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JMIR Research Protocols

Mahin Nomali, Ramin Mohammadrezaei, Abbas Ali Keshtkar, Gholamreza Roshandel, Shahrzad Ghiyasvandian, Kian Alipasandi, Masoumeh Zakerimoghadam
BACKGROUND: Patients with heart failure (HF) reduced ejection fraction (HFrEF) have symptoms that are more severe and experience a higher rate of hospitalization compared with HF preserved ejection fraction (HFpEF) patients. However, symptom recognition cannot be made by patients based on current approaches. This problem is a barrier to effective self-care that needs to be improved by new self-monitoring instruments and strategies. OBJECTIVE: This study describes a protocol for the self-monitoring daily diaries of weight and shortness of breath (SOB) based on the traffic light system (TLS)...
November 14, 2018: JMIR Research Protocols
W Ben Mortenson, Patricia Branco Mills, Jared Adams, Gurkaran Singh, Megan MacGillivray, Bonita Sawatzky
BACKGROUND: Most people with spinal cord injury will develop secondary complications with potentially devastating consequences. Self-management is a key prevention strategy for averting the development of secondary complications and their recurrence. Several studies have shown that self-management programs improve self-management behaviors and health outcomes in individuals living with chronic conditions such as asthma, diabetes, hypertension, and arthritis. Given the burgeoning health care costs related to secondary complications, we developed an alternative electronic health-based implementation to facilitate the development of self-management skills among people with spinal cord injury...
November 14, 2018: JMIR Research Protocols
Kelcie Witges, Laura E Targownik, Clove Haviva, John R Walker, Lesley A Graff, Kathryn A Sexton, Lisa Lix, Michael Sargent, Kathy Vagianos, Charles N Bernstein
BACKGROUND: There has been limited longitudinal research that has comprehensively evaluated possible factors in the exacerbation of inflammatory bowel disease (IBD) symptoms with or without associated inflammation. Evolving Web-based technologies facilitate frequent monitoring of patients' experiences and allow a fine-grained assessment of disease course. OBJECTIVE: We aimed to prospectively identify factors associated with symptom exacerbation and inflammation in IBD including psychological functioning, diet, health behaviors, and medication adherence...
November 12, 2018: JMIR Research Protocols
Kristian Hansson, Björn Axel Johansson, Claes Andersson, Maria Rastam, Sophia Eberhard
BACKGROUND: New methods are needed for collecting data of in- and outpatients and for improving outpatient compliance after discharge. Mobile technologies, such as smartphone apps, have shown promising results, (eg, helping unwell people by offering support and resources). Screening for the condition, including comorbidities, is a vital part of psychiatric care. Comorbid conditions, especially in emergency evaluation, are often missed, leading to inaccurate diagnosis and treatment. One way of improving diagnostic accuracy is to use a structured diagnostic process...
November 12, 2018: JMIR Research Protocols
Jo L Byrne, Helen M Dallosso, Stephen Rogers, Laura J Gray, Ghazala Waheed, Prashanth Patel, Pankaj Gupta, Yvonne Doherty, Melanie Davies, Kamlesh Khunti
BACKGROUND: Poor adherence to cardiovascular medications is associated with worse clinical outcomes. Evidence for effective education interventions that address medication adherence for the primary prevention of cardiovascular disease is lacking. The Ready to Reduce Risk (3R) study aims to investigate whether a complex intervention, involving group education plus telephone and text messaging follow-up support, can improve medication adherence and reduce cardiovascular risk. OBJECTIVE: This protocol paper details the design and rationale for the development of the 3R intervention and the study methods used...
November 12, 2018: JMIR Research Protocols
May May Leung, Katrina F Mateo, Sandra Verdaguer, Katarzyna Wyka
BACKGROUND: Childhood obesity is a public health crisis, particularly in low-income, minority populations in the United States. Innovative and technology-enhanced interventions may be an engaging approach to reach at-risk youth and their parents to improve dietary behaviors and feeding practices. However, such tools are limited, especially ones that are theory-based; co-developed with user-centered approaches; tailored to low-income, minority preadolescents; and include parent-focused content...
November 9, 2018: JMIR Research Protocols
Rebecca Jamwal, Libby Callaway, Di Winkler, Louise Farnworth, Robyn Tate
BACKGROUND: Smart home technologies are emerging as a useful component of support delivery for people with brain impairment. To promote their successful uptake and sustained use, focus on technology support services, including training, is required. OBJECTIVE: The objective of this paper is to present a systematic smart home technology training approach for people with brain impairment. In addition, the paper outlines a multiple-baseline, single-case experimental design methodology to evaluate training effectiveness...
November 8, 2018: JMIR Research Protocols
Arriel Benis, Nissim Harel, Refael Barak Barkan, Einav Srulovici, Calanit Key
BACKGROUND: Data collected by health care organizations consist of medical information and documentation of interactions with patients through different communication channels. This enables the health care organization to measure various features of its performance such as activity, efficiency, adherence to a treatment, and different quality indicators. This information can be linked to sociodemographic, clinical, and communication data with the health care providers and administrative teams...
November 7, 2018: JMIR Research Protocols
Louise Birrell, Nicola C Newton, Tim Slade, Catherine Chapman, Louise Mewton, Nyanda McBride, Leanne Hides, Mary Lou Chatterton, Steve Allsop, Annalise Healy, Marius Mather, Catherine Quinn, Cathrine Mihalopoulos, Maree Teesson
BACKGROUND: Mental health and substance use disorders are the leading causes of global disability in children and youth. Both tend to first onset or escalate in adolescence and young adulthood, calling for effective prevention during this time. The Climate Schools Combined (CSC) study was the first trial of a Web-based combined universal approach, delivered through school classes, to prevent both mental health and substance use problems in adolescence. There is also limited evidence for the cost-effectiveness of school-based prevention programs...
November 6, 2018: JMIR Research Protocols
Almaz Sharman, Baurzhan Zhussupov, Dana Sharman, Irina Kim, Elmira Yerenchina
BACKGROUND: Chronic obstructive pulmonary disease (COPD) is a global public health problem. It is the third-leading cause of death in the world, the fourth leading cause of death in Kazakhstan, and is strongly associated with smoking. Smoking cessation reduces the severity of respiratory symptoms and COPD exacerbations. Heated tobacco products, such as HeatSticks heated by the iQOS device, a smoke-free electronic device, may serve as less risky alternatives to conventional combustible cigarettes...
November 5, 2018: JMIR Research Protocols
Nakiya N Showell, Corinna Koebnick, Lisa R DeCamp, Margo Sidell, Tatiahna Rivera Rodriguez, Jennifer J Jimenez, Deborah Young, Rachel Lj Thornton
BACKGROUND: Despite a recent decline in the obesity prevalence among preschool-aged children, obesity remains disproportionately high among children from low-income racial or ethnic minority families. Promoting healthy lifestyles (eg, obesity-preventative behaviors) in primary care settings is particularly important for young children, given the frequency of preventative health visits and parent-provider interactions. Higher adoption of specific health behaviors is correlated with increased patient activation (ie, skill, confidence, and knowledge to manage their health care) among adults...
November 5, 2018: JMIR Research Protocols
Jona R Frohlich, Karli K Rapinda, Michael P Schaub, Andreas Wenger, Christian Baumgartner, Edward A Johnson, Roisin M O'Connor, Norah Vincent, Matthijs Blankers, David D Ebert, Heather Hadjistavropoulos, Corey S Mackenzie, Matthew T Keough
BACKGROUND: Alcohol misuse and emotional problems (ie, depression and anxiety) are highly comorbid among Canadian young adults. However, there is a lack of integrated, accessible, and evidence-based treatment options for these young adults. OBJECTIVE: The main goal of this study is to develop and test the efficacy of an integrated, online self-help program designed to target both alcohol misuse and emotional problems. METHODS: A two-arm randomized controlled trial design will be used to compare the efficacy of the online integrated treatment to a psychoeducational control group...
November 1, 2018: JMIR Research Protocols
Pablo Emilio Serrano, Sameer Parpia, Saeda Nair, Leyo Ruo, Marko Simunovic, Oren Levine, Emmanuelle Duceppe, Carol Rodrigues
BACKGROUND: Postoperative morbidity following gastrointestinal tract major surgery ranges between 40% and 60%. Malnutrition, poor protein intake, and surgery-related impairment of the immune system and its function have been associated with postoperative infections. Supplemental perioperative nutrition may improve nutrition by increasing protein intake to influence cell-mediated immunity, thereby reducing the rate of postoperative infectious complications. OBJECTIVE: The primary objective of our trial is to determine the proportion of eligible patients randomized in an 18-month period...
October 31, 2018: JMIR Research Protocols
Åsa Revenäs, Helena Hvitfeldt Forsberg, Emma Granström, Carolina Wannheden
BACKGROUND: The need for services to support patient self-care and patient education has been emphasized for patients with chronic conditions. People with chronic conditions may spend many hours per year in health and social care services, but the majority of time is spent in self-care. This has implications in how health care is best organized. The term co-care specifically stresses the combination of health care professionals' and patients' resources, supported by appropriate (digital) tools for information exchange, to achieve the best possible health outcomes for patients...
October 30, 2018: JMIR Research Protocols
Bree E Holtz, Katharine M Mitchell, Denise D Hershey, Shelia R Cotten, Amanda J Holmstrom, Joshua Richman, Julie K Dunneback, Michael A Wood
BACKGROUND: Type 1 diabetes mellitus (T1DM) afflicts approximately 154,000 people under the age of 20 in the United States. Most people with T1DM are diagnosed at a young age, and parents have to take on the responsibility of T1DM management. Eventually, the child must begin to transition to self-management. Adolescents often struggle to take on responsibility for all the necessary tasks to successfully self-manage their T1DM. In fact, approximately three-quarters of adolescents are not achieving American Diabetes Association-recommended glycated hemoglobin (HbA1c ) targets...
October 30, 2018: JMIR Research Protocols
Daniela Regina Brandao Tavares, Jane Erika Frazao Okazaki, Aline Pereira Rocha, Marcia Valeria De Andrade Santana, Ana Carolina Pereira Nunes Pinto, Vinicius Tassoni Civile, Fania Cristina Santos, Felipe Fregni, Virginia Fernandes Moça Trevisani
BACKGROUND: Knee osteoarthritis (OA) has been the main cause behind chronic pain and disabilities in the elderly population. The traditional treatment for knee OA pain currently concerns a number of combinations of pharmacological and nonpharmacological therapies. However, such combinations have displayed little effects on a significant group of subjects. In addition to this, pharmacological treatments often cause adverse effects, which limits their use on this population. Previous studies showed that chronic knee OA pain may be associated with maladaptive compensatory plasticity in pain-related neural central circuits indexed by a defective descending pain-inhibitory system...
October 29, 2018: JMIR Research Protocols
Matthew E Hughes, Joanna Nkyekyer, Hamish Innes-Brown, Susan L Rossell, David Sly, Sunil Bhar, Andrew Pipingas, Alison Hennessy, Denny Meyer
BACKGROUND: Older adults with postlingual sensorineural hearing loss (SNHL) exhibit a poor prognosis that not only includes impaired auditory function but also rapid cognitive decline, especially speech-related cognition, in addition to psychosocial dysfunction and an increased risk of dementia. Consistent with this prognosis, individuals with SNHL exhibit global atrophic brain alteration as well as altered neural function and regional brain organization within the cortical substrates that underlie auditory and speech processing...
October 26, 2018: JMIR Research Protocols
Kevin Baker, Mucunguzi Akasiima, Alexandra Wharton-Smith, Tedila Habte, Lena Matata, Diana Nanyumba, Morris Okwir, Anteneh Sebsibe, Madeleine Marasciulo, Max Petzold, Karin Källander
BACKGROUND: Pneumonia is one of the leading causes of death in children aged under 5 years in both sub-Saharan Africa and Southeast Asia. The current diagnostic criterion for pneumonia is based on the increased respiratory rate (RR) in children with cough or difficulty breathing. Low oxygen saturation, measured using pulse oximeters, is indicative of severe pneumonia. Health workers often find it difficult to accurately count the number of breaths, and the current RR counting devices are often difficult to use or unavailable...
October 25, 2018: JMIR Research Protocols
Robert T Trotter Ii, Ricky Camplain, Emery R Eaves, Viacheslav Y Fofanov, Natalia O Dmitrieva, Crystal M Hepp, Meghan Warren, Brianna A Barrios, Nicole Pagel, Alyssa Mayer, Julie A Baldwin
BACKGROUND: Incarcerated populations have increased in the last 20 years and >12 million individuals cycle in and out of jails each year. Previous research has predominately focused on the prison population. However, a substantial gap exists in understanding the health, well-being, and health care utilization patterns in jail populations. OBJECTIVE: This pilot study has 5 main objectives: (1) define recidivists of the jail system, individuals characterized by high incarceration rates; (2) describe and compare the demographic and clinical characteristics of incarcerated individuals; (3) identify jail-associated health disparities; (4) estimate associations between incarceration and health; and (5) describe model patterns in health care and jail utilization...
October 24, 2018: JMIR Research Protocols
Ana-Maria Vranceanu, Emily L Zale, Christopher J Funes, Eric A Macklin, Jessica McCurley, Elyse R Park, Justin T Jordan, Ann Lin, Scott R Plotkin
BACKGROUND: Neurofibromatoses (NF) are rare genetic conditions associated with substantial psychosocial burden and impaired quality of life (QoL). We developed the first NF-tailored mind-body program (the Relaxation Response Resiliency Program for NF) and adapted it for delivery via live videoconferencing to decrease participation barriers and increase its reach. In a pilot randomized controlled trial (RCT), we found that the Relaxation Response Resiliency Program for NF had excellent feasibility and acceptability when delivered via live videoconferencing; furthermore, the Relaxation Response Resiliency Program for NF showed proof of concept in improving QoL compared with an NF-tailored health education control program (the Health Enhancement Program for NF)...
October 23, 2018: JMIR Research Protocols
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