Thea von Graffenried, Ekaterina Safroneeva, Christian Braegger, Jessica Ezri, Luca Garzoni, Alexa Giroud Rivier, Thomas Greuter, Henrik Köhler, Valerie A McLin, George Marx, Pascal Müller, Laetitia Marie Petit, Susanne Schibli, Christiane Sokollik, Michela Tempia-Caliera, Marcel Zwahlen, Alain M Schoepfer, Andreas Nydegger
INTRODUCTION: Given the lack of data, we aimed to explore which therapeutic endpoints pediatric patients with eosinophilic esophagitis (EoE) and their parents consider to be relevant. METHODS: We created an educational brochure on EoE and a questionnaire, both of which were content-validated by pediatric patients and parents. Validated documents were sent to 112 patients and parents. They ranked the importance (5 levels) of short (during next 3 months) and long-term (≥1 year) treatment effect on symptoms, quality of life, endoscopic inflammation, stricture formation, histological inflammation, and fibrosis...
March 6, 2024: International Archives of Allergy and Immunology