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how to live with constant pain

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https://www.readbyqxmd.com/read/27534605/how-can-group-based-multidisciplinary-rehabilitation-for-patients-with-fibromyalgia-influence-patients-self-efficacy-and-ability-to-cope-with-their-illness-a-grounded-theory-approach
#1
Marianne Uggen Rasmussen, Kirstine Amris, Susan Rydahl-Hansen
AIMS AND OBJECTIVES: To describe how group-based multidisciplinary rehabilitation for patients with fibromyalgia, can influence patients' self-efficacy and ability to cope with their illness. BACKGROUND: Multidisciplinary rehabilitation is recommended in the management of fibromyalgia. Self-efficacy is said to influence and predict adaptive coping behaviors and functioning. However, knowledge is lacking on how rehabilitation programs may influence self-efficacy and ability to cope, from the patients' perspective...
August 18, 2016: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/26462971/sedentary-behaviour-in-patients-with-rheumatoid-arthritis-a-qualitative-study
#2
Tanja Thomsen, Nina Beyer, Mette Aadahl, Merete L Hetland, Katrine Løppenthin, Julie Midtgaard, Bente A Esbensen
BACKGROUND: Despite increasing interest in investigating sedentary behaviour (SB) in the general population and in patients with rheumatoid arthritis (RA), there is little documentation of the subjective experiences of SB in patients with RA. This study aimed to examine how patients with RA describe their daily SB. METHODS: Fifteen patients with RA (10 women and 5 men) from 23 to 73 years of age and with a disease duration ranging from 4 to 27 years were interviewed following a semi-structured interview guide...
2015: International Journal of Qualitative Studies on Health and Well-being
https://www.readbyqxmd.com/read/26333530/how-sickle-cell-disease-patients-experience-understand-and-explain-their-pain-an-interpretative-phenomenological-analysis-study
#3
Beth Coleman, Helen Ellis-Caird, John McGowan, Maxwell J Benjamin
OBJECTIVES: Sickle cell disease (SCD) is the UK's most common blood disorder causing sickle shaped red blood cells to block small blood vessels inducing both acute and chronic pain. A crucial factor in determining quality of life for those with SCD is the severity, timing and number of painful sickling episodes. However, little research focuses on the nature of pain and so it is poorly understood. The aim of this study is to provide an in-depth and meaning led account of the experience of SCD pain...
February 2016: British Journal of Health Psychology
https://www.readbyqxmd.com/read/26246522/severe-obesity-and-the-ambivalence-of-attending-physical-activity-exploring-lived-experiences
#4
Kjersti Karoline Danielsen, Jorunn Sundgot-Borgen, Gro Rugseth
Physical activity is considered fundamental in lifestyle interventions. We explore experiences of physical activity prior to, during, and following a 10- to 14-week inpatient lifestyle modification program, including high volume of physical activity, for the treatment of severe obesity. Eight participants from a prospective clinical trial were selected to participate in a complementary qualitative study. The participants' experiences with physical activity during and following the treatment program represented different opposites: "pain and pleasure," "desire and duty," and "bubble and battle...
April 2016: Qualitative Health Research
https://www.readbyqxmd.com/read/25911504/living-with-joint-hypermobility-syndrome-patient-experiences-of-diagnosis-referral-and-self-care
#5
Rohini H Terry, Shea T Palmer, Katharine A Rimes, Carol J Clark, Jane V Simmonds, Jeremy P Horwood
BACKGROUND: Musculoskeletal problems are common reasons for seeking primary health care. It has been suggested that many people with 'everyday' non-inflammatory musculoskeletal problems may have undiagnosed joint hypermobility syndrome (JHS), a complex multi-systemic condition. JHS is characterized by joint laxity, pain, fatigue and a wide range of other symptoms. Physiotherapy is usually the preferred treatment option for JHS, although diagnosis can be difficult. The lived experience of those with JHS requires investigation...
June 2015: Family Practice
https://www.readbyqxmd.com/read/25780559/how-can-we-assess-the-burden-of-muscle-bone-and-joint-conditions-in-rural-botswana-context-and-methods-for-the-mubojo-focused-ethnography
#6
Maria Hondras, Corrie Myburgh, Jan Hartvigsen, Scott Haldeman, Helle Johannessen
BACKGROUND: Musculoskeletal diseases are the most common causes of long-term pain and disability worldwide and a growing international public health concern. However, the everyday burden and impact of musculoskeletal conditions are not well understood, especially among people living in low- and middle-income countries in Africa. Since 2011, World Spine Care, a nongovernmental organisation, has collaborated with the Botswana Ministry of Health to open spine care centres and to conduct research...
2015: Chiropractic & Manual Therapies
https://www.readbyqxmd.com/read/25661994/similarities-and-differences-in-the-experience-of-fatigue-among-people-living-with-fibromyalgia-multiple-sclerosis-ankylosing-spondylitis-and-stroke
#7
COMPARATIVE STUDY
Grethe Eilertsen, Heidi Ormstad, Marit Kirkevold, Anne M Mengshoel, Siv Söderberg, Malin Olsson
AIMS AND OBJECTIVES: To elucidate the experience of fatigue across several long-term illnesses, focusing on the similarities and differences. BACKGROUND: Fatigue is common to many long-term illnesses, but it has been studied mainly within the context of a single illness; qualitative studies comparing the experience and its impact on daily life across different long-term illnesses are lacking. DESIGN: Qualitative design. METHODS: A secondary analysis was conducted of five original interview studies involving 95 persons with ankylosing spondylitis, fibromyalgia, multiple sclerosis or stroke...
July 2015: Journal of Clinical Nursing
https://www.readbyqxmd.com/read/25638304/-i-suddenly-felt-i-d-aged-a-qualitative-study-of-patient-experiences-of-polymyalgia-rheumatica-pmr
#8
Helen Twohig, Caroline Mitchell, Christian Mallen, Adewale Adebajo, Nigel Mathers
OBJECTIVES: To explore patient experiences of living with, and receiving treatment for, PMR. METHODS: Semi-structured qualitative interviews, with 22 patients with PMR recruited from general practices in South Yorkshire. Thematic analysis using a constant comparative method, ran concurrently with the interviews and was used to derive a conceptual framework. RESULTS: 5 Key themes emerged highlighting the importance of: (1) pain, stiffness and weakness, (2) disability, (3) treatment and disease course, (4) experience of care, (5) psychological impact of PMR...
May 2015: Patient Education and Counseling
https://www.readbyqxmd.com/read/25566390/exploring-salivary-cortisol-and-recurrent-pain-in-mid-adolescents-living-in-two-homes
#9
Emma Fransson, Lisa Folkesson, Malin Bergström, Viveca Östberg, Petra Lindfors
BACKGROUND: Each year, around 50.000 children in Sweden experience a separation between their parents. Joint physical custody (JPC), where the child alternates homes between the parents for about equal amount of time, has become a common living arrangement after parental separation. Children in two homes could benefit from everyday contact with both parents and access to both parents' financial resources. However, children could experience stress from being constantly moving and potentially exposed to parental conflicts...
2014: BMC Psychology
https://www.readbyqxmd.com/read/25377627/spreading-and-sustaining-best-practices-for-home-care-of-older-adults-a-grounded-theory-study
#10
Jenny Ploeg, Maureen Markle-Reid, Barbara Davies, Kathryn Higuchi, Wendy Gifford, Irmajean Bajnok, Heather McConnell, Jennifer Plenderleith, Sandra Foster, Sue Bookey-Bassett
BACKGROUND: Improving health care quality requires effective and timely spread of innovations that support evidence-based practices. However, there is limited rigorous research on the process of spread, factors influencing spread, and models of spread. It is particularly important to study spread within the home care sector given the aging of the population, expansion of home care services internationally, the high proportion of older adult users of home care services, and the vulnerability of this group who are frail and live with multiple chronic conditions...
2014: Implementation Science: IS
https://www.readbyqxmd.com/read/25324325/a-qualitative-study-of-the-consequences-of-knee-symptoms-it-s-like-you-re-an-athlete-and-you-go-to-a-couch-potato
#11
Crystal MacKay, Susan B Jaglal, Joanna Sale, Elizabeth M Badley, Aileen M Davis
OBJECTIVES: To explore the perceived consequences of knee symptoms on the lives of people aged 35-65 years who had diagnosed osteoarthritis (OA) or OA-like symptoms. DESIGN: A qualitative study with six focus groups and 10 one-on-one interviews. Constructivist grounded theory guided data collection and analysis. Data were analysed using the constant comparative method. SETTING: Toronto, Canada. PARTICIPANTS: 51 participants (median age 49; 61% female) who self-reported knee OA or reported knee pain, aching or stiffness on most days of the past month participated in the study...
2014: BMJ Open
https://www.readbyqxmd.com/read/24868074/how-users-of-indwelling-urinary-catheters-talk-about-sex-and-sexuality-a-qualitative-study
#12
COMPARATIVE STUDY
Alison Chapple, Suman Prinjha, Helen Salisbury
BACKGROUND: An indwelling urinary catheter can solve the problem of incontinence and may be life-saving in individuals with retention, but it can cause problems such as infection and may have a negative impact on body image, sex, and sexuality. AIM: To explore the individual's perceptions of how a long-term urinary catheter can affect body image, sex, and sexuality; and to help GPs to discuss the subject in consultations. DESIGN AND SETTING: Qualitative study of a diverse sample of individuals living with a long-term urinary catheter...
June 2014: British Journal of General Practice: the Journal of the Royal College of General Practitioners
https://www.readbyqxmd.com/read/24698747/real-time-sharing-and-expression-of-migraine-headache-suffering-on-twitter-a-cross-sectional-infodemiology-study
#13
Thiago D Nascimento, Marcos F DosSantos, Theodora Danciu, Misty DeBoer, Hendrik van Holsbeeck, Sarah R Lucas, Christine Aiello, Leen Khatib, MaryCatherine A Bender, Jon-Kar Zubieta, Alexandre F DaSilva
BACKGROUND: Although population studies have greatly improved our understanding of migraine, they have relied on retrospective self-reports that are subject to memory error and experimenter-induced bias. Furthermore, these studies also lack specifics from the actual time that attacks were occurring, and how patients express and share their ongoing suffering. OBJECTIVE: As technology and language constantly evolve, so does the way we share our suffering. We sought to evaluate the infodemiology of self-reported migraine headache suffering on Twitter...
2014: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/24412529/ways-of-understanding-parental-chronic-pain-a-typology
#14
Wendy Umberger, Donna Martsolf, Ann Jacobson, Judy Risko, Mary Calabro, Mary Patterson
Chronic non-cancer pain (CNCP) is a prevalent occurrence and is experienced by adults in their child-rearing years. Communication within the family about parental illness can be formidable, and family members are often uninformed about illness details. To date, there is no research exploring how children and adolescents understand parental chronic pain, a very complex phenomenon, and its related disability. The aim of this study was to develop a substantive theory that describes how adolescents manage the experience of living with a parent suffering with CNCP and environmental factors that help or hinder this process...
December 2014: Pain Management Nursing: Official Journal of the American Society of Pain Management Nurses
https://www.readbyqxmd.com/read/23983029/shape-shifting-pain-chronification-of-back-pain-shifts-brain-representation-from-nociceptive-to-emotional-circuits
#15
Javeria A Hashmi, Marwan N Baliki, Lejian Huang, Alex T Baria, Souraya Torbey, Kristina M Hermann, Thomas J Schnitzer, A Vania Apkarian
Chronic pain conditions are associated with abnormalities in brain structure and function. Moreover, some studies indicate that brain activity related to the subjective perception of chronic pain may be distinct from activity for acute pain. However, the latter are based on observations from cross-sectional studies. How brain activity reorganizes with transition from acute to chronic pain has remained unexplored. Here we study this transition by examining brain activity for rating fluctuations of back pain magnitude...
September 2013: Brain: a Journal of Neurology
https://www.readbyqxmd.com/read/23701717/the-shroud-ways-adolescents-manage-living-with-parental-chronic-pain
#16
Wendy Umberger, Donna Martsolf, Ann Jacobson, Judy Risko, Mary Patterson, Mary Calabro
PURPOSE: The purpose of this article is to describe a substantive theory that details how adolescents manage living with a parent experiencing chronic noncancer pain (CNCP). DESIGN: Grounded theory methods were used to recruit 30 young adults, ages 18 through 21 years, from community settings. METHODS: During open-ended interviews, participants were asked to look back on their adolescence and talk about how they managed living with parental chronic pain...
December 2013: Journal of Nursing Scholarship
https://www.readbyqxmd.com/read/23433699/pain-from-the-inside-understanding-the-theoretical-underpinning-of-person-centered-care-delivered-by-pain-teams
#17
Michelle Howarth, Tony Warne, Carol Haigh
Chronic back pain is globally acknowledged as a common reason why people seek help from health professionals. The complexity of persistent chronic pain can undermine the person's self-esteem and present a number of challenges to an individual's ability to manage their pain. Multi-professional person-centered care is advocated as a key strategy to support people with chronic back pain. However, the impact of these approaches on restoring the person's independence is unclear, and little is known about whether and how person-centered approaches restore autonomy and influence the person's ability to manage their pain...
March 2014: Pain Management Nursing: Official Journal of the American Society of Pain Management Nurses
https://www.readbyqxmd.com/read/23245607/years-lived-with-disability-ylds-for-1160-sequelae-of-289-diseases-and-injuries-1990-2010-a-systematic-analysis-for-the-global-burden-of-disease-study-2010
#18
Theo Vos, Abraham D Flaxman, Mohsen Naghavi, Rafael Lozano, Catherine Michaud, Majid Ezzati, Kenji Shibuya, Joshua A Salomon, Safa Abdalla, Victor Aboyans, Jerry Abraham, Ilana Ackerman, Rakesh Aggarwal, Stephanie Y Ahn, Mohammed K Ali, Miriam Alvarado, H Ross Anderson, Laurie M Anderson, Kathryn G Andrews, Charles Atkinson, Larry M Baddour, Adil N Bahalim, Suzanne Barker-Collo, Lope H Barrero, David H Bartels, Maria-Gloria Basáñez, Amanda Baxter, Michelle L Bell, Emelia J Benjamin, Derrick Bennett, Eduardo Bernabé, Kavi Bhalla, Bishal Bhandari, Boris Bikbov, Aref Bin Abdulhak, Gretchen Birbeck, James A Black, Hannah Blencowe, Jed D Blore, Fiona Blyth, Ian Bolliger, Audrey Bonaventure, Soufiane Boufous, Rupert Bourne, Michel Boussinesq, Tasanee Braithwaite, Carol Brayne, Lisa Bridgett, Simon Brooker, Peter Brooks, Traolach S Brugha, Claire Bryan-Hancock, Chiara Bucello, Rachelle Buchbinder, Geoffrey Buckle, Christine M Budke, Michael Burch, Peter Burney, Roy Burstein, Bianca Calabria, Benjamin Campbell, Charles E Canter, Hélène Carabin, Jonathan Carapetis, Loreto Carmona, Claudia Cella, Fiona Charlson, Honglei Chen, Andrew Tai-Ann Cheng, David Chou, Sumeet S Chugh, Luc E Coffeng, Steven D Colan, Samantha Colquhoun, K Ellicott Colson, John Condon, Myles D Connor, Leslie T Cooper, Matthew Corriere, Monica Cortinovis, Karen Courville de Vaccaro, William Couser, Benjamin C Cowie, Michael H Criqui, Marita Cross, Kaustubh C Dabhadkar, Manu Dahiya, Nabila Dahodwala, James Damsere-Derry, Goodarz Danaei, Adrian Davis, Diego De Leo, Louisa Degenhardt, Robert Dellavalle, Allyne Delossantos, Julie Denenberg, Sarah Derrett, Don C Des Jarlais, Samath D Dharmaratne, Mukesh Dherani, Cesar Diaz-Torne, Helen Dolk, E Ray Dorsey, Tim Driscoll, Herbert Duber, Beth Ebel, Karen Edmond, Alexis Elbaz, Suad Eltahir Ali, Holly Erskine, Patricia J Erwin, Patricia Espindola, Stalin E Ewoigbokhan, Farshad Farzadfar, Valery Feigin, David T Felson, Alize Ferrari, Cleusa P Ferri, Eric M Fèvre, Mariel M Finucane, Seth Flaxman, Louise Flood, Kyle Foreman, Mohammad H Forouzanfar, Francis Gerry R Fowkes, Richard Franklin, Marlene Fransen, Michael K Freeman, Belinda J Gabbe, Sherine E Gabriel, Emmanuela Gakidou, Hammad A Ganatra, Bianca Garcia, Flavio Gaspari, Richard F Gillum, Gerhard Gmel, Richard Gosselin, Rebecca Grainger, Justina Groeger, Francis Guillemin, David Gunnell, Ramyani Gupta, Juanita Haagsma, Holly Hagan, Yara A Halasa, Wayne Hall, Diana Haring, Josep Maria Haro, James E Harrison, Rasmus Havmoeller, Roderick J Hay, Hideki Higashi, Catherine Hill, Bruno Hoen, Howard Hoffman, Peter J Hotez, Damian Hoy, John J Huang, Sydney E Ibeanusi, Kathryn H Jacobsen, Spencer L James, Deborah Jarvis, Rashmi Jasrasaria, Sudha Jayaraman, Nicole Johns, Jost B Jonas, Ganesan Karthikeyan, Nicholas Kassebaum, Norito Kawakami, Andre Keren, Jon-Paul Khoo, Charles H King, Lisa Marie Knowlton, Olive Kobusingye, Adofo Koranteng, Rita Krishnamurthi, Ratilal Lalloo, Laura L Laslett, Tim Lathlean, Janet L Leasher, Yong Yi Lee, James Leigh, Stephen S Lim, Elizabeth Limb, John Kent Lin, Michael Lipnick, Steven E Lipshultz, Wei Liu, Maria Loane, Summer Lockett Ohno, Ronan Lyons, Jixiang Ma, Jacqueline Mabweijano, Michael F MacIntyre, Reza Malekzadeh, Leslie Mallinger, Sivabalan Manivannan, Wagner Marcenes, Lyn March, David J Margolis, Guy B Marks, Robin Marks, Akira Matsumori, Richard Matzopoulos, Bongani M Mayosi, John H McAnulty, Mary M McDermott, Neil McGill, John McGrath, Maria Elena Medina-Mora, Michele Meltzer, George A Mensah, Tony R Merriman, Ana-Claire Meyer, Valeria Miglioli, Matthew Miller, Ted R Miller, Philip B Mitchell, Ana Olga Mocumbi, Terrie E Moffitt, Ali A Mokdad, Lorenzo Monasta, Marcella Montico, Maziar Moradi-Lakeh, Andrew Moran, Lidia Morawska, Rintaro Mori, Michele E Murdoch, Michael K Mwaniki, Kovin Naidoo, M Nathan Nair, Luigi Naldi, K M Venkat Narayan, Paul K Nelson, Robert G Nelson, Michael C Nevitt, Charles R Newton, Sandra Nolte, Paul Norman, Rosana Norman, Martin O'Donnell, Simon O'Hanlon, Casey Olives, Saad B Omer, Katrina Ortblad, Richard Osborne, Doruk Ozgediz, Andrew Page, Bishnu Pahari, Jeyaraj Durai Pandian, Andrea Panozo Rivero, Scott B Patten, Neil Pearce, Rogelio Perez Padilla, Fernando Perez-Ruiz, Norberto Perico, Konrad Pesudovs, David Phillips, Michael R Phillips, Kelsey Pierce, Sébastien Pion, Guilherme V Polanczyk, Suzanne Polinder, C Arden Pope, Svetlana Popova, Esteban Porrini, Farshad Pourmalek, Martin Prince, Rachel L Pullan, Kapa D Ramaiah, Dharani Ranganathan, Homie Razavi, Mathilda Regan, Jürgen T Rehm, David B Rein, Guiseppe Remuzzi, Kathryn Richardson, Frederick P Rivara, Thomas Roberts, Carolyn Robinson, Felipe Rodriguez De Leòn, Luca Ronfani, Robin Room, Lisa C Rosenfeld, Lesley Rushton, Ralph L Sacco, Sukanta Saha, Uchechukwu Sampson, Lidia Sanchez-Riera, Ella Sanman, David C Schwebel, James Graham Scott, Maria Segui-Gomez, Saeid Shahraz, Donald S Shepard, Hwashin Shin, Rupak Shivakoti, David Singh, Gitanjali M Singh, Jasvinder A Singh, Jessica Singleton, David A Sleet, Karen Sliwa, Emma Smith, Jennifer L Smith, Nicolas J C Stapelberg, Andrew Steer, Timothy Steiner, Wilma A Stolk, Lars Jacob Stovner, Christopher Sudfeld, Sana Syed, Giorgio Tamburlini, Mohammad Tavakkoli, Hugh R Taylor, Jennifer A Taylor, William J Taylor, Bernadette Thomas, W Murray Thomson, George D Thurston, Imad M Tleyjeh, Marcello Tonelli, Jeffrey A Towbin, Thomas Truelsen, Miltiadis K Tsilimbaris, Clotilde Ubeda, Eduardo A Undurraga, Marieke J van der Werf, Jim van Os, Monica S Vavilala, N Venketasubramanian, Mengru Wang, Wenzhi Wang, Kerrianne Watt, David J Weatherall, Martin A Weinstock, Robert Weintraub, Marc G Weisskopf, Myrna M Weissman, Richard A White, Harvey Whiteford, Steven T Wiersma, James D Wilkinson, Hywel C Williams, Sean R M Williams, Emma Witt, Frederick Wolfe, Anthony D Woolf, Sarah Wulf, Pon-Hsiu Yeh, Anita K M Zaidi, Zhi-Jie Zheng, David Zonies, Alan D Lopez, Christopher J L Murray, Mohammad A AlMazroa, Ziad A Memish
BACKGROUND: Non-fatal health outcomes from diseases and injuries are a crucial consideration in the promotion and monitoring of individual and population health. The Global Burden of Disease (GBD) studies done in 1990 and 2000 have been the only studies to quantify non-fatal health outcomes across an exhaustive set of disorders at the global and regional level. Neither effort quantified uncertainty in prevalence or years lived with disability (YLDs). METHODS: Of the 291 diseases and injuries in the GBD cause list, 289 cause disability...
December 15, 2012: Lancet
https://www.readbyqxmd.com/read/22889155/getting-the-pain-right-how-low-back-pain-patients-manage-and-express-their-pain-experiences
#19
Eva Ladekjaer Larsen, Claus Vinther Nielsen, Chris Jensen
PURPOSE: Biopsychosocial interventions in low back pain (LBP) rehabilitation aim at preparing patients to accept and manage their pain conditions and to encourage them to maintain their everyday life routines. Although such approaches have demonstrated a positive effect, for example, in relation to return to work (RTW), few studies have explored how social contexts influence how pain is being managed. Using a theoretical approach that addresses pain as social performance, we illustrate how pain is expressed and managed in three different contexts: at the clinic, at home and at work...
May 2013: Disability and Rehabilitation
https://www.readbyqxmd.com/read/22545258/grounded-theory-on-factors-involved-in-the-decision-making-processes-of-patients-treated-with-implant-therapy
#20
Birger Narby, Ulrika Hallberg, Ingrid Collin Bagewitz, Bjorn Soderfeldt
PURPOSE: The aims of this research were to describe the process leading to desire for implant treatment, describe how patients missing teeth gained information about implant treatment, identify gatekeeping factors for implant treatment, and note experiences in changes in oral health-related quality of life. MATERIALS AND METHODS: The constant comparative method for a grounded theory was used in collecting and analyzing data. Ten informants participated in the study, all of whom were treated with implant-supported fixed dentures during the past year...
May 2012: International Journal of Prosthodontics
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