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https://www.readbyqxmd.com/read/27890306/-advocacy-for-pediatric-hospital-reference-centers-specialized-in-child-protection
#1
N Vabres, E Launay, J Fleury, M Lemesle, G Picherot, C Gras-Le Guen
No abstract text is available yet for this article.
December 2016: Archives de Pédiatrie: Organe Officiel de la Sociéte Française de Pédiatrie
https://www.readbyqxmd.com/read/27879297/addressing-the-mental-health-needs-of-latino-children-in-immigrant-families
#2
Tania Maria Caballero, Lisa Ross DeCamp, Rheanna E Platt, Harita Shah, Sara B Johnson, Erica M S Sibinga, Sarah Polk
Latino children in the United States, whether immigrants themselves or children in immigrant families, are at high risk for mental health disorders stemming from poverty, exposure to trauma, assimilation stressors, and discrimination. The timely identification and treatment of mental health disorders in Latino children are compromised by limited healthcare access and quality as well as the lack of routine mental health screening in pediatric primary care. Here we review Spanish-language validity and implementation studies of Bright Futures previsit mental health screening tools and models of care...
November 21, 2016: Clinical Pediatrics
https://www.readbyqxmd.com/read/27812509/type-1-diabetes-addressing-the-transition-from-pediatric-to-adult-oriented-health-care
#3
Maureen Monaghan, Katherine Baumann
Adolescents and young adults with type 1 diabetes are at risk for poor health outcomes, including poor glycemic control, acute and chronic complications, and emergency department admissions. During this developmental period, adolescent and young adult patients also experience significant changes in living situation, education, and/or health care delivery, including transferring from pediatric to adult health care. In recent years, professional and advocacy organizations have proposed expert guidelines to improve the process of preparation for and transition to adult-oriented health care...
2016: Research and Reports in Endocrine Disorders
https://www.readbyqxmd.com/read/27802949/clinical-nurse-participation-at-family-conferences-in-the-pediatric-intensive-care-unit
#4
Anne C Watson, Tessie W October
BACKGROUND: Clinical nurses attend family conferences in the intensive care unit, but their role during these meetings is not yet fully understood. OBJECTIVES: To assess perceived and observed contributions of the clinical nurse during family conferences. METHODS: Prospective cross-sectional survey and review of 40 audio-recorded family conferences conducted in the 44-bed pediatric intensive care unit of an urban pediatric hospital. RESULTS: Survey responses from 47 nurses were examined...
November 2016: American Journal of Critical Care: An Official Publication, American Association of Critical-Care Nurses
https://www.readbyqxmd.com/read/27798814/a-latent-class-analysis-to-identify-variation-in-caregivers-preferences-for-their-child-s-attention-deficit-hyperactivity-disorder-treatment-do-stated-preferences-match-current-treatment
#5
Xinyi Ng, John F P Bridges, Melissa M Ross, Emily Frosch, Gloria Reeves, Charles E Cunningham, Susan dosReis
OBJECTIVES: To investigate variation in caregiver preferences for their child's attention-deficit/hyperactivity disorder (ADHD) care and to determine if their stated preferences align with current care management. METHODS: Caregivers of a child aged 4-14 years and in care for ADHD were recruited from pediatric outpatient clinics and advocacy groups across the state of Maryland. Participants completed a survey collecting demographics, the child's treatment, and caregiver preferences-elicited using a best-worst scaling experiment (case 2)...
October 31, 2016: Patient
https://www.readbyqxmd.com/read/27772692/the-letter-p-and-pediatric-advocacy
#6
Moira Szilagyi
No abstract text is available yet for this article.
November 2016: Academic Pediatrics
https://www.readbyqxmd.com/read/27769758/enablers-and-barriers-of-men-with-duchenne-muscular-dystrophy-transitioning-from-an-adult-clinic-within-a-pediatric-hospital
#7
Sally Lindsay, Laura McAdam, Tania Mahendiran
BACKGROUND: Young men with Duchenne muscular dystrophy (DMD) live into adulthood and need specialized care. However, services for adults are fragmented. We know little about young men's experiences, their parents, and clinicians who support them as they transition to adult care. OBJECTIVE: To explore the enablers and barriers of clinicians, young men, and parents as they transition from an adult DMD clinic within a pediatric hospital to an adult health facility...
January 2017: Disability and Health Journal
https://www.readbyqxmd.com/read/27749667/magnetic-foreign-body-ingestions
#8
Michael J Alfonzo, Carl R Baum
Magnets are inherently attractive to young children, but present a risk when ingested. If consumed alone, small, smooth magnetic foreign bodies are likely to pass without significant event; however, ingestion of multiple magnets may have catastrophic consequences, including bowel perforation, obstruction, peritonitis, and death. Increasing reports of morbidity and mortality in recent years from the US National Electronic Injury Surveillance System has led to numerous safety statements from the American Academy of Pediatrics and the Centers for Disease Control and Prevention, as well as several product recalls from the Consumer Product Safety Commission...
October 2016: Pediatric Emergency Care
https://www.readbyqxmd.com/read/27727442/difficult-relationships-between-parents-and-physicians-of-children-with-cancer-a-qualitative-study-of-parent-and-physician-perspectives
#9
Jennifer W Mack, Maya Ilowite, Sarah Taddei
BACKGROUND: Previous work on difficult relationships between patients and physicians has largely focused on the adult primary care setting and has typically held patients responsible for challenges. Little is known about experiences in pediatrics and more serious illness; therefore, we examined difficult relationships between parents and physicians of children with cancer. METHODS: This was a cross-sectional, semistructured interview study of parents and physicians of children with cancer at the Dana-Farber Cancer Institute and Boston Children's Hospital (Boston, Mass) in longitudinal primary oncology relationships in which the parent, physician, or both considered the relationship difficult...
October 11, 2016: Cancer
https://www.readbyqxmd.com/read/27621187/burden-of-disease-in-adult-patients-with-hypophosphatasia-results-from-two-patient-reported-surveys
#10
Thomas J Weber, Eileen K Sawyer, Scott Moseley, Tatjana Odrljin, Priya S Kishnani
BACKGROUND: Hypophosphatasia (HPP) is a rare metabolic bone disease caused by loss-of-function mutation(s) in the tissue-nonspecific alkaline (TNSALP) phosphatase gene, which manifests as rickets and/or osteomalacia with systemic complications and affects patients of all ages. The burden of disease is poorly characterized in adult patients. AIMS: We assessed patient-reported burden of disease using two surveys reasonably specific for HPP symptomatology, the Hypophosphatasia Impact Patient Survey (HIPS) and the Hypophosphatasia Outcomes Study Telephone interview (HOST)...
October 2016: Metabolism: Clinical and Experimental
https://www.readbyqxmd.com/read/27595514/a-coordinated-transition-model-for-patients-with-cystinosis-from-pediatrics-to-adult-care
#11
Gema Ariceta, Juan Antonio Camacho, Matilde Fernández-Obispo, Aurora Fernández-Polo, Josep Gámez, Judit García-Villoria, Enrique Lara, Pere Leyes, Nieves Martín-Begué, Manel Perelló, Guillem Pintos-Morell, Roser Torra, J Vicens Torregrosa, Sandra Torres-Sierra, Anna Vila-Santandreu, Ana Güell
INTRODUCTION: Improved outcome and longer life-expectancy in patients with cystinosis, and disease complexity itself, justify planning a guided-transition of affected patients from Pediatrics to adult medicine. The aims of the process are to guarantee the continuum of care and patient empowerment, moving from guardian-care to self-care. METHODS: review of articles, expert opinion and anonymous surveys of patients, relatives and patient advocacy groups. RESULTS: elaboration a new document to support and coordinate the transition of patients with cystinosis providing specific proposals in a variety of medical fields, and adherence promotion...
November 2016: Nefrología: Publicación Oficial de la Sociedad Española Nefrologia
https://www.readbyqxmd.com/read/27588934/-you-know-the-medicine-i-know-my-kid-how-parents-advocate-for-their-children-living-with-complex-chronic-conditions
#12
Katherine A Rafferty, Shelbie L Sullivan
Caring for a child with a chronic condition has received considerable attention in the pediatric health literature. Today, approximately 1 out of 5 North American children are diagnosed with a chronic condition that requires parents to become caregivers and advocates. Although advocacy is regarded as a significant aspect to parental caregiving, more research is needed to better define this oversimplified and misrepresented concept in clinical practice and research. Subsequently, we interviewed 35 parents of children diagnosed with complex chronic conditions...
September 2, 2016: Health Communication
https://www.readbyqxmd.com/read/27541698/variation-in-us-outpatient-antibiotic-prescribing-quality-measures-according-to-health-plan-and-geography
#13
Rebecca M Roberts, Lauri A Hicks, Monina Bartoces
OBJECTIVES: Antibiotic prescribing has become increasingly viewed as an issue related to patient safety and quality of care. The objective of this study was to better understand the differences between health plan reporting and the geographic variation seen in quality measures related to antibiotic use. STUDY DESIGN: We focused on 3 measures from the Healthcare Effectiveness Data and Information Set (HEDIS) related to antibiotic prescribing and testing to guide antibiotic prescribing...
August 2016: American Journal of Managed Care
https://www.readbyqxmd.com/read/27497413/profile-of-pediatric-traditional-uvulectomy-in-north-west-nigeria-the%C3%A2-need-for-caution-and-education
#14
Stephen Oluwatosin Adebola, Segun Ayodeji Ogunkeyede, Francis Ameh Obebe, Oladunjoye David Olaniyan, Olumakinde Banjo Fawole, Abdulwasiu Salman
OBJECTIVES: The study assessed the prevalence of complications associated with traditional uvulectomy and identified factors associated with favorable outcome after management in a pediatric population in North-Western Nigeria. STUDY DESIGN AND SETTING: This cross-sectional descriptive study was carried out at the accident and emergency section as well as at the otolaryngology out-patient clinic of the Federal Medical Centre, Birnin-Kebbi, Nigeria. METHODS: Patients with traditional uvulectomy complications were recruited on consecutive basis and sample size was dependent on the patients seen over the study period...
September 2016: International Journal of Pediatric Otorhinolaryngology
https://www.readbyqxmd.com/read/27496599/the-national-trauma-research-repository-ushering-in-a-new-era-of-trauma-research-commentary
#15
Sharon L Smith, Michelle A Price, Timothy C Fabian, Gregory J Jurkovich, Basil A Pruitt, Ronald M Stewart, Donald H Jenkins
Despite being the leading cause of death in the United States for individuals 46 years and younger and the primary cause of death among military service members, trauma care research has been underfunded for the last 50 years. Sustained federal funding for a coordinated national trauma clinical research program is required to advance the science of caring for the injured. The Department of Defense is committed to funding studies with military relevance; therefore, it cannot fund pediatric or geriatric trauma clinical trials...
September 2016: Shock
https://www.readbyqxmd.com/read/27489404/the-role-of-the-world-health-organization-s-international-classification-of-functioning-health-and-disability-in-models-of-infant-cochlear-implant-management
#16
REVIEW
Colleen Psarros, Sarah Love
Newborn hearing screening has led to the early diagnosis of hearing loss in neonates and early device fitting is common, based primarily on electrophysiologic and radiologic information, with some supplementary behavioral measures. Such early fitting of hearing devices, in particular cochlear implants (CIs), has been beneficial to the majority of children implanted under the age of 12 months who meet the cochlear implant candidacy criteria. Comorbidities are common in children with hearing loss, although they may not be evident in neonates and may not emerge until later in infants...
August 2016: Seminars in Hearing
https://www.readbyqxmd.com/read/27464304/primary-ciliary-dyskinesia-first-health-related-quality-of-life-measures-for-pediatric-patients
#17
Sharon D Dell, Margaret W Leigh, Jane S Lucas, Thomas W Ferkol, Michael R Knowles, Adrianne Alpern, Laura Behan, Anjana M Morris, Claire Hogg, Audrey DunnGalvin, Alexandra L Quittner
RATIONALE: Primary ciliary dyskinesia (PCD) is a rare disease. There are no available data on disease-specific pediatric patient-reported outcomes. OBJECTIVES: Our objective was to create developmentally appropriate, health-related quality-of-life questionnaires (QOL-PCD) for children (6-12 yr) and adolescents (13-17 yr) with PCD and a parent proxy measure. METHODS: The QOL-PCD was developed using a cross-cultural protocol-driven approach satisfying both North American and European drug regulatory agency guidelines...
October 2016: Annals of the American Thoracic Society
https://www.readbyqxmd.com/read/27442210/cancer-communication-on-social-media-examining-how-cancer-caregivers-use-facebook-for-cancer-related-communication
#18
Elizabeth A Gage-Bouchard, Susan LaValley, Michelle Mollica, Lynda Kwon Beaupin
BACKGROUND: Americans are increasingly using social media (such as Facebook, YouTube, and Twitter) for health-related communication. Much of the previous research on social media and health communication has focused on Facebook groups related to a specific disease or Facebook pages related to an advocacy organization. Less is known about how people communicate about cancer on personal Facebook pages. OBJECTIVE: In this study, we expand upon previous research by examining how cancer caregivers use personal Facebook pages for cancer-related communication...
July 20, 2016: Cancer Nursing
https://www.readbyqxmd.com/read/27393387/practice-patterns-revisited-in-pediatric-psychosomatic-medicine
#19
Richard J Shaw, Maryland Pao, Jennifer E Holland, David R DeMaso
BACKGROUND: Given the heightened focus on the implementation of integrated care and population health management strategies, there is a critical need for an analysis of pediatric psychosomatic medicine (PPM) programs. OBJECTIVE: The goal was to survey current practice patterns in academic PPM programs in North America regarding their service composition, clinical consultation services, changes in service demand, funding, and major challenges so as to inform and support advocacy efforts on behalf of children in their need for responsive and effective PPM services...
May 21, 2016: Psychosomatics
https://www.readbyqxmd.com/read/27264899/epidemiology-of-distal-radius-fractures-and-factors-predicting-risk-and-prognosis
#20
Norma J MacIntyre, Neha Dewan
STUDY DESIGN: Literature Review. INTRODUCTION: For optimal Distal Radius Fracture (DRF) rehabilitation and fracture prevention, it is important to understand the epidemiology and factors predictive of injury, chronic pain, chronic disability, and subsequent fracture. PURPOSE: To summarize the literature reporting on DRF epidemiology, risk factors, and prognostic factors. METHODS: Literature synthesis. RESULTS: Although incidence varies globally, DRFs are common across the lifespan and appear to be on the rise...
April 2016: Journal of Hand Therapy: Official Journal of the American Society of Hand Therapists
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