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Patient related Outcome Measures

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https://www.readbyqxmd.com/read/29343994/calibration-and-validation-of-an-item-bank-for-measuring-general-physical-function-of-patients-in-medical-rehabilitation-settings
#1
Karon F Cook, Michael A Kallen, Deanna Hayes, Daniel Deutscher, Julie M Fritz, Mark W Werneke, Jerome E Mioduski
Objective: The objective of this study was to report the item response theory (IRT) calibration of an 18-item bank to measure general physical function (GPF) in a wide range of conditions and evaluate the validity of the derived scores. Methods: All 18 items were administered to a large sample of patients (n=2337) who responded to the items in the context of their outpatient rehabilitation care. The responses, collected 1997- 2000, were modeled using the graded response model, an IRT model appropriate for items with two or more response options...
2018: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29317850/long-term-safety-and-real-world-effectiveness-of-fingolimod-in-relapsing-multiple-sclerosis
#2
REVIEW
Charlotte Druart, Souraya El Sankari, Vincent van Pesch
With a growing number of disease-modifying therapies becoming available for relapsing multiple sclerosis, there is an important need to gather real-world evidence data regarding long-term treatment effectiveness and safety in unselected patient populations. Although not providing as high a level of evidence as randomized controlled trials, and prone to bias, real-world studies from observational studies or registries nevertheless provide crucial information on real-world outcomes of a given therapy. In addition, evaluation of treatment satisfaction and impact on quality of life are increasingly regarded as complementary outcome measures...
2018: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29263708/a-questionnaire-based-audit-to-assess-overall-experience-and-convenience-among-patients-using-vaginal-progesterone-tablets-lutigest%C3%A2-for-luteal-phase-support-during-ivf-treatment
#3
Polly Heine, Laura Sellar, Sue Whitten, Priti Bajaj
Purpose: The aim of this audit was to assess the overall experience and patient convenience of vaginal progesterone tablets (Lutigest®, marketed as Endometrin® in the USA) used for luteal phase support (LPS) during in vitro fertilization (IVF) treatment. Patients and methods: This questionnaire-based audit included responses from 100 patients undergoing IVF treatment at six IVF clinics in the UK from September 2015 to November 2016. Fourteen days after starting progesterone supplementation for LPS during their IVF treatment, patients rated overall experience and perceived convenience of the prescribed progesterone by completing a questionnaire...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29263707/psychometric-validation-of-the-sf-36-health-survey-in-light-chain-amyloidosis-results-from-community-based-and-clinic-based-samples
#4
Michelle K White, Kristen L McCausland, Vaishali Sanchorawala, Spencer D Guthrie, Martha S Bayliss
Background: Light chain (AL) amyloidosis, a rare and life-threatening protein misfolding disorder, causes organ damage and severely impacts health-related quality of life (HRQoL). No patient-reported outcome (PRO) HRQoL measure has been validated for use in an AL amyloidosis patient population, leaving a gap for researchers conducting observational studies and clinical trials for drug development. The SF-36 Health Survey (SF-36) has been the most frequently used PRO in AL amyloidosis studies to date, and early qualitative validation studies support its use in this population...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29184456/validating-the-patient-experience-with-treatment-and-self-management-pets-a-patient-reported-measure-of-treatment-burden-in-people-with-diabetes
#5
Elizabeth A Rogers, Kathleen J Yost, Jordan K Rosedahl, Mark Linzer, Deborah H Boehm, Azra Thakur, Sara Poplau, Roger T Anderson, David T Eton
Aims: To validate a comprehensive general measure of treatment burden, the Patient Experience with Treatment and Self-Management (PETS), in people with diabetes. Methods: We conducted a secondary analysis of a cross-sectional survey study with 120 people diagnosed with type 1 or type 2 diabetes and at least one additional chronic illness. Surveys included established patient-reported outcome measures and a 48-item version of the PETS, a new measure comprised of multi-item scales assessing the burden of chronic illness treatment and self-care as it relates to nine domains: medical information, medications, medical appointments, monitoring health, interpersonal challenges, health care expenses, difficulty with health care services, role activity limitations, and physical/mental exhaustion from self-management...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29184455/using-proms-to-guide-patients-and-practitioners-through-the-head-and-neck-cancer-journey
#6
REVIEW
Simon N Rogers, Brittany Barber
The measurement of patient-reported outcome measures (PROMs) following head and neck cancer (HNC) has the capacity to substantially enhance the care of patients and their care-givers following the diagnosis and treatment of HNC. Literature concerning PROMs has increased exponentially in the past 2 decades, producing a vast array of data upon which the multidisciplinary team can reflect. For this review, "Handle On QOL" has been used as a source of references to illustrate the points raised. PROMs are contextualized by considering the clinically-distinct key stages that cancer patients endure: diagnosis, treatment, acute toxicity, early recovery, late effects, recurrence, and palliation...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29138609/non-valvular-atrial-fibrillation-impact-of-apixaban-on-patient-outcomes
#7
REVIEW
Adam Ioannou, Irene Tsappa, Sofia Metaxa, Constantinos G Missouris
Atrial fibrillation is the most common arrhythmia worldwide, and carries a significantly increased risk of thromboembolic stroke. Initially, vitamin K antagonists were used as stroke prophylaxis; but more recently, a group of drugs known as novel oral anticoagulants have been developed. Apixaban belongs to this group of drugs, and is a factor Xa inhibitor that has emerged as a popular pharmacological agent worldwide. In this review, we will provide an overview of the pivotal trials in the development of apixaban, while also critically evaluating the new emerging real-world data, and discussing the effectiveness, safety, economic viability and future prospects of apixaban and how it impacts on patient outcomes in those with non-valvular atrial fibrillation...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/29089790/a-pilot-study-of-subjective-well-being-in-colorectal-cancer-patients-and-their-caregivers
#8
Janet Graham, Pavlina Spiliopoulou, Rob Arbuckle, Julie Ann Bridge, James Cassidy
BACKGROUND: Traditional endpoints in oncology are based on measuring the tumor size and combining this with a time factor. Current studies with immunotherapy show that even when median survival is unaltered, a significant proportion of patients can achieve prolonged survival. Objective tumor response does not always mean "overall" improvement, especially if toxicity is harsh. Novel agents are significantly expensive, and it is therefore crucial to measure the impact on "quality" of life, in addition to "quantity"...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28979171/the-health-and-life-path-of-rare-disease-patients-results-of-the-2015-french-barometer
#9
Thomas Heuyer, Sonia Pavan, Christine Vicard
PURPOSE: A barometer has been set up to provide better knowledge about the daily situation of French rare disease (RD) patients, their families and relatives, in order to contribute to the elaboration of improvement measures. This report focuses on the care and life path of RD patients. PATIENTS AND METHODS: A preliminary survey was carried out with three patients, five parents and three RD experts to identify the main hurdles and disruptions in the life path of RD patients...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28790875/diarrhea-predominant-irritable-bowel-syndrome-creation-of-an-electronic-version-of-a-patient-reported-outcome-instrument-by-conversion-from-a-pen-and-paper-version-and-evaluation-of-their-equivalence
#10
Leticia Delgado-Herrera, Benjamin Banderas, Oluwafunke Ojo, Ritesh Kothari, Bernhardt Zeiher
BACKGROUND: Subjects with diarrhea-predominant irritable bowel syndrome (IBS-D) experience abdominal cramping, bloating, pressure, and pain. Due to an absence of clinical biomarkers for IBS-D severity, evaluation of clinical therapy benefits depends on valid and reliable symptom assessments. A patient-reported outcome (PRO) instrument has been developed, comprising of two questionnaires - the IBS-D Daily Symptom Diary and IBS-D Symptom Event Log - suitable for clinical trials and real-world settings...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28652836/initial-development-of-a-patient-reported-outcome-measure-of-experience-with-cognitive-impairment-associated-with-schizophrenia
#11
Lisa C Welch, Jeremiah J Trudeau, Steven M Silverstein, Michael Sand, David C Henderson, Raymond C Rosen
Cognitive impairment is a serious, often distressing aspect of schizophrenia that affects patients' day-to-day lives. Although several interview-based instruments exist to assess cognitive functioning, a reliable measure developed based on the experiences of patients facing cognitive difficulties is needed to complement the objective performance-based assessments. The present article describes the initial development of a patient-reported outcome (PRO) measure to assess the subjective experience of cognitive impairment among patients with schizophrenia, the Patient-Reported Experience of Cognitive Impairment in Schizophrenia (PRECIS)...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28490913/health-related-quality-of-life-among-cognitively-intact-nursing-home-residents-with-and-without-cancer-a-6-year-longitudinal-study
#12
Jorunn Drageset, Geir Egil Eide, Anne Corbett
BACKGROUND: Limited information exists regarding the natural development of health-related quality of life (HRQOL) and its determinants among mentally intact nursing home (NH) residents. We aimed to examine HRQOL over time during a 6-year period among residents of NHs, who are not cognitively impaired, and to examine whether sense of coherence and a diagnosis of cancer influence HRQOL. METHODS: The study was prospective and included baseline assessment and 6-year follow-up...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28450793/two-year-follow-up-study-of-a-group-based-diabetes-medical-nutrition-therapy-and-motivational-interviewing-intervention-among-african-american-women
#13
Stephania T Miller, Sylvie A Akohoue
OBJECTIVES: To assess the 2-year efficacy of a combined medical nutrition therapy and motivational interviewing (MI) pilot study intervention and factors that influenced long-term dietary self-care. RESEARCH DESIGN AND METHODS: Pilot study participants, African American women with type 2 diabetes, completed a 2-year follow-up study visit, including clinical assessments and completion of a dietary self-care questionnaire and a semi-structured interview. Wilcoxon signed-rank tests were used to evaluate differences between baseline and 2-year follow-up clinical and dietary self-care outcomes...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28435343/london-measure-of-unplanned-pregnancy-guidance-for-its-use-as-an-outcome-measure
#14
Jennifer A Hall, Geraldine Barrett, Andrew Copas, Judith Stephenson
BACKGROUND: The London Measure of Unplanned Pregnancy (LMUP) is a psychometrically validated measure of the degree of intention of a current or recent pregnancy. The LMUP is increasingly being used worldwide, and can be used to evaluate family planning or preconception care programs. However, beyond recommending the use of the full LMUP scale, there is no published guidance on how to use the LMUP as an outcome measure. Ordinal logistic regression has been recommended informally, but studies published to date have all used binary logistic regression and dichotomized the scale at different cut points...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28352208/patient-rated-versus-proxy-rated-cognitive-and-functional-measures-in-older-adults
#15
Molly Howland, Kevin C Allan, Caitlin E Carlton, Curtis Tatsuoka, Kathleen A Smyth, Martha Sajatovic
OBJECTIVES: Patients with cognitive impairment may have difficulty reporting their functional and cognitive abilities, which are important clinical outcomes. Health care proxies may be able to corroborate patient self-reports. Several studies reported discrepancy between patient and proxy ratings, though the literature is sparse on changes over time of these ratings. Our goals in this 12-month study were to compare patient and proxy reports on functioning, cognition, and everyday executive function, and to further elucidate correlates of patient-proxy discrepancy...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28260959/social-outcomes-in-children-with-autism-spectrum-disorder-a-review-of-music-therapy-outcomes
#16
REVIEW
A Blythe LaGasse
Autism spectrum disorder (ASD) affects approximately one in 68 children, substantially affecting the child's ability to acquire social skills. The application of effective interventions to facilitate and develop social skills is essential due to the lifelong impact that social skills may have on independence and functioning. Research indicates that music therapy can improve social outcomes in children with ASD. Outcome measures are primarily assessed using standardized nonmusical scales of social functioning from the parent or clinician perspective...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28243158/an-assessment-of-meaning-in-life-threatening-illness-development-of-the-healing-experience-in-all-life-stressors-heals
#17
Danetta Hendricks Sloan, Karlynn BrintzenhofeSzoc, Tiffany Kichline, Karen Baker, Jean-Paul Pinzon, Christina Tafe, Lingsheng Li, M Jennifer Cheng, Ann Berger
CONTEXT: Patients with life-threatening or chronic illness report an experience of increased positive psychological, social, and/or spiritual change during diagnosis and/or treatment of their illness, even in the face of unfavorable prognosis. This transformation begins through the ability to make their life meaningful by forming meaningful connections that emerge through self-introspection and relationships with a divine entity, nature, and other people. The Healing Experience in All Life Stressors (HEALS) assessment provides a way to identify distress-causing changes that may interfere with the development of meaning and psycho-social-spiritual homeostasis...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28203114/longitudinal-analysis-of-quality-of-life-in-patients-with-undifferentiated-connective-tissue-diseases
#18
Michele Iudici, Rosaria Irace, Antonella Riccardi, Giovanna Cuomo, Serena Vettori, Gabriele Valentini
INTRODUCTION/OBJECTIVES: To prospectively assess the quality of life (QoL) of patients affected by undifferentiated connective tissue diseases (UCTDs) and to identify factors associated with changes over time. PATIENTS AND METHODS: A total of 46 consecutive UCTD patients completed the Short-Form 36 (SF-36) questionnaire at presentation and then yearly. At each 6-month visit, all patients underwent a detailed history taking and a laboratory and physical assessment, in order to follow the evolution of the disease over time and to assess the the co-existence of fibromyalgia...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28123314/assuring-quality-health-care-outcomes-lessons-learned-from-car-dealers
#19
Joel E Dimsdale
Health care systems want quality but struggle to find the right tools because, typically, they track quality in only one or two ways. Because of the complexity of health care, high quality will emerge only when health care systems employ multiple approaches, including, importantly, patient-reported outcome perspectives. Sustained changes are unlikely to emerge in the absence of such multipronged interventions.
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27920590/a-comparison-of-the-oxford-shoulder-score-and-shoulder-pain-and-disability-index-factor-structure-in-the-context-of-a-large-randomized-controlled-trial
#20
Jill Dawson, Kristina K Harris, Helen Doll, Ray Fitzpatrick, Andrew Carr
BACKGROUND: To explore and compare the factor structure of the 12-item Oxford shoulder score (OSS) and 13-item shoulder pain and disability index (SPADI). METHODS: Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) of data from 660 patients attending 46 hospitals in the UK. Complete OSS and SPADI data were available for 648 (98.2%) and 628 (95.2%) participants, respectively. RESULTS: For both instruments, either one or two factors were indicated, depending on the extraction method...
2016: Patient related Outcome Measures
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