grundy, Carol Jagger, Nicolas Farina, Daniel Lombard, Klara Lorenz, David McDaid
BACKGROUND: The MODEM project (A comprehensive approach to MODelling outcome and costs impacts of interventions for DEMentia) explores how changes in arrangements for the future treatment and care of people living with dementia, and support for family and other unpaid carers, could result in better outcomes and more efficient use of resources. METHODS: MODEM starts with a systematic mapping of the literature on effective and (potentially) cost-effective interventions in dementia care...
January 11, 2017: BMC Health Services Research
https://www.readbyqxmd.com/read/28075655/experiences-and-preferences-for-end-of-life-care-for-young-adults-with-cancer-and-their-informal-carers-a-narrative-synthesis
#11
Nothando Ngwenya, Charlotte Kenten, Louise Jones, Faith Gibson, Susie Pearce, Mary Flatley, Rachael Hough, L Caroline Stirling, Rachel M Taylor, Geoff Wong, Jeremy Whelan
To review the qualitative literature on experiences of and preferences for end-of-life care of people with cancer aged 16-40 years (young adults) and their informal carers. A systematic review using narrative synthesis of qualitative studies using the 2006 UK Economic and Social Research Council research methods program guidance. Seven electronic bibliographic databases, two clinical trials databases, and three relevant theses databases were searched from January 2004 to October 2015. Eighteen articles were included from twelve countries...
January 11, 2017: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/28073297/effective-public-involvement-in-the-host-d-programme-for-dementia-home-care-support-from-proposal-and-design-to-methods-of-data-collection-innovative-practice
#12
Clarissa Giebel, Brenda Roe, Anthony Hodgson, David Britt, Paul Clarkson
Public involvement is an important element in health and social care research. However, it is little evaluated in research. This paper discusses the utility and impact of public involvement of carers and people with dementia in a five-year programme on effective home support in dementia, from proposal and design to methods of data collection, and provides a useful guide for future research on how to effectively involve the public. The Home SupporT in Dementia (HoST-D) Programme comprises two elements of public involvement, a small reference group and a virtual lay advisory group...
January 1, 2017: Dementia
https://www.readbyqxmd.com/read/28068988/disability-support-and-long-term-social-care-of-an-elderly-spanish-population-2008-2009-an-epidemiologic-analysis
#13
J Almazán-Isla, M Comín-Comín, E Alcalde-Cabero, C Ruiz, E Franco, R Magallón, J Damián, J de Pedro-Cuesta, L A Larrosa-Montañes
BACKGROUND: Though poorly known, relationships between disability, need of help (dependency) and use of social services are crucial aspects of public health. The objective of this study was to describe the links between disability, officially assessed dependency, and social service use by an industrial population, and identify areas of inequity. METHODS: We took advantage of a door-to-door survey conducted in the Cinco Villas district, Spain, in 2008-2009, which provided data on disability, morbidity, and service use among 1216 residents aged ≥50 years, and officially assessed dependency under the 2006 Dependency Act (OAD)...
January 9, 2017: International Journal for Equity in Health
https://www.readbyqxmd.com/read/28068660/direct-to-consumer-genetic-testing-user-motivations-decision-making-and-perceived-utility-of-results
#14
J Scott Roberts, Michele C Gornick, Deanna Alexis Carere, Wendy R Uhlmann, Mack T Ruffin, Robert C Green
BACKGROUND/AIMS: To describe the interests, decision making, and responses of consumers of direct-to-consumer personal genomic testing (DTC-PGT) services. METHODS: Prior to 2013 regulatory restrictions on DTC-PGT services, 1,648 consumers from 2 leading companies completed Web surveys before and after receiving test results. RESULTS: Prior to testing, DTC-PGT consumers were as interested in ancestry (74% very interested) and trait information (72%) as they were in disease risks (72%)...
January 10, 2017: Public Health Genomics
https://www.readbyqxmd.com/read/28068507/reducing-recurrence-of-bacterial-skin-infections-in-aboriginal-children-in-rural-communities-new-ways-of-thinking-new-ways-of-working
#15
Susan Thomas, Kristy Crooks, Kylie Taylor, Peter D Massey, Ruth Williams, Glenn Pearce
Reports from health workers, school staff and community members in rural NSW suggested that bacterial skin infections are a significant health issue for Aboriginal children and their families, affecting quality of life and contributing to poor school attendance. Current NSW treatment guidelines do not incorporate important sociocultural factors or ways of living in Aboriginal communities. The aim of this qualitative study was to gain a deeper understanding of the experience of parents and carers of Aboriginal children affected by skin infections and of other community members, health workers and school staff, and what actions have been considered successful or unsuccessful in reducing the recurrence of infection...
January 10, 2017: Australian Journal of Primary Health
https://www.readbyqxmd.com/read/28064517/experiences-of-patients-undergoing-repeated-intravitreal-anti-vascular-endothelial-growth-factor-injections-for-neovascular-age-related-macular-degeneration
#16
Jessica Boyle, Meri Vukicevic, Konstandina Koklanis, Catherine Itsiopoulos, Gwyneth Rees
Current therapy to slow disease progression in patients with neovascular age-related macular degeneration (AMD) entails regular intravitreal anti-vascular endothelial growth factor (VEGF) injections, often indefinitely. Little is known about the burden imposed on patients by this repetitive treatment schedule and how this can be best managed. The aim of this study was to explore the psychosocial impact of repeated intravitreal injections on patients with neovascular AMD. Forty patients (16 males, 24 females) with neovascular AMD undergoing anti-VEGF treatment were recruited using purposive sampling from a private ophthalmology practice and public hospital in Melbourne...
January 9, 2017: Psychology, Health & Medicine
https://www.readbyqxmd.com/read/28061843/sun-protection-to-improve-vaccine-effectiveness-in-children-in-a-high-ambient-ultraviolet-radiation-and-rural-environment-an-intervention-study
#17
Caradee Y Wright, Patricia N Albers, Angela Mathee, Zamantimande Kunene, Catherine D'Este, Ashwin Swaminathan, Robyn M Lucas
BACKGROUND: Vaccination is a mainstay of preventive healthcare, reducing the incidence of serious childhood infections. Ecological studies have demonstrated an inverse association between markers of high ambient ultraviolet (UV) radiation exposure (e.g., sunny season, low latitude of residence) and reduction in the vaccination-associated immune response. Higher sun exposure on the day prior to and spanning the day of vaccination has been associated with a reduced antigen-specific immune response independent of skin pigmentation...
January 6, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28059054/randomised-controlled-trial-evaluating-the-effectiveness-and-cost-effectiveness-of-families-for-health-a-family-based-childhood-obesity-treatment-intervention-delivered-in-a-community-setting-for-ages-6-to-11-years
#18
Wendy Robertson, Joanna Fleming, Atiya Kamal, Thomas Hamborg, Kamran A Khan, Frances Griffiths, Sarah Stewart-Brown, Nigel Stallard, Stavros Petrou, Douglas Simkiss, Elizabeth Harrison, Sung Wook Kim, Margaret Thorogood
BACKGROUND: Effective programmes to help children manage their weight are required. 'Families for Health' focuses on a parenting approach, designed to help parents develop their parenting skills to support lifestyle change within the family. Families for Health version 1 showed sustained reductions in mean body mass index (BMI) z-score after 2 years in a pilot project. OBJECTIVE: The aim was to evaluate its effectiveness and cost-effectiveness in a randomised controlled trial (RCT)...
January 2017: Health Technology Assessment: HTA
https://www.readbyqxmd.com/read/28056634/relating-cause-of-death-with-place-of-care-and-healthcare-costs-in-the-last-year-of-life-for-patients-who-died-from-cancer-chronic-obstructive-pulmonary-disease-heart-failure-and-dementia-a-descriptive-study-using-registry-data
#19
Annicka Gm van der Plas, Mariska G Oosterveld-Vlug, H Roeline W Pasman, Bregje D Onwuteaka-Philipsen
BACKGROUND: The four main diagnostic groups for palliative care provision are cancer, chronic obstructive pulmonary disease, heart failure and dementia. But comparisons of costs and care in the last year of life are mainly directed at cancer versus non-cancer or within cancer patients. AIM: Our aim is to compare the care and expenditures in their last year of life for Dutch patients with cancer, chronic obstructive pulmonary disease, heart failure or dementia. DESIGN: Data from insurance company Achmea (2009-2010) were linked to information on long-term care at home or in an institution, the National Hospital Registration and Causes of Death-Registry from Statistics Netherlands...
January 1, 2017: Palliative Medicine
https://www.readbyqxmd.com/read/28043078/a-qualitative-study-investigating-training-requirements-of-nurses-working-with-people-with-dementia-in-nursing-homes
#20
Analisa Smythe, Catharine Jenkins, Magdalena Galant-Miecznikowska, Peter Bentham, Jan Oyebode
BACKGROUND: The care home workforce (over half a million people in the UK) has a pivotal role in the quality of care provided to the residents. Much care in this setting is inadequate, lacks a person-centred focus and neglects the dignity of residents. A combination of factors leads to burnout in nurses working in nursing homes, contributing to poor quality care. Recent reports have indicated that cultures of care need to be addressed through training, improved workforce support and supervision and that improving the quality of care for people with dementia can be achieved by the development of leadership in nursing and clarifying professional values...
December 22, 2016: Nurse Education Today
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