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Participatory medicine

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https://www.readbyqxmd.com/read/29138128/will-participatory-syndromic-surveillance-work-in-latin-america-piloting-a-mobile-approach-to-crowdsource-influenza-like-illness-data-in-guatemala
#1
José Tomás Prieto, Jorge H Jara, Juan Pablo Alvis, Luis R Furlan, Christian Travis Murray, Judith Garcia, Pierre-Jean Benghozi, Susan Cornelia Kaydos-Daniels
BACKGROUND: In many Latin American countries, official influenza reports are neither timely nor complete, and surveillance of influenza-like illness (ILI) remains thin in consistency and precision. Public participation with mobile technology may offer new ways of identifying nonmedically attended cases and reduce reporting delays, but no published studies to date have assessed the viability of ILI surveillance with mobile tools in Latin America. We implemented and assessed an ILI-tailored mobile health (mHealth) participatory reporting system...
November 14, 2017: JMIR Public Health and Surveillance
https://www.readbyqxmd.com/read/29120561/a-community-based-participatory-research-approach-to-identifying-environmental-concerns
#2
Ellizabeth Ablah, Jack Brown, Barry Carroll, Tonya Bronleewe
A community-based participatory research process was used to develop an environmental initiative in Wichita, Kansas, called the Wichita Initiative to Renew the Environment (WIRE). The two-year project, led by University of Kansas School of Medicine–Wichita faculty and a community-based organization, was funded by the U.S. Environmental Protection Agency. The project aimed to identify, prioritize, and address Wichitans’ environmental concerns by engaging the community to assist in developing the project design, establish a community-based environmental leadership council to guide the project, and identify and prioritize the community’s environmental concerns based on impact and perceived urgency for action...
December 2016: Journal of Environmental Health
https://www.readbyqxmd.com/read/29102998/development-of-a-clinical-pharmacy-model-within-an-australian-home-nursing-service-using-co-creation-and-participatory-action-research-the-visiting-pharmacist-vip-study
#3
Rohan A Elliott, Cik Yin Lee, Christine Beanland, Dianne P Goeman, Neil Petrie, Barbara Petrie, Felicity Vise, June Gray
OBJECTIVE: To develop a collaborative, person-centred model of clinical pharmacy support for community nurses and their medication management clients. DESIGN: Co-creation and participatory action research, based on reflection, data collection, interaction and feedback from participants and other stakeholders. SETTING: A large, non-profit home nursing service in Melbourne, Australia. PARTICIPANTS: Older people referred to the home nursing service for medication management, their carers, community nurses, general practitioners (GPs) and pharmacists, a multidisciplinary stakeholder reference group (including consumer representation) and the project team...
November 3, 2017: BMJ Open
https://www.readbyqxmd.com/read/29091360/-prevention-and-screening-recommendations-from-paper-to-electronic-a-pilot-project-with-a-participative-approach
#4
Regula Cardinaux, Reto Auer, Tessa Kermode, Andreas Biedermann, Jacques Cornuz
Prevention and screening recommendations have to be adapted on a regular basis to the latest scientific data and should be completed by tools made to facilitated the implication of patients in decision-making. The prevention and screening webpages hosted on the website of the Department of community medicine and ambulatory care of the University of Lausanne facilitate access to clinical recommendations identified by members of the five medical faculties in Switzerland (EviPrev national program), and to various information sources for physicians and patients, including patient decision aids...
November 1, 2017: Revue Médicale Suisse
https://www.readbyqxmd.com/read/29075951/managing-psychiatrist-patient-relationships-in-the-digital-age-a-summary-review-of-the-impact-of-technology-enabled-care-on-clinical-processes-and-rapport
#5
REVIEW
Michelle Burke Parish, Sarina Fazio, Steven Chan, Peter M Yellowlees
PURPOSE OF REVIEW: Participatory medicine and the availability of commercial technologies have given patients more options to view and track their health information and to communicate with their providers. This shift in the clinical process may be of particular importance in mental healthcare where rapport plays a significant role in the therapeutic process. RECENT FINDINGS: In this review, we examined literature related to the impact of technology on the clinical workflow and patient-provider rapport in the mental health field between January 2014 and June 2017...
October 27, 2017: Current Psychiatry Reports
https://www.readbyqxmd.com/read/29062749/transcatheter-aortic-valve-implantation-in-nonagenarians-selectively-feasible-or-extravagantly-futile
#6
Antonis S Manolis, Antonis A Manolis
A growing number of nonagenarians is recorded as life expectancy increases. Unfortunately, this extreme-aged group is plagued by increased prevalence of aortic stenosis amidst a higher occurrence of comorbidities that pose dilemmas to cardiologists and cardiac surgeons when having to choose a conservative or interventional treatment modality, and a surgical or transcatheter aortic valve implantation (TAVI) approach. TAVI is an expensive procedure, which also confers a higher mortality and morbidity risk in nonagenarians, compared to younger patients...
September 2017: Annals of Cardiothoracic Surgery
https://www.readbyqxmd.com/read/29024214/regenerative-medicine-stroke-survivor-and-carer-views-and-motivations-towards-a-proposed-stem-cell-clinical-trial-using-placebo-neurosurgery
#7
Nicola A Cunningham, Purva Abhyankar, Julie Cowie, Jayne Galinsky, Karen Methven
BACKGROUND: Few studies explore stroke survivor views and motivations towards stem cell therapy (SCT). This qualitative study explores the views and motivations of both stroke survivors and their partners/carers towards a proposed 2-arm Phase III Randomised Controlled Trial (RCT) comparing intracerebral insertion of stem cells with placebo neurosurgery in stroke survivors with disability. OBJECTIVE: To explore views and motivations towards a proposed 2-arm stem cell trial and identify factors that may impede and enhance participation...
October 12, 2017: Health Expectations: An International Journal of Public Participation in Health Care and Health Policy
https://www.readbyqxmd.com/read/28983835/biomedical-big-data-new-models-of-control-over-access-use-and-governance
#8
Effy Vayena, Alessandro Blasimme
Empirical evidence suggests that while people hold the capacity to control their data in high regard, they increasingly experience a loss of control over their data in the online world. The capacity to exert control over the generation and flow of personal information is a fundamental premise to important values such as autonomy, privacy, and trust. In healthcare and clinical research this capacity is generally achieved indirectly, by agreeing to specific conditions of informational exposure. Such conditions can be openly stated in informed consent documents or be implicit in the norms of confidentiality that govern the relationships of patients and healthcare professionals...
October 5, 2017: Journal of Bioethical Inquiry
https://www.readbyqxmd.com/read/28956796/p4-medicine-versus-hippocrates
#9
Simonetta Pulciani, Anna Di Lonardo, Corrado Fagnani, Domenica Taruscio
Hippocrates was the first to raise awareness of medicine as a science. He asserted the body being a unified whole and emphasized the importance of preventive and predictive medicine, spurring physicians to foster patient collaboration. Recent achievements today have permitted a new approach "P4 medicine" - Predictive, Preventive, Personalized and Participatory - with the aim of depicting an individual's health history and molecular profile in determining the best medical intervention in maintaining or restoring wellbeing...
July 2017: Annali Dell'Istituto Superiore di Sanità
https://www.readbyqxmd.com/read/28944582/myopenia-and-precision-p4-medicine
#10
EDITORIAL
John E Morley, Stefan D Anker
Precision (P4) medicine represents a new medical paradigm that focuses on Personalized, Predictive, Preventive and Participatory approaches. The P4 paradigm is particularly appropriate for moving the care of persons with myopenia forward. Muscular dystrophies are clearly a set of genetically different diseases where genomics are the basis of diagnosis, and genetic modulation via DNA, oligonucleotides and clustered regularly interspaced short palendronic repeats hold great potential for a cure. The utility of personalized genomics for sarcopenia coupled with utilizing a predictive approach for the diagnosis with early preventive strategies is a key to improving sarcopenic outcomes...
September 24, 2017: Journal of Cachexia, Sarcopenia and Muscle
https://www.readbyqxmd.com/read/28895125/governance-arrangements-for-health-systems-in-low-income-countries-an-overview-of-systematic-reviews
#11
REVIEW
Cristian A Herrera, Simon Lewin, Elizabeth Paulsen, Agustín Ciapponi, Newton Opiyo, Tomas Pantoja, Gabriel Rada, Charles S Wiysonge, Gabriel Bastías, Sebastian Garcia Marti, Charles I Okwundu, Blanca Peñaloza, Andrew D Oxman
BACKGROUND: Governance arrangements include changes in rules or processes that determine authority and accountability for health policies, organisations, commercial products and health professionals, as well as the involvement of stakeholders in decision-making. Changes in governance arrangements can affect health and related goals in numerous ways, generally through changes in authority, accountability, openness, participation and coherence. A broad overview of the findings of systematic reviews can help policymakers, their technical support staff and other stakeholders to identify strategies for addressing problems and improving the governance of their health systems...
September 12, 2017: Cochrane Database of Systematic Reviews
https://www.readbyqxmd.com/read/28852561/barred-from-better-medicine-reexamining-regulatory-barriers-to-the-inclusion-of-prisoners-in-research
#12
Elaine Huang, Jacqueline Cauley, Jennifer K Wagner
In 2015, President Obama announced plans for the Precision Medicine Initiative(®) (PMI), an ambitious longitudinal project aimed at revolutionizing medicine. Integral to this Initiative is the recruitment of over one million Americans into a volunteer research cohort, the All of Us(SM) Research Program. The announcement has generated much excitement but absent is a discussion of how the All of Us Research Program-to be implemented within the context of social realities of mass incarcerations and racial disparities in criminal justice and healthcare-might excaberate health disparities...
April 2017: Journal of Law and the Biosciences
https://www.readbyqxmd.com/read/28845852/-rare-diseases-in-post-genomic-era
#13
Simonetta Pulciani, Andrea Vittozzi, Stefano Diemoz, Emanuele Nutile, Domenica Taruscio
The Human Genome Project and the "-omics" technologies will in future provide genetic maps and biosynthetic pathways permitting personalized medical interventions directed at maintaining or restoring wellbeing. This is reflected in the strategy aims of 4P medicine in being: predictive, preventive, personalized, and participatory. The results obtained in the field of cystic fibrosis, with the cloning of CFTR gene, and use of Kalydeco®, have demonstrated how using the mentioned strategies could also have success in rare disease management...
July 2017: Recenti Progressi in Medicina
https://www.readbyqxmd.com/read/28828397/assessment-of-useful-plants-in-the-catchment-area-of-the-proposed-ntabelanga-dam-in-the-eastern-cape-province-south-africa
#14
Alfred Maroyi
BACKGROUND: The developmental projects, particularly construction of dams, result in permanent changes of terrestrial ecosystems through inundation. OBJECTIVE: The present study was undertaken aiming at documenting useful plant species in Ntabelanga dam catchment area that will be impacted by the construction of the proposed dam. METHODS: A total of 55 randomly selected quadrats were used to assess plant species diversity and composition. Participatory rural appraisal (PRA) methods were used to identify useful plant species growing in the catchment area through interviews with 108 randomly selected participants...
2017: TheScientificWorldJournal
https://www.readbyqxmd.com/read/28805797/human-genomics-projects-and-precision-medicine
#15
REVIEW
F Carrasco-Ramiro, R Peiró-Pastor, B Aguado
The completion of the Human Genome Project (HGP) in 2001 opened the floodgates to a deeper understanding of medicine. There are dozens of HGP-like projects which involve from a few tens to several million genomes currently in progress, which vary from having specialized goals or a more general approach. However, data generation, storage, management and analysis in public and private cloud computing platforms have raised concerns about privacy and security. The knowledge gained from further research has changed the field of genomics and is now slowly permeating into clinical medicine...
September 2017: Gene Therapy
https://www.readbyqxmd.com/read/28793900/botanical-ethnoveterinary-therapies-used-by-agro-pastoralists-of-fafan-zone-eastern-ethiopia
#16
Teka Feyera, Endalkachew Mekonnen, Befekadu Urga Wakayo, Solomon Assefa
BACKGROUND: In Ethiopia, plant based remedies are still the most important and sometimes the only source of therapeutics in the management of livestock diseases. However, documentation of this indigenous knowledge of therapeutic system still remains at a minimum level. The aim of this study was, thus, to document the traditional knowledge of botanical ethnoveterinary therapies in the agro-pastoral communities of Fafan Zone, Eastern Ethiopia. METHODS: The study employed a cross-sectional participatory survey...
August 9, 2017: BMC Veterinary Research
https://www.readbyqxmd.com/read/28768613/medicine-goes-female-protocol-for-improving-career-options-of-females-and-working-conditions-for-researching-physicians-in-clinical-medical-research-by-organizational-transformation-and-participatory-design
#17
Joachim Hasebrook, Klaus Hahnenkamp, Wolfgang F F A Buhre, Dianne de Korte-de Boer, Ankie E W Hamaekers, Bibiana Metelmann, Camila Metelmann, Marina Bortul, Silvia Palmisano, Jannicke Mellin-Olsen, Andrius Macas, Janusz Andres, Anna Prokop-Dorner, Tomáš Vymazal, Juergen Hinkelmann, Sibyll Rodde, Bettina Pfleiderer
BACKGROUND: All European countries need to increase the number of health professionals in the near future. Most efforts have not brought the expected results so far. The current notion is that this is mainly related to the fact that female physicians will clearly outnumber their male colleagues within a few years in nearly all European countries. Still, women are underrepresented in leadership and research positions throughout Europe. OBJECTIVES: The MedGoFem project addresses multiple perspectives with the participation of multiple stakeholders...
August 2, 2017: JMIR Research Protocols
https://www.readbyqxmd.com/read/28737328/-documenting-a-rehabilitation-program-using-a-logic-model-an-advantage-to-the-assessment-process
#18
Frédérique Poncet, Bonnie Swaine, Pascale Pradat-Diehl
The cognitive and behavioral disorders after brain injury can result in severe limitations of activities and restrictions of participation. An interdisciplinary rehabilitation program was developed in physical medicine and rehabilitation at the Pitié-Salpêtriere Hospital, Paris, France. Clinicians believe this program decreases activity limitations and improves participation in patients. However, the program’s effectiveness had never been assessed. To do this, we had to define/describe this program. However rehabilitation programs are holistic and thus complex making them difficult to describe...
March 6, 2017: Santé Publique: Revue Multidisciplinaire Pour la Recherche et L'action
https://www.readbyqxmd.com/read/28716653/bioeconomy-in-latin-america
#19
REVIEW
Albert Sasson, Carlos Malpica
This article provides the authors' view on how Latin America has embraced bioeconomy principles in the last two decades with different levels of socio-economic impact. Examples of biodiversity resource valorization in medicine, eco-intensification of agriculture, biotechnology applications in mature sectors such as mining, food and beverage production, bio-refineries and ecosystem services are provided. The importance of participatory and social innovation initiatives is highlighted.
July 14, 2017: New Biotechnology
https://www.readbyqxmd.com/read/28699998/culture-bound-syndromes-in-migratory-contexts-the-case-of-bolivian-immigrants
#20
María Teresa Roldán-Chicano, José Fernández-Rufete, César Hueso-Montoro, María Del Mar García-López, Javier Rodríguez-Tello, María Dolores Flores-Bienert
Objective: to describe the culture-bound syndromes maintained by Bolivian immigrants in the new migratory context and analyze the care processes of these health problems. Method: qualitative research with an ethnographic methodological approach. Sample: 27 Bolivian immigrants. In-depth interviews and participatory observation were the strategies used for data collection. Data were classified and categorized into logical schemes manually and using the ATLAS-ti program v...
July 10, 2017: Revista Latino-americana de Enfermagem
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