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JMIR Cancer

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https://www.readbyqxmd.com/read/29973334/online-decision-support-tool-for-personalized-cancer-symptom-checking-in-the-community-react-acceptability-feasibility-and-usability-study
#1
Marzena Ewa Nieroda, Artitaya Lophatananon, Brian McMillan, Li-Chia Chen, John Hughes, Rona Daniels, James Clark, Simon Rogers, Kenneth Ross Muir
BACKGROUND: Improving cancer survival in the UK, despite recent significant gains, remains a huge challenge. This can be attributed to, at least in part, patient and diagnostic delays, when patients are unaware they are suffering from a cancerous symptom and therefore do not visit a general practitioner promptly and/or when general practitioners fail to investigate the symptom or refer promptly. To raise awareness of symptoms that may potentially be indicative of underlying cancer among members of the public a symptom-based risk assessment model (developed for medical practitioner use and currently only used by some UK general practitioners) was utilized to develop a risk assessment tool to be offered to the public in community settings...
July 4, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29945855/youtube-videos-as-a-source-of-information-about-clinical-trials-observational-study
#2
Grace Clarke Hillyer, Sarah A MacLean, Melissa Beauchemin, Corey H Basch, Karen M Schmitt, Leslie Segall, Moshe Kelsen, Frances L Brogan, Gary K Schwartz
BACKGROUND: Clinical trials are essential to the advancement of cancer treatment but fewer than 5% of adult cancer patients enroll in a trial. A commonly cited barrier to participation is the lack of understanding about clinical trials. OBJECTIVE: Since the internet is a popular source of health-related information and YouTube is the second most visited website in the world, we examined the content of the top 115 YouTube videos about clinical trials to evaluate clinical trial information available through this medium...
June 26, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29884607/use-of-social-media-in-the-assessment-of-relative-effectiveness-explorative-review-with-examples-from-oncology
#3
Rachel Rj Kalf, Amr Makady, Renske Mt Ten Ham, Kim Meijboom, Wim G Goettsch
BACKGROUND: An element of health technology assessment constitutes assessing the clinical effectiveness of drugs, generally called relative effectiveness assessment. Little real-world evidence is available directly after market access, therefore randomized controlled trials are used to obtain information for relative effectiveness assessment. However, there is growing interest in using real-world data for relative effectiveness assessment. Social media may provide a source of real-world data...
June 8, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29764801/assessing-unmet-information-needs-of-breast-cancer-survivors-exploratory-study-of-online-health-forums-using-text-classification-and-retrieval
#4
Susan McRoy, Majid Rastegar-Mojarad, Yanshan Wang, Kathryn J Ruddy, Tufia C Haddad, Hongfang Liu
BACKGROUND: Patient education materials given to breast cancer survivors may not be a good fit for their information needs. Needs may change over time, be forgotten, or be misreported, for a variety of reasons. An automated content analysis of survivors' postings to online health forums can identify expressed information needs over a span of time and be repeated regularly at low cost. Identifying these unmet needs can guide improvements to existing education materials and the creation of new resources...
May 15, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29759953/acceptability-of-a-mobile-phone-app-for-measuring-time-use-in-breast-cancer-survivors-life-in-a-day-mixed-methods-study
#5
Matthew Cole Ainsworth, Dori Pekmezi, Heather Bowles, Diane Ehlers, Edward McAuley, Kerry S Courneya, Laura Q Rogers
BACKGROUND: Advancements in mobile technology allow innovative data collection techniques such as measuring time use (ie, how individuals structure their time) for the purpose of improving health behavior change interventions. OBJECTIVE: The aim of this study was to examine the acceptability of a 5-day trial of the Life in a Day mobile phone app measuring time use in breast cancer survivors to advance technology-based measurement of time use. METHODS: Acceptability data were collected from participants (N=40; 100% response rate) using a self-administered survey after 5 days of Life in a Day use...
May 14, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29752255/patient-centered-mobile-health-data-management-solution-for-the-german-health-care-system-the-databox-project
#6
Titus Josef Brinker, Stefanie Rudolph, Daniela Richter, Christof von Kalle
This article describes the DataBox project which offers a perspective of a new health data management solution in Germany. DataBox was initially conceptualized as a repository of individual lung cancer patient data (structured and unstructured). The patient is the owner of the data and is able to share his or her data with different stakeholders. Data is transferred, displayed, and stored online, but not archived. In the long run, the project aims at replacing the conventional method of paper- and storage-device-based handling of data for all patients in Germany, leading to better organization and availability of data which reduces duplicate diagnostic procedures, treatment errors, and enables the training as well as usage of artificial intelligence algorithms on large datasets...
May 11, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29712628/a-web-based-intervention-to-reduce-distress-after-prostate-cancer-treatment-development-and-feasibility-of-the-getting-down-to-coping-program-in-two-different-clinical-settings
#7
Jane Cockle-Hearne, Deborah Barnett, James Hicks, Mhairi Simpson, Isabel White, Sara Faithfull
BACKGROUND: Distress after prostate cancer treatment is a substantial burden for up to one-third of men diagnosed. Physical and emotional symptoms and health service use can intensify, yet men are reticent to accept support. To provide accessible support that can be cost effectively integrated into care pathways, we developed a unique, Web-based, self-guided, cognitive-behavior program incorporating filmed and interactive peer support. OBJECTIVE: To assess feasibility of the intervention among men experiencing distress after prostate cancer treatment...
April 30, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29653920/development-of-a-web-based-family-intervention-for-brca-carriers-and-their-biological-relatives-acceptability-feasibility-and-usability-study
#8
Maria C Katapodi, Miyeon Jung, Ann M Schafenacker, Kara J Milliron, Kari E Mendelsohn-Victor, Sofia D Merajver, Laurel L Northouse
BACKGROUND: Carriers of breast cancer gene (BRCA) mutations are asked to communicate genetic test results to their biological relatives to increase awareness of cancer risk and promote use of genetic services. This process is highly variable from family to family. Interventions that support communication of genetic test results, coping, and offer decision support in families harboring a pathogenic variant may contribute to effective management of hereditary cancer. OBJECTIVE: The aim of this paper was to describe the development of the Family Gene Toolkit, a Web-based intervention targeting BRCA carriers and untested blood relatives, designed to enhance coping, family communication, and decision making...
April 13, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29615384/analysis-of-content-shared-in-online-cancer-communities-systematic-review
#9
REVIEW
Mies C van Eenbergen, Lonneke V van de Poll-Franse, Emiel Krahmer, Suzan Verberne, Floortje Mols
BACKGROUND: The content that cancer patients and their relatives (ie, posters) share in online cancer communities has been researched in various ways. In the past decade, researchers have used automated analysis methods in addition to manual coding methods. Patients, providers, researchers, and health care professionals can learn from experienced patients, provided that their experience is findable. OBJECTIVE: The aim of this study was to systematically review all relevant literature that analyzes user-generated content shared within online cancer communities...
April 3, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29581090/implications-of-patient-portal-transparency-in-oncology-qualitative-interview-study-on-the-experiences-of-patients-oncologists-and-medical-informaticists
#10
Jordan M Alpert, Bonny B Morris, Maria D Thomson, Khalid Matin, Richard F Brown
BACKGROUND: Providing patients with unrestricted access to their electronic medical records through patient portals has impacted patient-provider communication and patients' personal health knowledge. However, little is known about how patient portals are used in oncology. OBJECTIVE: The aim of this study was to understand attitudes of the portal's adoption for oncology and to identify the advantages and disadvantages of using the portal to communicate and view medical information...
March 26, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29496653/toward-timely-data-for-cancer-research-assessment-and-reengineering-of-the-cancer-reporting-process
#11
Abdulrahman M Jabour, Brian E Dixon, Josette F Jones, David A Haggstrom
BACKGROUND: Cancer registries systematically collect cancer-related data to support cancer surveillance activities. However, cancer data are often unavailable for months to years after diagnosis, limiting its utility. OBJECTIVE: The objective of this study was to identify the barriers to rapid cancer reporting and identify ways to shorten the turnaround time. METHODS: Certified cancer registrars reporting to the Indiana State Department of Health cancer registry participated in a semistructured interview...
March 1, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29453187/quality-of-web-based-educational-interventions-for-clinicians-on-human-papillomavirus-vaccine-content-and-usability-assessment
#12
Brittany L Rosen, James M Bishop, Skye L McDonald, Jessica A Kahn, Gary L Kreps
BACKGROUND: Human papillomavirus (HPV) vaccination rates fall far short of Healthy People 2020 objectives. A leading reason is that clinicians do not recommend the vaccine consistently and strongly to girls and boys in the age group recommended for vaccination. Although Web-based HPV vaccine educational interventions for clinicians have been created to promote vaccination recommendations, rigorous evaluations of these interventions have not been conducted. Such evaluations are important to maximize the efficacy of educational interventions in promoting clinician recommendations for HPV vaccination...
February 16, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29434013/web-based-communication-strategies-designed-to-improve-intention-to-minimize-risk-for-colorectal-cancer-randomized-controlled-trial
#13
Carlene Wilson, Ingrid Flight, Ian T Zajac, Deborah Turnbull, Graeme P Young, Ian Olver
BACKGROUND: People seek information on the Web for managing their colorectal cancer (CRC) risk but retrieve much personally irrelevant material. Targeting information pertinent to this cohort via a frequently asked question (FAQ) format could improve outcomes. OBJECTIVE: We identified and prioritized colorectal cancer information for men and women aged 35 to 74 years (study 1) and built a website containing FAQs ordered by age and gender. In study 2, we conducted a randomized controlled trial (RCT) to test whether targeted FAQs were more influential on intention to act on CRC risk than the same information accessed via a generic topic list...
February 12, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29335233/internet-based-group-intervention-for-ovarian-cancer-survivors-feasibility-and-preliminary-results
#14
Ellen M Kinner, Jessica S Armer, Bonnie A McGregor, Jennifer Duffecy, Susan Leighton, Marya E Corden, Janine Gauthier Mullady, Frank J Penedo, Susan K Lutgendorf
BACKGROUND: Development of psychosocial group interventions for ovarian cancer survivors has been limited. Drawing from elements of cognitive-behavioral stress management (CBSM), mindfulness-based stress reduction (MBSR), and acceptance and commitment therapy (ACT), we developed and conducted preliminary testing of an Internet-based group intervention tailored specifically to meet the needs of ovarian cancer survivors. The Internet-based platform facilitated home delivery of the psychosocial intervention to a group of cancer survivors for whom attending face-to-face programs could be difficult given their physical limitations and the small number of ovarian cancer survivors at any one treatment site...
January 15, 2018: JMIR Cancer
https://www.readbyqxmd.com/read/29175813/demands-and-needs-for-psycho-oncological-ehealth-interventions-in-women-with-cancer-cross-sectional-study
#15
Johanna Ringwald, Lennart Marwedel, Florian Junne, Katrin Ziser, Norbert Schäffeler, Lena Gerstner, Markus Wallwiener, Sara Yvonne Brucker, Martin Hautzinger, Stephan Zipfel, Martin Teufel
BACKGROUND: Over the last decade, a growing body of studies regarding the application of eHealth and various digital interventions has been published and are widely used in the psycho-oncological care. However, the effectiveness of eHealth applications in psycho-oncological care is still questioned due to missing considerations regarding evidence-based studies on the demands and needs in cancer-affected patients. OBJECTIVE: This cross-sectional study aimed to explore the cancer-affected women's needs and wishes for psycho-oncological content topics in eHealth applications and whether women with cancer differ in their content topics and eHealth preferences regarding their experienced psychological burden...
November 24, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/29089290/adherence-to-report-and-patient-perception-of-an-interactive-app-for-managing-symptoms-during-radiotherapy-for-prostate-cancer-descriptive-study-of-logged-and-interview-data
#16
Ann Langius-Eklöf, Mats Christiansen, Veronica Lindström, Karin Blomberg, Maria Hälleberg Nyman, Yvonne Wengström, Kay Sundberg
BACKGROUND: Patients undergoing radiotherapy for prostate cancer experience symptoms related to both the cancer itself and its treatment, and it is evident that patients with prostate cancer have unmet supportive care needs related to their disease. Over the past decade, there has been an increase in the amount of research within the field of mobile health and the use of apps as tools for managing illness. The main challenge is to develop a mobile technology to its full potential of being interactive in real time...
October 31, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/29079555/-thanks-for-letting-us-all-share-your-mammogram-experience-virtually-developing-a-web-based-hub-for-breast-cancer-screening
#17
Adam Galpin, Joanne Meredith, Cathy Ure, Leslie Robinson
BACKGROUND: The decision around whether to attend breast cancer screening can often involve making sense of confusing and contradictory information on its risks and benefits. The Word of Mouth Mammogram e-Network (WoMMeN) project was established to create a Web-based resource to support decision making regarding breast cancer screening. This paper presents data from our user-centered approach in engaging stakeholders (both health professionals and service users) in the design of this Web-based resource...
October 27, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/28958985/the-impact-of-participation-in-online-cancer-communities-on-patient-reported-outcomes-systematic-review
#18
Mies C van Eenbergen, Lonneke V van de Poll-Franse, Peter Heine, Floortje Mols
BACKGROUND: In recent years, the question of how patients' participating in online communities affects various patient reported outcomes (PROs) has been investigated in several ways. OBJECTIVES: This study aimed to systematically review all relevant literature identified using key search terms, with regard to, first, changes in PROs for cancer patients who participate in online communities and, second, the characteristics of patients who report such effects. METHODS: A computerized search of the literature via PubMed (MEDLINE), PsycINFO (5 and 4 stars), Cochrane Central Register of Controlled Trials, and ScienceDirect was performed...
September 28, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/28954716/comparison-of-internet-and-telephone-interventions-for-weight-loss-among-cancer-survivors-randomized-controlled-trial-and-feasibility-study
#19
Matthew Cox, Karen Basen-Engquist, Cindy L Carmack, Janice Blalock, Yisheng Li, James Murray, Louis Pisters, Miguel Rodriguez-Bigas, Jaejoon Song, Emily Cox-Martin, Wendy Demark-Wahnefried
BACKGROUND: Weight loss interventions have been successfully delivered via several modalities, but recent research has focused on more disseminable and sustainable means such as telephone- or Internet-based platforms. OBJECTIVE: The aim of this study was to compare an Internet-delivered weight loss intervention to a comparable telephone-delivered weight loss intervention. METHODS: This randomized pilot study examined the effects of 6-month telephone- and Internet-delivered social cognitive theory-based weight loss interventions among 37 cancer survivors...
September 27, 2017: JMIR Cancer
https://www.readbyqxmd.com/read/28951383/a-mobile-breast-cancer-survivorship-care-app-pilot-study
#20
Janet Baseman, Debra Revere, Laura-Mae Baldwin
BACKGROUND: Cancer survivors living in rural areas experience unique challenges due to additional burdens, such as travel and limited access to specialists. Rural survivors of breast cancer have reported poorer outcomes, poorer mental health and physical functioning, and lower-than-average quality of life compared to urban survivors. OBJECTIVE: To explore the feasibility and acceptability of developing a mobile health survivorship care app to facilitate care coordination; support medical, psychosocial, and practical needs; and improve survivors' long-term health outcomes...
September 26, 2017: JMIR Cancer
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