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Pediatric advocacy

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https://www.readbyqxmd.com/read/29656703/the-ethics-of-concurrent-care-for-children-a-social-justice-perspective
#1
Kim Mooney-Doyle, Jessica Keim-Malpass, Lisa C Lindley
Recent estimates indicate that over 40,000 children die annually in the United States and a majority have life-limiting conditions. Children at end of life require extensive healthcare resources, including multiple hospital readmissions and emergency room visits. Yet, many children still suffer from symptoms at end of life-including fatigue, pain, dyspnea, and anxiety-with less than 10% of these children utilizing hospice care services. A critical barrier to pediatric hospice use was the original federal regulations associated with the hospice care that required a diagnosis of 6 months to live and the discontinuation of all curative treatments...
January 1, 2018: Nursing Ethics
https://www.readbyqxmd.com/read/29653255/promoting-father-involvement-for-child-and-family-health
#2
REVIEW
Brandon S Allport, Sara Johnson, Anushka Aqil, Alain B Labrique, Timothy Nelson, Angela Kc, Yorghos Carabas, Arik V Marcell
Paternal involvement in children's lives is associated with a variety of child outcomes, from improved cognition and mental health to reduced obesity rates and asthma exacerbations. Given this evidence, the American Academy of Pediatrics has promoted actions by pediatricians to engage fathers in pediatric care. Despite these recommendations, the mother-child dyad remains a frequent focus of care, rather than the mother-father-child triad. Furthermore, pediatric care is often leveraged to improve maternal health, such as screening for maternal depression, but paternal health is infrequently addressed even as men tend to exhibit riskier behaviors, poorer primary care utilization, and lower life expectancy...
April 10, 2018: Academic Pediatrics
https://www.readbyqxmd.com/read/29600747/the-effectiveness-of-a-hospital-based-school-liaison-program-a-comparative-study-of-parental-perception-of-school-supports-for-children-with-pediatric-cancer-and-neurofibromatosis-type-1
#3
Lisa Northman, Marybeth Morris, Caitlyn Loucas, Sarah Ross, Anna C Muriel, Dongjing Guo, Wendy B London, Peter Manley, Nicole J Ullrich
Childhood survivors of central nervous system (CNS) cancers (defined as cancers whose diagnosis or treatment affect the CNS) are at increased risk for educational related difficulties, as are children affected by neurofibromatosis type 1. This study evaluated the effectiveness of and satisfaction with a model of psychoeducation, consultation, and advocacy provided by a School Liaison Program (SLP) for families and schools of children with CNS-involved cancers compared with a control group of parents of children with a diagnosis of neurofibromatosis type 1 who did not receive school-based services...
March 1, 2018: Journal of Pediatric Oncology Nursing: Official Journal of the Association of Pediatric Oncology Nurses
https://www.readbyqxmd.com/read/29582520/pediatric-endocrine-society-survey-of-diabetes-practices-in-the-united-states-what-is-the-current-state
#4
Ines Guttmann-Bauman, Paul Thornton, Soumya Adhikari, Kent Reifschneider, Michael A Wood, Tyler Hamby, Karen Rubin
The Practice Management Committee (PMC) of the Pediatric Endocrine Society (PES) conducted a survey of its membership in February/March 2016 to assess the current state of pediatric diabetes care delivery across multiple practice types in the United States. RESEARCH DESIGN AND METHODS: The PES distributed an anonymous electronic survey (Survey Monkey) via email to its membership and requested that only one survey be completed for each practice. RESULTS: Ninety-three unique entries from the US were entered into analysis...
March 26, 2018: Pediatric Diabetes
https://www.readbyqxmd.com/read/29579005/a-pediatric-service-learning-program-in-physical-therapy-education
#5
Yu-Jen Hou, Wen-Yu Liu, Yang-Hua Lin, Hen-Yu Lien, Alice M K Wong, Chien-Min Chen
PURPOSE: The purpose of this report was to describe a pediatric service-learning program in entry-level physical therapy (PT) education in Taiwan. KEY POINTS: To meet the needs of the local community and provide preclinical service-learning experience to PT students with people with physical disability, a service-learning program of a 2-day camp for children with cerebral palsy (CP) was developed in 2012. To date, 356 entry-level PT students have participated in this program, serving 286 children and their families...
April 2018: Pediatric Physical Therapy
https://www.readbyqxmd.com/read/29560150/a-fuzzy-rule-based-expert-system-for-diagnosing-cystic-fibrosis
#6
Maryam Hassanzad, Azam Orooji, Ali Valinejadi, Aliakbar Velayati
Background: Finding a valid diagnosis is mostly a prolonged process. Current advances in the sector of artificial intelligence have led to the appearance of expert systems that enrich the experiences and capabilities of doctors for making decisions for their patients. Objective: The objective of this research was developing a fuzzy expert system for diagnosing Cystic Fibrosis (CF). Methods: Defining the risk factors and then, designing the fuzzy expert system for diagnosis of CF were carried out in this cross-sectional study...
December 2017: Electronic Physician
https://www.readbyqxmd.com/read/29548493/quantifying-delays-and-self-identified-barriers-to-timely-access-to-pediatric-surgery-at-mbarara-regional-referral-hospital-uganda
#7
Mercedes Pilkington, Martin Situma, Andrea Winthrop, Dan Poenaru
PURPOSE: Favorable surgical outcomes depend on timely access to care. This study quantifies these delays and explores caregiver barriers to access in a Ugandan facility. METHODS: An interviewer-facilitated survey was administered over 8months to consecutive pediatric surgical families at Mbarara Regional Referral Hospital (MRRH). Delays were classified using the Three Delays Model: care-seeking, arrival at health facility, and from surgical consultation to surgery...
February 12, 2018: Journal of Pediatric Surgery
https://www.readbyqxmd.com/read/29547642/-before-xpert-i-only-had-my-expertise-a-qualitative-study-on-the-utilization-and-effects-of-xpert-technology-among-pediatricians-in-4-indian-cities
#8
Andrew McDowell, Neeraj Raizada, Sunil D Khaparde, Raghuram Rao, Sanjay Sarin, Aakshi Kalra, Virender Singh Salhotra, Sreenivas Achuthan Nair, Catharina Boehme, Claudia M Denkinger
BACKGROUND: Diagnosing tuberculosis (TB) in children presents considerable challenges. Upfront testing on Xpert® MTB/RIF ('Xpert')-a rapid molecular assay with high sensitivity and specificity-for pediatric presumptive TB patients, as recommended by India's Revised National Tuberculosis Control Program (RNTCP), can pave the way for early TB diagnosis. As part of an ongoing project implemented by Foundation for Innovative New Diagnostics (FIND) dedicated to providing upfront free-of-cost (FOC) Xpert testing to children seeking care in the public and private sectors, a qualitative assessment was designed to understand how national guidelines on TB diagnosis and Xpert technology have been integrated into the pediatric TB care practices of different health providers...
2018: PloS One
https://www.readbyqxmd.com/read/29494321/clinical-practice-guideline-hoarseness-dysphonia-update
#9
Robert J Stachler, David O Francis, Seth R Schwartz, Cecelia C Damask, German P Digoy, Helene J Krouse, Scott J McCoy, Daniel R Ouellette, Rita R Patel, Charles Charlie W Reavis, Libby J Smith, Marshall Smith, Steven W Strode, Peak Woo, Lorraine C Nnacheta
Objective This guideline provides evidence-based recommendations on treating patients who present with dysphonia, which is characterized by altered vocal quality, pitch, loudness, or vocal effort that impairs communication and/or quality of life. Dysphonia affects nearly one-third of the population at some point in its life. This guideline applies to all age groups evaluated in a setting where dysphonia would be identified or managed. It is intended for all clinicians who are likely to diagnose and treat patients with dysphonia...
March 2018: Otolaryngology—Head and Neck Surgery
https://www.readbyqxmd.com/read/29494316/clinical-practice-guideline-hoarseness-dysphonia-update-executive-summary
#10
Robert J Stachler, David O Francis, Seth R Schwartz, Cecelia C Damask, German P Digoy, Helene J Krouse, Scott J McCoy, Daniel R Ouellette, Rita R Patel, Charles Charlie W Reavis, Libby J Smith, Marshall Smith, Steven W Strode, Peak Woo, Lorraine C Nnacheta
Objective This guideline provides evidence-based recommendations on treating patients presenting with dysphonia, which is characterized by altered vocal quality, pitch, loudness, or vocal effort that impairs communication and/or quality of life. Dysphonia affects nearly one-third of the population at some point in its life. This guideline applies to all age groups evaluated in a setting where dysphonia would be identified or managed. It is intended for all clinicians who are likely to diagnose and treat patients with dysphonia...
March 2018: Otolaryngology—Head and Neck Surgery
https://www.readbyqxmd.com/read/29489736/current-state-of-the-opioid-epidemic-as-it-pertains-to-pediatric-orthopaedics-from-the-advocacy-committee-of-the-pediatric-orthopaedic-society-of-north-america
#11
Ellen M Raney, Harold J P van Bosse, Kevin G Shea, Joshua M Abzug, Richard M Schwend
INTRODUCTION: The opioid epidemic in the United States has reached crisis proportions. Urgent response is needed. Hydrocodone in combination with acetaminophen is the most prescribed drug in the United States. The most common source of opioids available for misuse is the unused portions of postoperative prescriptions. Among high school seniors, 80% of those who reported nonmedical use of prescription opioids previously had legitimate prescriptions but recreationally used leftover doses...
February 27, 2018: Journal of Pediatric Orthopedics
https://www.readbyqxmd.com/read/29475375/barriers-and-facilitators-to-clinical-trial-participation-among-parents-of-children-with-pediatric-neuromuscular-disorders
#12
Holly L Peay, Barbara B Biesecker, Benjamin S Wilfond, Jill Jarecki, Kendall L Umstead, Diana M Escolar, Aad Tibben
BACKGROUND/AIMS: Pediatric rare disease presents a challenging situation of high unmet need and a limited pool of potential clinical trial participants. Understanding perspectives of parents of children who have not participated in trials may facilitate approaches to optimize participation rates. The objective of this study was to explore factors associated with parental interest in enrolling children with pediatric neuromuscular disorders in clinical trials. METHODS: Parents of individuals with Duchenne or Becker muscular dystrophy and spinal muscular atrophy were recruited through advocacy organizations, a registry, and clinics...
January 1, 2018: Clinical Trials: Journal of the Society for Clinical Trials
https://www.readbyqxmd.com/read/29468566/pediatric-psychologists-collaboration-in-a-national-pediatric-obesity-initiative-a-case-study-in-interprofessional-collaboration
#13
REVIEW
Wendy L Ward, Laura A Shaffer, Elizabeth Getzoff Testa
Health Care reform calls for collaborative team-based care; psychologists must therefore strengthen their competencies for work in interprofessional clinical care settings. Toward that end, a group of psychologists participated with physicians, dieticians, physical activity specialists, nurses, and others in a national interprofessional workgroup focused on pediatric obesity. The interprofessional group was designed to identify areas in need of national advocacy, key assessment and treatment concerns, and gaps in internal policies and procedures in children's hospitals...
February 21, 2018: Journal of Clinical Psychology in Medical Settings
https://www.readbyqxmd.com/read/29464967/the-familias-saludables-partnership-engaging-the-latino-community-to-address-early-childhood-obesity
#14
Darcy A Thompson, Deborah A Federspiel
Darcy A Thompson is an Associate Professor of pediatrics at the University of Colorado School of Medicine. Her main research seeks to address early childhood obesity in low-income children. She works in the Lifestyle Medicine clinic at Children's Hospital Colorado, a clinic focused on caring for children with obesity and related comorbidities. She is also an Associate Medical Director for the Research Institute at Children's Hospital Colorado. Her training includes a Master of Public Health degree, a medical degree (Yale University) and the Robert Wood Johnson Clinical Scholars Fellowship (University of Washington)...
February 21, 2018: Journal of Comparative Effectiveness Research
https://www.readbyqxmd.com/read/29462383/moving-on-transition-readiness-in-adolescents-and-young-adults-with-ibd
#15
Amitha Prasad Gumidyala, Rachel N Greenley, Jill M Plevinsky, Natasha Poulopoulos, Jose Cabrera, Diana Lerner, Joshua D Noe, Dorota Walkiewicz, Steven Werlin, Stacy A Kahn
Background: Inflammatory bowel diseases (IBD) often begins early in life. Adolescents and young adults (AYA) with IBD have to acquire behaviors that support self-care, effective healthcare decision-making, and self-advocacy to successfully transition from pediatric to adult health care. Despite the importance of this critical time period, limited empirical study of factors associated with transition readiness in AYA exists. This study aimed to describe transition readiness in a sample of AYA with IBD and identify associated modifiable and nonmodifiable factors...
February 15, 2018: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/29461383/evaluating-nurse-practitioners-perceived-knowledge-competence-and-comfort-level-in-caring-for-the-sexually-abused-child
#16
Janice Ceccucci
OBJECTIVE: The purpose of this project was to evaluate nurse practitioners' (NPs') current approach and self-reported competence in the care of the sexually abused child in the primary care setting. METHODS: A 50-question survey was distributed to 5,734 NPs who were members of a state nursing organization and nursing alumni. Inclusion criteria included NPs caring for pediatric patients in a primary care setting in New York State. RESULTS: A total of N = 325 responses were obtained, and 110 participants met the inclusion criteria...
January 2018: Journal of Forensic Nursing
https://www.readbyqxmd.com/read/29427688/asset-based-community-development-as-a-strategy-for-developing-local-global-health-curricula
#17
Sarah Webber, Sabrina M Butteris, Laura Houser, Karen Coller, Ryan J Coller
BACKGROUND: A significant and growing proportion of US children have immigrant parents, an issue of increasing importance to pediatricians. Training globally minded pediatric residents to address health inequities related to globalization is an important reason to expand educational strategies around local global health (LGH). METHODS: We developed a curriculum in the pediatric global health residency track at the University of Wisconsin in an effort to address gaps in LGH education and to increase resident knowledge about local health disparities for global community members...
February 7, 2018: Academic Pediatrics
https://www.readbyqxmd.com/read/29422230/commercial-sexual-exploitation-of-children-health-care-use-and-case-characteristics
#18
Gail Hornor, Jennifer Sherfield
OBJECTIVE: The purpose of this study was to describe pediatric health care utilization, familial psychosocial factors, child sexual abuse case characteristics, and patient demographic characteristics of adolescents prior to or at the time of their most recent identification as a victim of commercialized sexual exploitation of children (CSEC). METHODS: A retrospective chart review was conducted for the above detailed information of all adolescents presenting to the Emergency Department (ED) or Child Advocacy Center (CAC) of a pediatric hospital with concerns of suspected CSEC...
February 6, 2018: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/29392228/pediatric-chronic-pain-programs-current-and-ideal-practice
#19
Jordi Miró, Patrick J McGrath, G Allen Finley, Gary A Walco
Introduction: The treatment of youth with chronic pain has improved in recent years. However, because pediatric chronic pain programs are not governed by international standards, the development and implementation of new initiatives may be limited. Objectives: The objectives of this study were to identify the features of programs as they exist at present and to determine what features they should have in an ideal state. Methods: A web-based international survey was used to collect information...
September 2017: Pain Reports (Baltimore, Md.)
https://www.readbyqxmd.com/read/29385013/investigating-the-model-of-community-based-case-management-in-the-new-south-wales-brain-injury-rehabilitation-program-a-prospective-multicenter-study
#20
Grahame Simpson, Virginia Mitsch, Margaret Doyle, Marcella Forman, Denise Young, Vicki Solomon, Margaret MacPherson, Lauren Gillett, Barbara Strettles
OBJECTIVE: To investigate a model of community-based case management (CM). SETTING: New South Wales (NSW) Brain Injury Rehabilitation Program (BIRP). PARTICIPANTS: All clinicians (N = 72) providing CM within 14 BIRP community rehabilitation teams. DESIGN: A prospective, multicenter study. MAIN MEASURES: A purpose-designed survey. METHODS: Participants from the 12 adult and 2 pediatric services (8 located in metropolitan areas, 6 in rural areas) completed a 3-part survey investigating their organizational context, clinical approach, and CM interventions...
January 30, 2018: Journal of Head Trauma Rehabilitation
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