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BMJ Supportive & Palliative Care

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https://www.readbyqxmd.com/read/28647715/finding-meaning-a-personal-reflection-on-adem-crosby
#1
LETTER
Elise Button
No abstract text is available yet for this article.
June 24, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28647714/the-burden-of-multiple-sclerosis-and-patients-coping-strategies
#2
Lorena Lorefice, Giuseppe Fenu, Jessica Frau, Giancarlo Coghe, Maria Giovanna Marrosu, Eleonora Cocco
OBJECTIVES: Multiple sclerosis (MS) is a chronic disease that mainly affects young people. Patients with MS experience several emotional responses to changed perceptions of themselves and manage this situation in ways focused on controlling the overall burden of disease. This present study aimed to evaluate differences between patients with MS and healthy controls (HCs) in coping styles, identifying the MS clinical features that influence adaptive responses. METHODS: Patients with MS, according to the McDonald 2010 criteria, and HCs were recruited...
June 24, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28646082/subcutaneous-magnesium-in-the-advanced-cancer-setting
#3
Stephen J Fenning, Steinunn R Boyce, Paul Wilson, Fran Stretton
Hypomagnesaemia can arise from a variety of causes but is particularly prevalent in cancer populations. This case report describes a patient with recurrent symptomatic hypomagnesaemia, on the background of advanced ovarian cancer and a high-output ileostomy, who was successfully managed on a daily continuous subcutaneous infusion of magnesium via a syringe pump. There is limited published information on the subcutaneous administration of magnesium and, to our knowledge, this is the first case to report its routine delivery over 24 hours in a syringe pump...
June 23, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28637714/advance-care-planning-in-medicare-an-early-look-at-the-impact-of-new-reimbursement-on-billing-and-clinical-practice
#4
Gawin Tsai, Donald H Taylor
OBJECTIVE: In this study, we examined the US Medicare programme's (government-funded social insurance for the elderly or disabled) new reimbursement for advance care planning (ACP) that began on 1 January 2016. This single-centre study addressed whether clinicians who have ACP conversations with patients will use the new reimbursement code and if the new reimbursement is successful at motivating clinicians to have more ACP conversations with patients. METHODS: This is a multimethod study...
June 21, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28637713/a-pilot-study-of-interprofessional-palliative-care-education-of-medical-students-in-the-uk-and-usa
#5
Amy Gadoud, Wei-Hsin Lu, Lisa Strano-Paul, Susan Lane, Jason W Boland
BACKGROUND: Educating medical students to care for patients at the end-of-life is increasingly recognised as an essential component of training. Traditionally, medical student programmes are run by doctors, but patient care is delivered by an interprofessional team. Our programmes in the UK and USA independently developed a teaching experience led by an interprofessional team of palliative care health professionals. OBJECTIVES: This study explores the palliative care health professionals' perceptions, regarding their unique role in medical student palliative care education...
June 21, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28634216/respecting-patient-choices-using-the-go-wish-cards-as-a-teaching-tool
#6
Hibah Osman, Katia El Jurdi, Ramzi Sabra, Thalia Arawi
BACKGROUND: Individuals have different values and priorities that can have an important impact on their medical management. Understanding this concept can help physicians provide medical care that is in line with the goals of their patients. Communicating this message effectively to students is challenging. OBJECTIVE: To report our experience with using Go Wish cards in the medical education setting. DESIGN: A thematic analysis of student reflection papers using grounded theory...
June 20, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28630131/-it-s-a-hard-conversation-to-have-healthcare-professionals-views-concerning-advance-care-discussions-with-young-people-affected-by-life-limiting-neuromuscular-diseases-an-interview-study
#7
Andy Hiscock, Stephen Barclay
OBJECTIVE: Life-limiting neuromuscular disease, such as some of the muscular dystrophies, are often diagnosed in early childhood: when death comes, commonly in the second or third decade of life, patients rarely have advance care plans in place or documented end-of-life care preferences. There is very limited literature concerning the discussions about end-of-life plans healthcare professionals have with young people affected by life-limiting neuromuscular diseases. The aim of this study was to investigate the views and experiences of healthcare professionals concerning having discussions about advance care plans and end-of-life care with teenagers and young adult patients affected by life-limiting neuromuscular diseases...
June 19, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28611157/the-prevalence-of-death-anxiety-among-patients-with-breast-cancer
#8
LETTER
Saraa Karampour, Malek Fereidooni-Moghadam, Kourosh Zarea, Bahman Cheraghian
No abstract text is available yet for this article.
June 13, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28596151/survey-on-advance-care-planning-of-italian-outpatients-on-chronic-haemodialysis
#9
Nicola Panocchia, Giuseppe Tonnara, Roberta Minacori, Dario Sacchini, Maurizio Bossola, Luigi Tazza, Giovanni Gambaro, Antonio Gioacchino Spagnolo
OBJECTIVES: The clinical practice guidelines published by the Renal Physicians Association (USA) recommend instituting advance care planning (ACP) for patients with end-stage renal disease. Studies on this issue are lacking in Italy. Our aim was to determine the attitudes of patients on ACP in our dialysis centre. METHODS: We performed a cross-sectional survey. We recruited patients on maintenance haemodialysis (HD) at Hemodialysis Center of Università Cattolica del Sacro Cuore, from 1 March 2014 to 31 March 2015...
June 8, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28554888/what-are-the-current-challenges-of-managing-cancer-pain-and-could-digital-technologies-help
#10
Rosalind Adam, Marijn de Bruin, Christopher David Burton, Christine M Bond, Maria Giatsi Clausen, Peter Murchie
OBJECTIVES: Pain remains a problem for people with cancer despite effective treatments being available. We aimed to explore current pain management strategies used by patients, caregivers and professionals and to investigate opportunities for digital technologies to enhance cancer pain management. METHODS: A qualitative study comprising semistructured interviews and focus groups. Patients with cancer pain, their caregivers and health professionals from Northeast Scotland were recruited from a purposive sample of general practices...
May 29, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28483923/rethinking-priorities-experience-of-an-educational-initiative-to-change-attitudes-behaviours-and-clinical-practice-in-end-of-life-care
#11
Annette Edwards, Viv Barros D'Sa, Fiona Hicks
To implement the National End of Life Care strategy and enable more people to express and achieve their preferences about care at the end of life, senior clinicians outside palliative medicine need to make it a routine part of their practice. However, it is acknowledged that recognising that people are entering the last phase of their illness is not always straightforward, and having conversations about aims of treatment and planning for future care may not be easy. In order to begin to address these challenges, funding was sought from the Yorkshire and the Humber Strategic Health Authority (SHA), and subsequently Health Education England, Yorkshire and the Humber (HEEYH), to pilot a development programme in 2 acute trusts...
May 8, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28450441/losing-a-partner-the-varying-financial-and-practical-impacts-of-bereavement-in-different-sociodemographic-groups
#12
Harriet Lancaster, Tom Johnson
OBJECTIVES: The purpose of this study was to describe the financial and practical impacts of the death of a life partner, up to 5 years after bereavement. The study compared the impact felt by different sociodemographic groups and evaluated the role of financial and caring organisations in improving these impacts. METHODS: An evidence review of the subject area was conducted and a qualitative assessment of the target population (individuals whose partner had died in the past 3 years) was carried out using a semistructured interview (n=6)...
April 27, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28438759/palliative-care-clinicians-knowledge-of-the-law-regarding-the-use-of-the-deprivation-of-liberty-safeguards-dols
#13
Caroline Barry, Anna Spathis, Sarah Treaddell, Sally Carding, Stephen Barclay
OBJECTIVES: To examine palliative care clinicians' level of knowledge of the law regarding the use of the Deprivation of Liberty Safeguards (DoLS). METHODS: Regional postal survey of palliative care clinicians working in hospices in the East of England, undertaken in April 2015. Clinicians' level of knowledge was assessed by their response to 7 factual questions. Data regarding self-reported levels of confidence in applying the Safeguards was collected, alongside information regarding the number of times they had used DoLS in practice...
April 24, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28432089/preparing-future-doctors-for-palliative-care-views-of-course-organisers
#14
Steven Walker, Jane Gibbins, Paul Paes, Stephen Barclay, Astrid Adams, Madawa Chandratilake, Faye Gishen, Philip Lodge, Bee Wee
BACKGROUND: Effective training at medical school is essential to prepare new doctors to safely manage patients with palliative care (PC) and end of life care (EOLC) needs. The contribution of undergraduate PC course organisers is central but their collective views regarding role are unknown. OBJECTIVE: To survey attitudes of PC course organisers regarding their course, organisation, the adequacy of training provided and level of personal satisfaction. METHODS: An anonymised, multifactorial, web-based questionnaire was devised, tested, modified and then sent to lead PC course organisers at all UK medical schools...
April 21, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28432088/gps-and-paediatric-oncology-palliative-care-a-q-methodological-study
#15
Sue Neilson, Faith Gibson, Stephen Jeffares, Sheila M Greenfield
OBJECTIVE: This mixed-methods study set in the West Midlands region of the UK demonstrates the effectiveness of Q methodology in examining general practitioners' (GPs') perception of their role in children's oncology palliative care. METHODS: Using data obtained from the analysis of semistructured interviews with GPs who had cared for a child receiving palliative care at home and bereaved parents, 50 statements were identified as representative of the analysis findings...
April 21, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28432090/international-variations-in-clinical-practice-guidelines-for-palliative-sedation-a-systematic-review
#16
REVIEW
Ebun Abarshi, Judith Rietjens, Lenzo Robijn, Augusto Caraceni, Sheila Payne, Luc Deliens, Lieve Van den Block
OBJECTIVES: Palliative sedation is a highly debated medical practice, particularly regarding its proper use in end-of-life care. Worldwide, guidelines are used to standardise care and regulate this practice. In this review, we identify and compare national/regional clinical practice guidelines on palliative sedation against the European Association for Palliative Care (EAPC) palliative sedation Framework and assess the developmental quality of these guidelines using the Appraisal Guideline Research and Evaluation (AGREE II) instrument...
April 20, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28428173/poor-prognostication-hidden-meanings-in-word-choices
#17
LETTER
Anne M Kelemen, Grace Kearney, Michael Pottash, Hunter Groninger
No abstract text is available yet for this article.
April 20, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28428172/how-are-non-numerical-prognostic-statements-interpreted-and-are-they-subject-to-positive-bias
#18
Anne Moyer, Samantha Siess, Sumeet Bhinder
OBJECTIVES: Frank, clear communication with family members of terminally ill or incapacitated patients has important implications for well-being, satisfaction with care and sound decision-making. However, numerical prognostic statements, particularly more negative ones, have been found to be interpreted in a positively biased manner. Less precise non-numerical statements, preferred by physicians, and particularly statements using threatening terms (dying vs surviving) may be even more subject to such biases...
April 20, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28424195/thyroid-skeletal-metastasis-pain-management-with-verteblation
#19
Gianluigi Orgera, Miltiadis Krokidis, Alberto Rebonato, Marcello Andrea Tipaldi, Luca Mascagni, Michele Rossi
The combination of percutaneous vertebroplasty with radiofrequency ablation (verteblation) has not shown to be an effective measure of pain management in patients with metastatic lesions of the spine. The use of this novel technique has not been previously described in metastatic disease from thyroid cancer. We would like to report our experience after treating a patient affected by a thyroid carcinoma and an osteolytic spine metastasis. The patient suffered from life-limiting pain and was successfully treated with a combination of vertebroplasty and radiofrequency ablation...
April 19, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28424194/common-care-practices-among-effective-community-based-specialist-palliative-care-teams-a-qualitative-study
#20
Hsien Seow, Daryl Bainbridge, Melissa Brouwers, Deanna Bryant, Sue Tan Toyofuku, Mary Lou Kelley
OBJECTIVE: Evidence has shown that, despite wide variation in models of care, community-based specialist palliative care teams can improve outcomes and reduce acute care use at end of life. The goal of this study was to explore similarities in care practices among effective and diverse specialist teams to inform the development of other community-based teams. METHODS: Interviews with 78 providers and administrators from 11 distinct community-based specialist palliative care teams from Ontario, Canada were conducted...
April 19, 2017: BMJ Supportive & Palliative Care
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