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how to live with constant pain

Kristi L Lockhart, Frank C Keil
We live in an increasingly pharmacological and medical world, where children and adults frequently encounter alleged treatments for an enormous range of illnesses. How do we come to understand what heals and why? Here, 15 studies explore how 1,414 children (ages 5-11) and 882 adults construe the efficacies of different kinds of cures. Developmental patterns in folk physics, psychology, and biology lead to predictions about which expectations about cures will remain relatively constant across development and which will change...
June 2018: Monographs of the Society for Research in Child Development
Sarah J Allgood, Sharon Kozachik, Kamila A Alexander, Abigail Thaxton, Marc Vera, Noah Lechtzin
People living with cystic fibrosis experience pain that is associated with decreased quality of life, poorer health outcomes, and increased mortality. Though pain is highly prevalent as a symptom, it is currently unknown how persons with CF describe their pain experiences or the ways those experiences impact their lives. To explore and describe ways adolescents and adults with CF experience pain. An exploratory descriptive design was implemented to perform interviews with 10 individuals with CF and self-reported moderate to severe pain...
February 28, 2018: Pain Management Nursing: Official Journal of the American Society of Pain Management Nurses
Matteo Motterlini
We are fallible, we have limited computational capabilities, limited access to information, little memory. Moreover, in everyday life, we feel joy, fear, anger, and other emotions that influence our decisions in a little, "calculated" way. Not everyone, however, is also aware that the mistakes we make are often systematic and therefore, in particular circumstances, are foreseeable. Doctors and patients are constantly called upon to make decisions. They need to identify relevant information (for example, the symptoms or outcome of an examination), formulate a judgment (for example a diagnosis), choose an action course among the various possible ones based on one's own preferences (e...
December 2017: Giornale Italiano di Cardiologia
Jonathan Ra Phillips, Beverley Hopwood, Rowenna Stroud, Paul A Dieppe, Andrew D Toms
Background: The aims of this study were to characterise the pain experienced by patients with chronic pain after knee replacement (KR), in whom no apparent 'orthopaedic' problem could be identified, and to establish how many have pain sensitisation problems (including neuropathic pain). Methods: A total of 44 patients were prospectively evaluated at a multidisciplinary tertiary referral clinic by an orthopaedic surgeon, pain specialist, rheumatologist and physiotherapist...
November 2017: British Journal of Pain
Eric C Makhni, Jason T Hamamoto, John D Higgins, Taylor Patterson, Justin W Griffin, Anthony A Romeo, Nikhil N Verma
BACKGROUND: Increasing emphasis is placed on patient-reported outcomes (PROs) after common orthopaedic procedures as a measure of quality. When considering PRO utilization in patients with rotator cuff tears, several different PROs exist with varying levels of accuracy and utilization. HYPOTHESIS/PURPOSE: Understanding which disease-specific PRO may be most efficiently administered in patients after rotator cuff repair may assist in promoting increased patient and physician adoption of these useful scores...
March 2017: Orthopaedic Journal of Sports Medicine
Gabriella Marx, Maximilian Nasse, Henrikje Stanze, Sonja Owusu Boakye, Friedemann Nauck, Nils Schneider
OBJECTIVES: To explore what it means for patients to live with chronic obstructive pulmonary disease (COPD) as an incurable and constantly progressing disease. DESIGN: Qualitative longitudinal study using narrative and semistructured interviews. This paper presents findings of the initial interviews. Analysis using grounded theory. SETTING: Lung care clinics and community care in Lower Saxony, Germany. PARTICIPANTS: 17 patients with advanced-stage COPD (Global Initiative for Chronic Obstructive Lung Disease (GOLD) III/IV)...
December 8, 2016: BMJ Open
Marianne Uggen Rasmussen, Kirstine Amris, Susan Rydahl-Hansen
AIMS AND OBJECTIVES: To describe how group-based multidisciplinary rehabilitation for patients with fibromyalgia can influence patients' self-efficacy and ability to cope with their illness. BACKGROUND: Multidisciplinary rehabilitation is recommended in the management of fibromyalgia. Self-efficacy is said to influence and predict adaptive coping behaviours and functioning. However, knowledge is lacking on how rehabilitation programmes may influence self-efficacy and ability to cope, from the patients' perspective...
April 2017: Journal of Clinical Nursing
Tanja Thomsen, Nina Beyer, Mette Aadahl, Merete L Hetland, Katrine Løppenthin, Julie Midtgaard, Bente A Esbensen
BACKGROUND: Despite increasing interest in investigating sedentary behaviour (SB) in the general population and in patients with rheumatoid arthritis (RA), there is little documentation of the subjective experiences of SB in patients with RA. This study aimed to examine how patients with RA describe their daily SB. METHODS: Fifteen patients with RA (10 women and 5 men) from 23 to 73 years of age and with a disease duration ranging from 4 to 27 years were interviewed following a semi-structured interview guide...
2015: International Journal of Qualitative Studies on Health and Well-being
Beth Coleman, Helen Ellis-Caird, John McGowan, Maxwell J Benjamin
OBJECTIVES: Sickle cell disease (SCD) is the UK's most common blood disorder causing sickle shaped red blood cells to block small blood vessels inducing both acute and chronic pain. A crucial factor in determining quality of life for those with SCD is the severity, timing and number of painful sickling episodes. However, little research focuses on the nature of pain and so it is poorly understood. The aim of this study is to provide an in-depth and meaning led account of the experience of SCD pain...
February 2016: British Journal of Health Psychology
Kjersti Karoline Danielsen, Jorunn Sundgot-Borgen, Gro Rugseth
Physical activity is considered fundamental in lifestyle interventions. We explore experiences of physical activity prior to, during, and following a 10- to 14-week inpatient lifestyle modification program, including high volume of physical activity, for the treatment of severe obesity. Eight participants from a prospective clinical trial were selected to participate in a complementary qualitative study. The participants' experiences with physical activity during and following the treatment program represented different opposites: "pain and pleasure," "desire and duty," and "bubble and battle...
April 2016: Qualitative Health Research
Rohini H Terry, Shea T Palmer, Katharine A Rimes, Carol J Clark, Jane V Simmonds, Jeremy P Horwood
BACKGROUND: Musculoskeletal problems are common reasons for seeking primary health care. It has been suggested that many people with 'everyday' non-inflammatory musculoskeletal problems may have undiagnosed joint hypermobility syndrome (JHS), a complex multi-systemic condition. JHS is characterized by joint laxity, pain, fatigue and a wide range of other symptoms. Physiotherapy is usually the preferred treatment option for JHS, although diagnosis can be difficult. The lived experience of those with JHS requires investigation...
June 2015: Family Practice
Maria Hondras, Corrie Myburgh, Jan Hartvigsen, Scott Haldeman, Helle Johannessen
BACKGROUND: Musculoskeletal diseases are the most common causes of long-term pain and disability worldwide and a growing international public health concern. However, the everyday burden and impact of musculoskeletal conditions are not well understood, especially among people living in low- and middle-income countries in Africa. Since 2011, World Spine Care, a nongovernmental organisation, has collaborated with the Botswana Ministry of Health to open spine care centres and to conduct research...
2015: Chiropractic & Manual Therapies
Grethe Eilertsen, Heidi Ormstad, Marit Kirkevold, Anne M Mengshoel, Siv Söderberg, Malin Olsson
AIMS AND OBJECTIVES: To elucidate the experience of fatigue across several long-term illnesses, focusing on the similarities and differences. BACKGROUND: Fatigue is common to many long-term illnesses, but it has been studied mainly within the context of a single illness; qualitative studies comparing the experience and its impact on daily life across different long-term illnesses are lacking. DESIGN: Qualitative design. METHODS: A secondary analysis was conducted of five original interview studies involving 95 persons with ankylosing spondylitis, fibromyalgia, multiple sclerosis or stroke...
July 2015: Journal of Clinical Nursing
Helen Twohig, Caroline Mitchell, Christian Mallen, Adewale Adebajo, Nigel Mathers
OBJECTIVES: To explore patient experiences of living with, and receiving treatment for, PMR. METHODS: Semi-structured qualitative interviews, with 22 patients with PMR recruited from general practices in South Yorkshire. Thematic analysis using a constant comparative method, ran concurrently with the interviews and was used to derive a conceptual framework. RESULTS: 5 Key themes emerged highlighting the importance of: (1) pain, stiffness and weakness, (2) disability, (3) treatment and disease course, (4) experience of care, (5) psychological impact of PMR...
May 2015: Patient Education and Counseling
Emma Fransson, Lisa Folkesson, Malin Bergström, Viveca Östberg, Petra Lindfors
BACKGROUND: Each year, around 50.000 children in Sweden experience a separation between their parents. Joint physical custody (JPC), where the child alternates homes between the parents for about equal amount of time, has become a common living arrangement after parental separation. Children in two homes could benefit from everyday contact with both parents and access to both parents' financial resources. However, children could experience stress from being constantly moving and potentially exposed to parental conflicts...
2014: BMC Psychology
Jenny Ploeg, Maureen Markle-Reid, Barbara Davies, Kathryn Higuchi, Wendy Gifford, Irmajean Bajnok, Heather McConnell, Jennifer Plenderleith, Sandra Foster, Sue Bookey-Bassett
BACKGROUND: Improving health care quality requires effective and timely spread of innovations that support evidence-based practices. However, there is limited rigorous research on the process of spread, factors influencing spread, and models of spread. It is particularly important to study spread within the home care sector given the aging of the population, expansion of home care services internationally, the high proportion of older adult users of home care services, and the vulnerability of this group who are frail and live with multiple chronic conditions...
2014: Implementation Science: IS
Crystal MacKay, Susan B Jaglal, Joanna Sale, Elizabeth M Badley, Aileen M Davis
OBJECTIVES: To explore the perceived consequences of knee symptoms on the lives of people aged 35-65 years who had diagnosed osteoarthritis (OA) or OA-like symptoms. DESIGN: A qualitative study with six focus groups and 10 one-on-one interviews. Constructivist grounded theory guided data collection and analysis. Data were analysed using the constant comparative method. SETTING: Toronto, Canada. PARTICIPANTS: 51 participants (median age 49; 61% female) who self-reported knee OA or reported knee pain, aching or stiffness on most days of the past month participated in the study...
2014: BMJ Open
Alison Chapple, Suman Prinjha, Helen Salisbury
BACKGROUND: An indwelling urinary catheter can solve the problem of incontinence and may be life-saving in individuals with retention, but it can cause problems such as infection and may have a negative impact on body image, sex, and sexuality. AIM: To explore the individual's perceptions of how a long-term urinary catheter can affect body image, sex, and sexuality; and to help GPs to discuss the subject in consultations. DESIGN AND SETTING: Qualitative study of a diverse sample of individuals living with a long-term urinary catheter...
June 2014: British Journal of General Practice: the Journal of the Royal College of General Practitioners
Thiago D Nascimento, Marcos F DosSantos, Theodora Danciu, Misty DeBoer, Hendrik van Holsbeeck, Sarah R Lucas, Christine Aiello, Leen Khatib, MaryCatherine A Bender, Jon-Kar Zubieta, Alexandre F DaSilva
BACKGROUND: Although population studies have greatly improved our understanding of migraine, they have relied on retrospective self-reports that are subject to memory error and experimenter-induced bias. Furthermore, these studies also lack specifics from the actual time that attacks were occurring, and how patients express and share their ongoing suffering. OBJECTIVE: As technology and language constantly evolve, so does the way we share our suffering. We sought to evaluate the infodemiology of self-reported migraine headache suffering on Twitter...
2014: Journal of Medical Internet Research
Wendy Umberger, Donna Martsolf, Ann Jacobson, Judy Risko, Mary Calabro, Mary Patterson
Chronic non-cancer pain (CNCP) is a prevalent occurrence and is experienced by adults in their child-rearing years. Communication within the family about parental illness can be formidable, and family members are often uninformed about illness details. To date, there is no research exploring how children and adolescents understand parental chronic pain, a very complex phenomenon, and its related disability. The aim of this study was to develop a substantive theory that describes how adolescents manage the experience of living with a parent suffering with CNCP and environmental factors that help or hinder this process...
December 2014: Pain Management Nursing: Official Journal of the American Society of Pain Management Nurses
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