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Annals of Palliative Medicine

Jeffrey Sheung Ching Ng
Parkinson's disease (PD) is a slowly progressive multi-system neurodegenerative disorder, with no available disease-modifying treatment. The disease is associated with motor and non-motor symptoms leading to impaired quality of life, disability and signi cant caregiver distress. Patients with PD bene t from palliative care which provides a holistic approach to meet their multi-faceted needs, including symptom control, communication needs and caregiver support. This article would review on recent articles addressing palliative care for PD...
January 4, 2018: Annals of Palliative Medicine
Shelly Cory
Bereavement represents a significant public health concern as grievers often suffer from co-morbid health problems, increased use of health care resources, periodic hospitalizations, and even mortality in the first 2 years after the death. Furthermore, grievers frequently encounter major obstacles when seeking formal support, including lack of access to specialized grief support due to temporal, financial or geographic constraints. To address these gaps in service, the Canadian Virtual Hospice, in collaboration with pan-Canadian partners developed MyGrief...
January 2018: Annals of Palliative Medicine
Hodan Nalayeh
Healthcare services are often out of sync with cultural, spiritual and religious perspectives on health, death, and grieving. This dissonance affects attitudes and behaviours in seeking and utilizing end-of-life health services and can lead to poor clinical communication, misunderstanding, and anxiety as patients, families and health providers interact during a serious illness. To address a gap in cultural-specific information Canadian Virtual Hospice launched evidence-informed collection of videos of immigrants, refugees, and Indigenous people sharing their stories about the intersection of culture, spirituality, and religion with their experiences of advanced illness, palliative care, and grief...
January 2018: Annals of Palliative Medicine
Hilary Mettam
Northwestern Ontario, Canada, is a large, sparsely populated geographic area with many small rural and remote communities. Most health services are delivered by primary care generalists. The goal of the North West LHIN Regional Palliative Care Program (RPCP) with St. Joseph's Care Group is to create an integrated system of palliative care accessible to all individuals in Northwestern Ontario who would benefit from a palliative approach, regardless of location, prognosis, or diagnosis. To achieve this goal and increase access to palliative care at the primary care level, the RPCP has used the Kelley Community Capacity Development Model to guide their process of developing palliative care programs in 8 different rural communities...
January 2018: Annals of Palliative Medicine
Mary Lou Kelley
This oral presentation will describe the conceptual evolution of the Kelley model for Community Capacity Development [2000-2016]. It will illustrate how and why the model changed to become a powerful Canadian example of a public health approach to developing community based palliative care programs. Based on conducting participatory action research in rural, First Nations communities and long-term care homes, the perspective of "community" gradually expanded beyond health care professionals to include natural helpers, front line care providers, formal and informal community leaders, and social services...
January 2018: Annals of Palliative Medicine
Mary Hocking
This workshop details a Partnership involving a High school, a Hospital (Calvary Health Care Bethlehem), La Trobe University and Palliative Care Victoria which seeks to support Community Capacity and resilience in dealing with Life-Limiting illness, death, dying and Loss. This alliance has produced an educational resource which may be used, not only as a tool to normalize death, but also as a means of exploring 'keys to well-being' at any stage of life, through any loss or challenge. This workshop features a template which has been trialled, adapted and evaluated in High School, workshop and Hospital induction settings within Australia...
January 2018: Annals of Palliative Medicine
Nezamuddin Ahmad
The Centre for Palliative Care, based at the only medical university [Bangabandhu Sheikh Mujib Medical University (BSMMU)] in Dhaka, Bangladesh, in collaboration with Worldwide Hospice Palliative Care Alliance, piloted a one-year project focussed on improving the quality of life of 100 older people and their families in two slum settings in Dhaka. This project was developed following the identification of significant palliative care needs of older people in the slum settings. In addition, the project was formed in response to the absence of programmes delivering palliative care to the poorest and most marginalised in poor urban settings, in a sustainable manner within the context of the low development of palliative care and the human and financial resource limitations in Bangladesh...
January 2018: Annals of Palliative Medicine
John Rosenberg
Partnerships are central to the success of linkages between palliative care services and the communities they support. The goal of partnership is to achieve more than individuals and groups can achieve on their own, yet the concept is often poorly understood. A clearly articulated understanding of partnership is a powerful step in transforming an organization's engagement with the community. The aim of this workshop is to enable participants to gain a clear understanding of partnership, understand the recognized evidence-based principles of establishing and maintaining partnerships, and identify practical approaches to partnering to take back to their organizations and communities...
January 2018: Annals of Palliative Medicine
Emily Dobson
The gold standards of care created within the hospice setting are not always effectively influencing national, regional or local policy. This struggle is something which the public health sector has successfully contended with. In particular an approach known as Health in All Policies (HiAP) has been developed to lay down the rules of engagement and guide the exchange between organisations from all sectors. This synergy allows for an exploration of the possibilities of utilising HiAP within end of life care...
January 2018: Annals of Palliative Medicine
Santiago Corrêa
Brazil has 206 million people, and 1.2 million deaths and 600,000 new cases of cancer per year. Palliative Care services are patchily distributed. The Family Health Strategy, made up from 41,000 primary care teams across Brazil forms a comprehensive primary care network. The Project EstaraoSeuLado-Primary Palliative Care developed working from Community Centers. We created a model based on compassionate communities, with community carers working alongside primary care teams. We identified people who need palliative care, gave them specific care and enrolled their carers into a program of monthly meetings called "Comunidade Cuidador"...
January 2018: Annals of Palliative Medicine
Jessie Williams
What does it take to light a fire to create cultural change about the way we do death, dying and bereavement in Australia? The GroundSwell Project set out to embark on a bold journey to create cultural change in the death and dying space in Australia. For 7 years we have delivered over 55 arts/health projects and have punched well above our weight. What have we learned about change and innovation? We've learned that we had to set up a fiercely independent organisation, drawing on short term funding so that we were never locked into delivering results that perpetuated 'systemic malaise'...
January 2018: Annals of Palliative Medicine
Kerrie Noonan
This presentation provides an overview of the development of the death literacy concept and of our recent research work to develop a death literacy benchmarking tool. The concept of 'death literacy' has four components; skills, knowledge, experiential learning and social action and all provide a framework for behavioural and systemic change. This tool will provide a national benchmark of death literacy in the general population, providing a way to measure the social impact of existing and new public health initiatives...
January 2018: Annals of Palliative Medicine
Kyle Whitfield
In response to the desire of community organizations in Alberta for information and guidance as they seek to improve palliative and end of life care in their communities, a large number of organizations collaborated to develop a resource guide. In order to achieve this goal, it was first necessary to identify the common information needs of Alberta communities as they pursue their vision for improving local Palliative and End-of-Life Care. A committee comprised of representatives from Alberta Health Services, Alberta Health, Alberta Hospice Palliative Care Association, Hospice Societies, University researchers, Indigenous Health and Palliative Care physicians surveyed numerous community groups and stakeholders about their information needs...
January 2018: Annals of Palliative Medicine
Holly Prince
Living in a compassionate community is not a new practice in First Nations communities; they have always recognized dying as a social experience. First Nations hold extensive traditional knowledge and have community-based practices to support the personal, familial, and community experiences surrounding end-of-life. However, western health systems were imposed and typically did not support these social and cultural practices at end of life. In fact, the different expectations of western medicine and the community related to end of life care has created stress and misunderstanding for both...
January 2018: Annals of Palliative Medicine
Silvia Librada Flores
Todos Contigo (We are All With You) is a programme for social awareness, training, and implementation of care networks for citizens to support, accompany and care for those who face advanced chronic disease and end of life situations. From New Health Foundation this programme collaborates with the Public Health and Palliative Care International Charter of Compassionate Communities. It seeks to promote a new integrated palliative care model in the daily lives of individuals, to make families and health/social professionals the main promoters of compassionate communities and compassionate cities movement...
January 2018: Annals of Palliative Medicine
Carol Tishelman
Public health and health promotion approaches to end-of-life (EoL) research and care are still rare in Sweden. People remain generally ill-prepared for encounters with death and unable to advocate for quality EoL care; this may be reflected in Sweden's low scores for community engagement in the 2015 Quality of Death index. We have consolidated our endeavours into a cohesive national transdisciplinary research program, DöBra (a pun meaning both 'dying well' and 'awesome' in Swedish). In DöBra, we investigate how culture, the environment and conversation can promote constructive change and support better quality of life and death among the general population, in specific subgroups and in interventions directed to staff caring for dying individuals, their friends and families...
January 2018: Annals of Palliative Medicine
Martin LaBrie
People living in rural and smaller urban areas near Calgary experience difficulty accessing palliative care services which are concentrated in metropolitan areas. The Cumming School of Medicine, Alberta Health Services and community hospice palliative care societies in two rural communities have been working to develop a partnership that incorporates local health system resources and community initiatives in supporting individuals and families living with progressive, life-limiting illnesses. This presentation will provide an understanding of how academic institutions and health services can collaborate with community members to enhance capacity for end of life care, and enrich communities in the process...
January 2018: Annals of Palliative Medicine
Kyle Whitfield
Our study explored the value of a community engaged model for good hospice care in three rural communities in Alberta, Canada. When communities are highly engaged in planning and implementing hospice care in their communities, our study discovered that they have key characteristics: that volunteerism needs to be balanced to prevent burnout; that the local knowledge of community members is used in a number of ways to plan and provide good hospice care; that a variety of resources, infrastructure, policies and expertise are used by the community to nurture community-focused palliative care initiatives...
January 2018: Annals of Palliative Medicine
Mathieu Landry, Moriah Stendel, Michel Landry, Amir Raz
Palliative care spans a wide-ranging spectrum: from pain-management to spiritual support. As the demand for end-of-life care increases, so does the demand for innovative, effective, interventions. Mind-body techniques seem especially advantageous in a palliative context. Here we show that hypnosis serves an excellent adjunct therapy in palliative care to boost the efficacy of standard treatments. With the overarching goal of bridging clinical and scientific insights, we outline how five core principles of hypnosis can benefit the diverse needs of palliative care...
January 2018: Annals of Palliative Medicine
Charles B Simone
No abstract text is available yet for this article.
January 2018: Annals of Palliative Medicine
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