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Young adult perspections

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https://www.readbyqxmd.com/read/29346023/fertility-preservation-in-pediatric-oncology-patients-new-perspectives
#1
Chiara Gertosio, Mariasole Magistrali, Paola Musso, Cristina Meazza, Mauro Bozzola
Over the past 30 years, advances in antineoplastic treatment led to a significant increase in the survival of patients with childhood cancer. In Europe and the United States, 82% of children, adolescents, and young adults survive 5 years from the cancer diagnosis and the majority achieves long-term survival into adulthood. The impact of cancer therapy on fertility is related to the age of the patient and to the duration, dose/intensity, and type of treatment. Exposure to chemotherapy or to radiation to gonads or pituitary brings long-term complications of cancer-directed therapies that include effects on reproductive capacity...
January 18, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29346008/follow-up-care-provider-preferences-of-adolescent-and-young-adult-cancer-survivors
#2
Joemy M Ramsay, Karely Mann, Sapna Kaul, Eduardo R Zamora, Rochelle R Smits-Seemann, Anne C Kirchhoff
PURPOSE: To explore the experiences and perspectives of adolescent and young adult (AYA) cancer survivors regarding patient-provider relationships and their preferences surrounding type of healthcare provider for follow-up care. METHODS: We recruited AYA cancer survivors who were diagnosed between the ages of 15 and 39 using the Utah Cancer Registry. Twenty-eight survivors participated in six focus groups held between March and May of 2015 in Salt Lake City and St...
January 18, 2018: Journal of Adolescent and Young Adult Oncology
https://www.readbyqxmd.com/read/29336920/pediatric-nurse-practitioners-perspectives-on-health-care-transition-from-pediatric-to-adult-care
#3
Lisa Lestishock, Alison Moriarty Daley, Patience White
INTRODUCTION: This study examined the perspectives of pediatric nurse practitioners (PNPs) regarding the needs of adolescents, parents/caregivers, clinicians, and institutions in the health care transition (HCT) process for adolescents/young adults. METHODS: PNPs (N = 170) participated in a luncheon for those interested in transition at an annual conference. Small groups discussed and recorded their perspectives related to health care transition from adolescent to adult services...
January 12, 2018: Journal of Pediatric Health Care
https://www.readbyqxmd.com/read/29334802/youth-and-young-adults-with-acquired-brain-injury-transition-towards-work-related-roles-a-qualitative-study
#4
Alicia Paniccia, Heather Colquhoun, Bonnie Kirsh, Sally Lindsay
PURPOSE: The purpose of this research was to explore the experiences of youth and young adults with acquired brain injury as they transition towards work-related roles. Little is known about employment experiences among this age group. Understanding their perspectives can inform programs and clinical practice. MATERIALS AND METHODS: A descriptive qualitative design, including semi-structured interviews with 14 participants (8 females; 6 males) was used. Interviews were transcribed verbatim and analyzed using an open-coding, thematic approach...
January 15, 2018: Disability and Rehabilitation
https://www.readbyqxmd.com/read/29330835/international-guidelines-for-groin-hernia-management
#5
(no author information available yet)
INTRODUCTION: Worldwide, more than 20 million patients undergo groin hernia repair annually. The many different approaches, treatment indications and a significant array of techniques for groin hernia repair warrant guidelines to standardize care, minimize complications, and improve results. The main goal of these guidelines is to improve patient outcomes, specifically to decrease recurrence rates and reduce chronic pain, the most frequent problems following groin hernia repair. They have been endorsed by all five continental hernia societies, the International Endo Hernia Society and the European Association for Endoscopic Surgery...
January 12, 2018: Hernia: the Journal of Hernias and Abdominal Wall Surgery
https://www.readbyqxmd.com/read/29326196/young-adults-perspectives-on-living-with-kidney-failure-a-systematic-review-and-thematic-synthesis-of-qualitative-studies
#6
Phillippa K Bailey, Alexander J Hamilton, Rhian L Clissold, Carol D Inward, Fergus J Caskey, Yoav Ben-Shlomo, Amanda Owen-Smith
INTRODUCTION: Young adults fare worse than younger adolescents or older adults on a broad range of health indicators. Those with a chronic illness such as renal failure are a particularly vulnerable group, who experience poor outcomes compared with both children and older adults. Understanding how being in receipt of renal replacement therapy (RRT) affects the lives of young adults might help us to better prepare and support these individuals for and on RRT, and improve outcomes. This study aimed to synthesise research describing young adults' experiences of the psychosocial impact of kidney failure and RRT...
January 10, 2018: BMJ Open
https://www.readbyqxmd.com/read/29318509/friend-versus-foe-neural-correlates-of-prosocial-decisions-for-liked-and-disliked-peers
#7
Elisabeth Schreuders, Eduard T Klapwijk, Geert-Jan Will, Berna Güroğlu
Although the majority of our social interactions are with people we know, few studies have investigated the neural correlates of sharing valuable resources with familiar others. Using an ecologically valid research paradigm, this functional magnetic resonance imaging study examined the neural correlates of prosocial and selfish behavior in interactions with real-life friends and disliked peers in young adults. Participants (N = 27) distributed coins between themselves and another person, where they could make selfish choices that maximized their own gains or prosocial choices that maximized outcomes of the other...
January 9, 2018: Cognitive, Affective & Behavioral Neuroscience
https://www.readbyqxmd.com/read/29303366/current-clinical-radiological-and-treatment-perspectives-of-patellofemoral-pain-syndrome
#8
Aishwarya Gulati, Christopher McElrath, Vibhor Wadhwa, Jay P Shah, Avneesh Chhabra
Anterior knee pain in active young adults is commonly related to patellofemoral (PF) pain syndrome (PFPS), which can be broadly classified into patellar malalignment and patellar maltracking. PFPS can be caused by a host of miserable malalignments, such as excessive femoral antetorsion, tibial varus / external rotation, knee valgus and pes planus. Radiographic, CT and MRI evaluations are commonly obtained to further elucidate the malalignment and maltracking abnormalities and exclude other related differentials, such as lateral meniscus tear, extensor tendon tear, anterior tenosynovial giant cell tumor and plica syndrome...
January 5, 2018: British Journal of Radiology
https://www.readbyqxmd.com/read/29300495/intersecting-social-inequalities-and-body-mass-index-trajectories-from-adolescence-to-early-adulthood
#9
Taylor W Hargrove
This study combines multiple-hierarchy stratification and life course perspectives to address two research questions critical to understanding U.S. young adult health. First, to what extent are racial-ethnic inequalities in body mass index (BMI) gendered and/or classed? Second, do racial-ethnic, gender, and socioeconomic inequalities in BMI widen or persist between adolescence and early adulthood? Using data from the National Longitudinal Survey of Youth 1997 cohort and growth curve models, results suggest that among white, black, and Hispanic American men and women ages 13 to 31, racial-ethnic inequality in BMI is greatest among women...
January 1, 2018: Journal of Health and Social Behavior
https://www.readbyqxmd.com/read/29295028/gendered-perceptions-of-intimate-partner-violence-normality-an-experimental-study
#10
Karlijn F Kuijpers, Arjan A J Blokland, Natalie C Mercer
Knowledge on young adults' perceptions of intimate partner violence (IPV) is important as these are the ages at which most people form their first serious intimate relationships and begin to develop norms about how to communicate within a relationship. This study uses an experimental vignette design to examine whether the type of violence employed and the gender dynamics within the couple (male perpetrator and female victim vs. female perpetrator and male victim) affect young adults' perceptions of IPV normality...
December 1, 2017: Journal of Interpersonal Violence
https://www.readbyqxmd.com/read/29294726/sexual-revictimization-a-routine-activity-theory-explanation
#11
Elizabeth Culatta, Jody Clay-Warner, Kaitlin M Boyle, Assaf Oshri
Research has shown that victims of sexual assault are at a significant risk of revictimization. We use routine activity theory to predict how sexual victimization in adolescence relates to depression, substance use, and ultimately revictimization as a young adult. We frame our research within routine activity theory and predict that sexual victimization increases substance use and depressive symptoms, both of which increase the likelihood of revictimization. We test the hypotheses with three waves of data from the Longitudinal Study of Violence Against Women...
April 1, 2017: Journal of Interpersonal Violence
https://www.readbyqxmd.com/read/29281599/unpacking-barriers-to-healthy-lifestyles-from-the-perspective-of-youth-with-disabilities-and-their-parents
#12
Yolanda Suarez-Balcazar, Alexander Agudelo Orozco, Melina Mate, Claudia Garcia
Adolescents and young adults with disabilities experience several health inequalities and challenges in maintaining healthy lifestyles. As a group, individuals with disabilities experience higher rates of obesity compared to youth without disabilities. This study was designed to examine the types of challenges experienced by youth with disabilities and parents of youth with disabilities in maintaining a healthy lifestyle. Strong evidence indicates that having a healthy lifestyle and preventing obesity are not only the result of an individual's behavior related to physical activity and consumption of healthy products but also several complex factors in the person's environment...
January 2018: Journal of Prevention & Intervention in the Community
https://www.readbyqxmd.com/read/29281557/gender-differences-in-the-relationships-among-young-adults-religiosity-risk-perception-and-marijuana-use-a-moderated-mediation-model
#13
Audrey Hang Hai
BACKGROUND: Studies show that religiosity is a protective factor against marijuana use. Given many religions' teachings to promote risk perception of substance use, risk perception possibly mediates the relationship between religiosity and marijuana use. Moreover, since males and females differ in religiosity, risk perception, and marijuana use, gender may moderate religiosity's indirect effect on marijuana use through risk perception and religiosity's direct effect on marijuana use. Despite substantial research on religiosity and adolescent marijuana use, little research has targeted the young adult population...
December 27, 2017: Substance Use & Misuse
https://www.readbyqxmd.com/read/29276430/young-adults-reasons-for-dropout-from-residential-substance-use-disorder-treatment
#14
Kristoffer Nordheim, Espen Walderhaug, Ståle Alstadius, Ann Kern-Godal, Espen Arnevik, Fanny Duckert
Dropout from substance use disorder treatment is usually investigated and understood from a perspective of quantitative patient-related factors. Patients' own perspectives (user perspective) are rarely reported. This study, therefore, aimed to explore patients' own understanding of their dropout from residential substance use disorder treatment. The participants were 15 males and females, aged 19-29 years, who had dropped out of residential substance use disorder treatment at the Department of Addiction Treatment, Oslo University Hospital, Norway...
January 2018: Qualitative Social Work: QSW: Research and Practice
https://www.readbyqxmd.com/read/29273891/pedsql-neurofibromatosis-type-1-module-for-children-adolescents-and-young-adults-feasibility-reliability-and-validity
#15
Kavitha Nutakki, James W Varni, Nancy L Swigonski
The objective of the present study was to report on the measurement properties of the Pediatric Quality of Life Inventory (PedsQL) Neurofibromatosis Type 1 Module for pediatric patients ages 5-25 from the perspectives of patients and parents. The 104-item PedsQL NF1 Module and 23-item PedsQL Generic Core Scales were completed in a multi-site national study by 323 patients and 335 parents (343 families). Patients were diagnosed with NF1 using the National Institutes of Health diagnostic criteria. In addition to a Total Scale Score, 18 unidimensional scales were derived measuring skin itch bother, skin sensations, pain, pain impact, pain management, cognitive functioning, speech, fine motor, balance, vision, perceived physical appearance, communication, worry, treatment anxiety, medicines, stomach discomfort, constipation, and diarrhea...
December 22, 2017: Journal of Neuro-oncology
https://www.readbyqxmd.com/read/29273141/the-optimal-age-for-screening-adolescents-and-young-adults-without-identified-risk-factors-for-hiv
#16
Anne M Neilan, Richard Dunville, M Cheryl Bañez Ocfemia, Joshua A Salomon, Jordan A Francke, Alexander J B Bulteel, Li Yan Wang, Katherine K Hsu, Elizabeth A DiNenno, Rochelle P Walensky, Robert A Parker, Kenneth A Freedberg, Andrea L Ciaranello
PURPOSE: To assess the optimal age at which a one-time HIV screen should begin for adolescents and young adults (AYA) in the U.S. without identified HIV risk factors, incorporating clinical impact, costs, and cost-effectiveness. METHODS: We simulated HIV-uninfected 12-year-olds in the U.S. without identified risk factors who faced age-specific risks of HIV infection (.6-71.3/100,000PY). We modeled a one-time screen ($36) at age 15, 18, 21, 25, or 30, each in addition to current U...
January 2018: Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine
https://www.readbyqxmd.com/read/29258565/a-core-outcomes-set-for-clinical-trials-of-interventions-for-young-adults-with-type-1-diabetes-an-international-multi-perspective-delphi-consensus-study
#17
Molly Byrne, Anthony O'Connell, Aoife M Egan, Sean F Dinneen, Lisa Hynes, Mary Clare O'Hara, Richard I G Holt, Ingrid Willaing, Michael Vallis, Christel Hendrieckx, Imelda Coyne
BACKGROUND: Achieving consensus from a range of relevant stakeholders about an agreed set of core outcomes to be measured and reported as a minimum in clinical trials has the potential to enhance evidence synthesis and make findings more relevant and applicable. Intervention research to improve outcomes for young adults with type 1 diabetes (T1DM) is hampered by inconsistent use of outcome measures. This population frequently struggles to manage their condition and reports suboptimal clinical outcomes...
December 19, 2017: Trials
https://www.readbyqxmd.com/read/29233804/end-user-and-implementer-experiences-of-mhealth-technologies-for-noncommunicable-chronic-disease-management-in-young-adults-systematic-review
#18
REVIEW
Helen Slater, Jared M Campbell, Jennifer N Stinson, Megan M Burley, Andrew M Briggs
BACKGROUND: Chronic noncommunicable diseases (NCDs) such as asthma, diabetes, cancer, and persistent musculoskeletal pain impose an escalating and unsustainable burden on young people, their families, and society. Exploring how mobile health (mHealth) technologies can support management for young people with NCDs is imperative. OBJECTIVE: The aim of this study was to identify, appraise, and synthesize available qualitative evidence on users' experiences of mHealth technologies for NCD management in young people...
December 12, 2017: Journal of Medical Internet Research
https://www.readbyqxmd.com/read/29229655/new-zealand-policy-experts-appraisal-of-interventions-to-reduce-smoking-in-young-adults-a-qualitative-investigation
#19
Jude Ball, Janet Hoek, El Shadan Tautolo, Heather Gifford
OBJECTIVES: Reducing smoking in young adults, particularly young Māori and Pacific, is vital for reducing tobacco harm and health inequalities in New Zealand (NZ). We investigated how NZ policy experts appraised the feasibility and likely effectiveness of interventions designed to reduce smoking prevalence among 18-24 year olds. DESIGN: We used a qualitative design, conducting semistructured interviews and applying thematic analysis. PARTICIPANTS: We interviewed 15 key informants, including politicians, senior policy analysts and leading tobacco control advocates...
December 10, 2017: BMJ Open
https://www.readbyqxmd.com/read/29220290/synovial-sarcoma-current-concepts-and-future-perspectives
#20
Silvia Stacchiotti, Brian Andrew Van Tine
Synovial sarcoma (SS) is a rare sarcoma driven by a translocation between SS18 and SSX 1, 2, or 4. With approximately 800 to 1,000 cases a year in the United States, it most commonly affects young adults between the ages of 15 and 30 years. The resultant tumors are either monophasic (pure sarcomas), biphasic (a combination or epithelioid and sarcomatous components), or poorly differentiated. The hybrid transcription factor SS18:SSX alters SWItch/Sucrose Non-Fermentable (SWI/SNF) chromatin remodeling and global methylation patterns that may allow for future therapeutic opportunities...
December 8, 2017: Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology
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