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Journal of Patient Experience

Harini Naidu, Brian C Jacobson
Fecal immunochemical testing (FIT) for colorectal cancer (CRC) requires patients to return samples for processing, after having a spontaneously passed stool at home. This results in low completion rates (only 50% in our institution). Using stool obtained during an office-based digital rectal exam (DRE-FIT) could improve compliance, but it is not known whether patients and providers would find this option acceptable. Surveys were given to 100 physicians and 118 patients at our institution. We found that 68% of patients and 88% of providers approved of DRE-FIT making this a potentially effective way to improve CRC screening compliance...
September 2018: Journal of Patient Experience
Doug Finefrock, Sridhar Patel, David Zodda, Themba Nyirenda, Richard Nierenberg, Joseph Feldman, Chinwe Ogedegbe
Background: With increased emphasis on improving the patient experience, clinicians are being asked to improve their patient-centered communication behaviors to improve patient satisfaction (PS) scores. Local Problem: The relationship between clinician communication behaviors and PS is poorly studied in the emergency department (ED) setting. The purpose of this study was to identify whether specific communication behaviors correlate with higher PS scores in the ED setting...
September 2018: Journal of Patient Experience
Emilia A Hermann, Jeffrey M Ashburner, Steven J Atlas, Yuchiao Chang, Sanja Percac-Lima
Background: Patient navigation (PN) programs can improve cancer screening in underserved populations. PN may advance quality and equity of care by supporting individuals at increased risk of not receiving recommended care. Objective: To evaluate patient satisfaction with medical care and PN for cancer screening. Methods: We conducted a telephone survey of patients enrolled in a randomized control trial evaluating the impact of PN for cancer screening to assess their satisfaction with overall medical care and the PN program...
September 2018: Journal of Patient Experience
Michael M Evans, Judith E Hupcey, Lisa Kitko, Windy Alonso
Purpose: This study examined life descriptions of persons with stage D heart failure (HF) comparing those newly diagnosed to those with chronic HF. Methods: A secondary analysis of interviews from 75 participants followed in a longitudinal study of persons with stage D HF was thematically analyzed. There were 24 participants who were recently diagnosed with stage D HF (less than 2 years) and 51 participants with HF longer than 2 years. Results: Both groups shared life descriptions along a continuum, where recently diagnosed participants described naive expectations with hope for improvement, while the chronic group appeared resigned to their fate and the reality of the limitations of living with HF...
September 2018: Journal of Patient Experience
T S Raghu, James Yiannias, Nita Sharma, Allan L Markus
Background: The study objective was to investigate the willingness to pay (WTP) for teledermoscopy services among students at a university health center. The hypothesis was that WTP for teledermoscopy among students would exceed the costs for traditional consultation. Methods: Between November 2013 and May 2014, students at a university health center were surveyed for their perceptions of teledermoscopy. One set of responses was collected from students visiting the health center for any reason (anonymous sample)...
September 2018: Journal of Patient Experience
Thavapriya Sugavanam, Ben Fosh, James Close, Richard Byng, Jane Horrell, Helen Lloyd
Background: Person-centred coordinated care (P3C) is a priority for stakeholders (ie, patients, carers, professionals, policy makers). As a part of the development of an evaluation framework for P3C, we set out to identify patient-reported experience measures (PREMs) suitable for routine measurement and feedback during the development of services. Methods: A rapid review of the literature was undertaken to identity existing PREMs suitable for the probing person-centred and/or coordinated care...
September 2018: Journal of Patient Experience
R A Bolarinwa, S A Olowookere, T O Owojuyigbe, E C Origbo, M A Durosinmi
The factors related to care of patients with chronic myeloid leukemia (CML) often affects treatment outcome. We examined adherence to medication and other challenges to care in our patients on treatment of CML. This qualitative study involved in-depth interviews of 20 patients with CML receiving free imatinib (Glivec) from the Glivec International Patients' Assistance Program. Data collected were thematically analyzed. Findings revealed that despite free drug assistance, there was relative lack of awareness resulting in inappropriate health-seeking behavior...
September 2018: Journal of Patient Experience
Brad A Mac Neil, Chloe C Hudson
We examined patient experiences and satisfaction with acceptance and commitment therapy (ACT) delivered in a novel weekly open-group therapy format immediately following psychiatric intake assessment into a hospital-based outpatient adult eating disorders program. Participants were 68 adults with a Diagnostic and Statistical Manual of Mental Disorders, 5th edition diagnosis of an eating disorder who reported their experiences and satisfaction with the ACT group. Participants reported that they were somewhat satisfied to very satisfied with the open ACT group and that the treatment content was helpful...
September 2018: Journal of Patient Experience
Mahima Thomas
No abstract text is available yet for this article.
September 2018: Journal of Patient Experience
Melissa P Knauert, Nancy S Redeker, Henry K Yaggi, Michael Bennick, Margaret A Pisani
Introduction: Patients in the intensive care unit (ICU) have significantly disrupted sleep. Sleep disruption is believed to contribute to ICU delirium, and ICU delirium is associated with increased mortality. Experts recommend sleep promotion as a means of preventing or shortening the duration of delirium. ICU Sleep promotion protocols are highly complex and difficult to implement. Our objective is to describe the development, pilot implementation, and revision of a medical ICU sleep promotion protocol...
September 2018: Journal of Patient Experience
David I Waddington
After the death of my daughter Zoe in neonatal intensive care unit (NICU), a colleague asked me whether my status as an academic philosopher changed my experience in the NICU. In this short narrative, I outline 5 ways in which philosophical perspective helped me understand and cope with our hospital experience.
September 2018: Journal of Patient Experience
Mary Beth Mercer, Susannah L Rose, Cassandra Talerico, Brian J Wells, Mahesh Manne, Nirav Vakharia, Stacey Jolly, Alex Milinovich, Janine Bauman, Michael W Kattan
Introduction: A risk calculator paired with a personalized decision aid (RC&DA) may foster shared decision-making in primary care. We assessed the feasibility of using an RC&DA with patients in a primary care outpatient clinic and patients' experiences regarding communication and decision-making. Methods: This pilot study was conducted with 15 patients of 3 primary care physicians at a clinic within a tertiary medical center. An atherosclerotic cardiovascular disease (ASCVD) risk calculator was used to generate a personalized RC&DA that displayed absolute 10-year risk information as an icon array graphic...
September 2018: Journal of Patient Experience
Laura M Girling, Sarah E Chard, J Kevin Eckert
Background: Contemporary treatment of type 2 diabetes mellitus (hereafter diabetes) heavily emphasizes "diabetes control," largely defined by measurable blood glucose parameters. Little is known about how people living with the condition themselves define diabetes control within the lived experience of their disease. Methods: As part of a qualitative study investigating the subjective construction of diabetes, 83 in-depth interviews were conducted with African American and non-Hispanic white older adults...
September 2018: Journal of Patient Experience
Adrienne Boissy
No abstract text is available yet for this article.
September 2018: Journal of Patient Experience
Chka Fernando, S Mendis, A P Upasena, Y J Costa, H S Williams, D Moratuwagama
Introduction: Splenic syndrome is a rare presentation of sickle cell disease. It is important to rule out this possibility when an ethnically vulnerable patient presents with an acute abdominal symptoms in a background of precipitating events. Case Report: A 26-year-old man who developed a severe abdominal pain at high altitude, found to have a tender splenomegaly. However, further inquiry revealed he is from an area where sickle cell disease is prevalent. Screening for sickle cell disease was positive...
June 2018: Journal of Patient Experience
Cheryl D Stults, Alison S Baskin, M Kate Bundorf, Ming Tai-Seale
Introduction: Medicare beneficiaries often report that the process of choosing a prescription drug plan is frustrating and confusing and many do not enroll in the plan that covers their drugs at the lowest cost. Methods: We conducted 4 focus groups to understand beneficiaries' experiences in selecting a drug plan to identify what resources and factors were most important to them. Participants were patients served by a multispecialty delivery system and were primarily affluent and Caucasian...
June 2018: Journal of Patient Experience
Silvia Potì, Francesca Emiliani, Laura Palareti
Diabetes mellitus type 1 is a chronic illness that has its onset in childhood or adolescence. It is determined by the insufficient production of insulin. The main therapies consist of replacement of the lacking insulin, diet, exercise, and glycemic control. If treatment is managed by parents in childhood, adherence seems to be a difficult issue during adolescence. In order to understand the subjective experience of the illness and treatment, the present study aims to investigate the patients' subjective perspective by addressing a group of adolescents and young adults in pediatric care...
June 2018: Journal of Patient Experience
Lauren Nicholas, Rebecca Fischbein, Lynn Falletta, Kristin Baughman
Objective: The aim of this study was to assess patient experiences when reporting symptoms of twin-twin transfusion syndrome (TTTS) to their health-care providers. Methodology: The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy. Results: Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45...
June 2018: Journal of Patient Experience
Bhanu Ramaswamy, Christian Johnson
Evidence endorses the benefits of more vigorous exercise for people with Parkinson's, particularly following diagnosis, yet is not clear which style is optimal. The authors share perspectives and decisions made as a physiotherapist (assisted by a sports and exercise science student) and a novice runner with Parkinson's in his late 50s, respectively. The exercise goal chosen by the runner (the case report participant) to minimize the degenerative effects of the progressive condition was to complete a marathon...
June 2018: Journal of Patient Experience
Corinne R Boudreau, Vett K Lloyd, Odette N Gould
Objective: We aimed to describe the experiences of Canadians who seek diagnosis and treatment for Lyme disease outside of the conventional Canadian health-care system. Methods: Forty-five individuals who had sought treatment for Lyme disease outside of the conventional Canadian health-care system were recruited from Lyme support and advocacy groups across Canada to answer open-ended questions about their experiences. Results: Respondents sought treatment outside of the conventional medical system due to extensive diagnostic procedures and treatments that did not resolve symptoms...
June 2018: Journal of Patient Experience
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