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Narrative Inquiry in Bioethics

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https://www.readbyqxmd.com/read/28713150/a-jehovah-s-witness-adolescent-in-the-labor-and-delivery-unit-should-patient-and-parental-refusals-of-blood-transfusions-for-adolescents-be-honored
#1
Johan Christiaan Bester, Martin Smith, Cynthia Griggins
A 15-year-old was admitted to the labor and delivery unit for induction of a 41-week-gestation pregnancy. Her parents, members of Jehovah's Witnesses, and the patient, who had been studying the religion but had not yet been baptized, were adamant that no blood transfusions would be accepted even if a life-threatening hemorrhage were to occur. In our analysis, we examine the underlying ethical conflict and issues raised by this case. We considered two important ethical questions in analyzing the dilemma: first, whether adolescents are capable of providing autonomous and authentic refusals for lifesaving interventions; and second, whether parents can refuse such interventions for their adolescent children based on their religious beliefs...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713149/reframing-medical-appropriateness-a-case-study-concerning-the-use-of-life-sustaining-technologies-for-a-patient-with-profoundly-diminished-quality-of-life
#2
Colleen M Gallagher, Elijah Weber, Nisha Rathi
This case study considers the clinical ethics issues of medical appropriateness and quality of life for patients who are critically ill. The case involves a terminally ill cancer patient with a profoundly diminished quality of life and an extremely poor prognosis; his spouse desires to bring him home, where she will arrange to keep him alive for as long as possible via life-sustaining interventions. The analysis engages with the complicated notion of medical appropriateness, both in general and as it pertains to life-sustaining interventions in a critical care setting, and considers the ethical implications of the various ways in which one might understand this concept...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713148/sometimes-those-hoofbeats-are-zebras-a-narrative-analysis
#3
Lori A Roscoe
The case of BB, an 11-year-old girl who was hospitalized because of sudden odd seizure-like symptoms and catatonic affect, highlights several ethical issues and communication problems. The correct diagnosis was initially missed, partly because physicians are trained to think of the most common explanation for a patient's symptoms; the medical education truism "when you hear hoofbeats, think horses, not zebras" was not helpful in BB's case. The common habit of medical professionals to not revisit a diagnosis once one is established also led to missed opportunities to provide appropriate care for this young patient...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713147/to-enroll-or-not-to-enroll-a-researcher-struggles-with-the-decision-to-involve-study-participants-in-a-clinical-trial-that-could-save-their-lives
#4
Roberto Abadie
Hundreds of thousands of clinical trials are conducted annually around the world, working to further scientific knowledge and expand medical treatment. At the same time, clinical trials also present novel challenges to researchers who have access to large pools of research participants and are routinely approached by pharmaceutical companies seeking to recruit subjects for clinical trials. This case study discusses the ethical dilemmas faced by a community health investigator who received an invitation to enroll people who inject drugs (PWID) into a clinical trial of a drug that promised a new treatment option for Hepatitis C...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713146/-being-persistent-without-being-pushy-student-reflections-on-vaccine-hesitancy
#5
Amy E Caruso Brown, Manika Suryadevara, Thomas R Welch, Ann S Botash
Our goal as pediatric educators is to graduate physicians who have witnessed effective approaches and have grasped the nuances of communication strategies between vaccine-hesitant families and health care providers. We identified vaccine hesitancy as a recurring topic in 19 of 304 medical student reflective narratives addressing an issue in professionalism or systems-based practice. We conducted content analysis on the narratives in order to gain a better understanding of student perceptions of visits in which they observed a provider discussing vaccine hesitancy with a parent...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713145/reciprocal-relationships-something-for-everyone
#6
Nina Tumosa
Reciprocal relationships based on mutual goals, respect and trust are key to maintaining working relationships and getting reliable research results. Yet relationship building is not a concept taught in academia. These skills are often learned the hard way, with singular solutions found for case-by-case scenarios. Several journeys to identify the components, barriers and rewards of reciprocal relationships are discussed.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713144/toward-an-ethics-of-community-academic-partnership
#7
B J Crigger
Community-academic partnerships, which often form unexpectedly, can be time consuming, tedious, and sometimes awkward alliances, yet they arise out of perceived needs and can be fruitful. Putting aside hierarchy to explore such partnerships as communities themselves that seek to capitalize on the strengths, knowledge, and life experiences of each stakeholder can offer a fresh perspective for thinking about the ethics of community-academic partnerships. This commentary explores the partnerships detailed in the symposia through the lens of ethnography...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713143/the-common-denominator
#8
Gianna McMillan
Despite the best of intentions, researchers and subjects can fall into mindsets of "Us vs. Them", focusing on the different characteristics of their roles, skillsets and agendas. This commentary looks at the commonalities of the investigators and community members in these narratives, and the ways these shared human traits and experiences become the basis for merged social unit that moves productively toward relevant research goals.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713142/a-deep-dive-into-community-engagement
#9
Rebecca Dresser
Community engagement offers opportunities to enhance the value of health research. Through engaging with community partners, researchers can pursue projects that produce meaningful benefits for study populations. At the same time, engagement presents challenges for everyone involved. High-quality engagement requires attending to the choice of community partners, the ethics of engagement, education for researchers and community partners, project planning, and the distinct knowledge that experienced research subjects can contribute to engagement activities...
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713141/a-community-developed-culturally-based-palliative-care-program-for-african-american-and-white-rural-elders-with-a-life-limiting-illness-a-program-by-the-community-for-the-community
#10
https://www.readbyqxmd.com/read/28713140/the-engaged-dissertation-conducting-community-based-participatory-research-with-rural-indigenous-communities-as-a-graduate-student
#11
Jana Wilbricht
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713139/stigma-as-a-facet-of-community-academic-partnership
#12
Sally Mason
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713138/the-power-of-the-personal-breaking-down-stereotypes-and-building-human-connections
#13
Gay R Thomas, Betty L Kaiser, Kaitlin Svabek
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713137/be-careful-what-you-wish-for-a-community-academic-student-partnership-story
#14
Trina C Salm Ward, Mary C Mazul, Martha L Barry, Amy E Harley
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713136/reflections-on-cultivating-community-based-participatory-research-partnerships-with-the-afghan-immigrant-community
#15
Mehra Shirazi
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713135/community-academic-partnerships-to-improve-hispanic-immigrant-health-perspectives-from-a-doctoral-student
#16
J Claire Schuch
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713134/a-storied-community-piloting-a-patient-student-narrative-workshop-at-a-community-health-center
#17
EmmaLee Pallai
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713133/dual-relationships-in-specialty-care-reflections-from-the-field
#18
Lewis Raynor, Amy Penkin
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713132/we-really-do-have-the-same-goals-the-push-and-pull-of-one-community-academic-partnership-to-support-congolese-refugee-women
#19
Jyotika Saksena, Shannon McMorrow
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/28713131/research-partnership-rather-than-research-on-the-amish
#20
Helen M Farrar
No abstract text is available yet for this article.
2017: Narrative Inquiry in Bioethics
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