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https://www.readbyqxmd.com/read/28087401/how-the-eucerd-joint-action-supported-initiatives-on-rare-diseases
#1
REVIEW
Stephen Lynn, Victoria Hedley, Antonio Atalaia, Teresinha Evangelista, Kate Bushby
Joint Actions are successful initiatives from the European Commission (EC) that have helped to raise awareness and to bring significant benefit to those suffering from a rare disease (RD). In this paper, we will focus on the activities developed by the EUCERD Joint Action (EJA) and by the Orphanet Joint Action ("Orphanet Europe"). EUCERD Joint Action was co-funded by the EC and the Member States between 2012 and 2015 to help to define the activities and policies in the field of Rare Diseases and foster exchange of experiences amongst Member States...
January 10, 2017: European Journal of Medical Genetics
https://www.readbyqxmd.com/read/28086760/education-of-pediatric-subspecialty-fellows-in-transport-medicine-a-national-survey
#2
Geoffrey E Mickells, Denise M Goodman, Ranna A Rozenfeld
BACKGROUND: The transport of critically ill patients to children's hospitals is essential to current practice. The AAP Section on Transport Medicine has raised concerns about future leadership in the field as trainees receive less exposure to transport medicine. This study identifies the priorities of pediatric subspecialty fellows, fellowship directors and nursing directors in transport medicine education. METHODS: Internet based surveys were distributed to fellows, fellowship directors and nursing directors of transport teams affiliated with ACGME-approved fellowships in Neonatal-Perinatal Medicine (NPM), Pediatric Critical Care Medicine (PCCM), and Pediatric Emergency Medicine (PEM)...
January 13, 2017: BMC Pediatrics
https://www.readbyqxmd.com/read/28079622/prevalence-and-determinants-of-job-stress-in-patients-with-inflammatory-bowel-disease
#3
Philipp Schreiner, Luc Biedermann, Jean-Benoit Rossel, Gerhard Rogler, Valérie Pittet, Roland von Känel
BACKGROUND: Psychosocial factors have been shown to predict a poor disease course in patients with inflammatory bowel disease (IBD), but whether this applies to job stress is currently unknown. We assessed the prevalence of job stress and its correlates in a large cohort of patients with IBD. METHODS: We included all adult, professionally active patients enrolled between 2006 and 2015 in the Swiss IBD Cohort. Job stress was measured through the self-report effort-reward imbalance ratio and overcommitment (OC) to work questionnaires...
January 10, 2017: Inflammatory Bowel Diseases
https://www.readbyqxmd.com/read/28078468/surgery-of-the-hallux-valgus-in-an-ambulatory-setting-a-liability-risk
#4
L Galois, J-M Serwier, A D Arashvand
INTRODUCTION: The primary objective of the study is to make an inventory of malpractice in hallux valgus surgery in an ambulatory setting and to identify the patient characteristics for a higher risk of malpractice. The secondary objective is creating a methodology for analyzing the medicolegal aspects of a surgery in day case comparing with hospitalization. MATERIALS AND METHODS: The database of the Branchet insurance company was used. A total of 11,000 claims for a period of 11 years (2002-2013) have been investigated...
January 11, 2017: European Journal of Orthopaedic Surgery & Traumatology: Orthopédie Traumatologie
https://www.readbyqxmd.com/read/28077739/the-emergence-of-undergraduate-majors-in-global-health-systematic-review-of-programs-and-recommendations-for-future-directions
#5
Paul K Drain, Charles Mock, David Toole, Anne Rosenwald, Megan Jehn, Thomas Csordas, Laura Ferguson, Caryl Waggett, Chinekwu Obidoa, Judith N Wasserheit
Global health education has been expanding rapidly and several universities have created an undergraduate major degree (bachelor's degree) in global heath or global health studies. Because there are currently no national guidelines for undergraduate degrees in global health, each of these programs was developed along individual lines. To guide the development of future global health majors, we conducted a systematic review of undergraduate majors in global health. We identified eight programs and invited program directors or representatives to a symposium at the Consortium of Universities for Global Health 2016 conference to review their existing undergraduate major in global health and to discuss lessons learned and recommendations for other colleges and universities seeking to develop undergraduate degrees in global health...
January 11, 2017: American Journal of Tropical Medicine and Hygiene
https://www.readbyqxmd.com/read/28076689/national-organization-of-nurse-practitioner-faculties
#6
Dawn M Vanderhoef, Kathleen R Delaney
BACKGROUND: No data exist about how directors of psychiatric mental health (PMH) graduate nurse practitioner (NP) programs have dealt with moving their programs to a lifespan model. It is equally unclear as to how many programs have changed to a doctor of nursing practice (DNP) level of clinical education. OBJECTIVES: The purpose of this survey was to gather data on the state of graduate PMH NP education as they align with regulatory models. DESIGN: A brief survey was sent via e-mail to 118 program directors of PMH NP programs...
January 1, 2017: Journal of the American Psychiatric Nurses Association
https://www.readbyqxmd.com/read/28075317/-respect-everyone-around-you
#7
(no author information available yet)
Estephanie Dunn qualified as a nurse at London's King's College Hospital. She has held clinical, managerial and academic roles, including health visitor, lecturer in nurse education at the University of Northumbria, and director of nursing for South Tyneside Primary Care Trust. She was appointed operational manager for the RCN Northern region in 2009 and has been in her current role as RCN North West regional director since 2014.
January 11, 2017: Nursing Standard
https://www.readbyqxmd.com/read/28075178/the-scope-of-physiotherapy-services-provided-in-public-icus-in-greece-a-pilot-study
#8
Eirini Grammatopoulou, Theodoros N Charmpas, Eftychia G Strati, Nikolaos Tsamis, Afroditi Evagelodimou, Vlassia Belimpasaki, Emmanouil K Skordilis
The aim of the present study was to determine the scope of physiotherapy services provided in Greek ICUs in Athens. A cross-sectional study was conducted with two postal questionnaires administered separately, one for ICU directors and one for ICU physiotherapists. Responses were received from 19 ICU directors and 103 physiotherapists employed in all the adult public mixed medical and surgical ICUs across Athens. The response rate for the survey completion was 100% for ICU directors and 68.7% for physiotherapists...
January 11, 2017: Physiotherapy Theory and Practice
https://www.readbyqxmd.com/read/28072757/organ-procurement-organization-survey-of-practices-and-beliefs-regarding-prerecovery-percutaneous-liver-biopsy-in-donation-after-neurologic-determination-of-death
#9
Joseph Benton Oliver, Andrea Fleisch Marcus, Mark Paster, Joseph Nespral, Advaith Bongu, George Dikdan, Lloyd Brown, Nikole Neidlinger, Baburao Koneru
BACKGROUND: Prerecovery liver biopsy (PLB) allows histological evaluation of the organ prior to procurement. The opinions and what factors might influence PLB use within Organ Procurement Organizations (OPOs) are unknown. METHODS: A survey instrument was distributed by the Association of OPOs to the clinical directors of all 58 OPOs. Descriptive statistics were calculated. Results were also stratified based on OPO characteristics. RESULTS: 84...
January 9, 2017: Transplantation
https://www.readbyqxmd.com/read/28068981/factors-affecting-evidence-use-in-food-policy-making-processes-in-health-and-agriculture-in-fiji
#10
Gade Waqa, Colin Bell, Wendy Snowdon, Marj Moodie
BACKGROUND: There is limited research on the use of evidence to inform policy-making in the Pacific. This study aims to identify and describe factors that facilitate or limit the use of evidence in food-related policy-making in the Health and Agriculture Ministries in Fiji. METHODS: Semi-structured face-to-face interviews were conducted with selected policy-makers in two government ministries that were instrumental in the development of food-related policies in Fiji designed to prevent Non-Communicable Diseases (NCDs)...
January 9, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28068107/effect-of-pressure-on-dielectric-and-frank-elastic-constants-of-a-material-exhibiting-the-twist-bend-nematic-phase
#11
Srividhya Parthasarathi, D S Shankar Rao, Nani Babu Palakurthy, Channabasaveshwar V Yelamaggad, Subbarao Krishna Prasad
We report the first investigation on the effect of applied pressure on the now well known dimer  bis(4,4'-cyanobiphenyl)heptane (CB7CB) that exhibits two types of nematic: the regular uniaxial nematic (N) and the recently discovered twist-bend nematic (NTB) phase. At atmospheric pressure, the thermal behaviour of , the permittivity normal to the director in the N phase decreases on entering the NTB wherein the value represents permittivity orthogonal to the helical axis. Application of pressure initially decreases the magnitude of the change in , and with further increase in pressure exhibits an increase in the value...
January 9, 2017: Journal of Physical Chemistry. B
https://www.readbyqxmd.com/read/28063829/a-letter-to-program-directors-global-surgery-rotations-are-a-plus
#12
EDITORIAL
Shailvi Gupta, Clifton Ewbank, Adam L Kushner
No abstract text is available yet for this article.
January 4, 2017: Journal of Surgical Education
https://www.readbyqxmd.com/read/28062771/veterinary-medicines-update
#13
(no author information available yet)
The following information has been produced for Veterinary Record by the Veterinary Medicines Directorate (VMD) to provide an update for veterinary surgeons on recent changes to marketing authorisations for veterinary medicines in the UK and on other relevant issues.
January 7, 2017: Veterinary Record
https://www.readbyqxmd.com/read/28062335/productivity-in-pediatric-palliative-care-measuring-and-monitoring-an-elusive-metric
#14
Erica C Kaye, Zachary R Abramson, Jennifer M Snaman, Sarah E Friebert, Justin N Baker
CONTEXT: Workforce productivity is poorly defined in healthcare. Particularly in the field of pediatric palliative care (PPC), the absence of consensus metrics impedes aggregation and analysis of data to track workforce efficiency and effectiveness. Lack of uniformly measured data also compromises the development of innovative strategies to improve productivity and hinders investigation of the link between productivity and quality of care, which are interrelated but not interchangeable...
January 3, 2017: Journal of Pain and Symptom Management
https://www.readbyqxmd.com/read/28057956/nontraditional-career-opportunities-for-pharmacists
#15
Sandra Bai, John B Hertig, Robert J Weber
The changing landscape of health care mirrors that of health-system pharmacy, with pharmacists' scope of practice and provider status being the most significant changes. This creates new roles and opportunities; many of these roles are considered to be nontraditional in today's practice. This article reviews some new roles for pharmacy leaders that provide different career options and pathways. Nontraditional career opportunities discussed include expanded consulting roles in pricing analytics and drug pricing programs (contracting, 340B programs), pharmacogenomics patient consult services and clinics, specialty drug pharmacies, and compounding pharmacy services...
December 2016: Hospital Pharmacy
https://www.readbyqxmd.com/read/28057292/impact-of-integrated-programs-on-general-surgery-operative-volume
#16
Amanda R Jensen, Brianne L Nickel, Scott C Dolejs, David F Canal, Laura Torbeck, Jennifer N Choi
BACKGROUND: Integrated residencies are now commonplace, co-existing with categorical general surgery residencies. The purpose of this study was to define the impact of integrated programs on categorical general surgery operative volume. METHODS: Case logs from categorical general, integrated plastics, vascular, and thoracic surgery residents from a single institution from 2008 to 2016 were collected and analyzed. RESULTS: Integrated residents have increased the number of cases they perform that would have previously been general surgery resident cases from 11 in 2009-2010 to 1392 in 2015-2016...
December 27, 2016: American Journal of Surgery
https://www.readbyqxmd.com/read/28056986/goals-of-care-conversation-teaching-in-residency-a-cross-sectional-survey-of-postgraduate-program-directors
#17
Amanda Roze des Ordons, Aliya Kassam, Jessica Simon
BACKGROUND: Residents are commonly involved in establishing goals of care for hospitalized patients. While education can improve the quality of these conversations, whether and how postgraduate training programs integrate such teaching into their curricula is not well established. The objective of this study was to characterize perceptions of current teaching and assessment of goals of care conversations, and program director interest in associated curricular integration. METHODS: An electronic survey was sent to all postgraduate program directors at the University of Calgary...
January 6, 2017: BMC Medical Education
https://www.readbyqxmd.com/read/28056962/an-investigation-of-professionalism-reflected-by-student-comments-on-formative-virtual-patient-encounters
#18
Ting Dong, William Kelly, Meredith Hays, Norman B Berman, Steven J Durning
BACKGROUND: This study explored the use of virtual patient generated data by investigating the association between students' unprofessional patient summary statements, which they entered during an on-line virtual patient case, and detection of their future unprofessional behavior. METHOD: At the USUHS, students complete a number of virtual patient encounters, including a patient summary, to meet the clerkship requirements of Internal Medicine, Family Medicine, and Pediatrics...
January 6, 2017: BMC Medical Education
https://www.readbyqxmd.com/read/28056906/the-norwegian-healthy-life-study-protocol-for-a-pragmatic-rct-with-longitudinal-follow-up-on-physical-activity-and-diet-for-adults
#19
Eirik Abildsnes, Eivind Meland, Thomas Mildestvedt, Tonje H Stea, Sveinung Berntsen, Gro Beate Samdal
BACKGROUND: The Norwegian Directorate of Health recommends that Healthy Life Centres (HLCs) be established in primary health care to support behaviour change and reduce the risk of non-communicable diseases. The aim of the present study protocol is to present the rationale, design and methods of a combined pragmatic randomized controlled trial (RCT) and longitudinal cohort study of the effects of attending HLCs concerning physical activity, sedentary behaviour and diet and to explore how psychological well-being and motivational factors may mediate short- and long-term effects...
January 5, 2017: BMC Public Health
https://www.readbyqxmd.com/read/28056512/palliative-care-exposure-in-internal-medicine-residency-education
#20
Asher Edwards, Samuel Nam
As the baby boomer generation ages, the need for palliative care services will be paramount and yet training for palliative care physicians is currently inadequate to meet the current palliative care needs. Nonspecialty-trained physicians will need to supplement the gap between supply and demand. Yet, no uniform guidelines exist for the training of internal medicine residents in palliative care. To our knowledge, no systematic study has been performed to evaluate how internal medicine residencies currently integrate palliative care into their training...
January 1, 2017: American Journal of Hospice & Palliative Care
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