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Journal of Patient Experience

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https://www.readbyqxmd.com/read/29582013/occasionally-a-patient-always-a-person
#1
Richard Bruce Hovey
No abstract text is available yet for this article.
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582012/improving-patient-experiences-and-outcomes-through-personal-care-aide-training
#2
Clare C Luz, Katherine V Hanson, Yuning Hao, Elizabeth Spurgeon
Introduction: The rapidly aging US population is resulting in major challenges including delivering quality care at lower costs in the face of a critical health-care workforce shortage. The movement toward home care has dramatically increased the need for qualified, paid personal care aides (PCAs). Adequate PCA training that focuses on skills for person-centered, at home support is an imperative. This study provides evidence that clients of PCAs who have completed a comprehensive, evidence-based PCA training program, titled Building Training…Building Quality (BTBQ), report higher satisfaction and better health outcomes, compared to clients of PCAs with lesser or other training...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582011/mitigating-burden-associated-with-informal-caregiving
#3
Dorothea Frederick
Informal caregiving is the most common form of long-term care provided in the United States, and with the projected rapid growth of older adults, informal caregiving will be even more critical in the foreseeable future. In the United States, slightly more than 20% of informal caregivers provide care for more than one care recipient, and 10% provide care for three or more care recipients. Caring for a dependent, older adult patient may have negative effects on physical, psychological, psychosocial, social and financial health of caregivers...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582010/dimensions-of-phenomenology-in-exploring-patient-s-suffering-in-long-life-illnesses-qualitative-evidence-synthesis
#4
Mahmoud Al Kalaldeh, Ghada Abu Shosha, Najah Saiah, Omar Salameh
Background: Patients' suffering has been increasingly investigated by health-care researchers especially in the chronically ill. Suffering is viewed as a progressive negative consequence that associated with pain, impaired self-esteem, and social alienation. This qualitative evidence synthesis aimed to provide further insights into the application of phenomenology in explaining suffering among patients with chronic illnesses. Methods: Studies included in this qualitative evidence synthesis study were retrieved by searching from the following electronic databases: CINAHL, PubMed Central, and EBSCO...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582009/developing-and-translating-a-new-model-for-teaching-empowerment-into-routine-chronic-care-management-an-international-patient-centered-project
#5
Carolyn A Wallace, David Pontin, Klara Dokova, Irma Mikkonen, Eileen Savage, Liisa Koskinen
Background: Health professional education has been criticized for not integrating patient expertise into professional curricula to develop professional skills in patient empowerment. Objective: To develop and translate a new expert patient-centered model for teaching empowerment into professional education about routine chronic care management. Methods: Eight Finnish patients (known as expert patients), 31 students, and 11 lecturers from 4 European countries participated in a new pilot intensive educational module...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582008/patient-centered-obstetric-care-in-the-age-of-cell-free-fetal-dna-prenatal-screening
#6
Patricia K Agatisa, Mary Beth Mercer, Ariane Mitchum, Marissa B Coleridge, Ruth M Farrell
Purpose: The clinical introduction of innovative prenatal genetic technologies challenges patients and providers to find new ways of fostering informed decision-making in a setting characterized by complexity and uncertainty. As prenatal genetic technology advances, important questions remain about how to structure patient-centered conversations that effectively prepare pregnant patients to make informed choices about the different genetic conditions for which this new form screening may be used...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582007/carer-appraisal-scale-a-pilot-study-of-a-novel-carer-based-assessment-of-patient-functioning
#7
Neil Jeyasingam
Measurement of patient outcomes is an integral part of mental health service evaluation, as well as guiding clinical practice to ensure best outcomes for patients. Moreover, carers have long held a need for a voice in care outcomes. Despite there existing numerous tools for quantifying patient functioning based on clinician assessments or self-reports, there is a serious paucity of tools available for the carers of patients to appraise their functioning. This tool, developed for use in a community aged care psychiatric service, involves 4 sections-a global impression of patient progress, a scorable checklist of patient functioning in multiple domains, a qualitative section for identifying the most pressing concerns from the carer's perspective, and an open-ended feedback on treatment to date...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582006/what-s-mine-is-yours-long-term-experiences-of-good-samaritan-organ-donors
#8
Katrina A Bramstedt
This study is a long-term follow-up on the health and quality of life of Good Samaritan living organ donors who donated an average of 10 years ago. Thirteen donors (kidney, liver, and lung) completed 2 surveys. Data from the RAND 36-Item Health Survey showed that for all domains, as well as the physical and mental component summary scales, the Good Samaritan donor outcomes were superior to the general population ( P < .0001). Data from the European Living Donor Satisfaction Survey (EULID) showed that in all 8 theme areas, the donors reported statistically significant positive reactions as compared to negative reactions...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582005/living-with-multiple-myeloma-a-focus-group-study-of-unmet-needs-and-preferences-for-survivorship-care
#9
Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Toni Musiello, Caroline Bulsara, Kendall Stratton, David Joske, Meinir Krishnasamy
Purpose: To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, person-centered, survivorship services. Methods: An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis. Results: Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotions, support needs, and living with the chronicity of myeloma...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582004/now-and-at-the-hour-of-death
#10
Susan M Wieczorek
With Alzheimer disease, the challenge of death can be unique to each who experience it: the caretaker, the family, the health-care professional, and the victim himself. Death of personality, of memory, and of physical skills wears away the fabric of relationships, leaving little hope of any return to normalcy. To some, this reflection exhibits how faith sustains hope and comforts those afflicted, despite the odds of inevitable loss. To others it reflects upon the poignant complexities associated with palliative care and the demand for individualized attention to the beliefs, norms, and values of each situation, no matter the culture, religion, age, or race...
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29582003/editor-s-letter
#11
EDITORIAL
Adrienne Boissy
No abstract text is available yet for this article.
March 2018: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276768/md-to-md-coaching-improving-physician-patient-experience-scores-what-works-what-doesn-t
#12
Ghazala Q Sharieff
With increasing national focus on patient experience scores through public reporting and the Value-Based Purchasing Program, hospitals and medical groups are challenged with initiating sustainable programs to improve their scores. Our system initiated 3 pilot programs to determine which approaches and techniques would be the most beneficial. The pilot trails included: (a) MD to MD 1:1 coaching with monthly MD-specific individual reports; (b) all staff patient experience training sessions at two of our urgent care centers; and (c) physician group patient experience training at one of our outpatient clinics...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276767/how-are-we-doing-the-experience-of-the-merton-home-treatment-team-in-gathering-real-time-feedback-and-the-impact-upon-service-provision
#13
Michael D Rutherford, A Akram
Aims and Method: To discuss the methods involved in gathering real-time feedback (RTF) by a London Home Treatment Team. We hypothesized that RTF would lead to changes in service provision and improvements in patient and carer feedback. Patients were invited to provide RTF on discharge. Quantitative and qualitative data were collected and analyzed centrally by the Trust before being disseminated to the team and changes made based upon the results. Quantitative feedback on the team's performance in the first 6 months of RTF use was compared against data from the 6 months prior to March 2015 using 2-tailed Z tests...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276766/challenges-to-ethically-managing-parkinson-disease-an-interview-study-of-patient-perspectives
#14
Shelagh T Shaw, Pirashanthie Vivekananda-Schmidt
This study investigated the current ethical issues in relation to recognizing and managing Parkinson disease (PD) from the patient's perspective. Methods: Twelve patients living with PD who were from the medical school's Patients as Educators program were recruited. Semistructured interviews were conducted to record patient experiences in order to identify potential ethical issues in relation to recognizing and managing PD. Thematic analysis was applied to the interview transcripts. Results: Four key themes emerged from the interviews...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276765/project-red-impacts-patient-experience
#15
Ramon S Cancino, Chris Manasseh, Lana Kwong, Suzanne E Mitchell, Jessica Martin, Brian W Jack
Background: Hospitalized patients are frequently unprepared to care for themselves after discharge often leading to unplanned hospital readmission. One strategy to reduce readmission rates is improving the quality of patient education and preparation before hospital discharge. The ReEngineered Discharge (RED) is a standardized hospital-based program designed to provide patients and caregivers the information they need to continue care at home. Objectives: We sought to study the impact of the RED intervention on posthospitalization adult patient experience scores in an urban academic safety-net hospital...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276764/relationship-between-patient-satisfaction-and-physician-characteristics
#16
J Gene Chen, Baiming Zou, Jonathan Shuster
Background: Physician care influences patient satisfaction. Inherent physician attributes may also affect scores. Objective: To determine the relationship between physician characteristics and patient satisfaction regarding physician care and communication. Method: Observational retrospective study. We examined patient satisfaction surveys from inpatient adults across 9 questions (HCAHPS: Courtesy, Listen, and Explain; Press Ganey: Time, Concern, Informed, Friendliness, Skill, Rating) in relation to physician gender, age, ethnicity, race, and specialty...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276763/a-description-of-patient-and-provider-experience-and-clinical-outcomes-after-heart-failure-shared-medical-appointment
#17
Lisa B Cohen, Melanie Parent, Tracey H Taveira, Sandesh Dev, Wen-Chih Wu
Background: Shared medical appointments (SMAs) are clinical visits in which several patients meet with 1 or more providers at the same time. Objective: To describe the outcomes of an interdisciplinary SMA for veterans recently discharged for heart failure (HF). Methods: A retrospective chart review for patients' readmission rates, survival, medication adherence, and medication-related problems. For qualitative outcomes, we performed semistructured interviews on 12 patients who had undergone HF SMAs and their respective caregivers focusing on care satisfaction, HF knowledge, disease self-care, medication reconciliation, and peer support...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276762/live-learn-pass-it-on-a-patient-advocacy-engagement-project-on-the-lived-experience-of-lung-cancer-survivors
#18
Sydney M Dy, Ellen M Janssen, Andrea Ferris, John Fp Bridges
Introduction: The objective of this project was to engage survivor-advocates by describing their experiences living with lung cancer in an era of increasing treatment options. Methods: This was a qualitative engagement project with participants from a lung cancer advocacy organization's survivor advisory board. Interviews were conducted, transcribed, and analyzed for stages and associated experiences using interpretive phenomenological analysis and elements of narrative analysis, in partnership with the patient advocacy organization...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276761/creating-an-excellent-patient-experience-through-service-education-content-and-methods-for-engaging-and-motivating-front-line-staff
#19
Denise M Kennedy
Service quality and patient satisfaction affect an organization's value-based payments. This new value paradigm calls for a new approach to service education and training for front-line staff. Thoughtfully conceived, department-specific content, infused with patient feedback, value creation, and science of service quality principles, was developed to give front-line staff a deeper understanding of the impact of their performance on patient experience, value creation, and value-based revenue. Feedback from nearly 1500 trainees in 60 educational sessions delivered over 7 years indicates good understanding of the content and appreciation of the targeted approach...
December 2017: Journal of Patient Experience
https://www.readbyqxmd.com/read/29276760/from-the-editor
#20
EDITORIAL
Adrienne Boissy
No abstract text is available yet for this article.
December 2017: Journal of Patient Experience
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