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Patient related Outcome Measures

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https://www.readbyqxmd.com/read/28260959/social-outcomes-in-children-with-autism-spectrum-disorder-a-review-of-music-therapy-outcomes
#1
REVIEW
A Blythe LaGasse
Autism spectrum disorder (ASD) affects approximately one in 68 children, substantially affecting the child's ability to acquire social skills. The application of effective interventions to facilitate and develop social skills is essential due to the lifelong impact that social skills may have on independence and functioning. Research indicates that music therapy can improve social outcomes in children with ASD. Outcome measures are primarily assessed using standardized nonmusical scales of social functioning from the parent or clinician perspective...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28243158/an-assessment-of-meaning-in-life-threatening-illness-development-of-the-healing-experience-in-all-life-stressors-heals
#2
Danetta Hendricks Sloan, Karlynn BrintzenhofeSzoc, Tiffany Kichline, Karen Baker, Jean-Paul Pinzon, Christina Tafe, Lingsheng Li, M Jennifer Cheng, Ann Berger
CONTEXT: Patients with life-threatening or chronic illness report an experience of increased positive psychological, social, and/or spiritual change during diagnosis and/or treatment of their illness, even in the face of unfavorable prognosis. This transformation begins through the ability to make their life meaningful by forming meaningful connections that emerge through self-introspection and relationships with a divine entity, nature, and other people. The Healing Experience in All Life Stressors (HEALS) assessment provides a way to identify distress-causing changes that may interfere with the development of meaning and psycho-social-spiritual homeostasis...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28203114/longitudinal-analysis-of-quality-of-life-in-patients-with-undifferentiated-connective-tissue-diseases
#3
Michele Iudici, Rosaria Irace, Antonella Riccardi, Giovanna Cuomo, Serena Vettori, Gabriele Valentini
INTRODUCTION/OBJECTIVES: To prospectively assess the quality of life (QoL) of patients affected by undifferentiated connective tissue diseases (UCTDs) and to identify factors associated with changes over time. PATIENTS AND METHODS: A total of 46 consecutive UCTD patients completed the Short-Form 36 (SF-36) questionnaire at presentation and then yearly. At each 6-month visit, all patients underwent a detailed history taking and a laboratory and physical assessment, in order to follow the evolution of the disease over time and to assess the the co-existence of fibromyalgia...
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/28123314/assuring-quality-health-care-outcomes-lessons-learned-from-car-dealers
#4
Joel E Dimsdale
Health care systems want quality but struggle to find the right tools because, typically, they track quality in only one or two ways. Because of the complexity of health care, high quality will emerge only when health care systems employ multiple approaches, including, importantly, patient-reported outcome perspectives. Sustained changes are unlikely to emerge in the absence of such multipronged interventions.
2017: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27920590/a-comparison-of-the-oxford-shoulder-score-and-shoulder-pain-and-disability-index-factor-structure-in-the-context-of-a-large-randomized-controlled-trial
#5
Jill Dawson, Kristina K Harris, Helen Doll, Ray Fitzpatrick, Andrew Carr
BACKGROUND: To explore and compare the factor structure of the 12-item Oxford shoulder score (OSS) and 13-item shoulder pain and disability index (SPADI). METHODS: Exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) of data from 660 patients attending 46 hospitals in the UK. Complete OSS and SPADI data were available for 648 (98.2%) and 628 (95.2%) participants, respectively. RESULTS: For both instruments, either one or two factors were indicated, depending on the extraction method...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27895523/refinement-of-the-long-term-conditions-questionnaire-ltcq-patient-and-expert-stakeholder-opinion
#6
Laura Kelly, Caroline M Potter, Cheryl Hunter, Elizabeth Gibbons, Ray Fitzpatrick, Crispin Jenkinson, Michele Peters
PURPOSE: It is a key UK government priority to assess and improve outcomes in people with long-term conditions (LTCs). We are developing a new patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), for use among people with single or multiple LTCs. This study aimed to refine candidate LTCQ items that had previously been informed through literature reviews, interviews with professional stakeholders, and interviews with people with LTCs. MATERIALS AND METHODS: Cognitive interviews (n=32) with people living with LTCs and consultations with professional stakeholders (n=13) and public representatives (n=5) were conducted to assess the suitability of 23 candidate items...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27881929/rasch-analysis-of-the-western-ontario-osteoarthritis-of-the-shoulder-index-the-danish-version
#7
Sahar Moeini, Jeppe V Rasmussen, Tobias W Klausen, Stig Brorson
PURPOSE: The Western Ontario Osteoarthritis of the Shoulder (WOOS) index is a disease-specific, patient-reported, 19-question survey that measures the quality of life among patients with osteoarthritis (OA). The purpose of this study was to validate the Danish version of WOOS for OA and fractures (FRs) using modern test theory. PATIENTS AND METHODS: The study included 1,987 arthroplasties in 1,943 patients that were reported to the Danish Shoulder Arthroplasty Register between 2006 and 2011...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27785116/measuring-medicine-related-experiences-from-the-patient-perspective-a-systematic-review
#8
REVIEW
Barbra Katusiime, Sarah Corlett, Joanne Reeve, Janet Krska
BACKGROUND: There is an increasing drive to measure and so improve patients' experiences and outcomes of health care. This also applies to medicines, given their ubiquity as health care interventions. Patients' experiences of using medicines vary, and instruments which measure these are seen as an essential component to improve care. We aimed to identify generic measures of patients' experiences of using prescription medicines and to examine their properties and suitability for use in research or practice...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27713651/quality-of-life-and-use-of-health-care-resources-among-patients-with-chronic-depression
#9
Renata Villoro, María Merino, Alvaro Hidalgo-Vega
PURPOSE: This study estimates the health-related quality of life and the health care resource utilization of patients diagnosed with chronic depression (CD) in Spain. PATIENTS AND METHODS: We used the Spanish National Health Survey 2011-2012, a cross-sectional survey representative at the national level, that selects people aged between 18 and 64 years (n=14,691). We estimated utility indices through the EuroQol five-dimensional descriptive system questionnaire included in the survey...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27695376/distress-prior-to-undergoing-hematopoietic-stem-cell-transplantation-demographic-and-symptom-correlations-and-establishing-a-baseline
#10
Sean Robinson Smith, Mary Elizabeth Hobson, Andrew J Haig
BACKGROUND: Distress can arise from physical and/or psychosocial impairments and has been documented in patients after hematopoietic stem cell transplantation in the outpatient setting. It has not been evaluated in inpatients admitted to undergo the transplant, nor has potential correlations with length of hospital stay, physical function, and pain after receiving the transplant. OBJECTIVES: To measure distress in patients admitted to the hospital to undergo hematopoietic stem cell transplantation, and to evaluate potential correlations with length of hospital stay, physical function, pain, and depression/anxiety...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27672346/patient-reported-symptom-distress-and-most-bothersome-issues-before-and-during-cancer-treatment
#11
Fangxin Hong, Traci M Blonquist, Barbara Halpenny, Donna L Berry
INTRODUCTION: Frequently reported symptoms and treatment side effects may not be the most bothersome issues to patients with cancer. The purpose of this study was to investigate patient-reported symptom distress and bothersome issues among participants with cancer. METHODS: Participants completed the Symptom Distress Scale-15 before treatment (T1) and during cancer treatment (T2) and reported up to two most bothersome issues among symptoms rated with moderate-to-severe distress...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27621678/the-long-term-conditions-questionnaire-conceptual-framework-and-item-development
#12
Michele Peters, Caroline M Potter, Laura Kelly, Cheryl Hunter, Elizabeth Gibbons, Crispin Jenkinson, Angela Coulter, Julien Forder, Ann-Marie Towers, Christine A'Court, Ray Fitzpatrick
PURPOSE: To identify the main issues of importance when living with long-term conditions to refine a conceptual framework for informing the item development of a patient-reported outcome measure for long-term conditions. MATERIALS AND METHODS: Semi-structured qualitative interviews (n=48) were conducted with people living with at least one long-term condition. Participants were recruited through primary care. The interviews were transcribed verbatim and analyzed by thematic analysis...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27524925/systematic-review-of-measurement-properties-of-patient-reported-outcome-measures-used-in-patients-undergoing-hip-and-knee-arthroplasty
#13
REVIEW
Kristina Harris, Jill Dawson, Elizabeth Gibbons, Chris R Lim, David J Beard, Raymond Fitzpatrick, Andrew J Price
OBJECTIVES: To identify patient-reported outcome measures (PROMs) that have been developed and/or used with patients undergoing hip or knee replacement surgery and to provide a shortlist of the most promising generic and condition-specific instruments. METHODS: A systematic review of the literature was performed to identify measures used in patients undergoing hip and knee replacement and extract and evaluate information on their methodological quality. RESULTS: Thirty-two shortlisted measures were reviewed for the quality of their measurement properties...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27462183/characterizing-neuropathic-pain-profiles-enriching-interpretation-of-paindetect
#14
Joseph C Cappelleri, Vijaya Koduru, E Jay Bienen, Alesia Sadosky
PURPOSE: To psychometrically evaluate painDETECT, a patient-reported screening questionnaire for neuropathic pain (NeP), for discriminating among sensory pain symptoms (burning, tingling/prickling, light touching, sudden pain attacks/electric shock-type pain, cold/heat, numbness, and slight pressure). METHODS: The seven-item version of painDETECT provides an overall score that targets only sensory symptoms, while the nine-item version adds responses on two items to the overall score, covering pain course pattern and pain radiation...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27382346/cultural-adaptation-translatability-assessment-and-linguistic-validation-of-the-patient-reported-outcome-instrument-for-irritable-bowel-syndrome-with-diarrhea
#15
Leticia Delgado-Herrera, Kathryn Lasch, Ana Popielnicki, Akito Nishida, Rob Arbuckle, Benjamin Banderas, Susan Zentner, Ingrid Gagainis, Bernhardt Zeiher
BACKGROUND AND OBJECTIVE: Following a 2009 US Food and Drug Administration guidance, a new patient-reported outcome (PRO) instrument was developed to support end points in multinational clinical trials assessing irritable bowel syndrome with diarrhea (IBS-D) symptom severity. Our objective was to assess the translatability of the IBS-D PRO instrument into ten languages, and subsequently perform a cultural adaptation/linguistic validation of the questionnaire into Japanese and US Spanish...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27366108/validation-of-the-oxford-participation-and-activities-questionnaire
#16
David Morley, Sarah Dummett, Laura Kelly, Jill Dawson, Ray Fitzpatrick, Crispin Jenkinson
PURPOSE: There is growing interest in the management of long-term conditions and in keeping people active and participating in the community. Testing the effectiveness of interventions that aim to affect activities and participation can be challenging without a well-developed, valid, and reliable instrument. This study therefore aims to develop a patient-reported outcome measure, the Oxford Participation and Activities Questionnaire (Ox-PAQ), which is theoretically grounded in the World Health Organization's International Classification of Functioning, Disability, and Health (ICF) and fully compliant with current best practice guidelines...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27350762/the-role-of-memories-on-health-related-quality-of-life-after-intensive-care-unit-care-an-unforgettable-controversy
#17
Lotti Orwelius, Armando Teixeira-Pinto, Cristina Lobo, Altamiro Costa-Pereira, Cristina Granja
BACKGROUND: Decreased health-related quality of life (HRQoL) is a significant problem after an intensive care stay and is affected by several known factors such as age, sex, and previous health-state. The objective of this study was to assess the association between memory and self-reported perceived HRQoL of patients discharged from the intensive care unit (ICU). METHODS: A prospective, multicenter study involving nine general ICUs in Portugal. All adult patients with a length of stay >48 hours were invited to participate in a 6-month follow-up after ICU discharge by answering a set of structured questionnaires, including EuroQol 5-Dimensions and ICU memory tool...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27350761/the-universal-patient-centeredness-questionnaire-reliability-and-validity-of-a-one-page-questionnaire-following-surveys-in-three-patient-populations
#18
Oyvind Bjertnaes, Hilde Hestad Iversen, Olaf Holmboe, Kirsten Danielsen, Andrew Garratt
BACKGROUND: This study developed and tested the reliability and validity of the Universal Patient Centeredness Questionnaire (UPC-Q). METHODS: The UPC-Q developed in this study has three parts: 1) the aspects that patients consider the most important when receiving a relevant health care service, rating the health care services on these aspects and their prioritization, 2) the overall experiences of patients using the relevant health care service, and 3) suggestions for improvements...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27307775/a-retrospective-study-of-patient-outcomes-and-satisfaction-following-pinnaplasty
#19
Nicholas Hope, Caroline P Smith, Jim R Cullen, Neil McCluney
INTRODUCTION: Up to 5% of all children have prominent ears. Psychological distress and bullying adversely affect these children and can cause significant social exclusion. In times of austerity, cosmetic procedures such as surgical correction of prominent ears are felt to be an unnecessary cost to the health service. MATERIALS AND METHODS: A retrospective case note review of all patients undergoing pinnaplasty was undertaken. Postoperative outcomes were compared against the Royal College of Surgeons of England standards...
2016: Patient related Outcome Measures
https://www.readbyqxmd.com/read/27274329/eye-care-quality-and-accessibility-improvement-in-the-community-equality-impact-of-an-eye-health-education-program-on-patient-knowledge-about-glaucoma-and-attitudes-about-eye-care
#20
Lindsay A Rhodes, Carrie E Huisingh, Gerald McGwin, Stephen T Mennemeyer, Mary Bregantini, Nita Patel, Jinan Saaddine, John E Crews, Christopher A Girkin, Cynthia Owsley
PURPOSE: To assess the impact of the education program of the Eye Care Quality and Accessibility Improvement in the Community (EQUALITY) telemedicine program on at-risk patients' knowledge about glaucoma and attitudes about eye care as well as to assess patient satisfaction with EQUALITY. PATIENTS AND METHODS: New or existing patients presenting for a comprehensive eye exam (CEE) at one of two retail-based primary eye clinics were enrolled based on ≥1 of the following at-risk criteria for glaucoma: African Americans ≥40 years of age, Whites ≥50 years of age, diabetes, family history of glaucoma, and/or preexisting diagnosis of glaucoma...
2016: Patient related Outcome Measures
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