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Narrative Inquiry in Bioethics

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https://www.readbyqxmd.com/read/30220701/the-will-reconsidered-hard-choices-in-living-organ-donation
#1
Robert M Guerin, Elizabeth O'Toole, Barbara Daly
In the following article, we illustrate an interview between a living donor advocate and a potential living organ donor in which the donor faced a hard choice: the reasons to donate and the reasons not to donate were equally persuasive. In the discussion that follows, we analyze the act of willing, what differentiates coercion and willing, and how the case study highlights a different, but by no means rare, instance in which donors feel paralyzed by the choice at hand. In such cases, we suspect that donor advocates either do not approve the potential donor for transplantation or simply remain neutral...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220700/comparing-patient-clinician-and-caregiver-perceptions-of-care-for-early-psychosis-a-free-listing-study
#2
Erich M Dress, Rosemary Frasso, Monica E Calkins, Allison E Curry, Christian G Kohler, Lyndsay R Schmidt, Dominic A Sisti
Models for early psychosis intervention often involve shared decision-making among patients, their caregivers, and clinicians. However, this process rests on a shared understanding of constructs, experiences, and language. This study examined how various aspects of early psychosis care were conceptualized by those involved in the help-seeking process, and the extent to which their perceptions aligned with one another. We conducted a free listing study to systematically explore perceptions of the help-seeking process and management of psychosis-related symptoms among a sample of 65 patients, caregivers, and clinicians at an early psychosis intervention clinic...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220699/reinforcing-loss-and-rendering-invisible-adoptee-experience-and-the-structural-failings-of-biomedicine
#3
Jennifer James
This commentary discusses the challenge of health care interactions for people who are adopted. These narratives describing how adoptees approach and are approached by biomedicine make it clear that their needs are not being met and that many feel ostracized in clinical encounters. I argue that adoptee identity should be included along with categories such as race, class and gender when we consider intersectional approaches to health and healthcare. We cannot consider a one-size fits all approach to health care for adoptees, as these stories make clear that a lack of known family history should neither preclude adoptees from accessing tests and services, nor serve as an automatic indication for heightened screening...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220698/family-health-history-invaluable-for-adoptees-medical-care-and-self-identity
#4
Pat C Lord
Adoption is one of several ways to have a family. Adoption is unique in that it involves birth parents, adoptive parents, and adoptees. For many adoptees, there is no information about their birth family health history which can create healthcare challenges. In these narratives, many adoptees discuss genetic testing as a substitution for their birth family health history which is one common theme in these stories. However, two narratives illustrate the value of an on-going family health history with birth families to identify health risks that are not identified in genetic testing but evolve over time...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220697/claiming-what-is-rightfully-mine
#5
Harold D Grotevant
Although adopted persons did not choose to be adopted, their life-long task is to come to terms with its meaning, which includes absence of important information about their family health history. Problematic encounters with health care professionals inspired contributors' narratives recognizing compelling need for accurate information about themselves as well as access to empathic and resourceful medical professionals. A key issue pervading the narratives was loss: loss of birth name and identity, loss of birth relatives and history, and often loss of birth culture...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220696/adoptees-pursuit-of-genomic-testing-to-fill-gaps-in-family-health-history-and-reduce-healthcare-disparity
#6
Kari A Casas
In the symposium of stories by adoptees who have faced health issues without family health history information, genomic testing is considered as a potentially life-saving means for adoptees to obtain family medical information. The authors share feelings of loss, frustration in healthcare settings, fear of unknown genetic susceptibility to disease, desire for knowledge and self-empowerment in medical decision making, and uncertainty about the utility of genomic testing. Adoptees may pursue ancestry testing, genetic genealogy to find biological relatives, and medical genomic testing...
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220695/an-unfinished-puzzle
#7
Christina Romo
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220694/the-presence-of-absence
#8
(no author information available yet)
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220693/limited-medical-history-an-adoption-story
#9
Lisa McPherson
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220692/chest-pain
#10
Michael D Kopf
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220691/adoption-times-two
#11
(no author information available yet)
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220690/a-genome-of-one
#12
Heewon Lee
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220689/my-heart-beats-with-gratitude
#13
Rumen Dale Hulmequist
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220688/a-personal-reflection-on-the-medical-history-questions-facing-adopted-persons
#14
Mark A Cotleur
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220687/when-health-history-is-a-matter-of-life-or-death
#15
Cathy Heslin
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220686/a-tale-of-two-adopted-sisters
#16
Dana Gold
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220685/an-unfinished-story-an-unfinished-body-how-missing-health-histories-predispose-adoptees-to-illness
#17
Shannon Gibney
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220684/healthcare-challenges-of-an-adoptee
#18
Lauren Sanders Fleming
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220683/if-we-had-known
#19
Susan Sullivan
No abstract text is available yet for this article.
2018: Narrative Inquiry in Bioethics
https://www.readbyqxmd.com/read/30220682/healthcare-challenges-faced-by-adopted-persons-lacking-family-health-history-information
#20
Thomas May, Richard M Lee, James P Evans
An individual's genetic-relative family health history can lead to the identification of high-risk individuals and through this can result in highly effective disease prevention for those at risk. In this symposium, readers will see the very different lived experiences of adopted persons whose access to genetic-relative family health history is limited. All share a common experience of facing obstacles within the U.S. healthcare system related to lacking family health history. Genomic technologies now offer tremendous promise to fill gaps in access to this vital health information...
2018: Narrative Inquiry in Bioethics
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