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BMJ Supportive & Palliative Care

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https://www.readbyqxmd.com/read/28232515/home-palliative-care-works-but-how-a-meta-ethnography-of-the-experiences-of-patients-and-family-caregivers
#1
REVIEW
Vera P Sarmento, Marjolein Gysels, Irene J Higginson, Barbara Gomes
OBJECTIVE: To understand patients and family caregivers' experiences with home palliative care services, in order to identify, explore and integrate the key components of care that shape the experiences of service users. METHODS: We performed a meta-ethnography of qualitative evidence following PRISMA recommendations for reporting systematic reviews. The studies were retrieved in 5 electronic databases (MEDLINE, EMBASE, PsycInfo, BNI, CINAHL) using 3 terms and its equivalents ('Palliative', 'Home care', 'Qualitative research') combined with 'AND', complemented with other search strategies...
February 23, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28232514/bridge-the-deep-chasm-between-patients-with-cancer-and-palliative-care-in-japan
#2
LETTER
Kazuhiro Kosugi, Kenji Tsuda, Asaka Higuchi, Jinichi Mori, Tetsuya Tanimoto
No abstract text is available yet for this article.
February 23, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28213346/costs-of-family-caregiving-in-palliative-care-cofac-questionnaire-development-and-piloting-of-a-new-survey-tool
#3
Clare Gardiner, Chris McDermott, Claire Hulme
BACKGROUND: Family caregivers play an important role in the care of patients receiving palliative care, yet little is known about the financial impact of family caregiving in this context. A lack of existing validated tools for collecting data on the costs of family caregiving in palliative care has resulted in a weak and limited evidence base. The aim of the study was to describe the development and initial piloting of a new survey tool which captures data on the costs of family caregiving in palliative care: the Costs of Family Caregiving (COFAC) questionnaire...
February 17, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28209568/experience-based-design-co-design-and-experience-based-co-design-in-palliative-and-end-of-life-care
#4
Erica Borgstrom, Stephen Barclay
Experience-based design, co-design, and experience-based co-design can be used within healthcare to design services that improve the patient, carer and staff experience of the services. As palliative and end-of-life care centrally value person-centred care, we believe that service designers, commissioners and those tasked with making quality improvements will be interested in this growing field. This paper outlines these approaches-with a particular emphasis on experience-based co-design-and describes how they are and can be used within palliative and end-of-life care...
February 16, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28196828/systematic-review-of-the-effectiveness-barriers-and-facilitators-to-general-practitioner-engagement-with-specialist-secondary-services-in-integrated-palliative-care
#5
REVIEW
Sue-Ann Carmont, Geoffrey Mitchell, Hugh Senior, Michele Foster
: The general practitioner (GP) has a critical role in an integrated model of palliative care as they often know the patient and carer well, are experts in generalist care and have knowledge of health and social services in the community. Specialist palliative services have insufficient capacity to meet demand and those with non-cancer terminal conditions and those from rural and remote areas are underserved. Research has focused on improving access to palliative care by engaging the GP with specialist secondary services in integrated palliative care...
February 14, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28196827/articles-of-interest-in-other-scholarly-journals
#6
Elaine Boland
No abstract text is available yet for this article.
February 14, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28188134/four-japanese-death-poems-with-comment-by-john-birtwhistle
#7
(no author information available yet)
No abstract text is available yet for this article.
February 10, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28174164/improving-malodour-management-in-advanced-cancer-a-10-year-retrospective-study-of-topical-oral-and-maintenance-metronidazole
#8
Reena George, Thotampuri Shanthi Prasoona, Ramu Kandasamy, Renitha Cherian, Thangarathi Celine, Jenifer Jeba, Shakila Murali, David Mathew
OBJECTIVES: To explore the relative effectiveness of topical or oral metronidazole used for malodour in necrotic cancers and to propose a protocol for metronidazole usage in managing malodour. METHODS: A retrospective case note review of the management of malodour over 10 years comparing outcomes with topical, intermittent and maintenance oral metronidazole. RESULTS: Among 179 patients treated for malodour, the commonest primaries were cervical (45%), and head and neck cancers (40%)...
February 6, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28167657/from-concept-to-practice-is-multidimensional-care-the-leading-principle-in-hospice-care-an-exploratory-mixed-method-study
#9
Everlien de Graaf, Merel van Klinken, Danielle Zweers, Saskia Teunissen
BACKGROUND: Hospice care (HC) aims to optimise the quality of life of patients and their families by relief and prevention of multidimensional suffering. The aim of this study is to gain insight into multidimensional care (MC) provided to hospice inpatients by a multiprofessional team (MT) and identify facilitators, to ameliorate multidimensional HC. METHODS: This exploratory mixed-method study with a sequential quantitative-qualitative design was conducted from January to December 2015...
February 6, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28167656/key-issues-affecting-quality-of-life-and-patient-reported-outcomes-in-prostate-cancer-an-analysis-conducted-in-2128-patients-with-initial-psychometric-assessment-of-the-prostate-cancer-symptom-scale-pcss
#10
Pavlos Msaouel, Richard J Gralla, Randy A Jones, Patricia J Hollen
OBJECTIVE: Evidence-based quality of life (QL) questionnaires require the identification of issues of importance to patients. The primary aim of this study was to inform providers on patient-expressed issues while enhancing the content validity of instruments assessing QL and patient-reported outcomes (PROs) in prostate cancer. The study provided additional psychometric properties for the new PRO and QL instrument, the Prostate Cancer Symptom Scale (PCSS). METHODS: An anonymous web-based survey of 2128 patients with prostate cancer was conducted with patients rating 18 QL items on a five-point scale...
February 6, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28167655/improving-community-access-to-terminal-phase-medicines-through-the-implementation-of-a-core-medicines-list-in-south-australian-community-pharmacies
#11
Paul Tait, Chris Horwood, Paul Hakendorf, Timothy To
OBJECTIVES: Difficulties accessing medicines in the terminal phase hamper the ability of patients to die at home. The aim of this study was to identify changes in community access to medicines for managing symptoms in the terminal phase throughout South Australia (SA), following the development of a 'Core Medicines List' (the List) while exploring factors predictive of pharmacies carrying a broad range of useful medicines. METHODS: In 2015, SA community pharmacies were invited to participate in a repeat survey exploring the availability of specific medicines...
February 6, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28159802/ranitidine-forgotten-drug-of-delayed-gastric-emptying
#12
Abbie E Veevers, Stephen G Oxberry
Delayed gastric emptying in the presence or absence of mechanical bowel obstruction can cause distressing symptoms in palliative care patients. We present two patients, both with vomiting due to delayed gastric emptying and gastric outlet obstruction secondary to pancreatic cancer, treated with subcutaneous ranitidine resulting in a symptomatic response. We hypothesise that ranitidine is a useful adjunct to standard treatment with prokinetic agents or octreotide in such patients and potentially those with proximal mechanical bowel obstruction from other malignancies with associated delayed gastric emptying...
February 3, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28153857/development-validity-and-reliability-testing-of-the-east-midlands-evaluation-tool-emet-for-measuring-impacts-on-trainees-confidence-and-competence-following-end-of-life-care-training
#13
B Whittaker, R Parry, L Bird, S Watson, C Faull
OBJECTIVES: To develop, test and validate a versatile questionnaire, the East Midlands Evaluation Tool (EMET), for measuring effects of end of life care training events on trainees' self-reported confidence and competence. METHODS: A paper-based questionnaire was designed on the basis of the English Department of Health's core competences for end of life care, with sections for completion pretraining, immediately post-training and also for longer term follow-up...
February 2, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28153856/death-of-outrage-over-talking-about-dying
#14
Nrupen A Bhavsar, Sara Constand, Matthew Harker, Donald H Taylor
OBJECTIVES: We examined public reaction to the proposed Center for Medicare and Medicaid Services rule reimbursing physicians for advanced care planning (ACP) discussions with patients. METHODS: Public comments made on regulations.gov were reviewed for relevance to ACP policy and their perceived position on ACP (ie, positive, negative and neutral). Descriptive statistics were used to quantify the results. RESULTS: A total of 2225 comments were submitted to regulations...
February 2, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28143976/calvarial-metastasis-of-renal-cell-carcinoma
#15
Tabrez Suffee, Mohamed Derder, Julien Quilichini, Edouard Dezamis, Laurent Lantieri
The calvarium is an extremely unusual site of metastasis of renal cell carcinoma. We report a 62-year-old man who was enrolled for palliative medical management for an exophytic calvarial metastasis. His quality of life was greatly compromised with everyday local care and bandages due to recurrent events of infection and bleeding, limiting his social life. Surgical palliative surgery was carried out to improve the patient's quality of life. After tumour resection, the resultant defects of the calvarium and the scalp were covered by a muscular latissimus dorsi free flap and a fascia lata graft as dural substitute...
January 31, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28130325/concordance-of-barthel-index-ecog-ps-and-palliative-performance-scale-in-the-assessment-of-functional-status-in-patients-with-advanced-medical-diseases
#16
C Hernández-Quiles, M Bernabeu-Wittel, L M Pérez-Belmonte, P Macías-Mir, D Camacho-González, B Massa, M Maiz-Jiménez, M Ollero-Baturone
OBJECTIVE: Analysing most relevant clinical features and concordance between different functional scales in patients with advanced medical diseases (PAMD). METHODS: Cross-sectional multicentre study that included PAMD (heart, lung, kidney, liver, and neurological diseases) in hospital settings from February 2009 to October 2010. We analysed clinical, biological and functional features in performing activities of daily living (ADL) by medians of Barthel Index (BI); additionally we assessed their performance status by medians of Eastern Cooperative Oncology Group-Performance Status (ECOG-PS) and Palliative Performance Scale (PPS) scores...
January 27, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28130324/internet-search-query-analysis-can-be-used-to-demonstrate-the-rapidly-increasing-public-awareness-of-palliative-care-in-the-usa
#17
Sarah McLean, Paul Lennon, Paul Glare
BACKGROUND: A lack of public awareness of palliative care (PC) has been identified as one of the main barriers to appropriate PC access. Internet search query analysis is a novel methodology, which has been effectively used in surveillance of infectious diseases, and can be used to monitor public awareness of health-related topics. OBJECTIVES: We aimed to demonstrate the utility of internet search query analysis to evaluate changes in public awareness of PC in the USA between 2005 and 2015...
January 27, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28096171/how-well-do-we-currently-care-for-our-dying-patients-in-acute-hospitals-the-views-of-the-bereaved-relatives
#18
Catriona Rachel Mayland, Helen Mulholland, Maureen Gambles, John Ellershaw, Kevin Stewart
BACKGROUND: The National Care of the Dying Audit-Hospitals (NCDAH) is used as a method to evaluate care for dying patients in England. An additional component to the 2013/2014 audit was the Local Survey of Bereaved Relatives Views using the 'Care Of the Dying Evaluation' (CODE) questionnaire. AIM: Within the context of the NCDAH audit, to evaluate quality of care provided to dying patients and their families in acute hospitals from the perspective of bereaved relatives...
January 17, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28093387/dying-at-home-of-cancer-whose-needs-are-being-met-the-experience-of-family-carers-and-healthcare-professionals-a-multiperspective-qualitative-study
#19
Jackie Pottle, Julia Hiscock, Richard D Neal, Marlise Poolman
OBJECTIVES: Supporting patients to die in the place of their choosing is an important aspect of end of life care. Our study set out to answer the question: 'How does the home environment influence perceptions of quality of death, and the experience of caring for the dying at home, for family carers and healthcare professionals (HCPs)? METHODS: A qualitative approach, using multiperspective interviews with bereaved family carers (n=15) and a nominated HCP (n=13) ensured depth of insight gained into supporting a home death...
January 16, 2017: BMJ Supportive & Palliative Care
https://www.readbyqxmd.com/read/28077362/time-to-revisit-megace-for-hot-flushes-in-patients-with-breast-cancer
#20
LETTER
Mei-Lin Ah-See
No abstract text is available yet for this article.
January 10, 2017: BMJ Supportive & Palliative Care
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